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Hello! I'm hoping you may check this at some point. I was so happy to read that your son was still in remission as of your last post. My daughter was diagnosed with CCSK in December, 2010. She was 18 months old. She finished treatment in June, 2011 and was in remission until March 20, 2012 (just a couple weeks ago) when a routine MRI showed a 7mm mass in her brain. We just finished our last day of her first round of chemo, today. I was hoping to compare notes, and maybe just have someone to talk to. I have yet to actually find someone who's child has/had CCSK. Thank you for taking the time to read this! Also, you're welcome to call me as well. (903) 353-1701. : )
Laura Eddings <Eddings8@ymail.com>
Longview, TX USA - Monday, April 9, 2012 10:45 AM CDT
Hi Jonothan, Anne and Gregg,
Haven't checked in lately but you are never far from our thoughts and prayers. We are so happy to hear that Jonothan is doing so well with all his tests and scans.
Love, Uncle Ted, Aunt Edie, Lea and Chris
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Saturday, November 3, 2007 10:22 AM CDT
Hi, I am so glad to hear that Jonathan is in remission for three years now! I actually came across your story when I visited Andy's page. I saw that you haven't updated since April 2006 and didn't want to sign the guestbook in case you wouldn't check. I am glad to hear that you haven't had to update often because of the great news. I grately anticipate the day, we too, don't have to update as often due to GOOD health and dare I say, REMISSION! Jonathan has been in our prayers for over two weeks now. His name joined our nightly list because as I said I viewed his site. I can't thank you enough for visiting Alexa's site. If you would like to talk, you can call me at 631-751-0945 or on my cell at 631-680-6879. I wish continued health for Jonathan and your family! You will continue to stay in our prayers. Sincerely, Tom, Debbie and Alexa Moore
www.caringbridge.org/visit/alexareneemoore
Debbie Moore <luv2teach14@aol.com>
Stony Brook, NY US - Wednesday, August 1, 2007 10:50 AM CDT
Good Morning! Thank you for signing Alexa's guestbook. I am so happy to hear that Jonathan has been in remission for three years-good boy, Jonathan! I actually have looked at his site before. I saw the journal's last date of April and wasn't sure if you'd check the guestbook. I am sure with life "back to normal" it's not necessary to update all the time (I anxiously await that day). We are very new to this battle, so we have a long journey ahead, but like Jonathan, Alexa is a fighter and I KNOW we'll be joining your family in the land of "remission". My phone number is 631-751-0945 and my cell # is 631-680-6879 if you'd ever like to talk. You may not believe me when I say that Jonathan has already been on our list of nightly prayers, but it's true. I found him on Andy's site a few weeks back. I only saw two journals that were currently updated. Some even further back to the year 2005. I felt strange signing the guestbook as you can imagine. I will check back on Jonathan. I am at Sloan Memorial Kettering right now awaiting Alexa's chemotherapy treatment for the day. Take care and thanks again. Continued luck, HEALTH and happiness to your family! Sincerely, Debbie, Tom and Alexa Moore
www.caringbridge.org/visit/alexareneemoore
Debbie Moore <luv2teach14@aol.com>
Stony Brook, NY United States - Wednesday, August 1, 2007 8:22 AM CDT
Hi Jonthan! I'm sorry that it's been forever since we've been to your page. I'm so glad to read good reports on how you're doing!!
Come by and see us when you get a chance. Have a great summer big boy :)
Dane, Marni and Peyton (www.caringbridge.org/tx/peytonwhite) <marni1290@yahoo.com>
Midlothian, TX - Friday, June 22, 2007 1:59 PM CDT
Hi Sweetboy:
I can't believe you are 5 years old.
You are such a Joy in my life. Papa's too.
What fun it is to take you to Dainty School. I love your
questions?
Papa tells me you love to beat him at Fish.
We love to watch you at Baseball, you are really good at
hitting the Ball.
We love you so much.
Nana and Papa
Mary A. Hydorn <MAEWoodsie@Aol.Com>
Brentwood, Ca USA - Saturday, June 2, 2007 8:54 AM CDT
So glad to hear Jonathan is doing so well. Gives me hope for my grandon Christian who was diagnosed with CCSK in January 2005. He went into remission for a year after 9 months chemo but showed signs of cancer in the bone last year. He has been having regular chemo since November and tomorrow starts an intensive course of treatment. One week receiving daily doses of 2 types of chemo followed by one massive dose of a completely new chemo.All this followed by radiotherapy on the leg. All very scary but we have hope reading about Jonathan. Love to you all. xxx
June Arthur <june@thearthurs.co.uk>
Wimborne, Dorset UK - Tuesday, April 24, 2007 6:04 PM CDT
Wow Jonathon, you are soooo cute! We are so excited that we are going to live close to you. Bayley and Adyson are looking forward to camping trips, building forts,sleep overs, playing and lots of laughing. We love you so much!!!! Love You, Aunt Roxanne, Uncle Matt, Bayley and Adyson :0) xoxoxoxoxoxoxoxoxoxoxo
Roxanne Maleske <mrbske@aol.com>
- Wednesday, February 21, 2007 2:22 PM CST
Hi Sweetheart:
I love you very much. I miss you. See you soon.
Love Nana
Mary Hydorn <MAEWoodsie@Aol.Com>
Brentwood, Ca USA - Friday, February 9, 2007 8:24 PM CST
HI,
Just wanted to let you know that you are never far from our thoughts and prayers.
Love, Uncle Ted, Aunt Edie, cousins, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA United States - Saturday, November 25, 2006 10:30 AM CST
Hi,
We still think of you and pray for Jonathon. We are so glad that he is doing so well. Our love and prayers always.
Uncle Ted, Aunt Edie, Cuz, Lea and Chris.
Uncle Ted, Aunt Edie <tejonas@internet49.com>
Auburn, CA United States - Thursday, July 20, 2006 9:53 AM CDT
We are so happy to hear how well Jonathon is doing. Thank you for the sweet Christmas card. Jonathon is such the cutie! I can't get over how big he's getting. It's been a while since we last saw all of you. Hope to see you in the New Year!
Wishing all of you a Happy and Healthy New Year.
Lots of Love & Smiles,
Mindy, James & Cory <jmprhere@comcast.net>
Sacramento, CA US - Thursday, December 29, 2005 7:22 PM CST
Hi Jonathon:
What fun it was at your Thanksgiving Festival last week.
Can't wait to see you Thanksgiving Day. I love when you
help me set the Table. You do such a great job.
I love you very much.
NaNa
Mary Hydorn <maewoodsie@aol.com>
Brentwood, Ca USA - Tuesday, November 22, 2005 9:42 AM CST
Hi Jonathon:
We leave tomorrow for your first camping trip that you will
remember.
Your first one was when you were about 6 weeks or so. We
had so much fun, you, mommy, daddy, papa and me your Nana.
This time you will fish. Daddy has a boat for you to go in.
You are doing so great! Now you are in pre-school. I can't believe it. You are so smart. You are 3 years old.
I love you,
NaNa Mary
Mary Hydorn <MAWoodsie@Aol.Com>
Brentwood, Ca USA - Tuesday, August 23, 2005 7:39 PM CDT
Hi Guys,
We are so very pleased to hear that Jonathon is doing so good on his tests. We continue to keep Jonathon and you in our thoughts and prayers. We are happy that you had such a wonderful Easter present. Our Love and thoughts always,
Great-Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris
Theodore Jonas <tejonas@internet49.com>
Auburn, CA United States - Tuesday, March 29, 2005 2:06 PM CST
Hi Jonathan:
My name is Linda, and I help your mom when she's at work. She told me about you and I wanted to say hi to you here on your website. I am very happy to hear that you are doing so well. I hope you have lots of fun over this Easter weekend.
Linda Andrade <landrade@hansonbridgett.com>
San Francisco, CA US - Friday, March 25, 2005 3:05 PM CST
Hi Jonathan:
My name is Linda, and I help your mom when she's at work. She told me about you and I wanted to say hi to you here on your website. I am very happy to hear that you are doing so well. I hope you have lots of fun over this Easter weekend.
Linda Andrade <landrade@hansonbridgett.com>
San Francisco, CA US - Friday, March 25, 2005 3:04 PM CST
Hi Jonathan,
We're sending prayers for clear scans.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Wednesday, March 16, 2005 10:48 PM CST
Jonathon's web site stays with me so I can continually check on his progress. I've shared the web site name with others with ailing children; computers can be blessings in positive ways. God gets the glory for His amazing miracles!! Blessing, peace, and health in this new year!!
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA - Monday, January 31, 2005 7:18 PM CST
Hi Jonathan,
We are so glad to hear you are doing well. I'm sure you are making your Mom & Dad proud everyday. I know how much fun it is to watch little boys grow. We think of you often and hope we can all get together soon.
Love,
Anna, Dave, Aidan & Ryan
Anna & Dave McHenry <anna.mchenry@comcast.net>
Folsom, CA - Saturday, January 15, 2005 4:35 PM CST
Merry Christmas!
Logan's Uncle Bryan, Aunt Mel, Maddux, and Kaleigh (TX logancherry) <utahcongers@yahoo.com>
Murray, UT - Tuesday, December 21, 2004 10:15 AM CST
Hi From Nana and Papa
You are so wonderful. Had a great Thanksgiving with all of
you. So much better than last year.
We had a great time cutting down our Christmas Trees together and all the goodies we brought home.
You are doing so wonderful Jonathon. We love you.
Nana and Papa Hydorn
Bob and Mary Hydorn <MAEWoodsie@Aol.Com>
Brentwood, Ca USA - Friday, December 3, 2004 9:01 PM CST
Hi Guys,
We are so pleased to hear that Jonathon is passing all his tests. He is still in our hearts and prayers as he is our special little man. We were not surprised to hear about his intelligence after all he had his Mom and Dad's intelligence to draw from. We continue to keep you all in our hearts and prayers.
Love Grest Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Monday, November 8, 2004 2:44 PM CST
Annie, Greg, & Johnathon, I have been reading your journal entries for months now and am always so touched by them. I am so sorry you all have had to go through all this and I just cannot imagine what you have been through. I have been praying for all of you and think of you often. You have a beautiful child and are so blessed to have him. I am so happy to hear the latest news and will continue to pray for you and to read your journal.
Jill, Tom, Tal, Isaiah, and Christine Swanson <jswanson@aalawfirm.com>
Greenville, SC USA - Wednesday, October 20, 2004 3:08 PM CDT
Annie, Greg and Johnathon--we are so happy to hear how well Johnathon is doing. We really long to meet him someday. We keep all of you in our prayers. It's amazing how God walks with you and gives you the strength you need to deal with the challenges you all face. You are a real testimony to the human spirit. If only everyone in the world could come to appreciate life as you do. We will continue to pray for Johnathon and you and know God's angels are there with you constantly.
Uncle Ray <heysay541@aol.com>
Houston, TX - Sunday, October 17, 2004 8:08 AM CDT
Priase God!
Stephanie & RachelJoy <mom2rj@comcast.net>
- Wednesday, October 13, 2004 7:04 PM CDT
Jonathon, your Daddy just called and your test are wonderful. Tomorrow the Pumpkin Patch and Sunday off to
Feather River and a wonderful Vacation with you. We LOVE
YOU so much. You just make our lives so special and wonderful. Your, Nana Mary and Papa Bob. Kisses and Hugs.
maryhydorn <maewoodsie@aol.com>
brentwood, ca usa - Friday, October 1, 2004 8:10 PM CDT
HI DEAR HEARTS...
GLAD ALL IS GOING WELL (EVEN THO THE FLU BUG HIT) AND I'M GLAD YOU 3 ARE GOING TO HAVE SOME SWEET FAMILY TIME IN HAWAII.
LOVE YOU, AUNT CINDY (TX)
CINDY WELZBACHER <CWELZY2@AOL.COM>
HOUSTON, TX USA - Sunday, September 19, 2004 12:45 AM CDT
Dear Jonathon,
I'm delighted that everything is going well. I'll be praying for a wonderful, fun filled trip to Hawaii.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Thursday, September 2, 2004 4:55 PM CDT
Helo Jonathan
My name is Jenna and I came across your webite. You are a Fighter and an inspiration. I don't like getting pokes either, but I just be very brave,a nd before i know it, it is done with. You are in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Monday, August 23, 2004 2:54 PM CDT
Hi Guys,
It has been awhile since we have visited your page, but Jonathon and you have always been in our thoughts and prayers. We are so happy that Jonathon is returning to having a childhood filled with happy times instead of hospital times.
Our Love and Prayers as always,
Great Grandma-Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Sunday, August 22, 2004 10:23 AM CDT
Jonathon,
I am so glad to hear how much fun you are having! I have been checking on you for awhile and get updates from my sister. I am so proud of the brave boy you have been. Keep having fun and know that I am still thinking of you!
Peyton's Aunt Stephanie <sjw1378@yahoo.com>
Fort Worth, TX USA - Friday, July 2, 2004 10:43 PM CDT
Hello Jonathan!
My name is Jenna and I came across your website. I came across your website. Congradulations that you are doing so well, and that you are still Cancer free! It sounds like you enjoyed your icecream. How did it taste?
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Wednesday, June 30, 2004 11:58 PM CDT
Hi Guys,
We are thrilled to hear that Jonathon's recent test were so successful and we continue to keep Jonathon in our prayers. Love to all, Great-Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA Placer - Friday, June 18, 2004 12:55 AM CDT
Congratulations on the clear scans!
Terry (Andy's mom) <tmdoyle@adelphia.net>
- Saturday, June 12, 2004 9:03 PM CDT
Anne and Greg--We'll be thinking of you and praying for Jonathon tomorrow. The scans will be clear and we will rejoice along side you. Let us know if you need anything.
Dane, Marni, Lindsay and Peyton <marniwhite@earthlink.net>
- Wednesday, June 9, 2004 7:02 PM CDT
Jonathon, Hello young man! I am visiting your page from a very special friend of mine's. You know her as Princess Peyton or as she has changed her name to Cheerleader Peyton. I want you to know I will be praying for you and thinking of you as you get your scans done this week. I will come back and check on you later. Lots of Hugs.
Sherrie Teel <www.DTSCALEDOCTOR@AOL.COM>
www.caringbridge.org/tx/weston, - Tuesday, June 8, 2004 10:42 PM CDT
Sending positive thoughts and prayers. Jonathon looks great, I love the hair - he so blond!
Terry <tmdoyle@adelphia.net>
- Tuesday, June 8, 2004 9:39 PM CDT
My thoughts and prayers are with your family. My son was just diagnosed with cellular mesoblastic nephroma. They said all patholgists who had reviewed his tumor said it lied between clear cell sarcoma and cellular mesoblastic nephroma. I would be very interested in reading his pathology report. If you wouldn't mind, my email address is nattygem1@cox.net Thank you so much.
natalie <nattygem1@cox.net>
phx, az - Monday, June 7, 2004 3:21 AM CDT
Happy Birthday Jonathon!! We are so sorry, we didn't realize we had missed it until now. You're birthday is the day after Lindsay's. That's so neat. We hope it was a great day for you. We know it was for mommy and daddy.
Anne, we cannot get over how wonderful Jonathon looks in the new picture posted on the site. His hair is coming in, his coloring is fantastic--he looks so...HEALTHY, which of course, is what he is and will continue to be. I know we've said this to you before, but we cannot thank you and Greg enough for sharing Jonathon's story with us. I am counting down days until Peyton is off chemo and starts to look healthy again. I read, re-read and re-read the part of your latest post about the Oncologist saying Jonathon's prognosis should be very good. We've had a few doctors dance around that phrase with us, but until Pey is off treatment and scanned, they aren't going to say that. What a glorious day that will be! Thank you for the extra encouragement you just gave us today. We are so excited that Jonathon is doing so well and are so happy for you that God is hearing everyone's prayers for Jonathon's complete and timely healing. Give him a big happy birthday hug from his biggest fans in Texas. We love you all.
Marni and Peyton <marniwhite@earthlink.net>
- Monday, May 31, 2004 10:10 PM CDT
Happy Birthday Jonathon!!! His new picture looks sooooo great! I never realized that his eyes are so bright. I just read Jill's posting... I can't believe she's taking flying lessons. You work with somebody every day and you think you know them! Anyway, I just wanted to say a quick hello, and I'm glad Jonathon is doing so well. He's definitely one of our success stories! Talk to you later,
adrienne
Adrienne <ajoyce21@yahoo.com>
Stanford, CA - Thursday, May 27, 2004 3:20 AM CDT
Hi Guys,
Jonathon looks great! We enjoyed seeing him at his birthday party. He is a terrific little kid. He is still in our prayers and hearts. Love, Great Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Tuesday, May 25, 2004 11:06 AM CDT
Hi Hydorns!!!!!! Happy Birthday Jonathon!!!!! I am so glad to hear his line is out (it's so much more fun to see kids run around without a pole attached), he's lookin good, and a trip to Disneyland, things must be great!!!!!!!! You guys deserve the best for all you hard work when Jonathon was in (and out of) the hospital! I love the picture you sent 2North. Jonathon you are too CUTE!!!!! I miss seeing you all around 2N....but it's fun to read the updates even though we don't see ya in person. Still keeping you in my prayers, Jill, 2North nurse.
P.S. I took my first flying lesson in a 2 month old, 4 seater, I think it's called a Cessna. I was very scared, but glad I did it once. I decided to stick with nursing....Hope to see you guys soon, for a good visit!!!!
Jill Hyland <jillhyland@sbcglobal.net>
Palo Alto, CA USA - Wednesday, May 12, 2004 0:50 AM CDT
Hi Anne. Happy Mother's Day. I'm sure it's your best one yet!! Let us know how you guys are doing.
Dane, Marni, Lindsay and Peyton <marniwhite@earthlink.net>
- Sunday, May 9, 2004 5:15 PM CDT
I haven't signed the guestbook in a long time, but I wanted you to know that Jonathon has continued to be in my mind and prayers.
Shai Zemach <szemach@aol.com>
- Monday, May 3, 2004 3:40 PM CDT
Hi there, I work on 2N at the hospital (night shift), and I never had the opportunity to take care of Jonathon, but we received your card, and I just wanted to let you know how much I (and all of us) appreciate your kind words. It really means a lot to us to receive something like that. I'm so glad Jonathon is doing well... I'll keep him in my thoughts. Take care and have fun at Disneyland!!! Thank you again,
Adrienne
Adrienne, 2N RN <ajoyce21@yahoo.com>
Stanford, - Saturday, May 1, 2004 6:36 AM CDT
Isn't it amazing what a celebration each and every day can be! May you be blessed with many happy and normal moments as a family.
Stephanie and RachelJoy <sstrom@quik.com>
- Wednesday, April 21, 2004 4:13 PM CDT
Springtime is here, Summer around the corner, and each day is precious. What a journey your whole family has been on. Oh, to take a bath with boats, sponges, and cups to pour...the simple joys of childhood once again. Enjoy the springtime one day at a time as it melts into summertime, again one day at a time. Each day is blessesd by the day before. The battle over, victory won, claim it for the Lord, all things possible through Him. Now it's time for fun!!
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA USA - Thursday, April 15, 2004 8:27 AM CDT
Wow! The port is out, Congratulations! Things just get better and better.
Terry (Andy's mom) <tmdoyle@adelphia.net>
- Tuesday, April 6, 2004 9:40 PM CDT
Congratulations!! That is absolutely wonderful news and I'm sure you're all very excited to be getting the central line out today! Have a wonderful, blessed Easter and I can't wait to see you ALL very soon! We'll all be sending many prayers of thanks on Sunday.
PS - You'll have to come visit us in the new house, and Jonathon can play outside with the dog in the kiddie pool!
Jessica Hoogs <jhoogs@earthlink.net>
El Cerrito, CA USA - Monday, April 5, 2004 1:18 PM CDT
Fantastic!!!! I am so abosolutely overjoyed with the news about Jonathon. I am already picturing him playing in mud!! My heart goes out to him, to you two, all the doctors and nurses, I am so touched by this experience. I love and miss you all.
Lots of love, Amy xo hugs and kisses.
Amy Esposito <pacplacesp@pacbell.net>
San Pedro, CA - Friday, April 2, 2004 5:13 PM CST
I just read the wonderful news on Jonathon's latest. My thoughts went to the incredible doctors with such patience and understanding as they love these children and must perform "nasty" things in order for these children to become healed and whole again. Here's to all of Jonathon's doctors, nurses, medical staff, at Stanford. Their rewards in heaven will be great and those they administer to on earth are blessed. God has given you two the tools to complete the job He has given you. God is the Ultimate Healer and the Victor. Amen.
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA - Saturday, March 27, 2004 9:23 AM CST
Greg, Anne, and Jonathon--We are so relieved and thrilled about your good news! Clear scans, no more chemo, port line removed--those phrases must feel so good to say :) You have been so inspiring. Thank you for sharing Jonathon's story with us. For many, I know your site has been about sharing Jonathon's progress, but for us, it has been a beacon of hope and helps us look forward to things to come. Much love to you all.
Dane, Marni, Lindsay and Peyton <marniwhite@earthlink.net>
Midlothian, TX - Friday, March 19, 2004 10:08 PM CST
Hey Guys, More Super News. We are thrilled and excited as the test results continue to be excellent! ! ! We are very thankful that the good Lord as kept you and Jonathon in His safe keeping during this time of trial. We continue to pray for Jonathon, Anne and Greg Knowing how difficult this must have been for everyone. Our Love as always, Great-grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Friday, March 19, 2004 6:56 PM CST
Hi Anne, just had a look at Jonathan's web pages, you have a great looking boy. Just a quick note to wish you all the best for tomorrow. I'll e-mail you back soon, hopefully have Harleys MRI results soon. Thinking of you all
Shona Petersen <shona_kids@clear.net.nz>
Rangiora, New Zealand - Thursday, March 18, 2004 3:16 AM CST
Congratulations on the clear scans!
Terry (Andy's mom) <tmdoyle@adelphia.net>
- Saturday, March 13, 2004 10:24 AM CST
It's evident that so many people are praying for Jonathon as well as you two, Greg and Anne. And it's obvious that all the ferverent prayers, one-by-one, are being answered, praise God. Alleluia on the recent clean test results. Jonathon, a child of God, is continuing to be blessed. Shalom...Bonnie
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA - Saturday, March 13, 2004 8:56 AM CST
Hey- - -This day has been a long time coming and we are all so thrilled with the results that you have posted! ! ! We continue to pray for Jonathons continued recovery and treasure this milestone with you. We are all sure that God is watching over this special little guy and we will continue to keep him in our hearts and prayers. Love always Great-grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Friday, March 12, 2004 8:37 PM CST
Hi Guys,
We are thinking of you and praying for Jonathon on this big day in his regime. We hope and pray that tomorrow will be a day of rejoicing and that Jonathon will pass all his tests with very positive results. Our Love and prayers as always, Great-grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Thursday, March 11, 2004 1:30 PM CST
Hi Jonathon! This is Peyton's Granny (Dane's mom). Hip, Hip, Hooray! NOMO Chemo! I know you'll be getting stronger and stronger every day. Mom and Dad: Hope all goes well with his scans, etc. today. I know you're so relieved that the treatments are over. Congratulations! We have a ways to go with Pey yet, but I hope someday she and Jonathon can meet to celebrate their victories together!
Kathy & Rob Brady <kathybrady1@yahoo.com>
Mansfield, Tx - Thursday, March 11, 2004 12:41 AM CST
We are so glad to hear that the end of treatments has come! We hope to celebrate with you at a "End of Treatments" party soon!
Bob, Leah and Tyler <COFFEEMONSTR@MSN.COM>
Santa Maria, Ca USA - Wednesday, March 3, 2004 7:39 PM CST
Hi Guys,
We haven't logged in for awhile, things have been hectic here for one reason or another. But, Jonathon has never been out of our thoughts and prayers. We are relieved as you must be that the chemo is finished and Jonathon did so well, as did Mom and Dad. We earnstly pray for continued good news for you and Jonathon. Our Prayers and Love always, Great-Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Wednesday, March 3, 2004 9:49 AM CST
Greg, Anne & Jonathon -
We are so glad to hear that Jonathon's treatments are over! You are all in our prayers, and we look forward to more and more good news. Hope to see you all some time this year. Keep up the positive outlook, and we'll keep you in our thoughts and prayers!
Tracy, Mike, Jake, Justin & Grant Pisenti <tpisenti@sbcglobal.net>
Danville, CA - Monday, March 1, 2004 10:45 PM CST
Congratulations on passing this important milestone! We're all thrilled that the last chemo treatment has come and gone and now will just continue to keep Jonathon in our thoughts and prayers through all the coming tests. I hope you'll all be able to spend some time outside in the park soon!
Jeff & Jessica Hoogs <jhoogs@earthlink.net>
El Cerrito, CA USA - Monday, March 1, 2004 9:44 PM CST
Congratulations on being off treatment!
Terry (Andy's mom) <tmdoyle@adelphia.net>
- Monday, March 1, 2004 9:41 PM CST
Jonathon - whew!! congatulations on finishing this stage of treatment - we're glad thats over!! look forward to seeing you again very soon - our love and prayers are with you always - Grandma and Grandpa T
Bill & Christine Tanner <jfs@cdepot.net>
Jackson, CA - Monday, March 1, 2004 11:24 AM CST
Congratulations!! We are so very happy that you are done with chemo. Jonathon, you have been so brave and you are a great big testimony in a little body. You have been a hero to us since we first found you and your mom and dad. Anne and Greg, thank you for all of your help, advice, and for being our island of information in this sea of confusion we are sometimes in.
We will continue to pray for Jonathon everyday and we hope you will stay in touch. I can't wait for our last day of chemo. I have a feeling I won't be fit to be around because I will be so happy to be done. In the meantime, I am going to be happy for all of you because you have fought a very good fight.
We love you all!
Dane, Marni, Lindsay and Peyton White <marniwhite@earthlink.net>
Midlothian, TX - Sunday, February 29, 2004 9:27 PM CST
hi!
Don't give up.I 'll pray for you.Take care.
laura
www.caringbridge.org/europe/laura
laura <laurasarkadi@hotmail.com>
Budapest, Hungary - Friday, February 27, 2004 7:42 AM CST
Hi Anne, Greg & Jonathon-I am a Maleske cousin from IL and want you to know that you are in my prayers and will pass this information on to other family members. Keep your eyes on Jesus! Love, Pam Mueller Johnson
Pam Johnson <pamnrandy@aol.com>
Streamwood, IL Cook - Tuesday, February 24, 2004 7:43 PM CST
Hi Jonathon, We are Peyton's Grammy and Gramps and we were talking about you tonight. We found your website and the good news that you are almost through with all of your chemo. I am so happy for you and your mom and dad. I just know that you and Peyton are both going to grow up to be wonderful people who are going to change the world. Gramps and I pray for you each night, so know that Texas is praying for you, too. Tell Mom and Dad to keep putting those beautiful pictures of you on the website so we can see how big and strong you get each day. God bless you, sweet boy.
Linda and David Williams <lwilbert1@yahoo.com>
Cleburne, Tx USA - Monday, February 23, 2004 10:38 PM CST
Aunt Sue and Uncle Ray are keeping you in our prayers. We are looking so forward to meeting you some day.
Our choir and bible study friends are all keeping you in our prayers...prayers as big as Texas.
Give your Mom and Dad a big hug for us. They are the best.
Let us know if your prayer blanket is wearing out, we can get you another.
Ray and Sue Leber <heysay541@aol.com>
Houston, TX USA - Monday, February 23, 2004 9:57 PM CST
It's great to hear that Jonathon is almost done. Being off treatment is definitely better. Be prepared for some mixed emotions, though, sometimes it feels a little scary right after treatment ends. It will be wonderful to see Jonathon get his hair back and grow stronger. These little guys seem to recover very quickly.
Terry Beck (Andy's mom) <tmdoyle@adelphia.net>
- Sunday, February 22, 2004 9:28 AM CST
Jonathon, Anne & Greg,
I am so glad you have reached the end of chemo. You are still in my daily prayers. I know it may seem overwhelming, but I believe God will never give us more than we can handle. That said, I still wish you didn't have to go through this. Jonathon is very strong, as are his parents. I wish I could be there to hug all of you.
All my love, your cousin, Julie Belle
Julie Younce <tonyjulieb92@yahoo.com>
Greenville, SC USA - Saturday, February 21, 2004 12:59 AM CST
Hi Jonathon,
We are so glad to hear you are almost done with chemo!! We are praying for a complete and quick healing. We can't wait for our chemo to be over. We should finish up in July. After that, we're going to the beach to celebrate! We hope you do something fun too! God bless you and your family. Your friend, Peyton.
Dane, Marni and Peyton White <marniwhite@earthlink.net>
Midlothian, TX - Monday, February 16, 2004 3:46 PM CST
Dear Jonothan: Sending you lots of love on this special valentine's day. Thinking of you and continuing our prayers for you to feel better and put all of this behind you.
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA USA - Saturday, February 14, 2004 11:54 PM CST
Happy Valentines Day, From Everyone at Post Pals
viks <viks@postpals.co.uk>
- Saturday, February 14, 2004 9:29 PM CST
Happy Valentines Day! Hope you are all enjoying your party.
Can't wait to see new photos. Much love, Aunt Nancy
Nancy Jonas <njonas@innercite.com>
Rescue, CA USA - Saturday, February 14, 2004 5:52 PM CST
Dearest Greg, Anne and Jonathon.....I just read comments from the previous entry from "Sophia" who also has undergone treatment for CCSK. I went to her website and found photos of a most beautiful little with a million-dollar smile. I sent her a note too. One has to believe that these angels are here for a special reason and that they will live to do great things in this world after going through such difficult times in their tender years. Jonathon, we love you immensely and still have a daily prayer for you. We will now add Sophia to our prayer regimen. You have all of our love. We cannot wait until you are finally finished with these treatments so that we can come for a visit. Looking forward to holding you.
Much love, Aunt Nancy,Uncle Tom, JJ and Becca
Nancy Jonas <njonas@innercite.com>
Rescue, CA USA - Thursday, February 12, 2004 5:47 PM CST
Hey Jonathan. My name is Sophia and I also was diagnosed with Stage I, CCSK, about 1 year ago. I finished my treatment in September 2003. My hair is growing back and I'm feeling really great. I know the chemo can be tough and there are some days when you feel yucky, but just know that lots of extra special kids have gone through this regimen and have come out on top. You're in our thoughts and prayers. Best, Sophia Biabani (more information about my days of chemo can be found at www.caringbridge.org/dc/sophia)
Sophia Biabani <eegan@cov.com>
Washington , DC - Thursday, February 12, 2004 12:20 AM CST
Hi Jonathon:
What fun you had yesterday at Stanford with all the "Pup Pups" that were there for a visit. That is what you call
puppies. There were at least 9 and they were all surrounding
you and kissing you and you were very gentle with them.
You also petted a Bunny, sure wish Nana had a camera.
But your very favorite are the trains that you like to watch. We spent a long time as you did'nt want to
leave. How you love trains. I have such fun with you. Keeping up with you is a
challenge for you Nana with your high energy.
You will be home on Monday and Papa and I can't wait to see
you.
Only one more 3 day stay for Chemo. Yea!
We are going to celebrate. You are such a trooper.
Papa and I think about you each day and are so grateful for
you being in our lives.
We pray for you and your mommy and daddy.
Love, Nana
Mary Hydorn <maewoodsie@aol.com>
Brentwood, Ca USA - Sunday, February 8, 2004 11:05 AM CST
Dear All,
That's wonderful about Jonathon's scans yesterday. You are all in my thoughts and prayers this weekend. With February already here, spring - a time of hope and renewal and new life - is just around the corner. Hang in there, and know we're all thinking about you and keeping you in our prayers.
jess***
Jessica Hoogs <jhoogs@earthlink.net>
El Cerrito, CA USA - Friday, February 6, 2004 11:42 AM CST
Dear Jonathon and his wonderful family,
While I write this, you are driving to Stanford. I pray for your safe journey on the road and pray for a positive
outcome for your testing today. God is holding you in the palm of his hand. Trust in God; he made you.
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA USA - Friday, February 6, 2004 8:38 AM CST
Dear Jonathan and family, We are praying as you wait for scan day to come. We are trusting the Lord to provide the peace that passes understanding.
We used to live about 5 miles from Stanford, but moved to Oregon just before the new children's hospital opened. We've heard it's quite a wonderful place.
Stephanie and RachelJoy <sstrom@quik.com>
- Monday, February 2, 2004 11:18 PM CST
Anne, Gregg and Jonathon,
We are keeping all of you in our prayers and thoughts everyday. We marvel at your ability to cope with Jonathons burden and hope you know that you are not alone at this time. Love and prayers always, Great-Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Sunday, February 1, 2004 1:37 PM CST
Dear Anne, Greg and Jonathon,
I am happy to see that your last entry was a positive one. I had no idea your baby boy was so sick :(. I will absolutely keep you all in my prayers. Anne - I know you are a strong person from working with you this past summer, and that you and your family will make it through this. Your family will be in my heart and mind - especially Jonathon - and I wish you all the best. Please take care of yourselves.
With love,
Rovianne
Rovianne <Rovianne@boalthall.berkeley.edu>
San Francisco, CA USA - Friday, January 30, 2004 5:35 PM CST
Dear Anne, Greg and Jonathon,
I am happy to hear that you are nearing the end of the treatments. Although I have not written in a while, you continue to be in my mind and my prayers. Continue to be strong. I wish you the best.
Shai Zemach <szemach@aol.com>
San Francisco, CA USA - Thursday, January 29, 2004 12:04 AM CST
Greg, Anne and Jonathon:
The three of you continue to be in my daily thoughts and prayers. Glad to hear that your through the major part of the treatment. I miss you all and hope to see you soon. xo xo hugs and kisses.
Amy <pacplacesp@pacbell.net>
San Pedro, CA USA - Monday, January 26, 2004 12:49 AM CST
Dear Anne,Greg, Bob and Mary, Our Love and Prayers are with all of you and especially for Jonathon. Geri and Ed
Geri Lamantia and Ed Lampe <gerigg4@aol.com>
San Ramon, CA USA - Saturday, January 24, 2004 6:23 PM CST
We are with you in spirit as you venture into these final weeks of therapy with Jonathon. We can't wait to celebrate the end of this with you and the family. We hold you up in our prayers!
Leah, Bob and Tyler <coffeemonstr@aol.com>
Santa Maria, ca usa - Thursday, January 22, 2004 5:52 PM CST
Thanks for the GREAT updates on you Sons CCSK my daughter was just diagnosed with CCSK on 12/27/03 and it gives me insite on what to expect. Good luck to you and your family. We will pray for you...
Dane <daneo68@yahoo.com>
Midlothian, Tx USA - Tuesday, January 20, 2004 7:51 PM CST
Hi Guys,
We are excited for Jonathon that he has completed this much of his treatments and is doing so well. Your family is in our hearts and prayers constantly.
Love you always, Great Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Friday, January 16, 2004 10:56 AM CST
Jonathon, you are quite a cute little guy! I'm praying that the remainder of your treatments will go well, and you can get on about the business of being a busy toddler without interruption.
Stephanie and RachelJoy <sstrom@quik.com>
- Wednesday, January 7, 2004 4:17 PM CST
Dear Anne, Greg, and Jonathon,
Our prayers go out to you all that 2004 brings you many blessings, and a little rest from all the chaos of this past year. Congratulations on soing so well this far. Only one more 5 day treatment left! Anne, I look forward to seeing you this week if you get a chance to leave the house for a little bit.
Love,
Jessica <jhoogs@earthlink.net>
El Cerrito, CA USA - Sunday, January 4, 2004 12:16 AM CST
Hi Guys,
Our prayers and thoughts have been on Jonathon and you at this joyous time of year. We pray that this new year will find much to be joyful about and that you will be blessed with an excellent prognosis. Our Love and Prayers always. Great Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted and Edie Jonas <tejonas@internet49.com>
Auburn, CA USA - Tuesday, December 30, 2003 11:04 AM CST
Dear Anne, Greg and Jonathon,
Just learned of all of this yesterday. Prayers offered for Jonathon at St. Hilary's Church, Hesperia, and added to the Prayer Chain there. May the Lord in all His mercy continue to hold Jonathon in His everlasting arms - - Anne and Greg, too.
Love, Grandpa Ken Maleske
Ken Maleske <Purkaple@aol.com>
Hesperia, CA USA - Sunday, December 21, 2003 6:02 PM CST
Thinking of both of you this particular week-end as Greg's parents are away for the wedding in Texas. In our family, we have a 11 months nephew who was born at 1-1/2 pounds and this past year has been monumental for them with isolation and constant emergency trips to hospital. We know what they are going through, physically and emotionally, and we can image you too are there as well. Hope and peace be with you both as you are continually in my prayers.
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA - Saturday, December 13, 2003 8:22 PM CST
Dearest Anne and Greg......I sent a long email to the home address a couple of weeks ago, but apparently it came back unreceived. Anyhow, just want you all to know that I check the site daily and keep everyone updated. I replace Jonathon's name on several prayer rolls every two weeks to keep it current. That is wonderful news about the prognosis for CCSK. There will come a time when you will NOT think about this everyday. Its hard to know that you are having to go through this hard stuff but it does work, thankfully. Give Jonathon a big squeeze from Aunt Nancy and please know how much our family loves you all. We talk daily and pray daily for you all.
Love always, Aunt Nancy
Nancy Jonas <njonas@innercite.com>
Rescue, CA USA - Monday, December 8, 2003 12:52 AM CST
Anne,Greg and Jonathon,
We have been praying for Jonathon. He is a brave little boy with wonderful parents and loved ones to help him through this. I've just recently learned of this web site and will be watching his progress and keeping all of you in my thoughts and prayers. Take care,
Julie Belle, Tony, Anna & Emma Younce <tonyjulieb92@yahoo.com>
Greenville, SC - Tuesday, December 2, 2003 8:05 AM CST
Hi Guys,
We are thrilled to hear that Jonathon had a great Thanksgiving. Your news gave us all an extra reason to be thankful this year. We pray and hope the good news continues. As always you are all in our prayers, especially Jonathon. Love to All, Great-Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Monday, December 1, 2003 1:10 PM CST
You are my HEART
Mary Hydorn <MAEWoodsie@Aol.Com>
Woodside, Ca USA - Tuesday, November 25, 2003 9:10 PM CST
Thank you for continuing your updates on Jonathon. I personally appreciate the time it takes to recapture Jonathon's schedule for all of us. You are allowing us to travel with you on this journey of Jonathon's treatments and plan of recovery. I pray that you truly feel the burden somewhat lightened as all of us out here help you carry this heavy load. With love and support,
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA USA - Sunday, November 23, 2003 11:22 PM CST
So glad to hear that things are going smoothly!! What a little trooper you have! Hope you have a great week at home, we have a lot to be thankful for this week, good health being number one!
Bob, Leah and Tyler Tanner <coffeemonstr@aol.com>
Santa Maria, Ca USA - Sunday, November 23, 2003 6:28 PM CST
Hi Greg, Ann and Jonathon
You are in our thoughts and prayers. We hope to see you all soon.
Nick, Belinda, Nicholas and Ali
Nick <nicnblin@aol.com>
REdwood City, CA USA - Saturday, November 22, 2003 5:33 PM CST
Hi Guys,
We are glad to hear that Jonathons last stay wasn't as difficult as the ones before. You two and Jonathon are always in our hearts and prayers. Our Love and prayers always. Great-Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted and Edie Jonas <tejonas@internet49.com>
Auburn, CA USA - Friday, November 21, 2003 12:08 AM CST
Greg, Anne and Jonathon,
Congratulations on making it through another 5 day treatment. I know how grueling it is for you all. You are all in my prayers and I was so happy to read that things went relatively smoothly over the weekend. I hope you have a chance to sit down and catch your breath this week. Take care and I hope to see you all soon!
Love,
Jessica Hoogs <jhoogs@earthlink.net>
El Cerrito, CA USA - Wednesday, November 19, 2003 1:09 PM CST
Greg and Anne:
On behalf of myself and Tim, I wanted to forward our thoughts and wishes for your family as your journey with Jonathan continues. We know from experience that the frequent trips of a flying career can be difficult, and your love and strength are an inspiration to us all. It's also apparent to me that you have put your advocacy skills to good us in the hospital! Please know that you are in our daily prayers, as well as in those of our close family, friends, and church community. Blessings, The Slaters--Tim, Lynne and Jake
Lynne Stark-Slater <l_slater@comcast.net>
Santa Rosa, CA USA - Monday, November 17, 2003 9:29 PM CST
Hi Greg, Anne! Sending lots of love and hugs your way and especially to your sweet little man. Nice to hear that he has his days free to play. Sounds like things are progressing well. Also glad to hear you are nearing the halfway mark. Hopefully by the time you get this message you will be home again. Lots and lots of love, Amy
Amy Esposito <pacplacesp@pacbell.net>
San Pedro, Ca USA - Monday, November 17, 2003 6:30 PM CST
Dear Anne, Gregg and Jonathan- I must tell you that you are ALL very strong, wonderful individuals. Your strength, optisim, and support to one another will GREATLY help you in this type of situation. We know, because we were there! My son Dustin is a healthy, happy, very active little 3 year old. Last year, one month before his 2 yr. old birthday, Dustin was also diagnosed with CCSK. Everything you have written in regard to feelings and emotions were ours!! I want you to now that children are resiliant!! They might be small, but are much "stronger" than we think they are. Dustin had the same protocol as Jonathan, and did great. He completed his last treatment in mid March, and just got his port out 1 week before his 3rd birthday! (that was the BEST birthday present anyone can ask for) We continually go for his follow up tests/scans every 3 months and just know that our little guy is going to be great!! If you would like to ask me ANYTHING, please email me...it will be my pleasure to talk with you. I do pray for you and only wish you all the best of luck.....think positive and try to keep a smile on as much as possible.
Cheryl Gill <cherjgill@hotmail.com>
Boca Raton, FL USA - Friday, November 14, 2003 1:10 PM CST
Dear Anne, Greg and Jonathon: I continue to think of you constantly. These updates are wonderful. Keep up your amazing strength and get through the next 5 days - you'll be that much closer to the successful conclusion of all this! Please hug your sweet boy for me.
Sandy Rappaport <srappaport@hansonbridgett.com>
San Francisco, CA USA - Thursday, November 13, 2003 1:42 PM CST
Dear Anne & Greg,
We are so saddened to learn of Jonathon's illness and protracted battle with CCSK. Your website was very helpful to keep us informed and up-to-date on Johnathon's progress and the very difficult times you have had to endure. Our thoughts are with you.
Duane & Sandy Tom <duanetom@comcast.net>
Hayward, CA USA - Friday, November 7, 2003 1:52 AM CST
Hi Guys,
We are all praying that Jonathons' week gets better. We hope the cause of most of his discomfort is some new teeth and nothing more serious. We love you all and admire the strenght you are showing in this distressful time. Love, Great-Grandma Jonas, Uncle Ted, Aunt Edie Lea and Chris.
Ted and Edie Jonas <tejonas@internet49.com>
Auburn, CA USA - Thursday, November 6, 2003 12:44 AM CST
I am impressed everyday of your strength and courage Ann and Greg, I'm sure that's why Jonathon is doing so well too. He's such a fighter! Those pictures are adorable too!Sending our prayers from Santa Maria!
Leah and Bob <coffeemonstr@aol.com>
Santa Maria, CA USA - Thursday, November 6, 2003 12:20 AM CST
Dear Jonathon, Anne, and Greg,
I just heard about Jonathon. My prayers and love are with all of you. If there is anything we can do to help, please let us know.
Betty and Art Breves
Betty Breves
San Leandro, CA United States - Tuesday, November 4, 2003 8:13 PM CST
Jonathon, Ann, and Greg,
On behalf of myself and Kim - We want you to know that we will be praying for Jonanthan and for you both as well. The staff here at Roddy Ranch is thinking of you all. Be strong and best wishes.
Love,
Kevin and Kimberly Fitzgerald
&
Your friends at Roddy Ranch
Kevin Fitzgerald <kfitzgerald@roddyranch.com>
Brentwood, CA USA - Thursday, October 30, 2003 1:00 PM CST
Anne & Greg,
My Mom sent me the link to Jonathon's web page about a week ago. I have been reading your journal entries and keeping up with Jonathon's progress. I've tried several times to write something here but I always seem to stop or just sit and stare at the screen. All I can say is that my heart and prayers go out to you, Greg and Jonathon. Your strength and passion for his recovery is an inspiration... We are all praying for him to beat this!
Sending our love... Mindy & James
Mindy Bellefleur <MindyBellefleur@aol.com>
Sacramento, CA - Thursday, October 30, 2003 10:08 AM CST
Dear Jonathon, Ann, and Greg,
I am amazed at how well you are handling the current situation. Especialy doing these medical procedures on your own son! Ann in a sense I figure you and my moms "problems" with the whole procedures that you guys just learned to do on your own is one in the same (Mom feints when she sees blood or someone getting a shot).
Tell Jonathon that cousin Chris loves him very much! I pray for you every night. Seeing as this next part is a little off topic I was kinda hoping that you could e-mail me back if you get time. So I have started high school! Finaly... it is really fun, I made friends with the upper-classmen on the first day because of band. Speaking of band, how is guitar going Greg? It seems like it has been forever since I have seen you guys. I already missed all of you (Aunt Mary, Uncle Bob, Jonathon, Greg and Ann) on the fly home.:(
With lots o' love
Cousin Chris (Leber)
P.S. Please tell Aunt Mary and Uncle Bob I love them.
Cousin Chris (Leber) <cleberay@kc.rr.com>
Overland Park, KS US - Wednesday, October 29, 2003 10:03 PM CST
Annie and Greg...every time I read the updates, I am amazed at how knowledgeable and capable you are both becoming through this whole "process". Your updates and clarifications have really helped us understand what you all are going through. Jonathon is such a tropper and I know his personality is helping to sustain you throughout this...but you need to know it is your strength that feeds your son...you are all entwined in this circle of love and healing. We are all praying, loving, and caring about you each and every day. with love, Aunt Suzy and Uncle Doug
Suzy Reynolds <walkersoozy@yahoo.com>
Atascadero, ca usa - Tuesday, October 28, 2003 10:12 PM CST
Hi guys.
We keep Jonathon in our prayers here and are so glad to hear that his stay at the hospital is going better this time. Happy Birthday to the big guy as well. Our Love and Prayers, Uncle Ted, Aunt Edie, Lea, Chris and Great-Grandma Jonas
Ted Jonas <tejonas@internet49.com>
Auburn, CA - Sunday, October 26, 2003 2:18 PM CST
Dear Jonathon, Anne and Greg: it is great to read the updates and hear that Jonathon is doing better each day and is responding well to the treatments. This is a great trend and both Naama and I are praying that this trend continues until this will only be one of the not too many struggles that Jonathon overcomes over his long and fruitful life!
Shai and Naama Zemach <szemach!@aol.com>
San Francisco, CA USA - Saturday, October 25, 2003 6:14 PM CDT
Jonathon is getting his needed medicines for his combat with his disease. And Greg and Anne and Grandparents are getting their needed medicine too... of caring family, friends, and even friends of friends with prayers and encouraging greetings. All of you continue to be in my prayers each day. All things are possible through Christ who strengthens you (one day at a time). Love,
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA USA - Saturday, October 25, 2003 0:20 AM CDT
Anne, Greg and Johnathan:
May God continue to bless you with strenth and love! I am a friend of Amy Esposito who is now caught up in the story of Johnathan. He will be in my daily prayers, as will you, Anne and Greg. You are an extraordinary family. Kisses to Johnathan.
Joann LaBarbera <jlb@victory-group.com>
San Pedro, CA 90731 - Friday, October 24, 2003 1:02 PM CDT
Good Morning Guys:
Just a message to say hello and let you know I am thinking of you today.I know Jonathon is going in for treatment today. Lots of love and hugs to him.
Amy xo
Amy <pacplacesp@pacbell.net>
San Pedro, - Thursday, October 23, 2003 1:45 PM CDT
Hi my name is Jenna and I was born with a rare bone disease. Jonathan is a real inspiration and real trooper. He is a real cutie!
My site: http://www.matmice.com/home/fighterandchampion
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Thursday, October 23, 2003 1:36 AM CDT
Anne,Greg and Johnathon,
Our thoughts and prayers are with you. The web site is a wonderful way to keep everyone informed of Johnathons progress.
Shelly,Criss and Meagan <2mkesner@yahoo.com>
Sacramento, CA USA - Wednesday, October 22, 2003 3:35 PM CDT
Anne, Greg & Johnathon,
Mimi just sent me this web site. It is really incredible, Thank you for updating us and letting us know how Johnathon is doing. We have been thinking of him and all of you have been in our thoughts and prayers. The pictures are adorable! Happy Birthday Greg, enjoy your day! Lots of Love, Anna, Dave & Aidan
Anna, Dave & Aidan <anna.mchenry@comcast.net>
Sacramento, CA - Wednesday, October 22, 2003 1:13 PM CDT
Hi guys,
"1/4 of the way done" IS a milestone to celebrate! As is Greg's birthday (Happy Birthday!) and Jonathon's first "mama!" You are all in my thoughts and prayers constantly and I can't wait till you reach a point, Anne, where you can take a break for lunch someday. I'll be thinking of you during your 3-day stint this week.
Jessica Hoogs <jhoogs@earthlink.net>
Berkeley (but not for long!), CA USA - Tuesday, October 21, 2003 7:52 PM CDT
Hi Greg, Anne and Jonathon:
Thanks so much for the website update on Jonathon's condition. Happy Birthday to you Greg. I hope you have a wonderful time and am happy to hear that you are home for the time and 1/4 of the way complete. You are always in my thoughts. I love you all very much.
Your friend, Amy xo xo
Amy Esposito <pacplacesp@pacbell.net>
San Pedro, Ca LA - Tuesday, October 21, 2003 1:16 PM CDT
Dearest Anne, Greg and Jonathon
Thank you so much for taking the time to keep us updated on Jonathon. It is so wonderful to see the photos and see how well you are all dealing with this. You are an example of how positive attitude can make a difficult time easier on this very loved and adorable little boy. We are so proud of you all and I know that God is proud of you too. We continue to pray and ask others around us to include you all in their prayers as well. Greg.....Happy Birthday!! I know that your celebration will have an extra boost today because you have your little boy feeling better and that makes everyone happy. I hope your birthday is wonderful. Give our love to your folks from us. All of our love and prayers.
Uncle Tom, Aunt Nancy, Jeremy and Rebecca
Nancy Jonas <njonas@innercite.com>
Rescue, CA USA - Tuesday, October 21, 2003 12:58 AM CDT
It's great to know Jonathon is having some good days. So glad you're going out to celebrate Dad's birthday tonight.
HAPPY BIRTHDAY, GREG! We're continuing prayers for all of you, seems God is listening.
Love, Kathy & Jerry Russell
Kathy Russell <krussell63013@yahoo.com>
Beaufort, MO USA - Tuesday, October 21, 2003 8:13 AM CDT
Dear Greg, Anne & Jonathon,
We're glad to hear that Jonathon's condition is improving and sounding so positive. We will keep you in our thoughts and prayers.
God Bless......Jeff, Cindy & Brandon Kockelman
Jeff Kockelman <poiboya300@cox.net>
Cave Creek, AZ US - Monday, October 20, 2003 7:53 PM CDT
I am so glad to hear you're at home, and love the new pictures. My thoughts and prayers are with you all the time. Love you all very much!
Emily (Andrew and Seth)
Emily Cherry <ereynold13@hotmail.com>
Atascadero, Ca USA - Monday, October 20, 2003 2:35 PM CDT
Jonathon
We loved to see you with your courage bear. What a great
picture!!! We miss you and love you so much. Enjoy your
time at home and know that we are always thinking about
you. We send our love and prayers..
Aunt Roxanne, Uncle Matt, Bayley, and Adyson
Roxanne Maleske <mrbske@aol.com>
- Sunday, October 19, 2003 2:20 PM CDT
Our thoughts and prayers go out to both of you and your son. To say the least, this story has touched our hearts and we wish you the very best through the difficult times ahead. I work with Harry Hanson at St. Mary's Medical Center and he informed us of your son's medical problems. What a cute and strong kid! Jonathon, good luck and stay strong!
Best wishes,
Samuel & Priska Jayme <sammyboy78@sbcglobal.net>
San Francisco, CA USA - Monday, October 13, 2003 10:09 PM CDT
Our thoughts and prayers are with both you and Jonathan. May he have a speedy and complete recovery.
Tony and Rose Carvelli <tony_carvelli@comcast.net>
Sacramento, CA USA - Sunday, October 12, 2003 4:36 PM CDT
Diane and I pray for Jonathons speedy recovery. Our hopes and prayers are with you.
Donavon McConn <djmcconn@comcast.net>
Martinez, CA USA - Friday, October 10, 2003 1:29 PM CDT
We have had Jonathon in our thoughts, what a rough few days that must have been. Sounds like Jonathon is a tough little boy! We are holding him up in our prayers.
Leah and Bob Tanner <coffeemonstr@aol.com>
Santa Maria, CA USA - Friday, October 10, 2003 12:30 AM CDT
I'm a friend of Harry Hanson, and Jonathon has really touched my heart. I will have your family in my prayers and in my family support group.
Brenda Nevarez-Baduske
Daly City, CA US - Thursday, October 9, 2003 11:04 AM CDT
Ann, Greg, & Jonathan,
What a beautiful family! Our thoughts and prayers are with you during this most difficult time.
The Viera's , Hector, Maria, Dain & Dante ( Amy's sister & family)
- Tuesday, October 7, 2003 3:01 PM CDT
Sending you my love prayers and hope that the hospital stay is and has gone well. I came back on Wednesday from being out of town for the week which is the reason for not posting a message sooner. But I have been praying from a far. Extra hugs and kisses for that courageous boy. XOX XO XOX XO :) lots o' love, Amy
Amy Esposito <pacplacesp@pacbell.net>
San Pedro, Ca USa - Monday, October 6, 2003 12:13 AM CDT
What a wonderful faith promoting website for Jonathon. Our prayers are with you Annie and Greg. We pray that Jonathon will recover from this ordeal and be well and healthy once more. You are a very special family and everyone is praying for you. with love, Jeanne and Ken. Your neighbors.
Jeanne and Ken Wilson <Portagee@sbcglobal.net>
Brentwood, CA USa - Saturday, October 4, 2003 11:56 AM CDT
Greg and Anne- what a great idea this website is. It let's us keep informed without bothering either of you. I'm glad that Jonathan enjoyed the teddybear. I will keep him in my prayers. Greg has told me that he's a strong little boy. Keep the good thoughts, I know I will. Take care and see you soon Greg.
Jenny Cooper <jenny@kaiserair.com>
Castro Valley, CA USA - Friday, October 3, 2003 5:51 PM CDT
Dearest Anne, Greg and Jonathon....Yes, yes, we will indeed
say extra prayers this week. Definitely! Our little guy is
in our daily prayers and several times during each day, another is added. We pray also for your continued strength during this difficult time for you all and pray that you will gain an increased faith in the magnificent power of love and prayer. We're with you, all the way!! May angels keep their vigil beside each of you, day and night and minister unto you and lift you up unto the Lord to sustain you through these days of treatment. May they also be there with you to sing in celebration when Jonathon is completely well. All our love, Uncle Tom, Aunt Nancy, J and Becca.
Nancy Jonas <njonas@innercite.com>
Rescue, CA USA - Friday, October 3, 2003 3:22 PM CDT
Jonathon will be in our prayers and hearts especially so for these next few days. We will be praying that he mamages this trial with as little discomfort as possible and that his treatment is successful. All our love and Prayers. Great-grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Friday, October 3, 2003 11:54 AM CDT
Hello,
All three of you are in my thoughts. You have all of my best wishes. I'll look forward to hearing that Jonathon has this thing beat.
Jennifer Ross
Jennifer Ross <jross@hansonbridgett.com>
San Francisco, CA San Francisco - Thursday, October 2, 2003 11:54 AM CDT
JONATHAN...AKA TYRONE
WE WERE VERY SAD TO HEAR ABOUT YOUR ILLNESS. WE WANT YOU TO KNOW THAT OUR THOUGHTS& LOVE ARE WITH YOU EVERYDAY. WE HOPE YOU ENJOY THE TREASURES THAT WE SENT YOU. WE KNOW WE CANT TAKE AWAY YOUR PAIN,(WISH WE COULD) ALTHOUGH HOPE WE CAN BRING YOU(MOMMY & DADDY) SOME SUNSHINE. WE LOVE YA BUNCHES
XOXOXOXO BRENDA & BILL GIBBS
WANT YOU TO KNOW THAT OUR THOUGHTS & LOVE ARE WITH YOU EVERYDAY. HOPE YOU ENJOY THE TREASURES WE SENT FOR YOU. WE KNOW WE CANT TAKE AWAY THE PAIN, BUT MAYBE WE CAN BRING YOU(MOMMY & DADDY) SOME SUNSHINE! WE LOVE YA LOTS XOXOXO BRENDA & BILL GIBBS P.S. LOVE THE PHOTOS
BRENDA GIBBS
CHICO, CA - Wednesday, October 1, 2003 2:37 PM CDT
Jonathon, Ann & Boris:
You are all in our thoughts and prayers every day! I climbed to the top of Half-Dome last weekend and had such a spiritual experience up there, that I had to say a special prayer for all of you. All our Love!!!
The Marquette Family <brucemarquette@hotmail.com>
Santa Rosa, CA - Wednesday, October 1, 2003 1:46 AM CDT
Jonathon, Annie, and Greggie,
We are thinking of all of you all of the time. You know that you can call on us for whatever you need. Jonathon, you are amazing and we love you. Hope you enjoy the goodies. Our strength, our love, our thoughts and prayers will always be with all of you. STAY STRONG! We love you,
Uncle Matt, Aunt Roxanne, Bayley, and Adyson
Matthew, Roxanne, Bayley, and Adyson Maleske <mrbske@aol.com>
Palm Springs, Ca USA - Tuesday, September 30, 2003 11:22 PM CDT
Jonathan,
I work with a friend of your Grandfathers', Harry Hanson. He told me all about you and I want you to know that I will keep you in my daily prayers. Love, Sister Timothy
Sister M. Timothy Gallagher <tgallagher@mercys.net>
San Francisco,, CA San Francisco - Tuesday, September 30, 2003 11:41 AM CDT
Greg and Ann. I would like you to know that our prayers and thoughts are with you. Been there done that know how it feels. Remember to keep your hopes high and know that all will be well. If you need someone to talk to just give me a call or E-mail me anytime 707-996-4005
Kathy Bruce Hegelein <kathyskidscorner@aol.com>
Sonoma, Ca - Tuesday, September 30, 2003 0:04 AM CDT
We are praying and thinking daily about Jonathon. What a hurrendous trial to go through. You can only think one day at a time to get you through and know that you have so much family out there who care about you and will do anything you need to help.
Joy, Crystal and Mandy <joyrn39@netzero.net>
Belmont, Ca US - Monday, September 29, 2003 1:21 PM CDT
Jonathon,
Your big cousin Craig is praying for ya. Speedy recovery Tiger. You got two of the best parents in the world looking after ya. You're in good hands. More Mega Blocks coming soon buddy.
Craig Welzbacher <giarcpnw@hotmail.com>
Los Angeles, CA USA - Monday, September 29, 2003 11:40 AM CDT
Dear Anne, Greg & Jonathon,
Even tho God sends these trying times to such good people, He must have a plan for all of this. So we're sending positive thoughts and morning-'til-night prayers that soon the clouds will be all gone and the sun will shine like never before. So glad all your family and friends have access to this web site for updates.
God Bless you all,
Kathy & Jerry Russell, St. Louis, MO
Kathy Russell <krussell63013@yahoo.com>
Beaufort, MO USA - Saturday, September 27, 2003 7:39 AM CDT
To Anne, Greg, and little Jonathan,
I was shocked and saddened by the news of my sweet cousin"s condition, however, I know that you are all strong, and have the strength of a great family on your side, as well as many, many prayers. I have you all in my thoughts and prayers, and I can't wait to see you all as soon as things get better.
I love you all very much!
Love Becky
Rebecca Jonas <Beccaj920@aol.com>
Sacramento, ca usa - Saturday, September 27, 2003 0:28 AM CDT
Dear Anne and Greg,
God created a beautiful child in Jonathon. He must love you dearly to have given him to you. Surely God is with Jonathon and you during this difficult time.
God is also working through Jonathon to pull our family together closer than we've been in a long time.
You have to know that Grandma Leber is up there saying her rosary directly to the blessed mother and praying directly to God. She won't let heaven rest until Jonathon is completely recovered.
I'm sure Mary has told you that we have had all our friends and the entire Prince of Peace Choir praying for Jonathon and you.
We hope the Prayer Blanket has been a comfort.
You are in our prayers constantly.
Uncle Ray <sayhey142@aol.com>
Houston, TX USA - Friday, September 26, 2003 3:09 PM CDT
Dear Annie, Greg and Jonathon:You know how much we are praying for all of you. We know that you will get through this and that Jonathon is a strong boy with pleanty of spirit. I have emailed all of my friends and I know they have you in their prayers. Thank God for the support you get from Bob and Mary and your parents. We love you and have you in our thoughts.
Joan and Bob Ratti <bobsjo@yahoo.com>
san mateo, ca - Thursday, September 25, 2003 6:31 PM CDT
Hi to Annie, Greg and Jonathon,
It was so nice to be able to access the web site, and I wanted to let you know that everyone I know (and see)at work is sending prayers to you all. Lots of loving thoughts coming your way... keep strong!!
Edie Jonas
Rancho Cordova, CA - Thursday, September 25, 2003 4:53 PM CDT
Greg & Annie
When Mary e-mail me about Jonathon
It really hit home
Greg I have two grandchildern
I can really relate with your Mom and Dad
And being a cancer serviver my self
Both you and Annie hang in there
There is always hope
Plus Jonathan has to come up to my daughters farm
I dont know if you remember Kandace my daughter
He has to meet Dasiy and Bernard my grandchildern
And play in Dasiy privite play ground
And meet all the animal there
Harry Hanson <HiloHarry@AOL.COM>
Napa, Ca Napa - Thursday, September 25, 2003 8:30 AM CDT
Jonathon -
your Mommy and Daddy certainly did a nice job setting up your own web page to communicate with you and with them - our prayers are with you. Its always reassuring to see you - keep that smile going - I know that it helps your Mom and Dad too - we love you very much -
Grandma and Grandpa Tanner
Bill and Christine Tanner <jfs@cdepot.net>
Jackson, CA USA - Wednesday, September 24, 2003 10:52 PM CDT
Before I go to bed at night and each morning I have the three of you in my most positive and loving thoughts. I feel truly blessed to know such wonderful people and especially your little guy, Jonathon. I am sending my strength his way.
I will be out of town til next Tuesday, I have been wanting to call you but have hesitated because you must be overwhelmed with calls. Please do not hesitate to call me if you can think of anything I can do on my end.
I love you all!
Amy
Amy Esposito <pacplacesp@pacbell.net>
San Pedro, Ca USA - Wednesday, September 24, 2003 7:05 PM CDT
Dear Jonathon, Annie and Greg,
Not a day goes by without me thinking about how you are doing. Thank you for setting up this website so family and friends near or far can be updated. Here's to a speedy recovery! Love you all!
Jack Lajinian
Grapevine, TX - Wednesday, September 24, 2003 6:06 PM CDT
Hi Guys,
Jonathon and Mom and Dad are never far from our thoughts and prayers. We are so pleased to hear and see that Jonathon is bouncing back and taking the therapy in stride as only kids can. We pray for his continued recovery and the easing of this burden from his Mom and Dads hearts. Our Love and Prayers, Great-Grandma Jonas, Uncle Ted, Aunt Edie, Lea and Chris.
Ted Jonas <tejonas@internet49.com>
Auburn, CA USA - Wednesday, September 24, 2003 5:29 PM CDT
Dear Anne, Greg and Jonathon, I am Leah Tanner's mother. She has shared with me the news of Jonathon's illness. I hope it helps to know that people you don't know are praying for each of you. Heavenly Father, please be with this family as they fight Jonathan's illness. Give them strength to deal with daily trials. Give the doctors wisdom as they treat this precious boy. Please ease the effects of treatments. Bless them with hope and joy at the end of each day. In Jesus' name, Amen
Cindy Himmelrich <chimmelrich@co.slo.ca.us>
Atascadero, CA USA - Wednesday, September 24, 2003 10:39 AM CDT
Anne, Greg and Jonathon
You are all in our prayers and especially little Jonathon. We are praying for him every day.
Eileen and Dave Sydow <ESydow5407@aol.com>
Wentville, MO USA - Tuesday, September 23, 2003 11:39 AM CDT
Anne & Greg
We were so sorry to hear the news, but were quite pleased with Jonathon's quick recovery from the surgery. What a trooper! Jennifer has given us almost daily updates. Please know we're thinking of you all and praying for you all every day!
Joele, Kevin, Meg & Mandy
Martinez, ca USA - Tuesday, September 23, 2003 11:24 AM CDT
though i dont know you or your son, i was sent your web page by a friend, and was saddened to hear your news about your little boy. i work inthe medical field, as an rn, and work withmoms and their babies...my heart and prayers go out to you in these trying times, but know that god is watching over you and your little boy. god gives children this astonishing resilience that ive seen over and over again...and i know that your little boy is recieving the best care possible. i personally know thatstanford is an exceptional facility both from a personal and professional point of view, as i have had 2 people close to me treated there for cancer as well. ill think of your little boy and keep him in my prayers....god bless.......a caring stranger.
stacy manson <slmanson@hotmail.com>
los alamitos, ca usa - Tuesday, September 23, 2003 3:47 AM CDT
Dear Father in heaven, We ask You to send Your guardian angels to watch over Jonathon. He's such a little guy with such big problems; he really needs Your help. We also ask You to minister to his whole loving family, each day and through the night. Let them feel Your peace, Your reassurance, Your strength, Your patience, Your love. Amen.
Bonnie O'Brien <jeobrien@earthlink.net>
Foster City, CA USA - Tuesday, September 23, 2003 1:22 AM CDT
Dear Jonathon, Annie and Greg,
You do not know me, but I send my loving thoughts and heart-fired prayers to all of you. My dear friend Amy Esposito told me of your challenge and just sent me this wonderful webpage. Thank you for reaching out and sharing your story. May your burden be Light, as it is shared by many. Jonathon is an inspiration to us all. You are held in the arms of eternal love and compassion.
Teresa Rogers-Jenner <teresanoelrogers@cox.net>
San Pedro, CA USA - Tuesday, September 23, 2003 1:20 AM CDT
Jonathon,
Your Uncle Matt and Aunt Roxanne are very proud of you. You have the courage of a lion and the strength of a bear. We are thinking of you always and are here to support you and your Mommy and Daddy in all their needs. Keep up your strength and determination. Don't worry I am losing my hair too! We love you all,
Matthew, Roxanne, Bayley, and Adyson
Matthew, Roxanne, Bayley, and Adyson Maleske <mrbske@aol.com>
Palm Springs, Ca. USA - Monday, September 22, 2003 11:50 PM CDT
Anne, Greg, and Jonathon,
I think of you all constantly and am thrilled to have a way to be updated regularly. Jonathon is lucky to have such a wonderful family and so many friends sending their thoughts and prayers his way. Please post as many pictures as you can - it's wonderful to see his smiling, happy face!
With love, Jess***
Jessica Hoogs <jhoogs@earthlink.net>
Berkeley, CA - Monday, September 22, 2003 10:06 PM CDT
Anne,Greg and Jonathon,
Thank you for sharing this website with us. We think and pray for you all daily, especially as Jonathon starts his treatments. What a big boy he has become, so cute! Much love to you.
Bob, Leah and Tyler Tanner <coffeemonstr@aol.com>
Santa Maria, CA USA - Monday, September 22, 2003 8:09 PM CDT
Anne, Greg and Jonathon: Thank you so much for sharing this web page with us. We have been thinking of you often and want to call however not knowing really what to say. Our thoughts and prayers are with you and we know Jonathon will come through this stronger than ever. Our love to you all.
Faye & Jim Lunsford <faye@mac.com>
Rancho Murieta, CA - Monday, September 22, 2003 3:42 PM CDT
Anne, Greg and Jonathon: I can't tell you how much I've been thinking about all of you. This website is an excellent idea, so you don't have to keep repeating yourselves to the many people who are thinking about and supporting you -- thank you for including me. I will check it regularly for updates and will pray daily for Jonathon's complete and quick recovery. He's a strong, wonderful boy who will pull through this. Please give Jonathon extra hugs from us at Hanson.
Sandy <srappaport@hansonbridgett.com>
San Francisco, CA - Monday, September 22, 2003 2:42 PM CDT
Dearest Anne and Greg...What a great idea to have a webpage! I know how hard it is to continually answer phone calls. We
are fully engaged in this process from afar and pray daily for you all. Jonathan is really showing everyone how strong
he is. It is obvious that he has a huge well of love and support to help him fight this and recover completely. We look forward to seeing you all when things settle down a little bit. Just know that we have placed his name in prayer circles here and that you are not alone at this time of your lives. With all our love, Uncle Tom, Aunt Nancy, JJ and Becca.
Nancy Jonas <njonas@innercite.com>
Rescue, CA USA - Monday, September 22, 2003 12:25 AM CDT
Annie and Greg...the website is wonderful...it was good to hear how you are doing. We just wish things were different and Jonathon was just fine. I know he will be...we just want to fast forward and get to that point. We love you and give our little Yoda a big kiss for us. With love, Aunt Suzy and Uncle Doug
Suzy Reynolds <walkersoozy@yahoo.com>
Atascadero, CA SLO - Sunday, September 21, 2003 9:49 PM CDT
Our thoughts and prayers are with you. We love you all.
Emily, Andrew, and Seth
Emily <ereynold13@hotmail.com>
- Sunday, September 21, 2003 7:01 PM CDT
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