Jillian's Hope

Thank you for visiting Jillian's Web Page. This page has been created to keep our family and friends updated on Jillian's fight against Neuroblastoma, a type of childhood cancer.
Jillian was 13 months old when she was diagnosed with Cancer, August 29, 2001.

APRIL 2003- JILLIAN WAS DECLARED TO BE IN REMISSION
Please continue to keep her and the other children who battle this beast in your thoughts and prayers.

Journal

Tuesday, May 19, 2009 8:39 PM CDT

Its been a very long time, I know.

I wanted to share this most amazing news with you! I can't even describe how we feel right now. We got news just an hour ago that Jillian's Bone Scan and CT Scan are stable, and show no evidence of disease either re-occurring or new! Yes, this is the same news as her last set of scans, but there is something different…
This is the longest period of time Jillian has ever gone without any testing for cancer since her diagnosis in 2001. The last scans she had were in July 2008 just before her eighth birthday. 10 months! We didn't realize it had been 10 months!

I must admit yesterday at the hospital I felt a bit guilty that it had been that long, as it was partially our letting time slip away that had us so far out from her last set of scans. I was not nervous about them, but I didn’t realize how extremely anxious I was to get the results until this afternoon. I had left a message around 12:30 and I just couldn’t stand it anymore by 3:30 so I called again, I have not done that in a very long time. I could feel it coming on and then just like that, a sigh of relief, I could breathe again. You know, I don’t think we will ever realize that we hold our breath just before.


For the first time since August 2001 I actually felt a bit out of place at Children's Hospital. Things have changed so much within the hospital walls, I only recognized a handful of people, and it just felt different. I guess for the first time it feels like we aren't on the top of the Oncology Departments list of priorities, which says a lot about how far Jillian has come. Don't get me wrong, I don't want to be at the top of their list, it just feels odd. I guess in a way I feel a little lost because we don't quite fit in there anymore, yet we don't quite fit in to the "regular" world either. Oh believe me... I'll get over it in time; it is just feels so strange that something which has shaped so much of our life and played such a huge role in many decisions we have made is no longer a prominent force in our everyday way of life. In so many ways cancer has made me into who I am today, it just doesn’t engulf us anymore. I still think about cancer every day, I just don't do it every minute of everyday now.

More often now, I have to remind myself of certain dates, or just how old Jillian was when something happened, but I will never forget how it made me feel. I only wish every family could do the same. A select few of you know how lucky we are to be a complete family today, you also know that the blessings we have been given are undeniably marked.

Please pray for the families that continue to battle.

Love,

Natasha, Jason, Jillian, Ian, and Maya

Read Journal History

Hospital Information:

Patient Room: My Horse and Fairy room

Oakland Childrens Hospital
Home Sweet Home
Rio Vista, CA 94571

Links:

E-mail Author: nate2080@frontiernet.net

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