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Yay!! Here's to a truly great, healing 2008, on multiple levels!
Caroline, Randy and Sarah
- Sunday, December 30, 2007 2:23 PM CST
Hope that things continue to improve with the port, and I'm glad to hear she doesn't have to take the nasty stuff any longer. Jacob has had clindamycin several times, and he can confirm the doctor's opinion that it is pretty horrible stuff, too! Wishing you all a peaceful and healthy 2008!
Shayne Newell <mom2pete@hotmail.com>
Houston, tX - Saturday, December 29, 2007 8:28 PM CST
Well Allison...we have no relation to Ivy and WE think she is very SPECIAL too! ha ha! and...Jasper is a pretty GREAT kid himself! We tell our other kids that it takes having special siblings to stay so strong and brave! So glad to hear that you all had a Merry Christmas and here is to health and happiness in 2008!
All our Love,
Desiree and family
www.caringbridge.org/visit/joshuamaligro
Desiree <desmaligro@sbcglobal.net>
Brentwood, CA USA - Saturday, December 29, 2007 10:59 AM CST
Sending wishes for the port site to heal quickly and sweet Ivy to reap its benefits. All infections be gone! Hope you all had a good Xmas and that the New Year brings exactly that.
Love,
Caroline, Randy and Sarah
- Thursday, December 27, 2007 9:36 AM CST
Sending you love and best wishes for a wonderful new year.
Donna Johnson (Logan's mom)
Katy, Tx - Wednesday, December 26, 2007 8:27 PM CST
Merry Christmas!! I hope Miss Ivy gets to feeling better and that you guys have a calm and enjoyable holiday!
Shayne Newell <mom2pete@hotmail.com>
Houston, TX - Monday, December 24, 2007 11:16 PM CST
MERRY CHRISTMAS, Ivy! We hope you and Jasper have a wonderful Christmas!! We are sure Santa will be very good to you this year!
Sending love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, December 24, 2007 10:04 AM CST
Look at all of that beautiful hair! Thank you for sharing the new photos and for the updates. I hope your Christmas is fun and uneventful! Much love and wishes for a great 2008-Becky
Rebecca Ellin <rebecca_ellin@yahoo.com>
- Friday, December 21, 2007 6:39 PM CST
Life is so full of ups and downs. We're super glad to hear Ivy is up, hope your colds are all gone and wishing you the best of all the winter holidays. May the treatments be problem-free and your family thrive in the coming year.
Much love,
Caroline, Randy and Sarah
- Thursday, December 20, 2007 9:22 AM CST
Yay Ivy! So glad it went well. Love the new pictures and wow Ivy's hair looks so dark!
Valerie
London, Oh - Tuesday, December 18, 2007 6:53 AM CST
We'll be thinking of Ivy during the surgery. I KWYM about the surgery, but you will be glad you got the port, especially going into summer. She will be able to enjoy all kinds of water fun with no worries. They really are pretty nifty (as central lines go!).
Sending many hugs your way...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Thursday, December 13, 2007 11:32 PM CST
What a thrill to read such a wonderful update. Wishing all of you a very happy holiday season!
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, December 12, 2007 9:17 AM CST
It appears that you all will have a well deserved happy holiday season. Best to your family.
Dale And Norman
Dale and Norman Greene <dale@puzzlering.net>
ALBANY, ca USA - Tuesday, December 11, 2007 6:25 PM CST
Way to go Ivy! I cant believe she is swallowing pills what an amazing fighter you have there! Sounds like a wonderful couple of weeks are on there way enjoy them. I am sure Ivy and Jasper will. Many hugs and prayers very sorry for the loss of Bill.
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, December 11, 2007 8:15 AM CST
Hi All--just caught up with last several postings. (Computer here in HI is slow and frustrating) Hope Jasper had a happy b'day. Glad to hear all is well with Ivy--may her spleen shrink and her broviac be gone soon--it is fortunate that she has been too young to realize some of what has been going on with the histio and its ramifications. Here's to lots of swimming next summer. Looking forward to spending some holiday time with you and yours. (We leave in 3 hours for our flight home--excited to resume our lives in California.) Love to all,Auntie Sara and Uncle David
sara dezerega <saradezerega@aol.com>
Orinda, Ca usa - Friday, December 7, 2007 10:07 PM CST
Happy Birthday to Jasper! And Happy Chanukah to you all! May Ivy's spleen decrease in size as the light grows with each new candle. And just as the Macabees achieved the impossible by calling on strength beyond themselves to defeat the mighty and oppressive Greek king, may we all rally the forces as Ivy defeats the invasion of histio. We love you so!
Caroline, Randy and Sarah
- Wednesday, December 5, 2007 9:36 AM CST
Hi! I hope all is well with Ivy and her latest appointment. She's such a trooper! And Jasper too...actually your whole family. I was thinking about all of you, and thought to go to the website. I'm sure everyone else at Cedar Creek would pass on their hello's to Jasper and Ivy.
Kerry Woodward <kerry.w@earthlink.net>
Berkeley, CA - Sunday, December 2, 2007 8:47 PM CST
Hoping Ivy's appt was a good one today. Thinking of you!
JoAnn <joannwhite@outtech.com>
Maple Grove, Mn US - Friday, November 30, 2007 11:14 PM CST
I just thought I'd check in-and boy am I glad I did! Great news you guys. Happiest of Holidays to your sweet family. Health and happiness to all
jill mcalpine <jillmcalpine@comcast.net>
windham, nh usa - Tuesday, November 27, 2007 10:23 PM CST
Hello to Ivy, Jaspar, Allyson, and Pete, from the McGuires. We miss you and are happy that you remain at home! Hope to see you soon.
Jessica <patrickmc2@comcast.net>
- Tuesday, November 27, 2007 6:41 PM CST
Hi Ivy, Allison, Jasper and Pete!
I thought I saw your name on the clinic board at CHO yesterday but, they said you had just left! We were so bummed to have missed you! We are thinking of you and hoping you all are having a well deserved peaceful and Happy Thanksgiving!
Take Care,
Desiree, Josh and the Maligro Family
p.s. Danika was beyond dissapointed that she missed seeing Ivy and Jasper!
Desiree <desmaligro@sbcglobal.net>
Brentwood, CA USA - Thursday, November 22, 2007 1:20 PM CST
Just wanted to let you know we're thinking about you all this Thanksgiving! Hope you have a happy, safe and healthy holiday.
Shayne Newell <mom2pete@hotmail.com>
Houston, TX - Thursday, November 22, 2007 9:22 AM CST
Yay...we're so happy to read the good news!
And yes, we're with you on the whole "much to be thankful for"--like you, we feel blessed.
We're always thinking of you and will see if we can possibly get together around the date of Patrick's next appt in January :-)
Sending many hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, November 16, 2007 9:46 PM CST
And grateful we are! Happy Thanksgiving to you all!
Love,
Caroline, Randy and Sarah
- Friday, November 16, 2007 8:10 PM CST
All-I'm so glad to hear that Ivy is doing so well and that the hike was such a success! Sending much love and hugs from NC!
Rebecca Ellin <rebecca_ellin@yahoo.com>
- Friday, November 16, 2007 3:09 PM CST
We read the guest book weekly and appreciate all the info--even tho we see you often, it's good to hear the medical scoop as well as some of the personal. --miss you. Hope all is well-- glad spleen is more normal size aand that prednisone will soon end--hope they decide on correct maintenance drugs soon.We will return from HI on Dec 8th. Happy Thanksgiving. Love to all four of you, Auntie Sara and Uncle David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Wednesday, November 14, 2007 2:39 AM CST
Hi Allyson! You guys were on my mind so I thought I'd check in - lots to catch up on and I am so glad to hear that all is well.
Jennifer <jldare@msn.com>
Charleston, SC - Friday, November 9, 2007 8:20 AM CST
allyson, pete, jasper, and ivy-- thank you for the updates and I love the pictures from the hike! Sending my love!
Sarah B. van der Schalie
- Thursday, November 8, 2007 1:32 PM CST
My wish for the entire family - that the worst is over..thank you for sharing your touching story and lives with so many people. Your journey has reached more hearts than you could every know!
Suzanne G <Suzannegil@gmail.com>
San Francisco, CA US - Wednesday, November 7, 2007 3:01 PM CST
We're so glad to hear that you all had a happy Halloween and that the steroid days are coming to an end! We check in on you every week! I sure do miss seeing Ivy's adorable smiling face on 5 south but, as long as we are all home and doing well that is all that matters! Keep up the good work!
Love and friendship,
Desiree, Josh and the Maligro Family
Desiree <desmaligro@sbcglobal.net>
Brentwood, ca USA - Tuesday, November 6, 2007 1:48 PM CST
Hey Allyson!! I'm so glad Ivy's checkups continue to bring good news.. you must be so excited that she is nearing the maintenance phase. Take care!
Toni
- Monday, November 5, 2007 4:19 PM CST
Ironically, even though I'm just across the street from you all, I still check here several times each week. When Ivy was most ill, I got in the habit and can't seem to shake it. Perhaps like knocking on wood. We'll have to do an extra celebration the day after Thanksgiving for the end of prednisone! The puppy and the lion were cuter than cuter this year (again). Love,
Auntie Beth <schoenbrgr@aol.com>
Oakland, CA - Monday, November 5, 2007 3:41 PM CST
Wonderful news about Ivy's spleen! Love the great updates. So glad they had fun trick-or-treating!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, November 5, 2007 7:40 AM CST
We absolutely read your updates. It's reassuring to hear the positive trend lately. Our thoughts are with you all, and we appreciate your informative and descriptive entries.
Dale and Norm
Dale and Norman Greene <dale@puzzlering.net>
ALBANY, ca USA - Monday, November 5, 2007 2:24 AM CST
We are one of your cyber-stalkers... we check on Ivy a lot, but don't sign in much. We're very happy to hear you are nearing the next milestone. She looks wonderful in the new photo!
Take care
Renee, Matt, Christian (LCH dx 12/04) and Jacob
(we sat by you last year at the Cleveland baseball game)
Renee LaFountain <cr_lafo@yahoo.com>
North Canton, Oh 44720 - Sunday, November 4, 2007 1:55 PM CST
Still reading, still praying, still loving. We're thrilled to hear the spleen is becoming more clearly a non-problem. Life on the roller coaster, eh? Lots of love,
Caroline, Randy and Sarah
- Friday, November 2, 2007 7:19 PM CDT
Just came to see if there were any updates. Hope no news is good news and that your family has a fun and happy Halloween!
Susan
Redmond, WA - Tuesday, October 30, 2007 8:45 PM CDT
Just stopping by to say hello. It was nice to read the Hike for the Cure updates. Very cute updates about Halloween and "homework". I'm glad to hear that Ivy's almost kicked the pneumonia/viral thing and that there will be no steroids for the next round!
Hugs, Caryn
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Wednesday, October 24, 2007 12:34 AM CDT
It has been a while since I posted here, but I do check in weekly to see what's new with Miss Ivy. I'm so glad that the end of this stage of treatment is in sight! How cute about Ivy learning to write her name, and WTG Jasper on the reading! As always, you guys are in our thoughts and prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, October 24, 2007 10:03 AM CDT
Sorry we haven't written here for a while. Between things being stable there (Thank Heavens!) and busy here, we've just been reading every day or two and keeping going. But we want you to know this doesn't mean the prayers let up for even a day. We love you so much, and think and talk about you frequently.Wishing Ivy's sweet little body to take in the healing and let the LCH cells pass out of it along with all the used up stuff she no longer needs. May she be the shining conduit that she is of love and connections here in the manifest world for many, many many years. With all our heart and soul,
Caroline, Randy and Sarah
- Monday, October 22, 2007 12:08 AM CDT
First love the new picture! Very good. Praying Dr T is right about Ivy and the spleen, he does seem like a very caring dr.
I also wanted to comment on your cousin and her children. She has done a wonderful job of raising them if that went to the great lengths they did to raise money for Ivy. What a wonderful family she has there!
Valerie <val_ea@yahoo.com>
London, OH - Friday, October 12, 2007 6:49 AM CDT
My 6 year old grandaughter Julia has been battling LCH since she was 2 1/2 years old. Symptoms before that time were misdiagnosed. The disease attacked the nervous system and she has gone from 5 brain tumors down to 3 tumors that have been sleeping for 2 years. Also 2 new tumors deep in femur bones on each leg. Presently just monitoring all of this and Julia seems to be doing well. It started in the skin and bone. Scalp & bad cradle cap. Will keep sweet little Ivy in my prayers also. She is a beautiful little spirit. Thankyou for helping to raise money to cure this dreadful disease! It is helping so many families!!!
Anne Loisel <aloisel@cogeco.ca>
Stoney Creek, Ont. Canada - Friday, October 5, 2007 12:15 AM CDT
My 6 year old grandaughter Julia has been battling LCH since she was 2 1/2 years old. Symptoms before that time were misdiagnosed. The disease attacked the nervous system and she has gone from 5 brain tumors down to 3 tumors that have been sleeping for 2 years. Also 2 new tumors deep in femur bones on each leg. Presently just monitoring all of this and Julia seems to be doing well. It started in the skin and bone. Scalp & bad cradle cap. Will keep sweet little Ivy in my prayers also.
Anne Loisel <aloisel@cogeco.ca>
Stoney Creek, Ont. Canada - Friday, October 5, 2007 12:09 AM CDT
I'm so glad the hike was a great success in every sense of the word. I wait eagerly for the day when the 4 of you can climb Half Dome together as a family! The story of the man whipping out his checkbook on the spot brought tears to my eyes. Hope you all are getting some much deserved rest!
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, October 2, 2007 1:39 PM CDT
Love the new photos!!! Wish I were going to Yosemite. I was just checking in on you all. Despite all Ivy's troubles, she looks happy and healthy which is comforting to see. Love you guys!!
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS 66062 - Friday, September 28, 2007 1:38 PM CDT
I had to get back on here and tell you I saw you in the top 5 on the front page! You did it! CONGRATS to you all!
Valerie <val_ea@yahoo.com>
London, Oh - Friday, September 28, 2007 7:06 AM CDT
Have fun this weekend. We will be praying for Ivy that all of this is truly nothing to worry about! Congrats to Jasper and I can not wait to see pictures!!!!
Valerie <val_ea@yahoo.com>
London, Oh - Friday, September 28, 2007 6:57 AM CDT
Is your hike this weekend? Have fun! We'll miss you at the pfarmers market.
Iris, Peter and Elsa <iris@moydesign.com>
- Wednesday, September 26, 2007 1:07 PM CDT
So happy to hear about Ivy's progress.It sure sounds like she has a wonderful family.My nephew in Arizona is in remission right now from LCH. No meds at all right now. Lets hope that Ivy and Riley can stay strong and beat this horrible disease. I will continue to pray for you and your family.
Katherine Kremer <kitykit04471@yahoo.com>
Toms River, NJ USA - Thursday, September 20, 2007 4:43 PM CDT
I love it...farmer's market, pharmacy, whichever :-)
We can't wait to see you all! The hike total continues to climb...WOW. I am so hopeful that a cure will be found soon for our kiddos!
Sending many hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, September 17, 2007 10:02 PM CDT
I personally think you look great!!!!
I am looking forward to seeing all of you at the Hike. We can't wait.
I am glad things are more routine and nothing out of the ordinary is going on.
My best too you all!!!!
Bridget
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Monday, September 17, 2007 7:32 PM CDT
Love the new picture, even without the makeup and hair done! Cute! A wonderful update on Ivy and Jasper both. Great to hear they are doing well.
Valerie <val_ea@yahoo.com>
London, Oh - Monday, September 17, 2007 6:38 AM CDT
What a wonderful update! We LOVE the picture, love the Ivy-isms and are proud of her, Jasper and you two adults! We marvel at your stamina and the beauty of the four of you, and all the many amazing family and friends we know are there in and between the lines, too numerous to mention. You are so deep in our hearts. Lots of people up here ask about Ivy frequently, so you know tons of people are praying everywhere. May H4aC make lots and the cure be discovered soon!
Caroline, Randy and Sarah
- Sunday, September 16, 2007 10:46 PM CDT
Everybody LOVED Ivy at my soccer game today! Ivy is DEFINITELY becoming a "big girl" as she likes to call it! AND she cracks funny jokes even thought sometimes she doesn't know it!
Lots of love,
Cousin Emma
Emma
- Saturday, September 15, 2007 9:23 PM CDT
Make-up or no make-up, this is a gorgeous photo of you three!
And a beautiful update. Love,
Auntie Beth <schoenbrgr@aol.com>
- Saturday, September 15, 2007 9:02 PM CDT
Great to hear you had so much fun at camp. I was a counselor/director for about 10 years at the Okizu counterpart in LA... It's an amazing experience for the volunteers as well! Hope that the house is good and that Jasper is loving his new school. We'll keep checking in....
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Tuesday, September 11, 2007 7:23 PM CDT
We're so happy you are home! I can't wait to see you all at Yosmite...let's hope that both Ivy and Patrick are well and running around camp :-)
Sending many hugs and lots of wishes for NO FEVERS,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Thursday, September 6, 2007 3:06 PM CDT
Wohoo Glad you are out of there!!!! I hope Jasper is enjoying kindergarten.
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, September 6, 2007 6:37 AM CDT
I'm so happy you go to enjoy camp. I can't imagine how it must have felt to hear some of those stories. I hope Ivy is able to go home soon!
Tracy (tjly) <tjly7@yahoo.com>
- Tuesday, September 4, 2007 7:42 PM CDT
It's great to read the uneventful updates. We so appreciate the regularity with which you write them. Hope camp was great, and that the Hike is successful and enjoyable. We love you very, very much!
Caroline, Randy and Sarah <ci2rm@suddenlink.net>
- Sunday, September 2, 2007 12:13 AM CDT
Always glad to read that Ivy is doing well.
Have a great weekend! I hope you get some cute pictures, even though your camera was stolen :(
Iris, Peter and Elsa <iris@moydesign.com>
Oakland, - Friday, August 31, 2007 4:34 PM CDT
So happy you get to go to camp! ENJOY!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, August 27, 2007 6:40 AM CDT
Thinking of all of you...sorry about the break-in! That is a disappointing welcome to your new neighborhood! We can't wait to see you all at the Hike. If I get any info on the mtx I will email you.
Have fun at Camp Okizu!!!
Sending many hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Sunday, August 26, 2007 4:15 PM CDT
Hey Ally, I'm just checking in. Miss you guys and gals!!!
Love, Carol, Taya, and Anya
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Wednesday, August 22, 2007 3:11 PM CDT
Yay, hooray for uneventful medical weeks, and for getting to do little things at home that make it more a home. Continuing prayers and love, always,
Caroline, Randy and Sarah
- Monday, August 20, 2007 10:02 AM CDT
So excited to hear about Ivy getting to ride the rides! I bet she was beyond happy. Also glad to hear that she is doing so well! You are all in my prayers!
Shana (my4munchkins) <sjump@castlecrk.com>
Bossier City, LA USA - Monday, August 13, 2007 3:26 PM CDT
Great news about Ivy. I hope she continues to be healthy and happy!
And yea to them both on their big milestones....so big now.
Thinking of you all, from so far....
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Sunday, August 12, 2007 2:53 PM CDT
Yay Ivy way to go on the rides! I bet she was so delighted! Awesome Jasper on the two wheeler. Glad all is well with Ivy, a great update. One I love to read!
Valerie <val_ea@yahoo.com>
London, Oh - Friday, August 10, 2007 6:35 AM CDT
Just a quick note to let you know we're back from the east coast, have been following with trepidation and delight and of course never-ending prayers for Ivy and the others who move thru 5S, and so deeply appreciate your updates. Hip hip hooray to all four of you!
Caroline, Randy and Sarah
- Wednesday, August 8, 2007 10:27 AM CDT
Great update! I am sure you are proud of Pete gearing up for this again! Wonderful news about Ivy doing so well.
Valerie <val_ea@yahoo.com>
London, Oh - Monday, August 6, 2007 6:48 AM CDT
I am so, so, sooo glad to hear that Ivy is responding well and seems stable! The last few months have been so crazy for you guys, you really deserve a break. Hope you are settling in to your new home and hope to see you soon!
Love, Jill
Jill Donaldson <canyeshna@hotmail.com>
- Sunday, August 5, 2007 1:59 PM CDT
Hello everyone, just checking in. I am making all my rounds to the histio kids websites as Aidan is going in for scans August 10th and I think I am looking for a little reassurance that if everyone else is doing good, he will be too. It will be a year since he has had any treatment, so I am a little anxious for these. Happy to hear that things for Ivy have been as good as can be expected. She sure does like to keep you on your toes though. Anyways, just a quick "Hi" and know that I think of you guys often. www.caringbridge.org/ks/aidan Kristine and Aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Omaha, NE - Sunday, August 5, 2007 0:02 AM CDT
Thrilled to read another great update on Ivy! Sounds like you guys are having a lot of summer fun. I love the new photos! Good luck to Pete in the Hike!
Shayne Newell <mom2pete@hotmail.com>
Houston, TX - Saturday, August 4, 2007 10:43 PM CDT
Hi Allyson, Pete, Jasper and Ivy,
Just checking in now we're back from the UK and got a few minutes. How wonderful to read all the positive news about Ivy and how well she is doing. It has really made my day.
My heart goes out to Harrison's family - having witnessed the passing of another little boy to Leukemia I am filled with sadness at the loss of another young child to cancer. All those of us who've had a child with cancer or Histio or any other life threatening disease live with the fear of losing our precious little ones and even though Lauren and Ivy are thankfully doing so well, I am still devastated each time I hear another child has lost their battle.
We're off again on vacation - making the most of this summer now Lauren's treatment has finished and she's doing well but we would love to get together with you once school has started up again. Tell Jasper that Katie is starting Kindergarten this year and I know they are both going to love it and make lots of new friends.
Allyson, I'll give you a call when we're back again and hopefully we can get together. Please know that I am always thinking of you all and reading such good news about Ivy is truly a blessing.
Love to you all.
Emma Bishopp <emma@bishopp.net>
Lafayette, CA USA - Friday, August 3, 2007 11:11 AM CDT
So thankful for another good update on Miss Ivy (despite the prednisone issues)! She has definitely shown that she is a fighter!
My heart hurts for Harrison's family. I can't even imagine their pain.
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, July 30, 2007 9:36 AM CDT
We're so sorry for the loss of little Harrison. We'll keep you all and his family in our prayers during this most difficult time.
And, we're hoping that the roid rages might mellow with time. Patrick had them HORRIBLY with his first go around on prednisone but not much at all the second time. Anyway, like you said, as long as it is helping her in the long run the rages are just temporary.
We're looking forward to seeing you in Yosemite! Hopefully Patrick and Ivy will be feeling well and running around with Jasper and Devin :-)
Sending love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, July 21, 2007 6:36 PM CDT
Praying for Harrison's family. Wonderful news about Ivy, how sweet it is to read happy news of her! What a special amazing girl Katie must be! Such a true wonder I am sure.
Valerie <val_ea@yahoo.com>
London, Oh - Friday, July 20, 2007 6:39 AM CDT
How could I not remember Harrison and his special family. They made a deep impression on me in the first moment of meeting them. I am so sad and so sorry. Yes, Harvey and I will say prayers for all of them.
Poem of Remembrance
At the rising of the sun and at its going down,
We will remember you.
At the blowing of the wind and in the chill of winter,
We will remember you.
At the opening of the buds and in the rebirth of spring,
We will remember you.
At the blueness of the skies and in the warmth of summer,
We will remember you.
At the rustling of the leaves and in the beauty of autumn,
We will remember you.
At the beginning of the year and when it ends,
We will remember you.
When we are weary and in need of strength,
We will remember you.
When we are lost and sick at heart,
We will remember you.
When we have joy we crave to share,
We will remember you.
When we have decisions that are difficult to make,
We will remember you.
When we have achievements that are based on yours,
We will remember you.
As long as we live, you too will live, for you are a part of us.
with love,
Ivy's Auntie Beth <schoenbrgr@aol.com>
Oakland, CA - Friday, July 20, 2007 3:50 AM CDT
Greetings!
Just wanted to say how happy I am Ivy is doing so well. Take care!
Haleema Silverman <nursehal@sbcglobal.net>
Oakland, CA - Wednesday, July 18, 2007 1:38 PM CDT
Very happy for you that things are looking up and more "normal".
We can't wait to see you in September. Maybe Ivy can show Sophia about those somersaults.
My best to you all,
Bridget
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Tuesday, July 17, 2007 11:13 AM CDT
So glad to hear Ivy continues to do well. So sweet and so precious! Congrats to Jasper on his great kindergarten screening! I hope he enjoys his new "work tools"! I pray for the continuing of great updates!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, July 16, 2007 6:45 AM CDT
We're thinking of you all and are hoping that Ivy continues to have lots of happy days full of swims and somersaults!
Hope to see you sometime soon :-)
Love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, July 16, 2007 0:26 AM CDT
I'm so glad to hear that things are going well. We have some friends who are struggling incredibly hard right now with neuroblastoma, and it is such a relief to read your positive updates. One is really left to wonder why our universe causes our precious children to suffer like this... I'm at a loss! But I love hearing how the whole family is doing, especially all those day to day things like somersaults and new pencils. Happy birthday to Pete! We'd love to see your new home sometime soon... We'll bring a pie. :) Love, Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Saturday, July 14, 2007 9:02 AM CDT
Sounds like everything is going well still! I'm still praying and hoping Ivy keeps responding well to everything. She is such a trooper, and so strong. So are Mommy, Daddy, and Jasper!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Saturday, July 14, 2007 7:10 AM CDT
Hey Ivy,
You have been a real inspiration for our little boy Nicholas. www.caringbridge.org/visit/nicholasjohnson
Nicholas is following on your treatments about two months behind where you are. He goes to Children's hospital in St. Paul, MN. Nick also likes to swim, just like you.
Take care Ivy, you and way too many other kids with LCH are in our prayers.
Chip
Chip Johnson <cmnjohnson@comcast.net>
Woodbury, MN - Tuesday, July 10, 2007 3:49 PM CDT
Ivy, we are so proud of you for being such a big girl and using the potty! Congratulations on moving into the new house, I know how hard you all have worked to get there. Sorry to hear of your unexpected visit to 5 east but, we're happy it was nothing too major! Allyson-WOW, going back to work! I hope the transistion back goes smoothly! I think it will be one more thing to make life feel a bit more normal. Your all in our continuous thoughts and prayers.
Love and Friendship,
Desiree, Josh and Family
www.caringbridge.org/visit/joshuamaligro
Desiree <desmaligro@sbcglobal.net>
Brentwood, CA USA - Tuesday, July 10, 2007 12:34 AM CDT
I am so envious that you were brave enough to let her go swimming. You guys rock!!!!
Sophia is getting over a recent fat lip as well.
I hope you have a good return to work.
My best to you all,
Bridget
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Saturday, July 7, 2007 3:46 PM CDT
Thank you for taking the time to tell us about semi-normalcy! Such great news, to be able to picture our girl swimming and playing happily out in the world. We'll be back east for two weeks starting Sunday and will be back in touch after. Much, much love to you ALL,
Caroline, Randy and Sarah
- Friday, July 6, 2007 9:30 AM CDT
So glad that there is "no news" to report, and also that Ivy has been enjoying parties, fireworks, and swimming! Hope she continues to do well, and that you have a wonderful day back at work. It must seem so nice to slowly have life return to normal. Keeping you guys in my thoughts and prayers - I look forward to more updates like this one!!
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, July 5, 2007 9:42 PM CDT
I am so glad to see life happening with you in it! Swimming is great, rock on sweet girl!
jill <jillmcalpine@comcast.net>
windham, nh - Thursday, July 5, 2007 7:01 PM CDT
YAY for the party and a BIG YAY for the non-growing cultures!
We continue to pray for you always...your family is an inspiration to us. This histio journey really does stink in a million different ways, but it's so nice to have such amazing company along the way.
Sending many healing hugs...we hope this chemo is doing its magic for Miss Ivy!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, July 3, 2007 0:03 AM CDT
Glad you were able to get out in time for the party. Hope this week finds sweet Ivy feeling better with no fat lip! Thinking of you guys and keeping everything crossed that Ivy continues on the path to better health!
Edie <eross411@yahoo.com>
Kennebunk, ME - Monday, July 2, 2007 5:04 PM CDT
Well Miss Ivy likes to be fasionably late just like any other beautiful princess.
I am glad you all were able to make it to the party.
I hope her bottom is doing better and nothing grows out from her cultures. The trips without answers are always frustrating. But we move on.
I am glad you made it to the new house. I hope you all enjoy the process of getting settled in. I know it's a mountain of work right now.
You are all close in my thoughts and prayers,
Bridget
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Monday, July 2, 2007 11:36 AM CDT
so glad to hear that your hospital stay was short and that Ivy made it to the party!
Iris, Peter and Elsa <iris@moydesign.com>
Oakland, - Sunday, July 1, 2007 4:38 PM CDT
Sending many prayers for quick return to your new home!
Tell Ivy that her histio buddy, Patrick, says that he hopes she is feeling better soon!
Love,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, June 30, 2007 12:27 AM CDT
I hope Ivy is much better today and the fever is gone! Keeping my prayers coming for her!
Mary
Belmont, NC USA - Saturday, June 30, 2007 5:56 AM CDT
Oh Ally, i'm sorry Ivy is back in the hospital!! I hope she can get out really quick and make it to the party.
On a lighter note, i am thrilled to hear about her PT progress and my girls would agree, Dora underwear are the best!!!!! My thoughts and prayers are with you guys!!
Kathy <katcurran@hotmail.com>
St. Louis, MO - Friday, June 29, 2007 7:56 PM CDT
I can't wait to hear how moving went!!!! Wish I was able to help you!
Hugs to you and your cute kiddos.
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Friday, June 29, 2007 11:42 AM CDT
No entries in a week. A good sign! Sending lots of love and prayers, as always,
Caroline, Randy and Sarah
- Friday, June 29, 2007 10:26 AM CDT
How wonderful Ivy! What a big girl. I hope you guys are all moved in now and unpacking! Good luck, cant wait to hear you are all done!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, June 25, 2007 6:35 AM CDT
Good luck with the move. Hooray for potty trained little girls. How sweet of Jasper to tell everyone of Ivy's success. Hope you all have a great weekend.
Jennifer A.
NC - Sunday, June 24, 2007 2:44 PM CDT
A very big, belated Happy Birthday to Miss Ivy. I am so excited for her and all of you to have been able to celebrate this very special day in grand fashion.
Pete,
A happy Father's Day to you. You are a very special man and a wonderful Dad. Your devotion to your family is evident each time I see you in photos or in person. I hope you had a special day.
I also want to wish you all great moving. This is such a long awaited moment for you all. I hope it all goes well.
My prayers and best wishes to you all,
Bridget
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Saturday, June 23, 2007 1:27 AM CDT
Good luck on the move!
Jasper's comment at school made me tear up. What a sweet boy! And way to go with the pottying, Ivy! She is such a smart and strong little girl!
After spending the night at Children's Hospital with Cooper last night (he had his tonsils out) I have even more admiration for you, Alyson. This was our 1st real night with a hurting child in the hospital and it was only for one night. I couldn't help but think about all the many nights you guys have spent at your hospital. I can't imagine!!
You are all still in my thoughts and prayers!
Julie (Julieand3) <jsvise@charter.net>
AL - Friday, June 22, 2007 10:13 PM CDT
Glad Ivy had a happy birthday and earned some new undies! Wahoo!
Good luck with the move.
Susan & co.
Redmond, - Friday, June 22, 2007 9:26 PM CDT
Hooray for Dora underwear and wise older brother. Gosh we miss you all! Hope this year is Ivy's best yet!
Caroline, Randy and Sarah
- Friday, June 22, 2007 8:58 PM CDT
WAY TO GO, IVY! WOW...that is great that you can go potty now! I bet your Dora underwear are pretty neat!
Good luck with your move! We hope it goes as smoothly as possible. And, we hope Ivy and Jasper have fun getting settled into their new place!
We are really looking forward to the Hike this year :-) I will email you after I contact Jung and we can see about a little histio get together!
Sending love and hugs,
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Friday, June 22, 2007 7:42 PM CDT
Hello from the UK, just checking in to see how everyone is doing. Wonderful news that Ivy is doing so well, we are thrilled she got to have such a fun 3rd birthday, sorry we missed it Ivy, we'll have a little celebration with you when we get back to the States. Just letting you know we're thinking of you as always. love Emma
Emma Bishopp <emma@bishopp.net>
Lafayette, Ca USA - Thursday, June 21, 2007 3:53 AM CDT
Ahhhhhhhhhhhhhhhh!
Caroline, Randy and Sarah
- Wednesday, June 20, 2007 9:33 AM CDT
Sounds like a great Ivy Bday....I hope to see pics soon of your new house. Good Luck with the move. I hope it goes smoothly!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Wednesday, June 20, 2007 8:51 AM CDT
So glad to hear that Ivy will be getting to switch her plan up. We have been following her a lot. Our son was on the same protocol 2CDA & high dose ARA-C. After 2 treatments and getting an infection that he almost couldn't fight off we sought advice from Dr. McClain. Now he will be starting 6 months of vincristine & low dose Ara-C. So glad both of our kiddos are off that high dose stuff. Yea, hospital life kinda became the norm. We will be keeping Ivy in our thoughts and prayers.
Austin's mom
www.caringbridge.org/visit/austin
Mandi Giacomo <mandigiacomo@hotmail.com>
Edmond, OK - Wednesday, June 20, 2007 8:14 AM CDT
Glad Ivy had a wonderful birthday! Good luck with the move! We want photos of the cake AND the new house!
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, June 19, 2007 11:34 AM CDT
Happy Birthday Ivy!!! Sending a big birthday hug!
Sarah & Kurt <sarah_borchelt@yahoo.com>
- Tuesday, June 19, 2007 7:43 AM CDT
So glad the b-day was great - sounds like an Ivy dream come true!!! Hope everything continues on the up and up!!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Monday, June 18, 2007 8:50 PM CDT
Happy Birthday Ivy! So many reasons to celebrate; I hope you enjoyed some delicious cupcakes!!
Becky & Ben <rebecca_ellin@yahoo.com>
Morehead City, NC - Monday, June 18, 2007 1:01 AM CDT
Happy Birthday Ivy! Allyson, you amaze me, and are truly inspiring.
Take care
Greg Benoit <gbenoit@coastal.ca.gov>
Santa Cruz, CA - Friday, June 15, 2007 3:12 PM CDT
Happy Birthday Ivy!!!
Love,
Susan, Wayt & Liam
- Friday, June 15, 2007 11:43 AM CDT
HOW EXCITING TO BE 3 YEARS OLD TODAY...HAPPY 3rd BIRTHDAY, IVY !! With wishes for many more HEALTHY, HAPPY birthdays to come.
Rose, Hanoch's mom
Rose Smith
Israel - Friday, June 15, 2007 10:07 AM CDT
HAPPY BIRTHDAY, IVY! Here's to a happy and HEALTHY year! :-)
Love,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, June 15, 2007 10:07 AM CDT
Alyson and Pete -
We are very glad to hear that you have a solid plan for OUTPATIENT chemo. That is great and we continue to pray for Miss Ivy and Jasper too.
Hope that you adjust to your news soon. Each change in this LCH course is a challenge but know all of us on TEAM HISTIO are out here rooting for you.
Melissa and Jeff Thompson (Jack LCH) <thomps98@comcast.net>
North Aurora , IL USA - Thursday, June 14, 2007 8:33 PM CDT
Ivy,
Have a great 3rd birthday! We are so glad that you will be able to have it at home where you belong. You are always in our prayers.
Your histio friends in Wisconsin
Kendall and her mommy
Vicki Behl
Mukwonago, wi - Thursday, June 14, 2007 7:21 PM CDT
I cannot begin to tell you how elated we are for you all! Allyson, I think I can relate to how your feeling. Tomorrow it will be 3 weeks since we've been home, after almost a full 6 months inpatient, home life has been very hard to adjust back into. When we were discharged I knew it was the last time and I cried almost all the way home. We really miss seeing Ivy's sweet smile and all our friends and nurses on 5 south. I can understand your concern with the prednisone but, Ivy is one tough cookie and we just know she is going to do great!
Love and friendship,
Desiree, Josh and family
www.caringbridge.org/visit/joshuamaligro
Desiree <desmaligro@sbcglobal.net>
Brentwood, CA USA - Thursday, June 14, 2007 6:53 PM CDT
Happy 3rd birthday, Ivy (one day early)!!! We pray that all of your birthdays from now on are joyous ones free from LCH!!!
God bless you sweet girl!
Don, Donna, Erik and Logan Johnson
- Thursday, June 14, 2007 3:29 PM CDT
wow! This is surely good news. Ivy is such a strong little girl who has been through alot.Things seem to be getting brighter for her and your family. My heart goes out with you on Ivy recoving from this monsterous disease.What a fighter she is. Enjoy your time at home and keep being strong Ivy!!! The best is yet to come. God Bless and good luck with the treatment.
Sincerely, Katherine Kremer (Aunt of an LCH patient) <kitykit04471@yahoo.com>
Toms River, NJ - Thursday, June 14, 2007 8:11 AM CDT
I'm so happy that things have shifted, and that you will now be able to focus a bit more on moving and being together at home! Lots of love from us all. Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Wednesday, June 13, 2007 7:20 PM CDT
WOW! I've been lurking for quite a while, but have to say a big congrats! to all of you! You've weathered some really tough times. Now you'll be so busy working on your move into your new home surrounded by family! What joy! And an early Happy Birthday to Ivy too!
Love to you all,
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Wednesday, June 13, 2007 10:38 AM CDT
Wow what an unexpected bit of news! Hooray for no more hospital stay. I can see how you will miss all of your friends dearly though. Many wonderful prayers answered here I am sure. I hope Ivy enjoys getting back into home life!
Valerie <val_ea@yahoo.com>
London, Oh - Wednesday, June 13, 2007 6:42 AM CDT
Dear Allyson, Pete, Ivy and Jasper, so glad to read that you are finally hospital free for the foreseable future. I know it is a bit of a wrench but hopefully you will be able to visit your friends in hospital at various times. The good news is that hopefully your life will take on some, new form, of normalcy. I remember how much I didn't want Lauren to come out of the hospital after she was diagnosed because I was scared. There is a sense of safety for the parents in being at the hospital. But, I do realise that being home was probably so much better for Lauren and hopefully the same will be true for Ivy.
Great news that you might finally be able to move and how wonderful that you've had some friends/family helping you to paint and get the new place ready for you. Its truly heartwarming when you realise how many people care for you, isn't it?
We are off to the UK for a few weeks but would love to see you - AT HOME - when we get back, perhaps you might even be able to bring the kids round to our place in the "burbs" and have some fun with us.
So far, all that I read in today's journey fills me with hope and a positive sense for the future for you all.
with love, Emma, Mike and the girls
Emma Bishopp <emma@bishopp.net>
Lafayette, CA 94549 - Wednesday, June 13, 2007 0:29 AM CDT
WOW!
That's quite a different plan. I hope that you adjust quickly to the idea of being home. I understand what you mean about missing "hospital home".
I am wishing Miss Ivy a most fantastic birthday. Have a piece of cake for Sophia.
Our best wishes,
The Colbys
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Tuesday, June 12, 2007 11:24 PM CDT
Wow! What surprise news! I'm sure it's jarring in a way. But, yay for being home on Ivy's b-day and yay for being able to move. Good luck!
Love,
Susan & co.
Redmond, - Tuesday, June 12, 2007 8:03 PM CDT
We're so happy you have a good plan, and especially happy that it does NOT involve living at the hospital! Enjoy the time together at home :-)
Hopefully we can have a little get together this summer! I will call Jung and see if there is a good time for them and maybe all the histio kiddos can spend some time together in person!
Hugs to you all,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, June 12, 2007 7:45 PM CDT
Thinking of you guys and hoping the Chemo treatment went well! Sending lots of love to you guys and lots of prayers for sweet Ivy!
~Marleen Capps <marleenandbrian@yahoo.com>
St. George, UT USA - Tuesday, June 12, 2007 2:08 AM CDT
We are hoping the new chemo went well. I can't remember which one you were going to.
How is Miss Ivy's bottom fairing with all the bad bms? Please e mail me and let me know. I have a great butt regimine for bad rashy bottoms I would be glad to share.It worked wonders for Sophia's HLH rashy bottom.
Our best wishes,
Patrick and Bridget
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Tuesday, June 12, 2007 0:08 AM CDT
Whatever chemo they're using, we're visualizing a bath of clean waters flowing into and through Ivy, washing away all the LCH cells.
Caroline, Randy and Sarah
- Monday, June 11, 2007 4:07 PM CDT
Thinking of you guys this morning as Ivy starts her next round of chemo. Stay strong and know that you are in our prayers!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, June 11, 2007 11:31 AM CDT
The Peace of Wild Things
When despair for the world grows in me
and I wake in the night at the least sound
in fear of what my life and my children's lives may be,
I go and lie down where the wood drake
rests in his beauty on the water, and the great heron feeds.
I come into the peace of wild things
who do not tax their lives with forethought
of grief. I come into the presence of still water.
And I feel above me the day-blind stars
waiting with their light. For a time
I rest in the grace of the world, and am free.
— Wendell Berry
Sending this poem with love, Auntie Beth <schoenbrgr@aol.com>
Oakland, CA - Saturday, June 9, 2007 2:28 AM CDT
Hoping you guys can move into your new home soon, and have the summer at home w/ Ivy! She's always in my thoughts.....
Mia <mia5683@hotmail.com>
- Wednesday, June 6, 2007 10:24 PM CDT
I hope you guys are able to move in soon! How wonderful that would be for you all!
Congratulations on a successful speach, I never doubted you would knock their socks off. That would be wonderful if the doctors could get together, keeping my fingers crossed.
Praying for a summer at home!
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, June 5, 2007 6:38 AM CDT
Hooray for a good report on so many fronts! I was confident your speech would be a hit! And congratulations on being honored as the largest fundraisers for Hike for a Cure. You guys are awesome!
I'm glad that the doctors seem to be of one mind on the next steps in Ivy's treatment. I hope that they can ratchet down the chemo a little for the next few rounds. Enjoy your week of "freedom" and hope that she's feeling better soon!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, June 4, 2007 8:18 PM CDT
I can just imagine how powerful your speech was. You are truly an inspiration Ally.
Tracy (tjly) <tjly7@yahoo.com>
- Monday, June 4, 2007 5:54 PM CDT
Wow! What an incredible ordeal! This is the stuff real strength is made of. Great to hear the plan is more hopeful and the counts are staying up, and that you're coming closer to the new home. Really hope to see you one of these days, when we can get down there.
Caroline, Randy and Sarah
- Monday, June 4, 2007 3:36 PM CDT
Allyson & Pete,
It was so wonderful to see you both once again. I have no trouble telling everyone that you were a big hit!!!! It took all I had not to get up and hug you during your speech. You did such an amazing job. Again I apologize for not being in touch, and promise to be closer.
You can also have your doctor contact our doctor Dr. Lilibeth Torno at Children's Hosp of Orange County ltorno@choc.org. As I told you she has good knowledge of multi system LCH and is wonderful about sharing knowledge. The more minds the better is my theory.
Keep up the fantastic,exhausting work.
Our love,best wishes and prayers,
Patrick,Bridget,Kaity,Sophia and Wyatt
Bridget Colby <thecolbys@sbcglobal.net>
Santa Ana, CA USA - Monday, June 4, 2007 3:09 PM CDT
Glad you are home & can get out and about. Fantastic news!
Jane <janemjr@inet.polyu.edu.hk>
Hong Kong - Monday, June 4, 2007 4:26 AM CDT
Glad you are home and able to be out and about! Wonderful news!
Sonji
Englewood, CO - Sunday, June 3, 2007 9:10 PM CDT
YEA!!! We're so glad to hear that you are at home. Love and hugs to all!
Becky <rebecca_ellin@yahoo.com>
Morehead City, NC - Sunday, June 3, 2007 5:50 PM CDT
I'm so glad to read you are home. YAY!
You are never far from my thoughts! Can you believe our little ones are almost three....and Ivy is such a fighter. What she has been thru the last 2 years.
Have a nice time at home!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Saturday, June 2, 2007 1:26 PM CDT
Thinking about you guys!!!
Love Carol, Taya, and Anya
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Saturday, June 2, 2007 9:54 AM CDT
So glad you are home. Great news. Peter looks so much like Ed in the picture!
Larry Best <larrybest@gmail.com >
Alameda , CA - Friday, June 1, 2007 4:36 PM CDT
Glad you're home!! Hope the labs went fine today!
I went to Oakland for half a day yesterday and thought of you when BART went by Children's....I was hoping you were NOT there.....Yay!!!
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Friday, June 1, 2007 3:28 PM CDT
Hi! Just checking in on you guys, we are SO glad to hear you are home with Kitty and Pesto! Enjoy!
jill & Lindsay Kate & Molly <mcalpines@comcast.net>
- Friday, June 1, 2007 12:33 AM CDT
I was thrilled to see you were home! Hoping you have wonderful weather to enjoy. Maybe that nice fresh air is just what everyone will need to renew a little! Keeping you all in my thoughts.
Beverly
New Gloucester, ME - Friday, June 1, 2007 10:15 AM CDT
Happy homecoming! Great photos! Love and prayers,
Caroline, Randy and Sarah
- Friday, June 1, 2007 9:23 AM CDT
We're so glad you are all home :) I hope you all have the chance to spend lots of time together and relax!
Daimie (Jake's mom)
http://www.caringbridge.org/visit/jacobknott
Daimie <dreamsingreen@hotmail.com>
Biloxi, MS US (Of Course!) - Thursday, May 31, 2007 7:12 PM CDT
Ivy, Allyson, Pete and Jasper,
We are so happy to hear that your home! Isn't it wonderful just to be able to take a walk outside! Sleep in your own bed and just lounge around! No running around the halls pulling a wagon and pushing the IV pole! HA HA LOL! Sorry to hear that you'll be spending your birthday at CHO but, we are hoping to be able to visit you for your special day, Ivy! Well we are just checking on you all making sure everything is going well. We miss seeing you all!
Love and Friendship,
Desiree, Josh and family
www.caringbridge.org/visit/joshuamaligro
Desiree <desmaligro@sbcglobal.net>
Brentwood (Home YEAH), CA USA - Thursday, May 31, 2007 1:36 PM CDT
Glad that you are home!!
Petra
- Thursday, May 31, 2007 1:34 PM CDT
Glad you guys are home. How great is it that you all got to go on a walk. How sweet that Ivy missed her kitty. What a precious little girl she is.
Jennifer A.
NC - Thursday, May 31, 2007 12:36 AM CDT
Hooray you are home! How wonderful. I hoped you can get moved before returning. Have a nice conference this weekend!
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, May 31, 2007 6:37 AM CDT
That is great news!! I am happy to hear that you guys are home! Enjoy.
Madeline (Dec 01 PG) <maddy0025@yahoo.com>
Bohemia, NY USA - Thursday, May 31, 2007 1:00 AM CDT
Yay! Great news you're all home!
Sending happy thoughts,
Mike, Allison and Morgan
Berkeley, CA - Wednesday, May 30, 2007 9:53 PM CDT
Thinking of you often!
Nicole <nicolelcurtis@hotmail.com>
Frisco, TX - Wednesday, May 30, 2007 2:59 PM CDT
I love the pictures! I'm glad Ivy is doing so well, and I love the happy pictures. I look forward to continued good updates!
Rosanna <brschmitt@yahoo.com>
Baton Rouge, LA USA - Wednesday, May 30, 2007 1:24 PM CDT
I sure hope you will have a nice long stay at home! Pictures are great. Ivy looks wonderful!
Shana Jump <sjump@castlecrk.com>
Bossier City, La - Wednesday, May 30, 2007 12:03 AM CDT
Hoping that you are heading home anytime now...
The pics are great - they are just too cute. You continue to be in my thoughts and prayers!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Wednesday, May 30, 2007 10:43 AM CDT
Continued good thoughts and prayers for Ivy and your whole family! Will look forward to good news from the scan, and for some wonderful down time at home! Many hugs!
Kathy C
St. Louis, MO - Wednesday, May 30, 2007 9:48 AM CDT
We're thinking of Ivy today. I hope she enjoys her time at home. Maybe she'll be home for July 4th too. The new pictures are great! Hugs to you guys!
Jennifer A.
Henderson, NC - Wednesday, May 30, 2007 9:38 AM CDT
Hoping all goes well with the CT scan and that you will all be able to relax at home tonight!
P.S. Thanks for the sweet note we got in the mail last week.
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, May 30, 2007 8:41 AM CDT
Loving the new pictures. Ivy looks so happy! Keeping Ivy in my prayers that you can go home today!
Mary
Belmont, NC USA - Wednesday, May 30, 2007 7:43 AM CDT
I hope that you'll be able to be home soon for a nice break.
Carol
Leesburg, VA - Wednesday, May 30, 2007 7:43 AM CDT
Love the new pictures, ecspecially the front page one! Great smiles. Hoping the CT scan is great news and you have two wonderful weekends at home!
Valerie <val_ea@yahoo.com>
London, Oh - Wednesday, May 30, 2007 6:37 AM CDT
Thanks for keeping us updated, Ivy sure is one trooper isn't she, I love the new picture, her smile is infectious, and one I would love to meet one day!
Hoping for great results from the CT scan and most of all, hoping you have a bit of normalcy before the next round starts.
You guys are amazing. Sending many prayers and think of you often!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Wednesday, May 30, 2007 6:20 AM CDT
Glad to hear this news! Keeping my fingers crossed for you that things worked out timing wise so you get to enjoy a nice week at home with Pete off work.
I love the new pictures, and especially the one on the top. Ivy looks very in-style with her pixie do! What a beautiful girl!
I will keep sweet Ivy in my prayers as always.
Tracy <tjly7@yahoo.com>
- Wednesday, May 30, 2007 6:13 AM CDT
Ivy looks so sweet, and that smile- wow! Jasper is so handsome!
Hope all goes smoothly for round 4- you are, as always, in my thoughts and prayers.
-sara j
dartmouth, ma United States - Wednesday, May 30, 2007 1:38 AM CDT
I hope the ct scan goes smoothly and you get a great report!
Sorry we'll be gone while you're out and about, which carousel is first on the list?
Iris and Elsa <Iris@moydesign.com>
Oakland, ca - Wednesday, May 30, 2007 0:01 AM CDT
So happy to see that you guys are so close to going home. I don't blame you for wanting to stay an extra night, better safe than sorry! Love the new picture, Ivy is adorable no matter how much hair she has, and Jasper is such a cutie! Hope you enjoy your time at home and that Ivy continues to improve. Sending continued prayers, hugs, and good wishes your way!!
Edie <eross411@yahoo.com>
Kennebunk, ME - Tuesday, May 29, 2007 11:05 PM CDT
So glad to hear you will be released soon. I hope your time at home is enjoyable and relaxing - is that possible with a big move looming? I don't know, but I'm sure a couple of weeks of normal routine will be great. Keep improving Ivy! We are rooting for you and thinking of you always.
love, Jill and co
Jill Donaldson <canyeshna@hotmail.com>
Berkeley, CA - Tuesday, May 29, 2007 11:04 PM CDT
I love the new pics!
I hope you get to go home soon! I can understand you not wanting to pack up and go home for one night if you have to be back in the morning. I don't think you're crazy at all. :)
Wishing Ivy well, and lots of best wishes for round 4. Here's hoping you get to be home for July 4th, and her birthday too! But if she has to, having her birthday in the hospital could be lots of fun for her. I remember having mine in Children's Hospital one year and the nurses sure helped to make it special.
Sending lots of hugs from us!!!! I think of you guys so much!
Marleen Capps <marleenandbrian@yahoo.com>
St. George, UT USA - Tuesday, May 29, 2007 11:02 PM CDT
What a wonderful picture on the homepage. I hope that Ivy's numbers continue to go in the right direction and that you are home for a rest very soon. Always know that we are thinking of you all. You have our prayers.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Tuesday, May 29, 2007 10:56 PM CDT
Thinking of you all and love the new pictures. Glad to hear the counts are heading in the right directions and that you might get to move into your new place soon.
Dana <dmitra@psu.edu>
State College, PA - Tuesday, May 29, 2007 10:37 PM CDT
Thinking of you all often. Glad the news is improving. I agree Ivy looks kind of pixie-ish in the new photos - thanks for keeping us updated.
Jane <janemjr@yahoo.co.uk>
Hong Kong - Tuesday, May 29, 2007 10:29 PM CDT
Thank you so much for your updates. It sounds like Ivy is doing pretty well considering. I think of Ivy & you guys often and will keep you all in my prayers. Especially tomorrow for her scan. I love the news photos. I'm sure it was very hard to see her loose her hair but she looks so sweet. Kind of pixieish-like Tinkerbell. And Jasper is so handsome. I hope you get a nice break at home. Take care and big hugs to all of you. Hang in there!
Julie (Julieand3) <jsvise@charter.net>
AL - Tuesday, May 29, 2007 10:24 PM CDT
I'll be thinking of Ivy, and all of you, tomorrow as she has the CAT scan. I love the new photos too!
Many hugs.
Werona <ronaa74@yahoo.com>
- Tuesday, May 29, 2007 10:21 PM CDT
We're glad Ivy's ANC is back up! That is great news!
I think we are on the same schedule--Patrick gets his CT tomorrow and starts his next round 6/11...how coincidental is that!??!
Anyway, we're sending love and hugs and lots of wishes for a good scan tomorrow!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, May 29, 2007 6:18 PM CDT
We just want great news from Ivy's CT tomorrow. We will be praying and thinking of you all.
Donna Johnson (Logan's mom)
- Tuesday, May 29, 2007 5:49 PM CDT
So happy to hear you're going home tomorrow if all goes well with Ivy's CT scan and that she has her immune system again! Yippee! You sacrificed and worked so hard for this. She has suffered enough! She's home just in time for the best birthday present ever for my 65th B'day Friday June 1 as well as for your LCH Conference at Stanford. Beth, Harvey, I are looking forward to caring for the kiddos so you can speak at Stanford LCH meetings, since you two have so much knowledge and experience to share with others. Hope you get the support you deserve from other LCH families,and M.D.'s. Gramdpa is thrilled to hear Ivy's news and can be more relaxed from worry while away on 10 day business/reunion trip east. Now you can have time to be hopeful about Ivy, the 4th round as well as your soon-to-be-new home, which I saw cousin Stefano prime with Peter on Memorial Day while planning for you a painting/moving party soon with all who can help. Love to you: hope the blood was nothing to worry about although I know the difficult alarm it has caused and what it has meant in the past for you.It was great to see Nana and share the kids and life at the hospital and her concern for Ivy and all of you. Grammie, Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Tuesday, May 29, 2007 5:44 PM CDT
Hooray for such good news! Hope you can get moved and that all goes smoothly!
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, May 29, 2007 9:45 AM CDT
Lots of great news in there! Hope you get out today and you can get moved before returning!
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, May 29, 2007 6:45 AM CDT
Thank Heavens for better times! Our hearts are stretched out toward you, like always. May the trend continue! Wishing you an easy move and a little relaxation fit in somewhere.
Caroline, Randy and Sarah
- Monday, May 28, 2007 6:41 PM CDT
Hi Allyson
Just got back from Camp Okizu, and prior to that Mike and I had been away for ten days so sorry not to have been in touch much the last couple of weeks. We really missed you all at Camp, and a number of people mentioned you and missed you also. But, we were all hoping that things are moving in the right direction for you all.
As you know, this week is pretty hectic with the fundraiser on Thursday, we've got Katie's 5th birthday party on Friday and our Celebration of Life party on Saturday (which, we hope you might be able to make if possible!!!). If not, I will definitely try to get in to see you the following week if you are in hospital or call you and see if we can come round if you're home.
Anyway, just wanted you to know that, as always, we are thinking of you.
Love Emma, Mike, Sophie, Lauren and Katie
Emma Bishopp <emma@bishopp.net>
Lafayette, CA 94549 - Monday, May 28, 2007 4:57 PM CDT
Thank you again for updating your journal. We check it every day. You do a wonderful job of writing descriptively. Your hospital antedotes are especially creative. It's impressive that you maintain such a positive perspective. Good luck with the next couple of days. With hope that you will all be home soon.
Dale and Norm
Dale and Norman Greene <dale@puzzlering.net>
albany, ca USA - Monday, May 28, 2007 3:44 PM CDT
Yay! Happy to hear the numbers are going in the right direction!
Tracy <tjly7@yahoo.com>
- Friday, May 25, 2007 3:12 PM CDT
I'm glad Ivy's numbers are going in the right direction. I'm sorry you'll miss camp this spring.
Best of luck with your talk at Standford! You'll do great and everyone will appreciate hearing what you have to share.
We'll be away for a couple of weeks, but we'll still be thinking of you!
Susan
- Friday, May 25, 2007 11:20 AM CDT
Wonderful to hear that things are progressing the way you would like. I hope you guys enjoy the conference next weekend. Good luck with your speech. As long as it's from the heart (which I know it will be), it will be a success!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, May 25, 2007 9:02 AM CDT
Yay Ivy, I hope you continue the upward trend! So very sorry you can not go to camp this weekend but I hope you can attend the conference the next weekend! Many hugs and prayers.
Valerie <val_ea@yahoo.com>
London, oh - Friday, May 25, 2007 6:43 AM CDT
Glad to hear that things are moving in the right direction! And glad to hear that you'll have a few days at home. I'm inspired by your willingness to speak at the conference!! Good luck! Love, Jen
Jen Gripman <jen@gripman.net>
El Cerrito, Ca - Thursday, May 24, 2007 10:28 PM CDT
YAY! We're so happy the news is good and that Ivy is going in the right direction. And, we are so excited to see you at Stanford! It should be a great meeting :-)
See you soon!
Sending lots of hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Thursday, May 24, 2007 4:59 PM CDT
So happy to hear that things are finally looking up for little Miss Ivy. I'm sorry that you guys will miss your weekend at camp, I hope you are able to make arrangements to go another time. Sending continued prayers and hugs, I'm sure you're looking forward to being home for a few days next week!
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, May 24, 2007 3:11 PM CDT
We're so grateful for your regular updates, the least we can do is write a little note every few times just so you know we're reading and pulling for you. Thanks so much, and lots of love to you all.
Caroline, Randy and Sarah
- Thursday, May 24, 2007 9:14 AM CDT
So sorry to hear of the tough time Ivy and all of you are having on so many fronts at once--glad white counts are up a tad but so sorry about the rest of her symptoms and that you will miss camp this week-end . Life sure as heck is not fair. We will be home week from to-morrow--nite of 31st--hopefully to give some reinforcements shortly thereafter. Love to all of you, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, May 24, 2007 3:58 AM CDT
Hi brave ones. So sorry Emma's sniffles have kept us away. And we felt really badly that Jasper couldn't come for his sleepover. Very sorry about Camp Okizu -- totally understand your deep disappointment. We're cheering for Ivy's white count. We'd love to have some easygoing fun with you guys when you do finally get to break out of there. Can't wait to see you all. Sending big hugs and daily prayers and all our love,
Beth, Emma, Harvey and even Piper the pup
Oakland, CA - Wednesday, May 23, 2007 8:08 PM CDT
Thinking of you!
Tracy ( <tjly7@yahoo.com>
- Wednesday, May 23, 2007 4:53 PM CDT
Just thinking of you all and hoping the "mystery" issues are resolved! And, I hope you can get to Camp Ozkiu once all this is cleared up.
You remain in our prayers and we hope we will see you on June 1/2 at Stanford! Email me if you need cell phone info.
Hugs,
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Wednesday, May 23, 2007 2:09 PM CDT
Ivy and family,
We think of Ivy often and she is in our prayers. I also pray for a cure for LCH so no more children have to go thru all this. Kendall was also getting fevers, all the time and we never did find out why. Just one more rotten side effect of LCH. Ivy is a beautiful girl, stay strong and hang in there. We know how hard it is to wait for those counts to come back.
The Behl's-Brian, Vicki, Brooke, Samantha & Kendall
Mukwonago, wi - Tuesday, May 22, 2007 3:16 PM CDT
Still praying for Ivy. I'm sorry that she's dealing with so much right now and that Camp Okizu looks to be out of the picture. Also praying for all of Ivy's CHO buddies!
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, May 22, 2007 3:13 PM CDT
Hey there....just wanted to say hello and send my hopes that her immune system kicks on soon!
cute story about Jasper. ;)
I'm coming to Oakland on the 31st and 11th.
{HUGS}
Caryn < crackatoa_k@yahoo.com>
Sacramento, ca - Tuesday, May 22, 2007 11:54 AM CDT
Thinking of Ivy and sending many prayers for her and all of her little friends.
Edie <eross411@yahoo.com>
Kennebunk, ME - Tuesday, May 22, 2007 10:25 AM CDT
I am so sorry that Ivy is having so many issues. I pray for her and all of her little friends!
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, May 22, 2007 6:59 AM CDT
Sorry to hear you are dealing on so many fronts and that just what is next is uncertain--so hard to live with. You are such incredible parents, Pete and Ally--all of us here check daily and "pray" for a positive resolution. All our love, Sara and family
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Monday, May 21, 2007 12:23 AM CDT
Just checking in on Ivy. I'll be thinking of you all and praying for you guys.
Jennifer A.
Henderson, NC - Monday, May 21, 2007 11:35 AM CDT
Still checking in, reading and praying. Many hugs.
Valerie <val_ea@yahoo.com>
London, Oh - Monday, May 21, 2007 6:36 AM CDT
YAY for the good CT scan! And, how funny about Jasper...poor boy was just in the wrong place at the wrong time!
We'll continue to pray for all of you and are looking forward to seeing you at the Hike reception :-)
Sending love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, May 18, 2007 10:31 PM CDT
So glad to hear the good news about the scan! And hilarious story about Jasper... I can just imagine it!! I hope the weekend is peaceful for you... Jen
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Friday, May 18, 2007 4:59 PM CDT
I burst out laughing when I read your story about poor Jasper. I can of course see why he didn't think it was so funny. :-) Emma's looking forward to having him sleep in the bunk beds this weekend. We promise not to mistake him for anyone needing medical treatment. Thank goodness Ivy's CT scan was clear. Continuing prayers for deep healing. xox
Auntie Beth <schoenbrgr@aol.com>
Oakland, CA - Friday, May 18, 2007 4:01 PM CDT
Great news about the scan! Hope that things continue looking up for Ivy. Poor Jasper, though it did make me chuckle!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, May 18, 2007 11:42 AM CDT
Hooray! So glad the CT scan was clear!
Hugs,
Susan
Redmond, - Friday, May 18, 2007 10:19 AM CDT
Wonderful news about the scan! What a relief for you guys! Sorry Jasper but I do find that funny!
Valerie <val_ea@yahoo.com>
London, Oh - Friday, May 18, 2007 6:51 AM CDT
Happy to hear the scan was clear! Continuing to keep sweet Ivy in my thoughts and prayers.
Tracy <tjly7@yahoo.com>
- Friday, May 18, 2007 5:35 AM CDT
Thinking of you guys today.
Jennifer A.
Henderson, NC - Thursday, May 17, 2007 4:41 PM CDT
Peter and Allyson - Ivy's smile is so incredible, what a beautiful child. I see through her eyes the joy she brings to you and know how your life is centered on her. I'm not a religious person but am sending her every ounce of prayer and positive energy that I can muster. I'm glad to hear that's she's responding well now and will keep you all in my thoughts until she's through this difficult period. Best to you all
Beth's friend Jane
Olney, MD - Thursday, May 17, 2007 8:56 AM CDT
Hey you all--Thanks for updating. We've been following every day, and thinking about all of you. If anything as trivial as cupcakes can help, you know who to call...(or, of course, for anything else you need). Love, Debbie
Debbie and Eric <fiver5@earthlink.net>
- Wednesday, May 16, 2007 5:42 PM CDT
Allyson,
I just want to thank you so much for making the time to write your updates amidst all of your heartache. I check on Ivy's health everyday; it gives me a few moments to quietly focus on all of you. I picture Ivy happily playing when she's up and about.
Dale Greene
dale greeene <dale@puzzlering.net>
albany, ca USA - Wednesday, May 16, 2007 5:17 PM CDT
Allyson Pete Ivy and Jasper,
We are all thinking of you and sending all our positive thoughts and energy Ivy's way.
Liz
- Wednesday, May 16, 2007 12:21 AM CDT
I've been thinking about Ivy and sending many prayers. So glad that she's in happy spirits during this scary time.
Dana <dmitra@psu.edu>
State College, PA - Wednesday, May 16, 2007 12:07 AM CDT
Sorry to read that it's been a tough few days. Glad that things are looking better now. Sending prayers that the antibiotic will see this infection off.
Jane <janemjr@yahoo.co.uk>
Hong Kong, - Wednesday, May 16, 2007 1:17 AM CDT
So sorry that Ivy has had such a tough time but glad to hear that she is responding to the meds and things are looking better. Sending prayers for Ivy, and many hugs for you, Ally.
Edie <eross411@yahoo.com>
Kennebunk, ME - Tuesday, May 15, 2007 11:00 PM CDT
We'll keep praying that this antibiotic gets rid of the infection. Keep staying strong and know that there are many who hold you close in spirit!
Sending hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, May 15, 2007 10:24 PM CDT
Stay strong it seems to be working.Ivy is such a brave strong little girl.our thoughts and prayers follow you each and every day here in New Jersey. We anxiously wait for the update to let us know her progress. Hopefully the antibiotics work and her breathing gets stronger.we'll keep our fingers crossed.
Katherine Kremer <kitykit04471@yahoo.com>
Toms River, NJ - Tuesday, May 15, 2007 9:56 PM CDT
Allyson, we are sending up prayers of healing for Ivy and prayers of comfort and peace for you and your family. I hope that she continues to improve with the antibiotics and that her white count reappears very, very soon. You seem to have an amazing calm about you even through the toughest of times, and I'm confident that your strength and attitude help Ivy maintain her wonderful spirit through all of this.
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, May 15, 2007 9:40 PM CDT
Allyson and Pete--spoke to Jen last night and Eva (she checks the site daily) this am and got the up date re Ivy's tough night Sunday with the infection--relieved to read to-day's posting and to know that things are better--we are all sending our prayers and positive energy re antiboitics working effectively and soon and also that the white counts will also come up. We are all holding you in our hearts as we go through our days here in Hawaii. We love you. Sara, David, Stef, Jessica, Eva, Neal, and Karen
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Tuesday, May 15, 2007 8:05 PM CDT
Sending so many prayers and positive thoughts for Ivy and your family. It amazes me how you manage this roller coaster and continue to be articulate and thoughtful in your entries. I think about you every day, hoping that you will be out of the woods soon. Sending lots of love.
Jill Donaldson <canyeshna@hotmail.com>
Berkeley, CA - Tuesday, May 15, 2007 7:24 PM CDT
Oh my. I read the previous update yesterday and then came back today to read this one!! So frightening that things can change so quickly. I am utterly amazed by your unwavering courage and strength. I hope that last night was a better night, and that today is even better... Sending our love-- Jen, Stuart and Ben
Jen <jen@gripman.net>
El Cerrito, CA US - Tuesday, May 15, 2007 3:16 PM CDT
Lots of love and positive, healing thoughts coming your way, Ivy! I can't wait to see you soon!!
Becky <rebecca_ellin@yahoo.com>
Morehead City, NC - Tuesday, May 15, 2007 12:31 AM CDT
Praying for Ivy and your family.
Rose Smith
Israel - Tuesday, May 15, 2007 10:58 AM CDT
Sending many prayers for Ivy!
Shana (my4munchkins) <sjump@castlecrk.com>
Bossier City, LA - Tuesday, May 15, 2007 10:54 AM CDT
Sending up lots of prayers for Ivy - can't begin to imagine the huge ups and downs you are all going through.
Carol (mom2dae)
Leesburg, VA - Tuesday, May 15, 2007 10:24 AM CDT
Hi everyone,
This is Devin and Patrick Sanger's Grandma Kathy. My thoughts and prayers are with you. Hope to see at the "Hike" this year or even before. I am leaving Sunday to visit Devin and Patrick. A big hug to Ivy Kate and big brother Jasper.
Grandma Kathy
Kathy Chapman
Pittsburgh, PA USA - Tuesday, May 15, 2007 7:52 AM CDT
Thinking and praying oh-so-much for sweet Ivy. Many hugs for you and Pete, and Jasper.
JoANn <joannwhite@outtech.com>
Maple Grove, mn us - Tuesday, May 15, 2007 6:59 AM CDT
What a very scary night for you. Many prayers for Ivy. I pray she continue to feel better and that you are out of the woods soon.
Many hugs to you.
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, May 15, 2007 6:59 AM CDT
Ally dear: You were one brave woman last night. I am so grateful you held on and helped Ivy get through this terrible crisis, so touch and go, so scarey when her breathing is so rapid and infection raging. It's late so I can't call you to tell you that even though she didn't want you to go home tonight, she did calm down and improved amazingly once the tylenol kicked in. To keep serenity and hope alive, I am holding in my heart Ivy's giving spirit, joyful smile tonight and her blown kisses as I left her and Peter, both aiming for a much better night. After you and Jasper went home for much needed rest, Ivy did her cough-drop-in-my-purse search ritual and ate one as she asked for and got mint chip ice cream from Daddy. When she heard cousin Emma was not feeling well, she took out a second cough drop for her cousin, Ivy's loving spirit there for others: Peter tacked it to the bullitin board for Emma the next time she visits. Ivy revived as she did for you in the play room today and felt well enough to fed herself the ice cream and laughed as she ate while we watched Heidi get kicked by the goat over and over and over. She even laughedseveral times at the awareness that her nurse tonight is also named Heidi, but has no goat! Such a turn around! She talked of our mother's dad ice cream fest and thet Jaan and Nana came and played with her. Despite her fight she seemd so grounded and turned around from when I arived and the fever was coming back. We can be hopeful even if sleeping a wink is presently hard for many of us who love her so and watch you all weather this. Thank you for the thorough updates you posted and all the loving care you gave Ivy She'll make it and fight back this infection. We all hold her and you four in our hearts and prayers. I'll be by in the a.m. to give you a hand. Love, Jenifer-Mom-Grammie
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Tuesday, May 15, 2007 0:38 AM CDT
We've been thinking of you often these last few months. Thanks for keeping us posted in the midst of these challenging times. We hope Ivy continues to improve and you have many restful nights.
Sending all our love and positive energy.
Mike, Allison and Morgan <maboals@yahoo.com>
Berkeley, CA USA - Monday, May 14, 2007 11:50 PM CDT
Naomi (7) and I took a quiet moment tonight at bedtime to send our good thoughts to Ivy. So sorry this is so scary and hard. Thinking of you and always wishing for her better health.
Sarah
Sarah Weld <sarah.weld@sbcglobal.net>
Oakland, CA - Monday, May 14, 2007 11:19 PM CDT
I am visiting your site from Joshua's. Ivy is such a beautiful girl and from what I read a true warrior! I have a four year old with AML leukemia who went sepsis on me last month so I can totally relate to the fear you must have felt. Ivy will be included in my daily prayers as will the rest of your family.
God Bless
www.caringbridge.org/visit/jacquelinerose
Cyndi Poeggel <ms_independant0424@yahoo.com>
- Monday, May 14, 2007 11:15 PM CDT
Wow Ally - what a night! I am glad things seem to be on the up and up, but what a scary evening. Ivy will comtinue in my prayers.
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Monday, May 14, 2007 9:44 PM CDT
Didn't know I could pray better than I have been for past many months. But crisis "helps" us dig deeper. Holding Ivy and all 4 of you in the light and love of spirit. Ivy's spunky side was in full swing at the ice cream party. Laughing over and over at Shirley Temple's trouble with the butting goats; showing off her dinosaur "tatoos"; insisting Nana have an ice cream cone. I treasure the mother's day card she made for me. How quickly things turned. So glad to know at least she was back in the playroom this afternoon. What a roller coaster. Hang in there Pete and Ally. We love you.
Auntie Beth, Uncle Harvey and Cousin Emma <schoenbrgr@aol.com>
Land of healing prayers, CA USA - Monday, May 14, 2007 8:12 PM CDT
Intensifying prayers from this end. You receive.
Caroline, Randy and Sarah
- Monday, May 14, 2007 7:56 PM CDT
My heart and prayers go out to all of you.
I hope that Ivy continues to feel better as time goes on.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA 16648 - Monday, May 14, 2007 7:56 PM CDT
I'm so impressed that you can keep any of the medical terms straight or understand it all. It's overwhelming even to read it. We have white knuckles reading your entries Ally. You guys are truly brave, loving parents, an inspiration for everyone.
Dale and Norman Greene <dale@puzzlering.net>
albany, ca USA - Monday, May 14, 2007 7:25 PM CDT
Praying for your family and the beautiful Ivy to have a peaceful restful night with lots of recovery.
Hugs from Michigan
Carol Owens <cowens624@wideopenwest.com>
Shelby Twp, MI - Monday, May 14, 2007 7:04 PM CDT
Oh my, what a scary turn of events!!! We will be praying even more for Ivy's healing. We're hopeful that these antibiotics will do the trick and keep her playful as well as keep whatever the infection is under control.
You are always in our thoughts. Feel free to call if you need a friendly ear...we're always here for you!
Sending hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, May 14, 2007 6:42 PM CDT
sending Ivy lots of healing vibes. Sorry we'll miss our Tuesday play tomorrow. I'll check in on Wednesday and hope for good news (a boring update please) from you and Ivy. Big cyber hugs. We'll visit again as soon as we can, maybe Thursday.
Iris and Elsa <iris@moydesign.com>
- Monday, May 14, 2007 6:12 PM CDT
We're hoping that all these alarming symptoms end as quickly as they began! How amazing to see the fireworks from a boat on the bay. We were miles away watching in Alameda, and they were even spectacular from there!! I'm so glad you guys had a fun night out. Take care. Our thoughts are with you. Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Monday, May 14, 2007 3:17 PM CDT
Here's to hoping that Ivy's fevers come down soon, Are they checking for infection in her Broviac? Best wishes to the entire family!
Sonji
Englewood, CO - Monday, May 14, 2007 2:35 PM CDT
I hope Ivy improves and fast!
Glad you had some great moments on Mother's Day! You deserve them.
Susan
Redmond, - Monday, May 14, 2007 12:49 AM CDT
Allyson, wishing you a happy belated Mother's Day. I'm sorry to hear that there were some low moments this weekend, but also glad to hear about the good times. I hope that Ivy can get rid of the fevers and other symptoms very soon!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, May 14, 2007 9:14 AM CDT
Happy Mother's Day, Allyson! You are an awesome mama :-)
Give Ivy and Jasper hugs from the boys...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Sunday, May 13, 2007 5:29 PM CDT
Happy Mother's Day Allyson!
Tracy <tjly7@yahoo.com>
- Sunday, May 13, 2007 8:28 AM CDT
We are thinking of you!! And, Allyson, I hope you have a wonderful Mother's Day with your two precious gems. :)
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Sunday, May 13, 2007 0:27 AM CDT
We are thinking of you and wishing those itchy spots away! Have fun guys! xo
Lindsay Kate & Jill <jillmcalpine@comcast.net>
- Saturday, May 12, 2007 4:54 PM CDT
Sending lots of love your way from Logan and the rest of the Johnsons.
Donna Johnson <Donna_johnson@nottheactor.com>
- Friday, May 11, 2007 1:23 PM CDT
Woohoo!
I hope the spots are just from scratching.
Many {Hugs}
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Friday, May 11, 2007 12:14 AM CDT
We're so happy Ivy is feeling well! Gosh, her <.1 makes Patrick's 1.6 WBC look huge! We'll be praying that her counts come back soon! And, we hope the mystery rash goes away and does NOT come back.
I completely agree with you about the hospital. I think all parents should spend time in the hemonc ward...puts such perspective on everything. In the midst of what could be such sorrow is usually the most amazing joy. Kids are so resilient.
Sending you lots of hugs! And, hoping to see you with Patrick and Ivy feeling well enough to maybe enjoy the Hike reception on June 1!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Thursday, May 10, 2007 10:52 PM CDT
I'm relieved that another 5 South mom enjoyed Ivy's giggles when we played chase Tuesday night! I worried her squeals and shrieks were waking the entire floor! I figured her hard-earned unabashed joy was worth it (nor did I have the heart to stop her). We soak in every one of these moments. Allyson and Pete, Ivy's incredible resilience and persistent joy is a testament to the love and patience you give her despite unthinkably difficult circumstances. Love,
Auntie Beth <schoenbrgr@aol.com>
- Thursday, May 10, 2007 8:24 PM CDT
What good news to hear that Ivy is up and running -- literally! Hoping that the time passes quickly and that you'll get to go to Camp Okizu in a few short weeks!
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, May 10, 2007 11:39 AM CDT
So glad to read Ivy is up and running about. Thinking of you often.
Carol (mom2dae)
Leesburg, VA - Thursday, May 10, 2007 10:57 AM CDT
Ivy,
Your smile always brightens my day. I love to see and hear you running through the halls giggleing! I hope that as your counts go down you continue to smile.
Your 5 South Neighbors,
Desiree and Josh
Desiree Maligro <desmaligro@sbcglobal.net>
Brentwood (Oakland for Now), CA USA - Thursday, May 10, 2007 9:03 AM CDT
Love the no news updates! So happy Ivy is feeling well enough to run and have fun. Many hugs.
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, May 10, 2007 6:53 AM CDT
I hope the news is good when you hear it. It warms my heart to think of Ivy running all over the place! What an amazing little girl!
Tracy <tjly7@yahoo.com>
- Thursday, May 10, 2007 5:54 AM CDT
Many loving prayers from the Redwoods, seeing Ivy running running with a big grin on her face. May it keep up, and may it return after each difficult bout. She is/you are such wonder!
Caroline, Randy & Sarah
- Wednesday, May 9, 2007 11:18 PM CDT
Hi Ivy,
My son Nicholas has LCH and we live in Minnesota. We have been following your site and pray for you to get better every night. You are so young and as we know, you have been through so much. Keep healing.
Chip Johnson
Chip Johnson <cmnjohnson@yahoo.com>
Woodbury, MN - Wednesday, May 9, 2007 4:27 PM CDT
So glad to hear good news from the scan and that things seem to generally be progressing as expected. Keeping you in our prayers always!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, May 7, 2007 9:37 AM CDT
We're so happy the scans showed some good news! I am also on the bone marrow registry and keep hoping someone will call me...what an amazing gift to share! Thanks for updating Ivy's "fans" about the free sign up in May--it's a great time to register!
We hope things keep on looking up! We can't wait to see you in June!
Pam, Tom, Devin & Patrick
Folsom, CA USa - Sunday, May 6, 2007 11:00 PM CDT
Hey Allyson and Pete -
Thinking of you guys today. Glad that you finally received some good news. That girlie of yours is a fighter. Hope you know how many of our friends and family here in IL are praying for all of you right now.
Jack says HI IVY :)!
Melisssa Jeff and Jack Thompson <thomps98@comcast.net>
North Aurora , IL - Sunday, May 6, 2007 9:53 PM CDT
still praying in New Jersey for Ivy to get well soon. What a brave little girl she is.Hoping that another round of chemo completely wipes this horrible disease out. Wishing you well and praying for you and your family.
katherine kremer <kitykit04471@yahoo.com>
- Sunday, May 6, 2007 6:35 PM CDT
Hi Guys,
Let's hope that soon you are all out enjoying the weather, and that Ivy's next few days go well.
Dale and Norman Greene <dale@puzzlering.net>
albany, ca USA - Saturday, May 5, 2007 6:33 PM CDT
Just thinking of you all...hope you got the room you wanted! Give Ivy a hug from her histio buddy!!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, May 5, 2007 0:33 AM CDT
A million and one {HUGS} coming your way.
Can't wait to hear of the next trip home!
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Thursday, May 3, 2007 2:30 PM CDT
Loved having you guys over for salmon dinner Monday. So glad to squeeze in a "clan" gathering before you had to go back into confinement. Playing Twister with Ivy, Emma, Jasper and Grammie was a real highlight. Ivy expresses joy with reckless abandon. It's contagious. She's a miracle in motion. I'll be in to see you soon. Much love,
Auntie Beth <schoenbrgr@aol.com>
Oakland, CA - Thursday, May 3, 2007 2:24 PM CDT
So thankful to hear of Ivy's continued improvement. I hope this round of chemo goes smoothly so you can get out of there quickly and back home again.
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, May 3, 2007 9:30 AM CDT
I hope you got admitted last night and started treatment. I am so sorry Ivy has such a tough time with sedation, but congratulations for the great results.
Many prayers and hugs for this round.
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, May 3, 2007 6:56 AM CDT
Go Ivy Go! Sorry about feeling yuckie after your tests. Sedation is tough. Your friend Lindsay Kate sends kisses. Thinking of you and wishing you out-a-there real soon!xo
jill mcalpine
- Thursday, May 3, 2007 5:37 AM CDT
We're so happy that this chemo seems to be working! We'll say some prayers that it continues to do good things for Ivy.
Stay strong!
We'll be thinking of you :-)
Sending lots of love!
PS Glad the kids liked their Spidey slippers!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Wednesday, May 2, 2007 7:41 PM CDT
So happy to see such wonderful results from Ivy's scan! It sounds like you had a great time at home (except for the tooth thing - ouch!) and I can't imagine how tough it is to return to life at the hospital. Apparently the chemo is doing what it is supposed to though, so hopefully all of this will be behind you soon! Here's hoping your time in the hospital passes quickly and uneventfully. Sending loads of good thoughts your way!!
Edie <eross411@yahoo.com>
Kennebunk, ME - Wednesday, May 2, 2007 6:43 PM CDT
Checking on Ivy today. I hope she was able to do the Scan and that things are looking better.
Mandi Giacomo <mandigiacomo@hotmail.com>
Edmond, OK - Wednesday, May 2, 2007 1:45 PM CDT
Hoping that Ivy's cough is better for today and that youget good results from the scan. Thoughts and prayers are with you as you begin another round of treatment. Always thinking of you guys!!
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Wednesday, May 2, 2007 5:40 AM CDT
Thinking of you all...we hope Ivy's scan went well! Please let us know how she is doing. Our scan results were mixed. We will repeat next round and hopefully a plan will become clearer.
Hating histio (like you all, I'm sure!)...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, May 1, 2007 8:57 AM CDT
Lots of prayers for Ivy! Glad you're getting some nice time at home. I bet Ivy likes getting to be home in her own bed. :)
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Monday, April 30, 2007 8:54 PM CDT
Fingers crossed and hanging in with you, draped down the coastline from us to you.
Caroline, Randy and Sarah
- Monday, April 30, 2007 7:20 PM CDT
How frustrating! I am so sorry for all of the delays including the scan, treatment, moving etc. Praying the cough is gone by Wed. so things can proceed!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, April 30, 2007 8:56 AM CDT
Dear Ivy,
We're SO sorry we were out and missed you when you dropped by our house this afternoon!! (I had to drive Emma to her friend's birthday party.) Uncle Harvey and Piper sure were glad they'd stayed home and were able to see you and Jasper! Hope you can come to dinner Monday night. Love,
Auntie Beth and Emma
- Monday, April 30, 2007 0:01 AM CDT
Checking in to say Hi. Message from Lauren "Dear Ivy, I hope you are feeling better. I hope you're enjoying your Fairytopia tea set. Happy Spring. Love Lauren".
Sorry to hear the cough is persisting. We've all had nasty coughs and colds which is why we've been staying away. I'm pretty much over mine but all the girls are coughing again now, it never seems to end does it?!!! I do hope it's gone by the Wednesday though so the chemo can proceed. We desperately want you guys to be at Camp Okizu with us!!! Lauren is going to be celebrating the end of her treatment and Katie will be celebrating her 5th birthday so you need to come have cake with us. love you lots. Emma, Mike and the girls.
Emma Bishopp <emma@bishopp.net>
Lafayette, CA USA - Saturday, April 28, 2007 12:27 AM CDT
How frustrating! Sending many "cough-be-gone" vibes to Ivy for next Wednesday and fingers crossed that you'll be able to make your trip to Camp Okizu. I remember how much you guys enjoyed it last year and know you're really looking forward to it!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, April 27, 2007 3:26 PM CDT
So are you out, really out??? Since you haven't updated the blog, I BET you are!! WOOHOOO!!!!!!!!!!!!!!
Hope the CT scan goes well today...but that they concur with you to do another round anyway!
{hugs} -Caryn
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Friday, April 27, 2007 11:58 AM CDT
I hope you had a good week at home and that the CT scan today shows good things.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Friday, April 27, 2007 9:39 AM CDT
Going home; fantastic news! God Bless!
Richard Clark <rclark94502@yahoo.com>
- Thursday, April 26, 2007 8:11 PM CDT
Just checking in and catching up on Ivy! It's Thursday, and i hope you are all at home!!! What good news! Continued good thoughts and prayers for Ivy and her recovery!
Kathy <katcurran@hotmail.com>
St. Louis, Mo - Thursday, April 26, 2007 2:45 PM CDT
Hi there, called on your cell last night and left a message. Thought I'd leave a message here too so that you hopefully know we are still thinking of you constantly. I'm so, so glad Ivy is responding so well to treatment, way to go Ivy, we knew you could do it. Enjoy the few days you have at home, you deserve whatever little bit of respite and happiness you can get. Would love to talk to you, see you soon. Emma and the girls xxx
Emma Bishopp <emma@bishopp.net>
Lafayette, CA USA - Thursday, April 26, 2007 12:28 AM CDT
I hope you guys are at home. That is wonderful to read. I'll be hoping & praying for a great scan. Take care.
Julie (Julieand3) <jsvise@charter.net>
AL - Thursday, April 26, 2007 8:46 AM CDT
That's wonderful to hear Ally! I hope Ivy continues to improve and you all got to go home today! So happy to read this update :) Thinking of you all.....
Mia <mia5683@hotmail.com>
North Hollywood, CA USA - Tuesday, April 24, 2007 9:55 PM CDT
Welcome Home!!!
Great to hear of the turn around, and our prayers continue daily. Love, Rebecca and Joe
Rebecca Roth <rebeccakroth@yahoo.com>
Oakland, CA - Tuesday, April 24, 2007 5:26 PM CDT
Hey Al! I hope you are reading this from HOME! What a great turn-around by Miss Ivy.
Always routing for you,
Susan <suwaligi@gmail.com>
- Tuesday, April 24, 2007 4:58 PM CDT
Hoping Ivy got to go home today! Praying the upcoming tests come back with good results.
Austin's mom
www.caringbridge.org/visit/austin
Mandi Giacomo <mandigiacomo@hotmail.com>
Edmond, OK - Tuesday, April 24, 2007 12:17 AM CDT
Congratulations on going home! Enjoy the spring sunshine and all the happy moments that lay ahead at home :-)
Thinking of you all and sending healing thoughts your way...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, April 24, 2007 8:56 AM CDT
Yea!! What great news; go home and enjoy this beautiful spring!
Love-Becky
Rebecca Ellin <rebecca_ellin@yahoo.com>
Morehead City, NC - Tuesday, April 24, 2007 7:27 AM CDT
Wohoo, I hope you are out of there today! Have fun at home and enjoy being free! I hope the scan also shows wonderful news!
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, April 24, 2007 6:39 AM CDT
Yay!! What great news!! Here's keeping my fingers crossed that you do infact get to go home and things only continue to go in this wonderful direction!! I'm so happy for you guys! And I'm SO happy Ivy is doing so well!!!
Marleen Capps <marleenandbrian@yahoo.com>
St. George, UT USA - Monday, April 23, 2007 11:37 PM CDT
When things look brighter for you guys, it makes my happy too.
Dale
Dale and Norman Greene <dale@puzzlering.net>
Albany, CA USA - Monday, April 23, 2007 11:15 PM CDT
Woohoo! That's fantastic news! Keeping everything crossed (it is tomorrow already here!)
Jane <janemjr@yahoo.co.uk>
Hong Kong - Monday, April 23, 2007 10:37 PM CDT
That news isn't only shocking - it's absolutely, positively AWESOME!! I am so happy to hear that Ivy will be able to go home for a while. I hope her scan on Friday brings more good news and that things will just keep looking brighter and brighter for you all!
Denise Smith <denismith74@hotmail.com>
Indianapolis, IN USA - Monday, April 23, 2007 8:35 PM CDT
Wonderful news, Ally! I'm so happy you guys will be going home, what a welcome break for you all. I hope Ivy continues to improve and that you have more good news in your future!
Edie <eross411@yahoo.com>
Kennebunk, ME - Monday, April 23, 2007 8:22 PM CDT
That's the kind of shocking news one needs to hear! Not entirely surprised considering her lively lively behaviour of late. So glad you can end your confinement. I too think it would be wise to do one more round--hope medical people wil agree and also hope Fri scan will show good news. Love to you all. Sara
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Monday, April 23, 2007 6:12 PM CDT
Who-hoo!!!!! What exciting news! Keeping fingers crossed!
Tracy (tjly) <tjly7@yahoo.com>
- Monday, April 23, 2007 5:52 PM CDT
Yippee!! Hoping that you get to go home tomorrow and enjoy the springtime for a few days!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, April 23, 2007 4:12 PM CDT
Yeah! I'm hoping that all goes according to plan and that you are home sweet home tomorrow. Hope to see you soon... Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Monday, April 23, 2007 3:41 PM CDT
Yahoo!! What great news. Praying that everything keeps going well and you are fast asleep in your own bed tomorrow night - with all your family around you!!!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Monday, April 23, 2007 3:08 PM CDT
Oh wow, going home! Let us know what your schedule is for Tuesday. We can help you move your stuff, or we are available for play. Or both! Yipee!
Iris and Elsa
Oakland, - Monday, April 23, 2007 2:47 PM CDT
Hoping Ivy gets to get out of eixle soon! Always thinking and praying for those with LCH. I also hope Ivy gets her cupcakes soon!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, April 23, 2007 7:51 AM CDT
Visualizing Ivy, vibrantly healthy, at 6, at 10, at 17, a young woman. She is so beautiful, such an amazing soul. You are all amazing souls. Much love from us,
Caroline, Randy and Sarah
- Sunday, April 22, 2007 7:56 PM CDT
Ally dear, it was so good to see everyone yesterday so happy with company and Debbie's chocolate cupcakes all over Ivy's and Jasper's grinning mouths. And yes, you're right:it is an absolute miracle Ivy is doing so well, especially when one bravely glimpses back at where she was in February and up to mid-March. Her counts will come back soon and if it means no time home we'll help you out, and hold the big picture that, hopefully, after one more round of chemotherapy in May, Ivy will make it and be cured and beat this so she can share her precious self for many years with the world and her dear family. Your kids are such treasures and you and Peter are doing a spectacular labor of love. Cousin Emma and Grandpa send their love: they hiked across the Golden Gate Bridge to join others at the middle for the United Way of The Bay Area fund raiser for Bridging Communities to support Bay Area service organizations and spread the word that 2-1-1 can be dialed for helping folk in need get resources for social services. Just this monring I referred a baby to Ivy's Dr. Torklinsen, to evaluate a strange G.I tract condition that won't go away. It brought back all the pain and angst and work you two did to find Children's Hospital, and Dr. T. and help for Ivy. We hold all sick kids in our hearts, as Ivy and you have taught us. Hang tight, Love Grammie, Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Sunday, April 22, 2007 5:16 PM CDT
Here's hoping Ivy's immune system strengthens enough to allow you a few days at home. We pray every day for her and the other kids battling histio!
Shayne <mom2pete@hotmail.com>
Houston, TX - Sunday, April 22, 2007 4:51 PM CDT
Hi--
I hope you can stay strong (you are a wonderfully strong person Allyson)...and we hope Ivy's immune system shows itself very soon. You are in our hearts. Very sad to learn of the other children. I was happy Greg had the chance to visit with you, but disappointed I was not there also--I will have to get my act together and come out before too long!!
Love,
Ilana
Ilana <ilananodelman@yahoo.com>
Baltimore, - Sunday, April 22, 2007 6:57 AM CDT
Hang in there. Every day gets closer to beating histio.
Rose, Hanoch’s mom
http://virlib.brinkster.net/LCH/hanochstory1.htm
Rose Smith
Israel - Saturday, April 21, 2007 1:48 PM CDT
We hope you have a wonderful weekend! Maybe Ivy will want to wave to you some more and you can get out and enjoy the spring weather :-)
We will pray that her counts start to rise soon!
Lots of love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, April 21, 2007 9:29 AM CDT
Just checking in on you. I am sorry that Ivy is taking longer to recover this time, but I am glad that she is happier though. I hope you have a nice weekend.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Friday, April 20, 2007 10:34 PM CDT
Just checking in and letting you know that we are thinking of Ivy. I hope you have more happy moments this weekend.
Tracy (tjly) <tjly7@yahoo.com>
- Friday, April 20, 2007 7:00 PM CDT
Sending you many good wishes and prayers.
Bill VB
San Mateo, CA USA - Friday, April 20, 2007 3:35 PM CDT
Hope you got to start a fun new knitting project yesterday! Thinking of you guys and hoping that Ivy is improving so that you can go home soon. Sending hugs and good thoughts your way!
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, April 19, 2007 1:44 PM CDT
Allyson, I'm so bored at work right now and wish mightily that I lived close enough to come for a visit. When will they get that teleportation thing to be a reality?! In the meantime, I'll have to settle for reading Ivy's updates here. Thank you for posting them so faithfully!
I'm glad to hear that there is some positive news, and hoping that she continues to improve so you guys can spend a few days at home.
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, April 18, 2007 3:10 PM CDT
Hi all,
We're here pulling for you four. Hoping for the best for Ivy and her lovely family.
love,
Dale and Norm
Dale and Norman Greene <dale@puzzlering.net>
Albany, ca USA - Tuesday, April 17, 2007 12:04 AM CDT
Hoping in no time she is able to get out and play! I am sure it is so hard to confine her when she is full of engery! Giving everyone hugs, what a very heartbreaking week.
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, April 17, 2007 6:41 AM CDT
Thinking of you today sweet pea. It's my birthday actually, and I made a special wish for you girls. This will get better, hopefully real soon! love the photo!
jill
nh - Monday, April 16, 2007 10:11 PM CDT
Hi Allyson, Pete, Jasper and Ivy
Just touching base via the website as we haven't been able to come in and see you in the last couple of weeks. Lauren got sick a couple of weeks ago, ended up in ER at 3.30 am as you know so that week was out. Then we managed to make it away for Spring Break just down to Southern CA to hang out with Mike. Since then Katie's got sick, Lauren has finished her final in hospital chemo and has only 6 days left of chemo at home and now finally I've come down with a real stinker of a cold which I'm really fed up with because it means another week when I can't come in to see you!!! So, just wanted to make sure you know I have not forgotten you and that I'm keeping up-to-date with progress via the website. I think of you every day and hope and pray that things go as planned. As soon as we are all better and not at risk of spreading our germs I'd love to come keep you company again. With all our love, Emma, Mike, Sophie, Lauren and Katie xxx
Emma Bishopp <emma@bishopp.net>
Lafayette, CA 94549 - Monday, April 16, 2007 9:15 PM CDT
Hi Ivy,
Just stopping in to telling you were are proud of you and always thinking about you.
Donna Johnson (Logan's mom) <Donna_johnson@nottheactor.com>
- Monday, April 16, 2007 6:58 PM CDT
I hope you get some good news on her white count soon and that she is able to get out and play with the other children soon!
Tracy (tjly) <tjly7@yahoo.com>
- Monday, April 16, 2007 5:04 PM CDT
Hoping that Ivy's fevers subside and her counts are on the up and up. What a rough week for you guys, sending many hugs and prayers...
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Monday, April 16, 2007 3:55 PM CDT
Praying that Ivy's fevers will go away and her white counts head back in the right direction. Wishing blessings of peace and comfort on the families who have lost their little ones this week.
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, April 16, 2007 2:57 PM CDT
I am so sad to hear of Nathaneal's passing. I hope Ivy gets to feeling better. I was happy to hear the tests came back negative. Take care. Kristine and Aidan www.caringbridge.org/ks/aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Omaha, NE - Saturday, April 14, 2007 9:30 PM CDT
Just sending love and healing thoughts to you (and a little package now that we are home and able to mail it out!). Ivy remains constant in our prayers...we pray for her (and you all) to stay strong and keep on fighting the good fight!
Lots of love,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, April 14, 2007 6:30 PM CDT
We're thinking of you all, and especially sending condolences for you loss! Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Saturday, April 14, 2007 9:57 AM CDT
We are sending love and good thoughts your way, and praying this whole thing goes away really soon. hang in there sweet family...xo
jill <jillmcalpine@comcast.net>
nh - Friday, April 13, 2007 9:27 PM CDT
Oh, my heart goes out to Nathaneal's family!
Tanya
Alta Loma, CA - Friday, April 13, 2007 8:43 PM CDT
Ally, my heart is breaking for your friends Nathaneal and Zachary, and for their families. It sounds like Ivy is doing well, all things considered. She continues to be in my prayers.
Edie <eross411@yahoo.com>
Kennebunk, ME - Friday, April 13, 2007 4:57 PM CDT
I am so sad to read about Nathaneal. That's just heartbreaking. Continued prayers and well wishes for Ivy.
Julie (Julieand3) <jsvise@charter.net>
AL - Friday, April 13, 2007 3:28 PM CDT
I'm so sorry to hear about Nathaneal. My prayers to his family and friends, including poor Jasper. It's so unfair that any child that age has to deal with these issues. I am glad to hear of Ivy's test results. Hope her cough resolves soon so you can get out and about a little bit.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, April 13, 2007 3:02 PM CDT
Sending lots of prayers for your friends, and for little Ivy, I hope she gets better soon, and won't be confined too much longer. That just has to be a long day for her...and you guys!
Thinking and Praying for you often.
JoAnn <joannwhite@outtech.com>
Maple Grove, mN US - Friday, April 13, 2007 2:58 PM CDT
very,very sad and sorry for the passing of Nathaneal.Iam praying so hard for Ivy to get well.keeping her in our thought and prayers here in New Jersey.
kathy kremer
Katherine Kremer <kitykit04471@yahoo.com>
Toms river, nj USA - Friday, April 13, 2007 2:58 PM CDT
I am so sorry Ally. My prayers go out to Nathaneal's family. How heartbreaking for Jasper.
Valerie <val_ea@yahoo.com>
London, Oh - Friday, April 13, 2007 2:56 PM CDT
Oh Ally! I am so sorry! How hearbreaking! My prayers go out to his family. And as always, to sweeet Ivy.
Tracy (tjly) <tjly7@yahoo.com>
- Friday, April 13, 2007 2:39 PM CDT
I am so sorry this is such a sad week. Many prayers for Ivy and Nathaneal. My heart aches for those loosing their battles. Hoping Ivy does not have pnuemonia. Thinking and praying for all of you.
Valerie <val_ea@yahoo.com>
London, Oh - Friday, April 13, 2007 6:41 AM CDT
Hugs and prayers for Ivy, your family, and all the kids fighting for their lives there in the hospital.
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, April 12, 2007 6:01 PM CDT
It was fun watching Jasper play with his cousins Sunday. Nico was trying to keep up with Jasper, which was adorable. Jasper moves fast, it was a real challenge for Nico to follow him. Ally, it was nice to see you for the brief time you rotated to the gathering. Best to all, Dale and Norm Greene
Dale and Norman Greene <dale@puzzlering.net>
Albany, ca USA - Thursday, April 12, 2007 12:48 AM CDT
Glad that you found some comfort and joy during the holidays. We hope that Ivy continues to do so well.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Wednesday, April 11, 2007 6:44 PM CDT
Belated Happy Easter Allyson!
Glad to hear you had as nice a one as possible being in the hospital. Thanks for the cute mental images of the Easter egg hunt! Glad you are in your own room again. Hugs.
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Wednesday, April 11, 2007 12:59 AM CDT
So glad you guys had a wonderful Easter! I hope Ivy continues to feel well. Many prayers for both Ivy and Nathaniel.
Valerie <val_ea@yahoo.com>
London, Oh - Wednesday, April 11, 2007 6:50 AM CDT
It sounds like everything is going very well considering. Your Easter sounds good for a hospital. I'm so glad Ivy and Jasper had fun hunting eggs. Henry just loved hunting eggs this year. I will say a prayer for your little friend and I pray that Ivy continues to handle everything so well this go round.
Julie (Julieand3) <jsvise@charter.net>
AL - Tuesday, April 10, 2007 11:03 PM CDT
Glad to hear that things are going smoothly for Ivy. Will keep you all, as well as Nathaneal and his family, in our prayers!
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, April 10, 2007 9:58 PM CDT
Happy to read that things are going well! Too cute about the kids doing their own easter egg hunt! Will keep your sweet little friend in my thoughts.
Tracy (tjly) <tjly7@yahoo.com>
- Tuesday, April 10, 2007 8:28 PM CDT
Hey Al! We were back East last week. Glad to see that y'all had some time out of the hospital doing fun family stuff!
Fingers crossed that Ivy continues to do well. You're always in our thoughts!
Hugs,
Susan Swift <suwaligi@gmail.com>
- Monday, April 9, 2007 1:01 PM CDT
Hooray for your own room! It was a rainy weekend here, too. Glad to hear Ivy is still feeling relatively well, and hoping that continues as much as possible!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, April 9, 2007 9:20 AM CDT
Glad you are finally in your own room - makes life so much easier!! Crossing my fingers that this cycle goes smoothly!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Saturday, April 7, 2007 7:41 PM CDT
Hi Allyson, Jasper, Peter, and Ivy!
Nice new picture of Ivy (right?). I just caught up on your journal, and am glad you got into your own room again. My wishes are with you for this next chemo cycle.
Liam and I had fun in Fresno over last weekend and then Liam enjoyed Sarah's Science Camp over the last few days. Today he is playing at his cousin Noah's house, while I do my taxes. We will see you soon! I can pick Jasper up on Monday if you like (will call re that).
Love, Kira
Kira Foster <kielfo@sbcglobal.net>
- Saturday, April 7, 2007 6:28 PM CDT
Hi you guys,
We have been out of touch with you for awhile and just caught up with the guestbook. I was shocked to read about Ivy, and I hope you can hang in there! We are hoping so much that her condition will stabilize and improve. She has such adorable dimples! We miss you!!!
Love,
ilana, greg and isaac
Baltimore, - Friday, April 6, 2007 10:45 PM CDT
What a gorgeous smile! Glad to hear you've enjoyed your time at home!
Tracy (tjly) <tjly7@yahoo.com>
- Friday, April 6, 2007 4:32 PM CDT
Great pic - she is too cute!! Hope Ivy beats that cold quickly and that chemo goes smoothly - take care!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Friday, April 6, 2007 11:55 AM CDT
Hi little sweet girl! Glad to hear you are doing well, hopefully only one way to go from here! We are thinking of you...jill, Molly & Lindsay Kate
mcalpines <jillmcalpine@comcast.net>
nh - Thursday, April 5, 2007 4:33 PM CDT
I'm glad that you guys had such a great time at home. I hope the next round of chemo goes as well as possible. Give both kiddos a hug from me. Take care Ally.
Toni, Brian and Savanna - Dec '01
- Thursday, April 5, 2007 10:15 AM CDT
So sorry we missed you while you were at home! We're going away this weekend, but will check in next week to see when and where we might find you. We'll plan a visit and bring some treats. Love to all! Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, - Thursday, April 5, 2007 9:18 AM CDT
Love the new picture, so adorable! I hope this stay and short and sweet. Praying for a bed of 5 South soon!
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, April 5, 2007 6:44 AM CDT
Hi Ivy, just checking in on you. Stay strong! Kristine and Aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Omaha, NE - Wednesday, April 4, 2007 9:26 PM CDT
I was about to start, "Love the new picture!", got there and saw everyone had already said that! So, at least you know we're up here in the hinterlands crying with love over Ivy's sweet face and indominable spirit, and admiration of yours! It would also be lovely to have a picture of bald Ivy, too. We remember the bald days of chemo here back in '98, and there's something very powerful about it. We love you!
Caroline, Randy and Sarah
- Wednesday, April 4, 2007 9:03 PM CDT
Love the new picture! Sounds like you guys enjoyed every minute of your time at home - good for you! I hope you are able to get a private room soon, I'm sure that makes your stay much more comfortable (relatively speaking). So happy to hear that Ivy has been feeling good and doing well. Sending many prayers for the days to come.
Edie <eross411@yahoo.com>
Kennebunk, ME - Wednesday, April 4, 2007 8:42 PM CDT
Great new photo--she has the Jasper smile! Loved the other photo too.Do you have copies?Would love to have them if you do.So happy to hear of your happy week-end. Hope cold goes away and that 5 south opens up and that your return to-day went as smoothly as possible. Look forward to seeing you here on Easter (in relays I'm sure) --wish Ivy could be with us in person too, but she is always is our hearts and we plan to send her easter basket to the hospital. Much love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Wednesday, April 4, 2007 8:41 PM CDT
I love the new picture of Ivy! It sounds like you guys had a great weekend and glad to hear the news of her blood counts. Continuing to think of and pray for you as she starts this new round of chemo. Hoping you can get your own room soon and that she recovers quickly from her cold.
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, April 4, 2007 8:11 PM CDT
Hi Ivy,
I have never been to your site before but came across it tonight. You are such a beautiful little girl. We too have a little boy, Joel, that is almost 28-months old that has LCH. He was diagnosed at 6 months and has had his ups and downs along the way. But we get so excited to hear when others get to go home. My wife, Tina, and I will be praying for your continued good health and reports. May the Lord richly bless you!
Dave & Tina Wagner - Minnesota
www.caringbridge.org/visit/joelwagner
Dave Wagner <dwagner@inspiredtechusa.com>
Le Sueur, MN USA - Tuesday, April 3, 2007 8:29 PM CDT
Hi Ivy, just checking in on you. Glad to see things are moving in the right direction and you get to go home for a couple days. I was so shocked to hear of your relapse and sorry to hear about how hard it has been on you. Stay strong! Aidan goes for scans tomorrow and I am getting really nervous because a couple families we know have relapsed lately. I will put his results up as soon as I know something. www.caringbridge.org/ks/aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Omaha, NE - Monday, April 2, 2007 9:26 PM CDT
Hi Ivy,
It is such wonderful news that you are going home. My son Nicholas has LCH and we read up about our friends around the country who a battling LCH. He smiled when he heard that you were going home. Take care and be strong.
Chip Johnson <cmnjohnson@comcast.net>
Woodbury, MN - Monday, April 2, 2007 12:56 AM CDT
Ivy and family,
We miss you already but, we are sooo happy that your enjoying this beautiful weather at home! We hope you all enjoy the peace of your home visit and we're thinking of you up here on 5South.
Love and Prayers,
Desiree, Josh, and family
Desiree (Joshua's Mom) <desmaligro@sbcglobal.net>
Brentwood, SF Bay Area, CA USA - Sunday, April 1, 2007 10:13 AM CDT
So, so, so happy to hear you are going home! Please email me an address for the package for Ivy and Jasper...it's still waiting to be sent.
We are thrilled that Ivy can enjoy some play time outside and will finally get to sleep in her own bed! How wonderful for all of you to be together and NOT in the hospital!
Hugs to you all,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, March 31, 2007 6:46 PM CDT
Yay! I'm so glad things are going in the right direction! And what wonderful news about getting to go home for a few days! Enjoy your time at home!
Marleen Capps <marleenandbrian@yahoo.com>
St. George, UT - Saturday, March 31, 2007 4:35 PM CDT
I can't imagine how wonderful it is for you to go home even for a few days. Great news! Enjoy your freedom!
Julie (Julieand3) <jsvise@charter.net>
- Saturday, March 31, 2007 10:24 AM CDT
What wonderful news, Allyson! I hope you all enjoy your time at home and that Ivy continues to have a spring in her step!
Edie <eross411@yahoo.com>
Kennebunk, ME - Friday, March 30, 2007 11:56 PM CDT
Such great news!!! Enjoy being at home and the beautiful spring weather! Love, Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Friday, March 30, 2007 10:26 PM CDT
Yahoo!! What great news - I'm sure you will not know what to do together at home...though I am sure you will figure it out!!! Have fun, relax, enjoy your blessing!!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Friday, March 30, 2007 10:23 PM CDT
Congrats on your free weekend!!! I am so happy to hear that Ivy is doing so well.
Madeline (Maddy0025) <maddy0025@yahoo.com>
Bohemia, NY - Friday, March 30, 2007 10:05 PM CDT
I hope you are all snuggling deeply into your own beds right now! Enjoy your weekend of "freedom"!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, March 30, 2007 9:01 PM CDT
Hurray for going home!!!!
Dana (DanaMomtoKandC) <dmitra@psu.edu>
State College, PA - Friday, March 30, 2007 7:11 PM CDT
My thoughts and prayers go out to your family. My nephew in Arizona is seven years old and was just diagnosed in November 2006. What a horrible disease.I look at Ivy's progress at least once a week and Iam delighted that things are looking better. best wishes and god bless.
Katherine Kremer <kitykit04471@yahoo.com>
toms river, NJ - Thursday, March 29, 2007 11:05 PM CDT
Good news! And also great that Jasper has a new friend. Continued prayers for all of you. ((HUGS)) Allyson.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Thursday, March 29, 2007 6:19 PM CDT
Just getting caught up and SOOO glad things are looking better! I will praying for your "parole" and some lovely weather to enjoy on it!
Beverly (aka Scoogymom)
New Gloucester, ME USA - Thursday, March 29, 2007 6:16 PM CDT
Hey Pete and Ally - Just wanted you to know I've been keeping posted on Ivy's great progress while I've been away caring for Grammie. Thinking of you four all the time even though we're not there in person. Haven't been able to visit since Saturday and I'm so bummed to be missing playing with Ivy now that she's got her energy back! Jasper's overdue for a visit to our house too! If Grammie remains stable I should be able to keep my commitment to cook dinner for you with Debbie tomorrow (Friday). Let me know if that would be good timing for you in light of other food deliveries. See you then! Hang in there. Love,
Auntie Beth (and love from Harvey & Emma who miss you too!) <schoenbrgr@aol.com>
- Thursday, March 29, 2007 5:25 PM CDT
I am sooooooo happy that Ivy is improving! I'll be in Friday (tomorrow) with lunch for you all.
Love,
Jessica
Jessica <patrickmc2@comcast.net>
el Cerrito , CA USA - Thursday, March 29, 2007 1:43 PM CDT
I am so happy that things are looking up for Ivy!! I hope and pray you guys get a much deserved break at home! Continued prayers for her recovery!!!
Kathy Curran
St. Louis, MO USA - Thursday, March 29, 2007 10:01 AM CDT
Hello Ivy and family, You do not know me, but I watch your site and am keeping Ivy in my prayers. I know how important the good new of Ivy's ACN at 350 is, great job Ivy, you GO GIRL!
Sue Wilde-Behl (Kendall's Grandma) <swilde@mcw.edu>
Greenfield, WI - Thursday, March 29, 2007 5:18 AM CDT
I am happy to read that the possibility of going home this weekend is looking more promising.
I am glad to hear that Ivy is improving some.
Hang onto the positives!!
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Wednesday, March 28, 2007 8:27 PM CDT
I'm so glad to hear that Ivy is doing better, and will pray that she continues to improve enough to come home! My thoughts and prayers are with you all.
Tanya
Alta Loma, CA USA - Wednesday, March 28, 2007 8:01 PM CDT
Overjoyed/relieved Ivy is getting resistant to infection! Missed seeing her since a week ago Monday when she had just begun to feel better and be more active. Since I am home after a 4 night hospitalization for acute anemia (three transfusions and lots of tests) I hope to visit her and see Jasper in a few days. It will be good to see Ivy's renewed energy. Remembering these good times will help carry me through Ivy's next chemotherapy/neutropenic times ahead when we wait for further recovery. I now know somewhat first hand how little Ivy feels when her blood counts are low. I have an even deeper respect for the profound impact and coping Ivy does on low hemoglobin day after day.
Bless this child. The core group of support givers, who have helped out collectively mostly on a daily basis, will continue as we can during her next cyle as needed and include: Auntie Beth, Grampa Ed, Aunt Sara, Uncle David, cousin Emma and Uncle Harvey, Grammie and neighbors Debbie and Eric whose home-cooked meals delivered to soothe body and soul we all have enjoyed at the hospital; and away from the hospital they have also work days, nights, weekends to make Ivy's new home ready for her. This core group of folks re-sets priorities to give support at the hospital or support those who are at the hospital, so we can help and know the need is great.We all do it because we love you and we want Ivy to get well.
Thank you so much, Peter, for the completely unexpected blessing of three visits to me at Alta Bates while you continued to juggle work,and Ivy care, and your nights at the hospital. I'll be back on my feet soon with outpatient IV's of iron and more tests. I can't wait to visit and play with Ivy like I could before I was ill, even on her nose bleed days, as well as care for and play with Jasper. For all of you, I hope going home is in the cards this weekend so you get a break before chemotherapy cycle starts again next Wednesday. Much love, Grammie-Mom-Jenifer
JMSchoenberger@aol.com <JMSchoenberger@aol.com>
Oakland, CA USA - Wednesday, March 28, 2007 7:41 PM CDT
Just letting you know that I'm checking in on how Ivy's doing and that we are thinking of you. It's great to read how she's steadily improving and walking now. I'm so glad she's a happier little soul now. Will call you soon. Love to all. Emma, Mike and the girls
Emma Bishopp <emma@bishopp.net >
Lafayette, CA 94549 - Wednesday, March 28, 2007 6:22 PM CDT
Yipee! Hoping the numbers are there in no time!! Suduko can be addicting, eh? Glad for the great update!!!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Tuesday, March 27, 2007 11:31 PM CDT
So glad to hear things are moving in the right direction and that you may be able to home for a few days. Sorry we have not visited as much as before due to helping with Jenifer's week-end hospitalization. Things are much improved so hope to see you to-morrow. Hope Ivy enjoyed the books and that you will be enjoying the meals from the Magic Kitchen which were delivered to-day. Stay well. Love to all, Sara and David P. S. Jasper is always welcome here if he wants another adventure away from you.
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Tuesday, March 27, 2007 10:19 PM CDT
So happy to hear of Ivy's continued progress and hoping that you'll be able to go home, even if only for a couple of days! I wish with all my heart I could come visit!
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, March 27, 2007 9:06 PM CDT
Yeahhhhhh!!! Thank goodness. We're so happy to hear this.
Randy, Caroline and Sarah <ci2rm@suddenlink.net>
Eureka, ca usa - Tuesday, March 27, 2007 9:06 PM CDT
Good progress, hooray! Continuing to pray and send best wishes your way.
Donna Johnson (Logan's mom) <Donna_johnson@nottheactor.com>
- Tuesday, March 27, 2007 7:30 PM CDT
I'm so happy to hear things are headed in the right direction. I hope you are able to enjoy a few happy days at home soon!
Tracy (tjly) <tjly7@yahoo.com>
- Tuesday, March 27, 2007 7:10 PM CDT
Wow - another great update! I'm so glad things are going in the right direction. I will be keeping my fingers crossed that you will make it home for a few days, I'm sure that would be a treat for all of you. Wish I was close enough to visit, but the best I can do is send loads of prayers for continued improvement, along with hugs!
Edie <eross411@yahoo.com>
Kennebunk, ME - Tuesday, March 27, 2007 5:52 PM CDT
Just read and caught up on Ivy Kate - wow! She is a real trooper. Hang in there guys. We are praying for you - when I update Lauren's page I put a plug in to pray for you and a few others that are relapsing as well.
Take Care
Heather
www.carepages.com laurensstory
Heather <momofland@numail.org>
- Tuesday, March 27, 2007 4:40 PM CDT
I was so happy to log on today and get your good news - I love all the reports of Ivy charming the whole hospital staff. I hope things continue to improve. Thinking of you guys always,
Sarah Weld
Sarah Weld <sarah.weld@sbcglobal.net>
Oakland, CA - Tuesday, March 27, 2007 3:19 PM CDT
Way to go Ivy, what wonderful news! That is so awesome of Jaspers school, what a great bunch of parents there! So happy for the amazing update. Many more prayers, they seem to be working.
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, March 27, 2007 6:58 AM CDT
Just letting you know that I'm checking in on how Ivy's doing and that we are thinking of you. It's great to read how she's steadily improving and walking now. I'm so glad she's a happier little soul now. Will call you soon. Love to all. Emma, Mike and the girls
Emma Bishopp <emma@bishopp.net >
Lafayette, CA 94549 - Monday, March 26, 2007 11:57 PM CDT
So happy to hear that Ivy is feeling good enough to walk around, and smiling to boot! What a wonderful update. Here's hoping for continued improvement!!
Edie <eross411@yahoo.com>
Kennebunk, ME - Monday, March 26, 2007 9:39 PM CDT
Yey Ivy, Ally, Pete and Jaspar! You have all earned this good news. We are so glad for you.
Dale and Norm
Dale and Norman Greene <dale@puzzlering.net>
Albany, ca USA - Monday, March 26, 2007 9:07 PM CDT
Great update - here's to a huge jump in counts so you can go home, even if it is only for a couple days. Glad things seem more encouraging and upbeat - you guys definitely deserve some good news and good progress! You continue to be in our thoughts and prayers!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Monday, March 26, 2007 8:45 PM CDT
It has been awhile but I am praying for you and IvyKate!! Olivia and I think of you often. You guys were the first to welcome me to the "WONDERFUL (NOT)" world of Histio!!! Big hugs and Kisses to IvyKate. Keep fighting little one, you are our inspiration!!!
www.caringbridge.org/visit/oliviagrace
Tammy and Oliva <tlstg@msn.com>
Bridgeview, Il - Monday, March 26, 2007 7:00 PM CDT
I'm grinning from ear to ear! What a nice update. I'm glad Ivy is doing so well! What a trooper she is!
Marleen Capps <marleenandbrian@yahoo.com>
St. George, UT - Monday, March 26, 2007 3:48 PM CDT
Oh, how a good update puts a smile on my face!! I am so happy that Ivy is doing better. I am also glad that Jasper is getting some special attention from the wonderful parents that are helping you also. I am so glad that you have people there that can help. Also know that we are thinking of and praying for you all.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Monday, March 26, 2007 3:43 PM CDT
My heart is soaring after reading today's update. What wonderful news that Miss Ivy is on the move! We think of you and pray for you every day.
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, March 26, 2007 2:53 PM CDT
So glad to hear that Ivy is doing so much better! We continue to send love and thoughts your way...Hang in there!!
Becky and Ben
Morehead City, NC - Monday, March 26, 2007 7:37 AM CDT
Hi lovely! We are just checkin' in on our sweet friend Ivy Kate, waitin' for an update! We will be patient, I bet you are keepin' mama busy! xo jill, molly & Lindsay Kate (say hi to Jasper for us!)
jill mcalpine <jillmcalpine@comcast.net>
nh - Sunday, March 25, 2007 4:26 PM CDT
Hi Ivy: I'm Iris' mom (Elsa's grandma) and I hear from Iris every day about how you are doing. I met you just once when you visited Iris and Elsa,and I remember what a sweet little girl you are. I am so glad to hear that you are feeling better, and I hope that you will be back home soon with your mommy and daddy and your brother Jasper. I look forward to seeing your happy face again as you looked in the photo taken at the merry-go-round. I think about you every day.
Love, Connie
Constance Weiner <ceweiner@ix.netcom.com>
Berkeley, CA US - Sunday, March 25, 2007 3:08 PM CDT
So glad to hear the good news! Thinking of you all the time and sending our love...
Jen, Stuart and Ben <jen@gripman.net>
El Cerrito, CA - Sunday, March 25, 2007 10:48 AM CDT
We are so happy for the news that Ivy's liver and spleen are smaller. That is a great sign! We will keep praying that things keep going good. Stay strong.
Kendall and her mommy(Vicki) <vickibehl@hotmail.com>
Mukwonago, wi - Friday, March 23, 2007 6:19 PM CDT
We are so happy for the news that Ivy's liver and spleen are smaller. That is a great sign! We will keep praying that things keep going good. Stay strong.
Kendall and her mommy(Vicki) <vickibehl@hotmail.com>
Mukwonago, wi - Friday, March 23, 2007 6:19 PM CDT
Dear Ivy
I'm glad everything is OK. I hope that you are feeling better! I hope I can come in to see you again soon. Mummy has another check for the Histio organisation to give your Mummy. Lots of Love lauren xxx ooo
Emma Bishopp <emma@bishopp.net >
Lafayette, CA 94549 - Friday, March 23, 2007 4:57 PM CDT
HOORAY!! I am so happy to see Ivy's good news! I am praying that this is only the start of much more good news to come!
Denise Smith <denismith74@hotmail.com>
Indianapolis, IN USA - Friday, March 23, 2007 2:15 PM CDT
So thrilled to hear the good report from the scan! I'm glad to hear that Ivy is feeling a bit happier today. No doubt that must lift everyone's spirits!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, March 23, 2007 1:25 PM CDT
Great news! Ivy Kate, you just keep bashing and beating that LCH till it never comes back.
Rose, Hanoch’s, mom
http://virlib.brinkster.net/LCH/hanochstory1.htm
Rose Smith
Israel - Friday, March 23, 2007 9:06 AM CDT
Such great news about Ivy! I am so happy the scan had such wonderful results! I will continue to pray for more and more positive test results! Yeah!
Shana (my4munchkins) <sjump@castlecrk.com>
Bossier City, LA USA - Friday, March 23, 2007 8:53 AM CDT
Awesome news! I am so happy for Ivy, praying the great news continues!
Valerie <val_ea@yahoo.com>
London, Oh - Friday, March 23, 2007 6:47 AM CDT
So happy to hear the good news!!! I have been praying really hard for such wonderful improvement. Keep it up, Ivy Kate!!
Donna, Erin's mom (www.caringbridge.org/visit/erinnewton) <donnan@bellsouth.net>
Gardendale, AL USA - Thursday, March 22, 2007 9:31 PM CDT
Yippiekiyeah!!!I just KNEW i'd read good news when I clicked on my Ivy Kate!!! hang tough sweet pea, we are all rootin' hard for you! xoxo
jill & lindsay kate & molly <jillmcalpine@comcast.net>
nh - Thursday, March 22, 2007 9:21 PM CDT
Excellent news!! And it's always good when the doctors are grinning! :) Go Ivy!
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Thursday, March 22, 2007 7:58 PM CDT
Great report! She sounds like she is feeling so much better too. So happy to read this. I hope she feels better and stronger each day.
Julie (Julieand3) <jsvise@charter.net>
Alabaster, AL USA - Thursday, March 22, 2007 7:49 PM CDT
Yay, yay, yay Ivy!!!
So, all the blood and platelet transfusions Ivy has had reminds me that it's been a while since I've donated either. Time for me to get back in the groove.
If anyone's interested in contributing to the blood or platelet supply, I encourage you to do it!
Susan Swift <susaneswift@hotmail.com>
Redmond, WA USA - Thursday, March 22, 2007 6:05 PM CDT
Woo-hoo, wonderful news on the scan results! Hope the good news keeps coming, Ivy certainly has a lot of people pulling for her!
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, March 22, 2007 5:23 PM CDT
Grreat news re scan, smaller liver,spleen, and nodes!!! We are all rooting for Ivy--glad she considers Anne her friend. Spoke to Paula at Jasper's school and apparently they had a great response to the food sign-ups. So guess you are covered for Mondays and Thursdays. So shall we sign you up with Magic Kitchen for some of the other days? See you soon. Love, Auntie Sara and Uncle David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, March 22, 2007 4:27 PM CDT
Deeply moved by Lauren's generosity, and that of other children. Such depth so young. There's a rainbow in this storm somewhere.
Much love,
Caroline (and Randy and Sarah)
- Thursday, March 22, 2007 0:32 AM CDT
So glad you guys had a good day! Hoping for great results visible on the scan, no fevers, happy days! Love to you all, I'm off to Boston tonight but wanted to say hello before I go! Will be sending a little something soon to help with the hair problem, still waiting for it to get to my house. Til' then..
Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Wednesday, March 21, 2007 7:41 PM CDT
Hi, I'm Iris' sister (Elsa's aunt). We've talked a lot recently about Ivy and today when I saw the photos I really felt I wanted to say something... but it is hard to know what... to say... Ivy looks so sweet and so lively in the photos -- I only hope that she'll soon be back smiling and healthy again.
jane weiner <jane.weiner@free.fr>
Paris, France - Wednesday, March 21, 2007 5:01 PM CDT
Glad Ivy had a great day, and so glad you are over the cold - I am sure you missed your girl. The hair falling out is sad - my friend's daughter went through the same thing (and now she has peach fuzz!!! yea!). Also, with the fevers - hope she stays fever free - I know that is such a worry. Keep strong - you guys are doing great!!!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Wednesday, March 21, 2007 10:03 AM CDT
How wonderful it must have been to be back with your sweet girl. Praying that there is no fungus or other serious infection and that Ivy continues to improve, even if it's in baby steps.
How wonderful about Lauren. What a sweet, caring and selfless thing to do!
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, March 21, 2007 9:34 AM CDT
Hello Ivy and family - glad to hear there may be some improvement. Slow improvements are better than none. We'll continue to keep little Ivy in our thoughts and prayers and hope there is no infection.
Our best wishes to you all -
Renee, Matt, Christian & Jacob
(We sat next to you at the baseball game in Cleveland)
www.caringbridge.org/oh/christianlch
Renee LaFountain <cr_lafo@yahoo.com>
N. Canton, OH - Wednesday, March 21, 2007 8:57 AM CDT
I'm so glad your cold is better and you were able to get back in there with your sweet girl. I hope the fevers stay away, her white count continues to rise, and the CT scan shows only good things! Sending continued prayers, along with many hugs.
Edie <eross411@yahoo.com>
Kennebunk, ME - Wednesday, March 21, 2007 8:01 AM CDT
Glad you were able to see your cutie-pie today and that she had such a great day! Yay for a better belly!
Love,
Susan <suwaligi@gmail.com>
Redmond, WA - Wednesday, March 21, 2007 0:50 AM CDT
Hoping that the white cell count continues to rise and that you get over your cold fast!
love jessica, stefano, nico and asa
- Tuesday, March 20, 2007 12:42 AM CDT
Hugs Allyson. I hope your cold goes away quickly and you can get back to your sweet baby girl!
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, March 20, 2007 6:38 AM CDT
I hope you are feeling better soon and are able to return to Ivy as soon as possible! Lots of love.
Jen, Stuart and Ben <jen@gripman.net>
El Cerrito, CA - Monday, March 19, 2007 8:44 PM CDT
Dratted cold! I hope it goes away quickly! Would love to see pictures of your and Ivy's artistic endeavors!
Tracy (tjly) <tjly7@yahoo.com>
- Monday, March 19, 2007 5:42 PM CDT
Just checking in and remaining strong in prayer for Ivy!
Hoping to see you sometime this week--I will call when we get down there and see how things are going.
Hugs to all of you!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, March 19, 2007 4:32 PM CDT
Home alone?? Wow! Don't go too crazy and wear yourself out! Well, I guess that kind of tired may be welcome!
Keeping my fingers crossed that there is no difficult infection to battle.
Many hugs, Caryn
Caryn <crackatoa_k@yahoo.com>
Sacramento, ca - Monday, March 19, 2007 3:03 PM CDT
Hope the scan shows some good news. I'd hope that Camp Okizu is used to last minute reservations given the population that they serve. What a much needed respite that wonderful place could offer for your family. Thinking about all of you.
Dana <dlmitra@yahoo.com>
State College, PA - Saturday, March 17, 2007 2:47 PM CDT
Just trying to get updated on things. Ivy looks so grown up in her pics and so adorable. Keeping you in my thoughts and prayers. Carol, Taya and Anya
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Saturday, March 17, 2007 1:02 PM CDT
Pete, Ally, Jasper & Ivy
Just stopped by to say I'm always thinking of you! Hoping each day brings healing to Ivy, and soon she'll be out that door playing with the kids. Hang in there all of you.
Love, Tracy, Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Saturday, March 17, 2007 1:40 AM CDT
Thanks for the daily updates--good to have uneventful days--let's hope the scan next week will be eventful as in showing improvement. But sorry you are indoors during such warm and unusual weather. Glad Ivy is chatty--was fun to learn that she ate the broccoli while also eating the ice cream sandwich last night. Look forward to seeing you tomorrow. Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Saturday, March 17, 2007 0:23 AM CDT
Glad it was a fairly uneventful day! I am so sorry we ended up not making it up there. Our appt went much longer than we thought (just lots of talking about plans, etc) and Patrick was exhausted. He was asleep before we left Palo Alto so I didn't think it was wise to stop. BUT, we are coming back Tuesday and staying til Saturday so I am sure that one of those days that works out for Ivy and you all we might be able to stop by for a visit.
Sending much love and many hugs, and hope for another uneventful day!
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Friday, March 16, 2007 9:05 PM CDT
Glad Ivy rallied after I left the hospital yesterday. She needed that sleep.So did you! I don't know how you and Peter do it. It sounded, from Grandpa's visit that Peter was welcome "home" from work to a hospital room of warm food from Sara and a happy son Jasper thanks to Adria and Leo and Jaan. I will see you shortly to give you a break and I know cousin Emma and Auntie Beth want to stop by to help as well. Holding hope, may Ivy keep holding to that healthy day when this is behind us and she can say, "Oh, what's a silly nose bleed!" while playing soccer or riding her trike next door. HAng tough Ally and Peter.All my love, Jenifer-Mom -Grammie
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Friday, March 16, 2007 3:14 PM CDT
I know this is a tough and long fight, but you are simply amazing! You remain always in my heart and prayers.
Donna Johnson (Logan's mom)
- Friday, March 16, 2007 1:18 PM CDT
Sending some {HUGS} your way.
Glad yesterday was a bit better and the bleeding has stopped.
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Friday, March 16, 2007 1:50 AM CDT
Allyson,
Just want you to know that I read your journal daily. You are an amazingly strong woman, and I appreciate the fact that you share Ivy, Jasper, you and Pete's condition. Thank you.
Dale Greene
Dale Greene <dale@puzzlering.net>
Albany, ca USA - Thursday, March 15, 2007 6:42 PM CDT
I've shared this poem here before, but feel called to do it again. Hope, faith whatever we call it, Ivy's healing demands this of us. Emily Dickinson captured how hope feels, that warmth that is beyond words. She also knew, as she expresses in the last verse, how hope is just there for us, present and available for us and does not ask demand anything of us. Let us choose to rest in hope today. And then choose it again tomorrow. Love, Auntie Beth
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all,
And sweetest in the gale is heard;
And sore must be the storm
That could abash the little bird
That kept so many warm.
I've heard it in the chillest land,
And on the strangest sea;
Yet, never, in extremity,
It asked a crumb of me.
Beth <schoenberger@aol.com>
Oakland, CA - Thursday, March 15, 2007 6:28 PM CDT
Oh-Allyson, you are right how much we take for granted, even our blood clotting abilities...amazing. I am praying for your sweet Ivy, and for your family to have continued strength and help for the times to come.
And Jasper, sweet Jasper, many hugs for him.
Thanks for updating.
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Wednesday, March 14, 2007 1:17 PM CDT
So sorry to hear that Ivy is having such a rough time right now. Embracing the good news on her liver and spleen, and hoping for more good news and improvements for your sweet girl in the days to come. Sending many prayers and good wishes your way (several times a day, in fact!).
Edie <eross411@yahoo.com>
Kennebunk, ME - Wednesday, March 14, 2007 11:41 AM CDT
I'm so sorry it was a rough day. But I'm glad to hear about the smaller liver and spleen and hope that is a real sign of improvement on the way! Here's hoping for a more relaxing day for you today... We're sending our love.
Jen, Stuart and Ben <jen@gripman.net>
El Cerrito, CA - Wednesday, March 14, 2007 11:17 AM CDT
Checking in once more to see how you are all doing. So sorry to read about the nosebleeds but good news about the liver and spleen being smaller - yeah!!! We'll take every good piece of news going and pray that it leads to even better things. We were so sorry we couldn't come up to see you on Wednesday last week after Lauren's treatment. She was so upset and cried that she couldn't see Ivy. But, having read that Ivy is now officially neutropenic I'm so glad we didn't because Lauren was off school on Friday her cough was so bad. I was away all weekend with Sophie on a Girl Scout trip so have only just had a chance to catch up on all your news from the journal history. I really want to come in this week, I haven't come down with anything from Lauren so I should be OK. Tomorrow is hectic with various things at the school and the kids all have playdates in the afternoon but Thursday would work if that's ok with you? I could also bring you in dinner Thursday if I can get someone to take the kids for a bit. What do you like best - happy to cook for you by the way not just bring in take-out. I've got several more People mags and other similarly banal rags for you to read too Allyson.
Congrats on the teeth Jasper - what does the tooth fairy bring in Oakland, bet she's a lot more generous that the one in Lafayette.
Please know that not a day goes by without us thinking and talking about you. Which reminds me, it's Lauren's b'day party on Friday and she's asked for donations as we discussed for HAA - several people have mentioned it to us since we sent our invitations out. When Lulu is completely better she'd like to bring the donations in to you either to go towards the Hike again this year or for you to send to HAA in honour of our brave little Ivy.
With all our love and thoughts,
Emma,Mike, Sophie, Lauren and Katie
Emma Bishopp <emma@bishopp.net>
Lafayette, CA 94549 - Wednesday, March 14, 2007 1:35 AM CDT
Relieved at the hospital to hear liver and spleen are down and bilirubin improved. Ivy's color is less jaundiced but so pale. What a night and day of crisis and nose bleeds! Glad to help out this afternoon so you could get a much needed break Ally but sorry it was cut short by an SOS for yet another bleed out. She was so scared, choking and Jasper so helpful going for the nurse when there was no reponse to call button (shift change). I know the platelets and transfusions will help,as will some rest for all of you. Yes, we are in the very fragile period of Ivy's treatment and I can only hope she holds steady this week and the hemoglobin gives her strength as the liver returns to health. She is so brave and strong and it is as if she knows she needs to choose to be. So we all stay strong for her even though I know how exhausting these ciris are for you and Peter and her. She sure responds to reassurance, compassionate empathizing with her as well as logic. I felt badly leaving you after the afternoon crisis for work and I half expected my psychotherpy clients to start nose bleeds! So glad Jasper got some normal time with Grampa, and Auntie Beth at Emma's basketball game, while you and Peter got some home cooking from dear friends Debbie and Eric. How dear they have become, pulling for you and Ivy as well as keeping the house remodel moving forward. My hug as I left Ally, conveyed my love and that we're in this together: you and Peter are not alone although at times it feels so unknow and ovewheming. Hang in there and I'll give Jasper some quality time tomorrow and you some real breaks, without nose bleed alerts! You all are awesome. Love, Jenife-Mom, Grammie.
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Wednesday, March 14, 2007 1:21 AM CDT
Good to see all of you Sat eve--glad spleen and liver are smaller and so sorry to hear of the additional nosebleeds to-day--may the transfusions and platelets out pace the disease. We are thinking of you always. Love, Sara and David
sara dezerega <saradezerega@alo.com>
orinda, ca usa - Wednesday, March 14, 2007 0:10 AM CDT
I'm glad her liver and spleen are looking better, and any good news is worth clinging to! Sending ivy prayers that the treatments don't ravage her too much, and that those bleeds stop! Love to you all.
Tanya
Alta Loma,, CA United States - Tuesday, March 13, 2007 11:23 PM CDT
Hello Ally and Pete,
I also have been out of it with illness and Norm out of town so I'm just catching up with my first time at computer for several days. I cannot come to the hospital because I take a weekly immuneosuppressent injection for MS,and I have learned it pays to avoid all possible infections. However, You guys are always in our hearts, and we want to do whatever we can when Norm is in town to help. We sincerely hope you will make any request to us. We do want to get a Jasper present when you think of something special. love and warm thoughts to all of you, Dale and Norm
Dale and Norman Greene <dale@puzzlering.net>
Albany, ca USA - Tuesday, March 13, 2007 10:58 PM CDT
Great news about Ivy's liver and spleen. Sorry that there is not better news all the way around. Sending many hugs for Jasper! And continuing to pray for Ivy's recovery and comfort.
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, March 13, 2007 9:20 PM CDT
Hello Little Ivy ... it's Alexi's family from Geneva, Illinois! We found your Web site from Logan's site and hope you are doing well today. Spring is here ... enjoy the change in weather!
You can read all about Alexi's journey with LCH by visiting www.caringbridge.org/visit/alexandraascencio.
The Ascencio Family (Stephanie, Alexi 8 and Tori 11) <stephanie@schmoopsie.com>
Geneva, IL USA - Tuesday, March 13, 2007 4:02 PM CDT
Hi all--It's tuesday, so I'll be there with a meal this evening. Hang in there!
Debbie <fiver5@earthlink.net>
Oakland, CA USA - Tuesday, March 13, 2007 9:29 AM CDT
Ivy, I love the picture of you on the Merry Go Round. I hope you get to ride it again very soon. You are a beautiful little girl. I am so sorry you are sick again. I will be praying for you to get well very soon.
Janice Franklin <ronfrank@bellsouth.net>
Gardendale, AL - Tuesday, March 13, 2007 3:04 AM CDT
Hi Allyson...We'll be in the area on Thursday and Friday (Thurs is port and MRI, Friday is ultrasound). Maybe Friday on our way home we can stop in Oakland and say hi to Miss Ivy (?) It would probably be around noon or so. Drop me a note or call me and let me know. Also, is there anything special she likes? We'd love to bring her something to cheer her up, so please let me know if there are any special requests (for her or you...anything you need!).
We are praying hard for Ivy and hope that the 2CDA/ARAc combo can work its magic!
Sending much love and many hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, March 12, 2007 11:52 PM CDT
We are thinking of you guys, and wishing sweet Ivy Kate a qiuck recovery! Take care xo jill,molly & lindsay kate
jill mcalpine <jillmcalpine@comcast.net>
nh - Monday, March 12, 2007 10:19 PM CDT
Hi there,
We are friends of The Sangers, who keep us informed on Ivy. So sorry to hear she's having such a tough time. We are keeping her in our prayers. May God give you all strength, hope, and comfort.
The Harding Family
Folsom, CA - Monday, March 12, 2007 9:58 PM CDT
In the moments in between visits, just know you and Ivy are held in our hearts every minute. Helped Pete paint at the new house Sunday instead of a daily visit, so was glad to get your update this morning. Loved seeing your Mom Saturday...we had fun making Ivy smile & giggle. Glad she, Jaan, Grammie and Susan helped yesterday. It sure takes a village. Mondays are quieter, but I know Jenifer's on her way if not there already. Emma and I will come help directly after school today. Love,
Beth <schoenbrgr@aol.com>
Oakland, CA - Monday, March 12, 2007 3:33 PM CDT
I want to see a picture also!!
Losing teeth was harder on me than the 1st Day of K.
I hope Ivy reponses well.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Monday, March 12, 2007 11:59 AM CDT
I don't know about anyone else, but I want to see that door sign. Do share a picture!
Congratulations on the teeth Jasper! How exciting!
And hang in there Ivy. Still in my prayers, all of you.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Monday, March 12, 2007 11:12 AM CDT
2 teeth...wtg Jasper. Still waiting for ours here.
Thinking and Praying for you this week, hugs!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Monday, March 12, 2007 10:31 AM CDT
Wow! Two teeth!! WTG Jasper! I'm thinking of you often Ally, and praying for Ivy and your family. I hope this week passes quickly and easily for you.
Tracy (tjly) <tjly7@yahoo.com>
- Monday, March 12, 2007 9:55 AM CDT
Glad to read your latest news after obsessively checking all weekend! :) Congrats, Allyson, on letting your inner crafty-self out! And also to Jasper on his exciting milestone. We're sending lots of love to Ivy as she completes this round of chemo... We are thinking of you all.
Jen, Stuart and Ben <jen@gripman.net>
- Monday, March 12, 2007 9:39 AM CDT
Wow, two teeth! Hooray for Jasper!
I am continuing to pray for Ivy and for your whole family. Wishing you peace, comfort, and patience as you head into this week.
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, March 12, 2007 8:53 AM CDT
First congratulations Jasper! Wow two teeth at once.
Gald Ivy was able to go out for a bit and play!
Praying this chemo is the answer Ivy needs!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, March 12, 2007 6:40 AM CDT
Well, it sounds like no news is good news, kind of. I'd love to see a photo of your door sign! Wow - I'd never really thought of them having their teeth since they were a few mo, but you're right. I shall definitely tear up when Ben's fall out now - but he insists it won't happent till he's 7 coz they did about it at school!!!!!!!
Thinking of you all often - hang in there this week. We all send our love
Jane (janemjr), Neil, Ben, Matthew & Joshua <janemjr@yahoo.co.uk>
- Monday, March 12, 2007 3:07 AM CDT
I just found out about the journal and have been spending some time catching up with Ivy and the family tonight. I just wanted to add my good thoughts and prayers to all of you. I think of you often.
Caitlin Sweeney <caitlins66@yahoo.com>
Oakland, CA - Sunday, March 11, 2007 8:58 PM CDT
Ivy Kate - We are thinking of you and praying for you in this fight. I'm so sorry that you are having to fight this horrible monster again.
Donna, Erin's mom, www.caringbridge.org/visit/erinnewton <donnan@bellsouth.net>
Gardendale, AL USA - Sunday, March 11, 2007 8:57 PM CDT
Just thinking of you all and praying for good results from the chemo. Patrick's port may go in sometime this week...we'll call you when we know an exact date and see if we can visit.
Hang in there and know that we are strong in prayer for Ivy!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Sunday, March 11, 2007 6:32 PM CDT
It doesn't look like we'll be able to drop in this weekend, but Tuesday looks good for an outing with Jasper. I'm enjoying our walks with Ivy. I'm always cheered when she wants to get up and look around.
Let me know if you need anything, I make regular trips to the grocery store. I'll try to call tomorrow.
Iris Moy <iris@wildflowers.org>
Oakland, - Sunday, March 11, 2007 1:06 PM CDT
Just wanted to let you know I think of you often and I'm praying for you!
Sonder - Ossie's Mama
www.caringbridge.org/visit/ossie
Sonder <georgiadolly@yahoo.com>
Reynolds, GA USA - Friday, March 9, 2007 2:12 PM CST
So many folks have been asking after Ivy and so saddened to hear of the need for more chemo and the schedule you will be keeping.We are hoping to organze folks who care in ways to help so will be contacting you for specific suggestions. Glad broviac surgery went well and that treatment has begun--sounds like the family is adjusting to the latest events and planning to do hospital duty for the next 6 plus weeks. We love you and think of you daily if not hourly. All our love and prayers. David and Sara
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, March 9, 2007 1:27 PM CST
Keep fighting! I think of you all very often and will continue to check in on you guys, waiting for the good news of Ivy's recovery that is sure to come.
Jennifer <jldare@msn.com>
Charleston, SC - Friday, March 9, 2007 8:48 AM CST
Thinking of you all, my prayers and thoughts are still coming. Just wanted you to know....
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Friday, March 9, 2007 7:08 AM CST
Ivy is so brave - and so are her parents! We send our love and our prayers for all of the kids.
Randy, Caroline and Sarah <ci2rm@sudenling.net>
Eureka, ca usa - Thursday, March 8, 2007 11:21 PM CST
I'm sending many kind thoughts and prayers to Ivy and her family as this treatment begins. I hope that this round is easy on her but tough on the LCH and Ivy is on her way to many better & healthy days ahead.
Julie (Julieand3) <jsvise@charter.net>
Alabaster, AL USA - Thursday, March 8, 2007 10:47 PM CST
Keeping all of you in my thoughts and prayers as you begin this next phase of Ivy's treatment. I hope and pray that this will put her on the road to good health!
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, March 8, 2007 10:00 PM CST
Well Ivy girl, you sure are taking one for the team today. You're not alone sweet pea, we are all here cheering you on and hoping all those side affects they are talking about are just a bunch of baloney. Hey Jasper, my Molly knows just how you feel, you hang in there and stay just the way you are! xoxo Jill (SO SO kind to include Lindsay Kate in your post!)
www.caringbridge.org/visit/lindsaykatemcalpine
Jill McAlpine <jillmcalpine@comcast.net>
NH - Thursday, March 8, 2007 6:48 PM CST
Well, Ally and Peter, we got through the first day milestones of Broviac surgery this a.m. with old one out and two new lines in, morphine help for her pain, and a smooth entry into the beginning of a very long haul: we all had our moments in her room when that first 2CdA started tonight, a date and time we all will remember. Like, Ed, Beth and Emma all there to hold you four and especially Ivy in our hearts, we share your worries, pain and hope. We will see her get better and look back at these next four months made up of three-week hospital cycles with intense chemotherapy and recovery between followed by a few days off at Children's hospitalas days, just days we spent cheery Ivy on with her bowls of cereal and meds and prayers. During the second and third weeks of each cycle when her counts may be dangerously low and fear of infection very high we will be vigilant and are in good hands. As a family we will get her through this. And even yet, she still laughed belly laughs tonight as we did at Auntie Beth's antics chasing the ballon back and forth in the doorway of the hall just to get her to turn her head and move a bit after surgery rest period when we feared she couldn't. Laughter amid the pain and tears; may the laughs continue and sustain you in all the medical management you tow are do, Ally and Peter, as well as all the care you give her, going of to work, Peter and living at the hospital and rotating nights and Jasper time as well.Glad Ivy wanted to be carried securely in your loving arms,Peter,morphine high and all for a walk around her new unit. LCH sure has given us a blessed look into a real world we would, with all our hearts, choose to pass up. But I know from it we have come to know compassion, wisdom as well as community support we can overlook in normal times. Yet LCH sure sucks!Here's to a better tomorrow.
Jenifer Morris Schoenberger <JMSchoenberger@ aol.com>
Oakland, CA USA - Thursday, March 8, 2007 1:59 AM CST
Patrick, Maggie, Betsy, and I are all thinking of you, and we send our prayers and positive vibes to Ivy for a fast recovery. We love you all very much and are sorry that you are suffering. It is great that Ivy and Jasper have such an amazing support group. Jasper is welcome to stay with us any time.
Hugs and Kisses,
Jessica
Jessica <patrickmc2@comcast.net>
El Cerrito, CA - Wednesday, March 7, 2007 3:40 PM CST
Yeah I am so glad you have a plan and a treatment! Thinking and reading....
Valerie <val_ea@yahoo.com>
London, Oh - Wednesday, March 7, 2007 12:10 AM CST
Oh Allyson, I am just reading your journal for the last few weeks- as the flu hit us all hard for most of the month of February... But to imagine that this is what you have all been going through during that time-- I am just so, so sorry! I will continue to read your updates, and of course be sending all of our love and best wishes. Maybe when you have more details about what the next week might have in store, I can see if a visit is in the cards. All our love!
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Wednesday, March 7, 2007 11:25 AM CST
The chemo will be tough on Ivy and hard for you, but good that cyclosporine has been thrown out. Sending prayers, thoughts and good vibes to add to those that are surely piling up.
"Be strong, and let your hearts take courage, all who wait for the Lord." Psalm 31:25
Rose, Hanoch's mom, LCH
Rose Smith <smith01@netvision.net.il>
Israel - Wednesday, March 7, 2007 10:37 AM CST
Just letting you know we are definitely on the "we hate histio" train with you... Patrick has relapsed. He has at least 2 skull lesions, one of which penetrated the orbital wall. We got the results today. We're off to Stanford for staging (again) and some decisions about what to use next.
We'll let you know what happens. I'll email you our cell # just in case we can get together somehow in the midst of all this....
Still sending hugs to Ivy!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, March 6, 2007 11:46 PM CST
I'm glad Ivy perked up last night even though it kept everyone up late. Thank you for welcoming me into the hospital room on a hectic day.
Kira Foster <kielfo@sbcglobal.net>
Oakland, CA USA - Tuesday, March 6, 2007 9:12 PM CST
I'm so sorry the news wasn't better, and pray that Ivy doesn't suffer too much with the treatment! Glad to hear her spirits are up though!
Tanya (tweetmom) <tweetluvr@charter.net>
Alta Loma,, CA United States - Tuesday, March 6, 2007 9:00 PM CST
Sorry the news wasn't what you were hoping for. Keeping you all in my thoughts & prayers.
Jane (janemjr) <janemjr@yahoo.co.uk>
- Tuesday, March 6, 2007 8:48 PM CST
You have our prayers and most positive thoughts. We're thinking of you all every day.
Randy Mayers <ci2rm@suddenlink.net>
Eureka, Ca. usa - Tuesday, March 6, 2007 8:47 PM CST
Definitely sending those positive vibes your way!
You area truly amazing family: Ivy, Jasper AND you and Pete.
Hugs for you all.
Susan Swift
- Tuesday, March 6, 2007 4:19 PM CST
I'm glad to hear Ivy's mood is better. I'm sure the day passes easier. I'm sorry to hear that the treatment needs to go the chemo route now.
I am sending, "NO BONE MARROW TRANSPLANT" vibes with all MY HEART.
{HUGS}
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Tuesday, March 6, 2007 3:42 PM CST
I wished the news was better - Ivy will always be in our thoughts and prayers. Glad there was some happy times with sweet Ivy...
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Tuesday, March 6, 2007 3:33 PM CST
I'm so sorry to hear this news. My thoughts are with you and your family and I will be keeping that brave sweet little girl in my prayers.
Tracy (tjly) <tjly7@yahoo.com>
- Tuesday, March 6, 2007 1:59 PM CST
Thinking of and praying for you. I am so sorry that the news wasn't as good as you were hoping for. It breaks my heart to think of anyone going through all of this, but especially such a sweet little girl.
Dawn (LizzySue)
Hollidaysburg, PA USA - Tuesday, March 6, 2007 1:58 PM CST
I have been folling beautiful Miss Ivy since her relapse began. Though this latest news is not necessarily good, it's news and it's something that you can pray about and something that you can put your good energy toward. After today, you'll have a plan. We pray for her (and the whole family) daily and will continue. Mom of Ben, LCH '03.
Barb Suchonic
- Tuesday, March 6, 2007 1:30 PM CST
I have tears in my eyes thinking about all that Ivy (and all of you) have been put through in these last few weeks. She is a strong little girl and quite a fighter. Praying that this new chemo regimen will work quickly and effectively, making a marrow transplant unnecessary. Sending all our love, prayers, and good thoughts!
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, March 6, 2007 1:28 PM CST
My heart goes out to you Allyson, I am so sorry for the discouraging news.
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, March 6, 2007 1:26 PM CST
Ivy is always in my thoughts. Continued prayers for healing and strength. I really hope the chemo will get things turned around and that Ivy will improve soon. Such a strong little girl, blessed with a wonderful family. Hugs to you all - especially her amazing big brother Jasper.
Denise Smith <denismith74@hotmail.com>
Indianapolis, IN USA - Tuesday, March 6, 2007 1:01 PM CST
Keeping Ivy in my prayers that she responds to the chemo and does not need the marrow transplant!
Mary
Belmont, NC USA - Tuesday, March 6, 2007 12:46 AM CST
I am so sorry that you are so in the thick of it right now. Ivy Kate sure sounds like a brave little girl fighting all the way. We send you strength and patience all the way across the seas. From another LCH family
Sara Asman <saraj@peppina.co.za>
Johannesburg, South Africa - Tuesday, March 6, 2007 1:41 AM CST
Ivy, thinking and praying for you. Jasper you are such a wonderful big brother. Allyson, Peter, Jasper and Ivy-- sending love and support your way.
Sarah & Kurt <sarah_borchelt@yahoo.com>
Bethesda, MD US - Monday, March 5, 2007 10:23 PM CST
Keep fighting, Ivy. I am sorry you have to go through this. We care about you very much.
Logan's family,
Donna Johnson <Donna_johnson@nottheactor.com>
- Monday, March 5, 2007 6:17 PM CST
Continuing to pray for Ivy and hoping for this to be a better week for you all and the look of concern on the doctor's face to be transformed into joyful surprise.
Rose, Hanoch's LCH mom
Rose Smith
Israel - Monday, March 5, 2007 11:18 AM CST
Jasper is so amazing what a wonderful boy you have there.
I hope the test and labs show signs of improvements. Praying this will be Ivy's week for going uphill!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, March 5, 2007 6:47 AM CST
An additional note about Jasper's impressive resiliency... when he left my house with Mommy tonight, after napping, playtime, dinner and movie at Grammie and Grampa's, he said he actually liked having Mommy and Daddy take turns sleeping at home! Either he's really good at reassuring the grown-ups or he's blessed with the ability to see the glass half full. Either way he's a very remarkable, big-hearted boy whom we adore. His cousin Emma has appreciated getting extra time with him too; she’s learning about Power Rangers and Hot Wheels, and finally has someone to negotiate with about who gets to sleep in the top bunk. We accept these ironic side benefits of Ivy's excruciating situation. Allyson and Peter, Grammie Jenifer, Grampa Ed, Jasper and so many others, tirelessly giving, working, helping, every day and night, full of patience and compassion, and their unique expression of love for Ivy... an awesome "village" of support that makes this horrific experience bearable somehow. I continue to hold a vision of Ivy radiantly healthy, full of energy, running in the green grass, pink cheeks, irrepressible smiles and giggles, words tumbling out expressing her humor, opinions and questions about the world... Reflecting perfect health and balance in every cell of her body, every fiber of her being. I know that Ivy's perfect health is making its way to perfect expression... may we find new sources of patience and courage as spirit's timing unfolds. Patience, courage, compassion, and love are the currency of this time. Peter starts his new job tomorrow, carrying on in the face of this crisis in a way that truly awes me. All my love,
Auntie Beth <schoenbrgr@aol.com>
- Monday, March 5, 2007 3:04 AM CST
What an awesome big brother Jasper is! Even though I met him when he was only 2, I'm not surprised to read these things about him. You must be bursting with pride!
I'm sorry that Ivy is not improving as quickly as we'd all like. I guess God has his own timing for her recovery. We think of you constantly and pray for many better days ahead.
Shayne <mom2pete@hotmail.com>
Houston, TX - Sunday, March 4, 2007 9:27 PM CST
Hugs to all of you Ally and KUDOS to Jasper for being such a wonderful big brother!! God only gives us what we can handle and he gave all of you Jasper to help. I hope that Ivy has another good day soon and that she soons decides to get up and walk. Always know we are all thinking of you!
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Sunday, March 4, 2007 8:00 PM CST
We just wanted to let you know we are thinking of you as the weekend draws to a close. We hope you can come home soon. We are glad to hear of all the support you are receiving from friends and family. We in the histio family who are far away are praying and thinking good thoughts.
Jeff and Melissa Thompson - Jack LCH too
North Aurora , IL USA - Sunday, March 4, 2007 7:52 PM CST
Thinking of you all here in NH and wishing you a speedy recovery. Love from Lindsay Kate
jill mcalpine <jillmcalpine@comcast.net>
nh - Sunday, March 4, 2007 7:29 PM CST
I totally agree with you about Jasper, Devin, and all the big brothers and sisters of the histio kids...they are just so amazing, so resilient, and so mature! FYI, research on siblings of children with chronic illness is that the siblings grow to be some of the most well-adjusted adults. A huge percent go into some kind of "helping" profession and almost all are extremely caring, giving adults. Out of all the chaos, they emerge stronger than ever...
Many hugs to you all!
We are remaining strong in prayer for Ivy's return to good health!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Sunday, March 4, 2007 5:42 PM CST
Jasper is an amazing little boy, I am amazed that he is so compassionate at such a young age! I hope you both got to enjoy the birthday party. I will continue to send prayers for Ivy, and I hope that you find anwers and a successful course of treatment soon. Stay strong Ivy girl!
Rosanna (rosanna01) <brschmitt@yahoo.com>
Baton Rouge , LA USA - Sunday, March 4, 2007 4:54 PM CST
What an awesome big brother Jasper is! Ivy is so lucky to have him in her life. I was thrilled to read what a good day Ivy had yesterday, but saddened to see that it was short-lived. Sending many prayers that the coming week sees more days like Saturday for your sweet girl.
Edie <eross411@yahoo.com>
Kennebunk, ME - Sunday, March 4, 2007 4:42 PM CST
Hi all,
We are still thinking of you each and every day with hopes of improvement for Ivy, and wonder at how you each manage to keep everything together as you do. love to all, Dale and Norm (just returned from visiting baby Oliver who is a huge 2 month old. I'll send a picture to your email)
Dale and Norman Greene <dale@puzzlering.net>
Albany, ca USA - Saturday, March 3, 2007 11:33 PM CST
Hope you are having a good weekend. We are always thinking of you.
Donna Johnson (Logan's mom)
- Saturday, March 3, 2007 10:13 PM CST
We're glad that Ivy is moving in the right direction and eating better :-) Hopefully the fresh air and and Dr. Fridge can help (LOL about the name...it's better than Patrick's ENT, Dr. Ow...YIKES!)
And, I totally understand about the pajamas. That seemed to happen to me a lot when Patrick was in! It was weird later to get dressed to go the ped office...felt like I should just waltz on in my robe and slippers!
Hang in there! We are praying for healing...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, March 2, 2007 11:09 PM CST
Oh my gosh, SO BRAVE! I agree, we are sending well wishes from NH. Please know we are thinking of you guys, and looking forward to your speedy recovery. xo Jill~Lindsay Kate's mama
Jill McAlpine <jillmcalpine@comcast.net>
nh 03087 - Friday, March 2, 2007 10:05 PM CST
I'm so glad Ivy got to go outside for some fresh air. Fresh air can be good medicine. :)
Still thinking of you all and hope you all have a great weekend. Continued prayers as always, and many hugs for you Allyson.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Friday, March 2, 2007 3:49 PM CST
Hooray for another encouraging report!! I hope you guys have a good weekend and that you'll be sleeping in your own beds very soon. Ivy is a brave little fighter.
As an aside, I'd love to know where that Ursodial was when I was in the ER in New York City with gallstones!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, March 2, 2007 3:41 PM CST
Still praying for sweet Ivy, and hoping that your homecoming is only a few days away...
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Friday, March 2, 2007 3:35 PM CST
Glad there's some good news. And it's great to hear about Jasper's school - it's good to know that those kind of people are out there, coz we don't often hear about them, do we?
Ivy's a smart little thing!
Jane <janemjr@yahoo.co.uk>
Hong Kong - Friday, March 2, 2007 2:24 AM CST
Ally and family,
I'm hoping Ivy is able to go home soon! And it is so awesome that Jaspers school is so caring and generous! It's nice to hear about a school that is not just worried about the bottom line!
And what a smart little cookie Ivy is! Wow, I'm really impressed!
Tanya (tweetmom)
alta Loma,, CA United States - Thursday, March 1, 2007 10:11 PM CST
Ivy is one smart girl. I loved hearing the story about Jaspers preschool, it's so nice that everyone is pulling for her and what a very, very good school to offer to help out with Jasper on off school days...what a great school.
I hope Ivy gets home with you all soon!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Thursday, March 1, 2007 9:59 PM CST
We're happy to hear that things are looking a bit brighter... That's the way it seemed to be on this histio rollercoaster for us, too...a good day, a bad day, a good day, a few bad days, and on and on. We're praying for a histio-free future, for Patrick, for Ivy, for all the little histio warriors!
Sending lots of good wishes for many good days ahead...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Thursday, March 1, 2007 8:24 PM CST
I'm so glad to read some good news! We've had a busy morning. Elsa is resting now. I'll call you when she wakes up and hopefully we can stop by for a visit.
Iris Moy <Iris@wildflowers.org>
Oakland, CA United States - Thursday, March 1, 2007 4:49 PM CST
I'm so glad to hear things are bit better for sweet Ivy today! Keeping you all in our prayers!
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, March 1, 2007 1:46 PM CST
What a smart little girl you have! I'm glad things are looking up, I hope that trend continues.
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, March 1, 2007 1:30 PM CST
I am so sorry for the concerning setbacks. Concentrating all of my prayers for sweet Ivy.
Valerie <val_ea@yahoo.com>
London, OH - Thursday, March 1, 2007 6:47 AM CST
Al, I'm emailing something to you at your work address.
And still sending positive thoughts your way. Hang in there everyone.
Hugs,
Susan
Redmond, WA - Wednesday, February 28, 2007 9:10 PM CST
Hello Ivy and family - just checking in again to see how your sweet little girl is doing (you too!). We'll continue to keep you all in our thoughts and prayers.
Matt, Renee, Christian & Jacob
www.caringbridge.org/oh/christianlch
Renee LaFountain <cr_lafo@yahoo.com>
N. Canton, OH - Wednesday, February 28, 2007 8:39 PM CST
Just wanted to let you know I'm thinking of you guys and sending continued prayers and good thoughts for Ivy.
Edie <eross411@yahoo.com>
Kennebunk, ME - Wednesday, February 28, 2007 8:38 PM CST
Hello,
We're still praying for Ivy i hope she gets better real soon...
Love,
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
Bridgeview, il - Wednesday, February 28, 2007 6:59 PM CST
So sorry to hear Ivy had a bit of a set back last night--the night before things sounded optimistic. Is very hard to process all the information. So so so sorry you have been in the hospital for two long weeeks. Boggles my mind and am amazed you are still sane. We have been in SF helping with new baby but hope to come see you tomorrow am if ok with you. Enjoyed my time with Jasper on Saturday--wish I was more of a computer whiz and could have helped more with the compputer games! Be strong, as you always are. Bless you all. Love, Sara and David
sara dezerega <saradezerega@aol.com>
moraga, ca usa - Wednesday, February 28, 2007 6:58 PM CST
Allyson, Pete and Jasper--we are all thinking of you and sending good thoughts for Ivy. Please know that we have work under control, so don't worry at all about anything over here. Take care. Liz, Bill, Madeline, Mark and Larry
Liz Fuchs
San Francisco, CA USA - Wednesday, February 28, 2007 5:21 PM CST
We are remaining strong in prayer that Ivy's health will take a turn for the better very soon. Please know that we think of you always!
We'll be heading to Stanford on 3/8 and hope if we can stop by for a quick visit it will be to see Ivy at HOME :-)
Sending many hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Wednesday, February 28, 2007 3:57 PM CST
Dear Ivy, Jasper, Pete, and Allyson,
I'm so sorry that Ivy (and the rest of you) have been in the hospital for two long weeks - yikes! I hope you get to go home soon. My fingers are crossed, as always, and we all hope that Ivy pulls through this latest bout of sickness. Thinking of you and wishing you all the strength to keep on surviving.
Sarah Weld <sarah.weld@sbcglobal.net>
Oakland, CA - Wednesday, February 28, 2007 3:28 PM CST
Praying that today finds Ivy feeling better. Continued prayers for you all.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Wednesday, February 28, 2007 10:45 AM CST
Dear Ivy and family, I woke up this morning to a note from your Grammie and am so sorry to hear how you are struggling. What a wonderful little girl you are! Please rest and get well in the love of your family and friends around the world. You are like a flower that touches us all with your special beauty and wonder. I hope to visit in April. Love to you and your family, Priscilla
Priscilla Jane Huston <pjh@rice.edu>
Houston, TX US - Wednesday, February 28, 2007 7:49 AM CST
Ally and Pete: It's so late but I had to send you my love after a busy day with clients. You were always with me. Stay strong. I was so sorry Ivy got worse during the night. So frightening for her and you. I'll be there tomorrow Wednesday and of course am "on" for Jasper care all day or at the hopital if he just wants to be near your all. I know Peter needs to go to his new job briefly so I'll keep you company, Ally as needed. We'll get past this. Another week to go to evaluate the new drugs. She's strong. Stay at it Ivy, and we'll be hunting Easter eggs in the grass soon. Love Jenifer-Mom-Grammie.
Jenifer Morris Schoenberger <JMSchoenberger@ aol.com>
Oakland, CA USA - Wednesday, February 28, 2007 1:47 AM CST
We don't get a chance to write every day, but we're checking in daily, and keeping up ours prayers for healing and deep wishes for an easing of this terrible ordeal for Ivy and for all of you. We love you so much!
Caroline, Randy and Sarah
- Tuesday, February 27, 2007 10:13 PM CST
We are sorry things are still so hard for you all, especially sweet Ivy. Please know you are in our thoughts and prayers. We hope all good news and health come your way - soon!
Melissa and Jeff Thompson <thomps98@comcast.net>
- Tuesday, February 27, 2007 8:48 PM CST
I'm so sorry to hear that Ivy had such a rough day. I hope and pray that tomorrow brings much improvement for your sweet girl.
Edie <eross411@yahoo.com>
Kennebunk, ME - Tuesday, February 27, 2007 7:22 PM CST
Just thinking of you all...hope things are looking up a bit today! You are always in our prayers! Give Ivy a hug from her histio buddy :-)
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, February 27, 2007 6:07 PM CST
Ivy and family,
Thank you for your kind words in Kendall's guestbook. If anyone can understand what you are going thru, it is us! We will keep Ivy in our prayers that her treatments work and you can go home soon. Stay strong.
Kendall and her mommy(Vicki)
Vicki Behl <vickibehl@hotmail.com>
Mukwonago, wi Waukesha - Tuesday, February 27, 2007 2:44 PM CST
Allyson, Pete, Jasper & Ivy: You all are in my thoughts today and every day. Here's hoping that Ivy leaps off the plateau and into better health. I've asked just about everyone I know to pray for you guys. My Junior League friends always joke that if my church isn't praying for you, then you have no hope! Well, my church most definitely IS praying for you, so there is an abundance of hope heading your way from SE Texas.
Shayne <mom2pete@hotmail.com>
Houston, TX - Tuesday, February 27, 2007 12:02 AM CST
Thinking of sweet Ivy today! I'll be praying for you all.
Jennifer Antel
NC - Tuesday, February 27, 2007 8:49 AM CST
Allyson,Pete,Ivy and Jasper, just caught up on things since the weekend. Sorry to hear she's had to have more transfusions. But glad to hear you might go home on Thursday although I completely understand your concerns and anxiety about being home - I remember I didn't want to leave the hospital at all after Lulu's diagnosis. At least you feel there are others there helping to watch out for her and to get immediate treatment if needed. But, maybe being at home will help her smile more and feel a little better. Hoping to come in and see you all on Wednesday if that's ok with you. Thinking of you ALL the time. Lots of love Emma, Lauren et al.
Emma Bishopp <emma@bishopp.net >
Lafayette, CA 94549 - Tuesday, February 27, 2007 1:22 AM CST
I'm glad things are looking better Allyson, and I hope you really are able to go home on Thurs. As always, Ivy and your family will be in my prayers.
Rosanna (rosanna01) <brschmitt@yahoo.com>
Baton Rouge, LA USA - Monday, February 26, 2007 7:16 PM CST
Hoping Ivy gets to come home soon! Your family continues to be in our prayers.
Tanya (tweetmom) <tweetluvr@charter.net>
Alta Loma,, CA United States - Monday, February 26, 2007 6:42 PM CST
HI Ivy, Jasper, Allyson, and Pete,
We are back from our snowy weekend. We had a very long drive home (12 long hours). I am happy to see that Ivy has made some improvements. My cold is better so we can come and visit you. I'll call you later.
Love, Iris,Peter and Elsa
Iris Moy <iris@wildflowers.org>
oakland, CA - Monday, February 26, 2007 6:10 PM CST
We are thinkng of you and wishing you all better!!!
Jill McAlpine <jillmcalpine@comcast.net>
nh usa - Monday, February 26, 2007 2:57 PM CST
Hope today brings some improvement, good direction from the doctor's meeting and that Ivy soars off that plateau into healing. So glad to hear of the safe arrival of Asa, our newest cousin! We continue to hold you in our hearts, wish you strength in each other to weather these difficult days.
Love to all of you.
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Monday, February 26, 2007 11:14 AM CST
Glad to hear Ivy was in a better mood yesterday and had some smiles. :)
Continued prayers for you all.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Monday, February 26, 2007 10:23 AM CST
LOL about Ivy and the Spiderman stickers - I'm glad Ivy liked them. Keeping you all in our thoughts and prayers.
Carol (mom2dae)
- Monday, February 26, 2007 7:51 AM CST
Hope you get some answers today. Thinking of you and sweet Ivy as always.
Tracy (tjly) <tjly7@yahoo.com>
- Monday, February 26, 2007 7:46 AM CST
Hoping some decisions are being made for sweet Ivy's recovery! Many prayers and anxiously awaiting updates!
Valerie <val_ea@yahoo.com>
London, Oh - Monday, February 26, 2007 6:51 AM CST
Ally and Pete: I know it is so hard keeping faith right now hoping that the cyclosporin and prednisone will eventually help Ivy's spleen/liver and lungs as it seems to be helping her back rash. It is so hard waiting and not knowing. Hope we can lean of Dr. T. tomorrow to give us some good news and appraisal and hope this is the right protcol. Glad transfusion of platelets is over and it will help. I'll be in tomorow in afternoon, (unless you need me sooner) after I go to see my new grand nephew: Ivy has two Asa cousin's now, one on Ally's side and now on Peter's with cousins Stefano and Jessica giving birth tonight to their second son .Nice to share the good news with you and Peter.Auntie Sara asked me to tell you amid the birth of her second grandchild, she is thinking of you and will come help out when she can as will Beth. Stefano said to tell you he is keeping you close in his heart as well. Love, Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Monday, February 26, 2007 0:44 AM CST
Ivy Girl! We are thinking of you here in NH, and wishing you a speedy recovery. Tons of love sweet girl. xo
Jill & Lindsay Kate <jillmcalpine@comcast.net>
NH USA - Sunday, February 25, 2007 8:32 PM CST
We're hoping that Ivy is soon over this hurdle and back in the comforts of home!! Hopefully her body can take over and kick this LCH out of her system!
Please know that we continue to pray for her healing and for strength for each of you as you do your best to support and advocate for her while trying to keep Jasper's life as normal as possible during a very not-normal time.
Sending love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Sunday, February 25, 2007 8:15 PM CST
Hello,
I hope ivy gets better real soon.. We'll be praying for her.
Love,
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
- Sunday, February 25, 2007 7:28 PM CST
So glad things are stabilizing. I hope that means you'll be home soon!
Love,
Susan Swift <suwaligi@gmail.com>
Redmond, WA USA - Sunday, February 25, 2007 4:41 PM CST
Hi All, just checking in quickly and wanted to catch up on how you are all doing. Will definitely be in to see you again next week - I'll call. In the meantime, if you need anything you know I'm here for you! Thinking of you constantly. lots of love Emma, Lauren and the rest of the Bishopps
Emma Bishopp <emma@bishopp.net>
Lafayette, CA USA - Sunday, February 25, 2007 11:53 AM CST
So glad that the prednisone seems to be working and that Ivy is a bit better. Still praying hard here and hoping for the best!
Shayne <mom2pete@hotmail.com>
Houston, TX - Sunday, February 25, 2007 7:20 AM CST
Pete and Ally - It was fun helping you pick out your tile today... a blessedly "mundane" task compared to all the urgent, crisis-oriented days and nights we've spent together since Ivy was hospitalized 10 long days ago. (Even Gary, our tile guy, is pulling for Ivy now!) I hope Ivy's enjoying the broccoli and carrots Uncle Harvey brought especially for her and that you got a moment to eat in peace the Thai food lunch I handed off at the tile store. Despite missing swimming, Jasper had a fun and cozy rainy day with grandparents and Aunt Sara. We're breathing at least a little easier tonight with Ivy showing small but solid signs of improvement. (Good call holding off the transfusion, Ally!) Love,
Auntie Beth, Uncle Harvey and Cousin Emma <schoenbrgr@aol.com>
- Saturday, February 24, 2007 10:50 PM CST
Ally and Pete: SO glad to spend time caring for Ivy and Jasper with the help of Auntie Sara so you could pikce bathroom tiles and ppuch Ivy's new home along during the difficult time. And Horray, so glad her skin is clearing and she's starting those puffy prednisone cheeks even though she seems so weak. Sure was nice of HOpe to bring all that food and offer to give blood, another extended member of Pete's family who cares. Love, Jenifer- Mom-Grammie
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Saturday, February 24, 2007 8:07 PM CST
Still thinking of you and praying for you all! I'm glad the predisone seems to be working, I hope Ivy starts perking up and getting her spark back. How hard that must be for yoU!
JoANn <joannwhite@outtech.com>
Maple Grove, mn US - Saturday, February 24, 2007 6:59 PM CST
Everything sounds encouraging. Keeping my fingers crossed for continued improvement, even if it does come a teensy bit at a time!
Edie <eross411@yahoo.com>
Kennebunk, ME - Saturday, February 24, 2007 6:50 PM CST
Sending love and strength from our family. Heather, Jamie & Max
Heather Muir
Petaluma , CA USA - Saturday, February 24, 2007 2:37 PM CST
Dear Allyson,
Best of luck with the prednisone...I remember it well--thinking it was both a miracle and a curse all the same time! We hope Ivy starts to show some improvement very soon! We are always thinking of you all :-)
Hugs from us to you!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, February 24, 2007 2:20 PM CST
Oh how precious those smiles must be!! I hope the prednisone starts working quickly and that you are able to return home very soon. Sending hugs, good thoughts, & loads of prayers.
Edie <eross411@yahoo.com>
Kennebunk, ME - Friday, February 23, 2007 3:22 PM CST
I hope Ivy has a better weekend as the prednisone kicks in. You guys keep hanging in there, okay? Thinking of you often.
Rebecca ("Song")
NC - Friday, February 23, 2007 2:52 PM CST
Hi Guys! I posted earlier this week, but guess I forgot to press the right button - anyway, everyone has said it all - hugs & love from all of us down here in LA. Ally, you do a terrific job of distilling all the medical info for us! Pete congrats on the new job! Ivy - be strong! Hope to see you all in your new house. Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, CA USA - Friday, February 23, 2007 2:23 PM CST
Hi there. Long time has passed, I'm ashamed to say, since I visited. Randy & Caroline brought me up to date this week, and I'll be coming over to the Hospital this afternoon with foodage from Saul's. There'll be bagels,lox,cream cheeze,pita platter,salads both potato & Televiv, and several bottles of water. [If you'd like me to add anything before 2pm, please let me know at 642-2317]. Lots of love and hugs, Hope
H. Krauskop <krauskop@berkeley.edu>
- Friday, February 23, 2007 2:14 PM CST
So Glad to learn that you have a course of action. Allyson, it sounds like you all deserve a medal, to say the least. We are cheering you and the entire extended family on from the sidelines-- for your emotional and spiritual strength and fortitude and positive attitude. When I read your journal, I am reminded that for all of us, each day of health is a gift-- not to be taken for granted.
Wishing Ivy success in the new course of treatment!
Love,
Larry, Ming, Jazmine, and Adam
Larry Best <larrybest@gmail.com>
Alameda , CA - Friday, February 23, 2007 1:21 PM CST
Just wanted to say hello and let you know I'm checking in twice a day now. I can't imagine that DH did any hugging when he stopped by the hospital, but I'm sending virtual ones for all of you and kisses for Miss Ivy.
I'm glad you have some answers and am hopeful the treatments will get her moving in the right direction again.
Susan
Redmond, WA - Friday, February 23, 2007 10:26 AM CST
I'm so pleased to read that you have a plan now. That must be something of a relief, a point to move on from. Ben's praying every night for 'that very sick girl on the computer.' Know that we all are. I hope Ivy responds well & can go home soon.
Jane (janemjr) <janemjre@yahoo.co.uk>
Hong Kong - Thursday, February 22, 2007 9:54 PM CST
Hearts and hugs to you. The network of prayer is expanding up here. We love you so!
Caroline, Randy and Sarah
- Thursday, February 22, 2007 7:38 PM CST
Well, sounds like you have Plan A and a Plan B. Definitly something to go on. SOunds encouraging, and I hope that Ivy's strength comes back soon, so she can start fighting again. She sure is a trooper.
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Thursday, February 22, 2007 2:44 PM CST
I'm so glad to read that you guys now have a treatment plan! I hope Pete got some well-deserved rest last night. We really appreciate the updates. There are so many of us all across the country hoping, praying, and waiting right along with you. We are keeping you all in our prayers!
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, February 22, 2007 1:37 PM CST
Hey you four. Thinking of you and hoping for the best possible results. Ivy is my favorite tough - girl - who - has - been- through - too - much - for - her - years.
All the best...
Eric, Jen, Zealin, and Arrow Gall/Glickrieman
Eric Glickrieman
Berkeley, CA USA - Thursday, February 22, 2007 1:16 PM CST
I'm happy to read that the news is encouraging! You are so blessed with your employers and friends and family. In that way at least, Ivy is a very lucky girl to be so blessed with love. I hope you are able to see some improvement right away and be together again at your own home soon.
Tracy (tjly) <tjly7@yahoo.com>
- Thursday, February 22, 2007 9:18 AM CST
Yeah what wonderful news you have a plan! I am so glad you are getting answers and you have something to focus on. I hope Pete was able to go home and rest and Ivy was okay with it. Still praying.
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, February 22, 2007 6:42 AM CST
I'm so glad you finally have some answers and a plan to follow. I hope you are all able to go home soon, and that Ivy has much brighter days in the near future. Thanks so much for your wonderful updates. You do a great job with them and they mean so much to so many of us! Sending continued hugs & prayers...
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, February 22, 2007 5:40 AM CST
I am glad that you received some answers and you have a plan of action. Congrats on Pete's job and KUDOS to your boss for being so understanding. Reading Grandma's post below made me cry. As they say, God only gives you what you can handle and I see that he gave you guys a terrific support system to get through this. You are all so amazing! Hug Ivy from us Moms!
Dawn (LizzySue) <damellott@yahoo.com>
HOllidaysburg, PA - Thursday, February 22, 2007 5:34 AM CST
So grateful you have some answers, Ally and Peter. We have all put it some long uncertain, worrisome hours this week nurturing dear Ivy along until some help comes her way. She is so responsive, like today during the transfusion with a glimmer of pink cheek,new hemoglobin and less swelling in her spleen/liver, and in the past to the wonder drug Prednisone. With a new plan and protocol, we will all sleep better tonight, Jasper rotating bunkbeds at cousin Emma's; Dad at home finally, and not interrupted with 10 necessary hospital medical checks per night or Ivy's 2 a.m. throwing up. Hope it is quieter for you, Ally and that she makes the change over. The protocal as you described and Beth elabortion from Dr. T's visit late today seems so sane compared to other options, so I know I'll sleep tonight better than for a long time. As a family we have indeed been surrounded by people with support. I hear the gift shop at CHO heard Beth's story of Ivy and replaced Ivy's Dora doll free, the last one in fact,dear Dora which she has clutched all week but had to part with so mom could wash off upchuck! Dora #2 came home with Jasper and me to get blow dried and is ready for hospital stay duty tomorrow as needed to help our dear little one begin her journey back to health. When we heard the good news and medical plan I told Emma and Jasper and we all held hands and jumped up and down for joy and hugged and did it all again.Thanks, Ally, for staying so on top of the information. Your posts not only update all who care but serve as a history and resource for other LCH families who benifit from Ivy's and your struggle.If it wasn't for Ivy needing to avoid virus exposure, you four deserve a trip to DisneyLand and a week of spa treatments. We'll settle for health. Love, Grammie-Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Thursday, February 22, 2007 2:05 AM CST
Ally, Pete, Ivy and Jasper - tonight's post was encouraging. After the struggles of the last week, we hope that tonight brings you a measure of peace and rest. We hope that Ivy enjoys a snuggle with mom and that Pete gets a night of quiet rest with Jasper. We are thinking of all of you often and sending lots of positive thoughts and energy your way. Namaste
Al, Lynn and Katie <alwanger@sbcglobal.net>
Kensington, CA - Thursday, February 22, 2007 0:50 AM CST
We are thinking of you always... Please tell Ivy that Patrick says that she is very brave!
We are praying that the team of doctors can come up with something to help Ivy very soon!
Sending love and hugs your way...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Wednesday, February 21, 2007 9:03 PM CST
Pete and Allyson,
We can't imagine what you are going through. You're all in our thoughts every day. Jasper is a trooper to cope so well with all of the commotion. He knows he is well-loved, which I'm sure gets him through. Allyson, we really appreciate the updates, you're amazing to keep up the journal and we do read it every day.
love to all, Dale and Norm
Dale and Norman Greene <dale@puzzlering.net>
Albany, Ca USA - Wednesday, February 21, 2007 7:32 PM CST
You guys continue to be in my daily thoughts and prayers. I hope you get a definitive answer soon!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Wednesday, February 21, 2007 2:45 PM CST
What a tough, sweet little girl you have there. I can't begin to tell you how many times throughout the course of the day I think of Ivy and your family. We continue to send many prayers for good health and strength your way.
Edie <eross411@yahoo.com>
Kennebunk, ME - Wednesday, February 21, 2007 2:31 PM CST
Well how frustrating it must be to not have any definitive information yet! Hugs and prayers to you all.
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, February 21, 2007 1:57 PM CST
Please know that you have a BUNCH of Mommies across the country that are thinking of and praying for you. We are glad that some things are looking good and holding. We pray that the news continues to be encouraging.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA - Wednesday, February 21, 2007 1:16 PM CST
So sorry to hear about Ivy's relapse. Ivy, you, and your whole family are in our thoughts and prayers.
Love,
Larry, Ming, Jazmine, and Adam
Larry Best <larrybest@gmail.com>
Alameda, CA - Wednesday, February 21, 2007 2:00 AM CST
We're hanging on your every word up here. Wishing we were closer. Praying really a lot, vivid pictures of health and return to normalcy for the family. All praises to all the wonderful support people, and all love coming your way from behind the Redwood Curtain.
Caroline, Randy and Sarah
- Tuesday, February 20, 2007 10:11 PM CST
Thinking about your family and holding you in the light. Hope the news is improving. {{{hugs}}}
Dana Mitra (danamomtoKandC) <dmitra@psu.edu>
State College, PA USA - Tuesday, February 20, 2007 2:50 PM CST
My thoughts and prayers are with you all too.
I hope you have some positive news to hold on to today.
I can bring you breakfast (or anything else you need!) Thursday morning if you'd like another visitor.
Hugs.
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Tuesday, February 20, 2007 2:21 PM CST
Hello Ivy, hope you are feeling better. We just heard that you weren't doing so good. Hang in there.
Kiley Jenkins (an LCH buddy)
carepages.com
KileyRaeJenkins
Hannah Jenkins <hannahjenkins57@hotmail.com>
Oldsmar, FL USA - Tuesday, February 20, 2007 7:11 AM CST
I hope Pete was able to take his break without Ivy being to upset. Still praying and awaiting updates.
Valerie <val_ea@yahoo.com>
London, Oh - Tuesday, February 20, 2007 6:46 AM CST
Hello Ivy and family - just checking in again to see how Ivy is doing. We'll continue to hope and pray for good news.
Renee, Matt, Christian & Jacob
(www.caringbridge.org/oh/christianlch
Renee LaFountain <cr_lafo@yahoo.com>
N. Canton, OH - Monday, February 19, 2007 9:49 PM CST
We're holding you all close in prayer and hope the doctors will be able to find a good plan to help sweet Ivy!
With many good wishes,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, February 19, 2007 6:06 PM CST
Many prayers and hugs for you all...I'm pleased to hear all the visitors you are having and all the goodies....I'm praying for some good news from your camp soon! THanks for keeping this site up to date, you are doing such a great job.
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Monday, February 19, 2007 6:06 PM CST
We are part of your histio family and wanted to extend our heartfelt concern. We send you hugs and promise to keep Ivy in our thoughts and prayers.
Christine (and Hannah - LCH 3/06)
Christine Pawlowski <cmpjlp241@comcast.net>
Lake Villa, IL - Monday, February 19, 2007 4:04 PM CST
I am continuously praying and thinking about the beautiful & strong Ivy and her family.
Julie (Julieand3) <jsvise@charter.net>
Alabaster, AL USA - Monday, February 19, 2007 12:48 AM CST
Ivy has been in our prayers and we are all hoping for the best! She's a strong little girl and will overcome this too. She's lucky to have such a wonderful mother and father and big brother to care so much for her!!!
Tanya Musquez
Alta Loma,, CA United States - Monday, February 19, 2007 11:58 AM CST
Hi Al, our prayers and energy continue to be with you, Pete, Jasper, and most of all Ivy as she fights this. I am so appreciative to read the updates as we feel like we can stay connected (I still can't believe you are able to write them at the end of each day. . .) Know that good thoughts and love are being sent - Rebecca and Joe
Rebecca <rebeccakroth@yahoo.com>
- Monday, February 19, 2007 11:34 AM CST
Sending continued prayers for Ivy, along with many hugs for you all.
Edie <eross411@yahoo.com>
- Monday, February 19, 2007 11:29 AM CST
Praying for Ivy to take a turn for the better.
LCH mom, Rose
Rose Smith <smith01@netvision.net.il>
Israel - Monday, February 19, 2007 10:05 AM CST
Still reading. Still praying. Won't stop.
Rebecca ("Song")
NC - Monday, February 19, 2007 8:38 AM CST
We praying for you and sending you love. We are completely heartbroken by this relapse.
Donna Johnson (Logan's mom) <donna_johnson@nottheactor.com>
- Monday, February 19, 2007 7:22 AM CST
Hi Pete and Allyson,
You are all in our everyday thoughts and prayers! As I read your journal updates each day it reminds me of why we hike. I am holding all four of you very close to my heart! We are working on H4AC 2007 and I will think of Ivy every moment as I think and plan for 2007.
We send you our love!
Love Colleen, Ron, Annika, Nolan, and Anton
Colleen McPeek <colleen@hikeforacure.com>
Belmont, CA USA - Sunday, February 18, 2007 11:19 PM CST
We are praying for you Ivy Kate!
www.caringbridge.org/visit/zoekay
(LCH June 06)
The Bittingers <bittinger3@bellsouth.net>
Foxworth, MS USA - Sunday, February 18, 2007 10:49 PM CST
It is shocking to read the most recent events. You are in a position that we all fear: "How would I cope with this?" Your little family is coping far beyond anyone's expectations. All of you deserve respite from this worry. Let's hope Ivy will be back to her lively self soon. We think of you every day. If you would email me a grocery list, I could shop for you and bring supplies over. Or If you're home, we could get take-out for you. If you ever get a moment, email me your list. We are leaving town Thurs. to go see Sarah's new baby. We'll be back Tuesday Feb.27.
Dale and Norman Greene <dale@puzzlering.net>
Albany, Ca USA - Sunday, February 18, 2007 10:31 PM CST
sending lots of healing and positive thoughts and prayers your way.
Julia Pazzi Clements <julialp@pacbell.net>
Oakland, CA USA - Sunday, February 18, 2007 9:56 PM CST
Allyson, we are still praying hard for you guys. I've asked my family and church to add Ivy to their prayer list also. I hope the cyclosporine helps her start to feel a bit better. Many hugs!
Shayne <mom2pete@hotmail.com>
Houston, TX - Sunday, February 18, 2007 8:30 PM CST
We are keeping all of you in our prayers...We hope you find strength when you need it most!
BTW: Bryce had auto-immune hemolytic anemia (I went back and checked the blog). Not sure if this is part of Ivy's problem, but if you read the blog you can read all about the meds, etc. I think he is doing well, now, so hopefully that will be sweet Ivy will be feeling good soon, too.
Sending lots of love,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Sunday, February 18, 2007 8:20 PM CST
Allyson just want you to know I am here thinking of you guys and praying!
Valerie <val_ea@yahoo.com>
London, Oh - Sunday, February 18, 2007 7:33 PM CST
Our prayers are with all of you. Stay strong. Ivy is such a fighter - I hate that she is having to go through this again. LCH is a crazy disease and you never know the next chapter. Please know that we are thinking of all of you.
Heather - Lauren's mommy
www.carepages.com
laurensstory
Heather <momofland@numail.org>
- Sunday, February 18, 2007 7:08 PM CST
Ally, I'm adding more prayers for you and Ivy and your family. I will pray for a speedy recovery and that you can bring your sweet child home soon.
Rosanna <brschmitt@yahoo.com>
Baton Rouge, LA 70810 - Sunday, February 18, 2007 7:04 PM CST
I can't believe everything all of you have been going through. Little Ivy seems so strong. When you came to El Cajon for a visit she was so happy and energetic like she had never been sick. I know her gramma, Kathy, and great-gramma, Lois are glad to have moved closer to you in Berkeley. Our love to you Allyson, Pete, Jasper and Ivy.
Terry and Nancy Kemp
El Cajon, Ca USA - Sunday, February 18, 2007 5:52 PM CST
I am praying for Ivy. I hope that our combined love and heartfelt prayers will carry her and your family through this difficult time.
Diana Ortega <Diort@yahoo.com>
Albany, ca USA - Sunday, February 18, 2007 5:51 PM CST
I'm praying for sweet little Ivy. I hope she makes a good turn around soon!
Hugs to you all!
Marleen Capps <marleenandbrian@yahoo.com>
St George, UT USA - Sunday, February 18, 2007 2:57 PM CST
Still praying and thinking of you guys all the time. You are right, no baby should be dealing with this...I'm so sorry!
JoAnn <joannwhite@outtech.com>
Maple Grove, mn - Sunday, February 18, 2007 2:54 PM CST
Our hearts are so heavy since we have heard of Ivy's recent struggles. Please know we are praying many times a a day for you all - strength to get through the day, hope for answers, hope for an Ivy that feels well again.
We are so sorry this has happened. We wanted to sign the guest book as you stated it is giving you feelings of support. We are doing that here in the histio community.
We hope you know you are not alone.
Jeff and Melissa Thompson
Jack LCH
We met in Cleveland this summer :)
Jeff and Melissa Thompson <thomps98@comcast.net>
- Sunday, February 18, 2007 2:00 PM CST
We are thinking about you.
caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Sunday, February 18, 2007 6:43 AM CST
Praying for your family and sweet, sweet Ivy...
Erica Kropilak (maknrjsmom <elk999@hotmail.com>
Manhattan, KS USA - Saturday, February 17, 2007 7:55 PM CST
Hugs, Allyson. I hadn't checked in since last week and was thinking everything was still fine. I'm so sorry Ivy is so sick! We're thinking of you!
Susan <suwaligi@gmail.com>
Redmond, WA USA - Saturday, February 17, 2007 5:53 PM CST
No news is better than bad news, anyday! Hugs to all of you, and hope that you here more news soon!
THinking of you all! Prayers for our tough little cookie....
JoAnn <joannwhite@outtech.com>
Maple Grove, mn us - Saturday, February 17, 2007 4:06 PM CST
Hi Allyson, I sent you an email about another histio family with a hemolyzing problem...maybe they can help with some useful information. In the meantime, we continue to pray for Ivy's return to good health!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, February 17, 2007 10:03 AM CST
No news is better than bad news, and a little bit of hope certainly beats no hope. We continue to think of you guys and pray for Ivy.
Edie <eross411@yahoo.com>
- Saturday, February 17, 2007 7:59 AM CST
Hang on to that hope. A tiny bit is still, nevertheless, hope. Continued prayers.
Tracy (tjly) <tjly7@yahoo.com>
- Saturday, February 17, 2007 6:16 AM CST
I am so sorry to hear that Ivy is so sick. Know that you are constantly in our thoughts. I don't prey too often but this is one of the moments I do.
Please let us know if you need any help.
Much love,
Eva and Neal
Eva <evalinda @skillwre.com>
- Saturday, February 17, 2007 0:05 AM CST
Thinking of Ivy and all you and praying for good results- quickly. Special hugs to Jasper-he is so young to be experiencing this.
Bev (scoogymom)
New Gloucetser, ME USA - Friday, February 16, 2007 9:51 PM CST
Allyson,
You and Ivy, and your whole family, are in my thoughts and prayers.
Madeline <madelinecavalieri@hotmail.com>
San Francisco, CA - Friday, February 16, 2007 6:08 PM CST
Dear Allyson,
We will hope and pray that the Japanese protocol turns out to be successful. Ivy remains in our contstant prayers--we pray for her healing and for strength for you and Pete, and for comfort for Jasper as he wrestles with all the challenges of being the big brother in all of this.
If there is anything at all that we can do, please, please, please don't hesitate to call or email.
Sending many hugs your way...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, February 16, 2007 4:13 PM CST
Allyson,
I am praying for Ivy every day! I am so sorry!
Shana (my4munchkins)
Bossier City, LA USA - Friday, February 16, 2007 3:35 PM CST
I am so sorry for this sad and scary turn of events and I hold all of you in my thoughts and prayers.
Gretchen and Lee and kids
Westminster, CO US - Friday, February 16, 2007 3:25 PM CST
Allyson,
I am so sad about your latest news. I just know you'll get through this. All my thoughts of healing and wellness to Ivy and support to you, Pete, and Jasper...
Jennifer <jldare@msn.com>
Charleston, SC - Friday, February 16, 2007 3:08 PM CST
Thinking of Ivy and your entire family and praying for a miracle.
Carol (mom2dae)
- Friday, February 16, 2007 2:54 PM CST
Pete, Ally, Ivy & Jasper (Jen Ed Beth all my lovely cousins)
So sorry you have to start the fight again!! My thoughts are always with you all. Wish love was currancy, I'd spend all mine on Ivy! Thinking of you.
Love Tracy Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Friday, February 16, 2007 2:51 PM CST
Ally, Ivy and you, your family continue to be in our thoughts.....please know that we are all pulling for her. ((((HUGS))))
Mia <mia5683@hotmail.com>
N. Hollywood, CA USA - Friday, February 16, 2007 2:31 PM CST
Ally, I am continuing to pray for baby Ivy and for the rest of the family. I wish there was more I could do. Thinking of you and yours.
Warmly,
Toni, Brian and Savanna
- Friday, February 16, 2007 2:27 PM CST
Allyson and Pete, I'm just so sad with your update! I will be praying for sweet little Ivy, and for everyone! I wish I could do more..I'm just so sorry! I don't even know what to say...
joAnn <joannwhite@outtech.com>
maple grove, mn US - Friday, February 16, 2007 2:04 PM CST
I'm so very very devastated to hear that Ivy has relaspsed. You are still in my prayers, but especially so right now.
Werona <ronaa74@yahoo.com>
Redmond, WA - Friday, February 16, 2007 1:36 PM CST
oh,oh,oh. I am so very, very sorry to hear that Ivy is relapsing. It's hard to imagine a listless Ivy when the picture I have of her in my head is spunky and spry. You are all in my heart. If there is anything I can do, don't hesitate to call.
Jill Donaldson <canyeshna@hotmail.com>
Berkeley, CA - Friday, February 16, 2007 1:18 PM CST
Thinking of all of you...and praying things start to turn around quickly.
Wendy <wendyatlas@yahoo.com>
Escondido, CA - Friday, February 16, 2007 1:18 PM CST
We are heart broken at the news of relapse - we are praying for sweet Ivy - praying for wisdom for the doctors and strength for you all.
God bless,
kathy and kristen (LCH 11/05)
www.caringbridge.org/visit/kristensstory
Kathy Winkelhorst
Newcastle, ON Canada - Friday, February 16, 2007 1:01 PM CST
My continued prayers for sweet Ivy and your family.
Tracy (tjly) <tjly7@yahoo.com>
- Friday, February 16, 2007 12:59 AM CST
To all the Schoenberger family whom I love and respect so much, you are in my thoughts and prayers constantly. I see Ivy's bright eyes shining and wish all the very best for her. May God's love surround and support you every moment and may you feel the love that is directed toward you, Peter, Allyson, Jasper. My heart opens and breaks and hopes. With love, Jody
Jody Parsons <jodyparsons@sbcglobal.net>
El Cerrito, CA USA - Friday, February 16, 2007 12:49 AM CST
As always, Ivy, and all of you are in my prayers.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Friday, February 16, 2007 12:35 AM CST
I am so sad to hear this about your sweet girl and your family. Please know that you are in my thoughts constantly.
Dawn <damellott@yahoo.com>
Hollidaysburg, PA - Friday, February 16, 2007 12:32 AM CST
I don't even have words to explain how sad and worried I am. Lots of love to you all.
Nicole <nicolelcurtis@hotmail.com>
- Friday, February 16, 2007 12:06 AM CST
Allyson, Pete, Jasper, and especially Ivy-Sending you positive thoughts, love, and support during this time.
Much love-Becky and Ben
Rebecca Ellin <rebecca_ellin@yahoo.com>
Morehead City, NC - Friday, February 16, 2007 12:06 AM CST
Praying for God to hold up your sweet Ivy and grant her body healing. May He comfort you all and be a source of strength as your whole family fights this fight with everything you've got. You will be in my thoughts.
Denise <denismith74@hotmail.com>
Indianapolis, IN USA - Friday, February 16, 2007 11:51 AM CST
My heart is breaking for sweet little Ivy. I will be keeping her and your family in my thoughts and prayers.
Edie <eross411@yahoo.com>
- Friday, February 16, 2007 11:50 AM CST
Oh Ally and Pete- what an unfair turn of events for sweet Ivy. She is in my prayers and at the forefront of my thoughts-- may her doctors be able to navigate her back to health. Poor sweet girl.
Wishing you comfort and strength as you take this unexpected road.
Sara Jacobsen <sarasox@gmail.com>
South Dartmouth, MA - Friday, February 16, 2007 11:45 AM CST
Ally, I will keep your family and especially Ivy in my prayers.
Shelley Jackson
- Friday, February 16, 2007 11:44 AM CST
Sending lots of prayers for sweet Ivy and your family.
Valerie <val_ea@yahoo.com>
London, Oh - Friday, February 16, 2007 11:40 AM CST
Allyson, Pete, Jasper and most especially Ivy, please know that we are continuing to lift you, your family and the doctors and medical workers in prayer. Stay strong!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, February 16, 2007 11:34 AM CST
My prayers are going strong for Ivy at this moment in time...
Mary Nehring
NC - Friday, February 16, 2007 11:33 AM CST
My thoughts and prayers are with you and Ivy.
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Friday, February 16, 2007 11:15 AM CST
Ally & Pete, My thoughts and prayers are with you both and most especially with Ivy- her pictures on the site capture her most lively and joyful self! She is a beauty!
I pray for the doctors to make good decisions and choices. God Bless you All!
Kathy Curran <katcurran@hotmail.com>
St. Louis, MO - Friday, February 16, 2007 10:33 AM CST
At least you are on the first step to getting some answers. Hang in there...
From another histio mom wishing you well. Rose
http://virlib.brinkster.net/LCH/hanochstory1.htm
Rose Smith <smith01@netvision.net.il>
Israel - Friday, February 16, 2007 8:59 AM CST
Ally, I'm so sorry Ivy is back in the hospital and struggling again. I will hold her in the Light of healing and comfort. I hope the words of encouragemeng and caring from so many around you will lift all four of you up and carry you through the roughest patches.
Rebecca (erstwhile "Song" from the SP board) and her guys <songbh@yahoo.com>
NC - Friday, February 16, 2007 8:22 AM CST
I'm so sorry to hear of this major setback. We will keep all of you in our thoughts and prayers and we'll hope for the best. Please keep us posted when you can.
Renee, Matt, Christian & Jacob <cr_lafo@yahoo.com>
N. Canton, OH - Thursday, February 15, 2007 1:32 PM CST
Sending good vibes and prayers your way. Stay strong - your histio family is here for you.
Heather Lauren's mommy
www.carepages.com
laurensstory
Heather Garger <momofland@numail.org>
Newnan, Ga - Thursday, February 15, 2007 1:10 PM CST
our thoughts, prayers, and good energy are with you. -Rebecca and Joe
Rebecca <rebeccakroth@yahoo.com>
- Thursday, February 15, 2007 1:04 PM CST
Oh-Allyson, I'm sitting here in disbelief. I'm so sorry Ivy is going thru this and you guys too! I am praying, praying for good news, and not that it is in her marrow...you must be so worried. I'm so sorry to hear this news.
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Thursday, February 15, 2007 12:33 AM CST
damn...your post this morning took my breath away. I am so sorry to hear of this turn of events. Please know that we are thinking of all of you and holding Ivy in our hearts. Let us know if there is anything we can do to help.
Al, Lynn and Katie
Al, Lynn and Katie <alwanger@sbcglobal.net>
- Thursday, February 15, 2007 12:14 AM CST
My thoughts and prayers are with your sweet little girl and your family at this time.
Tracy (tjly) <tjly7@yahoo.com>
- Thursday, February 15, 2007 11:26 AM CST
We can't believe the news. Please let us know how we can help during the hospital stay and over the weekend. Love,
Jessica and Stefano
- Thursday, February 15, 2007 11:14 AM CST
you are in my thoughts and prayers
Julia Pazzi Clements <julialp@pacbell.net>
oakland, CA USA - Thursday, February 15, 2007 10:36 AM CST
Any news from your docs? We were thinking of you all day and hope you got some encouraging ideas/treatment plans/etc. Call or email if you need a sympathetic ear!Sending many good wishes your way...
Pam, Tom, Devin & Patrick
Folsom, CA USA - Wednesday, February 14, 2007 7:01 PM CST
Thinking of you! I'm so sorry, and will be praying for Ivy.
JoAnn <joannwhite@outtech.com>
Maple Grove , mn US - Wednesday, February 14, 2007 6:58 PM CST
Ally and Pete: found out your devastating new last night at 10 p.m. after a long day with clients. I'm so so sad and sorry. I know what a blow this is, Ally and Pete.As much as you tried to be hopeful yet prepare for this, it is still just so hard. As Ivy finished treatment and was symptom free in late fall and into January, a lightness ensued and we realy were able to see the healthy little girl she is as she says, "watch me!" and flies from the third step and alternates her feet up stairs. Of all the spirits I know she is the most good natured and a joy comes bubbling out beneath the surface, even when she is having a cranky moment. So to see her go down hill as she was last week and to know what can lie ahead is just very sad. I share this sorrrow with you as well as the belief and hope with all my heart on this Valentine's Day and for all the days ahead that she will pave the way with a new treatment which will cure her and others in the LCH family who sufffer and are touch by this disease. As Jasper and I do Valentines at his school party this morning, we will hold you and Ivy in our hearts as you and Ivy go through a biopsy and evaluation at CHO I hoped you not need to do again. Ed and I are here for you , the house will get done next door and we'll all be closer to help out and share with your family who will thrive,and help Ivy get well again. Love, Jenifer-Mom-Grammie
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Wednesday, February 14, 2007 9:49 AM CST
Hi Allyson, Pete, and Jasper and Ivy,
We hope that the news tomorrow will be hopeful. You certainly know Ivy's symtoms more than anyone, and we are sure that your instincts tell you what is best for her. Please call on us for support. We are sending hope, love, and warm thoughts for your family.
love,
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, CA USA - Tuesday, February 13, 2007 11:28 PM CST
hello,
So sorry to hear about Ivy. I'll be saying an extra prayer for her. I sure hope its not the LCHcoming back...
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
Bridgeview, IL - Tuesday, February 13, 2007 9:48 PM CST
We are praying for you! I was very saddened a few minuted ago when I read about the possiblity of relapse. UGH! Please know that we are sending great big hugs your way!
Take Care
Heather - Lauren's mommy
Heather <momofland@numail.org>
Newnan,, ga - Tuesday, February 13, 2007 2:49 PM CST
Praying for Ivy's tests to go well! I know how you feel with the ups and downs of this crazye disease. Please know you have a whole LCH family is praying for you all.
www.caringbridge.org/visit/austin
Mandi Giacomo <mandigiacomo@hotmail.com>
Edmond, OK USA - Tuesday, February 13, 2007 12:47 AM CST
Pete, Alyson, Jasper and ivy - all my love and prayers. I yearn for your comfort.
Neal <nim@skillware.com>
San Francisco, CA United States - Tuesday, February 13, 2007 11:47 AM CST
I'm so sad to learn of Ivy's setback. I'll be saying lots of healing prayers for little Ivy.
Love, Diane
D. Clark <nollidclark@yahoo.com>
Alameda , CA - Tuesday, February 13, 2007 10:59 AM CST
As an LCH mom, I felt your pain and worry through your words. I am so sorry you are going through this with Ivy. You're right about the fact that WE are the experts.
I am sending special prayers for Ivy and your family.
sending a HUG,
Shereen Asmar <shereen.asmar@sbcglobal.net>
Strongsville, OH USA - Tuesday, February 13, 2007 10:49 AM CST
You can see the rollercoaster of this disease experience reflected in the words of the loving community writing in your guest book. Yesterday, celebration of Ivy's thriving health. Today, heartsick, sorrow. Intense prayers for healing. I am with you on the journey. Ivy and all four of you are surrounded in love no matter what. What else can be said? Except to remind you we're here to help with the practical challenges, medical visits, care-taking. too. I am more relieved than ever that you will soon be right across the street. All my love and heartfelt prayers,
Auntie Beth <schoenbrgr@aol.com>
- Tuesday, February 13, 2007 3:39 AM CST
Maggie Kate and I are praying for Ivy Kate and your family. www.caringbridge.org/visit/maggiekatecummings
Jennifer Cummings
Amory, MS USA - Monday, February 12, 2007 10:18 PM CST
sORRY ABOUT THE DOUBLE POST. I'm tired and thought the first message didn't take.
God speed.
Donna Johnson (Logan's mom) <donna_johnson@nottheactor.com>
- Monday, February 12, 2007 10:16 PM CST
We are heartsick after reading your posts. We are so sorry this is happening again and feel your anxiety and worry. We care about you and are praying for you. We hate LCH!
Donna Johnson (Logan's mom) <donna_johnson@nottheactor.com>
- Monday, February 12, 2007 10:15 PM CST
We are just so upset for you. LCH is a nightmare. We are so sorry this is happening and can imagine your anxiety and worry. We will keep Ivy and all of you in our hearts, thoughts, and, especially, our prayers. Stay strong and we care.
Donna Johnson (Logan's mom) <donna_johnson@nottheactor.com>
- Monday, February 12, 2007 10:12 PM CST
Images of clear skin, clear bowels, strong blood. Prayers of sweetness, of healing and health. You are held tight in our hearts. Much love,
Caroline, Randy and Sarah
- Monday, February 12, 2007 8:08 PM CST
Hey all! I am so thrilled to see that Ivy is thriving! I miss all of you and you are often in my thoughts. I love you!
Marit Erickson <maritmarit@aol.com>
Merced, CA 95340 - Friday, February 9, 2007 0:33 AM CST
Hi Allyson, Pete, Jasper, and Ivy! I haven't checked in for sometime and was so suprised to see what a big girl Ivy has become. Congratulations on all of the exciting things going on in your lives. I think of you often and am so glad to hear that Ivy has completed chemo.
Jennifer <jldare@msn.com>
Charleston, SC - Wednesday, February 7, 2007 8:09 AM CST
Great update and ADORABLE pics!! I think Ivy and Jasper look so similar!!!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Wednesday, January 31, 2007 10:25 AM CST
Glad to hear that the spots seem to be resolving themselves. I love the new pictures. Ivy looks so grown up! You all are still in our prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX USA - Monday, January 29, 2007 9:40 AM CST
Great to hear things are still going well. Loved the new pics. Randy and Caroline
Randy <ci2rm@suddenlink.net>
loleta, ca usa - Sunday, January 28, 2007 4:14 PM CST
Great to hear things are still going well. Loved the new pics. Randy and Caroline
Randy <ci2rm@suddenlink.net>
loleta, ca usa - Sunday, January 28, 2007 4:13 PM CST
So sorry to hear that Ivy has a few questionable spots. I know how frustrating this is for all of you. Our girl's finished their chemo about the same time - Lauren 12/28(our 10 anniversary!) Anyway - she has had severe bone pain in three areas daily - I like you am holding my breath, especially since she relapsed 4-8 weeks after she finished the first time- I wish there was a magic wand that could heal instantly!
We are praying for Ivy and that the spots go away!
Take Care -
Love from another histio family,
Heather
www.carepages.com
laurensstory
Heather Garger <momofland@numail.org>
Newnan, Ga Us - Saturday, January 27, 2007 7:37 AM CST
So sorry to hear Ivy has some spots that look suspicious. Let's hope they turn out to be benign. Tubes in the ears sounds like a good plan since there seems to be fluid, which could really affect the way she hears,especially soft consonants. Let's hope that is the only procedure she will need. No more LCH biopsies or treatments. With hope and love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Sunday, January 21, 2007 11:37 PM CST
Praying that those spots are nothing and disappear soon. I hope she is able to have her Broviac removed soon and enjoy many, many years of good health!!
Edie <eross411@yahoo.com>
- Friday, January 19, 2007 9:40 PM CST
YEAHHH! Great news - may it keep on going.
Randy & Caroline <ci2rm@suddenlink.net>
Loleta, Ca USA - Saturday, January 13, 2007 8:15 PM CST
Here's to good health for Ivy for the New Year! May 2007 see you settled in your house, with all of you content and healthy.
Dale and Norm
Norm & Dale Greene <dale@puzzlering.net>
albany, ca usa - Friday, January 12, 2007 8:53 PM CST
Allyson,
I think of you and your family daily. I am glad Ivy is doing so well. I hope the house is progressing and that '07 is a wonderful year for your family.
Take care,
Toni, Brian and Savanna (Broken Arrow, Ok)
Toni
- Thursday, January 11, 2007 10:46 AM CST
Just stopping by for a much overdue update on Ivy and the family. Here's to much peace, love and happiness for all of us in 2007. My prayers and thoughts are always with you all. Hope 2007 is even better than '06. Cheers to the new home!!!
P.S. I got a J.O.B. I start on Monday.
Love Carol and the girls
Carol Thonen <kitcatbreak@yahoo.com>
Olathe , KS USA - Tuesday, January 9, 2007 6:35 PM CST
Happy New Year Allyson, Pete, Jasper, and Ivy!
May this year be uneventful and bring joy to you all! Congratulations on Ivy's last treatment, the very successful Hike for a Cure, and the new house (I want to see some pictures!)! It sounds like Pete's layoff may be a blessing in disguise if it will help you get in it sooner. Ben and I think of you often and the strength that you continue to exhibit; you all are truly inspiring! We miss you! love, Becky and Ben
Becky and Ben <rebecca_ellin@yahoo.com>
Morehead City, NC - Friday, January 5, 2007 2:30 PM CST
Not for lack of reading your entries, nor thinking of and praying for you every single day have we neglected to sign the guest book. We're so grateful that you keep up the updates, and inspired by the strength of your family. Wishing you a wonderful new year coming, with improving health and the proliferation of peace.
Caroline, Randy and Sarah
- Sunday, December 31, 2006 1:46 PM CST
Here's hoping that 2007 is a year of wonderful health for all of you, filled with lots of love, laughter, and smiles, (and of course a fabulous new job for Pete!!).
Edie <eross411@yahoo.com>
- Saturday, December 30, 2006 10:17 PM CST
Happy New Year!!!!
Love,
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
- Saturday, December 30, 2006 10:10 PM CST
congrats on end of therapy.
Love Emily,charlie,mike and lindsey
Charlie borboa <Charlie_borboa@yahoo.com>
Stratford, ok - Wednesday, December 27, 2006 7:29 AM CST
Beth has put in words what I feel in my heart. You are amazing in your love and courage. Thank you for the chronology--really gives a perspective on what Ivy and you have been through. May there be full remission for ever and ever. We love you. Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Wednesday, December 20, 2006 0:27 AM CST
Congratulations on the end of treatment! We know all too well the fear of flying without the safety net :-) Hang in there and find that joy in each day...each day out of treatment helped us realize that we were getting further and further away from it without a relapse.
We hope that Ivy and Jasper have tons of fun this Christmas morning and we will be thinking of all of you! We'll be out your way on 1/5...drop me an email if you think we could stop by! If not, let us know if you are ever coming this way :-)
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, December 16, 2006 9:46 AM CST
Yay!!! Last Chemo! Fingers crossed and hope in my heart for Ivy's good health! Have a great holiday season! Hugs all around, it's been too long since I've seen you all! I owe you letters and pictures, I know!
Hope to see you in 2007
Love, Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California - Friday, December 15, 2006 12:55 AM CST
Hooray for the last chemo treatment!!! We understand the fear of going off chemo - you are right - we just have to stay positive! We hope you have one huge celebration!!
kathy and kristen (www.caringbridge.org/visit/kristensstory)
Newcastle, ON Canada - Friday, December 15, 2006 12:37 AM CST
what wonderful news about Ivy's skin and that the last chemo treatment is next week. so many blessings right now, even in times of tension and worry. {{hugs}}
Dana from the Board
Dana Mitra <dmitra@psu.edu>
State College, PA - Monday, December 11, 2006 3:09 PM CST
From "Prayers for Everyday and Not-So-Everyday Moments" by Rebbe Nachman of Breslov (1772-1810)
LEARNING TO WAIT
God of patience,
teach me
patience.
Help me learn to wait -
for the good
that is just around the corner;
for the assistance
that will soon be within my reach;
for the relief
that is just moments away.
Allson and Peter. We watch as you move through the ongoing challenges with Ivy and you teach us about patience. It is a mystery how the situation continues to demand further patience of you; you have already offered so much of it. I bow to your courage (I believe courage is always a choice), your active devotion to your magnificent children, and your miraculous resilience through it all. Tonight, in the face of all that challenges you this week, I am praying for patience for you including and especially "for the relief that is just moments away." All my love,
Auntie Beth <schoenbrgr@aol.com>
- Monday, December 11, 2006 5:02 AM CST
Hi guys, I can't believe that Ivy is having her last chemo-we'll be keeping all of our fingers and toes crossed that it is done for a while. Definitely frustrating to have to go through the ear tubes surgery. I had them as a kid and my biggest recollection was my mom's concern that I didn't get water in my ears in the bath. I don't remember any pain associated with them. Hopefully, the surgery will be a success for Ivy. She is such a trooper! Love to all of you, Jessica, Stefano and Nico
Jessica Tomlinson <jessica_tomlinson@hotmail.com>
- Sunday, December 10, 2006 3:40 PM CST
Hi Allyson,Pete,Jaspar,and Ivy,
Thanks for your regular updates. I am happy that her rash is better and that you finally got the appoiment.
We missed you at Thanksgiving, there were no kids runnung around. Even Nico did not make it bcause he had the stomach flu.
Hope Ivy's keeps doing well. Our love to all of you including the extended family.
Eva and Neal
eva <evalinda @skillwre.com>
- Friday, December 1, 2006 2:41 PM CST
Hi Allyson,Pete,Jaspar,and Ivy,
I look forward to your regular updates to keep up with Ivy and your family's activities. What a full life you all maintain. Isn't it fun and challenging working on your house? All those decisions can be daunting, but then, it's rewarding to have the house done to your ideas. Hope thngs move along smoothly and you are settled in soon. Let's hope Ivy's skin will calm down by the move time, which would make everything more pleasant.
love to all,
Dale and Norm
Dale Greene <dale@puzzlering.net>
albany, ca usa - Tuesday, November 21, 2006 3:57 PM CST
Hi,
Just read your last posting. Hope that Ivy's rash turns out to be nothing serious.
Will miss you over Thanksgiving. Wishing you all a happy Thanksgiving.
With love,
Eva and Neal
Eva and Neal <evalinda @skillwre.com>
- Sunday, November 19, 2006 11:37 PM CST
Hi Pete and Allyson--have checked the web site many times but haven't taken time to leave a message--so sorry to hear about the rashes--we are praying that it is not LCH--amazing that Children's Hosp does not have a dermatologist on staff --hope your HMO comes through in a timely way. Ivy is such a joy to spend time with as is Jasper--I enjoyed my recent time with them. Hope all is going well with your house remodel and that you'll have an enjoyable turkey day--we will be thinking of you and missing you. Love, Auntie Sara
Sara DeZerega <saradezerega@aol.com>
Orinda, Ca Usa - Friday, November 17, 2006 0:30 AM CST
Hi Allyson,
Just checking in...sorry Ivy is having all the rash problems! I hope it turns out to be something "normal" and not LCH. If you need it, our ped derm is Dr. Al Lane at Stanford. He is fabulous--he dx Patrick and continues to be a great support person for us. He has seen many skin LCH patients (well, it's all relative, but in the histio world, he's seen a lot). His email/contact info is on the LPCH website, or feel free to email me if you need it.
We're thinking of you all and hope you're enjoying your new house!
Pam, Tom, Devin & Patrick <dtppsanger@comcast.net>
Folsom, CA USA - Thursday, November 16, 2006 9:15 PM CST
Allyson -
We are sorry to hear that Ivy is not feeling well. We wanted to thank you for the Leukemia and Lymphoma info. We are going to look into it so that we can find out what if any help is available.
We also are sorry to hear about your camera -a). because Ivy and Jasper are so dang cute and b). we want to see those Hike for the Cure photos.
Keeping you in our thoughts and prayers.
Jack's T's mom and dad (we met in Cleveland!)
Melissa and Jeff Thompson <thomps98@comcast.net>
- Thursday, November 9, 2006 2:54 PM CST
Sorry to hear that poor Ivy is under the weather again. I hope the skin problems clear up, either with help from the steroid cream or on their own as mysteriously as they appeared. Funny about Jasper's costume - after 2 years as Tigger Phillip moved on to Pooh this year and passed Tigger down to Bella (who will no doubt get 2-3 years out of it!). Sending lots of good thoughts and prayers for Ivy as she approaches the end of her chemo. I hope she's feeling better soon!!
Edie <eross411@yahoo.com>
- Friday, November 3, 2006 7:14 AM CST
Hi dear family,
Just read the latest news. Sorry that Ivy is having skin problems and also a bad cold. I am happy that she is almost done with the chemo. Hope she gets over her cold soon.Congratulation on the new home.
We are often are thinking about you and hope we will see you soon.
Love,
Eva and Neal
eva <evalinda@skillware.com>
sf, - Thursday, November 2, 2006 5:40 PM CST
Sorry Ivy is sick and has some skin stuff going on. I hope the cream works for her!
Funny that Jasper was a Lion 3-years running! I thought Liam was the only kid wearing a cosutme for the 3rd year in a row (a kitty cat he calls Fred). :)
I'm off to look at Mark J's photos of the CCC party. I hope you're in there. I miss you! Remember, I'm in your time zone now!
Susan <susaneswift@hotmail.com>
Kirkland, WA - Thursday, November 2, 2006 4:58 PM CST
So glad you had such a great success with Hike for a Cure!!!! Way to go! Thank you for your hard work. Glad Ivy's cold is better. Thinking of you.
Donna Johnson (Logan's mom) <drjohnso@freeway.net>
- Monday, October 23, 2006 5:56 PM CDT
Way to go, Pete!! And Allyson, Jasper and Ivy, too! I'm glad you had a (relatively) relaxing vacation and also congrats on the house! What a lot of activity you've got going on!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, October 6, 2006 2:29 PM CDT
Great web site update, Ally! Like you four, we too are so thrilled at Ivy's health and response to treatment; we will hope for only the best here on. Despite possible larger realities, we still believing in the miracles of Ivy's immune system and the special devoted care you give her.You both have been so conscientious this year and all your research, Ally and the reaching out you do to help other LCH families is just amazing. We are so proud of the two of you for pulling off the Hike for the Cure trip while buying your new house. What a great Happy Birthday present for you, Ally. Congratulations Peter on making it up Half Dome in honor of Ivykate and all who fight LCH. 18 miles! Wow! As grandparents we too want to express our deep graditude to all who made such generous contributions to HHA/Hike For The Cure and our family's own search for a cure to save our dear Ivy, even though we don't know your names yet. A true sense of community wraps itself around you four and other familes so you are not battling this alone. Have a restful, exciting Tahoe vacation and, Jasper & Ivy,when in the forest, do spy on the "...lions and tigers and bears! oh my! Bears?!" Love Grammie Jenifer and Grandpa Ed.
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA .94618 - Wednesday, September 27, 2006 5:48 PM CDT
Allison,
Thank you for updating with such a busy life! Congrats on your new house, the hike, being able to get away and most of all for your happy and healthy little Ivy. She will NOT relapse! We must not let ourselves think that way and if we do for a moment, push that evil thought out of your head immediately!! Enjoy your busy life!
Love,
Diane (Dillon's mom)
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
Alameda , - Thursday, September 21, 2006 7:46 PM CDT
This post just made my day! Yay for Ivy! And yay for you and your family, you have so many exciting things happening! You deserve it!
Tracy (tjly)
- Thursday, September 21, 2006 6:57 PM CDT
Hi Ivy and Allyson..
What a great site and a GREAT inspiration for our family. I want to thank you for emailing me! What a great blessing to have us find each other by "coincedence!!!"
Your little girl is just beautiful! Thanks again
Tom, Tammy and Olivia~~ Another LCH family!!
(Abigail, Rebecca and Madelyn too!)
Tammy. <Tlstg@msn.com>
- Wednesday, September 20, 2006 10:59 AM CDT
Allison,
I hope Ivy is doing well and no news is good news. Just wanted you to know I was thinking of you!
Love,
Diane
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
Alameda , - Monday, September 18, 2006 5:45 PM CDT
So glad you are receiving so many donatuions for the hike--we sent ours by regular mail--hopefully you have received it by now. Hope you are all doing well-- to wait and see on Ivy's ear tubes seems like an ok thing to do since she is doing so well--why rock the boat with another procedure? Tough decision though. We think of you often. Much love, Sara and David
sara dezerega <saradezerega@aol.com>
orionda, ca usa - Wednesday, September 13, 2006 3:10 PM CDT
Hi guys, man I'm embarrassed to say that I haven't checked in forever and Ivy is not a baby anymore! She looks so grown up, I can't believe how long her hair is. I am going to send you an email because I was reading some of your past journal entries and was shocked at the similarities that there is. Aidan has been off chemo since August 1st and let me tell you it's a little scary being thrown out there with no safety net. I'll talk to you soon. www.caringbridge.org/ks/aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Omaha, Ne - Monday, September 4, 2006 9:57 PM CDT
Hi wonderful family,
Just read about tubes and wanted to let yuo know that the tubes really helped Jess when she was a little girl. The operation even then was a nothing.However I understand your dilema.
Love,
Eva
Eva <Evalinda@skillware.com>
- Thursday, August 31, 2006 8:42 PM CDT
Hi Ivy,
You are such a cutie pie! I am so glad to hear you are doing well. Your Mom was so nice to respond to one of my postings on Histio.org and I've been meaning to sign your guestbook for some time. I wish you well and I'll be checking on you often.
Blessings from Georgia,
Sonder (Ossie's Mama)
www.caringbridge.org/visit/ossie
Sonder Taunton <georgiadolly@yahoo.com>
Reynolds, GA USA - Wednesday, August 30, 2006 2:50 PM CDT
Got your forms this weekend. My donation's on its way! Have a beautiful and successful climb! Love to Ivy et al, hk
hope <krauskop@berkeley.edu>
- Monday, August 28, 2006 5:57 PM CDT
We'll be watching for our sponsor form and keep them prayers coming in. We miss you, wish we weren't such a long ways away.
Caroline, Randy and Sarah
- Monday, August 28, 2006 11:21 AM CDT
Wow! She looks so big, and I feel like it hasn't been THAT long since we've seen you! We received our sponsor form and will get it back to you this week. Way to go, Pete! A little part of us is always in Yosemite, so we'll be right there with you. We're glad to hear that things are going well right now, and we hope to see you guys soon. Ben's about to start preschool, so we're gearing up for that... And I head back tomorrow! Ugh. Lots of love to everyone.
Jen, Stuart and Ben <jen@gripman.net>
El Cerrito, CA usa - Sunday, August 27, 2006 11:57 PM CDT
Glad to hear she is doing well (minus the cradle cap)...Patrick had that a few times during treatment and you're right--it didn't biopsy as LCH like the other skin lesions did.
Patrick's platelets and ESR are high again (620 and 46), so his doctors are a bit concerned. But, since both are so nonspecific, we don't know what's going on. He shows no outward signs of histio or any other inflammation, but that darn LCH is so sneaky... Anyway, we are hoping that this is just a blip and nothing major. He will have more labs in about a week or so and they can see if the #s are up or down.
Hugs to all of you! We're looking forward to seeing you in Yosemite!!!!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, August 25, 2006 10:12 PM CDT
Dear Allyson and Pete - just checking in to see how our little friend is doing while we are away again. Hope to see you on Wednesday next week - so glad we managed to get on the same schedule now you are only in hospital every two weeks. I am sorry to hear you are both feeling so anxious - it's that parent intuition isn't it - but sometimes we can be proved wrong - I really hope so in your case. Ivy looks great in the pictures - she's really growing up isn't she. Can't wait to catch up with you properly next week Allyson. love to all, Emma
ps Lauren hopes Ivy likes the message she sent!
Emma Bishopp <emma@bishopp.net>
Lafayette, CA USA - Tuesday, August 15, 2006 12:12 AM CDT
Hi Ivy
I hope you are feeling well, I am looking forward to seeing you soon - maybe next Wednesday at hospital. Right now you can't see me because I am in San Diego for a vacation and I will see you soon.
love Lauren xxxx oooo
Lauren Bishopp <emma@bishopp.net>
Lafayette, ca usa - Tuesday, August 15, 2006 12:04 AM CDT
It was great to hear that you had such a good time in San Diego and that Ivy is growing up!!!
Keeep enjoying the summer. Love to you all,
Neal and Eva
Eva <evalinda @skillwre.com>
- Sunday, August 13, 2006 11:07 PM CDT
Glad to hear she's growing every which way and that you all had a great time in San Diego. WE'll send prayers for Dillon and be thankful that Ivy is doing so well. Love to all. Randy and Caroline
Randy Mayers <ci2rm@cox.net>
Eureka, Ca. usa - Sunday, August 13, 2006 9:02 PM CDT
Hello, i came form histiocytosis accociation message board. I'm grad hearing from you that your daughter will finish treatment on december. and i can feel how this LCH treatment get irritated us because we are not sure how long takes a time to finish for treatment and this might be come back body again. I hope LCH never come back to our kids.
my son took for 2 years to find out LCH. we just started chemo on March 1st,2006. the day i've birthed new baby girl.
i do not know how long takes a time for treatmnet but i'm happy my son finally get out of bad pain which he had for 2 and half years to his bottox.
Sakiko Azahri
Honolulu, HI USA - Sunday, August 13, 2006 3:01 AM CDT
Hi Ivy! I'm just stopping by to say hi and let you know that I'm thinking of you! I hope you have a GREAT weekend!! God bless and *warm hugs* ><>†<><
*Jennifer C* from Angels on Earth <coopsie78@gmail.com>
Eugene, OR USA - Saturday, August 12, 2006 3:26 PM CDT
LOVE those photos of Ivy! She looks so much like you Allyson. Glad to hear she is growiing up and out and sorry you have been so worried about her skin and such. It is not a losing battle and she is one strong little girl. How do we contribut to Half Dome? Look forward to seeing you all to-morrow. Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, August 11, 2006 1:33 PM CDT
Hello from Fifi and crew. Those pictures are SO beautiful. I do hope your feelings of unease go away and that Ivy stays on a healthy and beefy track! Fifi is Jonesing for Jasper (I've always wanted to say that!) so let's try to get together soon. Love, Jill
Jill Donaldson <canyeshna@hotmail.com>
- Thursday, August 10, 2006 10:31 PM CDT
Oh WOW! Every time I see new pix of Ivy & Jasper they have grown up so much! They are thriving and beautiful, dispite the struggles with LCH! So glad you had a good trip to San Diego, despite the antibiotics! Pete! Half Dome - I was in Yosemite in June, I'll send you some pictures. My fried Karen made me climb Half Dome back when we were 16-17yrs. BOY was it HARD!!
Love to you all!
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, CA USA - Thursday, August 10, 2006 6:54 PM CDT
Hi lovely family,
Hope you had a great time in San Diego. Remember that Squaw is avaiable for Labour weekend. Much love ,Eva
eva <evalinda@skillware.com>
- Wednesday, August 2, 2006 7:19 PM CDT
Hope you guys had a wonderful time in San Diego and survived the packing - Been there, done that! :) Keep us posted and let us know Ivy's follow up bloodwork about the infection.
Sonji
Englewood, CO - Monday, July 31, 2006 9:12 PM CDT
SO glad you four are away enjoying great gramdma Lois, Nana Kathy, and cousins, aunts and uncles from Ally's family. Hope the high school reunion tomorrow is satisfying and a fun date for you two, now that you can breathe a sigh of relief: Ivy has returned to her symptom free old adorable self with a whale of a brother! Actaully Jasper swims like a dolphin, so proud of using gogles to dive and Ivy will too some day. Love you all and here's to no more I.V. lines after Sunday.Will think of you as we rest and enjoy on the Sonoma coast for a few days. Enjoy! Love, Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA - Friday, July 28, 2006 1:26 PM CDT
Sorry I have been out of touch for so long... Sorry to read about the ongoing challenges and that you are back at CHO. Hope you are home now and resting. Your family's strength and love is an inspiration. It is so great to hear how well Jasper is doing. He has grown up so much since I saw him last. Ivy looks beautiful and happy, in spite of everything she is going through. The love and strength of her parents and extended family really shows. My thoughts and prayers are with you guys. I love the pics of Peter, Ivy, and Jasper.
P.S. We were in the ER on Saturday at CHO for our 5 month boy, Adam, (yes Jazmine has a baby brother), and we are fortunate that he needs minor surgery to correct the presenting issue. I thought of you guys. I can only imagine what it is like to live like we did, for a few short hours, for so long. I hope you have a great time at your 20th high school reunion, and like Jenifer said, boast about your beautiful family.
Larry Best <larrybest@gmail.com >
Alameda , CA - Wednesday, July 26, 2006 1:50 AM CDT
Let's hope that you are home from the hospital and that you're sleeping snuggled in your own beds tonight. I can't believe that this is your 20th high school reunion Ally. You look way too young for the 20th. You must have made a typo; it must be your 10th. High school reunions can be really interesting and fun with the perspective of the years. Enjoy the weekend trip. It should be rewarding to show off your beautiful family.
love to you all,
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, ca USA - Tuesday, July 25, 2006 11:42 PM CDT
I hope Ivy is doing well and you make it home today!
xoxox
Susan
Pittsburgh, PA - Monday, July 24, 2006 10:50 AM CDT
Glad to hear that Ivy is being treated well and that you guys are able to be comfortable and have some privacy. I hope the antibiotics kick that nasty little staph infection right in the rear and Ivy is healthy and infection free soon. Keeping you all in my thoughts and sending lots of healing vibes for Ivy!
Edie <eross411@yahoo.com>
- Saturday, July 22, 2006 7:48 PM CDT
Thinking of you all! We hope the hospital stay is as good as it can be and that Ivy is home quickly. We're keeping her in our prayers as always!
Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, July 21, 2006 10:01 PM CDT
So sorry Ivy and all of you will spend most of the weekend at the hospital--hope the antibiotics will work well and quickly--we are available for relief breaks. Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, July 21, 2006 3:44 PM CDT
Just checking your latest entry....hope Ivy's face is clearing up. How frustrating it is for you....Glad you had a good time in Cleveland. And meeting others and seeing you are not alone has got to be a bit of comfort.
JoAnn <joannwhite@outtech.com>
MPLs, mn - Tuesday, July 18, 2006 1:59 PM CDT
Welcome home from Cleveland--your description of the meeting brought tears to my eyes. So much suffering and so much courage. Glad you also enjoyed some down time and that kids fared well in your absence. Agree with everything Jenifer said in her comments. Glad you will see a dermatologist--while exzema is not fun, let's hope that will be the diagnosis or else something else benign. Look forward to seeing all of you this week-end. Much love, Sara and David.
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, July 14, 2006 11:15 PM CDT
Hi Ivy and family - just checking to make sure mom and dad made it back okay. It was very nice meeting you over the weekend. We will continue to check on Ivy. Best wishes to all of you.
Matt, Renee, Christian & Jacob www.caringbridge.org/oh/christianlch <cr_laf@yahoo.com>
N. Canton, OH - Tuesday, July 11, 2006 8:10 PM CDT
Thinking of your two today in Cleveland at the LCH Conference and hope it is helpful for you and Ivy and all the loved ones affected by this disease. Sending heartfelt Happy 41st Birthday wishes to one of the greatest dads, Peter! Your kiddos are doing great while you are away and dispite running us ragged... it does take a villiage...or at least Beth, HArvey and Emma... we are very blessed to be with them: Jasper just blossomed at his YMCA swim lesson and in his retelling of learning the back stroke; Ivy spoke at least a pargraph, mostly understood, and with great animation and gestures on playing with cousin Emma at Piper puppy's house; and she was a trouper as we flushed her Broviac line this a.m. and she took her medicine. You two have done a tremendous job,and you do it every day; Glad you did some sight seeing but YOU two deserve to be in Cleveland's Rock and Roll Hall of Frame given how well you've rocked and rolled this year with LCH battle. We love you, Jenifer-Mom and Ed-Dad
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Sunday, July 9, 2006 8:19 PM CDT
Have an AWESOME weekend in Cleveland!!!!!!
Happy Birthday to Pete!!!!!!!!!!
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Thursday, July 6, 2006 4:49 PM CDT
I'm glad to hear such a positive update! Have a wonderful time in Cleveland! I look forward to the day when your blog is just a blog about the everyday mundane!
Tracy (tjly)
- Saturday, July 1, 2006 6:39 AM CDT
What a great update on the kids! I'm glad they are both doing well. Enjoy your weekend in Cleveland! I have no doubt that it will be fun and educational, too.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, June 30, 2006 12:13 AM CDT
GREAT pictures!! Love those smiles!!
Lucy
N.W., LA - Wednesday, June 28, 2006 10:35 PM CDT
Very happy belated birthday, Ivy! Hope you have a wonderful year in which you are free from LCH forever. I loved the pictures on your site.
Donna Johnson (Logan's mom) <Donna_Johnson@nottheactor.com>
- Monday, June 26, 2006 2:12 PM CDT
We loved watching two year old Ivy giggle and romp on the floor with Emma's tiny new puppy, Piper. Of all his visitors, Piper seems to especially enjoy Ivy... her exuberance and joy are the closest thing to a puppy's that he's found since he left his littermates. Ivy says his name, clear as a bell "Piper puppy." In these precious moments, an outsider would never know what this child has gone through to reach her second birthday. Peter and Allyson, you deserve medals of bravery and endurance. And now, with courage, we learn to trust the future anew. Love,
Auntie Beth <schoenbrgr@aol.com>
- Tuesday, June 20, 2006 9:00 PM CDT
Hi! I've been reading your updates and praying for you all! I found out about this disease through the eBay pottery board when a prayer request was made for Wesley. I don't know any of you, personally, but I have been so touched by all you are all going through. I saw your post on his guestbook, and I've been reading the posts and updates for Ivy and others. I had never heard of this disease, until then; and I pray for a cure and for healing for Ivy and all the other children. God Bless you all! I will continue to check your updates and will be praying for you!
Lucy
N.W. Louisiana, LA - Monday, June 19, 2006 2:11 PM CDT
Sharing your joy at Ivy's health and her terrific spunking jabbering two year old self. What a milestone. May you know how much we appreciate all the hard work ,and tough decision you made and the tender care you have given Ivy, especially during the times that seemed endless. Now, may blessings without end keep coming your way. In hope and love for you four, happy second birthday, dear Ivy, and many more. Loved celbrating it with you, Grammie Jenifer & Grampa Ed
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Friday, June 16, 2006 2:11 AM CDT
HAPPY BIRTHDAY IVY!!! Please tell your mommy thank you for checking up on me and following my progress. I'm so glad that you're done with chemo. I KNOW that you're going to be just fine....so tell mommy and daddy not to worry. I promise to pay a little more attention to you next year at camp. See you soon!
Love, Dillon
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
- Friday, June 16, 2006 1:00 AM CDT
Yay Ivy, happy second birthday! What a great present, the end of weekly chemo! I hope things continue to look up for your beautiful two year old girl.
Edie <eross411@yahoo.com>
- Thursday, June 15, 2006 10:10 PM CDT
I'm so glad the problems in May were just a virus!
Camp looked fun for everyone.
Happy, happy birthday sweet Ivy Kate!
xoxox
Susan <susaneswift@hotmail.com>
Pittsburgh, - Thursday, June 15, 2006 12:51 AM CDT
Happy Birthday, Miss Ivy!! And a toast to the boring reports and that they stay that way! What a fabulous camp; it looks like the entire family had a great time. Love to you all-B&B
Becky Ellin <rebecca_ellin@yahoo.com>
Morehead City, NC - Thursday, June 15, 2006 11:51 AM CDT
Hi,
Just came back from a trp and are so happy to see the pictures. Ivy looks so great. Can't believe she is going to be 2. Happy Birthday
Love eva and Neal
eva <evalinda@skillware.com>
- Tuesday, June 13, 2006 7:58 PM CDT
She does look like a big girl now! Cute pics!
Praying everything goes well and the every other chemo visits is all she needs.
JoAnn <joannwhite@outtech.com>
MPLS, MN USA - Sunday, June 11, 2006 8:40 AM CDT
Great photos, capturing an adventuresome family having fun. Looking forward to continued positive news.
love it.
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, ca USA - Saturday, June 10, 2006 5:53 PM CDT
Wow! We all had the same thought, Ivy looks grown-up, more than 2! But only in that picture! What a great place! You all look happy & relaxed. Keep up the boring posts!
Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Friday, June 9, 2006 12:26 AM CDT
It's funny...before I even read the update, I saw the picture and thought to myself, "Wow, Ivy looks grown up!" I can't believe she's (almost) 2 already. Thank goodness for another "boring" update.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, June 9, 2006 9:44 AM CDT
What a great picture of Ivy, to sweet! And yes she does look grown up! Looks like you guys had a wonderful time at camp. Loved the pictures!
Valerie <val_ea@yahoo.com>
Oh - Friday, June 9, 2006 6:50 AM CDT
I love it! Keep these boring updates coming!
Tracy (tjly)
- Friday, June 9, 2006 6:19 AM CDT
YAY!!!!
Caroline, Randy and Sarah
- Thursday, June 8, 2006 11:12 PM CDT
Great pictures, looks like you all had some much deserved fun! I'm so happy to see another boring update, keep 'em coming!
Edie <eross411@yahoo.com>
- Thursday, June 8, 2006 9:18 PM CDT
Just checking in to find a crisis averted and that you all had a great camping experience! Looking forward to seeing you all at maybe a summer [Theorge Day?] get together. Love always, hope
hope <krauskop@berkeley.edu>
- Tuesday, June 6, 2006 12:10 AM CDT
I'm so glad it was just a virus - I was worried for you!!! Sounds like you had a great time at the camp - what fun for both of them, and sounds like it was great for you guys too.
Kelly <kel_hayes@yahoo.com>
Chicago, IL - Thursday, June 1, 2006 3:34 PM CDT
Yay! Camp sounds like a really great place! So glad you got to go and have such a fun time. Can't wait to see the pictures! Thinking of you!
Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, CA U - Thursday, June 1, 2006 11:36 AM CDT
So happy to hear about the fun you all had at the camp. It sounds awesome! Thinking about you all and keeping you in our prayers for the best of health and happiness. Will see you in Cleveland at the Big Meeting!
Donna Johnson (Logan's mom) <Donna_Johnson@nottheactor.com>
- Tuesday, May 30, 2006 10:14 PM CDT
What a wonderful sounding week-end you had! Glad Ivy is again well. Saw her and Jaspesr last Wed and I have to say it was the highlight of my week--Jasper and I did noise making balloons and Ivy was so cute dealing with the noise and excitement. They are wonderful kids. Glad you had such fun--no one deserves it more. Hope we will see you soon for Jen's b-day, Ivy's b'day and/or father's day. All our love, Auntie Sara and Uncle David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Tuesday, May 30, 2006 5:32 PM CDT
Hi,
Want you know that we are thrilled that Ivy is well and that you had such a great and suportive weekend.
Love,
eva and Neal
eva <evalinda@skillware.com>
- Tuesday, May 30, 2006 3:50 PM CDT
I had to lol with the *fishing* for toys comments from Jasper. Glad you guys had fun at Camp, and what wonderful (?) news that it was just a virus. I'm glad Sweet Ivy is feeling better!
JoAnn <joannwhite@outtech.com>
Minneapolis, MN USa - Tuesday, May 30, 2006 11:58 AM CDT
I am so glad you guys had such a wonderful time!!! I am also glad all the prayers seem to have worked for sweet Ivy!
Valerie <val_ea@yahoo.com>
London, oh - Tuesday, May 30, 2006 6:46 AM CDT
Knocking wood, spitting over our shoulders (to ward off the Evil Eye, of course!) and still picturing firm poops and clear skin, which matches her radiant smile. And is reflected in Allyson's, Pete's and Jasper's beautiful faces!
Caroline, Randy and Sarah <ci2rm@cox.net>
- Sunday, May 28, 2006 5:51 PM CDT
It's Sunday afternoon and I hope that you are off having much deserved play time with your family at camp. Thank you so much for coming to the concert last Wed. It meant a lot to Norm to have you there, and it was great to see you and the kids. Ivy was a trooper with the sound level so high. She is darling, and Jaspar just takes off to investigate, even in unknown surroundings. He's an inquisitive little boy, which probably causes some anxious moments for you guys, wondering what he's up to all the time. They are beautiful children, each one with a distinct definite personality. It's lovely that they get along so well. I'm also glad that you met Jamie.
loving thoughts to you.
Dale and Norm Greene
Dale Greene <dale@puzzlering.net>
Albany, ca USA - Sunday, May 28, 2006 4:47 PM CDT
Great news about Ivy's bms!! We are keeping you all in our thoughts and are so glad you are able to make it to the camp this weekend. Enjoy yourselves and have fun!!
love-
Becky and Ben <rebecca_ellin@yahoo.com>
Morehead City, NC - Saturday, May 27, 2006 12:48 AM CDT
We are pleased to hear that Ivy is getting better. We are keeping our fingers cross that it will continue. Happy that you are making it to camp.
Love Eva and Neal
Eva <evalinda@skllware.com>
- Friday, May 26, 2006 11:21 AM CDT
glad to hear things are improving! hope the good news keeps coming!
Dana Mtra <dlmitra@yahoo.com>
State College, PA - Thursday, May 25, 2006 1:37 PM CDT
Yay Ivy! Hope you guys have a great time this weekend and that you only have to use a handful of your 10,000 diapers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, May 25, 2006 9:01 AM CDT
Yeah Ivy! Way to go, I hope the good diapers continue! I also hope you guys have a wonderful time!
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, May 25, 2006 7:12 AM CDT
Knocking on wood, crossing fingers, searching feverishly for a four leaf clover, and of course praying that this is the beginning of the end of whatever nasty thing has had Ivy under the weather. I hope you enjoy your time away, you all deserve a nice break!
Edie <eross411@yahoo.com>
- Thursday, May 25, 2006 6:55 AM CDT
Glad to hear that Ivy is doing better. We hope you have a great time at Camp! Getting away and having fun is so important. Love to you all.
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Wednesday, May 24, 2006 11:05 AM CDT
Hi Allyson,
I am still checking in on you guys! I so hope you are dealing with a virus now - one that Ivy will fight quickly! Hang in there...let's of thoughts for a quick recovery.
Jen <jldare@msn.com>
Charleston, SC - Wednesday, May 24, 2006 8:02 AM CDT
We've got our fingers crossed that it is a stubborn virus and you'll be off to camp this weekend! Much love, Jessica, Stefano and Nico
Jessica Tomlinson
- Tuesday, May 23, 2006 7:22 PM CDT
We hope that Ivy is feeling better soon and that we see you at Camp Okizu!
Love,
The Clark Family
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
alameda, CA - Tuesday, May 23, 2006 6:05 PM CDT
Hi Ivy and Peter,
We are sorry to hear about this new development with Ivy.
You are in our thoughts and heart and I am wishing that it clears up quickly and you return to the dull times.
Eva and Neal
Eva <evalinda@skillware.com>
- Monday, May 22, 2006 4:54 PM CDT
My prayers for Ivy never stop. She is a light in this world. Her precious blue-eyed gaze stops me in my tracks. Allyson and Peter, you know I send you all my strength and undaunted belief in happy endings.
Auntie Beth <schoenbrgr@aol.com>
- Sunday, May 21, 2006 8:35 PM CDT
It's funny to be hoping Ivy has a virus! But we certainly get it that it's better than the alternative. So prayers are continunous, but now focused on drying up the loose stools and her skin glowing with health.
Lots of love,
Caroline, Randy and Sarah
- Friday, May 19, 2006 7:53 PM CDT
Ally and Pete: so sorry there's some mystery right now to Ivy not feeling well. She really does seem down today but she did lots of cuddling and story books,paced her self and she said "eggs" very clearly over the poached ones in her bowl which she ate along with a huge bottle. She does know what to do! Went to sleep in my arm and in bed now for three whole hours. May healing sleep strengthen her. We'll get through this one, too, dears. You are in my thoughts always. Imagine, the alphabet! Jasper delighted in Ivy counting the other day and bragged to all, "Listen, she's counting!One...two.. tee..fi." So proud of little sister. You sure have smart kids! Love, Grammie who has no objectivity of course.
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Friday, May 19, 2006 5:58 PM CDT
Saying continued prayers for sweet Ivy.
Tracy (tjly)
- Friday, May 19, 2006 7:04 AM CDT
Okay, back to the boring updates please! Sending many prayers that this is just some nasty little virus that has caught up with Ivy, and that it will be moving along soon. She will be in my thoughts and prayers.
Edie <eross411@yahoo.com>
- Friday, May 19, 2006 2:22 AM CDT
We will keep sweet Ivy in our prayers and hope the diarrhea is just something benign. We'll be heading to the histio meeting in Cleveland then the following week back to Stanford (all in July) but might see if you can catch up earlier than that... Lots of hugs to you all!
Pam, Tom, Devin & Patrick <dtppsanger@comcast.net>
Folsom, CA USA - Friday, May 19, 2006 2:05 AM CDT
so sorry to hear of the diarrhea symptoms--when will the test results be back?--hope it is just a virus--frustrating and worrisome not to know how to read symptoms--will you go to camp this week-end or next? Our "prayers" are with you as you deal with this latest worry. All lour love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, May 18, 2006 11:55 PM CDT
HAPPY MOTHERS DAY
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
- Saturday, May 13, 2006 10:37 PM CDT
Happy Mother's Day to you too. Keep these boring updates coming, they are the "best" kind of boring!
Edie <eross411@yahoo.com>
- Friday, May 12, 2006 9:29 PM CDT
Happy Mothers Day! Love the new pictures!
Caroline, Randy and Sarah
- Friday, May 12, 2006 7:04 PM CDT
What cute kids!!! Thanks for the photos.
So glad you had a wonderful trip. Sorry our visits didn't overlap, though. NC is a lot different than Pittsburgh in April, uh?
Hugs,
Susan
Pittsburgh, pa USA - Wednesday, May 3, 2006 12:12 AM CDT
Hey Ivy,
Just checking in to see how you are doing. Glad your mom had fun in her trip. I am thinking of you.
--Vandy
Sriya's mom.
www.caringbridge.com/ca/sriya
Vandana Durga <vandana_durga@yahoo.com>
San Ramon, CA USA - Tuesday, May 2, 2006 1:28 AM CDT
HAve a good week...
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
- Monday, May 1, 2006 9:23 PM CDT
She is looking so grown and big!! Glad to hear nothing!!!
Kelly <kel_hayes@yahoo.com>
Chicago, IL - Monday, May 1, 2006 2:06 PM CDT
So good to see all of you on Easter. Boring reports are so welcome. Boring, boring, boring. Good! Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, April 28, 2006 9:02 PM CDT
Love the boring reports. Glad you had a great weekend. Give Ivy some hugs....
JoAnn <joannwhite@outtech.com>
Mpls, Mn - Friday, April 28, 2006 10:11 AM CDT
I love these boring updates! I'm so glad you had such a nice visit with your girlfriends. How great that Ivy doesn't have to see a doc every week now - what wonderful progress!! Cute pictures, and I don't blame Ivy one bit, I'm not that crazy about clams either!
Edie <eross411@yahoo.com>
- Thursday, April 27, 2006 9:32 PM CDT
Aly
Hope you had a great weekend with the girls! Much deserved!!
You have such a great family that I am sure the kids and Pet were well supported.
Eva <Evalinda@skillware.com>
- Tuesday, April 25, 2006 1:49 PM CDT
Its so good to read positive updates on sweet Ivy! Hope you had a great time at your girls' weekend!
Tracy (tjly)
- Monday, April 24, 2006 1:50 PM CDT
Hi Allyson - It's so great to read your updates and see how normal(ish) your life has been for the past weeks. Hopefully it will be smooth sailing from here on out. Have a great trip and we'll talk soon.
Love, Jill
Jill Donaldson <canyeshna@hotmail.com>
- Friday, April 21, 2006 1:05 PM CDT
HI
I HOPE YOUR FEELING WELL
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
- Wednesday, April 19, 2006 11:32 PM CDT
It was so good to see you all yesterday. Ivy is so full of life. I am so pleased that Ivy is doing well. Even though she is peteit she is sure constantly on the go. Was great to see how well all the cousins play together.
We are blessed to be in this family.
Eva and Neal
Eva <evalinda@skillware.com>
- Monday, April 17, 2006 7:13 PM CDT
Hello just checking in on you guys its been awhile, I see that the weight gain is still an issue. I gave Alexander pediasure a couple times a day and it held his weight well and even gained a bit. Pediasure is like boost but for children and is packed full of calories and has appealing flavors for them. Sometimes I would mix it with milk because its a bit thick. Hope all is well God Bless
Amanda Hooks
Amanda <amandahooks8@hotmail.com>
Kittanning, pa usa - Monday, April 17, 2006 3:59 PM CDT
best wishes and our prayers....my niece was just diagnosed with LCH and we are trying to learn as much as we can....it is wonderful to hear that your story sounds positive...wishing you all the best.
Marita thomson
EG, PA USA - Monday, April 17, 2006 11:29 AM CDT
Happy journey, happy eating and putting on weight and many smiles! Love,
Caroline, Randy and Sarah
- Thursday, April 13, 2006 11:56 PM CDT
Yay again! So glad to hear how well things are going! Have a great trip, and enjoy the holidays!
Love to all of you!
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Thursday, April 13, 2006 7:22 PM CDT
Yay! So glad things are going well. Have a great trip. Happy Passover and Easter to you and your family!
Susan
Pittsburgh, PA USA - Thursday, April 13, 2006 1:13 PM CDT
Such great news! Can't wait to see you all and to watch Nico and Ivy play together!
Jessica
- Wednesday, April 12, 2006 11:13 PM CDT
Stable is good! Hope you all have a nice trip and a wonderful holiday.
Edie <eross411@yahoo.com>
- Wednesday, April 12, 2006 10:27 PM CDT
Great news - hope your trip this weekend was fun!!! That pic on the front is SO cute - she is getting so big!!!
Kelly <kel_hayes@yahoo.com>
Chicago, IL - Monday, April 10, 2006 3:04 PM CDT
Yabadabadooo! It is indeed great to see Ivy looking so "grown up", like a regular toddler. Still picturing her as an older child, as a teen, as a healthy happy adult! We love you!
Caroline, Randy and Sarah
- Sunday, April 9, 2006 12:37 AM CDT
Was delighted to have a surprise visit from Grammie and Ivy this last Monday. Ivy is so grown up and precocious (sp)and she looks so much like Jasper now that her prednisone cheeks have gone away! One would never know from watching her that there were any health issues at all. Hope her appetite will increase when the TNP is stopped. It's been so good to have so many good reports in a row. You so deserve the calm. Have a great time in Monterey--we look forward to seeing all of you soon. Love, Auntie Sara and Uncle David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Saturday, April 8, 2006 9:31 PM CDT
Hope you get to enjoy some of the time in Monterey. Loved pictures. She's sooo adorable and that smile, is just soooo contagious! Good Report. I like those! Thanks for taking the time to update! :)
JoAnn <joannwhite@outtech.com>
MPLS, MN USA - Saturday, April 8, 2006 9:19 AM CDT
Great to hear that things are going so well! Have a wonderful time in Monterey, and maybe we can make some plans to hang out again soon...
Jen Gripman
El Cerrito, CA - Friday, April 7, 2006 7:34 PM CDT
How exciting to read such a great report on Miss Ivy! I'm so happy that you'll be able to leave the TPN behind you. Yay!!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, April 7, 2006 9:26 AM CDT
Yay for another good report (and I'm knocking wood for you too, hey, it can't hurt!)!! I love the new pictures, her little ponytails are just too cute!
Edie <eross411@yahoo.com>
- Thursday, April 6, 2006 7:54 PM CDT
Hello Allyson, Ivy and family. It's Aidan's mom. I'm sorry I have been a little behind on keeping myself updated with you all. It sounds like things are going well for everyone. I'm glad to hear that Ivy is handling treatments well. Aidan just had some scans a few weeks ago and we found out that he is healing! We were so excited, but a little reserved, I guess I read too many stories. Anyways, keep fighting! caringbridge.org/ks/aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Gretna, Ne - Monday, April 3, 2006 11:20 PM CDT
Allyson, you mentioned a Dr Chang. would this perhaps be a female Dr? first name Wendy?? My daughter, Ann was diagnosed with multi-system LCH, January '05. her Onc was Dr Wendy Tchang. Dr Tchang has since had a baby boy(last May) and just as she was getting ready to come back from maternity leave, she moved to California. I thought this would be quite a coincidence if it was the same Dr. Chang (Tchang). Well good luck & God Bless..... You are in our thoughts & prayers.
Grace <grace31marshall@yahoo.com>
Salt Lake City, UT USA - Sunday, April 2, 2006 8:12 PM CDT
Just checking in. WOW! A year? Many, Many Hugs! I'm glad to hear the dr is happy with Ivy's weight gain, and how fun that she's acting like a typical 2 year old. :) She can say Children's Hospital...wow! That's an accomplishment...Becca can barely say "Hi"!
Thanks for the update!
JoAnn <joannwhite@outtech.com>
MPLS, MN - Sunday, April 2, 2006 6:37 PM CDT
Allyson, the end of this week's entry brought tears to my eyes. I can't imagine all that you've been through in the last year, but I do know that you've handled with grace and courage and remarkable strength of spirit. I hope that in another year from now, LCH, chemo, clinic and hospitals will be only a memory for you guys.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, March 31, 2006 9:40 AM CST
I am so glad you get to taper!!!! I bet you guys will have a lot of fun at camp, I am excited for you! Congrats on Ivy's successful weight gain! Glad to see she is doing well with the treatment!
Valerie <val_ea@yahoo.com>
London, OH - Friday, March 31, 2006 6:38 AM CST
Wow, what a wild ride! Like everyone, we're ecstatic that Ivy is gaining weight, and all the other good signs. You are such a family of troopers! Prayers for continuing and accelerating progress, decreasing need for interventions and lots of playing with cat and brother. Yay for new words, and even for fits of asserting 2 y.o. autonomy.
Caroline, Randy and Sarah
- Thursday, March 30, 2006 11:09 PM CST
So happy to hear that Ivy continues to do well. How sweet it must be to hear her talking, and aren't those giggles shared between siblings just the best? She continues to be in my prayers.
Edie <eross411@yahoo.com>
- Thursday, March 30, 2006 8:26 PM CST
We are so pleased to know Ivy's great progress. We too will be at Camp Okizu's Family Camp on Memorial Weekend. (That is if Dillon is able, we are very hopeful!) We will be looking for you guys! See you then...
Love, The Clark Family
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
Alameda , CA - Thursday, March 30, 2006 6:37 PM CST
Just checking in to say hello. Glad to hear the weight is finally on its way up!
Tracy Eckhardt and Christopher <teckhardt@sympatico.ca>
Kitchener, ON Canada - Wednesday, March 29, 2006 8:33 AM CST
So glad Ivy is doing well - I hope her weight continues its climb!! You are definitely a great mom and a strong family, and I really admire you for that - Ivy is lucky to have you!!!!
Kelly <kel_hayes@yahoo.com>
Chicago, IL - Tuesday, March 28, 2006 7:32 PM CST
Hi Guys! So happy to hear how well Ivy is doing, and 20lbs wow! Sounds like you had a great visit with your friends too!
Just wanted to say Hi and let you know I'm checking in with you and thinking of you always!
Love, Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Monday, March 27, 2006 10:59 AM CST
Glad to read the good news!
Carol (from dec 2001 group)
- Monday, March 27, 2006 9:54 AM CST
Yay Ivy! I hope she continues to gain weight :)
Mia <mia5683@hotmail.com>
- Saturday, March 25, 2006 9:09 AM CST
WTG Ivy! Glad to read such a great post!
joann <joannwhite@outtech.com>
- Friday, March 24, 2006 4:36 PM CST
Aha! So apparently my diet *is* working...I'm losing and Ivy is gaining! :) Glad to hear she's doing well and praying for continued improvement for her!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, March 24, 2006 12:18 AM CST
Yay Ivy for topping 20lbs!
Glad you had fun with Carol and the girls.
Love all the happy posts :)
Susan
Pittsburgh, PA USA - Thursday, March 23, 2006 7:40 PM CST
It's so great to hear that Ivy is doing so well! Ivy is such a little cutie-pie, all 20 pounds of her!!
Love,
Diane Clark
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
Alameda, CA - Thursday, March 23, 2006 7:01 PM CST
I am so glad to hear that Ivy continues to do well and improve. We will keep praying for her and all of our children with LCH.
Donna, Erin's mom (www.caringbridge.org/visit/erinnewton) <donnan@bellsouth.net>
Gardendale, AL USA - Tuesday, March 21, 2006 4:43 PM CST
What a difference a year makes indeed! Continued prayers for Ivy as she steadily improves.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Tuesday, March 21, 2006 12:10 AM CST
I'm glad it's March 2006 for you too. What a year you've had....
Glad to hear the wheezng has stopped!
Looking forward to another great report!
JoAnn <joannwhite@outtech.com>
Minneapolis, mn - Tuesday, March 21, 2006 2:39 AM CST
It was such a pleasure to see Ivy thriving and exploring our house Sunday. She is so secure. She went right into every room on her own and checked it out. She is certainly a sweetheart. You guys have the greatest kids! You're doing a terrific job raising them to be their own person, which they clearly are. Jaspar is an enchanted child. Oh, it was lovely seeing you parents too.
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, ca USA - Monday, March 20, 2006 8:10 PM CST
Wow, what a difference a year can make! I hope your sweet Ivy continues to improve and thrive. Sending continued prayers & good thoughts your way!
Edie <eross411@yahoo.com>
- Thursday, March 16, 2006 8:27 PM CST
I hope it's been another unevenful, but normal, fun week at your house. Keeping you all in our thoughts, checking in every week. Sending love & songs!
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Wednesday, March 15, 2006 12:14 AM CST
So glad to read things are going well. I love the picture of Ivy. She looks terrific. Sending positive thoughts your way!
Larry Best <larrybest@gmail.com >
Alameda , CA - Sunday, March 12, 2006 11:18 PM CST
Of course I see you guys all the time, but I check the website all the time too. It's a touchstone for me. I love to read the entries of people I don't even know who are praying and visioning for our Ivy. The human family. Thank goodness for every one of you. One of my favorite of Ivy's words is "cheese" which you can pronounce almost as endearingly as she does if you bite down and close your teeth together and say "cheese" with a wide smile but without opening your jaw, with the sound coming out along your cheeks. That should keep you busy for a while. Love,
Auntie Beth <schoenbrgr@aol.com>
Oakland, - Sunday, March 12, 2006 7:42 PM CST
Normal is good! Uneventful is too. Her development despite the physical challenges is phenomenal. What a cutie. All our love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, March 10, 2006 7:31 PM CST
Well, uneventful is often good news, right? Prayers, of course, constantly, and mind's eye pictures of a thriving, growing Ivy coming atcha. Come to think, she's aptly named: ivy has small leaves but it is persistent in its growth. Much love,
Caroline, Randy and Sarah
- Thursday, March 9, 2006 8:48 PM CST
Well, I seem to be gaining all the weight that Ivy is not. I'm on a diet now, so maybe that will be good news for her. :)
Seriously, I'm sorry she's not having a good week. It must be unnerving to not be able to get her to eat. I'm impressed by what an independent and loving little girl she is growing up to be. I know that the folks at the clinic are honored to be able to see her grow up. Thank you for sharing so much of her and of yourselves with us!
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, March 8, 2006 11:44 AM CST
Hello, Alexander Hooks mom here, I had the same problem with Alexanders weight but didn't get TPN. Up until the transplant he ate very little, bites was what we got into him and that was a fight. What worked for us was Pediasure it is packed full of good stuff and it helped keep his weight stable and every now and then he would gain a pound or so. He just now hit 22pds and he'll be two in May. He's still our little shorty and still looks like he's a year old but now he is finally starting to grow more. Good luck with everything and hope things take a turn for the better!
Amanda Hooks
amanda hooks <amandahooks8@hotmail.com>
kittanning, pa - Tuesday, March 7, 2006 10:40 AM CST
Hi-- I am so sorry to hear Ivy is not doing well, but please try to hang in there. I really think you are an incredibly strong parents, and Ivy is so lucky to have you. We hope she will take a turn for the better and soon!
Ilana <ilananodelman@yahoo.com>
Baltimore, MD - Monday, March 6, 2006 9:06 PM CST
Just checking in. Adding more prayers and pt for Ivy.
JoAnn <joannwhite@outtech.com>
Minneapolis, mn - Monday, March 6, 2006 2:39 PM CST
sorry to hear Ivy didn't gain weight this week--maybe her appetite is even more down because of the cold? We are out here and do care and think of you all the time--all we really want is for Ivy to be ok--we love all of you so much. Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, March 3, 2006 4:43 PM CST
Hang in there...Ivy really is growing up...she's, as Hadley would say, such a beauty queen.
Just wanted you to know I was checking in on you. =)
with love and Hope
Hadleys Mama
www.caringbridge.org/ca/hadleyfox
angela <hadleysmama@yahoo.com>
alameda, ca usa - Thursday, March 2, 2006 9:58 PM CST
So sorry you hit a rough patch here again, but hang in there. Ivy will get better and she is so independent and adorable,just focus on that life spirit in her and she'll do the rest. We're here for you! Hope you feel less overwhelmed by this soon. Love Jenifer,Mom, Grammie
Jenifer Morris Schoenberger <JMSchoenberger@ aol.com>
Oakland, Ca USA - Thursday, March 2, 2006 6:48 PM CST
What a beauty! So pleased to hear Ivy is doing well, I'll continue to hope she gets better each day. She is lucky to have such a special boy for a brother. I guess her parents are doing something right! love your NH friend (Lindsay's mom)
jill mcalpine <jillmcalpine@adelphia.net>
- Saturday, February 25, 2006 9:11 PM CST
It's so wonderful to read good news! Our hearts are bursting!
Caroline, Randy and Sarah
- Thursday, February 23, 2006 10:30 PM CST
Way to go Ivy - keep climbing up that growth chart!
Edie <eross411@yahoo.com>
- Thursday, February 23, 2006 7:58 PM CST
Just wanted to let you guys know that I am thinking of you and it's so great to hear that things have been going so well!
In my thoughts as always,
Jennifer Dare <jldare@msn.com>
Charleston, SC - Wednesday, February 22, 2006 7:21 AM CST
Just sending our best wishes your way. You are in our prayers daily.
Donna Johnson
Katy, TX USA - Monday, February 20, 2006 2:35 PM CST
I hadn't checked in for a week or two (except for running into Jenifer and Ed outside King Yen, who said Ivy was doing great) so I was overjoyed to read the most recent posts - YIPPEE!!! yahoo! I am so happy for everyone. Happy spring!
Sarah Weld <sarah.weld@sbcglobal.net>
Oakland, CA - Wednesday, February 15, 2006 7:48 PM CST
http://www.GlitterMaker.com/ - Glitter Graphics
www.caringbridge.org/ca/hadleyfox
Angela <HadleysMama@yahoo.com>
- Tuesday, February 14, 2006 0:04 AM CST
So glad to hear about the good visit. We will keep praying that Ivy will continue to gain weight and improve daily. Hang in there!
Donna, Erin's mom (www.caringbridge.org/visit/erinnewton) <donnan@bellsouth.net>
Gardendale, AL USA - Sunday, February 12, 2006 2:31 PM CST
I hope the future holds more clinic visits like this one - uneventful. Here's to spring, and the glass purple heart - may you be adding it to Ivy's bead collection soon.
Edie <eross411@yahoo.com>
- Saturday, February 11, 2006 8:28 PM CST
http://www.GlitterMaker.com/ - Glitter Graphics
www.caringbridge.org/ca/hadleyfox
Angela <HadleysMama@yahoo.com>
Alameda, Ca - Friday, February 10, 2006 11:33 PM CST
Saw Ivy and Jasper on Wednesday--highlight of the week. They are both captivating. Ivy is too cute and appeared so well. What a relief--may all continue in this direction forever and ever. You all so deserve to have her well and for her to stay well. Spring brings hope and hope springs eternal--some relief after the winter of this past year. Much love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, February 10, 2006 3:55 PM CST
We are so very happy to hear good news about beautiful Ivy. Your update was so informative and right on the mark. You are always in our prayers. Ivy, we are your cheering section, as are all the other histio families out there. Go, Ivy, Go! May good health and God's blessings be yours always.
Donna Johnson
- Wednesday, February 8, 2006 5:13 PM CST
What fabulous news! We are so thrilled and relieved. Hugs all around!!
Becky and Ben <rebecca_ellin@yahoo.com>
Beaufort, NC - Monday, February 6, 2006 12:24 AM CST
We just learned of Ivy's condition through Sara's New Years Letter. I sit here in a state of shock having read ALL of your journal entries Allyson. It sounds like the most recent news is good and we are so grateful that a year from the diagnosis things are feeling smoother (at least for today). Our thoughts, prayers, and love are with you and your darling Ivy. Please call on us for support of ANY kind. much love, Sarah Whitmer and John Tonkyn
Sarah Whitmer <jsna@sbcglobal.net>
Albany, CA USA - Monday, February 6, 2006 11:31 AM CST
We are so pleased that Ivy is doing well. She and all of you are always in our thoughts and hearts. So pleased test was negative. We keep our fingers crossed so the good fortune will continue.
Big hug to all,
eva and neal <evalinda@skillware.com>
san francisco , CA - Saturday, February 4, 2006 4:59 PM CST
So so glad to hear Ivy's scan was clear and to get first hand descriptions of her actions from Grammie a few days ago--hope to see her to-morrow. It has been an unbelieveable year for all of you and Christmas time was so scary--so glad and relieved that she is doing well now. Denial and hope may be the same thing but if so, we are all experiencing it--and will keep doing so. P. S. I had an Irish friend in Boston Children's Hospital when I was Ivy's age--she was the night cleaning lady and must have talked and played with me (in those days parents were allowed very limited visiting hours and I was there for weeks)--it may have pulled me through. I know I still have a very soft spot in my heart for a brogue(?) and can still imitate it when I am feeling uninhibited. May all the Children's Hospitals cure and heal their little charges. Much love and looking forward to seeing you. Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, February 2, 2006 11:31 PM CST
We're so very happy for you all! We hope Ivy continues to move up in her standard deviations :-)
We'll think of you as we pass through Berkeley tomorrow on our way to Stanford. Call or email when you can...we're working on a cool project that you might be interested in!
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Thursday, February 2, 2006 4:28 PM CST
That's such good news! Many hugs and prayers!
Tracy (tjly)
- Thursday, February 2, 2006 2:05 PM CST
I am so happy for you. I wish I could hug her. Congratulations, thats the most or the only wonderful news that I have heard in months.
Give her a big hug from us.
--Vandana & Raj
www.caringbridge.com/ca/sriya
Vandana Durga <vandana_durga@yahoo.com>
San Ramon, CA USA - Tuesday, January 31, 2006 5:48 PM CST
I wish I could send a song through your computer screen. Words alone aren't joyful enough. All my love to all of you,
Aunt Beth <schoenbrgr@aol.com>
Oakland, CA - Tuesday, January 31, 2006 11:55 AM CST
I am thanking God right along with you! That beautiful face, How could I ever think I wasn't here before? I think I lost my mind June 30th. Peace & good health from your NH friends Jill Rob, Molly & especially Lindsay Kate
jill mcalpine <jillmcalpine@adelphia.net>
windham, nh usa - Monday, January 30, 2006 7:36 PM CST
Wonderful! Best news EVER. You will all continue to be in my thoughts.
Kris (brynsmommy)
- Monday, January 30, 2006 6:04 PM CST
What Great News! Hugs all around! Love to you and the Regent St. Support group!
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Monday, January 30, 2006 1:17 PM CST
We are SO happy to hear this wonderful news! Hugs to all of you!
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Sunday, January 29, 2006 10:38 PM CST
I'm so relieved to hear this WONDERFUL news!
Shayne <mom2pete@hotmail.com>
Houston, TX - Sunday, January 29, 2006 8:53 PM CST
Just want to say yey! I'm still reading (and praying for you all the time). My best, Lenore
Lenore Cowen <cowen@cs.tufts.edu>
Cambridge, MA USA - Sunday, January 29, 2006 2:52 PM CST
YAYYYYYYYYYYYYYYYYY!!!!!!!!!!!!
Caroline, Randy and Sarah
- Sunday, January 29, 2006 1:01 PM CST
Finally, some good news!
Congrats!
Don Johnson <DonJohnson@NotTheActor.com>
- Saturday, January 28, 2006 7:51 PM CST
We are deighted with the news! Hope to see you all soon! Love Jessica, Stefano and Nico
Jessica Tomlinson
- Saturday, January 28, 2006 3:05 PM CST
YIPPEE!! Such great news. Glad you'll be able to enjoy your weekend!
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Saturday, January 28, 2006 11:42 AM CST
Woo Hoo!!! Must be the week for good news! =) We're silly-brating in our house too! Yay!!!
www.caringbridge.org/ca/hadleyfox
angela fox <foxfamilyfive@sbcglobal.net>
- Saturday, January 28, 2006 0:02 AM CST
Yaaaaay!
I've been checking in all day. 'Glad I did it one last time before bed :)
Sus
Pittsburgh, PA USA - Friday, January 27, 2006 8:31 PM CST
What WONDERFUL news!!! How relieved you must be. We can relate as we got very good news this week too for our little Dill Pickle. Have a great weekend!
Love,
Diane
Diane Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
Alameda, CA - Friday, January 27, 2006 8:01 PM CST
Ivy's healing is so terrific and huge, not petite at all!. Ivy once again is back scooting up the stairs faster than most of us can go! Ivy and I laughted alot yesterday with brother Jasper, cousin Emma and Auntie Beth. Holding her and you in thoughts and prayers, today especially. Love, Jenifer-Grammie-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, Ca USA - Thursday, January 26, 2006 4:53 PM CST
Ivy, Allyson, Pete, and Jasper - Thinking great thoughts for a clear scan today! much love, sarah
Sarah Borchelt <sarah_borchelt@yahoo.com>
Beaufort, NC - Thursday, January 26, 2006 2:58 PM CST
Yay for a good clinic appointment! Thinking of Ivy today and hoping that she is able to have the CT scan and that all is clear. Sending prayers to the families of Brady and Tucker - my heart breaks for them.
Edie <eross411@yahoo.com>
- Thursday, January 26, 2006 9:33 AM CST
Praying for a clean scan for Ivy. My heart is broken for the two families who lost their precious little boys.
Tracy (tjly)
- Thursday, January 26, 2006 6:17 AM CST
Prayers and all-around love coming atcha. May tomorrow be smooth and bring good news.
Caroline, Randy and Sarah
- Wednesday, January 25, 2006 10:33 PM CST
I hope tomorrow's scan goes and goes well!
Hugs, Caryn
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Wednesday, January 25, 2006 7:28 PM CST
Just checking in. Glad to know that Ivy's weight is picking up. Hopefully they will taper the TPN as well.
With lots of love and regards,
Vandana
www.caringbridge.com/ca/sriya
Vandana Durga <vandana_durga@yahoo.com>
San Ramon, CA USA - Wednesday, January 25, 2006 3:45 PM CST
Hello,
I found your site from Histo.org My son also has LCH he was diagnoised when he was 4 and he is now 8. He doing pretty good but complaining of some back pain. i just wanted to let you know your in my thoughts and prayers and i hope she gets better really soon Love,
Tracy and Lucas www.caringbridge.org/il/lucas <crazyw4k1@comcast.net>
Bridgeview, IL USA - Wednesday, January 25, 2006 2:56 PM CST
Your family is in my prayers daily. Sending you lots of good wishes and love. Stay strong.
Donna Johnson <DonJohnson@nottheactor.com>
Katy, TX USA - Wednesday, January 25, 2006 1:36 PM CST
I don't remember where I saw your site listed but I just finished reading your entire journal. You have been on a real rollercoaster! Ivy is a beautiful girl.My 4yr old grandaughter was diagnosed with LCH in August 2005(www.caringbridge.org/visit/erinnewton) so I am trying to learn all I can about the disease and the stories of all the other kids. Your family will be in our thoughts and prayers along with all the other kids dealing with these horrible diseases.
Janice Franklin <RONFRANK@BELLSOUTH.NET>
Gardendale, Al USA - Sunday, January 22, 2006 2:43 AM CST
So glad to read that things are more stable. Hope the potato leek soup is yummy and enjoyed by all.
Larry Best <lbest76711@aol.com>
Alameda , CA - Saturday, January 21, 2006 2:12 AM CST
Happy to hear this news. love, randy
Randy <ci2rm@cox.net>
Eureka, ca usa - Thursday, January 19, 2006 10:25 PM CST
Just checking in to see how things are going...please update or drop us a line when you can (although we know you are probably super busy right now!). Ivy remains in our thoughts and prayers...we hope she is feeling better and the anemia is resolved very soon.
Sending much love,
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Thursday, January 19, 2006 4:38 PM CST
Just checking in on you and wanted you to know that you are all still in our thoughts and prayers. I hope Ivy is doing better.
Donna, Erin's mom (www.caringbridge.org/visit/erinnewton) - LCH 8/05 <donnan@bellsouth.net>
Gardendale, AL USA - Thursday, January 19, 2006 3:59 PM CST
I'm checking in and getting caught up on the news. Sorry that things have been so stressful for your family and poor little Ivy. Here's to praying that 2006 will bring you some reprieve.
Love Carol, Taya, & Anya
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Thursday, January 19, 2006 11:50 AM CST
You and your family are all in my thoughts. I wish only the best for you all.
Kris (brynsmommy)
- Thursday, January 19, 2006 9:56 AM CST
Sorry Ivy has needed transfusions but so glad to hear that she is doing better otherwise--we check in often and think of you daily, hoping things will continue to improve. Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, January 19, 2006 2:15 AM CST
I just want you guys to know that I think of you so often and always hope for the best for little Ivy. I hope that this year brings you all of the peace of mind and health that you deserve!
Jennifer <jldare@msn.com>
Charleston, SC - Wednesday, January 18, 2006 3:28 PM CST
Just stopping in to say hello. Each time I come here, its like I'm reading our own story. I wish you all the best. I understand all your worries fears and so wish this journey didn't need to be so complicated! Here's hoping that 2006 brings more health, stability and smiles!
Tracy Eckhardt and Christopher <teckhardt@sympatico.ca>
Kitchener, ON Canada - Wednesday, January 18, 2006 10:00 AM CST
Hi Guys,
Yes, we are pretty obbsessive regarding your family. We think of you and hope for improvement in your situation every day. We are aware of the strain you all are under, and the strength that you muster to cope with this challenge.
love to all,
Dale and Norman
Dale Greene <dale@puzzlering.net>
Albany, CA - Tuesday, January 17, 2006 1:32 PM CST
Hello everyone, it's Aidan's mom, just checking in to see how everything is going. It sounds like you are playing the histiocytosis game that is so frustrating. It is so unpredictable, it's enough to drive you crazy. I hope things start to turn around for you guys and you can get things sorted out and get some answers. We are still doing treatment, it will be two years in April and it seems like we have been doing this forever. It was only supposed to be 6 months. Hang in there and I will keep Ivy in my prayers.
Kristine Hagerty <hagertykristine@yahoo.com; caringbridge.org/ks/aidan>
Gretna, NE - Monday, January 16, 2006 8:49 PM CST
Hoping there are no ill effects from the transfusion. I'm glad Ivy is feeling better - praying that the spots are nothing...
Kelly <kel_hayes@yahoo.com>
- Monday, January 16, 2006 9:56 AM CST
Well, I think that maybe it's a combination of your two ideas-- a lot of caring obsessed people out there, like me, who are checking in on you guys all the time! Glad to hear that Ivy is feeling more like herself. Lots of love from us...
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Sunday, January 15, 2006 1:38 PM CST
We hope and pray that Ivy continues to feel better! Give us a call when you have a free minute (although we know there probably aren't many!)...we'd love to catch up with you :-)
Sending continued good thoughts and much love,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Saturday, January 14, 2006 11:37 PM CST
Modern technology! WOW
This is your great uncle.I'm your grandmothers brother. Uncle Frank (Howie or Dave)from Michigan. So happy that Ivy is showing improvement. I have placed her on the prayer chain at my parish.
Rev. Frank Davenport <davenportfh@chartermi.net>
Essexville, MI USA - Friday, January 13, 2006 9:53 PM CST
I'm happy to hear that Ivy is laughing and smiling again. I hope she continues to improve! (And BTW - I think you are an amazing manager of this complicated medical case - Ivy is lucky to have you!)
Edie <eross411@yahoo.com>
- Thursday, January 12, 2006 10:09 PM CST
Hooray for a visit instead of an admission!
And, btw, I might be one of the obsessive individuals. You know I'm a fretter ;) Oh, and that's the "old-fashioned" way of making a smiley, in case you've forgotten life before smilies and emoticons, lol.
Glad Ivy's doing better this week. And great that Jack has settled into the family so quickly.
Hugs all around,
Susan <susaneswift@hotmail.com>
Pittsburgh, PA USA - Thursday, January 12, 2006 6:42 PM CST
Last night, Emma said she is really relieved that Ivy's well enough to smile and laugh again. Amen to that! For us, there's nothing quite as wonderful as the sound of Ivy's laugh... no matter what fools we make of ourselves in trying to make it happen! Much love,
Beth, Harvey and Emma <schoenbrgr@aol.com>
Oakland, - Thursday, January 12, 2006 11:25 AM CST
Hi Guys,
So glad your home again. The pictures are beautiful. Hope Ivy continous to improve. You are always in our heart.
Love,
Eva and Neal
Eva <evalinda@skillware.com>
- Tuesday, January 10, 2006 7:32 PM CST
Good to hear that you guys are back home. I love that caption about your handsome redheads and I love Ivy's picture. She looks so cute.
--Vandana
www.caringbridge.com/ca/sriya
Vandana Durga <vandana_durga@yahoo.com>
San Ramon, CA USA - Tuesday, January 10, 2006 3:24 PM CST
It is great that you are back at home. I love the pic of Ivy at the piano!
Jessica Tomlinson
- Monday, January 9, 2006 11:23 AM CST
So glad you are all home. I hope Ivy continues to improve, she is such a cutie (as is her big brother!)!
Edie <eross411@yahoo.com>
- Monday, January 9, 2006 10:43 AM CST
We're so happy that you are home! Once all of this is past and Ivy is feeling well enough, maybe we can get together--it would be great to see you all! Hugs to you all...we hope things get better each day!
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Monday, January 9, 2006 0:42 AM CST
Dear Allyson, Peter, Ivy, and Jasper and the Regent Street support team,
Thinking of you guys all the time and hoping always that 2006 has got to be better than 2005. Perhaps today's gorgeous rain-washed glistening day is a positive sign.
Happy New Year!
Sarah <sarah.weld@sbcglobal.net>
Oakland, CA USA - Sunday, January 8, 2006 11:20 PM CST
What a beautiful photo of Ivy at her piano! Glad you are all home and here's hoping for a peaceful, restful week-end for you. May Ivy's tummy settle and her breathing improve. All our love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Saturday, January 7, 2006 9:25 PM CST
Beautiful pictures. Loved the new shot of Ivy on the front page, and it was nice to see the rest of you too! Your cat is gorgeous. Soooo pretty! Hang tough guys! Thinking of you as always.
JoAnn <joannwhite@outtech.com>
minneapolis, mn - Saturday, January 7, 2006 8:40 PM CST
Ally Pete Ivy Jasper & Jack!
It's great to see you! I love the photos! So glad you're back at home, with Ivy doing better. You are in my thoughts and heart constantly! I wrote earlier this week but forgot to confirm my message at the end, I won't forget tonight. Ivy and Jasper are such beautiful children! Hugs hugs hugs all around! Love to you all.
Tracy Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Saturday, January 7, 2006 8:04 PM CST
Birds in grammie's yard
Sooth napping grandkids
Their folks clear out old,
New Home of Hope,'06.
So good to taste the '06 respite granted you four and am grateful beyond words that Life goes on so well. Healing energy to you all. Ally, the photos of your redhaired boys-Jack Cat and Pete, and monster Jasper, as well as Ivy and you adoring time together and Ivy at her piano are so appreciated; capture all that we have to celebrate. Thanks and blessed be. Love, Grammie Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, Ca USA - Saturday, January 7, 2006 6:50 PM CST
Wow, what a crazy stretch it's been for you guys. I'm so glad to hear the latest good news and really hope for Ivy's continued improvement. The photos are brilliant. Our thoughts are with you, as always.
Jill Donaldson <canyeshna@hotmail.com>
- Saturday, January 7, 2006 3:07 PM CST
I hope that you are all home again and that the coming days bring some rest for everyone. Maybe Jasper would like to play with Ben sometime soon? We're thinking of you and are here if you can think of anything that might be helpful... More chicken cassoulet?
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Friday, January 6, 2006 10:44 PM CST
Allyson and Peter... well the only silver lining for us in Ivy's most recent crisis is that we're blessed to be spending a lot of quality time with precious Jasper who delights his cousin Emma (you'd never know there was a 4 year age difference) with his willingness to play all her favorite imagination games. The fort they constructed in the dining room is a sight to behold (our tables, chairs, table cloths, pillows and blankets have never had such fun)! Jasper melts his Aunt's and Uncle's hearts with his polite requests, his earnest way of expressing his ideas and, most especially, his tender hugs.
Thank goodness for Ivy's underlying strength... we're so glad she seems to be stabilizing and that you're headed home to your own beds (and devoted kitty)! You are an awesome team, juggling jobs, kids, and a supremely challenging medical situation. We hope you get some peace and stability after this most recent stint in a long series of rollercoasters! Much love,
Auntie Beth and Uncle Harvey <schoenbrgr@aol.com>
- Friday, January 6, 2006 4:43 PM CST
Sorry to hear Ivy is back in the hospital again. Glad to hear she will probably be released tomorrow. I am sure it will be nice to sleep in your own beds again.
It just has to get easier, and Ivy has to get better. I'll check in with Grandpa Ed. Perhaps Jazmine could do a playdate with Jasper.
It sounds like the cat is a comforting addition to the family, even if she makes journal entries a bit awkward.
Hang in there you guys.
Larry Best <lbest76711@aol.com>
Oakland (soon to be Alameda), CA - Friday, January 6, 2006 1:15 AM CST
Sorry to hear that Ivy's back at the hospital, but glad to hear that the albuterol is helping and that her appetite has picked up. All our thoughts are with you. Let us know if you need a hand around home while Ivy's at CHO.
Al, Lynn and Katie <alwanger@sbcglobal.net>
Kensington, CA - Thursday, January 5, 2006 11:06 PM CST
Hi Allyson and Pete,
We miss you guys and are thinking of you. We hope Ivy makes a quick recovery-- Ivy has two very wonderful parents.
Hang in there.
Love, Ilana, Greg and Isaac.
Ilana Nodelman <ilananodelman@yahoo.com>
- Thursday, January 5, 2006 8:26 PM CST
Hugs Allyson! Pray something clears in Ivy's lungs. How horrible. Keeping you in my thoughts.
JoAnn <joannwhite@outtech.com>
minneapolis, mn - Thursday, January 5, 2006 9:26 AM CST
Oh gosh, Allyson! I hope they can find an answer to her respiratory issues soon and that she'll be home by the weekend. Sending all our love!
Shayne Newell <mom2pete@hotmail.com>
Houston, TX - Thursday, January 5, 2006 9:08 AM CST
My heart dropped when I saw your post. I have been praying for continued good news for sweet Ivy. I will continue to pray for her and you. Hope you got some rest last night!
Tracy (tjly)
- Thursday, January 5, 2006 7:13 AM CST
Geez! Ally and Pete, we are up and down with you. One day alls going well and the next, back in the hospital. We admire the way you are handling it. Our best thoughts go out to all of you.
David DeZerega <dldez@cs.com>
Koloa, HI USA - Thursday, January 5, 2006 1:04 AM CST
What a rollercoaster you guys are on! I'm so sorry that Ivy has taken a turn for the worse. As always she (and you) will be in my thoughts...
Edie <eross411@yahoo.com>
- Thursday, January 5, 2006 0:45 AM CST
Oh-That sounds so much better than the last time I checked in. Yipee for Ivy, and family! I hope she starts gaining soon, and you can stop doing the TPN, is that how they will gage when to stop it....sounds dreadful, just like everything else with LCH. Hugs to you!
JoAnn <joannwhite@outtech.com>
MINNEAPOLIS!, MN - Wednesday, January 4, 2006 12:46 AM CST
We are finally in a place were I can check this site more often.
We are so pleased to read that IVY is doing better. I was just recently on pregnosone for a poison oak and I was amazed how the drug made feel really cranky!!! I imagen it has to contribute to Ivy's mood too!!
We wish you all a year full of good HEALTH for Ivy and JOY PEACE and SERENITY for the whole family.
much love,
Eva and Neal
eva <evalinda@skillware.com>
- Wednesday, January 4, 2006 12:12 AM CST
Sounds encouraging! Sending wishes & prayers for Ivy's continued improvement.
Edie <eross411@yahoo.com>
- Wednesday, January 4, 2006 6:58 AM CST
Allyson - I'm glad to see that Ivy is better. I've followed her progress for sometime but never signed her website. You and Ivy will continue to be in my thoughts and prayers as we battle LCH with our precious children. I hope 2006 brings much improvement and progress for all of us!
Donna, Erin's mom (www.caringbridge.org/visit/erinnewton) <donnan@bellsouth.net>
Birmingham, AL - Tuesday, January 3, 2006 10:50 PM CST
Happy New Year. Hope that this year brings a lot of happiness to all of you. I think of Ivy all the time. Glad to hear that she is doing well and hopefully her cough will get better pretty soon.
Lots of love,
Vandy & Raj
www.caringbridge.com/ca/sriya
Vandana Durga <vandana_durga@yahoo.com>
San Ramon, CA USA - Tuesday, January 3, 2006 3:59 PM CST
Happy New Year, dear friends. 2006 is a year of hope [no pun]. Let's trash 2005's trials and have a beautiful zip-6. [You did know we're living in the zips?-- as opposed to the "aughts" which was the early 1900's.--Year 2000 was 20-zip; this year 20-zip-6, etc.] Sending you my love and prayers, cmv-negative blood at the ready! Now that the winter soltice has passed, may the increasing sunlight bring Ivy up from that nasty cold and into better health! Thank you for all the updates and e-mails to keep us informed and in touch. Where your strength is coming from is of the Universal Divine; may it continue and thrive. Hope
Hope <krauskop@berkeley.edu>
- Tuesday, January 3, 2006 11:43 AM CST
What good news - and a great way to start of the new year! I hope Ivy continues to improve each day!
Tracy (tjly)
- Tuesday, January 3, 2006 5:57 AM CST
Allyson, I pray for you guys every day. I sincerely hope that 2006 brings better times for Ivy and your family. You have been through so much this year. Who can blame you for feeling overwhelmed? But I am always struck by your remarkable strength of spirit, even in the low times. Ivy is lucky to have you for a mama. Sending all my love!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, January 2, 2006 8:17 PM CST
Oh my dear family: how I want 2006 to stand for hope and the healing we all need and wish for Ivy and her family. Despite the depressing struggle and slow progress, we hope there are little moments of '06 joy and laughter as we have found together, and one to one, in 2005. Of course the medical technical equipment and nightly intravenous feeding is daunting but you and we will carry on, show up and get through this eventually, with a healthy baby and greater strength than we ever knew we had. Keep that faith. Blessing upon you as this crisis, that has lasted too long, passes. Jasper was a joy while he was with us during Ivy's hospitalization and post adjustment period. And despite it all we did slip in a family celebration-honoring family and the hope, light and giving of Christmas and Hannukah. As I hold Ivy and clean ups the vomit as well, while you two are at work, besides offering her anything she'll eat, I remind her she is held by all our loving arms, prayers and support that we and this larger community can give her. Like her Daddy, I murmur, "I know honey, I know" in empathy for all her suffering and I remind her of her Mommy's care and courage, too. Despite it all, we are so blessed with you four, and Emma, Beth and Harvey who love you so, too! Love, Grammie Jenifer and Grampa Ed
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Sunday, January 1, 2006 4:28 PM CST
I pray that your little Ivy will be feeling better very soon! If you have any questions at all, anytime, about TPN, please call us. 864-8479
Diane and Richard Clark
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
alameda, ca - Saturday, December 31, 2005 11:42 PM CST
I pray that your little Ivy will be feeling better very soon! If you have any questions at all, anytime, about TPN, please call us. 864-8479
Diane and Richard Clark
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
alameda, ca - Saturday, December 31, 2005 11:41 PM CST
Happy New Years to the bravest, most patient family I know. May 2006 be a much better year of health and peace for you. All our Love,
Aunt Beth, Uncle Harvey and Cousin Emma <schoenbrgr@aol.com>
- Saturday, December 31, 2005 9:04 PM CST
Sending continued prayers for Ivy and your family. I hope that 2006 brings nothing but good news and good health for you all.
Edie <eross411@yahoo.com>
- Saturday, December 31, 2005 4:27 PM CST
Continuing to send my prayers, and thoughts. I hope the overwhelming feeling is less today. Oh-Allyson. May 2006 be a better year, you guys sure need it. Please give Ivy a hug, and I'll pray and pray this rotovirus doesn't last long. I wish I could do something to help you....I feel so helpless.
JoAnn <joannwhite@outtech.com>
Minneapolis, MN - Saturday, December 31, 2005 3:03 PM CST
I guess my wishes that you might have some down time now that Ivy is home from the hospital were a bit premature--so sorry she is still throwing up and having diarrhea--guess the virus has to run it's course--let's hope it is not 4 more weeks--also that the current cold is brief--so sorry you can't be celebrating your new years 8th year anniversary with a lighter heart. Am sure you can master the medical equipment but I can completely relate to how overwhelming it must be at first. May something improve soon for all of you. Glad Jack is a bright spot. Much love to all of you. Sara
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Saturday, December 31, 2005 1:30 AM CST
Wanted to let you all know that I am continuing my prayers for Ivy. Thank you for keeping us updated thru caringbridge! Hopefully Ivy will be coming home from the hospital, with all the energy and vitality of the special toddler that she is!!! May 2006 bring complete healing for Ivy! Many hugs for your whole family!
Kathy (kathy_mm)
St. Louis, MO - Friday, December 30, 2005 11:05 AM CST
I'm so sorry to here you are back in the hospital. Many, many hugs. I hope Ivy is out soon, and she starts to gain soon. What an ordeal Ivy is going thru, and what you guys are dealing with. I'm constantly thinking and praying for you guys~!
JoAnn <joannwhite@outtech.com>
Minneapolis, MN - Thursday, December 29, 2005 6:02 PM CST
Thinking of all of you-glad you made it through Christmas, but never happy to see you guys in there. You are never far from my thoughts and prayers. See you on the board!
Bev
New Gloucester, ME - Thursday, December 29, 2005 12:25 AM CST
I am so sorry they had admit Ivy, but very glad to hear they have a plan! I am sending many prayers to sweet Ivy!
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, December 29, 2005 6:58 AM CST
Our thoughts are very much with you. Wishing so very much that Ivy feels better and that you can go back to having a more normal life.
with love,
Eva and Neal
eva <evalinda@skillware.com>
- Thursday, December 29, 2005 0:00 AM CST
Hi guys- Checking in from Fairfax, VA. Sorry to hear that Ivy had to enter the hospital, but we're glad things are stable and some questions are being answered. We're here until the 31st and will check in next week to see how you are all doing. Our thoughts are with you as this year ends and we begin what will, hopefully, be a new year with lots of positive turns for your sweet little girl!
Jen <jen@gripman.net>
El Cerrito (via Fairfax), CA - Wednesday, December 28, 2005 9:14 PM CST
Thinking of you and keeping my fingers crossed that Ivy can go home tomorrow!
Tracy (tjly)
- Wednesday, December 28, 2005 6:46 PM CST
Just to let you know that we continue to think of all of you everyday.
love,
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, CA - Wednesday, December 28, 2005 5:30 PM CST
Catching up on Ivy from the weekend and praying that things are improving for her...
Mary
Belmont, NC USA - Wednesday, December 28, 2005 3:33 PM CST
Dear Peter, Allyson, Jasper and Ivy,
I am a friend of Beth's and your Dad and Mom and wanted to let you know that I am keeping you in my prayers as Ivy goes through another challenge. My heart goes out to you and your whole family as I visualize you surrounded by God's love and light. I know how devastatingly hard this ordeal is and I am so sorry you are going through it. I wish you all the grace, peace and courage you can summon and then some - from all the forces at work for the good - I know they are shining upon you. With much love, Jody
Jody Parsons <jodyparsons@sbcglobal.net>
Berkeley, CA USA - Wednesday, December 28, 2005 12:46 AM CST
You don't know me .. I am a friend of Beth's . but more importantly I am a parent, a grandparent .. not so unlike you... And the path you are traveling is every parent's worst nightmare .. and while none of us can know what pain you must be feeling, yet we all are part of the human family and your pain is, afterall , all of ours..
I can see from the pictures what an absolute angel Ivy is ..she is so darling .. and precious ..
I will say a prayer for her every day .. and for you ...
and I will pray that soon she can leave the medical environment of drugs and IV's and move into a world of wellness , where you can start rebuilding her health, rebuilding her immune system and saturate her cells with life-giving nutrients..
along with all the love and care from you and your extended family.
MAy God's hand cradle her little body until she is well again.
Barbara
Barbara Lagoni <lagonihealth@comcast.net>
Oak Park, IL US - Wednesday, December 28, 2005 12:37 AM CST
Hi guys,
I hope Ivy is feeling better today. So sorry to hear of your long day at CHO. Thanks for the great card with Ivy & Jasper! Oops, I think I sent your card to the wrong address - pulled it from memory, now see I was off by one number! So much for my memory! A new kitty! Way to go Pete! "Itty" was one of Kaylee's first words. Hope he adjusts soon and purrs his way into your hearts! Thinking of you all.
Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Tuesday, December 27, 2005 11:14 AM CST
Have just checked the website and had an e-mail from Beth so we are caught up for the moment (and it is sort of moment to moment isn't it?!) Hope that one of the theories will pan out--not that asthma is what we would want for Ivy but it is better than LCH--in any case, we are glad you did not have to stay overnight in the hospital on Christmas eve and that you were able to enjoy Christmas morning with Jasper and dinner with the whole family. May Ivy soon be better and able to eat and take more interest in things around her--I'm sure she'll love the cat! As always our thoughts are with you. All our love, Auntie Sara and Uncle David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Tuesday, December 27, 2005 1:32 AM CST
Hoping that Ivy is feeling better soon, and that you get some answers. My prayers are with you...
Kelly <kel_hayes@yahoo.com>
Chicago, IL - Monday, December 26, 2005 10:41 PM CST
Dear Allyson, Peter, Jasper, and Ivy,
Thank you for sharing with all of us what you are going through with Ivy and for being so vulnerable and open. Our thoughts and prayers are with you. At synagogue when there is a special prayer for those who are ill, I always think of Ivy.
I hope you are enjoying the new cat and that she is adjusting well to her new family. What a wonderful Christmas present.
I hope you soon get to the bottom of Ivy's symptoms. The strength and love that you bring is an inspiration. May the coming new year bring healing and renewed health.
Fondly,
Larry Best, Ming, and Jazmine
Larry Best <lbest76711@aol.com>
Oakland, CA 94618 - Monday, December 26, 2005 9:41 PM CST
Sorry we've been so remiss about signing in - we usually read-and-run, and that's pretty selfish. And we do want you to know we're checking in, and thinking and praying for Ivy's improving health and the rest of the family's sanity! By the way, our bet is that the current malady is side effects, and will resolve soon. Much love,
Caroline, Randy and Sarah
Loleta, CA - Monday, December 26, 2005 1:33 PM CST
Dear Allyson, Pete, Jasper, and Ivy, I'm a friend of Beth's and just visited this website for the first time. The courage and resilience of your family defies words. Know that there are many people you've never met who are praying for Ivy's healing and for strength for your whole family to hold on through whatever arises. Your recent words, Allyson, commenting on how people have no idea when they pass you on the street about what's really going on, really struck me. You're so right. What an important reminder for us all. With love, Margaret
Margaret Trost <margarettrost@yahoo.com>
Berkeley, CA - Monday, December 26, 2005 10:56 AM CST
Dear Allyson, Pete, Jasper, Ivy, and all your close family helping you through this. I am so sorry to read about your stressful and worrisome Xmas Eve. I am praying that Ivy has just a simple run-of-the-mill virus. My daughter, Naomi, has thrown up twice today (Xmas) so I am crossing my fingers that Ivy has just had the same bad luck to catch a regular old cold and flu and season bug. My thoughts are with you. This is all horribly unjust. You guys deserve a lucky turn of events.
Sending lots of love and good luck,
Sarah Weld (friend of Beth, Harvey, and Emma)
Sarah Weld <sarah.weld@sbcglobal.net>
Oakland, CA - Sunday, December 25, 2005 11:05 PM CST
We're keeping all of you in our thoughts, and hope that last night brought rest and this morning some joy. We'll send out special love and hugs for Ivy, and hope that some of the magic of the season comes her way soon.
Al, Lynn and Katie <alwanger@sbcglobal.net>
Kensington, CA - Sunday, December 25, 2005 5:41 PM CST
I hope your family is having a great Christmas! In your home or in the hospital room (I really hope now) I'm sure Ivy and Jasper will have a great Christmas morning!
Katie <jeddi20@sbcglobal.net>
Austin, Tx USA - Sunday, December 25, 2005 9:08 AM CST
Just read your posting last night. Loving thoughts are with your perfect little family. I hope that Ivy got some relief today. She deserves delightful days. She is a delightful little girl.
love, Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, CA USA - Sunday, December 25, 2005 1:10 AM CST
Dearest Allyson, Pete, Jasper and Ivy- We are so sad tonight to read about what you are going through. Our most positive thoughts and love are with you! We leave for the east coast tomorrow morning, but we'll continue to be thinking about you, checking your updates and sending our love. Jen, Stuart and Ben
Jen Gripman <jen@gripman.net>
El Cerrito, CA - Saturday, December 24, 2005 10:53 PM CST
Praying for a Christmas miracle for precious Ivy.
Tracy (tjly)
- Saturday, December 24, 2005 6:54 PM CST
Dear Allyson, Pete, Ivy, and Jasper,
This is Robin, David, and Sadie friends of Beth/Harvey/and Emma. Beth passsed along this recent news and our thoughts and prayers are with you. We just had lunch with Ivy after the HRS winter concert and she looked beautiful, ate, and took a nap. Our family will put our spirit together with yours during this time for the strength to put one foot in front of the other and have Ivy regain her health. We'll check in with your family - Robin, Sadie, David
Robin Heller/Sadie Holzman <RobinHeller1954@hotmail.com>
oakland, Ca USA - Saturday, December 24, 2005 3:34 PM CST
Oh-Allyson and family, my thoughts and prayers for you and Ivy on this Christmas Eve. I pray Ivy is better today, and you are not spending Christmas at the hospital.
JoAnn <joannwhite@outtech.com>
MPLS, MN - Saturday, December 24, 2005 1:42 PM CST
Peter and Allyson,
When I woke up this morning, this poem was in my head. My own words fail today. Perhaps Emily Dickinson's might help a tiny bit on this very difficult day. We will all be together later, whether it's at CHO or in my living room. I love you.
"HOPE is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all"
Auntie Beth <schoenbrgr@aol.com>
Oakland, - Saturday, December 24, 2005 12:07 AM CST
Hugs, hugs, and more hugs! I'm so, so sorry to hear Ivy has gotten worse. I wish I could wave a magic wand and make her healthy. We're thinking of you!
Susan
Pittsburgh, PA USA - Saturday, December 24, 2005 10:51 AM CST
Here's hoping Ivy's sickness is gone...that would be the best gift of all! You all are in our thoughts! We're sending our best wishes for a blessed Christmas....
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Saturday, December 24, 2005 0:24 AM CST
Hi Allyson, Pete, Jasper and Ivy,
So sorry to hear Ivy is sick. I hope she kicks this virus soon and stays well for the rest of the winter. I know that the not-eating thing is so nervewracking. We have you in our hearts and hope to see you soon.
Jill <canyeshna@hotmail.com>
- Friday, December 23, 2005 11:48 PM CST
I just wanted to let you know that I am thinking of Ivy, Jasper and all of you this holiday season. I hope Ivy is feeling better and that Christmas is a truly blessed event.
Shana Jump (momtonick)
Shreveport, LA - Friday, December 23, 2005 10:46 AM CST
Just read your update on the website--so very sorry that Ivy is not well--hope the doctor is correct and that it is just a virus---and that she will be better soon--you guys have so much courage and fortitude --I am in awe. But I really do wish you can have a good Cristmas day to enjoy and remember-- you so deserve it---our love and thoughts are always with you. Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, December 22, 2005 2:45 PM CST
We too are hoping Ivy feels better and can enjoy Christmas magic! Love to you all!
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Thursday, December 22, 2005 1:15 PM CST
Allyson & Pete, Jasper & Ivy: Wishing you all a Merry Christmas filled with love and family and friends. We think about you all so very often.
Larry Simon and Ivy Noceto <lsimon@coastal.ca.gov>
Pleasant Hill, CA - Thursday, December 22, 2005 12:57 AM CST
I really hope Ivy starts feeling better in time for the weekend. Wishing you, Pete, Ivy and Jasper a wonderful holiday!
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, December 22, 2005 12:31 AM CST
Hugs to poor Ivy, I hope she feels better for Christmas morning. I agree I would rather face germs. Keep up the fight, Ivy is lucky to have such a strong mommy.
Katie <jeddi20@sbcglobal.net>
Austin, Tx USA - Thursday, December 22, 2005 12:10 AM CST
Just wanted to let you know that I am thinking of Ivy and pray she is feeling better from this latest vomiting episode...
Mary
- Wednesday, December 21, 2005 7:40 AM CST
Hey cousins.. I've been very delinquent in signing the guestbook so here goes a short entry...I seem to know lots of folks with colds these days including myself and Ivy's little cousin Nico, so I'm hoping that its just the winter cold that has got hold of her. Perhaps it will subside just as the weekend comes along and allow you to enjoy the presents, the tree, and your little cutie-pies. I love you all mucho!
Stefano <sdezerega@sbcglobal.net>
San Francisco, CA USA - Tuesday, December 20, 2005 5:45 PM CST
Here's hoping that you and Pete can spend some joyful holiday time together with Jaspar and Ivy. Santa will surely visit Jaspar and Ivy at their wonderful Santa age. "Believe" means something to the children at this time of year. The wonder is their wide eyes at the magic of Santa and the holidays. Love to all,
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, CA - Tuesday, December 20, 2005 2:29 PM CST
I've been lurking a lot this month! But please, please know that I'm always checking in. Now that I'm on "vacation" for 2 weeks, I'll be in better touch. I hope Ivy improves very soon and that it's not THAT. Merry Christmas! Big hugs to everyone,
Susan <susaneswift@hotmail.com>
Pittsburgh, PA USA - Tuesday, December 20, 2005 2:09 PM CST
Not a day goes by that I don't think of sweet Ivy and your family. I hope she's feeling better soon, that you all have a very Merry Christmas, and that the New Year brings wonderful things for you all!
Edie <eross411@yahoo.com>
- Tuesday, December 20, 2005 6:58 AM CST
Hope Ivy gets better and you all have a wonderful Christmas. I have been thinking of Ivy a lot these days. Please know that you are in our prayers and thoughts.
Lots of love,
Vandy & Raj
honored to be Sriya's parents
www.caringbridge.com/ca/sriya
Vandana Durga <vandana_durga@yahoo.com>
San Ramon, CA USA - Monday, December 19, 2005 11:41 AM CST
Hoping all that Ivy has is a holiday bug. Will be thinking of all of you.
Dana (dana_m_ <dlmitra@yahoo.com>
State College, PA 16801 - Monday, December 19, 2005 10:03 AM CST
I'm a stealth reader as well - always checking in on Ivy but rarely signing the guestbook. Know that I am always pulling for you guys, and sweet Ivy, crossing my fingers that something will work and bring all this to a happy end. Hope you guys have a wonderful holiday!
Sarah Weld <sarah.weld@sbclgobal.net>
Oakland, - Saturday, December 17, 2005 9:26 PM CST
Hi Ivy and family! We are some of your frequent checkers, but infrequent signers... sorry! Glad to hear you are able to move to maintenance - we'll be hoping it is uneventful for you. Have a wonderful holiday season!
Renee, Matt & Christian LaFountain <cr_lafo@yahoo.com>
N. Canton, OH - Friday, December 16, 2005 9:14 PM CST
Is it my imagination, or has Jasper grown a bunch in the last few months? He looks like a big boy on Santa's lap. Both kids are adorable. You guys did good in the kid making department, and in the parenthood department too.
Our loving thoughts are always with you all,
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, CA - Friday, December 16, 2005 8:23 PM CST
Hi Ally! I regularly check your site to follow sweet Ivy's progress. She is always in my prayers. I hope this bug clears up for her soon and that your family is able to enjoy a healthy happy holiday!
Tracy (tjly)
- Friday, December 16, 2005 8:12 PM CST
Happy 1 1/2, Ivy. You are never far from my thoughts and prayers. CMV-negative O+ blood, if needed, will be ready for donation when I get back Tuesday the 27th.
Hope <krauskop@berkeley.edu>
- Friday, December 16, 2005 10:17 AM CST
Cute pictures! I am glad you guys had a lot of fun! Ivy reminds me so much of Kirstin. Anyway I really pray that Dr T is right and this is just a bug! Thinking of you guys as you start Ivy's new treatment!
Valerie <val_ea@yahoo.com>
London, Oh - Friday, December 16, 2005 6:52 AM CST
Happy 18Months to Ivy!! We loved the picturs of Ivy's pig-tails and Jasper in the box! Wishing you lots of joy this Christmas, and good progress in Ivy's maintence program! I'm with you everyday, even though I don't sign in. Ali, thanks for wrighting so often & so diligently, I feel like I'm there with you, not so far away! Love to all!
Tracy, Jennifer & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Thursday, December 15, 2005 1:34 PM CST
What a wonderful party for the little ones! I hope Ivy's tummy troubles clear up soon. The bug hit us a few weeks ago, so there's definitely something going around!
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, December 15, 2005 11:19 AM CST
We are watching and praying for your family. Keep a positive attitude. Let us know if we can help out.
Norm & Dale Greene <dale@puzzlering.net>
Albany, CA USA - Monday, December 12, 2005 11:34 PM CST
I hope little Ivy stays symptom free. (remission) What a great thing that would be. I hope the Holiday Party is fun. Allyson, I must say you are amazing. Your strength is so contagious. Ivy is lucky to have you as a mommy!
JoAnn White <joannwhite@outtech.com>
Minneapolis, MN US - Saturday, December 10, 2005 2:39 PM CST
Hey guys!
We are so happy to hear that Ivy's condition is more stable. Our prayers and thoughts are with you. Happy belated birthday to Jasper! The big 4, I can hardly believe it! I loved looking at the photos, but I didn't see you Allyson, did you make the cake?--very imaginative. We had our first snow this week--Isaac kept asking, 'can I touch it?' We miss you! Love from ilana, greg, and isaac.
ilana, greg and isaac
baltimore, - Saturday, December 10, 2005 6:41 AM CST
HAPPY BIRTHDAY, JASPER!
And, many hopes for Ivy that the LCH stays away!
We hope to see you sometime soon...maybe after Patrick's Make A Wish trip.
Many hugs to you all!
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Friday, December 9, 2005 11:26 PM CST
We've been following Ivy's site for some time, but have been remiss in writing in. Please know that all of our good thoughts and prayers are with you. And we look forward to seeing all of you--one of these days soon.
Heather Muir <heathermuir@msn.com>
Petaluma, CA USA - Thursday, December 8, 2005 9:46 PM CST
Sending my thoughts and prayers to Ivy and the rest of the family for health and happiness for the holidays and through all the years to come.
-Aaron
Aaron McLendon <anmclendon1973@yahoo.com>
- Thursday, December 8, 2005 1:12 PM CST
Hope Ivy and Jasper are over those nasty colds very soon and that Jasper has an enjoyable birthday. Hugs and prayers to you all!
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, December 1, 2005 10:46 PM CST
Sorry to hear that the kidlings have been ill with colds this week. We have our fingers crossed and hopes high that there will be no relapses for Ivy--it is a difficult time. Waiting is not easy. I loved Dominique's messase--such uplifting optimism. Look forward to Jasper's birthday Saturday and hope he/you all will be well by then. Much love, Sara and David
Sara Dezerega <saradezerega@aol.com>
Orinda, Ca USA - Thursday, December 1, 2005 3:44 PM CST
Thinking of you!
Angela- -HEATHER GRACE
<alisonheathersmama@gmail.com>
- Thursday, December 1, 2005 12:36 AM CST
Just checking in. Happy Holidays to all of you.
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Monday, November 28, 2005 1:27 PM CST
Hello Allyson, it's me Dominique. I am so happy to have met you and Ivy. Ivy is just a little darling and as happy as she can be. I know that with the help of all the good people at Children's she will be just fine. I will be thinking about the two of you tomorrow and every day thereafter. I will also keep you posted on my progress as well. Oh yes, did I mention that the maintenance will continue for the full time as originally indicated. Thank you for being so nice and sharing with me.
Dominique
Oakland, USA - Wednesday, November 23, 2005 8:14 PM CST
Hooray for unexpected good news! Happy Thanksgiving to your wonderful family! We miss you!!!
Susan Swift <susaneswift@hotmail.com>
piitsburgh, pa usa - Tuesday, November 22, 2005 8:11 PM CST
Congratulations on the good news! We will pray that this continues and that Ivy keeps on feeling better and better! Her hair is TOO CUTE! :-)
Hope we can get together soon!!
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Sunday, November 20, 2005 2:54 PM CST
Bless your hearts! So glad to hear good news. Enjoyed Ivy's (and Grammy's) company again this week--she was very lively, fun loving, active and humorous. Seemed quite at home here and even went exloring the different rooms on her own. What a cutie. Looking forward to T-Day. Love, Sara
Sara DeZerega <saradezerega@aol.com>
orinda, ca usa - Saturday, November 19, 2005 2:07 PM CST
Hi there. I came by your site a while back but don't think I signed in. =) You must be gettitng cuter (and chubbier--YAY!) every day because your new picture is EVEN CUTER than I rememberd you being. What a sweetie. We LOVE Dr Beech. Isn't she awesome? We were sad to 'lose' her when we transfered to UCSF. Well...I've got lots to do...but, wanted you to know I was here and excited about your great news!!! Hope your breathing starts to clear up soon as well. Poor dolly.
With Love and HOPE
Hadley*, Keegan and Liam's Mama
www.caringbridge.org/ca/hadleyfox
Angela Fox <FoxFamilyFive@sbcglobal.net>
Alameda, ca usa - Friday, November 18, 2005 6:56 PM CST
Great News!!! Yipee!!!
Love the pigtails!
Carol, Taya and Anya
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Friday, November 18, 2005 4:53 PM CST
LLLllllove those pigtails! They were the first thing she showed us at the door on Sunday -- very proudly. We're thinking of all four of you all the time of course. The teachers at Emma's school ask about Ivy regularly. No doubt she's on countless prayer lists and receiving positive energy from sources far and wide. Can't wait to share thanksgiving with you next week. We all have a lot to be grateful for. All our love,
Auntie Beth, Uncle Harvey and Cousin Emma <schoenberger@aol.com>
- Wednesday, November 16, 2005 3:39 PM CST
I will be praying and sending positive thoughts that the CT news will be good. I can't wait to see Ivy's pigtails!
Take care,
Diane Clark
D. Clark <nollidclark@yahoo.com>
alameda, ca - Monday, November 14, 2005 11:42 PM CST
Hope the results of the CT scan will be negative and that you don't have to wait long. Can't wait to see Ivy in pigtails. She was one cute little girl last Wednesdy--what a sense of humor she has. She's so smart and playful. Miss seeing the rest of you as well--look forward to T-day. Love, Auntie Sara and Uncle David
Sara DeZerega <saradezerega@aol.com>
Orinda, Ca USA - Monday, November 14, 2005 7:47 PM CST
Little Ive is in our thoughts and prayers. Was able to catch up on the journal entries today. Hope to talk to you soon. Praying for you family.
Love, Carol, Taya, & Anya
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Saturday, November 12, 2005 9:37 PM CST
Just got caught up on the journal entries. Thinking of you guys always with much love and positive energy. Love Carol, Taya, and Anya
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Saturday, November 12, 2005 2:47 PM CST
I'm still with you in my thoughts and prayers. Just got done catching up on all the journal entries. I've been very busy as usual with the girls, but never a day goes by when I don't think of you all and how you are doing. Lots of love and positive energy your way. Carol, Taya and Anya
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Saturday, November 12, 2005 2:34 PM CST
I'm still with you in my thoughts and prayers. Just got done catching up on all the journal entries. I've been very busy as usual with the girls, but never a day goes by when I don't think of you all and how you are doing. Lots of love and positive energy your way. Carol, Taya and Anya
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Saturday, November 12, 2005 2:29 PM CST
We're glad to hear that things are so GOOD! We've always done the same...take the good days as good and be happy about those!
I hope things stay well for Ivy and that the chemo does its job!!!
Hugs to you all,
Pam, Tom, Devin , and Patrick
Folsom, CA USA - Wednesday, November 9, 2005 8:41 PM CST
Fun to see photo of kids on Halloween and to hear that you had a good time--have to have some of that in this life! Sorry to hear more tests are required but am sure it's the sensible thing to do. Here's hoping that they will be negative. Thinking of you often and sending our best wishes. Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, November 4, 2005 2:21 PM CST
What a cute menagerie you have there! Glad the kids enjoyed Halloween. I'm sorry to hear Ivy will have to endure even more tests, but I hope they at least can tell you something conclusive. Holding all of you in my prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, November 3, 2005 2:14 PM CST
So glad you four can go Tick or Treating tonight. Have a wonderful time. Ivy sure has her cow sounds down! When asked today she said the cow says, "Boo!" This gal sure has a sense of humor as does that little Jasper lion who did great on the two Halloween parades already! It was fun to share these special moments of lightness. Enjoy. You two deserve it. Love Grammie, Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Monday, October 31, 2005 7:57 PM CST
Allyson, I'm glad you had a good trip to San Diego. Woo-hoo for reaching the halfway point in this treatment! Love the photos, especially the new one on the front page. Hugs to all!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, October 28, 2005 9:09 PM CDT
Allyson, I'm glad you were able to see your family and celebrate your grandfather's life.
I'm glad Ivy improved a bit over your trip.
Many hugs, Caryn
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Thursday, October 27, 2005 2:09 PM CDT
Hi i found your link on Dillons page, I just wanted to send you some good wishes and to let you know I am praying for you.
sharon shields <sharonshields44@hotmail.com>
L, England - Wednesday, October 26, 2005 10:36 AM CDT
Just thinking of you all and hoping that Ivy is feeling a bit better and that you all are getting more sleep!
We were so sorry to learn of the loss of your Grandpa but are glad you were able to see him one more time and bring him some joy with your visit.
Hugs to all of you!
We're praying for Ivy's lungs to clear!! Patrick just got off his nebulizer for a lung infection, so we are hoping for clear lungs all around :-)
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Monday, October 24, 2005 0:32 AM CDT
Ivy looks beautiful. She is a adorable little girl. Hope she gets better with her cold and will get back to her happy self again before she sees your relatives.
Your signed my daughters website and thats how we got to know about Ivy. I really hope that things will get better soon with every chemo and she will be in remission pretty soon.
--Vandana, Sriya, Rajesh
www.caringbridge.com/ca/sriya
Vandana <vandana_durga@yahoo.com>
San Ramon, CA USA - Sunday, October 23, 2005 12:26 AM CDT
Wishing you traveling mercies and hoping that Ivy's cold clears up soon. As always, keeping you guys in our prayers as well as all the other little histio warriors out there fighting the good fight.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, October 21, 2005 1:57 PM CDT
Hi Allyson, Pete, Jasper, and Ivy-
Allyson, I am so sorry to hear about your grandfather, but I am thankful you all were able to see him not long ago. I hope that Ivy recovers from her cold quickly; I'm certain she'll be back to her smiley, bubbly self before long. I hope Jasper isn't too upset about his cavity-do you remember the cavity creeps??
Have a safe trip to San Diego; Ben and I keep you in our thoughts.
Love-Becky
Becky Ellin <rebecca_ellin@yahoo.com>
Beaufort, NC - Friday, October 21, 2005 9:39 AM CDT
Am so concerned about Ivy's cough and lungs and her constant cough that interrupts her naps here and her sleep with you two. I would think her LCH lung complication would qualify her for as much consideration and treatment as that done for a premie since she has a high risk LCH child and been suffering with this for over three weeks as well as the panting is not subsiding. How can we get you some additional help on this? Am especially worried with a 5 day trip ahead and being around a lot of people. Clinic doctors see her for such a shoprt to time but you and she have to live with it and it is clear she is in a lot of discomfort and eating less. I'm worried too. What can we do for herand you? As for Jasper, thank goodness we get to practice teeth brushing on baby teeth.I promise to faithfully brush his teeth every time he sleeps over and introduce him to his own flossing kit like his cousin Emma keeps here for her care.Love, Grammie Jenifer
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Friday, October 21, 2005 1:35 AM CDT
Hi Allyson - I am so sorry to hear about your grandfather but know how fortunate you must feel to have made that visit last week. I am sure that it brought him great joy to see Jasper and Ivy! I check on you all regularly and keep Ivy in my thoughts.
Jennifer Dare <jldare@msn.com>
Charleston, SC - Wednesday, October 19, 2005 7:22 AM CDT
Dear Al and Pete,
Thanks for typing in the update with all the new information -- the conference sounded very good. We continue to send you good energy and love, and look forward to being in touch next week when we are back on the west coast.
Love, Rebecca and Joe
Rebecca Roth <rebeccakroth@yahoo.com>
Danville, VT - Thursday, October 13, 2005 9:40 PM CDT
Glad Dr McClain is a resource on Ivy and small number of children like her with GI/skin LCH. I hope every week that the Vinblastin helps her huffing and puffing so her little lungs and heart can finally rest more than they are able to right now. She paces herself when I care for her on Mondays, Wednesdays and Fridays:actively scooting across the floor for her toys or doing her first toddling steps, Ivy then sits and rest until her shallow breathing slows down again. After getting Jasper at school yesterday, she flashed a smile at him to catch his eye and then started to walk by herself to her brother who saw her coming and fell on his knees. Jasper said with arms out, "Come on Ivy. You can do it!" She did about ten steps and fell into his arms and onto the floor, the both of them in a puddle of laughter. In that moment, as well as many with her alone that day, I just knew she had to get better so they can have a long life as loving siblings and be a support system for each other as they were in that moment, one not caught on camera but an imaged shared here for all. Prednisone usually helps lungs calm down, so I hope at the end of the twelve week treatment we see lung improvement/remission since Ivy is doing so well with her GI and skin symptoms,a great blessing and relief. Glad Dr. T & Dr. M can consult regarding maintence phase. Thanks for all the updates, Ally and Peter. Glad Stanford consultation and support from other LCH parents happened, as well as getting to reunite in San Diego for a last reunion with your Grandpa, Ally. We are here for you as emergencies with him develop as well as for Jasper and Ivy.It sure is a challenging time for all as we try to pace ourselves. Love, Jenifer-Mom, Grammie.
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, Ca USA - Thursday, October 13, 2005 8:26 PM CDT
You guys sure are putting the miles on. Really glad you got to see your Grandfather, and especially that he got to see his beautiful grandchildren. Jaspar and Ivy are quite the travellers. Start saving for family vacations as well as for college. Hell, the vacations are more important. We took mostly driving vacations with our family when the kids were young; the road trips were adventures we'll always remember. At least I remember them fondly. love to you all, Dale
dale greene <dale@puzzlering.net>
albany, ca usa - Wednesday, October 12, 2005 8:03 PM CDT
Hello Ivy and family. Thanks for sharing such detail from your conference. It was nice to hear 80%, and yes I've wondered the same thing... "Do the single system kids count in that?" Anything to make our kids chances better, huh? It's very nice to hear that GI itself does not indicate a poor prognosis. That's got to be a bit of a relief.
We'll keep checking on little Ivy! Glad to hear she is doing well outside of the LCH... walking, talking. That first day of her first choice college will be here before you know it. ;)
Renee, Matt & Christian (www.caringbridge.org/oh/christianlch) <cr_lafo@yahoo.com>
N. Canton, OH - Tuesday, October 11, 2005 8:02 PM CDT
Glad the conference was worthwhile--lots of info to process--what a whirlwind week-end with the trip to San Diego--glad you saw your grandfather and that other relatives could see Ivy in person. Glad her blood count is up--does that mean she will be having the vinblastine to-morrow? Much love to all of you. Sara aand David
sara dezerega <saradezerega@aol.com>
Orinda, ca usa - Tuesday, October 11, 2005 7:53 PM CDT
So glad to hear you had the opportunity to attend a meeting where you could meet other families and get more hopeful news. And so glad that you got to see your family.
Dana Mitra <dlmitra@yahoo.com>
State College, PA - Tuesday, October 11, 2005 7:18 PM CDT
I hope the meeting was informational and hope you are hanging in there! I'm always at a loss for words when I come here, partly because I know what Ivy's going through and partly because I know exactly what you are feeling. Our stories are so very similar. Chris goes in tomorrow to find out whats next and if the 2cda has worked. I don't think it has.. he's coughing up a storm. Anyways, I hope you are well as can be expected and I hope it is just an infection in the lungs!
Tracy Eckhardt and Christopher <teckhardt@sympatico.ca>
- Monday, October 10, 2005 10:46 PM CDT
Have been thinking of you this week-end and hoping you had a an outing or two in this beautiful fall weather,a good visit with Susanand Liam, and that colds are over and, most of all, that Ivy is doing well with the breathing issues. Here's to a good week ahead. Love, Sara
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Sunday, October 9, 2005 7:53 PM CDT
Allyson,
Thank you for having the strength to put into words Ivy's condition. You are so brave being able to not only confront the medical news, but share it too. We read every entry. I can just imagine Ivy walking about with her incredibly positive energy. She's a little dynamo! We love all of you.
Dale and Family
Dale Greene <dale@puzzlering.net>
Albany, Ca USA - Thursday, October 6, 2005 12:47 AM CDT
First time reading Ivy's Journal. I'm so sorry you have no real answers yet. I'm praying for the best for Ivy and your family...always. She is just so precious.
Yvonne (eveonk)
NJ - Thursday, October 6, 2005 12:29 AM CDT
Glad to see an update! I have been wondering. I really wish they could tell you what it is but at the same time I am glad there is no real bad news! Still thinking and praying for Ivy!!!!
Valerie (val_ea) <val_ea@yahoo.com>
London, Oh - Thursday, October 6, 2005 6:25 AM CDT
Somehow tonight the serenity prayer comes to mind. "God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference." Allyson and Peter, I watch you living this prayer as you move through this mysterious experience with Ivy. Ivy and Jasper brighten my day every time I see them. Thinking of you all the time. Love,
Auntie Beth <schoenbrgr@aol.com>
- Wednesday, October 5, 2005 10:28 PM CDT
Well, no news is good news--hopefully--since treatment is the same whether LCH on lungs or not, it is good you can proceed with what largely eliminated symptoms before. The older she gets, the better her chances. Would be nice to know what they are seeing and why the shallow breathing--could it be side effect from CDA2? Glad you are no longer waiting to get test results. Hope your colds will be mild and brief. Much love, Sara and David
sara dezerega <saradezerega@alo.com>
orinda, ca usa - Wednesday, October 5, 2005 9:39 PM CDT
Well darn! This is so not what I was expecting to read when I came here tonight. I don't even have words of encouragement to share except I know how you feel and wish I was closer to give you one big hug! I will keep your family in our prayers.
Tracy Eckhardt and Christopher <teckhardt@sympatico.ca>
Kitchener, ON Canada - Sunday, October 2, 2005 11:50 PM CDT
Sending lots of love and hugs and you await the lung results...You are all in our thoughts. Congrats to Ivy on walking in the midst of all she is going through!
We'll see you at the meeting!
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Sunday, October 2, 2005 5:30 PM CDT
What a great site, so sorry it took so much courage to visit, what ever was I thinking! The best part is the photo gallery of your precious girl, she is super sweet!I pray lots for her and your family. Sending lots of love Jill (Lindsay's mom)
Jill McAlpine <mcalpines@adelphia.net>
Windham, NH USA - Saturday, October 1, 2005 7:12 PM CDT
"...If I gathered all my means in a pile beside me, it wouldn't fill my dreams for the love of Ivy..." [Mamas & Papas]. Thinking of you all and sending my thoughts and prayers to Ivy especially. Looking forward to seeing you next gathering!
Hope
- Saturday, October 1, 2005 9:32 AM CDT
I just read the last entry. Sorry that the results of test do not look hopeful. Bless Ivy she has such a lovely spirit. Maybe she can take Nico by the hand and they both can walk together!!!. Will keep my fingers cross for some good news. Thinking of you all. Love,
Eva and Neal
Eva <evalinda @skillware.com>
- Friday, September 30, 2005 7:13 PM CDT
Ivy stood and walked to me in my kitchen today! She IS so proud of herself. I love that smile on her face as she shows off her new skill. Then in the family room, she walked herself between pieces of furniture. She said "brrr" and grinned when I took ice out of the freezer. She pointed at my kitchen clock high up on the wall and then tapped her wrist (her little signal to mean she wants to play with my wrist watch). She stood with me at the back door as we watched the squirrels scurrying across the deck getting ready for winter. Ivy giggled. These are the moments. Ivy's gift to me is to BE in those moments. My thoughts and prayers are always with you, Peter and Allyson.
Auntie Beth <schoenbrgr@al.com>
Never-Neverland, - Friday, September 30, 2005 2:08 PM CDT
Just checking in to see what you had found out regarding the lung scopes....I'm sorry they are not coming back *good*. Im glad the transfusion is not needed. And what excellent news that she is walking, walking, and walking. She was just waiting till that moment you needed some happiness. Some Joy! She's a smart cookie, Ivy as always you are in my thoughts and prayers. Congratulations Ivy, what does your brother think of your *new* skills? Thinking of you guys as always, and thanks for keeping this site so up to date.
JoAnn <joannwhite@outtech.com>
Minneapolis, MN - Thursday, September 29, 2005 3:04 PM CDT
I couldn't agreee with Jenifer and Ed more--what I was trying to put in words--thanks especially for sharing your feelings. So sorry the results of tests so far are not what we hope. May the blood counts improve so she can have the next treatment. The crickets are chirping outside my window and Ivey walkd a lot to day and was pleased. The world should be made of these kinds of things not all the other challenges you/we are facing. Keep up your courage. We love you! Sara
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, September 29, 2005 1:02 AM CDT
Ally and Pete: Do keep the faith! I know how challenged we are right now and thanks for sharing the details, as well as the hunches or intutive side of your wisdom.It helps us prepare while staying hopeful. Your are doing so well keeping up with all the many aspects to Ivy's treatment and I know how complicated it is. Perhaps when we know more we can explore the blood donor options we spoke of together today for a frequent, universal donor for Ivy to have some banked or ready to be banked in case she does need a transfusion. So relieved she was more spunky today: she stood several times by herself with me when asked and took two steps to get a toy before her nap although she was tired. She is so pleased with herself, that grin and clapping before her balance shifts! Adorable! She, despite her fast shallow breathing, is determined to be active and you can tell she loves it. With love,caring and gratitude for the good stuff and new,for all the caring you do for our dear granddaughter, as well as keeping abreast of the research and medical meanings and sharingthe daunting medical information, Love Grammie Jenifer and Grampa Ed
Jenifer Morris Schoenberger <JMSchoenberger@ aol.com>
Oakland, CA USA - Wednesday, September 28, 2005 9:10 PM CDT
Just thinking of you guys. I am so sorry Ivy can not get her chemo! Praying she will not need a transfusion. Just sending out lots of hugs and prayers.
Valerie <val_ea@yahoo.com>
London, Ohio - Wednesday, September 28, 2005 6:27 AM CDT
Sorry it's been so long since we've written. We have been reading your entries, cheering and crying with you, and hoping and believing. We're a little crazed with new mommyhood - very good crazed, even the slightly hard stuff - so time is a bit limited for writing, but not for keeping up with news and visualizing complete remission every morning. Randy and I, and Sarah, send much love,
Caroline Isaacs
- Monday, September 26, 2005 5:07 PM CDT
Let's hope that Ivy is through those ugly tests for a while and that she's doing well on current therapy. Hats off to all of you for holding up.
love,
Dale
Dale Greene <dale@puzzlering.net>
Albany, Ca - Monday, September 26, 2005 1:41 PM CDT
Hi All - Thinking of you constantly and sending all my love. Great-Gramma Lois
Lois Corbett <locorb0505@AOL.com>
Santee, ca usa - Monday, September 26, 2005 1:35 AM CDT
Hi, Allyson, Ivy is a cutie. I hope things get better for you guys and you can get some answers. Unfortunatly with this disease I don't know if that is possible. Sorry I am writting this in your guestbook, but I had trouble e-mailing you. My computer said you didn't have a yahoo account. I wanted to ask you where you read that about children who don't respond to 2-CdA have a poor prognosis. My stomach dropped when I read that because Aidan didn't respond at all to it. And his doctor's have told us nothing of the sort. So now I am worried that they aren't telling us everything. E-mail me when you read this so we can talk more about it. Take care and stay strong.
Kristine Hagerty <hagertykristine@yahoo.com>
Gretna, Ne - Friday, September 23, 2005 11:54 PM CDT
Such great news!! Hurray Ivy! You'll be running in no time!
Dana <dlmitra@yahoo.com>
State College, PA - Thursday, September 22, 2005 8:06 PM CDT
What a wonderful read this morning, her first steps, and some good news tests. I hope tomorrow goes better than expected. Poor Ivy and not getting to eat. I just couldn't imagine how you do it, or her?
More prayers and thoughts from Minneapolis!
JoAnn <joannwhite@outtech.com>
Minneapolis, MN - Thursday, September 22, 2005 7:09 AM CDT
So happy to hear MRI and bone scan were normal , that blood counts are good and that here has been weight gain. Jen and Ivy visited us to-day and what a treat it was--Ivy was so darling and seemed to be having quite a good time with cousin Nico. Hope Dr. T is right about the lungs and the other guy just a pessimist--sorry she has to go without food or drink--so hard on a little one. Good luck on Friday--as always we are rooting for all of you. Much much love, Sara and David P.s.I had a great time playing with Jasper yesterday--he is such a neat kid--so lovable.
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Thursday, September 22, 2005 0:50 AM CDT
Ivy and Family,
So glad to hear your scans were clear! I know how hard the waiting is. I will pray that your lungs are clear too. I hope you have more good news soon.
Love, Diane, Richard and Dillon
Diane Clark <nollidclark@yahoo.com>
alameda, CA - Wednesday, September 21, 2005 11:44 PM CDT
Hooray! We are so happy to hear the good news!
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Wednesday, September 21, 2005 11:00 PM CDT
Thanks for sharing the happy news!!! So very glad!
Susan
Pittsburgh, PA USA - Wednesday, September 21, 2005 9:43 PM CDT
That's happy news from the exams! We're sending smiles and good thoughts your way.
Al, Lynn and Katie <alwanger@sbcglobal.net>
Kensington, CA - Wednesday, September 21, 2005 9:40 PM CDT
Hello guys,
We are so concerned about Ivy and you all. I hope that it was not too rough making it to Wed. and through all the tests. I'm sorry to hear the prednisone's negative side effects on Ivy. It's time to hear some good news from one of these doctors.
loving thoughts to all of you,
Dale
dale greene <dale@puzzlering.net>
albany, ca - Wednesday, September 21, 2005 5:42 PM CDT
What a week you guys have going this week. Been thinking of you often. Glad you had an ok-weekend. Please give Ivy a big hug from Brandon and Becca and I. Sending you some strength to get thru this week.
JoAnn <joannwhite@outtech.com>
Minneapolis, MN - Wednesday, September 21, 2005 9:09 AM CDT
Just wanted to let you know we are thinking of you all! We will hike in Yosemite this weekend not just for Patrick but for Ivy and all the other brave little histio warriors...
Lots of luck to you this week--we hope all the tests end up with good results!
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Tuesday, September 20, 2005 9:56 PM CDT
Sending my thoughts and prayers and hoping you get good news, {{{{hugs}}}} and I pray that Ivy will have great results from all the testing this week!
Robin (Dec 01) <rtownsend64@aol.com>
Alabaster, AL - Tuesday, September 20, 2005 10:42 AM CDT
Oh Al,
What a week this will be for Ivy and family! I hate that you all have to go through this. You've got lots of positive vibes coming from Pittsburgh. Wayt, Mom, and Kirsten all send their best wishes.
Liam and I look forward to bringing our wishes in person next week (I told him a story about Jasper tonight...he's quite intrigued.)
Love and hugs,
Susan
pittsburgh, pa usa - Monday, September 19, 2005 10:03 PM CDT
Hi Ally and Pete,
We hope you did get a little break away this past weekend. Heaven knows you deserve some small reprieve, as does Ivy. Glad to hear Jaspar is happy in pre-school. He's such a delight, and so perceptive. He's so much like his Daddy at that age that it's heartwarming. Our family thinks of you and talks of you all every day. We cannot imagine your suffering, and Ivy's suffering is beyond comprehension.
We are busy going to Petaluma to care for baby Max while his Dad is still awaiting diagnosis. They have also found that they have to push for medical appointments, information and action. I guess that awaiting test results is better than acting prematurely. Our love goes to all four of you.
Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, Ca - Monday, September 19, 2005 2:18 PM CDT
Just read the latest update re: Ivy. Like everybody else I am hoping what has developed is only a temporary snag along the way to recovery. Don't lose heart, all you brave people - Ally, Pete, Jasper and most of all - Ivykate. How do I say "Happy Birthday" to you, Ally? - with lots of love, always. Gramma Lois
Lois Corbett <locorb0505@AOL.com>
Santee, CA USA - Sunday, September 18, 2005 5:02 PM CDT
Hi Allyson,
I am very sorry to hear about the the possible lung involvement. Christian has lung involvement and had a lung biopsy. If you have any questions about the procedure, or what to expect, please feel free to e-mail. I have read about everything there is on Lung LCH. Best Wishes.
Thee LaFountain Family
Matt LaFountain <lafountain_m@yahoo.com>
- Sunday, September 18, 2005 0:06 AM CDT
Hi Allyson and Pete,
I just want you guys to know that I am keeping you and of course Ivy in my thoughts always. I hate to say this, but I do hope that Ivy just has a lung infection!
I hope you had a chance to enjoy yourselves this weekend. You certainly deserve it.
All my best,
Jennifer Dare <jldare@msn.com>
Park City, UT - Saturday, September 17, 2005 11:20 AM CDT
Dear Pete, Allyson, Beth, and all assorted Schoenbergers and Levines,
I check on you guys all the time via this website so as to spare Beth repeating all the details to me about Ivy. I am so sorry to read of yesterday's results - I couldn't tell which part of your current post was more recent, the top or the bottom. I dearly hope that there's still a chance that the spots on her lungs are from something else. I think of Ivy and her loving family all the time, wishing I could wave a magic wand and fix it all. If only.
Sending all my love, good thoughts, and luck your way,
Sarah Weld (old preschool friend of Beth, Harvey, and Emma's)
Sarah Weld <sarah.weld@sbcglobal.net>
Oakland, CA - Friday, September 16, 2005 6:33 PM CDT
Dear Pete & Ally, So sorry to hear of Ivy's latest struggles! I hope you have a terrific time over the weekend. As always, we're thinking of you all and hoping our little hello's via this website boost you up. We love you and think of you often!! Kiss to IVY!
Love, Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Friday, September 16, 2005 4:48 PM CDT
What a little spirit Ivy is. She's reached deep into my heart and will always have a spot in there--and I haven't even had the chance to meet her yet. While my eyes filled with tears to hear of Ivy's latest struggles, yet the spark in her little eyes can't be denied. She is a fighter as it seems that you all are, and we will be sending many prayers to her and to all of you from State College, PA
Dana Mitra <dlmitra@yahoo.com>
State College, PA USa - Friday, September 16, 2005 12:18 AM CDT
Dear Ally and Pete
Just read the last update.How can beautiful Ivy be put through such suffering. It doen not make any sense.
Our love goes out to you Ally and Pete and we are praying for fast recovery.
Eva and Neal
eva <evalinda@skillware.com>
- Friday, September 16, 2005 12:07 AM CDT
Ivy
you laugh when I stick a teaspoon on my nose
reward my embarrassing antics ten-fold
Ivy
breath of life
keep breathing you
Ivy
breath of life
fill our pained world with your giggles
Ivy
in your tiny agile fingers
the stem of the ivy leaf twirls as we stroller along
Ivy
swirling all around you, grown-ups give
prayers and patience
dogged research
insist on answers
to heal you.
Unfailing.
auntie beth <schoenberger@aol.com>
Oakland, CA - Friday, September 16, 2005 11:40 AM CDT
We're keeping all of you in our prayers in the face of this very scary moment. Love, Jessica, Stefano and Nico.
Jessica Tomlinson
- Friday, September 16, 2005 10:48 AM CDT
News of LCH in Ivy's lungs is just heartbreaking, news we hoped we'de never hear. I hope all of us who are part of this support network can help find the creative research and information available from any and all resources to make Ivy be the exception and survive. Casting nets wide can bring miracles. Although numbed by the news, we stay present to love and care for her and you four, as always, Jenifer-Mom and Grandpa-Ed
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, Ca USA - Friday, September 16, 2005 10:47 AM CDT
Oh...so not the news we were all hoping for. We will keep all of you in our prayers. Please give Ivy and Jasper big hugs from Patrick and Devin. Sending lots of love and healing vibes to Ivy,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Friday, September 16, 2005 10:47 AM CDT
Thinking of you all! Let us know how the CT turned out. If you need a great pulmonologist to look at it, Patrick's is very well regarded (not for LCH, but general pulmonology)...he travels the world giving lectures, etc. Patrick has had 4 or 5 chest CTs, all with suspicious symptoms but then, thank God, no LCH in there. I will be praying that Ivy's situation turns out be nothing related to LCH, too.
Hang in there and enjoy your weekend!
BTW: we just finished 5 days of prednisone and boy, this one was a doozy for some reason. Thank goodness we're done for now!
Lots of love and hugs,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Thursday, September 15, 2005 10:02 PM CDT
Dear Ally and Pete,
Thanks for the update. I guess I am not surprissed they took her of the 2-CdA treatments. I keep my fingers crossed that she will have a quick response to the vinblastine/prednisone.
She looks beautiful in her pictures.
Bless you all lovely family.
Eva and Neal
Eva Tomlinson <evalinda@skillware.com>
- Wednesday, September 14, 2005 11:15 AM CDT
Dear Ally and Pete--so relieved that doctor T took Ivy's decline seriously and put her back on what worked before. Hope she is gradually responding more and more each day. Glad Jasper likes his new school--they are lucky to have him as a student! Allyson, We are so very sorry to hear of the passing of your friend. Yes, it is all to much to believe and bear some days. You have all been in our hearts and thoughts. Here's to a good outcome. Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Monday, September 12, 2005 8:24 PM CDT
I was so relieved when Dr. T. saw how sick Ivy had become and acted immediately.Glad you, Ally and Peter,pushed to have her seen. Today Ivy spent the day with me more enthused and animated than she has been since 2-CdA treatments and her malaise and weakness set in but mostly she either rested in my arms all day or slept in them and on the couch where Ivy likes watching the birds, squirrel in trees above her head near our front window. She was glad every time I read her sign language for food: her appetite for warm cereal and sweet fruit is back so it seems we've turned a corner just in time towards some healing despite her acute pain with her GI functions. She is such a trooper and inspiration, I check myself when I feel like there is a hard time: we should only know what she is going through! Meanwhile,despite being ill,the normal prevails: Ivy got excited to pick up brother Baper as she calls him,on his second day of new pre-school, which he seems to love, and Jasper loved showing Ivy the fish, guinea pig and turtle; Ivy kisses pictures around the house of mama,and melts when she see dada arrive, as she calls him, and again laughs belly laughs when cousin Emma makes her giggle as Ivy prepared for the drive home for supper with mama. Bless loving parents and prednisone and its powers and may our joy negate any of its side effects as she prepares for the next 12 weeks of vinblastine's helpas well. Reading everyones entries makes me aware of all the love and connections there are though Ivy and the entries cheers us all on. I hope it uplifts you, Pete and Ally, during this challenging weekend watching for improvemenst in Ivy's health and in the days ahead.We're still here for you! Love, Grammie-Jenifer and Grandpa Ed
Jenifer Morris Schoenberger <JMSchoenberger@ aol.com>
Oakland, CA USA - Friday, September 9, 2005 11:58 PM CDT
Allyson, sending prayers for a quick response to the vinblastine/prednisone combo. And hooray for no more hospital stays! Glad to hear Jasper likes his new school. Keeping all of you in my prayers, as always!
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, September 8, 2005 3:56 PM CDT
Hi Allyson,
I just read your last posting. My heart goes out to all of you. I wish so much you would not have to go trough this. I hope you will soon find some answers. Sorry we could not be there last weekend but we where away.
Love to all,
Eva and Neal
eva <evalinda@skillware.com>
- Wednesday, September 7, 2005 5:11 PM CDT
Oh-Allyson, my heart is just hurting so much for you guys. I can feel your fear for Ivy, and just wish something would work longer term. I hope Dr T was able to help you today. I"ll be looking back for an update. Please know I'm thinking and praying hard for Ivy!
JoAnn <joannwhite@outtech.com>
Minneapolis1, MN US - Wednesday, September 7, 2005 2:26 PM CDT
Oh Allyson I am really praying you find some answers soon for sweet Ivy.
Valerie <val_ea@yahoo.com>
Oh - Wednesday, September 7, 2005 11:55 AM CDT
We are thinking of you guys and are in awe of the dedication you have to finding answers, exploring options and continuing to give so much love support to Ivy and Jasper... You are all amazing, and we're here if you need anything!
Jen <jen@gripman.net>
El Cerrito, CA - Wednesday, September 7, 2005 0:38 AM CDT
Oh dear...poor Ivy! I am sorry to hear the latest news. Please call if you need a friendly ear! Sending lots of healing vibes your way...
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Tuesday, September 6, 2005 9:50 PM CDT
Oh-Allyson. Sending many, many prayers and hugs to Ivy. I really wish the roller coaster could end for you all! Can't stop thinking of you guys and how strong you all are!
JoAnn <joannwhite@outtech.com>
Mpls, mn USA - Tuesday, September 6, 2005 11:46 AM CDT
We'll keep Ivy and your family in our prayers and hope that this flare is an isolated event. We think of you often and are looking forward to seeing you at the Stanford meeting, if not before! Sending lots of love and good wishes,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Monday, September 5, 2005 6:35 PM CDT
I'm so glad the 2 cda is starting to work!! I will keep you in our prayers that this round goes smoothly!
Tracy Eckhardt and Christopher <teckhardt@sympatico.ca>
Kitchener, ON Canada - Sunday, September 4, 2005 1:46 PM CDT
Hang in there guys. Sharon, a friend at my work was just diagnosed with bone cancer. She read about Ivy and signed the guestbook several months ago. When is all this craziness going to stop? She was breast cancer free for 7 years. I love you guys and absolutely hate it, that this is happening in your lives. I could say that over and over again a million times as I just don't know what to say. The only comfort I have is knowing that you and Pete are both amazingly strong and caring and extraordinary; that you all are doing everything in your power to help Ivy. Someday I will tell her what awesome parents she has and how much they love her. Love, Carol & the girls(Taya & Anya)
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Friday, September 2, 2005 9:17 PM CDT
Hang in there guys. Sharon, a friend at my work was just diagnosed with bone cancer. She read about Ivy and signed the guestbook several months ago. When is all this craziness going to stop? She was breast cancer free for 7 years. I love you guys and absolutely hate it, that this is happening in your lives. I could say that over and over again a million times as I just don't know what to say. The only comfort I have is knowing that you and Pete are both amazingly strong and caring and extraordinary; that you all are doing everything in your power to help Ivy. Someday I will tell her what awesome parents she has and how much they love her. Love, Carol & the girls(Taya & Anya)
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Friday, September 2, 2005 9:17 PM CDT
Hi Peter and Allyson. When I finally reached my evacuated in-laws in New Orleans, one of their first questions was "how's Ivy?!" Even amidst disaster and broken dreams, Ivy is being remembered with love and prayed for. Love, devoted auntie beth
Beth Schoenberger <schoenbrgr@aol.com>
- Friday, September 2, 2005 8:53 PM CDT
Hope you guys are able to enjoy a private room this weekend and that her treatment goes well.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, September 2, 2005 1:43 PM CDT
Hope you got the private room this weekend. Thinking of you all!
JoAnn <joannwhite@outtech.com>
MPLS, MN USA - Thursday, September 1, 2005 3:07 PM CDT
Wow! Sounds like Ivy is getting a good response! I'm so happy for you! Don't worry about the embarrasment in the teen-age years! Sometime's it's really fun to make them run screaming from the room... "MOM, too much info!" I get a secret giggle!
Love from Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, CA USA - Friday, August 26, 2005 3:37 PM CDT
Great News!!! We're so excited for you all, especially after the news last week. Hope you get a private room on Labor Day and get to keep it. Love Randy and Caroline
Randy and Caroline <ci2rm@northcoast.com>
Loleta, Ca. USA - Thursday, August 25, 2005 8:12 PM CDT
Yea for Ivy. I'm glad she is showing improvement or results of the CDA treatment. Glad her poops have slowed down, and yep, when she is older hopefully she'll get a good laugh at all the talk about her pooping schedule being part of the public knowledge! Many more prayers and hugs to all yuo guys!
JoAnn White <joannwhite@outtech.com>
- Thursday, August 25, 2005 1:57 PM CDT
We were checking in to see how Ivy is doing and how your weekend away was. Hope it was full of joy that might sustain you during this difficult time. Thinking of you all! Love,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Wednesday, August 24, 2005 0:35 AM CDT
Just checking in to get the latest updates on Ivy. Sorry the latest isn't exactly great. Just want you to know you are all in my thoughts every day. It's wonderful that you are still doing normal happy doings. These are what you all will think back on when Ivy is well again. I love you all so much. Great Gramma Lois
Lois Corbett <locorb0505@AOL.com>
Santee, CA USA - Monday, August 22, 2005 1:25 PM CDT
To Ali,Pet,Grandparents, Aunts, Uncles and all the members of this great family,
My thoughts are with you. I wish you would not have to go through this ordeal. Ivy and you all do not deserve this.
When we visit you at the hospital I could see how exhausted, caring and brave Pet and Ali, you are. Please if we can do anything let us know. My heart goes to you all.
Love,
Eva and Neal
Eva <evalinda@skillware.com>
- Saturday, August 20, 2005 11:12 AM CDT
To Cousins Pete, Allyson, Jasper & Ivy - Enjoy your get away to Sea Ranch. It's such a special place. Rest up, float on a cloud. Come back ready to fight for that 3rd Therapy. I think of you often!
Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Friday, August 19, 2005 6:30 PM CDT
Hugs to you Al!
I'm so sorry these first two treatments haven't helped much. Of course you feel glum. Sometimes I find it just helps to wallow for a while. You certainly have good reason.
You have many, many loved ones sending good energy your way, so I think it's okay to give yourself a break from being positive;-) My family sends their love to yours.
Susan <susaneswift@hotmail.com>
pittsburgh, pa usa - Friday, August 19, 2005 2:27 PM CDT
Allyson, I hope the time away will refresh and renew everyone's spirits. I think it will be good to physically be in a different place away from hospitals and doctors and IVs and blood counts. I know you are disheartened that the 2-CDA is not working, but despite that, I still find a remarkable strength of spirit and hope in the words you write. Holding sweet Ivy and your whole family in my prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, August 18, 2005 1:28 PM CDT
Allyson, I hope the time away will refresh and renew everyone's spirits. I think it will be good to physically be in a different place away from hospitals and doctors and IVs and blood counts. I know you are disheartened that the 2-CDA is not working, but despite that, I still find a remarkable strength of spirit and hope in the words you write. Holding sweet Ivy and your whole family in my prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, August 18, 2005 1:28 PM CDT
Allyson, I hope the time away will refresh and renew everyone's spirits. I think it will be good to physically be in a different place away from hospitals and doctors and IVs and blood counts. I know you are disheartened that the 2-CDA is not working, but despite that, I still find a remarkable strength of spirit and hope in the words you write. Holding sweet Ivy and your whole family in my prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Thursday, August 18, 2005 1:28 PM CDT
Glad that ordeal is over and hope you get to do it again in 3 weeks. WE'll have all our fingers crossed.
Randy Mayers <ci2rm@northcoast.com>
Loleta, Ca. USA - Tuesday, August 16, 2005 6:37 PM CDT
Thanks for the update. More hugs and positive thoughts sending from MN. I hope you see improvement soon! You guys are in my thoughts.
JoAnn <joannwhite@outtech.com>
- Tuesday, August 16, 2005 3:11 PM CDT
Allyson, you, Ivy, and your entire family are held close in my thoughts and prayers. Take care.
Gretchen White
Westminster, CO - Tuesday, August 16, 2005 10:23 AM CDT
I really hope this round will bring good results Ally. You and Ivy (Pete and Jasper too) are always in my thoughts and prayers. And great job to Ivy on getting on 3's!!!
Kelly <kel_hayes@yahoo.com>
Chicago, IL - Tuesday, August 16, 2005 10:18 AM CDT
Just thinking of you all with lots of love and many hugs...we'll continue to pray for strength for your family as you wait (which must just be SO difficult) and make treatment decisions. Let's hope that it is right that it is always darkest before the dawn...perhaps your dawn is around the corner.
Please give Ivy a kiss from Patrick!
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Tuesday, August 16, 2005 7:59 AM CDT
Ally,
You have every right to be discouraged. I'm amazed that you are coping so well. I am disappointed in the universe that this misfortune could happen to a beautiful baby like Ivy. She is so lovely and full of life. Suffering shouldn't even be a possibility for her. I really respect your strength and endurance. You also deserve down time when you can relax. Give yourself and Pete a lot of credit for the way you are taking care of Ivy and Jaspar. They are lucky to have you as parents. You both are doing a tremdous job of loving parenting.
Love to you,
Dale
Dale Greene <dale@puzzlering.net>
Albany, Ca. USA - Tuesday, August 16, 2005 1:20 AM CDT
Allie,
You have every right to be discouraged. I'm amazed that you are coping so well. I am disappointed in the universe that this misfortune could happen to a beautiful baby like Ivy. She is so lovely and full of life. Suffering shouldn't even be a possibility for her. I really respect your strength and endurance. You also deserve down time when you can relax. Give yourself and Pete a lot of credit for the way you are taking care of Ivy and Jaspar. They are lucky to have you as parents. You both are doing a tremdous job of loving parenting.
Love to you,
Dale
Dale Greene <dale@puzzlering.net>
Albany, Ca. USA - Tuesday, August 16, 2005 1:18 AM CDT
Welcome home from your 2nd stay... I'm so sorry the private room didn't work out. What a disappointment! But I'm glad you were roommate-free for awhile. Thanks for recognizing us in your list of acknowledgements. It was certainly our pleasure to offer up a little bit of comfort food. We're certainly thinking of you all and sending our love to Ivy. We hope this round was successful in offering her some relief and that her discomfort will fade away very soon! Let us know if you need anything, and be in touch if you want some company some Tues/Thurs morning... Ben and I are around.
Jen <jen@gripman.net>
El Cerrito, CA - Monday, August 15, 2005 10:46 PM CDT
Enjoy your deluxe accomodations...I know exactly what you mean about getting excited about little things :-) We will continue to keep Ivy in our prayers and hope that the 2CDA can knock the LCH out and keep it out.
Lots of love and hugs to you all,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Friday, August 12, 2005 0:17 AM CDT
Hello Ivy and family - hope this hospital stay is uneventful and short. :) Best wishes to all of you.
Also, thanks for posting the photo of the Wall of Hope from May. I was looking where you said to find Ivy, and I found Christian right next to her! (blue shirt, yellow background) Living in Ohio, we were not able to go to the benefit, so it was very nice to see your photo.
Hang in there little Ivy! Keep fighting!
Renee, Matt and Christian
N. Canton, OH - Thursday, August 11, 2005 3:37 PM CDT
Really appreciated your latest entry,Ally.I missed pool party recovering from gallbladder problems & dragging to psychotherapy work! Grampa glowed as he fell asleep saying what a great connection it was with his kids and grandkids.
Ally,am so glad you had a break as well as a chance to talk to Dr. T. and that he is in agreement with the Thurs.-Sunday 2-CdA protocol that we are all getting ready for,with Jasper care and Ivy hospital care breaks and outside food for your hospital stay. Amid the frustration of being laid low and less available, I too am relived to hear Ivy had her breaks from chronic stool problems:that can give hope to Mom and Dad,too, after a very difficult two weeks of ups and downs.
To the larger community of support who check in here on the site, our calls during this time to assist Ally & Pete and us are appreciated although Ally and Pete, you are a two person independed team who do it well no matter what! But you are not alone! When Ivy is past this second treatment, our vacation to Sea Ranch, where Jasper can play with Emma and Ivy can rest as can Ally & Pete for five days each, will be a safe no germ environment for her. Meanwhile, thanks to devoted and present Auntie Beth , Uncle Harvey & cousin Emma, who turns eight Friday 8/12, caring well for Ivy as you, Ally & Pete keep working your jobs and managing to take Jasper to visit his soon to be new school, while friend Adria cared for Ivy. Amazing parenting job, you two! Here's to simple prayers of healing for Ivy,from all who know her and who check in here. Blessings,Grammie Jenifer
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, Ca USA - Wednesday, August 10, 2005 12:14 AM CDT
Thanks for your updates, feelings included---it helps to know how you really are. Had heard from Jen to-day that you may well go in on Thursday---I have routine Kaiser appointment thursday am but am unscheduled from then for the rest of the weekend so am available to visit, entertain kids, or whatever is needed--will get info from Jen and Ed or Beth, Here's hoping this next round will have beneficial relults. All our love, Sara
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Tuesday, August 9, 2005 0:06 AM CDT
Hey, we're not in it for you to entertain us, so no apologies for "uninteresting" entries. We want to know all the same things that you feel a need to "log". We deeply appreciate your keeping us updated; it's hard to be far away and helps to have some idea how to focus our prayers. So keep up the good work, Allyson, and may you and Pete and Jaspar and Ivy float in our vast sea of love.
Caroline and Randy
- Sunday, August 7, 2005 7:27 PM CDT
Hi Pete, Allyson, Jasper, and Ivy--glad the consult was re-assuring on Monday and that the new dramatic rash did not seem to be related to LCH and has gone away---hope the rest of your week was peaceful and that you will have a restful week-end before your next 5 day hospital stay next week--we're looking forward to seeing all of you soon. Call if you need anything. Love, Sara and David
sara dezerega <saradezerega@aol.com>
orinda, ca usa - Friday, August 5, 2005 11:48 PM CDT
Hi Ivy and Pet,
I am so sorry to hear this latest development in Ivy's health.
We pray the treatment works.
Any help you might need please let us know.
With love,
Eva and Neal
EVA <evalinda@skillware.com>
- Friday, August 5, 2005 9:05 PM CDT
Just came to read an update....Still praying and thinking of you guys, especially your dear 13mth old....may this next round of treatment start showing some improvement. Stay Strong, and give Ivy some hugs from us here!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN USA - Friday, August 5, 2005 1:36 PM CDT
Just sending my prayers along! I pray this new chemo will work and her symptoms will start to disappear! Many prayers for sweet Ivy and hugs for your whole family!
Valerie (val_ea from Dec 01) <val_ea@yahoo.com>
London, Oh - Friday, August 5, 2005 6:34 AM CDT
We're so, so, so hopeful that the 2CDA has just not had enough time to work its magic....maybe the coming days will bring Ivy some relief!
With love and hugs,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Wednesday, August 3, 2005 0:40 AM CDT
We're thinking of you and sending our love and best wishes. How frustrating and heartbreaking that you had to endure the hospital stay only to come home to more uncomfortable and scary symptoms!! We will be in touch to arrange a time to bring you dinner, and maybe Jasper and Ben can race trucks again?! Lots of love to you all!
Jen Gripman <jen@gripman.net>
El Cerrito, CA 94530 - Tuesday, August 2, 2005 5:59 PM CDT
Hang tight, Ally and Pete. Ivy will turn a corner soon and the new protocol will work. Ivy, your spirit carries us, one and all. So glad you and Jasper have fresh organic strawberries from your very own garden to pick and eat, a healing act and image for us all to hold, whole juice- stained smiling mouths of satisfying yummy goodess, as we all sent healing energy and prayers to you four. Love, Grammie Jenifer
Jenifer Morris Schoenberger
Oakland, CA USA - Monday, August 1, 2005 11:24 PM CDT
My prayers are with you and your sweet, beautiful, brave little girl.
Tracy (tjly from Dec.01PG)
- Monday, August 1, 2005 11:20 AM CDT
Many heartfelt prayers in your little Ivy's honor~
Tai, Joe, Tyler, Benjamin, Evan and Tess (from Dec'01@TPP) <tai70479@aol.com>
Kettering, OH USA - Monday, August 1, 2005 11:11 AM CDT
Here's to hoping this is the dark before the dawn. Unfortunately, we never know until the dawn actually comes, in retrospect. Till then, know that you're not sitting in the dark alone but in a big crowd of deeply loving friends and family. May the breakthrough be around the corner. Meanwhile, you are in the arms of our heartprayers.
Caroline and Randy
- Monday, August 1, 2005 10:48 AM CDT
My heart breaks for little Ivy, and I'm sorry to hear that the new therapy is not producing results yet. I hope that the doctors can find some way to give her relief before the 12th. Keeping y'all in my prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, August 1, 2005 8:46 AM CDT
My heart breaks for little Ivy, and I'm sorry to hear that the new therapy is not producing results yet. I hope that the doctors can find some way to give her relief before the 12th. Keeping y'all in my prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, August 1, 2005 8:46 AM CDT
My heart breaks for little Ivy, and I'm sorry to hear that the new therapy is not producing results yet. I hope that the doctors can find some way to give her relief before the 12th. Keeping y'all in my prayers.
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, August 1, 2005 8:46 AM CDT
Just signed the guest book-but entry not appearing--wanted you to know that we are so sorry and upset to hear that the new drug has not helped and that Ivy is suffering--glad you will advocate to-morrow--have been thinking of all of you and holding you in our hearts through all the latest challenges--will be home in 48 hours and are available for what is needed--we love you and pray for Ivy. Love, Sara and David
Sara DeZerega <sara dezerega@aol.com>
Orinda, Ca USA - Monday, August 1, 2005 4:11 AM CDT
Dearest Peter, Allyson, Jasper and Ivy--Have been holding you in our hearts through the latest challenges such as your 5 day hospital stay--I was so hopeful that the new stuff would work and quickly--so sorry to hear to-day that the diarherra continues--glad you are going to Children's Hospital to-morrow to advocate--all our positive thoughts will be with you in that endeavor--we'll be home in 48 hours and available for whatever is needed--we love you and pray for Ivy--words can't express how much we are caring. All our love, Sara and David
Sara Dezerega <saradezerega@aol.com>
Orinda, CA USA - Monday, August 1, 2005 4:02 AM CDT
Our hearts break for little Ivy and all of you...we are so very hopeful that she might get some healing soon! Please call if you need an ear...
Love and hugs,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Sunday, July 31, 2005 11:59 PM CDT
Praying that Ivy's condition improves soon. Thinking about your family all of the time.
Dana (dana_m from our board) <dlmitra@yahoo.com>
State College, PA USA - Sunday, July 31, 2005 9:40 PM CDT
It was so nice to visit with you on Thursday! Thanks to Jaspar and Ivy for sharing their toys with Patrick. He spent the whole day saying, "Tell me again, whose house did I visit? The boy with the Hot Wheels...who is he again?" Our visit with you was the main thing he talked about all day!
Ivy will stay in our prayers and we hope the 2CDA kicks in and gives her body some relief!
Hugs to all of you,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Sunday, July 31, 2005 11:11 AM CDT
I am glad you are home and hoping that Ivy's symptoms resolve quickly - you are always in my thoughts and prayers!!!
Kelly <kel_hayes@yahoo.com>
- Saturday, July 30, 2005 2:43 PM CDT
HI all four of you,
It's not fair that you have to go through this, but I guess life is often not fair, or all babies would be healthy. We are new grandparents, so acutely aware of the beauty and fragility of new life. We admire and are astonished by the miracle of birth. Both of your children are amazing, and each is his own person. We are always thrilled to see Jaspar, who seems to be doing ok considering your hectic schedule. He's articulate and interested in everything, as you well know. Last weekend I asked if he wanted to sit on my lap and he said to Emma, "Dale wants me to sit on her lap, and I don't want to." I love him for being able to express his feelings so clearly. He certainly knows what he does and doesn't want to do, and is not afraid to say no. I think that is really a good thing, to be able to say no at his age. I mean this as a compliment to your parenting and Jasper's sense of himself. We are available to do anything you need. Let us know, please.
love to all, Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, Ca - Friday, July 29, 2005 8:47 PM CDT
Glad you are all home and sending prayers for improvement over the next 10 days. We were thinking of yoevery day. Love Randy
Randy Mayers <ci2rm@northcoast.com>
Loleta, ca USA - Friday, July 29, 2005 4:00 PM CDT
Just wanted to let you know we are thinking about you.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Thursday, July 28, 2005 1:27 PM CDT
I came back to Ivy's website after our latest email exchange. All my hopes and prayers to Ivy.
Lenore
Cambridge, MA USA - Wednesday, July 27, 2005 8:09 PM CDT
I blew soap bubbles for Ivy in the back yard this afternoon. She laughed with her mouth wide open, watching them float up and pop. She especially liked poking her tiny index finger at the ones I caught for her on my bubble blower wand. She kept saying, with enthusiasm, "Bah-Ba!" (not sheep, but her version of "bubble!"). Precious moments amid the heart ache. Peter and Allyson, you are so brave... keeping your hearts open, even as you are in such pain. I love you.
Beth Schoenberger <schoenbrgr@al.com>
- Wednesday, July 27, 2005 7:18 PM CDT
Welcome Home Guys! You are still in my thoughts and prayers. You are all so brave....especially sweet little Ivy!
JoAnn <joannwhite@outtech.com>
Minneapolis, MN - Wednesday, July 27, 2005 12:57 AM CDT
Welcome home Ivy!
Tracy Eckhardt and Christopher <teckhardt@sympatico.ca>
Kitchcner, ON Canada - Tuesday, July 26, 2005 10:55 PM CDT
Welcome Home Ivy! Just a quick note to let you know that we're thinking of you and sending good thoughts your way.
Al, Lynn & Katie
Al Wanger <alwanger@sbcglobal.net>
Kensington, CA USA - Tuesday, July 26, 2005 10:16 PM CDT
Hi Ivy, you do not know me, but my son Aidan is also an LCH fighter. I was just reading through your journal entries and seeing a lot of similarities. Rash behind the ears and diaper area. It's so ironic how all these families talk about the same red flags, but none of the pediatricians are picking up on them. We were actually diagnosed by a dermatologist as well. It sounds like your mommy is just as frustrated with treating this monster as we are. We've been through the Velban and the 2-CdA and are still waiting to hear what's next. I hope I don't bring any of you down, I've been trying to stay positive, but it is just getting so draining. Check out Aidan's page www.caringbridge.com/ks/aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Gretna, Ne - Tuesday, July 26, 2005 8:59 PM CDT
Pete, Allysin, Jasper & Ivy
It must be so good to be home again, where you can be noisy or quiet as you need, surrounded by your own things! I thought of you throughout the week-end. I wish we could be there in person to offer our hugs and support. Know that Kaylee,Jenn & I think of you all often and love you! Fight on Ivy!!!!
Love, Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Tuesday, July 26, 2005 1:24 PM CDT
Hugs Allyson. I hope you have an uneventful late night trip home tonight!
Caryn Kelly
- Monday, July 25, 2005 5:55 PM CDT
Hi Ivy and family - we were just checking on our LCH friends and learned of your new treatment plan. Sorry to hear your initial plan wasn't doing the job. We'll keep Ivy and all of you in our thoughts and prayers. Best wishes to you.
Christian & family
www.caringbridge.org/oh/christianlch
Renee, Matt and Christian LaFountain
N. Canton, OH - Monday, July 25, 2005 4:21 PM CDT
The entry I (C)wrote when I was briefly in town last week didn't make it in - I think I hit a wrong key. Anyway, though I've been away, and dragged Randy w/ me this time and we just got home, Ivy and all of you are continually in my prayers, both consciously every morning and at other times and running like a year-round stream the rest of the time. Another challenge in the struggle! The defeat of "proliferation" will indeed be a blessed day, on more planes than we can imagine I expect. Lots and lots and lots of love, Caroline
Randy and Caroline
- Monday, July 25, 2005 3:56 PM CDT
Ivy and your whole family continue to be in my prayers. She is one brave, little girl!
Stacey <staceyaf@hotmail.com>
NE - Monday, July 25, 2005 11:44 AM CDT
We will keep Ivy in our prayers and hope that your hospital stay is a first and only. And, we hope that the 2CDA is well-tolerated and also that it REALLY knocks this thing out for good this time! Many hugs to you all,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Monday, July 25, 2005 9:44 AM CDT
Hoping that Ivy responds well to the 2-CDA and has minimal side effects. I have no doubt that she is the sweetest, most loving patient at the hospital! You guys are always in my prayers, but now more so than ever.
Shayne <mom2pete@hotmail.com>
Houston, TX - Sunday, July 24, 2005 8:36 PM CDT
Just wanted you to know that Stuart, Ben and I are keeping up-to-date and thinking of you! We're here if you need us... Lots of love, Jen
Jen Gripman
El Cerrito, CA - Sunday, July 24, 2005 0:11 AM CDT
Allyson, I hope the new treatement works wonders for Ivy! Good luck to you guys! I'll be keeping you guys in my thoughts and prayers!
Marleen (dec. 01) <marleenandbrian@yahoo.com>
St. George, UT - Saturday, July 23, 2005 10:36 PM CDT
Just wanted you to know that Ivy is in my thoughts and prayers. (((Hugs))) to Ivy, Ally, Jasper & Pete.
Madeline (Dec 01 PG) <maddy0025@yahoo.com>
Bohemia, NY USA - Saturday, July 23, 2005 10:20 PM CDT
Auntie Beth just checking in... already know the news, but I keep going to the website anyway... just can't stay away, and can't stop thinking about our Ivy. I know prayer works. Spirit is at work here, guiding and protecting Ivy, all of you, all of the medical staff... because bidden or unbidden, the Divine is present. xox
P.S. Jasper, Emma and I had a blast building things at Lawrence Hall of Science yesterday! I'm such a lucky aunt.
Aunt Beth <schoenbrgr@aoal.com>
- Friday, July 22, 2005 7:56 PM CDT
So glad Ivy's doctors consulted,decided on 2CdA because Ivy skin/GI symptoms are back, she has been sick of late and because all the research I could find on the Internet late last night have great remission results from this drug as long as Ivy can get through any infections that can occur as it suppresses white blood cells. The drug is described as an anti-proliferation agent to stop the LCH cells from spreading to her skin/GI tract, as I understand it. We as a family are all pulling together. The thirty hours a week I spend with care for Ivy bless me hundreds of times over: I want this little girl's utter joy that she brings to all her activities to be something that blesses all of you. This is her gift to us, to find utter joy in all we do, in the moment and in the next explortion with a gentle kind essence. This is Ivy, expressing liking with kisses blown to people, birds, cats, dog, you name it. LIke Ivy, who puts so much together to make connections and meaning,you Allyson and Peter are always researching, and calmly exploring the options while caring for your two children, picking fresh stawberries from the back yard garden and planning supper after a long work day, finding time to push your kids on the swing and savor life. I share this here to inspire all you other parentwho support Ally and Pete and who are in this struggle with your own LCH burdened kids. I read the parent histio society lounge faithfully and am so moved at every body's courage, smarts and willingness to help one another while helping your own. Ivy's brother Jasper will be okay and will be here for as many overnights and visits you folkneed during Children's Hospital stay with the help of Grampa and Auntie Beth & Harvey. Cousin Emma knows the seriousness of Ivy's condition and alternates care and play with both her and Jasper, grounding all of us in the present and the mundane treasures of each day.To Ally and Pete, we will get through this and you are not alone! I'm so very grateful to have you in my life and glad there are people like you in the world. Blessings now and ahead on you four. Love, Jenifer-Mom
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Friday, July 22, 2005 1:43 PM CDT
Hello, Oh How I feel your worries! Christopher just started his first round of 2cda too a couple of weeks ago. Although his counts have dropped signifigantly, he has done extremely well so far on it. He did Methotrexate twice before and it is so very hard on him. I hope and pray that Ivy responds to this using 2cda. I will be back to check on you. Your are in our prayers. Let me know if I can help in anyway. I can't do too much from this far away, but I DO understand your fears and would be more than willing to yack on the phone! Big Hugs!
Tracy Eckhardt and < a href=http://www.caringbridge.org/canada/christophersstory>Christopher <teckhardt@sympatico.ca>
Kitchener, ON Canada - Friday, July 22, 2005 10:56 AM CDT
I think about you guys so much and just want you and Ivy to know that you're in my thoughts.
Nicole (Dec 01 PG) <nicolelcurtis@hotmail.com>
- Friday, July 22, 2005 10:07 AM CDT
Thinking of you all today....sending my prayers, thoughts and (((hugs))), I hope Ivy's new treatment yields excellent results!
Robin (Dec 01 PG)
Alabaster, AL - Friday, July 22, 2005 9:13 AM CDT
Glad to hear the the party was a success - wish I could have been there. I hope Dr. T has some good ideas on Thurs. Love the pictures!
Randy <ci2rm@northcoast.com>
Eureka, ca usa - Saturday, July 16, 2005 8:29 PM CDT
Hope this little flare up turns out to be nothing. As always, we're keeping Ivy in our prayers. She is such a little trooper. And thanks for posting the new photos. She is as cute as ever!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, July 15, 2005 10:41 AM CDT
Dear Allyson & Pete,
We will be praying that this is not a major flare-up! These little histio warriors go through so much as it is, I hope this turns out to just be a small bump in the road rather than a big ol' pothole. We'll keep Ivy and all of you in our prayers.
Many hugs to all of you,
Pam, Tom, Devin, and Patrick <dtppsanger@comcast.net>
Folsom, CA USA - Thursday, July 14, 2005 10:31 PM CDT
Thanks for the new photos! Ivy is adorable! So, so cute and looks rather chubby (although I know you said she's petite).
Sorry to hear about the worrisome symptoms. I hope it's all just normal toddler stuff, not LCH-related.
Happy Belated Birthday Pete!
Susan <susaneswift@hotmail.com>
Pittsburgh, PA This one - Thursday, July 14, 2005 4:55 PM CDT
Glad to have the july 5 update--hope eyes and ear clear and stay clear. Nice to hear the descriptions of both Jasper and Ivy's behavior from Dale and Norm--what beautrful kids--hope you are holding up--such a challenge these past months have been---we love you and miss you and wish you all the best. Sara and David
Sara DeZerega <saradwzerega@aol.com>
Orinda, CA USA - Thursday, July 14, 2005 3:51 AM CDT
Allyson, I just got caught up on the last two Ivy updates. Even though I was already up to date (because I see you guys all the time), I must say I am (again) in awe of how you write so clearly, honestly, beautifully about Ivy's progress, and the experience you are all going through. It is a privilege to read these detailed glimpses of what it's really like to have a baby with LCH. You even manage some humor through it all, which is impressive and always makes me smile.
It was wonderful to have a happy occasion to celebrate yesterday: Daddy Pete's 40th birthday! Great to see Pete relaxing and kicking back. One of my favorite moments of the whole day was watching Ivy start to master the small plastic slide in Grammie and Grampa's living room. How she made a joke of starting to go up, then faking us out and quickly sliding/sitting back down. She'd instantly look up to see us laughing and join in with her big grin. That girl has a sense of humor that doesn't quit. Happy 40th Bro. You are blessed beyond measure with such a loving (ever expanding) circle of support. All my love and admiration,
Aunt Beth <schoenbrgr@aol.com>
- Sunday, July 10, 2005 1:33 PM CDT
Allyson, I just got caught up on the last two Ivy updates. Even though I was already up to date (because I see you guys all the time), I must say I am (again) in awe of how you write so clearly, honestly, beautifully about Ivy's progress, and the experience you are all going through. It is a privilege to read these detailed glimpses of what it's really like to have a baby with LCH. You even manage some humor through it all, which is impressive and always makes me smile.
It was wonderful to have a happy occasion to celebrate yesterday: Daddy Pete's 40th birthday! Great to see Pete relaxing and kicking back. One of my favorite moments of the whole day was watching Ivy start to master the small plastic slide in Grammie and Grampa's living room. How she made a joke of starting to go up, then faking us out and quickly sliding/sitting back down. She'd instantly look up to see us laughing and join in with her big grin. That girl has a sense of humor that doesn't quit. Happy 40th Bro. You are blessed beyond measure with such a loving (ever expanding) circle of support. All my love and admiration,
Aunt Beth <schoenbrgr@aol.com>
Oakland, CA United States - Sunday, July 10, 2005 1:30 PM CDT
We're happy to hear that Ivy continues to do well! We hope her eye procedure goes smoothly and that the ears turn out to be nothing major. We think of you all often and hope our kiddos can enjoy some time together sometime soon! Many hugs to all of you :-)
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Wednesday, July 6, 2005 0:24 AM CDT
I found your webpage through another webpage and wanted to say hi. You are in our thoughts and prayers.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Friday, July 1, 2005 9:28 PM CDT
Sorry that it has taken so long again to check in and read about Ivy. All I can say is that you guys are awesome and amazingly strong and an inspiration to everyone. It's been busy here. My dad was in the hospital for a week the week before last. He's doing well now. Rachel came home last week for good. Now we are all praying that the bone marrow was a success. It's too soon to tell.
Keeping you in my prayers always
Carol, Taya, & Anya <thonen.carol@kc.sysco.com>
Olathe, KS USA - Thursday, June 30, 2005 8:24 PM CDT
Hi guys,
We spent a little time with Ivy and Jasper at Grandparents Schoenberger last Sunday. What a delight and challenge both of your darling children are. Jasper never stopped. His energy and active curiosity must keep you on your toes every minute. He's a little dynamo, and I'm certain it's not easy keeping up with him. Ivy was interested in everyone and everything. She points to whatever captures her attention, and like her brother, is really observant and curious. It was wonderful to spend a little time with them. We still are amazed that you two cope so well with such a full schedule and challenging situation. You have our admiration and best wishes.
love, Dale and Norm
Dale Greene <dale@puzzlering.net>
Albany, Ca USA - Wednesday, June 29, 2005 3:30 PM CDT
Just stopping in to let you know we are thinking of you! Big Hugs to you all!
Allyson, I just sent you an email.
Tracy Eckhardt and Christopher <tracy.eckhardt@gmail.com>
Kitchener, ON Canada - Sunday, June 26, 2005 12:41 AM CDT
Our thoughts and prayers are with Ivy. Our family is just learning about all the known and much unknown of LCH. We pray we are doing all the right things. I hope you can find some answers to your questions and continue in a positive direction. Until then Ivy keep on smiling, your gorgeous and loved by many!
Pete & Tammi Pouget <pouget539@sbcglobal.com>
Royal Oak, MI USA - Saturday, June 25, 2005 6:48 PM CDT
Just wanted to let you know we are still keeping sweet Ivy in our prayers! I wish you could get more answers and just know what is going on. Ivy is getting so big and looks wonderful!
Valerie <val_ea@yahoo.com>
London, Ohio - Friday, June 24, 2005 12:21 AM CDT
Grrr...aren't all the strange symptoms enough to make you crazy?!?!? We have had many episodes like that, where we just can't make sense of it all, and the LCH makes it SO confusing! I hope it all gets sorted out and Ivy is feeling good--no more eye/ear goop!
And, OH, the darn platelets again! No one seems to get what is going on with those. Our drs. really seem to say that high platelets alone are usually just from chemo, high platelets AND elevated ESR is disease activity. BUT, who knows!??! This really just highlights the need for more research!
God bless your little 7 year old friend. What a kind heart she has! She is making a big difference in the world already...how wonderful!
Talk to you soon!
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Thursday, June 23, 2005 11:56 PM CDT
Wow - Ivy looks so big and so great!! Happy Birthday big girl!!!
Kelly <kel_hayes@yahoo.com>
Chicago, IL - Tuesday, June 21, 2005 10:05 PM CDT
Happy Birthday Ivy!!!
A whole year. Congratulations and wishing you lots more and healthy ones.
Are your parents going to take you to Squaw. Let us know so we can set it up before we go. Kisses Eva and Neal
eva <Evalinda@skillware.com>
- Monday, June 20, 2005 7:36 PM CDT
Love the photo! She's adorable--and so much BIGGER! Congratulations!
Susan Swift
Pittsburgh, PA USA - Friday, June 17, 2005 12:49 AM CDT
Happy Birthday Ivy, I'm sorry I haven't had a chance to write sooner. I have read all your history and am so pleased you have NAD or AD -better. I know how hard your had to fight and I hope and pray this continues! I will be back soon and will follow your progress. I LOVE LOVE LOVE to read about success stories! You will be in our thougths and prayers. If you have questions about maintence etc. feel free to email me. Christopher has had two years of maintence so please do not hesisitate. Good Luck!
Tracy Eckhardt and Christopher <teckhardt@sympatico.ca>
Kitchener, Canada - Friday, June 17, 2005 10:07 AM CDT
As midnight draws near Ivy Kate on your First Birthday, we celebrate you and your joyous spirit. I've never seen such a happy, smiling, joyful baby as your are almost all the time! You enjoyed your party after a big day of chemo and mommy love, and a huge butterfly balloon, and a bottle in Daddy's arms at bed time. From both your parents I see you feeling loved, cared for and secure. Your ability to communicate your needs with hand jestures and beginning sounds, your love of actually reading books, sniffing flowers, blowing kisses to cats, dogs, people; dancing and humming when you hear music, exploring via your crab crawl faster than we can baby proof, interacting with your devoted spunky three and a half year old brother Jasper, all are aspects we treasure today and do not take for granted as we celebrate one year old you. Your life force carries you and your dear folks, Ally & Peter. All of you persevere and bless our days. Mommy chose the butterfly as an appropriate theme for your party, a little girl transformed and fluttering about, reconstituted toward health. To Ally and Pete we offer our prayers of hope for helpful new information this weekend when you fly to meet with the LCH medical specialist in LA. As you continue to search for caring options and knowledge that will help Ivy and others like her and families so challenges,she is lucky you are so proactive. Your babies will be tucked in safe and sound here, and chase a few butterflies in the morning knowing the devotion and love that surrounds them and you. Yes,it certainly takes a villiage and amid the suffering that is part of this world, the joys are surely gifts... like Ivy Kate. Cousin Emma, Auntie Beth and I had fun making your cards and wrapping gifts to honor you on this special occassion. Great job, Mom and Dad! Love, Grammie Jenifer & Grampa Ed
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Thursday, June 16, 2005 1:32 AM CDT
Happy Birthday dear Ivy. Can't wait to see what you do with Birthday cake tonight. Get those cameras ready!
What a year you've had. And through it all, you just keep being YOU, growing, learning, connecting, healing, and expressing more and more the incredible spirit that you are. Yay for you! Today I also celebrate Peter and Allyson and Jasper who have rolled with the ups and downs, put one foot in front of the other, hiked the steep learning curve about LCH and treatment, and succeeded in making Ivy and Jasper's daily life about as normal and wonderful as you could possibly imagine. That deserves such praise and recognition, Ally and Pete. And yay too for the incredible circle of support for you four. I think I speak for everyone when I say it's an honor to be part of Ivy's loving circle. Happy Birthday Ivy, you awesome girl you! Kisses and a hug, Auntie Beth
Beth Schoenberger <schoenbrgr@aol.com>
Oakland, CA - Wednesday, June 15, 2005 8:35 AM CDT
Happy Birthday Ivy! You're a wonder to us all! I can't wait to finally meet you in September (still okay, Al?).
Love to you and your family!
Susan <susaneswift@hotmail.com>
Pittsburgh, PA USA - Wednesday, June 15, 2005 7:04 AM CDT
Well, if you're going to take the time to write the updates we so enjoy reading the least we can do is let you know we're reading them! It's so moving to imagine what that tiny being is going through, and also to read the entries from the other LCH families. Our virtual hats are off to all of you, as we hold you all in prayer. Much love to Ivy and Jasper, and your sweet selves, Allyson and Peter, from your cousins to the north.
Caroline and Randy <ci2rm@northcoast.com>
Loleta, CA - Monday, June 13, 2005 8:28 PM CDT
I'm not seeing my entries to your guest book. Just know they are being sent. I love you all - you are in my thoughts every day. Everyone I talk to about my precious great-grandbaby is so impressed by the wonderful job you are doing,and how she is responding so well, and one and all say, "I'll be praying for her and all of you." As am I. Love - Great-Gramma Lois
Lois Corbett <LoCorb@AOL.com>
Santee, CA USA - Saturday, June 11, 2005 10:31 PM CDT
Hi guys. Ivy and I played a silly game with flowers and her stuffed kitty yesterday while she lounged in her stroller (before a walk with Grammie). I love those kissing sounds she makes for cats and the sniff-sniff she makes for flowers! She smiles so easily and so often. It's infectious for me. Love you all, Auntie Beth
Beth Schoenberger <schoenbrgr@aol.com>
Oakland, CA - Saturday, June 11, 2005 12:52 AM CDT
So glad to read your update to-day and to know that Ivy is doing well--all of you seem to be holding up well considering your very demanding schedule of child care, work, commuting plus all the medical requirements of daily cleaning of the tube, weekly blood draws and treatments--bless your hearts--we think of you often and love you dearly. Sara and David P.S. Both your darling kids are quite fetching!
Sara DeZerega <saradezerega@aol.com>
Orinda, Ca USA - Friday, June 10, 2005 0:22 AM CDT
Hello Ivy, my name is Kiley Jenkins and I also have LCH. I am 3 yrs old and I was diagnosed on December 18th of this past year. I found your website through Christians page. I am glad that you are feeling well. We will pray for you. My web page is carepages.com and my page name is kileyraejenkins. Feel free to visit if you want.
Kiley Jenkins <hannahjenkins57@hotmail.com>
Clearwater, FL - Thursday, June 9, 2005 10:16 PM CDT
Hello Ivy and family - I just found your site through your posting on Christopher Eckhart's page. My little boy, Christian, also has LCH (skeletal and pulmonary). He was diagnosed in November 2004 when he was 2 1/2 years old. Sounds like he is a few months ahead of Ivy in the protocol.
I'll keep Ivy in my list of favorites and check in with you from time to time. Best wishes to all of you. Also, feel free to read Christian's info if interested. His page is www3.caringbridge.org/oh/christianlch.
Renee, Matt and Christian LaFountain <cr_lafo@yahoo.com>
N. Canton, OH - Tuesday, June 7, 2005 12:44 AM CDT
Hello,
Sorry it's been so long since I've checked in. I've been very anxious to read about Ivy. Much relieved at all the good news. Rachel has been up and down since her bone marrow transplant(caringbridge.org/ks/rachelhoffman) We have all been holding are breaths for the last month. We should know in another month whether or not the bone marrow was successful. Kiss Ivy and Jasper for me. We miss and love you guys.
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Sunday, June 5, 2005 8:57 PM CDT
We continue to marvel at Ivy's zest for life! I recall Rabbi Naomi's comments after our chuppah that Ivy is "truly alive". And big thanks for the photos! She's so beautiful. One other thing - we're also deeply awed at the whole family: the way you two parent your children with equanimilty and secure, loving holding; the way Jasper is with his sister and with himself; the ways the whole mishpucha/extended family is so beautifully interwoven. An honor to be part of this family! Much love, Caroline and Randy
Caroline Isaacs and Randy Mayers
Loleta, CA USA - Sunday, June 5, 2005 11:58 AM CDT
Hey rock stars,
I love being able to check this site and find out how miss ivy and y'all are doing- i think about you a lot- but it took me 'til now to write back! "everyday heroics" does not even cover it, but let me just say i love seeing such exceptional people (and my dear friends!) take all this more or less in stride- I am so proud! I have every hope for Ivy. love!
Carrie Holschuh <cholschuh@yahoo.com>
San Francisco, CA USA - Tuesday, May 31, 2005 3:39 PM CDT
Good to see you to-day--just read the update re platelets--sobering--sorry you have something else to be concerned about--we'll be holding you in our hearts as always--you are a truly amazing and inspiring family--love, Sara and David
Sara Dezerega <saradezerega@aol.com>
Orinda, CA USA - Monday, May 30, 2005 1:00 AM CDT
Hi folks,
While we're glad Pete got his job, it probably puts more time stress on you all. Ivy is amazing at thriving and getting her little body mobile. We still are awed by each of your abilities to remain focused and cope so well. It may be irrelevant, butI have very low immunity from interferons and other MS meds. I have staying amazingly well for several years by asking everyone I know not to see me if they are sick, even a little cold. I stay home from events if someone is sick, and if I arrive and someone's not feeling well, I leave. My greatest source of germs are my students, and I turn them away at the door if they show any illness signs. I can't say this has been totally effective, but I have been sick only a few times. I have other hints I got from a friend whose daugher had a transplant, so is on similr immunosuppressent drugs. One main one is washing your/Ivy's hands whenever she is out in public. I carry antibacterial wipes everywhere. Let's hope Ivy doesn't have to go to any methods of avoiding germs, and that she's well at this week's visit. You're in our thoughts.
love to you,
dale and norm
Dale Greene <dale@puzzlering.net>
Albany, Ca USA - Saturday, May 28, 2005 7:50 PM CDT
Dear Allyson, Pete, Jasper and Ivy - I just read your account on this week's visit. I agree with Beth that the path you're on with Ivy has lots of unexpeced twists and turns. Let's hope that soon it can become a more even ride and that Ivy recovers fully. Allyson thanks for updating us.
On another topic,I wonder if Ivy and Nico, since they are both recent crawlers will get into some mischief together. Can't wait to see!!!
Love Eva and Neal
Eva <evalinda@skillware.com>
SanFrancisco , CA USA - Saturday, May 28, 2005 6:54 PM CDT
Hi Allyson, Pete, Jasper and Ivy - This path you're on with Ivy has lots of unexpeced twists and turns, like this week's platelet situation. I'm so impressed by your grasp of the medical details. I am knowing deep in my heart that Ivy's strength and resiliency and all the love that infuses her very soul from the incredible circle of family and friends will carry her (and you) through this process. My dear friend Sarah Weld, asked after Ivy this week (as she does every week). I told her Ivy started crawling and how excited we all were about that. Sarah was very moved by this news. (Ivy's life touches people she has never even met.) These milestones in Ivy's growth remind me that her undaunted ability to learn and thrive trumps any diagnosis that we grown-ups are worrying about. On Wednesday Emma, Jasper and I played a game with Ivy that gave her uncontrollable belly-laughs. Em and J hid in Grampa's closet that has horizontal slats in the doors. Ivy and I slid little thin items through the slats and pulled them out the instant Jasper and Emma tried to grab them. Ivy thought this was hysterically funny. The highlight of my week. All my love, Auntie Beth
Beth Schoenberger (Levine) <schoenbrgr@aol.com>
Oakland, CA - Saturday, May 28, 2005 3:41 PM CDT
Hi A.P.I.and J,
We have been away for 3 weeks and we were very happy to read how well Ivy is doing. 90% recovery is great!!!.
Tomorrow we will contribute funds to support the research.
Also congratulations Pete on your new job.
We very much look forward to seeing you very soon.
With love,
Eva and Neal
Eva and Neal <evalinda@skilware.com>
S.F., CA USA - Tuesday, May 24, 2005 11:20 PM CDT
Hi Allyson, Just checking in to see how the fundraiser was. I'm glad you enjoyed it! Awesome biopsy news! Yay!
Caryn Kelly <crackatoa_k@yahoo.com>
Sacramento, CA - Thursday, May 19, 2005 5:45 PM CDT
Ally and Peter: Your two kiddos are truly bonded! During Saturday night sleepover for Night of Hope Benifit , Jasper helped Ivy settle down for her first sleep over: she really counted on his presence and slept through the whole night! Jasper loved making french toast for you two at pickup time It was moving to hear from you two about the work of devoted parents and friends to raise money for Ivy's cure and others' like her.I am deeply grateful to all who have responded to our granddaughter's health challenges and especially to Great Auntie Sara and Uncle David for their support, both monetarily and with their presence, as well as Greg and Alana. As Ivy starts her second week of her second round of chemo tomorrow we hold her in out hearts, look hopefully for a terrific response. Life and she is precious. Your two have your hands full:as you,Pete, start work full time next week and you,Ally,continue working , we will do our part to give Ivy the best days of childcare I can,Mondays,Wednesdays and Fridays, with Jasper falling in around his school times. Nurturing Ivy is an honor. Time spent with both of them is so much a reminder of how dear they are,as are all our loved ones and children. With love and hope, Jenifer Grammie & Ed Grampa
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Thursday, May 19, 2005 1:35 AM CDT
So glad to hear the good news from the biopsy! Hope all continues to go well with Ivy's chemo. I can't believe she's almost 1!!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, May 16, 2005 9:56 AM CDT
Hi Allyson and Pete--such wonderful news re biopsy results--90% claer is great to hear--would hope repeat of last 6 weeks would go as smoothly as first 6--was great to share mom's day with you--enjoyed darling precocious Ivy and Jasper the gem--look forwrd to the fundraiser this week-end. Love Sara nd David
Sara Dezerega <saradezerega@aol.com>
Orinda, Ca USA - Friday, May 13, 2005 0:25 AM CDT
Hi Allyson and Pete--such wonderful news re biopsy results--90% claer is great to hear--would hope repeat of last 6 weeks would go as smoothly as first 6--was great to share mom's day with you--enjoyed darling precocious Ivy and Jasper the gem--look forwrd to the fundraiser this week-end. Love Sara nd David
Sara Dezerega <saradezerega@aol.com>
Orinda, Ca USA - Friday, May 13, 2005 0:24 AM CDT
Dear Pete and Allyson--so relieved and happy to hear the results of the biopsy--90% clear is wonderful news-- would hope a second round of the same treatment should go as smoothly as the first. Enjoyed our mothers's day with all of you--Ivy is such a precocious darling and Jasper a gem--I enjoyed time spent with each of them--look forward to the Sacramento fundraiser this week-end--Love Sara and David
Sara DeZerega <saradezerega@aol.com>
Orinda, CA USA - Friday, May 13, 2005 0:18 AM CDT
Allyson, Pete, Jasper, and Ivy,
It is so great to hear such wonderful news. I am always thinking of you and hoping for the best. May many more positive experiences come your way!
Jennifer <jldare@msn.com>
Walnut Creek, CA - Wednesday, May 11, 2005 11:07 AM CDT
Happy Mother's Day Ally. May you enjoy all the little joys of this first one with Ivy. You and Peter are such a terrific team as parents and do it smoothly, despite the difficult week ahead and decisions that face you. With the children, you offer times to pick garden grown tomatoes, smell the rose, bake and eat the chocolate chippers and be on time for preschool pick up and find the best authoritative advice for chemotherapy, something no one should ever have to do. Know Ed and I and Beth and family are with you in body and spirit and, as alien as this time may seem, you are not alone. We love you. Grammie-Jenifer
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland , Ca USA - Sunday, May 8, 2005 4:39 PM CDT
On this special Mother's Day, wishing you, Ally, joyful moments of shared times with Jasper and Ivy, and you and Peter, who shares this parenting role 50/50 with you-minus the nursing part- continued strength and courage. You are an amazing team! I know the week ahead is a hard one and decisions are tough with such limited information but Ivy and Jasper and the rest of us know that you are giving your very best as parents to offer your two dear ones the fullness of life, whether it is smelling roses, picking tomatoes in the family garden, selecting fun library books, baking chocolate chippers, or on-time pick ups from preschool school or which regiment of chemotherapy to use, you are devoted and on it. I am so blessed to see Ivy reach for the coffee table edge and pull herself up on her legs: there is no holding her back and she is a little miracle! Love, Grammie- Jenifer
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, Ca USA - Sunday, May 8, 2005 4:30 PM CDT
Hoping that all goes well with Ivy's procedure and the biopsy. Keep the faith! You guys are in my thoughts daily.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, May 6, 2005 2:38 PM CDT
We're thinking of you. Sorry to hear of these troubling symptoms Ivy is having. Hopefully they are just little bumps in her road to recovery. Rachel, the little girl I told you about from dance, had her bone marrow transplant last night. I'm praying for all of you guys.
Love,
Carol & the girls
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Friday, May 6, 2005 11:03 AM CDT
I hope Ivy's biopsy goes well and you get great results.
Keeping you all in my thoughts and prayers, (((hugs)))
Robin - Dec 01
Alabaster, AL US - Friday, May 6, 2005 7:24 AM CDT
Sorry to hear that Ivy may need a different stronger treatment rather than the maintenance dose you were hoping for--hope the biopsy goes well and gives the needed info--we think of all of you all the time and our hearts are with you and Ivy--all our love, David and Sara
Sara DeZerega <saradezerega@aol.com>
Orinda, Ca USA - Thursday, May 5, 2005 11:41 PM CDT
Auntie Beth here, just checking in to say I love you. My prayers for Ivy and all the little ones who cross your path at CHO never stop. Peter and Allyson, you deserve medals for strength and resiliency!
xoxoxoxoxox! beth
Beth Schoenberger <schoenbrgr@aol.com>
Oakland, CA - Thursday, May 5, 2005 2:25 PM CDT
Auntie Beth here, just checking in to say I love you. My prayers for Ivy and all the little ones who cross your path at CHO never stop. Peter and Allyson, you deserve medals for strength and resiliency!
xoxoxoxoxox! beth
Beth Schoenberger <schoenbrgr@aol.com>
Oakland, CA - Thursday, May 5, 2005 2:24 PM CDT
Ally and Ivy - hope procedure goes well next week and nothing is found. Ivy continues to be in my thoughts and prayers
Kelly - Dec.01 PG
Chicago, IL - Thursday, May 5, 2005 1:30 PM CDT
Ally, Ivy, Pete and Jasper,
I hope the next phase of Ivy's treatment goes smoothly. I also hope that the gastro doctor does not find any LCH lesions. Keeping you in my thoughts and prayers. Congrats on being "almost" mobile little Ivy. You are such a joy to your family!
Toni -- December '01 Playgroup
Tulsa, Ok USA - Thursday, May 5, 2005 9:43 AM CDT
We'll say a whole lot of prayers that the scope shows that there's no LCH in there! You are always in our thoughts and we hope that you get the information you need to make the best decision you can about her treatment plan.
Lots of hugs,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Wednesday, May 4, 2005 5:58 PM CDT
Allyson I am Taya and Anyas great grandmother, Freds grandma and I met you when you were here to see Carol. Carol told me about Ivy and gave me the website, Ivy is beautiful and such a brave and happy little girl, she is surrounded with the love of you and Pete and Jasper. My prayers are with you and all the children in need. Bless you all and bless you for the website.
Judy Pascarelli <jwpasco@comcast.net.>
Olathe, Ks USA - Tuesday, May 3, 2005 10:23 PM CDT
Ivy,
Great to hear you are making progress. We met you while in the hospital with our son Dillon (www2.caringbridge.org/ca/dillon/) We pray for your continued strength and God's blessing to be with you.
Dillon's Dad
Richard Clark <rlclark103@comcast.net>
Alameda , CA USA - Monday, May 2, 2005 1:40 PM CDT
I work with Carol Thonen and she told me about Ivy...She is in my prayers every day also your family. Thanks for the updates..
Sharon Dobson <katysue47@sbcglobal.net>
Olathe, KS Johnson - Saturday, April 30, 2005 9:27 AM CDT
Hi Ally,Pete,Jasper and Ivy,
Thanks for keeping us up to date. I think of you often and keep Ivy in my prayers.
I think is wonderful that she put on another pound. She looks so lovely in the picture. You would not know that she was sick.
In my thoughts I see Ivy as this wondefully energetic, vivacious little girl full of life, encircled by her lovely family.
With love from Eva and Neal
Eva Tomlinson <evalinda@skillware.com>
San Francisco, CA USA - Friday, April 29, 2005 3:34 PM CDT
Thanks for the news!
We're always thinking of you here.
Lots of love,
Carol, Taya, & Anya
Carol Thonen <thonen.carol@kc.sysco.com>
Olathe, KS USA - Monday, April 25, 2005 9:17 AM CDT
I am so glad things are going as well as can be hoped... maybe even better? And thank you for keeping us updated, in the midst of all you have to do. Keep the faith, guys.
xxoo Amy D.
- Sunday, April 24, 2005 6:58 PM CDT
What a gift this website is! A great way to come back from vacation, to such wonderful news. In our prayers there are some great images coming up of Ivy as an older child, and a healthy, happy adult. Here's to hope and love!
Randy and Caroline
Loleta, CA USA - Sunday, April 24, 2005 12:51 AM CDT
I see you, Allyson, nearly everyday but want Pete, Jasper, and Ivy to also know how much I think of you guys. I keep little Ivy in my thoughts and I am so happy to hear that she is doing so well.
Jennifer <jldare@msn.com>
Walnut Creek, CA - Friday, April 22, 2005 6:04 PM CDT
Hi Allyson, Pete, Jasper, and Ivy -- I am so glad to hear that the treatments are going well, and less upsetting to Ivy than I was worried about. I'll keep sending the butterfly vibes your way!
Tania
- Friday, April 22, 2005 5:28 PM CDT
We're so happy to hear that Ivy continues to do well! I will think of you at 2:00 am or so...that is when Patrick used to wake up and demand some pancakes (or popcorn or macaroni or meatballs or, some nights, all of the above!). Hopefully the sleeplessness will subside soon and you will all be better rested!
(((hugs))) to all of you! Let's hope both of our kiddos can kick this LCH!
See you soon...
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Friday, April 22, 2005 0:21 AM CDT
That's great news that Ivy is handling things so well. She is such a bright light - it makes it easy to hold her in our thoughts! Thanks for sharing this site.
Al, Lynn and Katie <alwanger@sbcglobal.net>
- Wednesday, April 20, 2005 1:37 AM CDT
We are so glad Ivy is making such great progress! She seems like such a determined little girl watching the way she gobbles down her food, verbalizes when she wants you to help her walk and loves to kick the ball. We have really enjoyed spending time with her and will keep her in our thoughts and prayers.
Ilana, Greg, and Isaac
- Tuesday, April 19, 2005 9:27 PM CDT
Your whole family will remain in my thoughts and prayers. That you for letting us into this site. It will be great to follow along with her care.
Dawn <damellott@yahoo.com>
Hollidaysburg, PA USA - Tuesday, April 19, 2005 12:06 AM CDT
Keeping Ivy in my prayers daily! What a lovely website! Thanks for sharing!
Stacey <staceyaf@hotmail.com>
NE - Tuesday, April 19, 2005 10:19 AM CDT
Ivy and the family are in our prayers.Very relieved to hear the doctors are pleased with her progress. Sending lots of hugs!!
Paula Riecke <priecke@stph.org>
Mandeville, La. USA - Tuesday, April 19, 2005 7:45 AM CDT
Keeping Ivy in our prayers and I am so glad she is responding well to the therapy so far!
Mary <mnehring@carolina.rr.com>
Belmont, NC USA - Tuesday, April 19, 2005 7:30 AM CDT
I will be praying daily for Ivy's recovery.
Michelle
Southeast, MI USA - Tuesday, April 19, 2005 7:04 AM CDT
Allyson, this is a wonderful site for all of us to stay informed with Ivy's progress! I am so glad to hear Ivy is doing great!
Valerie <val_ea@yahoo.com>
London, Ohio Usa - Tuesday, April 19, 2005 6:52 AM CDT
Love "Ivy's" site. What a great way to start it up with some good news. Love to you all.
Harvey
- Monday, April 18, 2005 6:03 PM CDT
Pete, Allyson, Jasper and Ivy,
We admire and respect you for your courageous and loving response to this challenging situation. You are all stars in our minds. We think of you every day in our quiet moments. We wish safety and calm for all of you. love, Dale and Norm Greene
Dale and Norm Greene <dale@puzzlering.net>
Albany, Ca USA - Monday, April 18, 2005 5:42 PM CDT
What great news! Ivy is a strong lady and I am confident she will pull through this with flying colors! Sending lots of love, support, and hugs from NC!
love-Becky
Rebecca Ellin <rebecca_ellin@yahoo.com>
Beaufort, NC USA - Monday, April 18, 2005 3:39 PM CDT
Ivy's Life force is as strong as it comes: although carried in a delicate body, she marches proudly, holding suppportive hands, across the floor and world, touching and uniting us all as her life cyle unfolds and evolves like a beautiful butterfly. She is truly loved. Blessed be - Ivy, Allyson, Peter and Jasper. You have our support and caring.
Love, Grammie-Jenifer
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland, CA USA - Monday, April 18, 2005 12:51 AM CDT
Best wishes and thinking of you all.
Hope springs eternal. --Doug
Doug Macmillan <dmacmil@excite.com>
Berkeley, CA USA - Monday, April 18, 2005 12:21 AM CDT
Thank you for keeping us up to date - the website is a great idea. My best wishes to you all.
Chris Parry <chris.parry@sbcglobal.net>
Berkeley, CA USA - Monday, April 18, 2005 11:37 AM CDT
What a wonderful use of the web - thanks!
Bill VB
San Mateo, CA - Monday, April 18, 2005 11:25 AM CDT
Thanks Al for creating the website, and keeping us updated -- there is certainly no shortage of good energy, love, and prayers that are being sent to each of you as Ivy regains her health!
Rebecca <rebeccakroth@yahoo.com>
Oakland, CA - Monday, April 18, 2005 10:46 AM CDT
Great News! I hold you guys in my heart everyday! And think how brave and resolute you are! The girls send their love.
Love, Tracy, Jennifer & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, CA USA - Monday, April 18, 2005 10:45 AM CDT
We're so happy that Ivy is responding well to the treatment! Patrick had a high fever this weekend, but otherwise the 6-MP is going ok. Hugs to you all! See you in May
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Monday, April 18, 2005 9:37 AM CDT
So happy to hear that Ivy is responding well to her treatments. Sending prayers for continued improvement and weight gain!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, April 18, 2005 9:07 AM CDT
Ivy and family will continue to be in my prayers. I am so happy to hear that Ivy is responding so well to her treatment...may that continue with even more amazing results!
Wendy (Dec 01 playgroup)
San Diego, CA - Monday, April 18, 2005 0:13 AM CDT
i think about you your little Ivy and how brave she is i will continue to keep her in my prayers
uncle Chris and 2nd cousin Stephen <CJCorbett@aol.com>
- Sunday, April 17, 2005 11:10 PM CDT
I was so happy to read how Ivy is doing. The weight gain is awesome!
Would it be ok with you if I put a link to Ivy's site at www.cs.tufts.edu/~cowen/tmb ? I want people to know there are compelling reasons to still try to fight LCH! Thanks,
Lenore (Cowen) <cowen@cs.tufts.edu>
Cambridge, MA USA - Sunday, April 17, 2005 7:57 PM CDT
Hi,lovely family
Great idea to give us update in this way.
We were happy to spend time with you all this week. Enjoyed both kids they are darling.
Love,Eva
Eva <evalinda@skillware.com>
San Francisco, CA USA - Sunday, April 17, 2005 7:41 PM CDT
Hey y'all! I'll add your website my favorites. This is great.
So glad to hear the good news, especially about the weight gain and disappearing rash. Go Ivy!
Susan <suwaligi@hotmail.com>
Pittsburgh, PA USA - Sunday, April 17, 2005 7:18 PM CDT
Glad you guys got the website up and running. Really wonderful. You know my love is always with you, even when I'm not. Kiss Ivy and J for me today. xox Beth
Beth Schoenberger <schoenbrgr@aol.com>
Oakland, CA USA - Sunday, April 17, 2005 6:54 PM CDT
Thanks for putting this together to keep us all informed and know that I'm holding Ivy and her loving family close to my heart each day.
Stefano DeZerega <sdezerega@sbcglobal.net>
San Francisco, CA USA - Sunday, April 17, 2005 4:31 PM CDT
Great news!
Amy Golden <amgolden@yahoo.com>
Berkeley, CA United States - Sunday, April 17, 2005 3:54 PM CDT
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