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I love watching Ivy turn cartwheels, spring into the air on the trampoline, and read aloud her current favorite poetry book, "Where the Sidewalk Ends." What a happy 8th birthday. She makes my heart skip a beat with her huge smile. Our family is so blessed, so grateful for the miracle of Ivy. Pete and Allyson, you deserve medals of bravery. Much love,
Beth Schoenberger <schoenbrgr@aol.com>
Oakland, CA - Tuesday, June 19, 2012 8:18 PM CDT

Silly to be writing when I live across the street, but just hearing that Ivy had a cold yesterday... I somehow found myself back here at caringbridge. I know she's FINE, and just gets a cold now and then like every other 6 year old. Still, we never forget the hard days documented here, and count each day with her as a blessing. She's vibrant, energetic and healthy now and I know all is well. Love,
Auntie Beth <bethschoenberger@gmail.com>
- Tuesday, March 1, 2011 1:48 PM CST

Hi there! Wow, Ivy's story starts out sounding a WHOLE lot like my Emily's story. Em was born in January of 2004, diagnosed (after weeks of pushing the pediatrician and dermatologist) in May of 2004. We had the same issues you did with them saying it was molluscum, diaper rash, no big deal. So glad both of our little girls got the diagnosis they needed early on! Em responded to the steroid cream for the rash, only to have her liver and spleen become involved 4 months later. She did the prednisone and 6 months of chemo and has been in remission ever since! So glad to hear that Ivy is doing well!!! Wonderful to hear a story like yours! =o)
Amy <amyebruce@aim.com>
Trenton, mi usa - Saturday, February 12, 2011 3:07 AM CST

Hi, my name is April Hatcher, My Son Corbin has LCH of the Skull.(localized)
He will be 14 in April and doing well. I found you on the Baron's blog and thought I'd send a message.
I know around 180 or so families on Facebook with a Histio
Disease.
If you have a Facebook let me know. Hope all is well.
God Bless.
April Hatcher <aprilshowers1973@msn.com>
Pocatello, ID USA - Tuesday, January 19, 2010 10:56 PM CST

We are thinking of you all and hope both Ivy and Patrick's pains turn out to be just normal kid things! We will know more on the 14th and will keep you posted. Please do drop us a line if you find our more about Ivy....we are always thinking of you all!

Hope your Christmas preparations are fun!

Love and hugs,
Pam, Tom, Devin, & Patrick
Folsom, CA USA - Saturday, December 5, 2009 11:50 PM CST

Hi Allyson,

Glad to hear Ivy is doing great! Amongst all the bad stories out there it is inspiring to hear positive news from your end. You should read up on Cole, we finally received some news to allow us to take a big sigh of relief! Happy Holidays to you and your family.

Holly
Holly <hatch1_holly@yahoo.com>
Oakland, ca usa - Wednesday, December 2, 2009 11:01 PM CST

I'm so happy to hear that Ivy is doing so great!!! Maybe we'll run into you all on Christmas Tree Lane this year. Take care,
Love Diane (Dillon's Mommy)
Diane Clark <nollidclark@yahoo.com>
Alameda , ca - Monday, November 2, 2009 10:16 PM CST

Hi guys-just checking in-it has been awhile! Sounds like things are going good for everyone-congratulations on the new baby! Everyone looks great! Kristine and Aidan caringbridge.org/ks/aidan
Kristine Hagerty <hagertykristine@yahoo.com>
Omaha, NE - Friday, October 23, 2009 10:13 AM CDT

Greetings from New Jersey! You were actually kind enough to communicate with us a year ago when our son Jacob (turns 3 on Dec 7th) was unconscious in the PICU in Hackensack due to complications from LCH. Since then his 2CDA and ARAC treatments were very successful, as were the past 6-8 months of Vinblastine. Now he is doing so well...energetic, growing, happy, in school, and we're starting oral maintenance for a year. We wanted to deeply thank you for your words of guidance and encouragement, as it was all we had to go on during a very scary time. I'm happy to say we are some of the lucky ones for sure. We are elated that Ivy is doing so well too! What a blessing...

Much Love...The Barons (Reis, Melissa & Jacob Skye)
Reis Baron <reis.baron@gmail.com>
Randolph, NJ USA - Thursday, October 22, 2009 10:46 PM CDT

We are so glad that Ivy is doing so great! Good luck at school Ivy.
The Behl's-Brian, Vicki, Brooke, Samantha and Kendall
www.caringbridge.org/visit/kendallbehl

Vicki Behl <vickibehl@hotmail.com>
Mukwonago, wi usa - Tuesday, October 6, 2009 2:27 PM CDT

My 4 yr old was diagnose with lch on right femur.. she is on chemo, the dr. said she only has a couple more until december !!! We are so happy but scared at the same time we dont know what might happend. The dr. also said she might have something called diabetes insipidus, we are crossing our fingers and praying so that she doesnt...
Pamela <dany.monce@hotmail.com>
Columbia, TN - Friday, October 2, 2009 12:21 AM CDT

Glad to learn that Ivy is doing great. We also have a baby who diagnosed with LCH on October 27, 2008, and started his chemo right away.
Now we have only six weeks of maintenance left, that is, 2 cycles of Vincristine. But, even we are so desperately want to have a normal life without these meds, stopping chemo is more terrifying than starting it, because the percentage of relapse is so high. So, in any chance, do you know any LCH patient who doesn't relapse or who is skin-only (we are so lucky we are, at least by now)? We just want to know more good news and be more confident.
And another information I've got from your journal "just getting her to 8 years old, then the disease will burn itself out", Is that true? I know some adult LCH patient.
Rita <rita.ju@mic.com.tw>
China - Wednesday, September 30, 2009 1:40 AM CDT

I wish we could make it for the hike this year. Money is tight. I am shooting for spring break if all goes well. I am glad this day has finally come and here to stay hopefully. I am speaking of Ivy of course and her remission. Can't wait to see you all again. It has been too too long. My dad is turning 79 on the 29th. I have been trying to get things in order. He is probably going to be going to a retirement assisted living community. I am taking it slow to transition by going to school full-time online and only working part-time so that I can keep an eye on him. He has been doing great here as of late.

Lots of luv,

Carol and the girls!!
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Tuesday, September 22, 2009 1:58 AM CDT

Dear Ivy,

I hope & pray that by God's grace & blessings you grow up & live your whole life as a healthy & lovely lady. My best wishes are always with you.
Sumit Chakravarty <timus05@rediffmail.com>
Bangalore, Karnataka India - Monday, September 21, 2009 10:39 AM CDT

Love the new photo! We are looking forward to seeing you all in Yosemite and catching up!

See you soon!

Love, Pam & the boys
www.caringbridge.org/visit/pjs
Pam, Tom, Devin, & Patrick
Folsom, CA - Wednesday, September 16, 2009 3:56 PM CDT

Sending thoughts and best wishes to Ivy, wondering how she is doing!!
Suzanne
Richmond, CA US - Wednesday, August 26, 2009 10:42 PM CDT

My name is Giana Dean and i am just two years old. I was just recently diagnosed with LCH.... wish me luck and please pray for me. Thank you
lisa Pierson (Giana's mommy) <kuplast@msn.com>
travis afb, ca united states - Tuesday, August 18, 2009 12:56 AM CDT

I keep checking in and as previously said hopefully no news is good news. I would love to see an updated picture, I know all three have grown, especially the baby. My prayers continue to be with your family. Here's hoping good health for all and a great summer (what's left of it!)
Linda Corn <sweetcorn1@msn.com>
Brownsville, KY - Tuesday, July 28, 2009 8:47 PM CDT

Happy Day-After-Ivy's Birthday! 5 years old! How wonderful! Hope you had a great celebration, and that this long stretch is a case of no news is the best news. Lots of love to you all,
Caroline, Randy and Sarah
- Tuesday, June 16, 2009 10:35 PM CDT

It's the weekend before Ivy's b-day. I'm guessing there will be some partying going on. We're thinking of you. Happy, happy birthday amazing little girl!
Susan & co. <susaneswift@hotmail.com>
Redmond, WA USA - Friday, June 12, 2009 11:21 PM CDT

Hip Hip Hooray!!! Exciting news!!!
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Wednesday, May 13, 2009 1:39 AM CDT

Happy Mothers Day!!
Caroline, Randy and Sarah
- Sunday, May 10, 2009 10:58 AM CDT

Your update brought tears to my eyes. I can see the FIVE of you thriving, each in your own ways, and am so happy. The port is gone! (But not forgotten; what a beautiful balance you have achieved.) May the skin rash pass, as moisture seeps into all of you after this incredibly parching time. May each of you continue to thrive, and inspire the rest of us as you have done for so long now. We love you so much,
Caroline, Randy and Sarah
- Saturday, April 25, 2009 11:31 PM CDT

That is awesome news that Ivy is off all meds and getting her port removed. This is awesome! Wow, you all have been soooo strong thru all of this. I can't wait to see you all and the latest addition.

I do have some bad news! )-: A little girl at our dance studio only 3 years old was diagnosed with Leukemia less than a week ago. I gave her a link to your website. I thought she might draw some strength from someone who has been down that long, long road.

http://www.caringbridge.org/visit/kalistavesely

Warmest wishes!

Carol & the girls
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS 66062 - Monday, April 13, 2009 4:55 AM CDT

Wowo lots of great news. Congratulations to Ivy on the port out and off all medicines. What a nice break for her I am sure. Continuing our prayers as always!
Valerie <val_ea@yahoo.com>
Oh - Monday, April 6, 2009 7:03 AM CDT

Wow...having the port out will be a HUGE milestone for Ivy. We are rooting for her! Life has been much better since Patrick's has been out. We got out of an ER visit just last week b/c counts had just been done and he had NO port! Yipee!

June 6 is scheduled for the HAA regional meeting and Hike for a Cure kick-off at Stanford. I hope you guys can come this year! We are eager to meet Juliet and say hi to you all.

Wishing you the best with the port removal!

Love and hugs,
Pam, Tom, Devin, & Patrick
Folsom, CA USA - Sunday, April 5, 2009 3:43 PM CDT

Okay, we're taking some deep breaths, anticipating port removal and continuing reducing need for meds. 9 1/2 hours! May that be the record, never to be even come close to again! Good health and spring fever only to you all. Love,
Caroline, Randy and Sarah
- Saturday, April 4, 2009 10:53 PM CDT

Just caught up with your last couple of posts. Hurray for excema! At least when it means it's not LCH! And ooooh, that appt sounded traumatic. It must take awhile to recover from that... But I'm so happy for the good news.
xoxo Jill
Jill Donaldson <canyeshna@hotmail.com>
- Wednesday, March 25, 2009 11:31 PM CDT

Great news! Love to you. T, J &K
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Wednesday, March 25, 2009 7:21 PM CDT

Halleluyah!So happy to have the non-dx confirmed! Happy soothing baths and great gobs of hope! Many prayers and much love,
Caroline, Randy and Sarah
- Wednesday, March 25, 2009 12:36 AM CDT

Boy did that bring back memories (and tears to my eyes)of trying to get Kaylee out from under the exam table (and that was just for well check!) I guess one thing to remember, is a lot of times when Ivy had to go through medical proceedures, she was really ill, so was inclined to be more cooperative. Now she is feeling good (except the rash), is older & more sophisticated and therefore more willing to protest! So sorry you all and to go through such a scene! Someone already mentioned, rewards & bribes can help lots with getting through these doctor visits. Hoping biopsy comes back neg for LCH!
Love to you all
Tracy, Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Wednesday, March 18, 2009 2:50 PM CDT

Whoa! What a bummer. Well, guess it had to happen sometime that Ivy would protest in a big way. Hope this phase'll pass quickly. Really hope your ear has stopped ringing and that your nerves have returned to normal after that horror show. Really, really hope Ivy is recovered from the fit and all tests are the most benign results possible. Thank you for writing! Much love to you all, and incessant prayers,
Caroline, Randy and Sarah
- Wednesday, March 18, 2009 9:27 AM CDT

Oh, man, what a rough day! I'm sorry. Liam went through periods of uncooperativeness with medical personnel, too. All I can suggest is that bribes and rewards work pretty well. I'm glad she only has one stitch. Fingers crossed that the biopsy is negative for LCH. Lots of hugs!
Susan
Redmond, - Wednesday, March 18, 2009 1:25 AM CDT

Just stopped by to catch up! Sorry to hear the latest! The girls are very excite to come for Hike for a Cure in September and see everyone. (-;
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Tuesday, March 17, 2009 9:06 PM CDT

I'm so sorry Ivy (and you) had to go through that. I've been fighting Stage 3 Vulvar Cancer since June, 2007 and the tumor keeps coming back. Needless to say I keep having to have biopsies and it can be very traumatic and I'm an adult. No child should have to go through what a child with cancer has to go through. I have been following Ivy since she was a baby. My prayers are with all of you
Linda Corn <sweetcorn1@msn.com>
Brownsville, KY - Tuesday, March 17, 2009 8:15 PM CDT

Hi Guys,
Saw your post on the HAA site. Hope the rash is getting a little better.
Jack's ferritin was over 15,000 at one point. Yes, that isn't a typo. Right now, it is around 3,000 and they are not concerned given the number of transfusions he has had. It will SLOWLY go down over time.

Ferritin is part of the HLH diagnosis and while 500 is alarming, they don't consider it an absolute until it is over 5k.

Not saying 700 isn't something to ask the doctors about, but like you have probably figured out by now, it is prob. due to previous transfusions.

best to you guys!
Chad Rubin <crubin21@hotmail.com>
Springfield, NJ USA - Monday, March 9, 2009 2:40 PM CDT

Here's to hoping the rash is a med reaction and all continuing to improve. What a crazy roller coaster! Much love to all you laughing sweethearts,
Caroline, Randy and Sarah
- Saturday, March 7, 2009 11:13 PM CST

Hi I have not been to Ivy's page in awhile and seen your posting on the histio site. Your baby is adorable. My where has the time gone to. Ivy is gorgoues and Jasper is a cutie pie too. Lovely family.
I am so sorry about Ivy's mysterious rash. I hope it turns out to be NOTHING!!
God bless you all.
Tammy and Bri'anna
www.caringbridge.org/visit/princessbreezie
Tammy Zimmermann <ncqtpiets@aol.com>
Asheville, NC - Friday, March 6, 2009 4:48 PM CST

I haven't looked in on you guys in a while. I'm glad that things are going well. What beautiful long hair Ivy!
Melissa Phillips <meliciousmommy@yahoo.com>
Rohnert Park, Ca USA - Wednesday, March 4, 2009 9:11 PM CST

I "stopped in" today to catch up on Ivy.. I am thrilled to hear that the chemo finished in Dec.. And since no more updates for Feb, I'm going to assume it went out like a lamb.. Continued prayers and best wishes for your family!!

Kathy Curran
MO - Wednesday, March 4, 2009 10:31 AM CST

Now that we're fully into March, the no news from February is truly good news. We hope Jasper's foot is healing well and that Ivy's better health is getting better and better, and that Juliet and parents are thriving as well. Much love,
Caroline, Randy and Sarah
- Wednesday, March 4, 2009 9:23 AM CST

Hi Allyson!
Been thinking about you. We have to get together soon!
that Jasper...hope his foot heals fast!
Caryn <crackatoa_k@yahoo.com>
- Thursday, February 12, 2009 1:43 AM CST

LOVE the new pictures! Love Tracy
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Tuesday, February 10, 2009 10:48 AM CST

We, too, are glad to hear the "boring" news. Yay for Jasper's foot healing, and picturing a month with no medical problems for Ivy (as a harbinger of things to not-come). Love to all 3 of your wonderful children, and to you, two,
Caroline, Randy and Sarah
- Friday, February 6, 2009 10:38 AM CST

Great news on Ivy! Glad Jasper is not too badly hampered by the broken foot! Love to you all, and here's to a really boring February!
Tracy Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Thursday, February 5, 2009 4:15 PM CST

A whole month without new news! We're thinking this is a really good sign. Wishing you all a happy February! Love,
Caroline, Randy and Sarah
- Sunday, February 1, 2009 12:22 AM CST

Happy Year of the Ox! Hope you are well and strong!
Iris Moy
Oakland, - Monday, January 26, 2009 7:19 PM CST

We're thinking no news is good news, and glad Allie can take these breaks from writing to attend to everything else life offers and demands. Continuing prayers for Ivy's complete healing, and the well-being of all 5 of you. Love,
Caroline, Randy and Sarah
- Thursday, January 15, 2009 9:18 AM CST

How fantastic to read that everyone is well! Love and good wishes in 2009!
Rebecca, Joe, Gianna, and Adilene <rebeccakroth@yahoo.com>
Danville, VT - Wednesday, January 14, 2009 9:59 AM CST

Happy New Year!! Ivy, Allyson, and Jasper, it was such a treat to see you when we were in town, and to meet Juliet!
love, Sarah and Kurt
Sarah van der Schalie <sarah_borchelt@yahoo.com>
Bethesda, MD - Wednesday, January 14, 2009 7:14 AM CST

Happy New Year to you all! What wonderful news that everyone is doing so well!! Love and hugs-Becky
Rebecca Ellin <rebecca_ellin@yahoo.com>
Morehead City, NC - Friday, January 9, 2009 5:53 PM CST

Here's to a healthy happy New Year for all 5 of you. We do think of you all so often, even though we haven't gotten together for a while. We especially love the photos on this site, which we check regularly to keep up.
love, Norm and Dale
Dale and Norman Greene <dale@puzzlering.net>
ALBANY, CA USA - Monday, January 5, 2009 6:06 PM CST

Happy New Year! We hope you have a HEALTHY and happy one!!! I am so glad to hear that the news of Ivy is good-- we are thinking of you.

Ilana and Greg
- Friday, January 2, 2009 10:30 AM CST

Happy 2009. No, we did not stay up past midnight, not even Sarah. But we're praying 2009 is an even better year for Ivy, all of you, and everyone everywhere. Love,
Caroline, Randy and Sarah
- Friday, January 2, 2009 10:29 AM CST

wooo hooo!! no more chemo! that makes me so happy! i know you are relieved! but i also know how no one wants to get too excited because you dont want your excitement taken away with a relapse. we all know how tricky this disease is! but for now, all is good and i couldnt be more happier for your family!!! merry christmas!
Dana <Danarane24@yahoo.com>
- Tuesday, December 23, 2008 9:50 PM CST

Yay! No more Chemo! Complete remission! I will keep the chant in my mind and my heart! Have a wonderful holiday! Our love to all of you!
Tracy, Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Tuesday, December 23, 2008 6:05 PM CST

Yay what wonderful news! Merry Christmas to your family. Praying this will be the end of chemo forever!
Valerie <val_ea@yahoo.com>
- Monday, December 22, 2008 6:52 AM CST

Happy news! Love and hugs to everyone.
Al, Lynn and Katie
Al Wanger <alwanger@sbcglobal.net>
- Sunday, December 21, 2008 6:34 PM CST

Halleluyah! May this time be the charm. Repeat after us (we're repeating after you!),"No More Chemo. No Relapse. Complete Remission. No More Chemo. No Relapse. Complete Remission...." Sparkling spirits and health to you all this season, happy Chanukah, Christmas, Solstice, New Year and the Works! Love,
Caroline, Randy and Sarah
- Saturday, December 20, 2008 11:33 PM CST

CONGRATULATIONS on finishing chemo! Woo hoo!!! I know the "waiting for the other shoe to fall" feeling, but let's hope that this is really, once and for all, really and truly it and that Miss Ivy will be poke free for always.

We're always thinking of you all! Hope your holidays are happy!!!

Many hugs,
Pam, Tom, Devin, and Patrick
Folsom, CA USA - Saturday, December 20, 2008 9:14 PM CST

hey! i am sorry to hear about the possible -infection- @ the port sight. That must be horrible. Hope you all have a happy holiday!
If you get a chance, please email me @ Danarane24@yahoo.com I have a few questions about Ivy's treatment.
Dana <Danarane24@yahoo.com>
- Thursday, December 18, 2008 5:09 PM CST

Hearts reaching out to hold the frustration with you. We hope that resolution of each problem has moved along, and pray that soon all medecine will be done, and a lively and vibrantly healthy Ivy is breathing sighs of relief (along with the rest of you/us). Lots of love,
Caroline, Randy and Sarah
- Sunday, December 14, 2008 4:32 PM CST

I am thinking of you and keeping my fingers crossed. Sorry about the bump, and all the bumps in the road.
Julia Clements <julialp@pacbell.net>
Oakland, cA uSA - Wednesday, December 10, 2008 10:54 PM CST

Great sigh of relief. Seeing a vibrant and happy Ivy, growing strong. Love,
Caroline, Randy and Sarah
- Tuesday, December 9, 2008 9:24 AM CST

Thinking of Ivy, and all of you today. May the surgery go smoothly, leg infection be completely eliminated, and soon the day she is done with all constant med schedules. Much love,
Caroline, Randy and Sarah
- Monday, December 8, 2008 10:51 AM CST

Thanks for the update. Poor, sweet Ivy! May this surgery turn the corner for her! Prayers. and love to you all,
Caroline, Randy and Sarah
- Friday, December 5, 2008 9:43 AM CST

Thinking of you with love, as always,and a happy birthday to Jasper,
Caroline, Randy and Sarah
- Tuesday, December 2, 2008 9:26 AM CST

Hello, my god bless you and your family. Just like my grandson AAmari, Ivy will be fine, she has a purpose here from god. She is very beautiful. Have faith in the man above.

Blanche Culbreath <blancheculbreath@msn.com>
Copperas Cove, Tx usa - Monday, December 1, 2008 8:43 PM CST

Thanks for writing! These updates are a lifeline for us. Bummer that Ivy had to back on more meds. Poor bunny! What an amazing little body she has. Looking forward to the end of chemo, and the lesion being gone, whether miraculously or by skilled surgery. Much love to you all,
Caroline, Randy and Sarah
- Friday, November 14, 2008 9:33 AM CST

So sorry that Ivy is feeling poorly. I hope that she's feeling better soon. That is a beautiful picture of Juliet!
Carol
- Thursday, November 13, 2008 3:53 PM CST

I have a broken hand and typing is a drag!!!! Thinking about you guys Ivy, the new baby and the lil' man!!!
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Thursday, November 13, 2008 2:28 PM CST

We figured you must be beyond busy with three children, and that if things were really bad with Ivy you'd write sooner. That said, we're really bummed that Ivy's feeling crummy, and hope for a speedier recovery from the tummy thing, at least. And will keep praying for a miracle healing of her leg lesion. Thinking of you so often, and with much love,
Caroline, Randy and Sarah
- Wednesday, November 12, 2008 9:35 AM CST

Thinking of Ivy. I wish there were not another surgery for her, but I will be praying for a very successful one.
Valerie
Oh - Wednesday, November 12, 2008 6:52 AM CST

Congratulations on the birth of your new baby. Juliet is absolutely gorgeous!!
Hope Ivy's leg will heal with the new meds.
Best wishes
Rose Smith <smith01@netvision.net.il>
Israel - Monday, November 3, 2008 11:35 AM CST

Happy Halloween!
Caroline, Randy and Sarah
- Friday, October 31, 2008 9:23 AM CDT

I am so sorry about poor Ivy. I bet she is so disappointed to have to be going this route. How wonderful it would be to start the new year out med free! Here is praying for that to happen.
Valerie <val_ea@yahoo.com>
- Thursday, October 30, 2008 6:45 AM CDT

That sucks about the iv meds, hopefully you will figure a way to get it done without too much hassle. Juliet is unbelievably adorable!!!!
Kelly <kel_hayes@yahoo.com>
La Grange Park, IL - Sunday, October 26, 2008 8:02 AM CDT

OMG! We're so sorry to hear about Ivy needing the infusion, and for so long. May this be the light at the end of the tunnel. Visualizing healed shin, and no more vinoblastin. Sending much love to all five of you,
CAroline, Randy and Sarah
- Friday, October 24, 2008 9:40 AM CDT

Congratulations and welcome Juliet!! I can't wait to see you and meet the newest member of your family in November. I'm glad that everyone is doing well.
Much love-
Becky <rebecca_ellin@yahoo.com>
Morehead City, NC - Wednesday, October 15, 2008 9:03 PM CDT

She is adorable! We cannot wait to meet this newest hiker...will Pete be taking her to the top of Half Dome next fall?!?!? :-)

Hope Ivy can fight off all those germs! We are in low-ish ANC mode, too, and seem to be in the same boat. Like you, we can't wait until the end of chemo!

Hugs to everyone!
Love,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, October 14, 2008 0:47 AM CDT

Congratulations!! Glad to hear all are well and thank you for sharing your jubilant news.
Julia Clements
Oakland, CA USA - Monday, October 13, 2008 10:55 PM CDT

Got Baby? From the looks of a couple of your guestbook entries....I guess you do! Congratulations!! Looking forward to meeting your new little one. I hope and pray that Ivy is doing well and enjoying being a big sister.
Take care,
Love Diane Clark
Diane Clark <nollidclark@yahoo.com>
alameda, ca - Sunday, October 12, 2008 10:23 PM CDT

Hey Congrats!!! Can't wait to see the baby! I love Ivy's recital picture!!! soo cute!! Miss you guys
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Monday, October 6, 2008 10:41 AM CDT

Congratulations on the arrival of Juliet! She is adorable! We look forward to hearing more about what great big sibs Ivy and Jasper are!

Lots of love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Sunday, October 5, 2008 10:06 PM CDT

Hi there folks,

Just thinking of ya'll and hadn't checked this site in a while. Hope you are well and that tomorrow, if still scheduled, goes well.
Kira <kielfo@sbcglobal.net>
Oakland, CA USA - Tuesday, September 23, 2008 7:13 PM CDT

Just checking on Miss Ivy and her soon-to-be baby sister (and Jasper, of course!). Hope you all are doing well...we will miss you in Yosemite this year but can't wait until next year when your new little one will hit the trails!

Love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, September 22, 2008 9:05 AM CDT

Glad the stay in the hospital was short. Thinking of you this week, Al, as you celebrated your birthday. Can't wait to hear baby news soon!
Love, Rebecca
Rebecca, Joe, Gianna, and Adilene
- Sunday, September 21, 2008 9:03 PM CDT

Yay, Ivy's in pre-school, how fun! I can't believe time is going by so fast and the baby is due next week, wow! I'm excited for you.
Melissa Phillips <meliciousmommy@yahoo.com>
Rohnert Park, Ca USA - Thursday, September 18, 2008 9:12 PM CDT

Yay for HOME!
Caroline, Randy and Sarah
- Tuesday, September 16, 2008 9:02 AM CDT

Egads! I'm glad that was a quickie and that Ivy is feeling back to normal.

We'll be looking for news from the maternity ward! Best wishes. You are in our thoughts!
Susan
Redmond, WA - Monday, September 15, 2008 6:54 PM CDT

Prayers for a rising ANC and descending fever, and time at home.
Caroline, Randy and Sarah
- Monday, September 15, 2008 10:16 AM CDT

Amazing! How on top of things you are Ally! Hang in there and enjoy your sleep while you can!
Lots of love to you, Ivy, Jasper & Pete
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Wednesday, September 10, 2008 4:59 PM CDT

Ivy you and your family are an inspiration to our family as our little son C.J. Wright is fighting LCH as well. You are all in our prayers. Take care.
The Wright Family
Dan Wright <dcisapc@yahoo.com>
Johnstown, PA USA - Sunday, September 7, 2008 6:24 PM CDT

It actually has been a joy to check in and not see updates, since that usually signals good news. It's a different joy to get an update, especially since we haven't had a chance to check since 9/2, as Caroline had surgery also on 9/3 - full knee replacement. It's all gone super-well. We've been home since Friday(!), and today getting up and around, with walker, with relative ease. So great to here Ivy's leg sore has been somewhat resolved. We assume no further updates since 9/3 means no nasty dx beyond the necrotic tissue has been uncovered. May it all heal up quickly and completely, her ANC rise and Ivy, and all of you, shine. Much love,
Caroline, Randy and Sarah
- Sunday, September 7, 2008 2:03 PM CDT

Ivy,
So glad to hear you are doing so great! Have a great time in school.
The Behl family
www.caringbridge.org/visit/kendallbehl

vicki <vickibehl@hotmail.com>
- Wednesday, August 20, 2008 9:26 AM CDT

You all are amazing! Enjoy your quiet time, Allie and Pete!
Caroline, Randy and Sarah
- Thursday, August 14, 2008 9:20 AM CDT

Yes, it does sound like quite the balancing act, like a super-exagerated version that all of life is. Well, great prayers for staying on this side of the balance, or maybe better to say for remaining centered on the high wire. We love you so much,
Caroline, Randy and Sarah
- Friday, August 8, 2008 9:34 AM CDT

Hilarious about Ivy. She sounds amazing. Becca still doesn't do that. Great Update. Glad she is doing well!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN 55311 - Saturday, August 2, 2008 6:59 AM CDT

YAY!!!!!!
Caroline, Randy and Sarah
- Tuesday, July 29, 2008 9:40 AM CDT

Great update! So nice to see/hear she is thriving. Great job on the swimming Ivy!
Valerie <val_ea@yahoo.com>
- Tuesday, July 29, 2008 6:50 AM CDT

So good to finally see you all! Everyone looks so healthy, despite all the very present medical challenges. What fun to play and sing together. That Jasper sure is fast on his feet, and Ivy so full of life! Allie and Pete, you just continue to amaze and inspire, (as do the rest of the family - you are all incredible). You are deeply treasured. May it not be so long till we are next joyfully together again, and with Sarah next time. Love,
Caroline and Randy
- Monday, July 28, 2008 11:27 AM CDT

We enjoyed our workout with Jasper and Ivy last Friday--they are such bright, alert, energetic,amazing kids. They are intrepid in terms of barreling down our hillside, rolling in the hay,riding trikes at full speed and generally enjoying life, especially in the swimming pool. Ivy has such a great sense of humor and love of life. Hard to believe her health is sometimes precarious. Blessings on all and hoping for a good delivery of baby sister in September. All our love, Sara and David
sara dezerega <saradezerega@aol.com>
moraga, ca usa - Monday, July 21, 2008 10:41 PM CDT

Wow, it realy is amazing what these doctors are doing, and how strong Ivy is to thrive in all this! Happy camp to Jasper; may you cherish the time apart as well as pine for the reunion. Love to you all,
Caroline, Randy and Sarah
- Tuesday, July 8, 2008 9:34 AM CDT

Aww. It's great to keep up with you and to hear of such wonderful news. Little Ivy looks absolutely happy and stronger than ever in your new photo. Thanks for posting, and best wishes to the whole family!!
Suzanne <Suzannegil@gmail.com>
Napa, CA US - Friday, June 27, 2008 9:26 PM CDT

SO happy to hear Ivy is doing well. Did we mention how much we love the photo of her that opens the page now? She looks so strong and powerful, not to mention good-humored. Enjoy this lovely time. Love to you all. We look forward to, hopefully, finally seeing you again on July 26.
Caroline, Randy and Sarah
- Friday, June 27, 2008 7:37 PM CDT

Hi Guys! Hope you have a nice time in So. Calif! It's realllly HOT today! Predicting 113! So I hope it's cooler on Orange County!
June looks like a great kitty! Happy Birthday to the Huge 4 year old Ivy! Tell Ivy we'll bring pictures of our pets, Frankie the cat & Johnny the dog to show her when we're in the Bay Area in late July!
Love to you all!
Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Friday, June 20, 2008 10:56 AM CDT

Allyson, it fills me with joy to see the new photos, which show that Ivy is undoubtedly full of spunk and life and love. And the kitty is cute, too! Wishing Ivy a belated Happy 4th Birthday!!
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, June 20, 2008 8:21 AM CDT

OMG! That must be the cutest photo ever! I'm so glad Ivy had a happy birthday AT HOME!!! Happy, happy celebration to all of you!

We were in Portland celebrating W's b-day and Father's day, and we were thinking of all of you. Coincidentally, we stayed at the hotel where they're having the kick-off for the Hike for a Cure.

Hope Ivy continues to get better and better! Hugs,
Susan
Redmond, - Friday, June 20, 2008 1:20 AM CDT

We just got back from a long visit to Ireland, so missed hearing about the terrible roller coaster while it was happening. But we're so glad to arrive at the latest entry and see the improving course. What a tough and beautiful cookie she is. And the rest of you as well, hanging in through all this - yes, we know: what's the alternative? But still, you hang in with such grace, it's really awesome to read. Looking forward to finally seeing you when we're down in Oakland the last weekend of July! Prayers and love, as always,
Caroline, Randy and Sarah
- Wednesday, June 18, 2008 9:32 AM CDT

Happy Fathers Day Pete. Hope you all and a great day!
Love, Tracy, Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA 91304 - Sunday, June 15, 2008 10:38 PM CDT

So happy that you got to go home and enjoy the weekend, and that Ivy got to dance! She is a tough cookie,there is just no keeping that girl down! Will continue to keep her in my thoughts and prayers, but it certainly sounds like she is on the right track.
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, June 12, 2008 6:38 AM CDT

Ivy was the best in her group--she followed her teacher exactly and in spite of having to wait for hours before performing was perfect. She also was the cutest! Glad, glad you are home and that we are talking about b'day celebrations. May the miracle drugs chase LCH into permanent remission! Love, Sara and David
sara dezerega <saradezerega@aol.com>
moraga, ca usa - Wednesday, June 11, 2008 9:05 PM CDT

Glad to hear that Ivy is doing better and that you were able to get back home.
Carol
Leesburg, VA - Wednesday, June 11, 2008 4:23 PM CDT

Glad to hear the continued good news! Love, Rebecca
Rebecca, Joe, Adilene and Gianna <rebeccakroth@yahoo.com>
Danville, VT - Monday, June 9, 2008 8:59 PM CDT

Glad to hear that Ivy is getting back to health. I'm betting you're going to see Wall-E. We saw the preview this weekend when we went to see Indiana Jones. It looks cute. Hope everything continues moving in a positive direction!
Shayne <mom2pete@hotmail.com>
Houston, TX - Monday, June 9, 2008 8:18 AM CDT

Glad Ivy has recovered nicely from her pneumonia. Here's hoping you're home already!
Susan
Redmond, WA - Friday, June 6, 2008 8:18 PM CDT

Wow, I haven't checked in for a while and there sure was a lot to catch up on. I'm so happy to hear Ivy is feeling better and I'm thrilled for all of you about the new baby!! Congratulations!
Caitlin <caitlins66@yahoo.com>
- Friday, June 6, 2008 12:20 AM CDT

SO glad to hear that Ivy is feeling better! It's especially hard when they don't allow kids to visit. I guess we understand, but Elsa and I sure don't like those rules :-(

We'll be happy to visit you at your home though!
Sending positive healing thoughts your way.

Iris, Peter and Elsa
Oakland, CA - Thursday, June 5, 2008 9:00 PM CDT

What a (wonderful) difference a week makes! So glad to hear that things are "mundane" and that Ivy might be able to go home soon. Sending wishes for continued speedy improvement!
Edie <eross411@yahoo.com>
Kennebunk, ME - Wednesday, June 4, 2008 7:02 AM CDT

Wonderful news, what a great update! I hope Ivy does well taking the medicine orally and you can get out of there.
Valerie <val_ea@yahoo.com>
- Wednesday, June 4, 2008 6:49 AM CDT

Wonderful news! This is the first thing I've read this morning and has sure given me a smiling start to the day!
Tracy (tjly7)
- Wednesday, June 4, 2008 5:44 AM CDT

Great news! Thanks for doing such a good job reporting!
Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Tuesday, June 3, 2008 5:21 PM CDT

I am so happy Ivy is getting back to her old self. I hope you all get to get some fresh air! Praying you are out by her birthday.

Many hugs to you all.
Valerie <val_ea@yahoo.com>
- Tuesday, June 3, 2008 7:07 AM CDT

Thinking of you all, especially little Ivy! I'm relieved to know that she is headed in a positive direction.

Congratulations on your baby news!! I know first hand how scary it can be to pregnant and have to worry about sick child. It will all work out and soon Ivy will be a bossy big sister!
Diane Clark <nollidclark@yahoo.com>
alameda, - Monday, June 2, 2008 10:56 PM CDT

I am so glad to hear that Ivy is on the mend! It must me hard to miss the things that are occuring, but Ivy will have other parties and more tball games for Jasper. SO glad that Ivy is returning to her old self. Continue to take care of yourself and her sister.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Monday, June 2, 2008 9:58 AM CDT

what wonderful news about Ivy.
We are very happy love,
Eva and Neal
Eva and Neal <Evalinda@skillware.com>
- Sunday, June 1, 2008 11:33 PM CDT

Hi Ally and family! Wow, what an intense crazy week for Ivy and family. I'm just catching up on the journal posts!!!

I'm thrilled that the diagnosis of pneumonia seems manageable, and I hope she will make a quick turnaround from the cdiff and pneumonia.. God bless Ivy!

Keeping you all in my prayers!
Kathy (kathyandsp)
Kathy Curran
St. Louis, MO - Sunday, June 1, 2008 3:15 PM CDT

All our good wishes and thoughts sent your way with great cheeriness and force!

Eric, Jen, Zealin, and Arrow
Berkeley, CA USA - Saturday, May 31, 2008 10:46 PM CDT

Cheers for pnemonia! LOL! I'm so happy and relived for you!
Tracy (tjly7) <tjly7@yahoo.com>
- Saturday, May 31, 2008 3:56 PM CDT

Yay! So glad to add our cheers with all your friends & family! We wish Ivy well and home again soon! We are thinking of you all the time! Hang in there.
Love, Tracy Jenn & Kaylee
Tracy Foster <tfoster51@aol.com>
West Hills, CA USA - Saturday, May 31, 2008 12:40 AM CDT

Crying tears of joy from State College PA!!! Ivy is a little miracle indeed. Hoping the pneumonia clears up quickly.
Dana Mitra <dana@psu.edu>
State College, PA - Saturday, May 31, 2008 11:50 AM CDT

So glad you have a diagnosis and it is a manageable one. I will still keep her in my prayers and hope that she feels better soon!
Beverly (Scoogymom)
New Gloucester, ME - Saturday, May 31, 2008 10:31 AM CDT

Huge cheers from the east coast!!!! We will still keep the prayers and good thoughts coming! much love, Rebecca and the team
Rebecca Roth <rebeccakroth@yahoo.com>
Danville , VT - Saturday, May 31, 2008 8:07 AM CDT

What wonderful news, Ally! I'm so glad you know what it is that is keeping your little Ivy down and you have a plan to combat it. Here's hoping she is back to her happy, healthy, self soon. Sending continued prayers, along with many hugs!
Edie <eross411@yahoo.com>
Kennebunk, ME - Saturday, May 31, 2008 7:36 AM CDT

I'm so glad there is a diagnosis, I hope that Ivy responds well to the treatment of the pnemonia, and surprises the dr's.

Many hugs, and prayers.

JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Saturday, May 31, 2008 6:53 AM CDT

Well I never imagined I'd be toasting someone having pneumonia but cheers - here's to it! Glad that they've sussed the problem & can work on curing it.
Jane (janemjr) <janemjr@yahoo.co.uk>
- Saturday, May 31, 2008 2:21 AM CDT

Wonderful! At least you know what you are dealing with & what to do about it. I hope & pray that Ivy will recover quickly.
Julie (Julieand3) <jsvise@charter.net>
AL USA - Saturday, May 31, 2008 0:15 AM CDT

GREAT NEWS!!!
eva
Eva <Evalinda@skillware.com>
- Friday, May 30, 2008 11:35 PM CDT

Isn't life crazy when PCP seems like a decent option (as opposed to other things...)?!?! I was actually wondering about that and was just going to email you to see if they had checked for it. Patrick is on septra but we were told that it's not fool-proof so I guess Ivy proves that right.

Ivy is one tough cookie (as are all of you). She's been through so much and just keeps that sparkle in her eyes.

We will be praying for her speedy recovery!

Love and hugs,

Pam, Tom, Devin & Patrick
Folsom, CA USA - Friday, May 30, 2008 11:16 PM CDT

Dear Al, Pete, Ivy, and Jasper,
I have to believe that prayers and good thoughts will make a difference. We be sending them round the clock.
Love, Rebecca (and Joe, Gianna, and Adilene too)
Rebecca Roth <rebeccakroth@yahoo.com>
Danville , VT - Friday, May 30, 2008 8:56 PM CDT

Just one more family signing in to let you know we are thinking of you all with hopes of good respite from this ordeal. Wishing for sweet smiles from Ivy to Jaspar that are so delightful.

Dale and Norman Greene <dale@puzzlering.net>
ALBANY, ca USA - Friday, May 30, 2008 12:44 AM CDT

Ivy, Allyson, Pete & Jasper - you guys are all in my heart and in my prayers. I'm so sad that this horrible sickness has not gone away. I'm sending many hugs your way.
Werona <ronaa74@yahoo.com>
Redmond, WA - Friday, May 30, 2008 10:46 AM CDT

Ivy, you are in my prayers. Get well soon little girl!!

Love,

Gayle
- Friday, May 30, 2008 10:02 AM CDT

You are all in our thoughts and prayers. I hope that Ivy begins to improve very soon!
Tanya
Alta Loma, CA USA - Friday, May 30, 2008 9:57 AM CDT

So sorry to hear about Ivy being so sick. Our thoughts snd prayers are with you.
Much love,
Eva
Eva and Neal <Evalinda@skillware.com>
- Friday, May 30, 2008 9:46 AM CDT

Allyson, your family and especially Ivy are in my prayers more than ever right now.
Stacey <staceyaf@hotmail.com>
Lincoln, NE - Friday, May 30, 2008 9:45 AM CDT

Poor sweet Ivy, what an angel she truly is. Praying both of the doctors together can come up with a winning plan!
Valerie <val_ea@yahoo.com>
- Friday, May 30, 2008 9:45 AM CDT

You are all in our thougths and prayers. Hoping those two doctors come up with a great plan.
Dana <dlmitra@yahoo.com>
- Friday, May 30, 2008 9:42 AM CDT

Bless her little heart, I'm so sorry she is going through all of this. Sending good thoughts from the East Coast, she continues to be in my prayers.
Edie <eross411@yahoo.com>
Kennebunk, ME - Friday, May 30, 2008 8:52 AM CDT

Hoping and praying that little Miss Ivy will start feeling better very soon and that the doctors can come up with a good treatment plan for her. You all are in our thoughts.
Shayne <mom2pete@hotmail.com>
Houston, TX - Friday, May 30, 2008 8:44 AM CDT

Allyson, I am keeping Ivy (and all of you) in my thoughts. Hoping she starts to feel better soon! ((((HUGS)))
Mia <mia5683@hotmail.com>
North Hollywood, CA USA - Friday, May 30, 2008 8:43 AM CDT

Wow Allyson - I am holding Ivy and your whole family up in prayer! I am praying for better than bad news and hoping that Ivy starts to feel better soon.
Shana (my4munchkins) <shana.jump@mckayconsulting.com>
Bossier City, LA - Friday, May 30, 2008 8:20 AM CDT

Keeping Ivy and all of you in my prayers and thoughts. I really hope you get some answers and direction today!
Beverly (Scoogymom)
New Gloucester, ME - Friday, May 30, 2008 7:58 AM CDT

Keeping all of you in my thoughts and prayers. My heart goes out to you, always.
Gretchen White
Westminster, CO United States - Friday, May 30, 2008 7:57 AM CDT

Hoping that she's doing much better today, and I'm sending a big hug to Ally and the whole family. I'm so sorry you're going through all of this.
Rosanna <brschmitt@yahoo.com>
Baton Rouge, LA - Friday, May 30, 2008 7:39 AM CDT

It's hearbreaking to read what you are going through. Sending lots of prayers up for Ivy.
Carol <carolbwalsh@yahoo.com>
VA - Friday, May 30, 2008 7:35 AM CDT

I am saying special prayers for sweet Ivy.
Tracy (tjly7) <tjly7@yahoo.com>
- Friday, May 30, 2008 7:34 AM CDT

Still praying, and hoping for a better outlook. Poor Ivy....she sounds so sick.
JoAnn <joannwhite@outtech.com>
Maple, MN US - Friday, May 30, 2008 7:16 AM CDT

Sending extra positive thoughts and hugs to Ivy and family! So glad they put you in a nice room.
Susan
Redmond, WA - Thursday, May 29, 2008 12:05 AM CDT

Sending more prayers and positive thoughts for Ivy. I hope yesterday's test results will give the doctors the answers they need to help Ivy start feeling better soon.
Denise Smith <denismith74@hotmail.com>
Indianapolis, IN - Thursday, May 29, 2008 11:54 AM CDT

Sending many prayers and thoughts to you all the way from MN. I wish I could come on down....I'm sure this is all so stressful for you! What a long day it was for you yesterday....I cannot even tell you how much I appreciate you updating your site though. Thank you for making the time. I'm sorry you have to go thru all this....

Thinking of you, reaching out for you and yours.
JoAnn <joannwhite@outtech.com>
Maple Grove, MN USA - Thursday, May 29, 2008 11:11 AM CDT

So sorry Ivy is having problems again. I will be keeping you all in my thoughts and prayers.
Edie <eross411@yahoo.com>
Kennebunk, ME - Thursday, May 29, 2008 10:58 AM CDT

Sorry to hear Ivy is not feeling well. We will keep her and your family in our prayers. Congratulations on the wonderful news of the new baby coming.
(kendall behl's mom)
vicki behl <vickibehl@hotmail.com>
- Wednesday, May 28, 2008 10:23 PM CDT

oh wow, I am so sorry to hear that Ivy is having a hard time. My thoughts and prayers are with you.

Love Jill
Jill Donaldson <canyeshna@hotmail.com>
Berkeley, Ca - Wednesday, May 28, 2008 1:40 PM CDT

I'm thinking about you guys and praying for sweet Ivy! I hope you find answers and this is easily treatable. Many Hugs to you all!
Marleen Capps <marleenandbrian@yahoo.com>
St. George, UT - Wednesday, May 28, 2008 0:15 AM CDT

I will be praying for Ivy. I hope you get some answers and some relief for her.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Tuesday, May 27, 2008 8:48 PM CDT

THinking of you! Anxiously awaiting news on Ivy! Hugs Allyson and Pete. I'm so sorry this is happening your wonderful family!
JoAnn <joannwhite@outtech.com>
Maple Grove, MN US - Tuesday, May 27, 2008 8:21 PM CDT

Hello

I am so sorry to hear that you are going through a bad patch again. I wanted to let you know how useful your journal and comments on the histio forum have been to us - we are really thankful for all your help and support. I know what a rollercoaster this disease can be, and hope that you are soon through this bit and in a nicer phase. And congratulations on your pregnancy!

best wishes
Keri (mother of Liam: caringbridge/visit/liamtaylor)
Keri Taylor
London, UK - Tuesday, May 27, 2008 5:27 PM CDT

Thinking of you. Hope they are able to do something to give her some relief when you take her in.
Tracy (tjly7) <tjly7@yahoo.com>
- Tuesday, May 27, 2008 4:12 PM CDT

So sorry to hear that dear Ivy is coughing, vomiting, needing more tests, and that something does not look right with her lungs. Completely understadable that you are frustrated and sad--we all are. Especially difficult for you to be going through this for three and a half years. Our hearts go out to you and we pray that there is merely an infection that can be treated. Sending you all our love, Auntie Sara and Uncle David.
sara dezerega <saradezerega@aol.com>
moraga, ca usa - Monday, May 26, 2008 4:57 PM CDT

Greetings from the Land of Oz!! I'm just stopping by to check in on you guys!! Hopefully Ivy is feeling better, and it was just a battle with the Flu Fairy! Lots of Love & Hugs & Kisses!! Carol & the girls
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS 66062 - Monday, May 26, 2008 9:40 AM CDT

How frustrating! I hope you are able to get some answers for Ivy (and you) very soon. I will say a prayer for you all.
Dawn (LizzySue) <damellott@yahoo.com>
Hollidaysburg, PA USA - Saturday, May 24, 2008 4:24 PM CDT

That sweet poor little girl. I'm so sorry it is such a struggle to find answers for her. I hope you get them soon and that you all get a much deserved break.
Tracy (tjly7) <tjly7@yahoo.com>
- Saturday, May 24, 2008 7:05 AM CDT

We hope that Ivy's doctor appointments go well and that they are able to give her some relief of her symptoms! Thinking of you always!
Love, Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, CA USA - Thursday, May 22, 2008 10:28 AM CDT

So sorry to hear Ivy's cough is still a problem--hope tomorrow's and Friday's appointments will reveal the cause and thus a treatment. So disappointing and worrisome--especially when she is due to end chemo soon? Holding you all in our hearts as always. See you next week. Love, Sara and David
sara dezerega <saradezerega@aol.com>
moraga, ca usa - Wednesday, May 21, 2008 8:04 PM CDT

Happy Mother's Day! You ARE the king! And since we'll be gone on Father's Day, happy one in advance to Pete - you, too, are the king! Many happy returns of the day, and even happier ones. Happy Sunshine!
Love,
Caroline, Randy and Sarah
- Friday, May 16, 2008 9:42 AM CDT

Hello Ivy and family,

Just getting caught up - congratulations on the new baby! I'm always a little reassured to learn of other families who ventured down that path in the midst of so much medical drama! As you noted, some may think it's crazy, but we found a new little one on-the-way was such a positive for everyone to focus on. Christian's nurses just gushed over what a great bother he would be. (Now, two years later, if I could just get them to quit fighting over toys....)

I expect Jasper and Ivy will be wonderful siblings to your new little girl. Best wishes to all of you!

LaFountain Family, North Canton, OH
Renee, Matt, Christian, Jacob
Renee LaFountain <cr_lafo@yahoo.com>
North Canton, OH - Thursday, May 15, 2008 9:37 PM CDT

What an exciting past month for you all! Congratulations on the baby sister on the way; I know you all are thrilled and what a lucky girl she will be. The Disney trip sounds like it couldn't have been better and camp, too. Happy Mother's Day Allyson; you truly are an inspiration to us all!! Lots of love-Becky
Becky <rebecca_ellin@yahoo.com>
Morehead City, NC - Sunday, May 11, 2008 7:08 PM CDT

Great news that Ivy and Jasper will have a baby sister. They will be old enough to enjoy being the big brother and sister. We're excited for you all. Your recent trips sound like lots of family fun. Here's hoping Ivy ditches that cough.
love to all,
Dale and Norm
Dale and Norman Greene <dale@puzzlering.net>
ALBANY, ca USA - Wednesday, May 7, 2008 9:48 PM CDT

Great to hear camp was good. That's very exciting about Jasper getting to go to his own camp this summer. That should be Wonderful for him. On-going visual images of Ivy's lungs clearing, and general healthy innards!
Love,
Caroline, Randy and Sarah
- Tuesday, May 6, 2008 10:52 PM CDT

Congrats on the new baby on the way! I'm glad you guys got to do your Make A Wish and now off to camp. Sounds like Ivy is doing pretty well. Yay! Your friends, Melissa and Riktor
Melissa Phillips <meliciousmommy@yahoo.com>
Rohnert Park, Ca USA - Sunday, May 4, 2008 9:05 PM CDT

Sorry we haven't written in so long. It's not for lack of checking the site every day, even relishing reading your last entry day by day, and now there's even a new one! So big congrats and prayers on your latest incubation project, and images of Ivy's lungs clearing and her cough fading. Much love to you all,
Caroline, Randy and Sarah
- Friday, May 2, 2008 7:46 PM CDT

OMG...OMG...Wow!! Exciting news!!! I'm jealous!! When is the due date? You are going to be one bizzzzzyyyy lady!! Lots of love and hugs!! Carol and the girls!!
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Thursday, May 1, 2008 7:16 PM CDT

WOW...what wonderful news! How exciting! We will be praying for a happy and healthy pregnancy. I know Ivy and Jasper are going to teach this baby all kinds of great things :-)

Sending love and hugs,

Pam, Tom, Devin & Patrick
Folsom, CA USA - Tuesday, April 29, 2008 11:12 PM CDT

It was great to meet you in Chicago. I hope you can figure out what Ivy is allergic to soon. Yes, having a 3rd child is exciting!!
Dawn <damellott@yahoo.com>
Hollidaysburg, PA USA - Tuesday, April 29, 2008 7:32 AM CDT

Allyson - It was so good to meet you in Chicago! I hope you figure out what's going on with Ivy's cough. Congrats on your exciting news!
Carol
Leesburg, VA - Monday, April 28, 2008 2:53 PM CDT

WAHOOOOO!!! That is some really fantastic news! Wow, I am so happy for you guys. ROCK ON. Now Ivy will have someone to teach all of her parlor tricks to!

love, love, loooove, Jill
Jill <canyeshna@hotmail.com>
Berkeley, Ca - Sunday, April 27, 2008 0:07 AM CDT

Allyson! Congratulations!! Congratulations!!!!
Suzanne <Suzannegil@gmail.com>
Calistoga, CA - Saturday, April 26, 2008 12:40 AM CDT

I big "Howdy" from Kansas!!! Glad to hear of your trip to Disney World. Ivy looks sooo grown-up with that curly hair! I love it!! We miss you guys! Hope I can make it for the hike this year. I'm currently job hunting again. Yuk!! I put a link to the hike for a cure with a lil' blurb on my myspace sight. I guess I will post a bulletin or two when it gets closer to the date. Thinking about you guys!! Love, Carol and the girls P.S. Anya turned 10 today and Taya is a teenager, 13. Zowies!!!!
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS usa - Tuesday, April 22, 2008 8:45 PM CDT

I'm so glad that you guys had such a wonderful and healthy trip to Florida! Ivy looks so incredibly happy in those photos. I hope the cough is allergies and that you have a healthy and non-eventful springtime!
xo Jill
Jill Donaldson <canyeshna@hotmail.com>
Berkeley, CA - Wednesday, April 16, 2008 12:11 AM CDT

Sounds like the trip was all you hoped for and more! We don't personally know anyone who deserved the R & R and celebration of yourselves more than you. Welcome home. May re-entry be smooth, relatively easy and enjoyable to be back in the familiar. With all our love,
Caroline, Randy and Sarah
- Sunday, April 13, 2008 11:48 AM CDT

I'm so glad you all had such a great time! Dillon hasn't decided what or where he wants for his "wish". When I asked him if he could go anywhere in the world, where would it be? His reply was "the library". So we're still working on someplace a little more evtravagant than the local library. Maybe Ivy's trip will inspire him!

We hope to see you all at Camp Okizu this Memorial weekend!!
Take care,
Diane Clark
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
Alameda , ca - Tuesday, April 8, 2008 9:13 PM CDT

We hope you are having a fantastic time in Disneyworld. We think of you often. Jack-the-Cat is fine and so are cousins baby Rose, Emma and all the family. You two kids sure looked happy exploring the big black limo that came to take you and your folks to the airplane Monday morning. Hope you had a great ride and many more rided this week that are even better. Hugs to you four. You so deserve this trip, and the royal treatment. All our love, Grammie-Jenifer & Grandpa- Ed
Jenifer Morris Schoenberger <JMSchoenberger@aol.com>
Oakland,, CA 94618 - Wednesday, April 2, 2008 1:01 AM CDT

Have fun in Disneyworld!
Love,
Caroline, Randy and Sarah
- Sunday, March 30, 2008 1:48 PM CDT

Ivy kate! I know your trip will be fantastic! We are thinking of you! xo Jill, Rob, Molly and your LCH friend Lindsay Kate xoxo
Jill <mcalpines@comcast.net>
- Friday, March 28, 2008 9:46 PM CDT

Have a wonderful time at Disney World! Love to all of you from us. Hoping to see you this summer! Kisses to baby Rose.
Love Tracy, Jenn & Kaylee
Tracy Foster <tfoster@horvitzlevy.com>
West Hills, California USA - Tuesday, March 25, 2008 10:25 AM CDT

Thinking strong immune system and continuously improving counts, and a really happy Disneytime!
Love,
Caroline, Randy and Sarah
- Saturday, March 22, 2008 10:42 PM CDT

Welcome Rose and congratulations! I am glad all is well and I've been thinking about you guys! Love-
Becky <rebecca_ellin@yahoo.com>
Morehead City, NC - Thursday, March 20, 2008 9:53 AM CDT

And mazel tov to the whole family on our new addition!
Caroline, Randy and Sarah
- Thursday, March 20, 2008 9:03 AM CDT

Congratulations everyone and welcome Rose!! Glad all is well!
Susan
Redmond, wa - Wednesday, March 19, 2008 7:29 PM CDT

Hi Allyson,
I'm glad Ivy finally kicked the pneumonia and hope everything goes well in prep for the DWorld trip!!!!
Have fun!
Caryn <crackatoa_k@yahoo.com>
Sacramento, CA - Monday, March 17, 2008 1:06 PM CDT

Hey, I've been checking out the "Hike for a Cure" website. I am really wanting to make it this year. Now, I just need a J.O.B. No recent updates on Ivy, this is a good sign I hope!! Love ya, stay strong, Carol & the girls
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Wednesday, March 12, 2008 12:10 AM CDT

Hi Ivy and family,

We are sending much love and good wishes your way.
Don, Donna, Erik and Logan Johnson <Donna_johnson@nottheactor.com>
- Wednesday, March 12, 2008 12:08 AM CDT

I am so glad you found us. Your thoughtfullness for you fellow Histio families is amazing. I will keep your daughter in our thoughts and prayers. Have fun at Disney.
Colleen Osborn <tubby2cute@aol.com>
North Tonawanda, NY USA - Wednesday, March 5, 2008 8:25 PM CST

Happy March :-)

Love and hugs,
Pam, Tom, Devin & Patrick
Folsom, CA USA - Monday, March 3, 2008 9:40 PM CST

We're back from Santa Fe, 9 days w/o email. So glad Feb. is over and things are moving on. Prayers for Josh as well as Ivy. Wishing Ivy and all of you an easy time with the next round and visualizing complete remission.
Caroline, Randy and Sarah
- Monday, March 3, 2008 8:00 PM CST

Hi Guys,
Hope you are all at home and snuggling in at least for some comfortable days. I know the avoiding people drill, and it must be annoying and difficult with your active family. What do you do to occupy Ivy?
Our thoughts are with you,
Dale and Norm

dale greene <dale@puzzlering.net>
ALBANY, ca USA - Friday, February 22, 2008 6:22 PM CST

welcome home! I bet your kitty cat is very happy to have his Ivy girl at home.
Iris, Peter and Elsa
Oakland, CA - Thursday, February 21, 2008 11:05 AM CST

So glad you are home. Praying for a fast and smooth end to February.
Valerie <val_ea@yahoo.com>
London, Oh - Thursday, February 21, 2008 7:00 AM CST

So glad things are looking better and you're home! I'll keep my fingers crossed for the remainder of February.

BTW, I've sent you an email (both yahoo and work). Hope to see you soon!
Susan
WA - Wednesday, February 20, 2008 11:52 PM CST

So glad everyone will be sleeping in their own beds tonight! Praying that Ivy's counts will bounce back beautifully. How's that for alliteration? :)
Shayne <mom2pete@hotmail.com>
Houston, TX - Wednesday, February 20, 2008 9:34 PM CST

Thanks for updating!
Love,
Caroline, Randy and Sarah
- Tuesday, February 19, 2008 10:36 PM CST

Sorry to hear that Ivy is still in the hospital. Here's hoping for no more fevers so she can go home tomorrow and recover in more comfortable surroundings. Sending prayers for Ivy and hugs for you all!
Edie <eross411@yahoo.com>
Kennebunk, ME - Tuesday, February 19, 2008 7:44 PM CST

praying for Ivy to have a speedy recovery and for her to be home soon.I can't imagine how hard its been for the family.Life is just not fair sometimes!!!! Well keep your spirits high and we'll be praying for you here in NJ.
katherine kremer <kitykit04471@yahoo.com>
toms river, NJ USA - Tuesday, February 19, 2008 3:53 PM CST

Ivy & Family,
Just wanted you to know that we check on you often and keep Ivy in our prayers. We pray that she will be feeling better soon and be able to go home. This time of the year is so hard with all the colds and things. It doesn't help to have a low anc.
Vicki, Brian, Brooke, Samantha & Kendall
www.caringbridge.org/visit/kendallbehl

vicki <vickibehl@hotmail.com>
- Tuesday, February 19, 2008 8:42 AM CST

Hugz from Carol, Taya, & Anya!!
Carol Thonen <kitcatbreak@yahoo.com>
Olathe, KS USA - Tuesday, February 19, 2008 8:42 AM CST

We're crossing our fingers with you for no more fever and getting out of there and being home!
Caroline, Randy and Sarah
- Monday, February 18, 2008 5:35 PM CST

Hoping Ivy is feeling better and that she is already at home as you're reading this. Sheesh, it's a good thing February is a short month. I hope the rest of the days will speed by uneventfully and that March will bring nothing but happy, healthy days!
Denise Smith <denismith74@hotmail.com>
Indianapolis, IN - Monday, February 18, 2008 10:34 AM CST

Checking in on little Ivy. I hope you guys are home and Ivy is feeling better real soon. I also hope to see you all at Family Camp Okizu in May!! Go zip line.....CLEAR!!!
Diane
D. Clark <nollidclark@yahoo.com www.caringbridge.org/ca/dillon/>
- Sunday, February 17, 2008 4:35 PM CST

Hoping Ivy is home by now, or coming home soon, praying for rapidly replenishing those lovely blood cells and a clearing of her lungs. Much, much love,
Caroline, Randy and Sarah
- Sunday, February 17, 2008 4:33 PM CST

Many hugs and prayers for you. I hope she is doing better, and you can go home soon!
JoAnn <joannwhite@outtech.com>
- Sunday, February 17, 2008 7:50 AM CST

Sending many get well prayers for Ivy. I hope her hospital stay is a short one!
Edie
Kennebunk, ME - Saturday, February 16, 2008 9:53 PM CST

Oh dear! So sorry to hear that Ivy is back in the hospital. Hoping she gets well soon and your stay is short. Sending prayers for Joel's family and for sweet Ivy!
Shayne <mom2pete@hotmail.com>
Houston, TX - Saturday, February 16, 2008 8:34 PM CST

I am sorry to hear that Ivy is sick, but glad that it is something more "common". I hope she recovers quickly. This has been a rough winter for many people. I pray that March is beautiful!
Dawn (LizzySue) <damellot@yahoo.com>
Hollidaysburg, PA USA - Saturday, February 16, 2008 2:24 PM CST

We were on the edge of our seats about the intestinal thing; so great to hear, once again, it's just bacteria. JUST bacteria! So weird to think in those terms, huh? In any case, now we're simply sending love and anti-bacterial prayers.
Caroline, Randy and Sarah
- Monday, February 11, 2008 6:46 PM CST

So relieved to hear Ivy has treatable bacterial infection, not recurrence. What a nerve wracking wait. And sorry she has had these uncomfortale symptoms for over a month. Thinking of all of you even tho we don't always sign the guest book. Much love and best wishes, Auntie Sara and Uncle David
Sara DeZerega <saradezerega@aol.com>
Moraga, Ca USA - Monday, February 11, 2008 3:05 PM CST

So glad to hear that Ivy's problems are manageable. Hoping that spring brings beautiful things for all of you!
Sara <sarasox@gmail.com>
new bedford, , MA United States - Sunday, February 10, 2008 10:31 PM CST

What a relief to find out that Ivy has a bacterial infection! And I mean that in all seriousness! I hope they can find some meds to give her some relief from the c. diff. and am so relieved to hear it is not a relapse. Hope her cold is mild and that you all have a Happy Valentine's Day!
Shayne <mom2pete@hotmail.com>
Houston, TX - Sunday, February 10, 2008 4:37 PM CST

Yay for c. diff!! I'm happy to hear that Ivy's problems are being caused by something other than the LCH (although it does seem strange to be happy about a hard to treat bacterial infection!). I hope she is better soon, and you are able to enjoy the rest of February!
Edie
Kennebunk, ME - Saturday, February 9, 2008 7:49 AM CST

Maybe we can just skip the rest of February and move on to March? Feel free to send some spring back east. We're buried under a couple of feet of snow and expecting more six out of the next seven days. Sending many prayers and good thoughts for Ivy. I hope you get some good news soon so you can breathe easy for the rest of the month.
Edie
Kennebunk, ME - Friday, February 8, 2008 7:04 AM CST

Can't tell you how wonderful it is to check and continually find no update! We know this can only mean good for Ivy and your family. Sending lots of love,
Caroline, Randy and Sarah
- Thursday, January 31, 2008 8:22 PM CST

Wow, Ivy girl, you sound like you are doing so great, although I am so sorry you have to endure so much more...take care, seems like we've known you for ever sweet girl! xo
Jill (Lindsay Kate's mom) <mcalpines@comcast.net>
NH - Monday, January 28, 2008 10:35 PM CST

Such a relief to hear your good news. Prayers never let up at our end. Though our time with you is sparse, you are all ever in our hearts. Here's to courage, and healing, and looking forward to brighter times. Much love,
Caroline, Randy and Sarah
- Sunday, January 20, 2008 0:25 AM CST

Wonderful to hear everyone is doing so well. Congratulations to Ivy and I hope all of you enjoy Disney!
Valerie
oh - Thursday, January 10, 2008 6:46 AM CST

Allyson and Pete,
It was so wonderful to get to know your beautiful and brave daughter a little better on New Years Eve. Thanks for sharing your site and letting us catch up on her story. I'm glad that the recent developments have been so positive and I'm visualizing even more good news for her in 2008. Please let us know if there's anything we can do.
Erin, Roger, Sammi and Aidan
Erin McCormick
- Friday, January 4, 2008 6:56 PM CST

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