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Cobyn Criner was our nephew
Jerry & Brenda Couch <jerryc49@hotmail.com>
Van Buren , Ar. USA - Monday, July 27, 2009 9:43 PM CDT

I would like to tell you that you have a special angel living in your family. we do to. His name is Andrew. On July 18th he will turn 17 years old! We were told he would not live past 3 weeks, then they changed their mind and said 3 months, after Andrew lived past the 3 months they said 1 year. I am Andrew's grandmother and careprovider. He lives with me because it is best for Andrew. Working in special Education for 5 years prior to his birth prepared me. I had been trained to educate through stemulattion, tube-feed, suction etc. His mom, my daughter lives 5 minutes away with his 2 sisters and brother and are all active in Andrew's life. Sometimes it breaks my heart to watch him struggle more as he ages but majority of the time he brings a smile to my soul. I realized one day that I am Andrew's hands, feet, voice and eyes. He gives me more, he is my ticket to Heaven. Since the day we learned of his DX of Hydranencephaly, our family made a decision to live one day at a time. "Today Andrew is with us,God may take him tomorrow but today he deserves to be loved". He is such a joy who gives so much love and God's graces with his smile and laughter. God must love you so much to allow one of his special sons to live and share his life with you and your family. I believe that a child comes into this world for 2 reasons, to love and to be loved. Try not to concentrate on what he can not do but on what he can do. He is not a disabled boy. He is a Boy with disabilities. God does not look at what a person is, does or owns. I belive it is the soul. Oh, what perfect souls our angels have, they are without sins sent to minister just existing. waiting for their wings. I tell Andrew that one day God will heal him and when he does, he will be able to see and see his face, he will be able to run and run to him, he will be able to speak and prase his name. no more pain, no more g-tube, no more suctioning, no more siezures, no need for meds. this helps me to cope with the possibilities of loosing him. take care and enjoy his life.
Linda <myannadew@yahoo.com>
Victorville, Ca - Thursday, July 13, 2006 3:55 AM CDT

Such blessings these little visitors are. They stay only a short time but the love they give last a lifetime. My daughter Lilly was born the day before your little one. 2-12-2005. She has the same condition and the first year was so hard. But she is such a blessing I will cherish each moment I have her. God Bless your family. Alice
ALICE HARRISON <alharr@charter.net>
- Saturday, June 17, 2006 4:30 PM CDT

What a Beautiful Baby Boy Cobyn is.
I hope things are going well for him
I'm so Glad you found Rays of Sunshine group.
God does wouderful things
And Sends us Very special Blessings .

With Gods Hope, Love and Faith

www.caringbridge.org/tn/kayla
www.geocities.com/angelmomfriends5/kayla1,html
www.caringbridge.org/tn/mimmie

Snow Flakes
By Anna Mcpherson
Each one comes in a differnt Light
A differnt reason a differnt night
The brightest thing you'll ever know
Love for them will forever grow
Everyone of them has a differnt face
Ech one of them their own speiacl grace
It's in our lives they'll frolic and sing
just to see them alive is a beautiful thing
They bring us joy and give us love
they're a beautiful creation from God above
They laugh they play , make us smile and gleam
Lets walk amongst them and share their dream
A sparkling snowflake
is truly unique
Its your understanding they wish to seek
open your handsand soon you'll see
What beautiful peole these snowflakes can be.
April "Angel" Mikayla Mimmie and Hunter Noah and Zach <babymsmom04@yahoo.com>
TN USA - Friday, January 20, 2006 11:02 PM CST

I also found you guys through the Hydranencephaly site. Your son is beautiful, I hope he is well - it'd be good to hear how he's doing these days.
Rebecca
- Friday, September 30, 2005 1:03 PM CDT

Cobyn is a beautiful baby boy. I am a NICU nurse and we just had a baby girl born with this condition and she has touched all our hearts. Up until this baby was born I have never heard of hydraencephaly. When I looked it up on the internet it led me to this wonderful website and I will pass it on to the family. Good luck with your precious baby boy.
Debbie
- Friday, June 3, 2005 2:48 PM CDT

Cobyn is such a handsome little man!! I am so proud that you are a part of the hydranencephaly group, so you can share him with us. We will be keeping him and all of you in our prayers!
Debbie Howard <grandbuggy@msn.com>
- Monday, April 18, 2005 10:18 AM CDT

Dear TJ and Stephanie,
Having just read your journal entry about your son, I am so reminded of my own son, Bruce. They look very similar and their stories are amazingly similar! Bruce was born November 26, 2003 and the doctors gave us exactly the same information. It was all VERY overwhelming.
If you had told me back then that Brucie would live to see 16 months, I would have told you that I couldn't handle it, but...I have and I wouldn't change a minute of his life. He has brought so much love and tenderness into my heart as well as to an unbelievable number of people, those who knew us and complete strangers as well. I am sure that you are seeing the kindness and support of strangers as well. Brucie is an amazing gift who has changed my life for the better...no doubt. Hopefully Cobyn will give you and your husband the same joy. My husband is so smitten with Brucie as is anyone who sees him. Take each day as his gift to you. I can't describe to you how my thoughts and feelings are there for you. I have been in the place where you are, and it is difficult but worthwhile. Cobyn chose you and TJ to be his parents...that is what little angels do! I would love to talk with you anytime if I can be of help. Take care of yourselves and love that precious boy as much as possible!
Very Sincerely, Bobbi Bartley
Bobbi Bartley <bartlbwe@cps.k12.va.us>
Chesapeake, VA USA - Tuesday, April 5, 2005 12:04 AM CDT

Cobyn is a very special baby with a very special family. I look forward to getting to know him & your family better. Glad you've found us.
Barb Aleman <angelbearmom@shaw.ca>
Maple Ridge, BC Canada - Wednesday, March 23, 2005 0:18 AM CST

Cobyn is such a handsome baby boy. His parents must be SO proud of him. We are very happy to have you as part of the hydranencephaly family!
Jeanene <jeanenehea@comcast.net>
Tucson, AZ USA - Monday, March 21, 2005 11:44 PM CST

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