about CaringBridge  |  home page  |  view guestbook  |  view photos  |  read journal history  |  make a tribute donation
 
 

Carly...first day of 2nd grade!




Carly has been was diagnosed with a genetic disorder, Neurofibromatosis 1, and developed innoperable brain tumors, bilateral optic gliomas to the chiasm. She has been on chemotherapy for 2 1/2 years and the tumors have remained stable.




COME VISIT CARLY'S NEW WEBSITE AT:
WWW.CARLYSTEAM.COM




Treatment So Far:
Surgery for her Port-A-Cath inserted in her chest for chemo/blood draws
Carboplatin/Vincristine 11 treatments(chemo)
Temodar 2 rounds(chemo)
Vinblastine weekly(chemo)
14 MRI's of the Brain and Orbits 2 of the Spine
2 Blood Transfusions
Foot/Leg braces -no longer needed!!
Countless Oncologists, Neurologist, Endocrinologist, Opthamoloigist and blood tests

Side effects from all of this have been anaphylactic shock from the Carboplatin, reversable nerve damage from the Vincristine, mild hair loss, low blood counts







We are grateful for the love, support and prayers from all of you. Please take a few minutes to sign our guestbook, it is a great source of encouragement for our family!

Journal

Friday, October 17, 2008 12:57 AM CDT

Carly turned 8 yesterday! She has been looking forward to her birthday for weeks and we are planning a fun weekend for her.

My Mom and I took Carly to a doctor in LA for a second opinion, he is a neuro-oncologist that specializes in pediatric brain tumors. He has recomended we do a Spectropscopy MRI, which will show exactly what the spot on the brainstem is. We will do this MRI the first week of December and I will post as soon as we get the results.

Thank you for keeping Carly and our family in your prayers..please pray that Carly will not be headed to yet more treatment from her NF.

Blessings,
Chris

Read Journal History


Sign and view the guestbook
Sign and View Guestbook

View personal photos

View Photos

Hospital Information:

Patient Room: Not An Inpatient At This Time

San Diego Children's Hospital
3020 Childrens Way
San Diego, CA 92123
858-966-5877

Links:

http://www.carlysteam.com   Our New Website!
http://www.ctf.org   Childrens Tumor Foundation
http://www.virtualtrials.com   Information on Optic Gliomas (brain tumors)


 
 

E-mail Author: christinemckay@gmail.com

 
 

  Celebrate someone you love with a Tribute Gift to CaringBridge

Your gift will help millions of people stay connected with friends and loved ones during challenging times.


 

This page has been viewed 17174 times.

 

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
Copyright Policy  |  Privacy Policy  |  Terms of Use  |  Donate |  How to Help |  Contact Us  |  FAQs
Copyright © 1997-2005 CaringBridge, a nonprofit organization. All rights reserved.
 
Visit the Onvoy website