Click here to go back to the main page. Click here to view older journal entries. Friday, October 9, 2009 9:21 AM CDT Things have been really crazy lately. Chase is doing great and mother is doing as well as we could possible ask. She is in Houston today to find out the chemo/radiation plan. I am struggling that this is such an important dr appointment and I am not there. I have been back and forth to Houston everyweek since Labor Day and I didn't think it was the smartest idea to drive back down there for an hour appointment. The good part about houston is that I do get to spend time with Matt while I am down there. He is only 1 1/2 hours away. We know deep down that mother's cancer has only kept spreading since we know how horribly aggresive it had become from aug 3-sept 5 when we found out where all it had spread. Now it has been another month gone by and it is just devastating to spend time thinking about. She remains with complete pain control FINALLY. She doesn't appear to have many other symptoms other than maybe tiring easily and small amounts of weakness. I am just appreciating every day that she is not hurting and want them get the chemo in so it can do its best to kill it all. Friday, June 5, 2009 11:30 AM CDT This week has been a pretty rough one on everyone. We should find out shortly when her surgery will be scheduled when she passes her cardiac clearance. We have set her up with her own caringbridge page. I will post a link on Chase's friends, or you can just type it in. http://www.caringbridge.org/visit/mimiof3. It is still a work in progress. She is trying to update as if she started from day one, so she still has a couple days to go, but will be caught up soon. I appreciate you all for all of your prayers and wonderful messages. They mean so very much. She has a hard battle before her, but we are all behind her and will help her fight like hell.
Sunday, May 31, 2009 10:58 AM CDT I don't know how many people still visit this site. Thank you if you do, and I apologize for the lack of updates. With work and the kids, I find it almost impossible to find the time to update. Chase has been doing pretty good. Just normal wear down from being a cancer survivor that missed so much of his active childhood. I unfortunately come hear today with more bad news.... Thursday, December 18, 2008 4:51 PM CST Sorry for the delay of updates, but I felt led to update today.
Friday, November 14, 2008 4:20 PM CST I am so sorry to all that still visit for not updating any sooner. All has been going pretty well lately. Chase is feeling better each and every day. The new seizure medicine the neurologist put him on has had nothing but good effects. We were very nervous to put him on a med that he didn't absolutely have to have. We have not had that much luck with medicines helping symptoms. His medicines usually create NEW symptoms, but not this time. His neurologist stated that a popular side effect from this medicine was Turret's like symptoms. He has had nothing even close. The medicine has stopped the seizures and has helped tremendously with the pain. We are so happy. Saturday, October 4, 2008 3:45 PM CDT Chase has improved so much these last couple days. He says he still has pain, but sure doesn't act like it most of the time. Every now and then he will slow down, but for the most part, he is laughing, playing, and enjoying life. He still gets to hurting pretty good and tires easily, but what else do you expect after a week in the hospital. I know I am completely exhausted, and I didn't have anything wrong with me. Thank you for all the prayers. They are sure working and you can see God's work in Chase every single day. Thursday, October 2, 2008 9:33 PM CDT I thought I updated yesterday, but realized I had only updated the text list when Chase went home. Chase was discharged aroun 3:30 yesterday afternoon. He was still hurting and had a bit of a sour stomach last night. The pain meds seem to be working pretty good to keep the pain under control. He didn't make it to school today. I sure didn't want to have to return to the hospital because we made him do too much too soon. He stayed at home with Mimi today(my mom in from Texas). I think they both enjoyed their time and even ventured to Walmart for a very short trip of goodies. Tuesday, September 30, 2008 11:47 AM CDT Well no new news. The bone scan was normal. That is a very good thing in respect to infection, bone cancer, and the other devastating news that it can give, which we knew going in they wouldn't find. But I was sure hoping they would find something, a broken bone bone growth, or SOMETHING that could explain his sudden decline and pain. But it was not found. The plan is now to send him home on oral pain meds if they can control the pain at all and hopefully whatever this was that came on so quick will go away just as quick. That is our prayer. So we will be home either late this afternoon or tomorrow morning unless anything changes. Monday, September 29, 2008 9:28 AM CDT Chase had a really awful day yesterday. The worst so far. He was in so much pain for the majority of the day. He did have his EEG yesterday, and it is not official word, but it looked normal again. He is scheduled for a bone scan today. The nuclear med department wanted to postpone to tomorrow, but thankfully our doctors said NO. He was hurting too bad and they needed to start getting some answers. SO it will be later today around 3:30(best guess estimate). That is about it. Thank you so much for your prayers during this crazy time. Sunday, September 28, 2008 10:16 AM CDT Ok...so Chase is cancer free, but is still in extreme pain. So what is the next step...That is a question I have been asking since Friday night, and I know have a couple of answers. He will have another EEG tomorrow, it is still being decided if it will be the 24 hour video kind, or another short one with hopes they catch something. I haven't noticed an episode the whole time we have been here. He said he thinks he had one Wednesday morning and that is kinda what sent him over the edge. <-his words. He will also have a bone scan sometime tomorrow to look for causes of the pain. We are ecstatic that our worst fears did not come true but are still asking for many prayers for Chase, our family, and the doctors to find and TREAT what is happening to his body right now. So that is the latest. We continue as always to ask for prayers for all the others fighting in this battle. Friday, September 26, 2008 5:52 PM CDT Chase remains CANCER FREE! Friday, September 26, 2008 7:33 AM CDT Update:
Thursday, September 25, 2008 9:27 PM CDT Update: Thursday, September 25, 2008 7:20 AM CDT URGENT PRAYER REQUEST!!! Wednesday, September 17, 2008 7:04 AM CDT No news yet on Chase's tests. He seems to be doing a little bit better, so we are going to hold off on seeing Dr.Stine. I don't think he would do anything but look him over and take blood and it would throw Chase off of schedule for school. His blood work was perfect just two weeks ago Friday. Chase is having a pretty hard time in school and it is so important he misses as little as possible. THank you for all the prayers. THey seem to be working as always. Thursday, September 11, 2008 7:18 PM CDT Again I apologies for the lack of updates. We have been so busy. I get home late from work, with homework and dinner, we are pretty much beat and ready for bed right after that. The times I have had time to sit down and update, the internet has been down and I have been unable. Friday, August 8, 2008 4:20 AM CDT I apologize for the vast amount of time in between entries. This has just been a crazy summer. Chase and Catie have only been home what seems like a couple hours. Catie was home for 2 weeks that went by too fast, but Chase really hasn't spent more than a 24 hour period with us since the first week in JUne. I hope to get some pictures downloaded of their great summer. I know they have had a ball. Saturday, June 21, 2008 4:50 PM CDT I am so sorry it has been so long since I last updated. I tried once, but internet went down before I posted. I have been SO busy with work since the kids have been on vacation, and just haven't had the time at work to update and am too exhausted to update when I get home. Thursday, May 22, 2008 8:03 AM CDT So so sorry it has been so long since I have updated. We all have been so very busy with normal life stuff. It is great, but I sure am tired, lol. Chase scored his first run last week in baseball after being walked. At the next at bat, he hit the ball for the first time, and it was such a memorable night. Catie is busy with ball too. We are all ready for summer. The kids will spend a big part of it in Texas. They are so excited. Catie will stay in Texas this weekend when we come back and Chase will go after camp in just a couple weeks. He still has school until next Friday. We go back for his monthly checkup next Wednesday. We are praying for a very uneventful checkup. Those are always good. Saturday, May 10, 2008 9:26 AM CDT Things habe been going relatively well. Chase has been under the weather this week, but we are still hoping it is a virus. I was sick on Tuesday too, and it was just awful, still not sure if I am completely back to par. So I can not imagine how hard it has been on his body. He has missed school and baseball this week. He has really been worn out and hasn't been eating at all. Well I guess that is about it. Nannie and BobBob are here visiting and hopefully Chase will feel like doing more than just getting out of bed. Thanks for visiting. Sunday, April 27, 2008 3:44 PM CDT Chase had his monthly visit this last week and everything looked great. On Thursday, he began having gastro "episodes" again. The school nurse called on Thursday morning and said that after Chase ate, he was doubled over in pain and I could hear him crying in the background. He did this same thing Friday morning, but it got better much quicker. Then again yesterday, on our way to Monticello, he was screaming that his stomach was killing him, so much that we were headed to Drew Memorial. Then he began throwing up, and once he was finished throwing up, he felt much better. I called the gastro doc on Friday, and I hope she gets back to me tomorrow. We are praying yesterday was the last one. Monday, April 14, 2008 8:27 PM CDT Chase is doing great. His leg is getting less and less sore each day. We have allowed him to start "being a boy" again with running and playing. I am not 100% he ever stopped outside of our presence. Saturday, April 5, 2008 9:02 PM CDT I have tried to update twice this week to no avail...so I try again. Sunday, March 23, 2008 8:51 PM CDT Please remember the family of Ryan Monday in your prayers. Ryan earned his wings late last night. He celebrated this Easter with Jesus. How lucky he is, but how devastated his family who is left behind must be. I just HATE cancer and what it does to everyone surrounded by it.
Monday, March 17, 2008 10:28 PM CDT We are back in the emergency room. Chase's first baseball practice did work out as well as planned. He did great until the last 5 minutes. They were running laps, his legs gave out, and he hit the floor. Same knee as last week, blew up like a balloon, and off we went. We may have to reconsider the sport's career. Pray it is not broken and he didn't tear anything. The emergency room is crazy, CRAZY tonight. Good news...the fever has gone away as of now. Thank god for that answered prayer.
Sunday, March 16, 2008 1:00 PM CDT Chase started running a pretty high fever last night and it continued this morning. It is down from almost 103 with Tylenol. He is extremely weak and hasn't been eating well the last few days. The doc in the ER really wanted to do a cbc on Wednesday, but I said it wasn't needed because he will have his oncology appointment this week. Now I sure wish he had his blood checked, I get so scared when he has strange symptoms that come up so suddenly and just wipe him out.
Friday, March 14, 2008 7:28 PM CDT This has been a pretty crazy week, for sure Wednesday was. It started with Matt having an emergency visit before we got up for cutting the tip of his finger almost off. They were able to repair it and he should not have any problems with it. Then just a few hours later, Chase was accidentally tripped while running, fell, and hit the concrete pretty hard. I received a call at work saying he was very weak and in pain and needed to come home. Luckily Matt needed a change of clothes from the bloody ones he was wearing, and was able to pick him up. Chase's arm and leg got worse through the day and he called and said he needed to go to the doctor. Talk about shocking for Chase to say he needed to be seen. So needless to say, we headed to the emergency room. We found out that he did not have any "new" breaks, but had many parts of his bones that were healing from "old" breaks. That was crazy to hear since we had no idea that he might have broken anything before. The doctor said that his osteoporosis was getting worse in most places rather than better, which we had hoped for. She stated that he has been extremely lucky to not have any major breaks so far. She said he was like a glass with many small cracks in it, one thump could cause it all to shatter, and that he needed to be seen and xrayed anytime he had anykind of incident. So for now, he is just sprained and bruised up pretty good and we pray his bones start healing NOW. We made it through the rest of the week and are ALL really excited about the weekend. I will try to do better with updating. Thank you to all who check on and pray for Chase and the rest of us. Wednesday, March 5, 2008 7:57 PM CST I finally have found a job. I started today. Boy am I tired, and I know Chase and Catie are more than exhausted. Chase had to catch the bus at 6:45 this morning. He was actually very excited about it. He thinks the bus is the coolest thing. He is very proud to be riding it. It has been his wish to get to ride the school bus for so many years. I am glad that I could grant this wish, haha. I am sure the "coolness" of it will wear off very soon, but for now we celebrate with him. Catie will start her new school tomorrow. She isn't near as excited as her bubba. Chase continues to get stronger everyday. His legs bother him some, but they aren't slowing him down. He is ready for the weather to warm up and stay that way, so that they can get out and PLAY. Thanks for checking in on us and all of your prayers. Monday, February 25, 2008 11:12 PM CST Chase is doing great. Having a tiny bit of leg pain, but nothing much. Sure not enough to justify medicine. Wednesday, February 20, 2008 12:08 AM CST A couple quick prayer requests: Tuesday, February 19, 2008 6:24 PM CST Urgent Prayer Request: Sunday, February 17, 2008 10:07 PM CST We had an ok weekend. I am hoping that we are all not getting sick. Tonight was my night to feel bad. Catie was miserable last night, and Chase was miserable yesterday afternoon. No one has run a real fever, we have all been around 99.5-100, when we have felt the worst. Chase had some pretty intense abdominal cramping this afternoon, but it seems to have subsided now and no fevers today. I have a couple interviews this week, and getting sick would not be good. Chase is off from school tomorrow and is very excited about that. He will go to the asthma doctor on Tuesday for his asthma flare ups. That is about all I know. Please keep our friends in your prayers, so many still fighting hard for life, so many parents having to live daily without their babies, and so many having the fear of uncertainity that cancer has to offer. Tuesday, February 12, 2008 10:27 PM CST Chase seems to have gotten over the virus he had. He had a fantastic weekend. We went on his very first field trip to the Museum of Discovery on Friday and then he went to spend the night at a slumber party with a couple of friends that night. He had a wonderful time. He seems to be enjoying himself more and more at school. Yesterday he had a bit of nausea, and made sure the nurse knew that he wanted to stay he just wanted his medicine. She called me anyway to make sure that was ok with me. Ha, if he wants to stay, that is great with me. We are really getting back into the swing of things. I even have a job interview on Thursday. I am trying not to get nervous, it just has been so long since I was out in the real world. Well I guess that is about all I know. Thank you for all that continue to check on us. Thursday, February 7, 2008 4:54 PM CST Well...after so looking forward to the jump-a-thon, Chase didn't make it to it. He woke up with a fever yesterday, and was very cruddy sounding, so I couldn't send him(nor did he feel at all like going). Luckily the fever never got above 101, and resolved after only one dose of Tylenol. He is still thrilled that he did his part in raising money for the American Heart Association. Soon, we will be starting our yearly fundraiser for Team Chase & Friends for the Light the Night Walk supporting the Leukemia & Lymphoma Society. We would love for everyone in town that weekend to join us for the walk. It means so much to us to see everyone each year supporting Chase & all our friends fighting this terrible disease.
Friday, February 1, 2008 12:41 AM CST Chase continues to improve slowly each day. His fevers still come and go with Tylenol, but much farther apart and MUCH lower. He has moments that he feels pretty good and will play, and then he wears himself out and rests. Hopefully by Monday, he will be back to normal. He is excited about the Jump Rope for Heart event next Wednesday and I think they have a field trip coming up too. I guess that is about it. THank you for all of your prayers. Tuesday, January 29, 2008 4:18 PM CST Chase's fever continues to go up and down. He seems to be feeling much better after resting well when we got home from the doctor. He is actually sitting up on the couch now playing a video game. Steps in the right direction. Tuesday, January 29, 2008 7:38 AM CST Chase did not get admitted last night thankfully, but he was extremely close. If the hospital wouldn't have been in crisis overload, he would have been. He kept a temp above 103 for the entire time we were there. We got home about 2 this morning. The ER doctor really wanted us to keep his infectious disease appointment this morning. I had really thought about cancelling it because he was doing so awesome. So after little sleep, we are headed back to ACH in moments. Monday, January 28, 2008 9:34 PM CST Chase did ok at school today and then had what we think was a severe asthma attack. During his attack, I checked his temperature, it was 102.7. I immediately gave him Tylenol, and it has gone up, up, and then down a bit and stabilized at about 103.5. I thought it best to go ahead and bring him into the ER, so we now sit at ACH. They are doing a whole realm of tests, flu, strep, cbc, electolytes, liver functions, chest xray and the such. He is receiving a nice bolus of fluids, which will hopefully help his fever come down with the next dose of Tylenol, due soon. We ask for your prayers that this is just a "normal" childhood illness from school and nothing more. I will update when possible, expecially if something unexpected comes up. Saturday, January 26, 2008 11:30 AM CST Chase is participating in his very first ever school wide community service project. He will be participating in this year's JUMP ROPE FOR HEART, benefitting the American Heart Association. A couple of week's ago I would have never imagined he would be doing this, but he is so excited about it(and so are all of us). I noticed today on the form that you can collect online donations, so we decided to let everyone know of his efforts. His money is due to the coach on Friday, February 1st, so I am assuming that is the deadline for online donations also. If you would like to help him reach his goal, you can click on the link below. We sure appreciate your help and your prayers. Your prayers have CERTAINLY helped him get to where this is even a possibility for him to compete in.
Thursday, January 24, 2008 9:28 PM CST Chase continues to do really well. I can tell it is close to the end of week, because he is starting to get worn out a bit, but it is a GOOD worn out. He comes home from school and goes and goes(has gone to school everyday since starting back). He has been to Wednesday night church two weeks in a row, and simply LOVES it. He had a wonderful birthday weekend. We had to say goodbye to Matt again after our wonderful weekend. Friday, January 18, 2008 1:40 PM CST Chase continues to do really well. He has made it to school every day this week. We have changed our plans some with our trip to Fayetteville. Matt will probably have to leave on Sunday or Monday and we want to be able to spend as much time with him until he leaves. Hopefully he will not go too far away this time, but we don't know for sure yet. Nannie and BobBob have decided to come up for the weekend since we are not going to Fayetteville. We have a big weekend planned for Chase's birthday. We continue to pray for Chase's strength to improve each and every day as well as for all our friends going through their daily battles. Tuesday, January 15, 2008 10:08 PM CST Chase has had a good couple of days. What a difference a week can make. He had a friend spend the night over the weekend, and that was a big thrill. He has made it to school Thursday, Friday, yesterday and today. He seems to be enjoying it. He is getting back into the swing of school very quickly. Saturday, January 12, 2008 9:57 AM CST The medicines change already seem to be making a difference. Chase is much more alert than before for sure(and his attitude is totally more positive). He stopped the Lyrica last night. We will hopefully see more improvements over the coming days. He says he has noticed that his legs are starting to hurt a little again, but that he can take a little. He still ran a fever last night, so hopefully the Lyrica wean will help that out. He says he isn't AS achy as he was, but that it is still there. He went to school both Thursday and Friday(Thursday till he had to go to PT/OT and all day Friday). He has been playing with a friend at recess and met a new one yesterday. Things are really starting to look up. Maybe by his birthday(next Sat) he will be back to his normal happy self feeling GREAT!!!! Wednesday, January 9, 2008 10:36 PM CST We had our visit with Dr.Stine today. He and the pain team got a plan together to wean Chase off and stop other medicines to hopefully help with the fevers, pain, and lethargy. I wish the meeting could have been handled a little better than it was. Dr.Stine had a very stressful day and boy did it show. Enough about that. Most of Chase's bloodwork looked fantastic. His liver enzymes were quite elevated, but maybe that too will work itself out with the changes in medicine. His next appointment with Hem/Onc is Feb 6. Tuesday, January 8, 2008 7:50 PM CST Well....Chase has another double ear infection. We took him to the doctor today and sure enough. That would explain why he has felt so much worse since Friday. Saturday, January 5, 2008 9:34 PM CST Chase hasn't felt well at all the last two days. Thursday was a pretty good day, but then he turned yesterday. His temp spiked over 101 last night(almost 102) and again tonight. He hurts all over especially in his stomach. I am planning to take him to the doctor on Monday even though we go see Dr.Stine on Wednesday. I regret not taking him yesterday even though I doubt there is anything they can do for him. He is "pretty" excited about getting to go back to school. I am just hoping he can start feeling better so he can actually go some now that the doctor gave him an all clear for school. We got the word yesterday that the infectious disease doctor believes he is not contagious and does not have any type of infection. We don't know the next step yet. She was going to have a conference with Dr.Stine and Dr. Roach first. I am guessing it will be a change in medicines. At least one of his meds can possibly cause fevers as well as Advil itself can cause fevers(did not know that one before last week). I just want them to find out what is causing him to run fevers and feel so bad for so long now. I (and he more than me) am so tired of him being sick and tired. It is way past time for him to get to be a KID! Monday, December 31, 2007 9:51 PM CST We had a wonderful Christmas and are enjoying a quiet New Year's eve as a FAMILY. It has been so nice to have daddy home this last month. We are bowling on the WII that Santa brought Chase. It is very addictive. Sunday, December 23, 2007 1:38 PM CST Sorry for the delay in updates...I have been running around getting ready for Christmas. We had a wonderful celebration with Matt's family yesterday. We had 18 over. It was so nice to be able to host it in our new house. We have never had the space or the opportunity to host Christmas before. It was so much fun. Truly a blessing. Chase felt "ok", but I, on the other hand, had to spend the evening in the ER. I cut my finger on a green bean can, and hadn't had a tetnus shot at least since I have been married(14 years). Ended up, I needed stitches too, but I postponed my trip to the ER too long to get them without an infection, so I ended up with steristrips all wrapped up. Oh what fun it was. Monday, December 17, 2007 10:56 PM CST We have a dear prayer warrior who is very sick. We are asking for prayers of healing for Mr.Ray. He was instrumental in Chase's "knighting" ceremony at his end of treatment party. He has lung cancer, and during scans for radiation today, they found cancer in his stomach. Please pray for him and all of our other dear friends still fighting this terrible disease, and please still remember those friends in remission, as they still have many battles to continue fighting from side effects and the such. Thursday, December 13, 2007 11:23 PM CST I am nervous to write this, but the highest Chase's temp got(on the thermometer at least) was 99.4. The last time I wrote his fevers were better, we had one of the worst nights in months, so pray not this time. He feels so much better than he did Monday. None of the tests that have come back are positive, a very good thing, but at the same time, it would be so nice to know exactly what to treat. He has completed 3 full days of antibiotics, so maybe just maybe the fevers will GO AWAY soon, very soon. Tuesday, December 11, 2007 7:22 PM CST Yesterday by far was the worst day Chase has had in awhile. He felt AWFUL! Not to mention, it was a very busy day of running and waiting(was for me and I didn't feel bad at all). Sunday, December 9, 2007 9:14 PM CST Chase continues to run fevers, but they seem to be getting farther apart. His port surgery site is healing well. It is a bit sore, but he is able to put his arms above his head again. We go to the PCP and the dentist tomorrow. Maybe one of them will have some input into what might be going on. Thursday, December 6, 2007 10:08 AM CST Chase is out of surgery and doing really well. He is ready for a breakfast burrito from Sonic and ready to get home and have a restful day. We are praying that this procedure takes care of the fevers and ill feelings all together. Thank you for all the prayers.
Thursday, December 6, 2007 5:34 AM CST We will be leaving soon for Chase's surgery. I will update when it is completed. Sunday, December 2, 2007 10:24 PM CST We made it to the Christmas party and the concert. We had a great time at the party. We saw many friends and the kids loved winning prizes and seeing Santa. The concert was a little disappointing. As long as Chase and Catie had been looking forward to it, for Chase not to feel well during it was a real bummer. It really was a good concert, he just wasn't up to it, and Catie spent the whole concert worrying about her bubba. They both sang to their favorite songs, Catie danced to a few, but Chase never left his wheelchair. I had sure imagined a totally different experience, so I think I was the one most let down. They did get a concert tshirt and were pretty proud of those. The best part of yesterday was, Daddy IS HOME! We were all thrilled with that. It has been way too long. It will be nice to have him here for Chase's surgery this week.
Friday, November 30, 2007 2:39 PM CST Well after 3 hours of sleep and returning to Little Rock this morning a little after 5, Chase's surgery was postponed. He had an asthma attack last night and was quite congested this morning. I was really not comfortable with the anesthesia part of the procedure and I expressed my concerns to the doctor. They decided it was not worth the risk at all to put him under if he was already having some respitary issues. Anesthesia and the vent could have only made it worse. Instead, we will get him over this little hiccup(congestion) and proceed with surgery next week. Thank you all for your prayers.
Friday, November 30, 2007 5:39 AM CST We are awaiting surgery now. We had to be up at the hospital this morning at 5am. It was pretty tough getting up this morning due to the fact that we didn't leave Monticello until after 11 last night. We had a nice time visiting with "Nana's" wonderful family, just so wish it was under different circumstances. We love them all so much. Thursday, November 29, 2007 10:07 AM CST I don't know the exact results from Chase's echo yesterday, but I don't think it was anything bad. Dr.Stine did schedule urgent surgery to have Chase's port removed tomorrow after viewing it and blood counts, but he also said his blood counts look like he is fighting some sort of chronic virus. At least we are looking into things now. Not that having an "unknown" virus is going to help him feel better, but hopefully the port removal will be the key. He also ran some more tests and are having us come back in for more cultures before the port is removed to see if it will grow anything. We will see...so for now, we just wait and recuperate. Tuesday, November 27, 2007 10:58 PM CST Chase is scheduled for an echo of his heart tomorrow to look for a source of his fevers. They have gone on way too long. He was really seeming to feel better the last week or so, but still the occasional high temp. Even today, he seemed to have felt much better than yesterday, but spiked a fever a little over an hour ago. Currently, 102.3. This is the highest it has gotten in a while. I had to put a call into the hospital, Carol had told me to hold all Tylenol and Advil until tests tomorrow, so they could draw cultures and the such. Dr.Becton told me that Tylenol/Advil tonight should not affect tests in the coming days. I was really hoping he could get a half day of school in tomorrow, but with that high of a fever, I would say that is out. Monday, November 26, 2007 2:11 PM CST We had an absolutely wonderful holiday! Chase felt soooo much better than he has in weeks, but we sure did miss Matt. He will be home for Christmas though, hopefully sooner than later the layoff will come. Strange feeling, hoping and praying for my husband to get laid off, but that's the way his jobs work. Tuesday, November 20, 2007 9:53 PM CST Chase made it 1 1/2 out of 2 days this week. He was sick to his stomach earlier today and came home, but seems to be feeling much better now. We made it to Texas safely for Thanksgiving. His legs are improving each day. I am really thinking that he did have a virus and he is now getting over it. It is so nice to see him feeling better and being able to be a kid again. Wednesday, November 14, 2007 12:18 AM CST Praise God all is good with his spinal fluid. Maybe we can now move on to find out what else it could be...Words could never truly express how very thankful we are for all of the prayers being sent up for the no relapse results. I can now at least breathe again...
Tuesday, November 13, 2007 4:10 PM CST Our sweet friend Brandon earned his angel wings last night. He put up such a strong fight, but the infection in his lungs was just too much for his little body. He will be greatly missed. Please pray for his entire family...he has a little sister and a little brother that sure do love their bubba(not to mention the rest of his family). Monday, November 12, 2007 7:49 PM CST Chase had a pretty rotten day today. Actually for the most part, his weekend was pretty crummy. His legs are just killing him. His energy level is in the trash and he just feels yucky all over. I am going to call the PCP tomorrow to see if they have any suggestions or want to see him again. I did make him attempt school today, but I got a call by 10:30 saying he felt too bad to stay. We did get all his schoolwork done at home with breaks, so at least he won't fall behind. Thursday, November 8, 2007 8:50 PM CST Dr visits went well. Chase's counts have dropped in half since last month. THey are still in the normal levels, but on the low side of normal. It could be that he has a virus that is dropping them and making him feel like total crap. He seemed to have felt much better today than Tuesday and Wednesday. His leg medicine was upped. We are going to start out with double than possibly add another dose if it still isn't working. I just hope he starts to feel better and can get back to school on Monday. It is so nervewracking when he has weird symptoms. To see and hear about so many of our friend's fighting so hard right now and to remember each day all the friend's we have lost, it is scary to think that one cold may not really be a cold. Wednesday, November 7, 2007 10:23 AM CST Today is Chase's monthly visit. We are praying that all is great and nothing from his blood work explains him feeling weak and tired lately.
Wednesday, October 31, 2007 9:19 AM CDT Well as you can see the election is over. Chase, I am sure did great giving his speech, but someone else won. Oh Well. Chase made honor roll, though. We will take that over being president anyday, lol. He is very proud of his certificate, AS HE SHOULD BE. He has started a new medicine for the pain in his legs. I can't really tell it is working yet, but the doctor said we would have to adjust his dose as we go along. We have a couple of friends that are in REAL need of your prayers. Cancer stinks! Elijah is starting chemo for transplant #2, Lindsey has to wait a month to find out about blasts in her bone marrow, Job is waiting for God to come take him, Brandon is in the hospital again, Baby Ethan's Leukemia is back and chemo may not be an option, and all of the kids still in the midst of their fight. And for the rest of us in this "cancer world", we live with the fear that any syptom may be the begining signs of the cancer coming back. Saturday, October 20, 2007 10:46 AM CDT The website will take on a different look this week, but no fear, the dragons will be returning very soon. Chase's class is having a mock election for president this week and we are going to utilize his website as a campaign tool. I will update to let you all know how the campaign is coming along.
Wednesday, October 10, 2007 12:52 AM CDT Chase just met with the doctor for his monthly checkup. Dr.Saccente said he looks great. His counts are rebounding wonderfully and he is enjoying being a "normal" kid. She said it is completely expected for Chase to have increased bone density loss. She said with all the steroids, the Leukemia itself, and all the chemo, it is just one of the side effects he will deal with forever. THe only thing we can do to help the bones out is to keep him active as much as possible, but NOT to wear him out. She was shocked at how much school he WAS attending. She said that was fantastic that he was making it even 3 full days a week. She told us to contine to alter his school schedule and maybe after Christmas he might be able to try 5 day school. I wouldn't really say I had been altering his school schedule, but when he is so wiped out that he can't get out of bed, I do let him go in late if he gets up later. She told us not to push him too hard, his body will do what it can and we DON'T WANT HIM getting sick and not being able to rebound. Her words that I TOTALLY agree with. Saturday, October 6, 2007 8:19 PM CDT We have been reconnected with the world, or at least sort of. Our internet stills comes and goes. Hopefully that will be fixed this next week. Our tv's are back. We sure did miss them. The kids actually haven't watched that much since they have been turned back on, but it is nice to have them when they want to. Monday, October 1, 2007 4:27 PM CDT We are totally moved. We however have no internet yet, and my computer blew up AGAIN, and so have no way to get wireless internet from the handy wifi places. We are totally out of communication. We are so excited that we get cable back tomorrow. Without tv and computers, we are lost. Chase is doing well. Recovering from a major asthma attack from the move, but doing great OFF OF CHEMO. I will update bunches when I get connected. For the time being, please check the guestbook. BobBob and Mimi will keep you up to date there. Love to all and please continue checking on us. This no updating thing is only for a SHORT time.
Friday, September 14, 2007 8:34 PM CDT Sorry for not updating. Chase's visit went well on Wednesday. His counts were up and he didn't need IVIG's. His body may have started making them on their own. We will find out if he needs them next month. Our next appointment is October 10th. He had a great day at school today. He even came home reading a book, which is a HUGE deal. I will update if anything new happens. Wednesday, September 12, 2007 6:47 AM CDT Today is Chase's first checkup since being off chemo. It is going to be a busy day. We go get counts early and then head to England for school pictures, wouldn't you know they had to be on the same day. Then we head back to ACH for the visit with Dr.Stine and possibly, hopefully IVIG's. Chase needs anything and everything he can get to boost his immune system. He woke up with another fever yesterday. I am believing he has caught whatever it is that I have been struggling with, just a Upper Respitory thing. He is really wiped, but fever responds to Tylenol and Advil. He did spike another low grade last night, but hopefully nothing today. He loves school so much, and just hates to miss it.
Saturday, September 8, 2007 9:26 AM CDT It is with the heaviest of hearts that I write that our dear friend TJ has earned his wings this morning. He is no longer in pain, and never has to think of cancer again. Please pray for his family as they go ahead day by day without their precious son.
Tuesday, September 4, 2007 8:40 PM CDT I uploaded 3 pictures in the view photos section!! It was so much easier than adding them to the site. Hopefully that will come soon, but wanted to get them on there.
Wednesday, August 29, 2007 10:08 PM CDT Our hearts break today for a dear friend of ours, Palmer, finding out that she has relapsed. Please pray with us for peace and strength for her and her family as they begin this battle again.
Sunday, August 26, 2007 7:30 PM CDT Well Chase is feeling much better and hasn't run fever since yesterday. So...on with school tomorrow. I am ready for the meeting on Tuesday with the principal, nurse, and teacher to discuss Chase's needed modifications. One of which is not counting absences against him. Most of the others are actually in the classroom. Friday, August 24, 2007 10:07 PM CDT Chase made it to school 3 full days...until he got sick. We had to take him into the doctor yesterday for a "virus". We had his counts checked and they were good, so we just had to have him stay home until Monday. He seemed to feel much better today, but did have a bit of fever this morning. Hopefully by Monday, he will be fever-free and can return to school.
Tuesday, August 21, 2007 1:41 PM CDT Chase had a great first day of school yesterday, and is actually having another first day today. We found a house and signed a contract for a house in England yesterday. After meeting with the NLR school on Friday, it was the push I needed to really get into a house. Matt and I had been watching a house on the internet for a couple months, and looked at it Saturday and again yesterday and thought it was perfect for us. So rather than Chase becoming familiar with Park Hill and then being taken out of it in 30 or so days, England School District let him begin today. It is a bit of a drive, but hopefully will only be for 20 days of school, and actually the drive is the same as from the house in Monticello to Monticello schools. So big changes this week. It is exciting and scary at the same time. I will post a picture on here as soon as I get a chance.
Wednesday, August 15, 2007 6:40 PM CDT Chase's spinal and bone marrow are officially clean! He is OFFICIALLY off treatment. He received his IVIG infusion and it has been one LONG day.
Wednesday, August 8, 2007 9:43 AM CDT Today is the big day. Last chemo. Woohoo!
Click here to go back to the main page. Click here to view older journal entries. ----End of History---- |
|||||||||||||
|