about CaringBridge  |  home page  |  view guestbook  |  view photos  |  journal history  |  make a tribute donation

Click here to go back to the main page.

Monday, April 28, 2008 4:11 PM CDT

April 28th, 2006 at 3:50 p.m. two years ago when Caleb left my arms at Childrens to his beautiful angel whom carried him to meet Jesus, the one he talked about so much that would help him feel better. Two years he hasn't had to endure any pain, just all joy and happiness, playing with his brothers and sisters in Christ including my unborn child I miscarried. We miss Caleb and think of him everyday. It will never be the same without Caleb running around here but as for anyone who looses a child, you learn to adjust somehow. On difficult days when you seem to struggle through life, it's so hard to stand, it's amazing how God holds you up to comfort you. When lonely days comes God places friends to lift you.

I can imagine he is still in "AWE" of the beauty, praising our Lord with the others, running with joy on the streets of gold with no pain in his legs, no more Hirschsprungs to deal with and no medicine. I can almost see him walking side by side, hand in hand with Jesus every chance he can. We look forward seeing Caleb again soon, very soon. Caleb looked up to heaven, the beauty of God's love surround him with amazement. Jesus forever with him.

Cody is doing so great! We are very proud of him. He is ten now trapped inside a teenager!! He talks about Caleb alot and misses him, his best friend but he knows he will see Caleb again very soon. Cody is playing football at school during football season. Working very hard to keep his grades on A's and B's. He is on the Student Council board which keeps him buisy. He's excited he will be graduating from Elementary next year moving on to the middle school but will miss Mrs.Dewey.

As I close this two year journal, I pray that each of you will take the time to be thankful for your children, take each day like it was their last because they are God's gift to us. "Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these."

Much Love To You and God Bless,
Adam,Laurie,Cody :)

Saturday, April 28, 2007 10:47 PM CDT

It was just a year ago on a Friday when I felt God's presence in Caleb's room 3123 at Childrens. Adam and I had the book of Psalms playing on the cd player, Caleb's breathing was deep and shallow all day. I could feel that it was getting close. Kim, a good friend from pharmacy was in the room visiting with me while Adam stepped out, as we were talking I glanced at Caleb and he looked very different. I rubbed his hands, they were chilly, I looked at Kim and sayed "It's not long". God was there, the whole room felt warm and comforting like a sworm of angels filled the room around Caleb. I experienced a different feeling. I leaned up toward Caleb, hugged him, told him I Loved him, holding him he took his last breath at 3:50p.m. that afternoon. He was gone, presence with the Lord. How happy Caleb was to be with Jesus face to face.

We will never forget Caleb, we still have our hardest days but such a blessing to know Caleb is forever with Jesus whom he talked about so much, whom he said would help him feel better. Soon for us believers will forever see him and our other loved ones. I look forward to that day. Cody will forever be with his best friend. Cody talks about Caleb to others, Jesus helped his brother so much through seven years of trauma. We are very thankful to have Cody who is 9 years old. Me and him are closer now than we ever was. He makes me smile every day. Very proud and watching Cody grow more and more in the Lord. God has a special plan for Cody.

We are very blessed God gave Caleb to us even at a short time. Caleb showed us to be strong and Jesus is the answer through the hard times of life. Caleb reminded me of Job, through seven years of hospital stays, medicines, I.V's, being stuck so many times and so many tubes, he never gave up and always mentioned Jesus name through it all. In San Antonio Caleb was having a hard time taking his medicine from a nurse, the nurse asked him "Caleb, what can I do to help you feel better?" and Caleb responded with "Jesus will help me" my chin dropped and I had tears in my eyes. Nurse just smiled. That time he was six saying that. He had so much courage, knowing Jesus was right with him. When we can home from San Antonio and Caleb needed radiation again, getting him in the car Caleb said "momma, I don't wanna go, Jesus will help me". Even though I knew that, I couldn't give up for him. I didn't want to let him go.

A year ago, it hurt me badly to let him go at Childrens. I had the hardest time leaving there and watching Caleb go with North Little Rock Funeral Home. Our dearest friend, Carrie Calhoon helped me through it, she is God's gift to parents there. I miss him everyday but I have to keep thinking Caleb is so happy and pain free. I will always have a empty place in my heart until I see Caleb again.

A wonderful friend sent me a beautiful poem in memory of Caleb. I just thought it was the most sweetest thing.

In memory of Caleb - A true HERO
On earth, he was your little boy.
In heaven, he still is.
Laurie, you gave birth to him
he showed you how to live.

The little sparkle in his eyes,
The smile upon his face.
Just a child, yet very wise
In Oh so many ways.

He made his final journey
When he entered heaven's gates.
There's only joy and happiness
Oh what a special place.

In heaven, he will not grow old
He runs and sings and plays
And he marvels at the streets of gold
And the angels singing praise.

He walks along with Jesus
And many loved ones too.
There's no more pain or sorrow . . .
In the land beyond the blue.

Caleb had to fight a battle
Like a hero, he did fight . . .
And you didn't have to say goodbye . . .
You just had to say good night.

Good night, sweet Caleb! I want to see you when I get there.
Written by: Marsha Robinson

CALEB'S FAVORITES:

Favorite Color: Yellow
Favorite foods: Mom's mac & cheese
Favorite cartoon network show: Ed,Edd & Eddy
Tom & Jerry
Backyardigans
Favorite Movie: Batman & Robin
Favorite Teachers: Mrs.Munnerlyn & Mrs.Bridgeman
Favorite Bestfriend: Cody Sims & Kylie Hobson
Favorite reminder: "Jesus gonna help me feel better"
Favorite creaters: Alligators, crocadiles, snakes,
turtles, worms, frogs, ladybugs
Favorite phrase: Leave Me Alone!
Favorite toy: Batman, Spiderman, playing trucks with Cody
in the mud.
Favorite place to be: Home on the couch
Favorite hobbies: Him and Cody playing with the waterhose,
going fishing, playing in the snow, or
just hanging around at home with Cody.

Thank you all for your entries, your love and support through our hardest times. Keep praying for us and send me an e-mail, I'll write ya back. My e-mail is on the front of the webpage. We will forever love Caleb and will be seeing him very soon.

Much Love and happiness to you,
Laurie :)

Sunday, April 22, 2007 10:12 AM CDT

This past Thursday would have been Caleb's 8th birthday. As buisy as we were I still thought of Caleb how he loved presents and so much attention everyone gave him last year at Childrens. I thought alot of our friends on Three Gold, Dr.Saylors,Caleb's nurse,Catherine surrounding Caleb's bed with surprises. I still can see his face light up when his favorite character "Batman" walked in the room. I sure do miss his glowing face but I know his face is glowing more now with laughter,smiles seeing the face of his Heavenly Father. And now he doesn't get any yonger or older.

I sometimes can still see his face smiling at me, I guess that's God's way comforting me, letting me know how wonderful Caleb is now. I will never forget my son, I will always have two precious boys. I have been asked how many kids we have and my response is "We have two wonderful boys, Caleb went to heaven at 7 last year and Cody is 9. Some think I have lost it but that's the way I respond which is the truth. Adam and I were his earthly parents and now Caleb is with our Heavenly Father.

Adam and I have started several projects as our therapy and they have helped. Adam's therapy is staying buisy on his shed and the Railroad. My project is pretty special to me, Adam built a very nice flower bed at a perfect spot under our big tree and I have decided to name it "Caleb's garden" in that garden I am placing several of Caleb's favorite insects and amphibians such as laddybugs, turtles,frogs,butterflies with lots of yellow flowers which was his favorite color, a crape myrtle and a bird bath. I am anxious to see it when I have finished it.

Cody is doing very well, playing with his friends, staying on the honor roll at school, helping us around the house, witnessing to his friends. Letting them know what Caleb must be experiencing in heaven. God is working in Cody. We are very proud of him!

We will remember Caleb this 28th of April in many special ways. I will give the final update on the 28th, it will be a special update remembering our sweet Caleb.

Friday, April 13, 2007 11:45 AM CDT

It's been a good start of April. Easter was a little bit different celebrating Jesus resurection without Caleb here but he will be forever celebrating in heaven. Adam,Cody and myself stayed together Sunday following the Easter services at church. It was a droopy day, Cody and I had to take a trip to town for a little bit to take the downs away for mom that is. Cody was excited just to get out of the house and pick up a bionicle toy!

We are doing good but missing Caleb is sometimes unbearable. We will always miss Caleb and Cody will always remember his brother and best friend.

Touched our hearts how Caleb will be remembered at Lonoke Primary when there will be a balloon release this coming Tuesday at Primary in honor of him and his strength through his battle of Neuroblastoma Cancer. It will be a beautiful site to know the peace,joy and love Caleb is having now. Lonoke Primary also has a Relay For Life team in honor of Caleb which will be at the Lonoke Football field the coming Friday afternoon. This month we are honoring Caleb in many special ways because the fight he went through showed us all how special he is.

How can we go on with life without Caleb? I've had some tell me "Laurie, I couldn't do it" With Faith, God Carries you through your hardest times in life. You can't handle it by yourself. God also sends friends your way to help you through the most difficult times. Smiles,hugs from friends at Lonoke Primary has helped me when I tend to drag my feet in the mornings.

Much love to you and have a blessed weekend.
Laurie

Thursday, March 22, 2007 10:42 PM CDT

I'm up late tonight, have so much on my mind, not able to whine down.

We are doing well just trying to stay buisy as April is coming up and we are dreading it but such a wonderful celebration for Caleb. Caleb now has a wonderful heavenly home with his heavenly Father, sitting on Jesus knee, I'm sure every chance he can, playing with the other little ones and having a great time with his favorite bible character, David for almost a year now. It's hard to believe a year is almost here.

Missing Caleb everyday but we have to smile imagining what Caleb could be doing in heaven. I have been so blessed to have so many friends God sends to help me through my hardest days. The other day I felt like reading some of last March's journal to see how it was for Caleb, so I did and teared up thinking of what he had to go through, I cherished every day I had with him. I still have a hard time with flash backs, some days it's like it was just yesturday.

We wait and make wonderful memories of Cody. I just need to tell this. The other morning Cody was hungry for bacon and eggs before heading to school so while I was preparing breakfast Cody says "Caleb, it's almost ready" I said "Cody, Caleb never liked bacon and eggs for breakfast, he always wanted cereal or cheese toast" he said "mom, this is my imagionary best friend like Caleb". I didn't know whether to laugh or cry. Cody and Caleb were so very close and I'm sure Cody will always be close to his brother talking about him to his friends.

Adam is working more now trying to keep his mind buisy, Cody is buisy staying on the honor roll and I am still loving Primary. Pray for us as we soon enter April, God makes us strong every day.

Love, Laurie

Thursday, February 22, 2007 1:06 PM CST

The weather is changing, our wild flowers are blooming in our yard that Caleb always loved to fall into or pick the daffodils. It's hard to believe it's almost Spring. Cody is getting Spring/Summer fever, he is ready to play ball, go swimming and camping, wild river country, church camp and play outside with his new yellow three month old lab, "Jack Sparrow" that Adam picked up on his way home from work.

April is coming up fast. We are planning on several things to do on Caleb's birthday which is April 19, 1999. He would had been 8 years old this year. We are preparing to be at Childrens that day to see our wonderful friends on Three Gold and the clinic, especially Dr.Saylors! We miss them very much and yes, you Carrie Calhoon! Your like a sister to us! We love them all very much!! Can't wait to see them plus Dr.Jackson, Donna and Karen from the surgery clinic.

April 28 will be the hardest but wonderful for Caleb. Miss him every day and will soon see him with lots of hugs some day. Continue to pray for us as we reach the one year that Caleb has been in heaven. So happy but miss him, and please pray for Cody, I just know it will be hard on him.

Love you all, Laurie

Sunday, February 11, 2007 10:23 PM CST

It's already February 11 of 2007. This year is already flying by. When tragedy like this hits us, life here on earth doesn't stop does it? There are times I wish it would. Sharon Hawkins, Dakota's mother has touched me so many ways in Dakota's journal on his website, she truly knows the scripture. She stated we must move forward not looking back, we are trying to focus on that and if it wasn't for God helping us through it we couldn't had made it this far. I still sometimes hear Caleb's voice in my sleep, something a child does at school reminds me of Caleb, I can sometimes still hear Caleb say "mamma, don't go". We deeply miss him everyday but God pushes us to move ahead, give God the glory that we know someday there is a wonderful, peaceful place for us to be and see our love ones.

Cody turned 9 years old February 2. It was a little different for him that day, Adam worked while me and Cody had the day together. I tried to keep him buisy that day but there was still time Caleb was in Cody's thoughts. On our way home from picking out his favorite birthday cake, Cody gotten quiet, I asked him what was on his mind and he told me "Mom, I just wish I could hold Caleb's hand, just to hug him one more time, I want to see him right now". I stopped right in the middle of the road on Grahm thank goodness there weren't anyone behind me. We talked for the longest and prayed. After wipping away the tears, Cody looked at me and said "mom, I'm okay now". That must had been the hardest day for him besides Christmas. We rented some wonderful movies and bought his favorite movie "Facing the Giants". He was better. Saturday was a buisy day! Adam picked his four wheeler up from getting the tires fixed, we took him to Corkey's where he loves their ribs, he had fun picking out a couple of things at Toys R Us, then went to the Imax theater where he thought was very cool!

We've had lots of fun since his birthday also threw snow balls, made snow angels in the 1 inch of snow we gotten two weeks ago. He is enjoying 3rd grade and his Faith makes us smile everyday. We are very proud of his strength and his stories he shares with us witnessing to his friends at school.

April is coming up way too fast. Remember us as we are looking up knowing God will help us stand to smile at others knowing that Caleb will forever have that sweet smile and so happy with Jesus, Caleb always had said "Jesus is going to help me better".

Love, The Sims

Monday, January 1, 2007 0:27 AM CST

As we enter the New Year of 2007, I sat here thinking back when 2006 entered. I was in the San Antonio's Childrens Hospital transplant room looking out the big window while Caleb was snoozing, watching the sky light up with different color fireworks and praying that God would give Caleb complete healing for the New Year. I had Faith that whatever God had planned, he knew what was best for Caleb.

Although God's plan was different than ours, now I praise him everyday for giving Caleb complete healing with a new home in heaven with him. God always answers prayers but it's not always like we would want them to be answered. We miss Caleb everyday and starting the new year without him is unbearable but knowing we will soon be reunited is something to look forward to.

We see Cody letting his christian Faith out to others. Sharing others the strength his brother had and a wonderful home he has now. May the New Year bless Cody's life with joy, happiness and standing up tall to his Faith with Jesus in his life.

Cody and I are looking forward to getting back to school. I miss seeing the smiles and hugs from Mrs. Denson's class and Cody misses his friends at Elementary. It's been a great Christmas break but too much time to think and miss Caleb.

We love you all and have a blessed start of 2007.

Wednesday, November 29, 2006 1:13 PM CST

Thanksgiving was extremely hard but with our family being all together, it made the day better. It was not the same without Caleb being there running around. Me and Adam's sisters, Sherry, Donna and Vicki went to the cemetary to pray, giving Thanks to our Heavenly Father for helping us through this hardest time of our life and for giving Caleb complete healing with a new beautiful home. God helped me, Adam and Cody through this Thanksgiving because if it wasn't for him I don't believe I could had made it through. It was hard.

Friday after Thanksgiving me, Adam and Cody went to pick the Christmas tree out at Schillings where Cody and Caleb loved to be every year for a picture by the inflatable bear. We were all pretty quiet especially Cody until we got home. We pulled out the decorations and memories started coming seeing the hand made ornaments the boys made. We had several batman ornaments Caleb wanted on our tree in San Antonio last Christmas, the picture of Cody and Caleb their Aunt Donna gave us last year, the beautiful angel that lights up Caleb loved that Cody wanted to put on top. Cody stopped, hugged me and said "mom, I miss Caleb". I reminded him that Caleb is celebrating Jesus birth now in heaven with Mary full of happiness and smiles everyday. We also have an ornament of a beautiful butterfly that represents the changes a child experiences while undergoing cancer treatment. From the cocoon of treatment and isolation, a child emerges-beautiful and ready to take flight. Cancer is the leading cause of death by illness for children in the United States.

It hurts us that he's not here with us but praise God that he is happy, not hurting anymore and knowing God is our light through our darkest times. He is there when you need him, just call to him, he answers and understands. What would we do if we didn't know that?

Cody and Caleb always loved seeing the Christmas lights naming every color. Christmas day we would always have something sweet celebrating Jesus birthday with a candle representing Jesus is our light of the world singing Jesus Loves Me. Lots of wonderful memories I miss alot.

Pray for us as the Christmas season is approaching us.

Friday, November 17, 2006 2:14 PM CST

As Thanksgiving is just next Thursday, I know you have many to be thankful for as I do. I am thankful to have known the doctors, nurses and Social Worker, Carrie Calhoon of Three Gold. They are a blessing to all the little ones who are fighting a horrible disease of cancer. Dr. Jackson, Karen Kelley and Donna Mathews of the surgery clinic who has helped both my boys of Hirschsprungs. These are not only doctor's and nurses but dear friends of ours.

We are also thankful to know our Caleb is not hurting anymore and has a beautiful home now with Jesus. I am thankful that Caleb was with us for seven years. He brought so much joy into so many lives including Mrs.Munnerlyn and Mrs.Bridgeman of Primary. He showed us all to be strong and know Jesus is with us through our darkest times.

Cody - this eight year old is our sweet sunshine here who takes care of us and who shares an amazing story about his brother to his friends. Adam and I have so much to be thankful for.

Friends like you helps us through our hardest days. May you have a wonderful Thanksgiving with so much to be thankful for.

Much Love to you, Laurie

Wednesday, November 1, 2006 7:27 PM CST

I've had several request to give an update on how we are coping during these difficult days. We miss Caleb and have our puddle days but knowing he is happy and we are happy for him. Cody talks about his brother still and talks about him with his friends, he still has a hard time going to places where Caleb and him would go together but he is adjusting better staying close to us.

As the holidays are approaching us I ask you to remember us as it will be very different but I know God and friends will be holding us up. Some days are harder than others but we have to remember that God wants us to live our life while telling others the fight Caleb had. We need to keep in mind that Caleb would want us to find ways to enjoy life without feeling guilty or selfish. They say that grieving is a long process, when I hear a song, something reminds me of Caleb tears start flowing. I figured by now it would have gotten a little easier but I guess in time it will. God and Time will heal our hearts from this grieving process. We will only have a tender scar.

We treasure the memories but determined to move forward even though it hurts but we also choose to lean on God's loving promise, that promise is in Jeremiah 29:11
For I know the plans I have for you," says the Lord. "They are plans for good and not for disaster, to give you a future and a hope".

God sends friends like you to help us through the sorrow of our loss. Seeing Caleb again is everlasting, that is what I am looking forward to.

Remaining Faithful to Christ calls for a Faith that can and will endure difficult times.

Love to you, Laurie

Thursday, September 21, 2006 9:13 PM CDT

It's going great here still lots of memories but we cherish those memories. The first of everything is extremely hard and difficult bringing back when Caleb loved summer, having a great time with his Mrs.Munnerlyn, Mrs.Bridgeman, Mrs. Lilly and Mr. Sawyer, Lonoke Parade which he loved to watch every year either sitting on the sidewalk or in the car and now the State Fair coming up which he loved the animals. The Holidays will be hard but we manage to keep standing, holding up with God's loving hand.

Cody is enjoying playing football for the Jackrabbits. He is always ready to put his football gear on to head to the field. He never forgets his brother, he talks about him everyday. He tells his friends about his brother and smiles when telling it. Cody is still enjoying school, loves homework (pray that doesn't change), and loves football. He is really keeping us buisy. He is a joy!

Caleb's precious monument has arrived and it's beautiful with his picture mounted in the stone sitting at Concord Cemetary.


Love you Three Gold, still think of you everyday and also
Dr. Jackson, Dr. Saylors, Dr. Saccentae, Dr. Stine,
Dr. Becton, Donna, karen, Catherine and Carrie.

Thursday, August 31, 2006 9:39 PM CDT

It's been a great second week of school. Cody is really enjoying the third grade and loves his teachers. He is so excited that he is already making A's on his test. His life is soon to be buisy after starting school then Awana's at church and now getting into football! Cody is growing up, wanting to be buisy with church and on the field with his friends. He is still talking about Caleb to his friends, missing him very much but knows he will soon see him with no sickness. Keeping Cody buisy is good for him and to help keep his mind buisy not always thinking of missing his brother because he always gets quiet and sad when he does talk about missing Caleb.

It's great to get back to the routine but adjusting without Caleb is hard. There's not a day we don't think of him. The weather changing brings back memories when Caleb loved the "it's a great day" he would say before him and Cody running outside to play with their cars and trucks. On nice days (when he wasn't sick) like now was very hard to get Caleb inside for bath. He wanted to stay outside until it was dark. There were some days I had to piggy back him inside but those times he didn't mind, he loved piggy back rides especially with his cousin, Tiffany Evans. Caleb loved the outdoors especially finding frogs to hide in his pockets for mom! If we seen a turtle slowly making his way across the road, oh no, we had to stop to pick that turtle up taking it to Uncle Bunches pond for their "new home". Caleb would say "aw, now he has a home". He always would think those turtles getting across the road didn't have a home and we had to get them a home at Uncle Bunches pond. Now if we are outside Cody would pick up a frog saying "Caleb would love this one because he is fat". Boys will be boys, they had fun outside gathering up critters sticking in their pockets to scare mom! I miss those days but it sure does bring back funny memories.

It will be a great three day weekend being at home dogsitting Samson (nanny and pa-pa Sims) dodson. Cody will enjoy that. Continue praying for my Father-in-law (pops), he is doing well other than being very nausea between treatments. Their address is J.D & Dorthey Sims,1623 South Kerr Lonoke, AR 72086 if you would like to send them a card.

Nurses of Three Gold, we love you! Don't forget Adam's saying "Another day in paradise". It's still his favorite.
He is doing great.
You remember those great days we had!!! Carrie Calhoon was a blessing to me but especially to Adam!
Keep Dr.Saylors,Dr.Stine,Dr.Saccentae and Dr.Becton in line, they need it!! Hugs to you all and miss you guys!
Watch out, we will come unexpectedly!!
Love to ya, Laurie

Saturday, August 26, 2006 1:48 PM CDT

Monday was a struggle for all of us adjusting to the school routine of getting up and around in the morning without having Caleb wanting noodles for breakfast or wanting to eat breakfast with Cody at school, Caleb was missed very much that morning. Cody helped me "mom, it's okay, Caleb is so happy". Cody got started really well, excited about starting 3rd grade at the Elementary School but was a big change for him. He loves it and his teachers. Was so excited to see his friends.

It was great to see everyone at Primary and the little ones with big smiles on their faces. I've had several say "Hi Caleb's mom" with a big smile on their face. It's great for them to still say that to me, I will always be Caleb's mom. I still miss seeing Caleb walking to lunch holding his Mrs.Munnerlyn's hand but God's presence being with me carrying me through letting me know Caleb is okay, wonderful to know he is always with us through our hardest times and sends us friends to lean on.

September is "Childhood Cancer Awareness Month" don't forget to wear your YELLOW ribbons. According to National Childrens Cancer Society, there are approximately 12,400 that is diagnosed with Childhood Cancer and 4,000 die from it. Not only does this affects the child but it affects the whole family. It's like a nightmare, a nightmare that won't go away. Some will say there is no hope, but there is hope and that is FAITH. The first day we found out Caleb was diagnosed with Neuroblastoma we were in shock,scared,and asking God "why". We don't always know the answers but we need to know God is in control and knowing without him you can't make it alone.

Thursday, August 17, 2006 10:00 PM CDT

Summer of 2006 is almost nearing the end with school starting just around the corner. As I was sitting on the front porch swing this afternoon watching Cody play with his trucks in the front yard I was thinking how fast this summer had went. Caleb loved the summer playing with his brother outside, they spent most of their time outside with their cars/trucks or squirting each other with the water hose in their underwear. We cherish those memories the boys had.

Cody adjusted well this summer, stayed buisy helping take care of "Samson", his nanny,pa-pa's dodson, taking mom on all the rides at Wild River, going on fun trips with Bro.Bill at church. He is anxious about starting the third grade at Elementary and seeing his friends again. Cody never needed any close friends because he had Caleb but now he has many close friends at church who he will be seeing at school. He knows he will always be Caleb's best friend.

I made a decision to work at Primary School after a year not being there I am excited to be back. Monday, the first day was different, emotional but was great to see everyone especially Phyllis Munnerlyn, Nancy Bridgeman, Susan Lilly, Callie, Susan, Holly Dewey, Ross Moore, were some of Caleb's favorites. Caleb loved everyone at school he always had friends but he would also let them know how he felt about them. If anyone made him mad he would let them know about it. Mrs.Munnerlyn and Mr.Moore rescued him from knocking anyone down who stepped on his toes. He was not scared for taking up for himself and he cared about his friends.

When he wasn't feeling good his friends always helped him. Kylie Hobson helped him alot carrying his lunch tray for him because Caleb was wearing a sling on his arm from the tumor and receiving radiation. She was his bestest friend (besides his brother), he always respected her because she always helped him no matter what it was even taking him to see Nurse Julie or me. He always was excited to see her even at church. The pic on the last screen of pics is one of Caleb,Kylie and Cody at a football game sitting at the stadium. Most of all, he ALWAYS had the sweetest smile on his face.

It will be different going back to Primary but I am leaning on to God that he will help me adjust and pick me up through the hardest days there. He is the only one who understands and will help me. Seeing the smiles of little ones and the friends of Caleb, and the wonderful staff of Teachers/friends will help alot. He will be missed from everyone especially his Mrs.Munnerlyn, Mrs.Bridgeman, Mrs.Lilly.

Friday, July 28, 2006 2:59 PM CDT

Caleb has been in heaven three months today. We miss him and will never forget him. Moving on is hard, extremely hard. Our lives will never be the same, he will always be in our hearts. God is caring us everyday through this, he understands the days we have a hard time to move. Cody struggles every day missing him but being with friends and family helps him alot. He is also helping take care of his nanny/pa-pa Sims dodson/chiuaua. It's been quiet buisy around here with Adam's dad (J.D) being diagnosed with cancer of the liver and kidney. He is getting chemo from Springhill Baptist but needs many prayers for him and his wife (Dorthey).

Caleb's favorite song came on this morning and brought tears remembering him singing it to me while at Childrens.

Come stop your crying, it will be all right
Just take my hand, hold it tight
I will protect you from all around you
I will be here don't you cry
For one so small, you seem so strong
My arms will hold you keep you safe and warm
This bond between us can't be broken
I will be here don't you cry
And you'll be in my heart
Yes, You'll be in my heart
From this day on
Now and forever more
You'll be in my heart
No matter what they say
You'll be here in my heart
Always

A HERO is someone who has given his life to something bigger than oneself.

Caleb will always be remembered.
Dr.Saylors, Dr.Jackson, Donna, Karen, Catherine, Carrie,
We will see him again soon. Love you!!

Laurie

Saturday, July 15, 2006 0:46 AM CDT

Well, up late tonight. Having a hard time resting, thinking of Caleb. There are many days I just say "God I really miss Caleb". Only he knows and understands and who gives us peace and comfort. I imagine that is how I or any parent who looses a child with Faith in God makes it day to day. Even though we know they are much better now, no more sickness who wouldn't want to come back we still miss them very much. Yes, we will see them again soon but according to me, not soon enough. I would love to see Caleb today, please God come now but God tells me I have a purpose here. Adam, (everyone knows he needs someone to keep him in line!), and Cody (we have become a very close relationship), and help other parents who struggles loosing a child. God gives me grace everyday to help me as I struggle missing Caleb.

This has been a buisy week for me and Cody. Adam has been buisy working. Cody and I have been having a great time at Wild River with Tiffany,Michelle, and Karla who are his cousins. Cody is anxious about school starting, he is ready to see his friends and be at the Elementary School! He is going in the 3rd grade but mentally going in the 12th!! We've also had Vacation Bible School this week and the scripture Cody memorized is Joshua 1:9 Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you go. When I have my struggle days I have to be reminded to be strong that he is with me always. Cody really loves that scripture, he will be reminded the same when he has hard days missing his brother. God always carries us through the hardest times we face in life.

Love you all and our THREE GOLD
Laurie :)

Wednesday, July 5, 2006 11:09 AM CDT

Lots of memories came to us yesturday remembering last year when Caleb loved the fireworks. Late last night I was watching the fireworks light up the sky, I could still hear Caleb's pidder padder feet coming down the hall for me to lift him up so he could watch the colors and shapes. His face would always be in amazement how big they would be. Times like these are when we miss Caleb the most. Cody was down remembering his brother last year having a great time with him while Adam, Amber and Nelson would light up the fireworks for the boys to watch. God is still helping us through the hardest times because he said he would never leave us nor forsake us.

Prayers are needed for a special friend, Katie Ford who is battling cancer and is in PICU at Childrens. This is a wonderful Christian Family who needs your prayers for their daughter. Her website is www.prayforkaitlyn.com

Thursday, June 22, 2006 3:53 PM CDT

Tuesday was a very big day for me and Adam. Cody was on a church trip while me and Adam went to pick the perfect monument for Caleb's grave site. That was something we had never dreamed of having to go through. With quiet emotions we picked the perfect,beautiful one that was just right for Caleb. The design from my mom who is an artist will be engraved in the stone with Caleb's original picture set in. It should be delivered within 2 1/2 to 3 months. The day seemed cloudy with mixed emotions but Wednesday morning came with a beautiful sunrise of a new day from God. With God's help we made it through another tough day.

Caleb is still running through the beautiful garden of heaven having the best time of his life. I have wondered what I think of heaven. The Bible tells us in 1 Corinthians 2:9 No mere man has ever seen, heard, or even imagined what wonderful things God has ready for those who love the Lord. Yet it also tells us that heaven is a place of light,hope and rewards. Jesus said, "I go to prepare a place for you." How marvelous to know a heavenly home awaits those who trust in him. Through the experience of losing Caleb, I have become more aware of my heavenly home, and I live now in joyful expectation of going there someday.

I have sat on my front porch swing trying to envision what Caleb might be experiencing in heaven. He is now running, playing with other kids and walking with his grandparents. Knowing Caleb is in heaven with Jesus not hurting anymore is one of my heart's greatest treasures. When I think of being with him again, my eyes fill with tears of joy. Jesus said "Let the little Children come to me" and that is where Caleb is, right there by his side. Someday I will be right there beside both of them. John 3:16. Someday in that glorious place called heaven we will hold our children tight, and once again our hearts will beat as one.

Love, Laurie

Saturday, June 17, 2006 10:34 PM CDT

Little Caleb's voice fills the air,
Life and laughter ring,
Across the hills of Heaven
His small, sweet voice sing

Gone to be with Jesus,
His big,beautiful smile,
Now run and play as never before,
In the land of eternal joy.

Never to know another tear,
Or face another pain;
What was senseless loss on earth
Has now become Heaven's gain.

While Heaven is much sweeter,
In our hearts we will never be alone;
God filled it with memories of laughter and love,
Of that sweet boy who has now gone home.

It will be two months April 28th at 4:00p.m. since our precious Batman Caleb left my arms into Jesus arms. There is not a day that goes by we do not think of him bouncing,jumping with lots of giggles. We miss him dearly but someday we will see him again. He is now waiting on our arrival.

Cody is doing well but mentions Caleb everyday. He had a minor procedure done last Monday by Dr.Bowers removing his adnoids and placing a third set of ear tubes. He is doing well, eating like a big boy and enjoying going to Wild River riding the inner tube rides!! yes, Dr.Bowers says he can go swimming!! Cody is really keeping me buisy this summer!! He really misses Caleb but being buisy swimming at Wild River or at Aunt Sherry's, bouncing mom while riding the four wheeler, helping me with house work, his mind is pretty occupied. Cody will be going to church youth group trip Tuesday, me and Adam will be out ordering Caleb's tomb stone. We both dread it but needs to be done. As soon as we know when it will be placed we will add the pics of the site to the website. May you all have a wonderful week.

Much Love to you and our Three Gold whom we miss very much. Laurie

Tuesday, May 23, 2006 9:58 PM CDT

God saw Caleb was getting tired and a cure was not to be. God put his arms around Caleb and whispered, "Come with me." With tear-filled eyes as I was leaning around him I watched him fade away. Although I loved him deeply, I could not make him stay. His heart stopped beating, his precious hands put to rest. God has bigger, better plans for Caleb in heaven, his short life here was done.

There is not a day that we do not think of our super-hero Batman Caleb. I miss him dearly but knowing he is well taken care of feeling as great as he's ever felt before. The house is quiet, we miss those giggles, and screams of laughter with him and Cody. I have Caleb's special things saved in a special keep sake box especially his favorite Batman toys. His favorite pictures of him with Dr.Saylors in a special album. His bed is made up with his batman covers, batman build-a-bears on top that's the way Cody loves it. Cody is adjusting slowly but it's still very hard for him especially the weekends. He doesn't talk about it much but stays quiet about anything that bothers him unless it's just me and him then sometimes he will open up. He has been talking to Mrs.Bourne at school, she's great to talk to him about anything and he does open up to her. Cody became a christian a couple of weeks ago and was baptized on Mother's Day. He has really been reading about heaven where Caleb is and truly understands that Caleb didn't die but is alive in heaven and will see him again very soon. He is telling his friends at school how strong Caleb was and where he is. They were so close and this is extremely difficult for him to be apart even if it's just a short time. Adam, Cody and myself are trying to spend as much time together as much as we can adjusting through this. This is not easy but God is giving us the strength, holding us up each and every day. As my sister-in-law had said God and Time will heal our broken hearts. I believe he will, we will never be the same and will always have an empty place in our hearts but God will hold us up every day.

EACH DAY IS A CLOSER DAY TO SEE CALEB AGAIN

We will always be four: Adam, Laurie, Cody, and Caleb

Much Love to you and our wonderful 3-Gold at Childrens.
Laurie :)

Friday, May 5, 2006 11:10 PM CDT

It's been a week now, Caleb is still in AWE of the beauty of heaven is and just to see the face of Jesus. He must be the most happiest boy he has ever been through his seven years of life. Caleb had so much strength and determination through whatever crises he was forced into but with "Jesus is going to help me feel better", "Jesus is with me" is what he said, that is what kept Caleb going with no complaints through it all. Through the seven years of medical issues he only thought it was just norm to feel pain or discomfort. Caleb was such a strong, stubborn boy who didn't quit but kept going because he knew he was going to be okay through all the rollar coasters he had he knew his bestest friend "Jesus" was right by his side.

We are adjusting slowly. We have hard moments but knowing Caleb is smiling down on us without having Hirschsprungs, hearing aids, or his bones hurting from the Neuroblastoma makes us feel so much better. We miss him so much, Cody says he misses his brother every day. Cody has been wearing Caleb's New Balance shoes to school because he feels close to him. He has been riding his four wheeler with his good friend, John Tyler Lloyd but at night is when he misses his brother the most. Cody still says "Caleb will always be my best friend". He prays at night and talks to Caleb but has been quiet most of the time when he's not around anyone to get his mind buisy. This will take some time, never will be the same and will always have an empty place in our hearts. We especially miss the Gold nurses!! I will never forget our great times having fun!!! We will see you soon!
Lakisia, WE LOVE YOU GIRL!!!
We miss Caleb's buddy, Dr.Saylors,
All four Hemoc docs! We love you very much and will see you soon, very soon!
Carrie, the wonderful photography and social worker!!
Bro. Powers, Bro.Kenneth, Childrens Chaplains
We love you all.

WHEN THE LIGHTS GOES OUT

It is precisely when every earthly hope has been explored and found wanting, when every possibility of help from earthly sources has been sought and is not forthcoming, when every recourse this world offers, moral as well as material, has been drawn on and expended withno effect, when in the shivering cold every log has been thrown on the fire, and in the gathering darkness every flimmer of light has finally flickered out-it is then that Christ's hand reaches out, sure and firm, that Christ's words bring their inexpressible comfort, that his light shines brightest, abolishing the darkness forever.

Think about it..... Thank you Amanda Duncan for sharing that with me. Something to think about.


Love you all, Laurie

Thursday, May 4, 2006 0:39 AM CDT

The outpouring of support has been overwhelming. Thank you all so much. Laurie, Cody, and my self are adjusting to the absence of Caleb?s earthly body, but in our minds he will live on forever. Each and every one of the entries is read by Laurie and me. We find it so uplifting to know that Caleb has touched so many lives. Perhaps that was his purpose here on this earth. One day, when I sit at Jesus feet, maybe he will show me the puzzle and provide the missing peaces.

I know their are several that have been keeping up with Caleb?s journey. I know some wasn?t able to make it to the service due to distance and other issues. I have been led to try and place the video of it on here. If I can?t, I might place a link to click on that might hold the total file. It was something that you all need to see.

Thank you to all,
Adam

Saturday, April 29, 2006 9:34 PM CDT

First, let me start by saying thank you for all your prayers and support throughout this long journey. We, Laurie and I, found your entries in the journal uplifting. They often made Caleb and Cody smile.

Caleb went to see Jesus around 4:00 pm Friday afternoon. I had just left to get a change of clothes when I was called back into the room. Caleb was being held by his mother when he left us. It was a peaceful transition. When he left us, he had a smile on his face. After several hours of us holding and kissing him, we had to give him to the NLR funeral home. The smile never left his face. I asked Brother Jimmy what he thought Caleb was thinking, Brother Jimmy replied "He is in awe of the presents of our Lord".

His transitional service will be on Tuesday at Lonoke First Baptist Church. It will begin at 1:00 pm. Visitation will be on Monday, from 5:00pm to 7:00 pm, and will also be at Lonoke First Baptist Church.

Directions to Lonoke First Baptist: If going east on Interstate 40, take the Lonoke Exit and cross over the over pass. If going west on Interstate 40, take the Lonoke Exit.

You will continue south into the town untill you reach the trafic light. Make a right and go two blocks. You will then make another right. You will see the Church.

If you have any questions, you can call (501) 944-9410


Adam

Friday, April 28, 2006 4:48 PM CDT

Caleb Andrew Sims, born April 19, 1999 to be with our Lord and Savior this afternoon here at Childrens.

Caleb means brave and brave he was. During the many battles he fought along his short life. God used him in powerful ways to draw many to him by his brave spirit. His joyous personality and his magnificient smile he touched hearts, moved souls and changed lives. All of us who's lives he touched will never be the same. We'll never forget the "I Love Yous" and "Leave Me Alones." Caleb helped our hearts to grow.

Caleb is a real trooper. His struggle with life is over now but his life anew has just begun, and those of us whose hearts God has prepared will see him again soon.

Jesus said, "Let the little children come to me, and do not forbid them for of such is the Kingdom of Heaven."

"Oh how beautiful heaven must be."

Thursday, April 27, 2006 9:30 AM CDT

This morning has already been a stressful morning seeing Caleb go through this. He has swelled more since last night, his eyes are swelled to the point he can hardly open them to look at us but most of the time he is sleeping. His head has many tumors you can feel. God's grace is with us as we watch precious Caleb swell with fluid and from the Neuroblastoma spreading. His breathing is a little shallow, it's getting closer each hour,each moment. Caleb isn't responding much but does hear you when you talk to him. I believe he heard Mrs.Munnerlyn last night talking to him, her presence being with him, comforting him letting him know she was right there for him. Caleb is still Caleb, his looks is what hurts so bad because he doesn't look like Caleb. Just imagine he will receive a new body the moment he enters heaven when it's our time we will know Caleb and all our other loved ones. What a joyous time Caleb will have. It's us that hurt,suffer because of our loved ones not being here with us but our time will come to see them again.

Tuesday, April 25, 2006 9:54 AM CDT

It's a quiet dark,rainy morning. Caleb is still snoozing, resting well. He was in alot of tummy pain and back pain yesturday afternoon, he was given Raglan for his tummy pain and increase on his pain pump in five minutes! Caleb calm down within 20 minutes talking to us saying he is better. He rested most of the day or between shifting him from side to side and changing him. His appearance in his face is changing. More puffiness around the check area, his eyes are starting to bother him more, more tumors are growing on the head area making it more noticeable to tell the different shape. Caleb just wants us to hold him and smile at him when he is awake. It's hard to see him like this but it's also hard to accept that he will soon not be with us. I still enjoy the moments I have with Caleb but I try not to look at the horrible tumors starring at me. I've wanted so bad for this Neuroblastoma to disintegrate, not coming back. Eleven months Caleb was in remission we just knew we had it beat, it was great to see the boys be boys again then the nightmare came back that the disease monster showed his self again. I believe God has a plan for Caleb to go through seven years of medical issues to show everyone how strong he is. To tell everyone Jesus is going to make me feel better, how much Faith he has through his everyday smiles. He knows Jesus is by his side everyday through this. He has told me and Adam after we have talked to him about going to heaven and if he is ready to see Jesus, his response was "yes". God has plans for Caleb, the ones who accepted Jesus as their personal savior will know one day what those plans are. I'm sure many has questions to ask just like I do.

Monday, April 24, 2006 8:18 AM CDT

It was a great weekend with Cody staying with us. Caleb is taking more naps but was awake most of the morning to pester his brother. Cody had a good time visiting other patients here, giving them a brighter day. Cody really has a great time with Chase Wellingburger playing with him on the Nintendo games unless Chase is not feeling well. Chase is a patient here with Leukemia taking chemo treatments. His web site is www.prayforchase.com.

Caleb is feeling good, his heart rate is still going strong. Caleb was a little sad last night knowing Cody was not here with him but will have some time with his brother this afternoon when Cody is picked up from school by Adam. Caleb had another bedbath yesturday but was so tired, he fell asleep while Loraine, his nurse finished his soapy bath and changing his bed covers. God is still not ready to take Caleb home just yet, more great days to spend time with him, cherish these precious days with sweet Caleb. Thank you Lord for another great day with Caleb.

Saturday, April 22, 2006 8:30 AM CDT

We all had a restful night last night. Cody is spending the weekend with us here at Childrens and Caleb is enjoying to have his brother with him. Caleb is feeling good this morning watching the Disney Channel with Goofy and Mickey. He looks good and his eyes are wide awake. He ate some more goldfish last night with ice water. Later this morning he will need a good warm bedbath with lots of lotion plus to sleek his dark brown hair into an handsome style!! I'm sure he will be ready for a nap after all of that! He just smiles while he is getting pampered! I believe he likes it with two nurses and his mom playing with his toes singing to him like he's in a Batman Cave's palace!! The blessed thing is he's smiling and not in pain!

Lots of love to you! Will be a buisy morning jiving this seven year old up.

Friday, April 21, 2006 9:40 AM CDT

Yesturday afternoon was a little nervous night with his heart rate getting weak and tired. Caleb's appearance is changing, his fingers were a little cold. After a good nights rest, lots of prayers Caleb is up this morning watching the Backyardigans, his heart rate is normal and he looks great! What a scare we had.

Caleb had a few bites of Goldfish late last night with some ice water before he was ready for sweet dreams. His room looks like a Batroom with all the Batman decorations which makes him smile to look at. I have been reading a few of his favorite books to him like David and Goliath,Noah and the Ark, and of course his favorite, Batman. Pray that today will be a good day for Caleb.

God's presence is with us each and every day.

Much Love

Thursday, April 20, 2006 9:43 AM CDT

What an awesome day it was for Caleb and for us to see his face yesturday!!! He deserved a special day on his birthday!! Caleb was hard to waken yesturday morning when the Travelers came to see him with great gifts for him and Cody. He was waken when the incredibles came in his room to see him!!! The look on his face will never be forgotten, his smiles to watch them flex their muscles!! Then after a good nap from opening his gifts he had another visitor, his super hero, BATMAN came in to see him!! Caleb was almost screaming in excitement!! His dream came true to meet his favorite super hero! We took lots of pics of Caleb with the incredibles and BATMAN!! The day was great for Caleb!!

We want to say a big "THANK YOU" for all the entries from so many who have been praying for precious junior Batman!! We also want to say THANK YOU for the gifts and cards! Caleb absolutely enjoyed everyone of them with sweet smiles knowing so many are thinking of him.

Caleb is up watching the Backyardigans and enjoying to have his brother here with him. Cody has an appointment today in the ENT clinic. Caleb has turned seven, God's help he made it to his birthday!!! Thank you our Heavenly Father!!! They have plenty to play and share with today!!! Caleb continues to do so well! He is playing with his Batman sword from his Mrs.Munnerlyn!!!

Much Love to you all!!!! Laurie

Wednesday, April 19, 2006 8:36 AM CDT

April 19, 1999 at 2:45 p.m. Caleb Andrew Sims at 8lbs even born with beautiful jet black hair. A precious healthy boy perfect brother for Cody who was 1 years old.

I noticed a change in Caleb's appearance at two weeks old. I rushed him to Childrens as his lifeless body laid on the stretcher in the trauma room located in the Emergency Room. After being resuscitated he was sent to the PICU unit and stayed in there for approximately three months with ventalator, pnuemonia,clappsed lung,liver problems,blood disorder,tubes everywhere,brain waves to see if he had any brain activity. After a couple of weeks decisions were made to test Caleb for Hirschsprungs Disease, the test was taken and positive result that Caleb has Hirschsprungs Disease. Dr.Richard Jackson, God send surgeon performed colon surgery where Caleb wore a colonostomy for six months. His wonderful surgery specialty nurses, Karen Kelly and Donna Mathews who did a great job training me for Caleb's care. After several months in and out of the hospital, Physical Therapy, Occupational Therapy, hearing aides, speech therapy, battling Neuroblastoma cancer God is still with him giving him the strength for every day. It's amazing he's seven after being through so much through his life.

He was waken this morning with birthday smiles from his nurses, Jennifer, Amy, Laura and his Child Life, Stephanie. 107.7 did a great job this morning singing him the birthday song even Caleb was singing along with them!!

Caleb has a full day today with birthday surprises!
HAPPY BIRTHDAY PRECIOUS BATMAN CALEB!! #7

Tuesday, April 18, 2006 10:58 AM CDT

Caleb is still resting with sweet dreams. His strength amazes us each day as his heart rate is going strong. His sweet touch as he says "I Love You", "Lay down with me", "Your my best friend", "Jesus is going to make me feel better", or just his sweet smile as he tries to focus on you. God's presence is with him reasuring us "It's going to be okay, I am with Caleb". Thank you Heavenly Father for giving us the strength to face whatever the day may bring. We trust in him always. How can anyone face this without having him in their heart? Without the Lord we could not go on with smiles on our faces, being strong every day seeing Caleb's body lay in his air bed with hardly any movement, not able to walk, having a tough time focusing, his sweet weak voice giving all he can just to talk. Through it all, We've learned to trust in Jesus, we've learned to trust in him.
WE ARE STILL BELIEVING AND TRUSTING


BatCaleb's big birthday is tomorrow!! He will turn seven years old.

Much Love to you all!

Monday, April 17, 2006 9:57 AM CDT

Caleb is resting with sweet dreams. He was awaken this morning around 5:00 with a diaper change but gave me plenty of smiles.

We cherish and give God lots of praise for wonderful moments we have with Caleb.



The weekend went okay just a lot of memories from last year when the boys were home doing well. Yesturday was a emotional day thinking back last Easter we all went to church together, hunted easter eggs, spent lots of family time at my mom-in-laws. Lots of great memories of Cody and Caleb being best friends. Saturday was a quiet day, Cody spent the weekend here with us and visited with other kids here lighting their spirits up a little bit. That's what Cody does best is socializing. Sunday morning we had a Easter story for the boys but Cody was the one telling us the true meaning of Easter when Jesus rose from the tomb announcing that he will be back soon. It was great listening to Cody tell us about how it was on that day. Caleb had a great bed bath while he and Cody watched the Wizard of Oz around 10:00. Aunt Donna,Uncle Gary,Hannah came with basket of goodies, after a great visit with them. Caleb stated "I wanna go outside and play" Caleb is not able to walk, me and Adam padded the wheel chair with pillows, carefully sat Caleb in the chair and wheeled him(with Cody's help) to the court yard for some fresh air. After about 5 minutes he was ready to "go back to my bed". It was nice to get him out a little bit, getting some fresh air. He was worn a bit and took a long nap.

That evening it was great to see Aunt Sherry,Uncle Eric, Aunt Vicki, Nanny Sims,Tiffany,Karla,Gabby,Erin come in with more goodies and some dinner. The afternoon made up for the sad morning remembering last Easter.

I miss Caleb getting up running down the hall, him and Cody playing trucks in the dirt pile outside, Caleb eating his favorites mac & cheese,cheese pizza,Mexico Chiquito's cheese dip,beef noodles,doritos and lots of candy. I miss the days when we would have to send him to his room for pestering Cody, or hear him giggle at the AFV on t.v, hearing his sweet voice sing the Tarzan song "You'll be in my heart", seeing him and Cody hug,kiss saying "Your my bestest brother". All of those thoughts bring tears but lots of smiles.

Saturday, April 15, 2006 9:22 AM CDT

Caleb continued doing well yesturday afternoon after the big Batman party. He slept most of the afternoon, he was so tired. I believe the party worn him out! If the good Lord's willing, we will have another one Wednesday on his actual Birthday!!! He will turn 7 years old.

He and Cody are still sleeping. Cody is enjoying another weekend with us! He loves to stay and gives Caleb comfort knowing his brother is with him. Caleb is still going strong. We cherish every day we have Caleb with us. God's strength continues to strengthening us every day.

Love you all.
Keep lifting us up in your prayers every day.

Friday, April 14, 2006 2:15 PM CDT

Caleb is resting after a very buisy morning enjoying his early BATMAN birthday party with his Dr.Saylors who was the first visitor Caleb wanted to be in his room. He was a little overwhelmed from all the people surrounding him but after a little bit he settled down when it was just his Dr.Saylors and him visiting each other. Caleb had a great time with the nurses, Catherine, Mrs.Munnerlyn, Mrs.Bridgeman, Mrs.Lilly, Mrs.Clark, Mrs.Gann. It was a wonderful time and great pictures taken by professional Carrie Calhoon. Caleb received many batman toys,balloons,batcake,and more decorations for his Batroom. What a blessing to see Caleb enjoying his party. Cody had a great time being with his brother during the party time before going over to the Loyd's House to play with John Tyler.


Today is Good Friday but it's also a Thanksgiving Friday because of what Jesus did for us.

On the first day of the week, Mary Magdalene found the stone rolled away from the sepulchre. She ran to tell Jesus disciples. Simon Peter and another disciple run to the sepulchre and went in, saw the linen burial cloths, and returned home.

But Mary stood without at the sepulchre weeping: and as she wept, she stooped down, and looked into the sepulchre, and saw two angels in white sitting, the one at the head, and othe other at the feet, where the body of Jesus had lain.

And they say unto her, Woman, why weepest thou? She saith unto them, because they have taken away my Lord, and I know not where they have laid him.

And when she had said, she turned her self back, and saw Jesus standing, and knew not that it was Jesus.

Jesus said unto her, Mary. She turned herself, and said unto him, Rabboni; which is to say, Master.

Jesus said unto her, Touch me not; for I am not yet ascended to my Father; but go to my brethren, and say unto them, I ascend unto my Father, and your Father; and to my God, and your God.

Mary Magdalene came and told the disciples that she had seen the Lord, and that he had spoken these things unto her.

St.John 20.11-14, 16-18

Thursday, April 13, 2006 9:22 AM CDT

Morning!! A short update this Thursday morning but great news! Caleb was determined yesturday afternoon to get out of his bed to see his Dr.Saylors and Mrs.Catherine. Stephanie, Child Life and I padded Caleb's wheel chair, helped him get comfy in it and wheeled him to the clinic. Caleb was hollering for "Dr.Saylors" unfortunately he was on the fifth floor but that didn't stop Caleb from wanting to go there. We wheeled him in the elevator got to the fifth floor and Dr.Saylors patiently waiting for his buddy at Catherine's office door way. Caleb was so happy to see his Dr.Saylors and stayed for about 30 minutes. Caleb's determination and strength to track his Dr.Saylors was so amazing yesturday.

Mrs.Munnerlyn (his teacher) came by last night with Easter Buckets for Cody and Caleb! Caleb was sleeping but woke up after hearing Mrs.Munnerlyn's voice. He was tickled to see her with lots of hugs and kisses. He gave her a batman football after signing it with her help as a keepsake in remembrance of him. He was all smiles to her as she was leaving the room.

Caleb is doing great this morning, has already watched Tarzan, Dinotopia from the Great Valley and now the Backyardigans. He didn't eat much at all yesturday but tried a bite of Lays Potato Chips, it was not very tasty to him as he spit it out. He's still going strong, we cherish every day we have with Caleb especially his smiles through this.

Wednesday, April 12, 2006 8:21 AM CDT

It's a great morning here at Childrens in Caleb's Batroom!! Caleb is awake watching Buzzlightyear and waiting for his breakfast!! He says "I'm hungry"! how cool is that!! Amazing how God is working in Caleb through this. He received his new air bed yesturday thanks to my dear friend, Jo who mentioned it to me!! He was a little nervous at first about it but loves it now since we do not have to move him anymore. He is still going strong and absolutely loves his Batmail that he is receiving in his batmailbox outside the door!! Batman, thank you so much for making this boy smile! We will miss you while you are away for a little bit.

Yesturday Caleb wanted to see his Dr.Saylors and get in the toy closet so a couple of nurses here on 3-Gold wheeled Caleb and his bed down to the Hemoc. Clinic, they were all welcoming Caleb with the toy closet door open for him to pick something out which was a Batman football that he and Dr.Saylors was throwing back and forth! He had a great afternoon in the Hemoc. Clinic.

Caleb's Birthday is in 7 days, April 19!!! Good Lord's willing Caleb will have an awesome Batman birthday party here at Childrens three Gold!!

Tuesday, April 11, 2006 8:29 AM CDT

Caleb had a great day yesturday after watching Backyardigans. He slept most of the day until me and Cody got here after picking him up at school Caleb was up ready to see his brother. Caleb and Cody spent alot of quality time together yesturday afternoon.

Caleb is still going strong. He's very weak but very alert and watching Durago this morning, drinking ice water. He had a little bit of a nose bleed last night and keeps picking at his lip this morning. He is getting tired now, I see him cat nap while watching Durago. Caleb's birthday is a week from this Wednesday!! He will be 7 years old. Lord's willing Caleb will be here with us all to celebrate his birthday!

Love to you all, Laurie

Monday, April 10, 2006 9:06 AM CDT

It was a great weekend watching Cody and Caleb spend some time together, even though Caleb couldn't move his legs Cody was right next to him playing with Caleb and his batman toys. Caleb watched Cody play his game boy between cat naps. Cody had a great time spending the weekend with me and Caleb but had to go back with Adam for school this week. Alot of family quality time this weekend was great for Caleb and Cody. Nanny Sandy spent some time with Caleb while me and Adam went out Saturday and it was very nice getting out enjoying the nice warm weather, but looked forward seeing Caleb again that afternoon.

Caleb is doing good, still fighting but very comforted looking at a poster of Jesus with lots of children with the verse at the top "Let the little childen come to me" Matthew 19:14 that is hanging up in his room for him to see. He watched a little Durago and Backyardigans this morning and had some grape juice but is sleeping right now. We are having to turn him every two hours on his side in order for him not getting pressure sores. Moving him very slowly hurts but he feels much better once he is comfy. He hasn't had any fevers since Friday night, his blood pressures are fine now and his heart rate is going strong.

God is Caleb's comforter through this difficult time. He is holding Caleb's hand reassuring him everything will be okay. We are so blessed with God's strength through Caleb. He wipes away our tears and replace them with gladness and pure sweet joy.

Keep praying!!! Lots of love to you all!!

Saturday, April 8, 2006 10:12 PM CDT

It's getting closer for Caleb to be bouncing off of Jesus shoulders. His sleeping more and his blood pressers are low. He is not able to move, we are having to move him from side to side every three to four hours. Not able to lay on his back because of pressure on his back causing severe pain. His pain is under control but bothers him when moved or laying on his back. His great nurse, Lakeisha and his tech, Jaynie gave him a great bed bath today with lots of lotion and baby powder to make him smell and feel so good plus a clean bed. He was very happy and smiles to his nurse then he was ready for a nap.

We received a big box from someone very special to us and especially to Caleb. Kristen from Arkadelphia sent us a box full of great surprises with a huge Batman doll that is hanging up in his room here, two great disc of Caleb with music in the background, the other is a wonderful disc of beautiful christian music to play while Caleb is resting. Three sweet angel pins with Caleb's name ingraved. A few wristbands that says "Caleb:Our Super Hero Still Believing" and Batman color. Thank you Kristen, Thank you from the bottom of our hearts. This gift brought tears to our eyes, this is special, very special.

Caleb opened his eyes later tonight before Adam was heading home with smiles to Cody and I Love Yous. Cody was right with him holding his hand, we all were enjoying every minute while Caleb was awake talking to us with his very weak voice but a smile of strong courage from God. His strength is still hanging on strong.

We may not understand why our trials do not led up but God does but if we trust in him through the midst of it all he will bring us through a place of blessing. We cherish all the good days we have with Caleb and we know God has bigger plans with him in heaven soon.

Laurie

Wednesday, April 5, 2006 10:54 PM CDT

Caleb has been having great days watching Backyardigans in the morning when he wakes up and playing with his batman toys with his brother Cody in the afternoon after his morning nap before he is ready to sleep through the night or partial through the night. Caleb continues to fight and be strong.

Caleb's left eye looks better today with very little puffiness or darkening around the eye. He still squints when watching t.v or looking at his Batman books. Not sure about the two tumors on his head, Dr.Saylors stated it could be the tumor from the back of his head growing around to the left side outside of the skull but not pressing against the brain. His heart rate is still going very strong and blood pressures are very good. He had a great conversation with his Aunt Donna today laying back on her on the couch while watching the Jungle Book but disappointed when it was time for her to leave to pick her daughter up from school.

Caleb continues his fight and will continue until God lets him know to let go.

Trust Him when dark doubts assail you,
Trust Him when your strength is small,
Trust Him when to simly trust him
Seems the hardest thing of all
Trust Him, He is ever faithful
TRUST HIM, FOR HIS WILL IS BEST
Trust Him, for the heart of Jesus
is the only place of rest.
Trust Him when through cloud and sunshine;
All you cares upon Him cast,
Til the storms of life are over
and the trusting days are past.

Cast all your anxiety on Him because he care for you
1 Peter 5:7

Much Love to you, Laurie

Monday, April 3, 2006 10:25 PM CDT

Today started out to be a good day, seeing Caleb smile every morning is a blessing. He is still trying his hardest to watch his favorite Nick.jr show, the Backyardigans but having a hard time with his left eye. He manages by sometimes holding his left eye shut so he is able to watch his favorite shows including "Batman and Robin". Dr.Stine came in this morning suggesting if Caleb feels like getting out of the room for a stroll down the hall in his wheel chair he is welcome too but being careful with him. Me and Adam padded the wheel chair with blankets, Caleb was ready to take a ride to the clinic to visit with his Dr.Saylors. Caleb was very excited to see his Dr.Saylors in the clinic after a short visit with him, Caleb was getting tired, ready to get back to his room but after saying "Bye Dr.Saylors, I Love you" Caleb says to his favorite Hemoc.Doctor who has been known as TBM (The beautiful man), and AROS (A ray of sunshine). Caleb and Dr.Saylors has become to be the bestest buddies here at Childrens.

After a great morning, Caleb took several naps throughout the day. He was awaken with lots of hugs from his brother, Cody who came with his daddy after being picked up at school. Caleb was very excited to see his brother here!! He fell back to sleep and that's when I discovered something different about his head while I was rubbing it. Caleb has a new tumor coming up on the left side of his head. I was in disbelief, couldn't believe that not only he has one but two! I will need to point it out to Dr.Stine in the morning for him to address it to Dr.Saylors.

Adam and I keep looking up, only God is in control with Caleb. We trust in him, we lay all our struggles and frusterations on him because he is the only one who understands and cares. He will surround us with his comfort.

Much love to you, prayers for Caleb. Laurie

Sunday, April 2, 2006 6:59 PM CDT

It's been a great weekend! Cody spent the weekend with me and Caleb entertaining him when he wasn't taking his naps. It meant alot to Caleb just to see his brother being here with him playing with his batman toys or sitting on the bed bedside him watching Batman and Robin. Caleb is having some great days especially when his brother is here with him. Cody is such a bright young man with a compassionate heart. He knows and understands what Caleb is going through, he prays for his brother at night and gives Caleb whatever he asks for. It was a blessing to see them two be brothers even the moments Caleb was not feeling well. He rarely showed it through his smile while looking at Cody.

Caleb's strength is remarkable and God's touch is with him during this comfort care time. His left foot is swelling a bit from the tumor on his leg bone but that is not stopping Caleb from moving about and trying to sit on the side of the bed. His bones are very fragile, not able to get up or sit in the bath because of his bones being very brittle. Adam and I are having to calm him down a little sometimes because of him wanting to wrestle!! Keep praying for Caleb's strength, God is still working on him. We love you all and will update tomorrow. Laurie

Friday, March 31, 2006 12:17 AM CST

Caleb is such a strong willed boy. It was amazing seeing him yesturday afternoon after such a nervous morning. He was up playing, talking to everyone then Mrs.Munnerlyn came in and brought lots of smiles to Caleb. He was very excited to see his Mrs. Munnerlyn that he ate an orange popsicle for her. He was very disappointed when it was time for her to leave home. He was still asking for his Mrs.Munnerlyn after she had left. She is such a inspirational to him.

God is still not ready for Caleb. The nurses here are so amazed to see Caleb fighting and being so strong. He is doing so well with pain under control and eating,drinking a little bit. We are all in awe about how prayers for Caleb are being answered for his comfort. He really enjoyed me reading some of the entries to him last night especially the one from his super hero "Batman" that made him smile so big and a big WOW!!! Thank you Batman!!

He is resting right now but has been playing with his daddy this morning. We really appreciate all of your prayers for Caleb being so strong through this. He is a fighter.

Thursday, March 30, 2006 9:06 AM CST

Caleb had a hard night last night. He is laboring every breath with skipping between. They are recommending some respatory treatments this morning to help comfort his breathing. It's getting so close for him to see Jesus face to face. His fingertips are a little chilly this morning and light blue, his toes are cold. He is resting right now but breathing very hard. I could feel God's presence last night while I was in a puddle and distressed. I don't understand but I know God understands and when God is ready to take Caleb home he will.

C - Character Romans 5:3-5
A - Angel Hebrews 1:7
L - Laughter Proverbs 15:13
E - Endurance Hebrews 13:1-2
B - Beauty Matthew 19:14-15


Caleb, the son of Jephunneh is an important figure in the Hebrew Bible, noted for his faith in God when the Hebrew nation refuses to enter the "promise land" of Canaan.

Origin - Hebrew
Meaning - Faithful,bold
Ancient meaning of Caleb is "whole hearted" the devoted one


Love to you all, continue to pray for precious Faithful Caleb

Laurie

Wednesday, March 29, 2006 1:52 PM CST

Caleb was not feeling good yesturday, looked very pale and his breathing was very labored skipping in between each breath. Slept most of the day until Mrs.Bridgeman and Mrs.Munnerlyn came in the room, (his teacher and aide) he heard their voices, raised up and said "Hi Mrs.Bridgeman, Hi Mrs.Munnerlyn!! He was so happy to hear they were here and gave them lots of hugs. He fell back to sleep but woke up at 11:00 wanted to talk about Batman, played with my hair for a little bit, he was singing the song from the Tarzan, you'll be in my heart by Phil Collins. It was the sweetest moment to hear him sing that song he used to sing at home when he and Cody watched the show. He went back to sleep around 3:00 this morning. He has been sleeping more today, very weak but looks much better, has a good color.

Dr.Saylors came in this morning said everything is doing okay. He wants to stop the TPN, his nourishment since it is feeding the tumors, making them grow bigger and stronger. Caleb's fevers are from the tumors, his low blood pressers are from the narcotics he is on. He thought Caleb looked a little better today than yesturday.

He still has a smile on his face and trying to focus on his Batman and Robin show. We love you all. Trusting in him.

Laurie

Monday, March 27, 2006 10:34 PM CST

It's been a quiet day with Caleb resting more today and his pain increasing to increase his PCA pain pump. Caleb is getting weaker, not very focused on the positive words he used to say. He looks a little different than Friday when Dr.Saylors looked at him. It is getting closer for Caleb to meet his heavenly Father. He is spiking temps now, administered with Tylenol for his temps. Dr.Saylors says he is predicting three days now for Caleb to be with us. Me and Adam hearts were breaking today but we also were focusing on Caleb is going to heaven with the Lord, no more pain and suffering he had to deal with for six years of his life, we will soon be joining him someday. Not alot to say, I do want to share the experience Caleb had today.

I was helping Caleb take his bath this afternoon, he did enjoy that for a little bit with his batman toys in there. I wrapped a towel around him getting him out, layed him on his bed while I was getting his pull-up. I turned around, looking at Caleb he had this huge smile on his face from ear to ear and a soft,sweet wave looking up middle height. I was still watching him, he stopped waving but still smiling so big. I looked, didn't see anyone. I asked him "Caleb, who are you smiling and waving at?" he got upset at me for interupting him. That was very comforting for Caleb as his days are getting shorter.

And surely I am with you always, to the very end of the age.
Mathhew 28:20

Love to you all, Laurie :)

Saturday, March 25, 2006 11:41 PM CST

Caleb had a pretty good day today exception for his eyes being more swollen and having a hard time watching t.v or playing with Cody's game boy but that didn't stop him from smiling at us or talking to us about his batman books he has. He is going through some mood swings that are unbearable but with all the strong pain meds and the tumor that is in his head it is understandable but his moods do not last very long. Dr.Becton came in this morning recommending putting a patch over his left eye because of him having a hard time focusing, we will see about that tomorrow morning. Caleb wouldn't mind since he has already been trying to patch his eye with tissue and asking for tape to go over the tissue. Cody is having a great time staying here with me and Caleb while Adam goes home at night to wash or clean up the house. Cody's spring break ended Friday so he will be back to school Monday, he will be going home with Adam tomorrow afternoon for an early bed time.

Me and Adam had to experience a very difficult trip today, while nanny Sandy and Danielle watched Caleb me and Adam went to the cemetary to pick out a plot for Caleb and all of us. I was not looking forward to do that at all, Adam held my hand the whole time we were there picking out the perfect spot for us all to be with Caleb. After we picked out the perfect spot I was ready to get out of there, I felt very different being there, was out of place. Adam and I grabbed a bite of dinner before we headed back to Childrens. I was ready to see Caleb after all of that! Soon we arrived in Caleb's room there was a room full of visitors, Aunt Sherry,Uncle Eric,Tiffany,Mrs.Lilly, Mrs.Phyllis,Mr.Orval what great timing.

Adam and I are experiencing some very difficult things right now but God is helping us through this. Our heavenly Father is with us through this letting us know it will be okay, there will be hard days but we would not had made it through this without him. When fires and hot parching winds surround us, remind us you are here. When fierce storms assault us, help us dig in our heels and hang onto your word. We thank him every day for being with us and for us trusting in him.
He promised us he would never leave us nor forsake us.

Laurie

Thursday, March 23, 2006 6:17 PM CST

Caleb has been doing good this week with his PCA pump being increased because of his pain increasing. We have had plenty of family and friends visiting, giving me,Adam and Cody lots of love and support through this difficult time. This week is Spring Break for Cody and he has been really enjoying staying with me and Caleb here at Childrens spending lots of quality time with his brother as much as he can. Caleb is getting tired and hurts every time he moves an inch, his eyes are tired and dark. Dr.Saylors came in this morning stating that Caleb's Hemoglobin is 7 and recommended that Caleb not have anymore blood transfusions because the cancer would be more painful for Caleb being more active and getting blood transfusions would just feed the Neuroblastoma. Adam and I agreed that Dr.Saylors is the Captain during Caleb's care through this, he knows Caleb and what is best for him dealing with this nasty Neuroblastoma. Spending as much time with Caleb is what we are doing and enjoying the days he has with him,his smies,hugs,kisses. We appreciate all the visits,phone calls,gifts we have received here at Childrens. We are so blessed to have wonderful Christian family and friends. Caleb will soon within a week will be seeing the face of Jesus to be sent to his real home in heaven.

Lots of love to you all, Laurie :)

Sunday, March 19, 2006 8:07 PM CST

What can I say, God did hear me. Today, as I was getting scriptures for the pending talk with Cody when there was a knock on our door. It was Brother Jimmy. After he visited with us for a while, he asked if we needed anything. I told him of my plans for tomorrow and how I was worried Cody might be mad at God for this. He asked if I wanted help, and if we wanted to do this today. I jumped at the opportunity thinking I would be foolish to refuse counsel from our pastor.

We took Cody into another room and I told him about Caleb being very ill, and that he will die in the near future. At that time, Brother Jimmy asked him several questions about the death. I was shocked at just how much Cody already knew. I had talked to him several months ago about our sprit, but never dreamed he had retained and processed the information. He didn?t cry or show unusual demeanor. He sat there like such a little man, putting in his own words what we were saying.

Brother Jimmy was so good in putting himself at Codys level. I sit here sighing a deep breath, thanking God for this answered prayer. I feel like a heavy load has been taken off my shoulders. I now must start making preparations for the transformation so it wont be overwhelming later on

Sunday, March 19, 2006 1:39 AM CST

Im sure you all know by now the pending outcome of this long journey. As it stands now, Cody (Calebs brother) does not. I have made the decision to have the talk with him about the pending death myself. As a father, this is my job.

I have sat here for a while trying to figure out a way to broach the subject to him without causing alarm, and anger toward God. I am personally at peace, but for once, I cant find the words to tell him. I have the bible open, and prayed that God would give me the words. Maybe I am just too tired to hear him, I don?t know.

How can I put this in a way he will understand? Do I start with Adam and Eve sinning therefore causing death upon us all? Do I show him (Matthew 19:14) to secure our faith that all children go to heaven? Do I tell him of Jesus dieing on the cross to allow us the opportunity to go to heaven if we accept him as our Lord? Do I try and explain to him about this body being just a temple of God for our earthly life and when we die we are only leaving this body behind? How do I explain the sprit? Do I tell him that this is where are feelings are derived from? Do I tell him about how heaven is a much better place? Do I tell him about Lacy Mae?s dreams? Perhaps bring up the day we were heading to the airport to fly to San Antonio to see his mother and Caleb, and we had the snow storm where the flakes were huge just as Lacy Mae said they would be?

I need God to answer this prayer. If I mess it up, it could turn Cody away from God. God please help me. I will be having this talk with Cody on Monday. Please pray I get it right.

Adam

Friday, March 17, 2006 9:41 AM CST

It's been a rough week. Caleb being so sick with the ventilator down his throat with several I.V's on him and a catheter placed was not easy to see but he pulled through and is now doing fine. Dr.Saylors was not surprised Caleb gotten better he knew it all along Caleb is strong enough to get through whatever pulls him down, "that's Caleb". Caleb is now out of PICU and in the three Gold unit for comfort care. He was released yesturday afternoon with great spirits but very tired and needed lots of rest.

Dr.Saylors met with me and Adam yesturday afternoon in the conference room with emotional support from our greatest friend and Social Worker, Carrie Calhoon. Dr.Saylors stated Caleb's condition is not good. Caleb's Neuroblastoma is winning and taking over with more tumors growing. Caleb has a new tumor on the back of his head that is protruding out that was pointed out to us in PICU. Dr.Saylors suggested that the Radiation treatments should be stopped since Caleb cannot get treatments all over his body. The cancer is growing and spreading rapidly there is no way to stop it now. He is under pain control, not having any pain.

We have a couple of weeks with Caleb till God takes him home for a greater plan. God extended his life through many battles in six years to be with us and for others to learn about him. Caleb will be missed but not forgotten. Pray for Cody has he is dealing with the most difficult time but having great times with his brother.

We love you all very much, Laurie :)

Wednesday, March 15, 2006 1:32 AM CST

All I have to say right now is that today was not a good day at all for Caleb or this family. Our hearts have been broken when Caleb was rushed to the hospital this morning after having a temp,having a hard time breathing,and his color was very grey to the point that he was going into severe septic shock. He was directed immediately to the PICU after Dr.Anon got a look at him. Caleb was fighting all he had for another breath with his heart rate of 200. He was placed in PICU with several I.V's and was put on a ventalator. He also has pnuemonia in his left lower lung. He is on several very hard antibiotics but at this time it doesn't look good. Neuroblastoma has progressed and is coming back much harder. Adam and I are having to make several decisions for Dr.Anon for the most comfort care for Caleb. This has to be the hardest day I have ever had. God is in control and in time we will know what he and Caleb wants. God has really been by me today through this nightmare that I wish I could wake up seeing this was not true.

Keep us and our family in your prayers during this most traggic time we have ever had to face. Say special prayers for Caleb.

Laurie

Monday, March 13, 2006 1:24 PM CST

It was a fun weekend being at home!!! Caleb and Cody both had a great time being together brothers and best friends. They had lots of fun outside taking turns driving their jeep around the acre 1/2 while me and Adam were working in the yard and getting our flower beds ready for the planting spring/summer flowers. It was great to be able to be at church Sunday morning as a family and Caleb had the greatest time talking to everyone telling them about his batman toys and showing off his big smile.

This morning went well at CARTI for his radiation treatment. He was a little cranky heading to Childrens to see his Dr.Saylors for a check up. He was very tired after getting up at 4:30 this morning from seeing the lightning and being nausea. He still has the rest of this week and next week of radiation treatments then he will be finished until Dr.Saylors says to continue for more. His pain has decreased to where it doesn't bother him at all but still has a very hard time walking even Cody can't seem to get him going. Being sick in the hospital for so long, cancer in his legs and radiation has taken a toll on him not able to put any pressure in his legs. We will return to CARTI in the morning for his treatment and home to rest a bit which he likes to do while watching the Backyardigans or one of his favorite Batman and Robin movies. We will be planning on something to do while Cody is out for Spring Break next week

Continue praying for Great days for Caleb and a miracle happening. God hears our prayers.

Laurie

Friday, March 10, 2006 3:03 PM CST

Caleb was released from Childrens at 2:00 yesturday. We did get some disappointed news last week and our hearts were broken but with God by our side and helping us through this struggle we know it is going to be okay and we are enjoying all the days we have with Caleb. It's great to be home and Cody is very happy to see his brother home. Caleb is feel pretty good but his legs are so weak and not able to walk but so glad to be home. He needs me or Adam to help transport him to his bedroom bed then to the couch watching t.v. Cody has really helped Caleb bringing him what he needs. Caleb is resting right now after a buisy morning at CARTI getting his radiation treatments then me and Adam have been keeping him buisy playing with him with his batman toys while Cody is at school. Caleb's dream came true. He received his batman mobile this morning from his Aunt Vicki and Uncle Johnny. He was all smiles and really enjoying rideing it with our help. It's a miniture one but that is not slowing Caleb down, he absolutely loves it! I'm sure that will help put some strength in his legs. It will be a great weekend with the boys as we are planning alot of family time!!

As we were heading to CARTI this morning Caleb was looking out of the window on Interstate 630 we were passing Childrens Caleb said "bye Childrens Hospital, bye Dr.Saylors I will see you soon". Those were the words that brought tears to my eyes. Caleb already misses Childrens and his Dr.Saylors.

Keep us in your prayers. Also, Cody is having a hard time at school thinking too much about Caleb as what his teacher has said. Cody doesn't like to see Caleb sick or looking at his swollen eye or his leg that is marked for radiation treatments.

Love you all, Laurie

Wednesday, March 8, 2006 11:26 AM CST

Yesturday afternoon Dr.Saylors came in for a visit and discouraging words. He stated that the Neuroblastoma cells are multiplying, his urine output is extremely high for Neuroblastoma cells. Caleb still has a small chance for the donor cells to take over but needs to fight now and harder against the cancer cells. Caleb is still getting the radiation treatments for his left leg which is improving the pain and his left eye, hoping the swelling will shrink after a couple of treatments. Dr.Saylors is very hurt and discouraged about Caleb prognoses. Dr.Saylors has helped Caleb so much through this disease for three years. Dr.Saylors is not a failure through the treatments Caleb received from him. God knows what is best for his children, we look up to him and praise him for a remarkable job he has done helping Dr.Saylors through this process and God will give him much knowledge helping these kids battle the horrible disease of cancer. Adam and I became so close to Dr.Saylors, and Catherine, they will not be forgotten.

Pray for Caleb during these days being easy ones for him. We are still believing God can turn this around he has before when Caleb was two weeks old in PICU fighting his life through the Hirschsprungs,
blood disorder,asthma,
tracheomalacia,liver problems,collapsed lungs,being resuscitated. Caleb has fought many battles through his six years of life. We believe God has a plan for him whether it be here on earth or in heaven. God is giving Adam, Cody and me the strength to face whatever God chooses for Caleb. He knows Caleb's future, what is ahead of him God only knows. We are leaving this in his hands, it's in his control now. We pray for another miracle, trust in him.

As Bro.Powers here at Childrens has comforted me with encouraging words of "God's grace is not ahead of time but on time". Adam and I thank the Heavenly Father for being our shelter through every storm life brings us. We are looking up to him every step of the way through this struggle. Caleb is his child permanently. Pray for Caleb, miracle happening and pray for Adam, Cody and me during this trying time.
Love you all, Laurie :)

Monday, March 6, 2006 10:45 AM CST

The weekend was great. Caleb and Cody had lots of play time together with Caleb's batman toys and watching Buzz Lightyear,Batdog,and the animal planet. They were both pretty sad when Cody and Adam needed to head home in the evenings. Caleb was anxious to see Cody Saturday and Sunday mornings. They are quiet a pair!

Dr.Sacentee, a great personality who always has a great smile on her face for worry,concern parents like me to lift us up with positive reinforcement about our precious little ones as she made her rounds this morning. She entered Caleb's room this morning happy to see Caleb feeling much better and decreasing his PCA pump,and TPN. She is praying with us for donor cells to start attacking. Any day, any time signs of the GVH to start showing and giving us a relief sigh thanking our heavenly father for answering our prayers. God has a plan for Caleb. We need prayers for GVH anytime now. Caleb has started his radiation treatments at CARTI for his left leg and eye. He did really well this morning getting his "milk" to put him to sleep while getting his treatments just getting up early at 6:45 bothers him "leave me alone". He will continue with radiation for three weeks. Donor cells should be fighting and showing us some sign any time. WE NEED YOUR PRAYERS!!

Don't let your hearts be trouble. Trust in God, and Trust in me. John 14:1

Love you, Laurie :)

Thursday, March 2, 2006 2:48 PM CST

This morning I was thinkin about our dear friends, the Hawkins. I was heart broken for Dakota's family as I read the news on Dakota's webpage. Dakota entered the golden gates of heaven this morning. Dakota had a hard fight through the struggle of his Leukemia cancer and GVH. He has touched so many through his Faith in God. Now he is happy and Leukemia free,GVH free. He is in the open arms of Jesus. Pray for this family as they take one day at a time God healing their broken hearts through this grieving process. www.caringbridge.org/ar/keepthefaith


Caleb is doing good today. He is resting right now after receiving his benedryl for his antibiotics. He has been very moody this morning and disoriented but that's because of the pain med he is on. We are still praying and believing for the donor cells to take over the Neuroblastoma cells anytime or day now. Dr.Saccentae made her rounds this morning to Caleb's room saying Caleb will be getting radiation under sedation in the morning at CARTI plus he will be getting a CAT scan as well at the same time. She said we are still waiting for those donor cells to start acting. He is still spiking temps but still has lots of smiles through all of this.

As Dakota has always said "keep The Faith"
Continue praying for Caleb. We love you all. Laurie :)

Tuesday, February 28, 2006 10:11 PM CST

Much better week. Caleb is feeling a little bit better and still on the PCA pump for his pain. He is alert at times but a little disoriented or confused. He is still having temps every day and had a blood culture done today after a 101 temp. He has been full of smiles today with the visit of his brother being by his side. Seeing his brother made him feel so much better and having Cody laying by his side in his bed watching Batdog and Tom and Jerry. It's been a pleasant day, a much better day for Caleb,Adam and me.

Dr.Saylors came in this morning to discuss some issues regarding Caleb. He stated this week WE NEED TO SEE SOME SIGNS OF GVH. Caleb has been off of the Cyclosporine for three weeks and its time for Caleb to start having some signs of the GVH. He needs rash,diahrrea,kidney levels to be different. That is our prayer for this week!! CALEB NEEDS GVH THIS WEEK. He discussed the scans from past November to last Thursday. The scans from last Thursday looked a little better than November scans but still can see some spots. The cord blood transplant did help but the donor cells needs to fight harder. The race is on between the donor cells and the Neuroblastoma cells. Time will tell who is going to take over. Pray that God will heal Caleb with these donor cells and destroy the Neuroblastoma cells. Friends, Caleb needs your prayers this week/weekend.

Be still before the Lord and wait patiently for him.

Love you all, Laurie :)

Monday, February 27, 2006 2:18 PM CST

Last week was a crazy week. After a night last week of high temps, a blood culture was tested positive for E-coli infection. He was sent to PICU early Thursday morning at 2:00 from septic shock. He had four days of constant pain in the PICU unit, low blood pressures,temps and been on oxygen. Dr.Anon gave him lots of comfort care with big doses of narcotics for his pain and blood pressures. Caleb's blood pressures slowly decreased and was sent to the 3Gold floor last night. Caleb is still receiving antibiotics for the E-coli. Dr.Anon stated Caleb has a new infection before he was released from the PICU unit, so now he is getting antibiotics for two infections and should start feeling better by next week. Caleb is stable right now. He has been sleeping alot with narcotics for his pain. Right now he is playing with his batman barnocilures that his Mrs.Munnerlyn got him. He gets a little confused but his spirit is a little better today. Caleb will be in all week/weekend.

He needs your prayers.

Laurie

Wednesday, February 22, 2006 5:27 PM CST

It was a nervous and scary day for me and Adam. Caleb ran 105 temps, very low blood pressures, a high heart rate, very close been sent to PICU. Thank you Lord for making it a better afternoon. Dr.Becton came in during his rounds and stated the infection Caleb has is not from the central lines, it is a blood infection that will be treated with much stronger I.V. antibiotics. He scheduled a chest x-ray for possible pnumonia and will get those results tomorrow. He also scheduled a bone scan for tomorrow, will know about those tomorrow shortly after the scans are taken. Caleb's blood pressure is okay right now. His fever has gone down and heart rate is not as high as 180 from this morning. Everything is much stabled right now and undercontrol. Thank you Lord, we give him the praise the drama is over, we pray it is. The PICU unit still knows to keep a close check on Caleb. Adam spoke with Dr.Saylors earlier and Dr.Saylors said the high fever could stimulate the donor cells, this could be a good thing. He did not think this is from Neuroblastoma. This could be a blessing in disguise.

Caleb is doing good right now. He is a bit puffy but happy with full of smiles. Eating noodles for dinner and watching the disney channel. We need your prayers for great results from the scans that will take place tomorrow. God will be giving me the strength to face whatever comes before me. I will be looking up to him.

Give God all the praise for a lighter afternoon after a very dark morning.

I am the light of the world, he who follows me shall not walk in darkness, but have the light of life. John 8:12

Love you all, Laurie :)

Wednesday, February 22, 2006 1:16 PM CST

Caleb has a positive bacteria through his lines and is receiving I.V. antibiotics to clear it. He is experiencing some pain today pray that is from the infection and not the Neuroblastoma. He is having some very high temps today. His highest has been 104. He is also having some very high blood pressures. Caleb is getting Morphin and Roxi for his pain. Is all this from the infection, flu, Neuroblastoma or the donor cells fighting? I will update this afternoon on a new report. Pray for him today. Laurie

Tuesday, February 21, 2006 10:37 PM CST

It's been a very buisy day at the clinic. Caleb is still not feeling very well and slept through clinic visit with Dr.Saylors. Dr.Saylors admitted Caleb in the hospital because of fevers and body ache. Dr.Saylors stated this could be from an infection going on somewhere through his lines but did some blood cultures to make sure and started him on I.V. antibiotics. We will know for sure tomorrow if that's the cause of him feeling lousy. Caleb is expected to be in for a couple of days until we see some improvement. For his pain, he is getting Morphin through the I.V and is helping alot until I need to move him around. Caleb is resting well tonight after a restless night he had last night. We still had not heard anything about the donor cells grafting process. We still need prayers for the donor cells to graft. Adam and I are still believeing that is God's plan for Caleb.

Adam and Cody came up late tonight after Adam got off from work. Cody was very happy to see his brother but Caleb was still sleeping off and on but was happy to see Cody was here with him the time he did wake a little bit. They will be back late tomorrow afternoon to bring some cheer to Caleb in helping him feel better.

Pray for Caleb during this rough time. With God all things are possible. Laurie :)

Monday, February 20, 2006 2:25 PM CST

It's been nice to be home. Cody and Caleb are happy to be home together playing a little bit on a three day weekend. Cody has been helping Caleb move around the house and helping me with his TPN. Caleb hasn't felt very well since Saturday afternoon. He is experiencing some pain in his legs,arms,neck and back along with a slight temp. Adam and I are giving him Roxi and Tylenol for his pain. Caleb has a clinic visit with Dr.Saylors in the morning. Caleb is resting right now and has been attached to the couch since he is having a hard time walking around. We are asking prayers for Caleb. A short update but will know more tomorrow morning at the clinic. Just letting you know Caleb needs your prayers. Love you all, Laurie :)

Friday, February 17, 2006 11:17 AM CST

Caleb is doing much better this morning. He is eating much better and feeling good. Right now he is watching Batdog and Superdog on the cartoon network. He really looks great with full of smiles this morning. He had a special visitor who came by to see him with batman toys to make his day and help him feel better, I believe it worked! He is really hooked on this batman phrase! He has been asking for a powerwheel batman mobile for him to drive but me and Adam are having a hard time locating it. If someone knows of where to find one please let us know. It's great to see Caleb feel as good as he does today. His 7th birthday is coming up April 19 so we plan on giving him the best BATMAN party he deserves. We will give updates about this party as the date comes closer.

Dr.Becton who is doing rounds has not came in to let us know when Caleb can get out of here and heading home before the ICE storm comes. I heard some going home news from the nurses so we will see later.

Keep praying for Caleb. He is still Rota positive but will be over that soon. We will all pray for the 100onor cells to start attacking the Neuroblastoma cells and wait to see what God wants and his will. We want Caleb to stay with us but what does God want for him.

Love you all, Laurie :)

Wednesday, February 15, 2006 10:16 PM CST

The week started out to be very tiring and a big change of getting back to the normal routine at home after a long two month stay at San Antonio. The news of the Neuroblastoma cells still active in Caleb's bone marrow didn't help things as well. Waiting is the hardest thing and always on our minds. Cody sure is happy to see us home and playing with Caleb getting him on his feet again helping Caleb with his strength. Its been great to have the four of us home and watching the boys be boys again.

Caleb hasn't felt very well for two days. He started vomiting yesturday and still weak in his legs. The rota has put a toll on him and gaining his strength back is extremly hard but with Cody's help, it is easier. Caleb had a scheduled clinic visit to see his Dr.Saylors this morning. Caleb had a good conversation with Dr.Saylors regarding him not feeling very well. Dr.Saylors suggested for Caleb to stay inpatient for two to three days. Caleb was dehydrated,lost three pounds since Monday and his electrolytes were out of wack. He has started the TPN, once it is regulated and Caleb is feeling better maybe Saturday morning we will be heading home.

After Cody and Caleb ate a good supper Cody and Adam were ready to head home. Caleb was ready for bed shortly after they had left around 8:30.
Dr.Saylors said this afternoon to me and Adam "The donor cells needs to mature to fight over the Neuroblastoma cells, all there is to be done now is to wait and watch for the GVH". "The longer the donor cells take to fight the harder it will be for the Neuroblastoma cells to die out". I can't imagine being without Caleb. Caleb has been through so much since he was two weeks old and without God's loving touch plus Dr.Jackson and Dr.Saylors medical technology Caleb wouldn't be here to touch so many lives and just to say "Jesus is going to help me feel better". Pray for Caleb during this time. We are believing and keeping the faith.

The Lord hears good people when they cry out to him, and he saves them from all their troubles. Psalm 34:17

Love you all, Laurie

Monday, February 13, 2006 10:53 PM CST

We are home!!! Adam and I met with Dr.Wall Saturday morning in San Antonio, Childrens Hospital to discuss Caleb and his prognosses. Dr.Wall stated "we have a window of opportunity to come home". This suggest that Caleb would become very ill in the near future due to the internal battle rageing is going on inside of Caleb. He is still positive for the ROTA virus which is highly contagious as well as his legs are very weak with bone ache from the Rota. He still test positive for the Neuroblastoma in the bone marrow and has two spots on his right knee but even through all this there is still hope and a chance. Everything that could be done in San Antonio can be done in Little Rock. Caleb would be happier at his house and playing with his brother, Cody plus seeing everyone at Childrens including Dr.Saylors and Ms.Catherine.

Caleb has clinic Monday, Wednesday and Friday for blood draws. Caleb has been ready to get back to his normal routine at home and getting back to his Childrens Hospital. We will really miss Dr.Wall. We would like to thank Dr.Wall for giving us the opportunity of the second chance. She has went out of her way to make our extended stay as pleasant as possible. We hope Caleb has provided her the foundation to build upon to reach a cure for this masty Neuroblastoma cancer.

Every day you think of Caleb, pray for him. Every day you see Caleb or a picture of him, pray for him. Caleb needs your prayers. We will see what God wants for Caleb. We love you and appreciate your entries,cards,gifts,phone calls while me and Caleb were in San Antonio. They meant alot to us on the two month treatment stay. Please stay in touch and pray for Caleb.

Laurie :)

Thursday, February 9, 2006 5:43 PM CST

WE NEED YOUR PRAYERS. WE NEED YOUR PRAYERS. WE NEED PRAYERS

Not a good day, not a good day at all. I have been so lost of words and emotionally shocked since 3:30 with the conversation Dr.Chan and I had regarding Caleb and his needs.

Dr. chan stated that the bone marrow biopsy showed Neuroblastoma cells are still active in the marrow but Caleb has 95onor cells. These donor cells needs to attack and destroy the enemy Neuroblastoma cells. Dr.Chan is going to stop the Cyclosporine (rejection med) to see if Caleb will have more GVH. His body only has minimum graft versus host and needs more. We should see some kind of change in week to two weeks. If this doesn't work in two weeks, Caleb and me will be heading home with our spirits low.

I am asking you to PLEASE pray for Caleb. I know God hears us.

Today he is feeling much better and eating better which is a blessing. He has had 1/3 of noodles, half of bannana and applesauce. Tonight he is eating watermelon and fruitloops. Tomorrow will be another good day. I know God is giving me the strength to be strong through this. He does know what is best for his children. I have always said and told Ms.Catherine and Dr.Saylors that Adam and I will not stop fighting until God lets us know when to stop but right now he is giving us another chance. Pray this will turn things around to better and put a smile on Dr.Chan and Dr.Saylors face. Once again he will fool the doctors and have an awesome testimony to tell to others.

Love you all, PLEASE KEEP CALEB IN YOUR PRAYERS
lAURIE

Wednesday, February 8, 2006 3:22 PM CST

Yesturday was a very tired and worn day. Caleb was not feeling well, very weak and vomited. I couldn't update yesturday because of it being such a tiring day. Today is a better day. Caleb had his scope procedure done this morning after Caleb was under local anesthesia. Everything looked fine but a little irritated from the Rota virus. He had a bone marrow biopsy done as well and will know those results tomorrow from Dr. Chan. Pray there are not any Neuroblastoma tumor cells in his bone marrow!!! Caleb really needs your prayers for great results tomorrow!!

Today when we arrived back to his room from recovery he was quiet and needed his quiet time to rest a bit. He was ready for a couple of bites of his beef noodles! he tried and eating a little is a start, maybe more this afternoon or tomorrow. He also had about 8 ounces of Sprite. He is still on his nutrition TPN to help him from loosing any weight. He is also experiencing some more GVH blotching rash today that comes and go and he looks like Spiderman a few minutes before he turns back to Caleb. That is a sign of the new cells engrafting! Right now he is playing with his Batman toys wrapping Batman around a batrope from a red barn, Batman is rescuing the animals from the barn!! He is feeling much better today still a little weak in his legs but his spirits are great.

Pray for a great day tomorrow and Caleb needs good news from the bone marrow!!!!

Laurie :)

Monday, February 6, 2006 8:32 PM CST

Caleb is still having a hard time with his appetite, and pain in his legs is still present. Caleb is still positive for the rota virus, his immune system is so weak its taking him longer to get better from it. He is resting well right now, after watching Jungle Book II he gotten very tired, he took his meds and ready for his light to go out when his nurse came in redy to take his vital signs and he spikes a temp. I looked at Meredith in disbelief!! Then I was thinking "Okay God I am ready for you to answer some prayers for Caleb". I am not a patient person especially when it comes to my sick boy. I am so ready for him to get better and be the rumbunctious BATMAN Caleb I know!

Caleb had his CAT scans done this morning. Dr. Chan and I had a conversation as of what is next. He stated the scans looked good and normal. No tumors are present on the CAT scans which is good but why isn't Caleb feeling better? Dr. Chan is going to talk with the GI doctor in the morning to see if he needs to have a scope procedure done to take a closer look in his stomach. Caleb's symptoms could be the rota, or the GVH attacking him.

Please pray for Caleb. He is tired and worn and wants me to rock him alot during the day and we sing Jesus Loves me at night before prayer time.

The Lord is close to everyone who prays to him, to all who pray to him. Psalm 145:18

Laurie

Sunday, February 5, 2006 1:23 AM CST

Hello everyone. Up late tonight, can't sleep for some reason. Caleb is resting well right now after a....pretty decent day. Dr.Gremly came in this morning and suggested to scope his tummy area Monday morning and scan him. He says there is a possibility the tummy issue could be the GVH, the cells attacking his gut instead of his skin or it could be something else and needs to find out what is causing Caleb's nausea and vomiting, decrease appetite. He will know for sure Monday morning what is going on. Caleb was very nausea this morning and vomiting again. He layed down pretty much all day and watched Cody play a little bit. He was given Zofran for his nausea and took a long nap this afternoon at the motel after Dr.Gremly allowed Caleb a six hour pass to the motel. While he was taken his afternoon nap, me and Cody took a trip to Wal-Mart and found him some BATMAN chicken soup to see if Caleb would try a couple of spoon fulls and keep it down. When we got back to Homegate, Adam picked dinner up at Jim's, Caleb was still sleeping. After dinner it was time to take Caleb back to the hospital and see if he would try some Batman chicken noodle soup. He loved the BATMAN shaped pasta and ate seven spoon fulls. Adam counted! He kept it down also. He had enough and was ready to watch the movie, BABE with Cody. He had a better afternoon but still weak to walk, putting presure on his legs just about kills him.

Adam and Cody will be headed back to Lonoke tomorrow afternoon for two weeks. Caleb will miss his brother so much. I pray Caleb's strength does not weaken while Cody is away. Caleb usually does better when Cody is around.

Keep lifting Caleb up in your prayers every day. Caleb needs to get better and this concerns Dr.Gremly that Caleb's nutrition has slowed. We also pray that the appetite med will help gain strength into Caleb eating.

Love you all! KEEP PRAYING Laurie :)

Friday, February 3, 2006 10:27 PM CST

Hello folks! Caleb has had a much better day today. We do have a percentage of donor cells!!! Caleb has 90% donor cells! PRAISE!! Now the p