History

Saturday, September 29, 2007 11:24 PM CDT

Wesley,
I can't go to sleep tonight without telling you happy birthday and how much I love and miss you. I know that I always told you your birth story every year on your birthday.I remember how you hated to hear that story over and over each year.I relived that story again today but just in the quietness of my room this morning and all to myself.
Michael misses you too. When I got up this morning, he had turned the light on to your curio cabinet (with all your memories). On the table he had a piller candle burning with pictures of you and Trenton. He had a note beside it that said "Happy birthday to my boys". Trenton turned 11 Tuesday, so we have celebrated his birthday all week!!
In honor of you today, bubba, we took a cake to life south for all the donors. I bought some potpourri that had a magnolia scent. We visited your graveside and spread it over your grave. I hope the sweet aroma makes it all the way to heaven. But then again, you probably have seen sights more beautiful, heard sounds more awesome and smells more sweeter than anything we have ever experienced.
I miss your laughter, your silliness, your practical jokes, your smile that could light up the room, Your "I love you momma's". I miss you so much!

Love,

Momma

Sunday, August 26, 2007 5:31 PM CDT

Dear Family and Friends,

For some reason I had this overwhelming need to update Wesley's site. (Along with some gentle prompting from dear friends) It is not that I haven’t wanted to update sooner. But just the thought of opening up his site causes heaviness in the pit of my stomach and in my heart that I felt I needed to protect myself from. But the last couple days he has really been on my mind and weighing heavy on my heart. Why some days are so much harder than others I can’t understand especially when every day all you do is just try to exist and survive the sadness of what you’ve lost. Its strange though how some days he weighs so much heavier on my mind than others because he is always in my heart and there is never a day that goes by that I can't remember something that he said or did and long to hear his sweet voice, sweet kiss and sweet "I love you, momma!"

It will be two years this coming Tuesday that have passed, days that I still don’t know how I have managed to see through from sunrise to sunset. It is so hard to believe that it has been that long since I last saw my baby, 2 years since I last kissed him or hugged him! My life was forever changed....it still feels like yesterday that I sat by his bed and held his hand as he took his last breath. I still can't believe that I am that person who has lost a child; who brought a child into this world and only eighteen years later was saying goodbye to him.

Wesley was the light of our lives, he was so much joy to be around...so full of life. Always smiling and always so happy. I miss him so much and I miss how we were with him. Our hearts will always be broken and our lives will never be the same.
Even though this period of time has passed, I still sometimes think this can't be real. Sometimes it seems like yesterday and others like an eternity. The healing process continues and I’m quite sure it will for the rest of my lifetime. To me it is just as important to honor his precious memory on his Heavenly Birthday as it was to honor his earthly birthdays.

He was one of the bravest people I’ve ever met. The separation and discomforts that go along with his disease and treatment, I’m sure were indescribable. Still to today, I can’t understand how he tolerated all that he did without complaining. He always looked for the next chemo. or treatment that was going to heal him and bring him home and allow him to continue with his life. But his cancer became just part of life to him which he had to face and he did this with God by his side. He endured his destiny with incredible dignity & grace. Oh, he was quite the jokester, full of energy, laughter, smiles but most of all, a boy with a huge heart full of love for everyone. Everyone was equal in his eyes, young and old alike, and most of all, he loved God and there was no doubt the love he shared with you and I came straight from Our Father.

There are many who shared with us, some of you we've met right here on his caringbridge site, you've shared how God touched your heart and changed your relationship with Him by using Wesley and his journey. I can tell you my life has been forever changed as well and I know Michael and Trenton would tell you the same. After 2 yrs I am touched to hear that his journey is still touching hearts. It does bring me incredible joy to talk about him, hear stories from people of how he’s had an impact on their lives, and most importantly, the blessings that God had in store by having Wesley visit us for his 18 years.

On Tuesday, August 28, we are asking that friends and family join us in remembering our son. If you can take a moment to light a candle, say a prayer, take a moment to reflect on a specific memory of him or send him a balloon it would mean so much to us.
I miss Wesley more and more each day but even though it’s sometimes hard, I believe we should rejoice because he’s with Jesus completely happy and healthy … and yes HEALED. I know it is God’s strength that gets me through each day and Wesley’s memories keep me going. The promise that we will see him again one day makes heaven even more beautiful. The truth is God’s love, grace and mercy are abundant and it’s because of His sacrifice of His only Son on Calvary that we have this promise of life everlasting. I’ll never understand that kind of love but I thank Him and I praise Him.

"My grace is enough for you. When you are weak, my power is made perfect in you." 2 Corinthians 12:9

Through these past two years, on several occasions, I have felt the grief was just too unbearable. I have protected myself from this pain by not revisiting certain memories and keeping my schedule so full that I have absolutely no idle time. In doing this, I have, to some extent, let Michael, Trenton, Amber and her family down - not having time to spend with them. I spend a lot of time and effort in fund raising for the leukemia and lymphoma society. I try to reach out to those in our community facing cancer. Because I can relate to the trials and that all too familiar roller coaster ride they are on, I get emotionally attached to them. One night not too long ago, I received a phone call that one of the leukemia patients that I had been keeping in close contact with had died. I fell apart, crying in my bed. Trenton came in to comfort me and asked what was wrong. When I told him this gentlemen had died and how much I hated leukemia, he replied with “What do you think about me, momma, I lost my brother to leukemia and now I’m losing my momma too.” Gosh, that was a shock back to reality. The reality is that yes, there will always be people newly diagnosed with cancer and while I will always continue to raise money to help find a cure, I am needed just as much or more at home sharing time with my family.

Please continue to remember me and my family in your prayers as we continue to endure the days ahead without Wesley. I read this entry on another caringbridge site and it is so true as any parent who has lost a child can attest. I can honestly say that I am blessed with the most caring and compassionate friends I could have ever asked for. I sincerely want to keep Wesley’s memory alive in my heart and in the hearts of those he loved. The last line of this verse is so true; I pray that you never “understand.”

A BEREAVED PARENT's WISH LIST

I wish my child hadn't died. I wish I had him back!!!

I wish you wouldn't be afraid to speak my child's name. My child lived and was very important to me. I need to hear that he was important to you also.

If I cry and get emotional when you talk about my child I wish you knew that it isn't because you have hurt me. My child's death is the cause of my tears.

You have talked about my child, and you have allowed me to share my grief. I thank you for both.

Being a bereaved parent is not contagious, so I wish you wouldn't shy away from me. I need you now more than ever.

I need diversions, so I DO want to hear about you; but, I also want you to hear about me.

I might be sad and I might cry, but I wish you would let me talk about my child, my favorite topic of the day.

I know you think of and pray for me often, I also know that my child's death pains you, too.

I wish you would let me know those things through a phone call, a card, a note, or just a real big hug.

I wish you wouldn't expect my grief to be over in a short period of time. I wish you could understand that my grief will never be over.

I will suffer the death of my child until the day I die. Grief is a life long process.

I am working very hard in my recovery, but I wish you could understand that I will never fully recover.

I will always miss my child, and I will always grieve that he is dead.

I wish you wouldn't expect me "not to think about it" or to "be happy."

Neither will happen for a very long time, so don't frustrate yourself.

I don't want to have a "pity party", but I do wish you would let me grieve. I must hurt before I can heal.

I wish you understood how my life was shattered. I know it is miserable for you to be around me when I'm feeling miserable. Please be patient with me as I am with you.

When I say "I'm doing okay", I wish you could understand that I don't "feel" okay and that I struggle daily.

I wish you knew that all the grief reactions I'm having are very normal.

Depression, anger, hopelessness and overwhelming sadness are all to be expected.

So please excuse me when I'm quiet and withdrawn or irritable and cranky.

Your advice to "take one day at a time" is excellent advice. However, a day is too much and too fast for me right now. I wish you could understand that I'm doing good to handle an hour at a time.

Please excuse me if I seem rude, certainly not my intent. Sometimes the world around me goes too fast and I need to get off. When I walk away, I wish you would let me find a quiet place to spend time alone.

I wish you understood that grief changes people. When my child died a big part of me died with him. I am not the same person I was before my child died, and I will never be that person again.

I wish very much that you could understand my loss and my grief, my silence and my tears, my void and my pain. BUT.... I pray daily that you will NEVER understand.

Please continue to remember all the children who are still in the fight with this beast as well as those sweet families who now have Angels watching over us from above. We love you and thank you always for your continued prayers, your love and especially, your friendships. God is certainly incredible to bless us with you!

By His Grace,

Angie

Dear Wesley,
I wonder who you'd be today...and feel such sadness knowing only that I will never know. I trust you know how much you were loved, and are loved. My physical responsibility to you may be over...but my emotional responsibility is not, nor will it ever be. I miss you, baby!
Love,
Momma

Sunday, August 27, 2006 9:34 PM CDT

Just a quick note: The plans are confirmed. Jeff and his family will be in Dothan September 23rd. We have a reception planned, in his honor, September 24th from 2 pm until 4 pm at Bethel Baptist Church fellowship hall. A dear friend, Sally Buchanan, has contacted the media for coverage of this special occasion. Below is her letter to the press.

Dear Media Friends,

I am submitting this on behalf of the Dothan High School Band (Dothan, Alabama). In a day when we are inundated with bad news, this is an awesome story of faith and love which should be shared with everyone at the state and national level. Please scroll down to review the background material on Wesley.

Feel free to call me if you have any questions.

Thanks!

Sally

WHO: * Family and Friends of Wesley Dunchof (Dothan High School Band Student who died of leukemia last year)

*Jeff Harsh of Yokosuka, Japan, who donated bone marrow to Wesley

*Angie Adams (Wesley's Mother)

WHAT: Reception for Jeff Harsh

WHEN: Sunday, September 24, 2:00 p. m.- 4:00 p.m.

WHERE: Bethel Baptist Church, Dothan, Alabama, 3257 E. Cottonwood Road (Outside the Ross Clark Circle in the Ardilla Community)

The family of Wesley Dunchof is hosting a reception for Jeff Harsh, who is coming to Dothan from Yokosuka, Japan. Jeff, a total stranger to the Dunchof and Adams families, donated his bone marrow to Wesley--a generous act which extended Wesley's life for perhaps several months.

Please attend this special occasion.

Thanks!

Sally

A MESSAGE FROM ANGIE ADAMS (WESLEY'S MOTHER)

Dear Friends, Family and supporters of our family throughout Wesley's journey,

Jeff Harsh, Wesley's donor is making plans to come to Dothan all the way from Yokosuka, Japan to meet Wesley's friends and family. When Wesley realized that he was being defeated by leukemia and had very little time left he made the statement "I really regret that I will never get to meet my donor". He always wondered if they liked the same things, looked alike and shared the same values. It amazed Wesley that someone (a perfect stranger) would be willing to be admitted to a hospital, have anesthesia and undergo a procedure such as this for someone they had never met. It still amazes me today. We thank God that Jeff was not afraid of the potential complications and the discomfort and gave Wesley additional cherished time with his family and friends. I promised Wesley that I would meet Jeff one day and I would let him know what he meant to him.

Jeff will be coming into Dothan the afternoon of September 23. We are planning a reception in his honor September 24 (Sunday) from 2pm-4pm at Bethel Baptist Church fellowship hall. Please mark your calendars and let's overwhelm him with our love and appreciation. Please forward this email to any and everyone that you know that followed Wesley's journey, was friends of him or simply uttered a prayer for him.

Ann Varnum asked that he appear on her morning show and also said that his coming to Dothan and his compassionate story would also be a good "news" event. We are checking to see if they would like to also attend the reception.

Once again, please, please try to attend. It would mean so much to our family as I know it would have meant to Wesley.

By His Grace,

Angie

BACKGROUND:

Wesley Dunchof, lost a hard-fought battle to leukemia last fall. Wesley, a member of the Dothan High School Band (Dothan, Ala.), was an inspiration to many for his awesome faith and courage. His peers dedicated the 2005-06 band season to him, wearing W.D. armbands at each performance.

During Wesley's plight, he became an advocate for blood, platelet, and marrow donations, as well as a spiritual leader for his peers. While a patient at M.D. Anderson Cancer Clinic in Houston, Texas, Wesley shared his story on national television. As a result of his testimony, many came forward to donate blood and marrow--not only for Wesley, but also for the general donation bank. Claiming the verse Matthew 17:20 ("If ye have faith as a grain of mustard seed, ye shall say unto this mountain, Remove hence to yonder place; and it shall remove; and nothing shall be impossible unto you."), Wesley became a source of inspiration to those around him. He gave everyone he met a "mustard seed" coin, on which was embedded a real mustard seed grain.

Wesley died August 28, 2005. In his honor, equipment was donated to establish "Wesley's Way," a blood platelet collection center in Dothan, Alabama. The center opened on Wesley's birthday, September 29, 2005, and his mother was the first donor. Also in Wesley’s honor, Dr. Johnnie Vinson, a well-known and well-published composer and Director of Bands at Auburn University, wrote a composition titled “And Hold in Memory,” which the Dothan High School Band, under the direction of Mr. Steve McLendon, performed for the first time at their spring 2006 concert. The band has also established the “Wesley Dunchof Spirit of the Band Award,” which will be presented each year to a deserving member of the DHS band. His family plans to continue his mustard seed ministry through private funds.

******
We would love to have each and every one of you to be here. If you are unable to attend, it would be great if we could shower him with cards of appreciation. You can send them to me and I will have a designated place at the reception for them.
Once again, thanks for your love, support and prayers.

By His Grace,

Angie

***************
Sunday, August 27, 2006 PM CDT

…ONE YEAR LATER
“I have fought the good fight, I have finished my course, I have kept the faith: Henceforth there is laid up for me a crown of righteousness, which the Lord, the righteous judge, shall give me at that day: and not to me only, but unto all them also that love his appearing.” 2 Timothy 4:7-8

Well, our Wesley has been wearing his crown and enjoying heaven for 1 year. It seems like just yesterday and then again it seems like forever since he's been gone. We all miss him terribly but manage to get through the days by the grace of God.

“The last of the firsts." That's what I have been calling this one year anniversary. That is, this is the last really hard "first" we have to go through. We’ve experienced the first Thanksgiving, Christmas, New-Years, Easter, Mother’s and Father’s Day, birthdays without him and now the first anniversary of his death. Around these big "firsts" and even during some very typical days I ask myself “Is this really real or has it just been a horrible nightmare?” And thinking things like "I can't believe this all really happened" and “OK enough is enough, I’m ready for Wesley to come home now.” It can be a very draining feeling.

It seems that every day I find myself thinking back to last year. What were we doing this time last year? Was Wesley inpatient or were we at RMH? Was he feeling OK? Did we have visitors that we were enjoying? In the past month this has become increasingly difficult for me because Wesley was being released from MDA to “go home and enjoy his family and friends.” His strength was declining rapidly until he was completely dependant. And then today and totally not deliberate, I find myself re-living, over and over in my mind, the day and night that led up to his guided journey home. I spent a good part of the day today, sitting by his graveside. I couldn’t help but think back to when I sat by his bedside all day and night one year ago today telling him how much I love him and trying to comfort him any way that I could.

I have to bring myself back to the realization that Wesley is far happier now and celebrating each day as a holiday with no worries and no pain. Instead of being overwhelmed by sadness, I have tried to focus on how we’ve become stronger because of all we've gone through and how here it is a year later and we're okay and how we're going to continue to be okay. On this day filled with strong emotions, focusing on how far we've come has helped.
It's been a year filled with so many emotions--many of which are hard to put into words. Although we have and are still experiencing an incredible loss and a depth of pain I never thought I could feel, both Michael and I know we saw God's mercy and grace at a time when we needed it most. Through it all however, we can also say that we have experienced moments of God's peace through the everyday blessings of children and grandchildren, sunsets, birds, unexplainable God-incidences, friendships, family, and the hope that comes with knowing we will all be together again. Michael and I both understand the meaning of the word peace now more than ever… we pray for it everyday.

"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world." John 16:33

I have written a lot about how it has been only by God's grace and mercy that we have been able to move forward. Our family has had numerous discussions about faith, heaven, and what's really important in life--all of which are hopefully making us better people. That's not to minimize the tough days--there have been many and they have been excruciating. For us however, focusing on the bigger picture has brought perspective and meaning to this life changing year. One thing it hasn't been is easy! We took this first year to just BE and let life happen. We are better and stronger in many ways yet in others we have a lot of work to do. Anyone who has lost a loved one knows the incredible ups and downs that go with this grieving journey. But as I reflect over the last year, we have made it through and we are still standing. The pain is still there but living with pain makes us truly appreciate joy. Wesley lived with the cancer treatment pain the last year of his life and yet he was still an incredibly happy, fun loving, prank playing and joy filled person -and he blessed our family tremendously. Although the suffering was far, far from what I would have chosen for my precious son; it has broken me…to the point that I depend on God for the strength to make it through the next day. When Wesley was born I felt he could accomplish great things maybe even be president of the United States someday. But instead of leading the country, because of his journey, people were led down on their knees in prayer, some for the first time in a long time. Which one is greater? I will never know the exact number of people who lifted Wesley up in prayer, but I do know the impact it had on our ability to make it through each day…Wesley included. Oh, how proud I am of his short ministry that will live on and continue to change lives. I thank God for choosing me to be his mother. Wesley’s prognosis was for only a few weeks to a month initially. He faced many “downs” on that cancer roller coaster. But God delivered him through each one because of YOUR prayers and His grace. How many times did we ask God for specific things we didn’t receive? How many people prayed that Wesley would be healed and have the strength to stand up and share his story? That he would have a normal life, get married, have a family? But did all those prayers really go unanswered? No. Everyone was answered…just not in the way we asked. This causes us to stop and ask God to help us see things through His eyes and not through our own. As Wesley would say, “Keep the faith!”

“For my thoughts are not your thoughts, neither are your ways my ways,” declares the Lord. As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts.” Isaiah 56: 8, 9.

Our family wants to keep Wesley’s legacy alive. My desire is to continue to grow in faith, and to lean on a God that provides peace, hope, grace and mercy, and, as I've said, to focus on the bigger picture. Rick Warren wrote an immensely popular book titled "The Purpose Driven Life" about God's purpose for our life in this very unpredictable world. He starts the book with the words "It's not about me." If we place our focus only on ourselves and our situations then how can we ever see the greater picture? Our family's journey has defined who we are and now how we use it to become better is up to us. My prayer is for God to guide me to His purpose for my life.

The last of the big firsts will soon be over and as I told Michael a week or so ago--the feelings I have will be the same on August 29th as they are on August 28th. Although today has been hard it has also been special. It has been many of life's emotions wrapped up into one day--much like the day Wesley died. That is what make's up life-- lots of emotions and feelings but also a good amount of faith, hope, and love. We will always be together; we will treasure our many blessings here on earth. I read a few months ago a sympathy card that said "When someone you love becomes a memory--that memory becomes a treasure." We treasure so much about Wesley and the gift of his wonderful life here with us.

Today in church, we sang the praise song “God is good…all the time.” God is good; a very profound statement. It is that very statement that we live by and we truly realize how good He has been to our family. This past week, we had another one of those God-incidences I spoke of earlier. We got an email from Jeff Harsh (Wesley’s bone marrow donor) that he, his wife, children and parents are coming to Dothan to meet all of Wesley’s friends and family. They will be here September 23rd. We are in the process of planning a reception in his honor. Please mark your calendars for this weekend to show him how grateful we are for his selfless act of compassion. I will update you on the specifics. Just knowing that he is coming soon has brought joy during this difficult time. Wesley so wanted to meet him. I promised Wesley that one day I would meet him and I would let him know how much he meant to Wesley. I’m not sure that I can put into words how much he means… to all of us. I’m hoping they will be up to attending church with us Sunday. I have asked Brian Thigpen (a friend of the family and good friend of Wesley’s) to sing “The Anchor Holds.” God used Jeff as an anchor for Wesley to hold on to by giving him the gift of an extended life. God really is so very good… all the time. Please pray for Jeff and his family’s safety in travel.

Thank you for your continued prayers ... your faithfulness is truly awesome. We pray for God’s continued blessings on your life, the lives of your family, and the love and joy He’s given you to share together. May you treasure each and every moment, be strengthened through the trials, and find comfort in His grace at the beginning and end of every day.

Okey-dokey smoky (Wesley’s favorite expression) I need to find a stopping off point. Please continue to lift our family up in your prayers.

Only By His Grace,

Angie

**WE MISS YOU Wesley and LOVE YOU SO MUCH!!***

Sunday, April 23, 2006 5:31 PM CDT

I'm almost ashamed to write since it's been so long. I seem to get caught up in life and feel like I don't have time to update but I know I should. Work has been very busy and I’ve been putting in a lot of hours. But it’s not bad, I really enjoy my job and all the people that I work with, so for the most part work is fun. Trenton has also been keeping me on the go with his baseball schedule. But he absolutely loves it and gets so much enjoyment from winning. (We won’t discuss how he handles losing) His team is really doing well so he is mostly happy these days. As for as in general “how is our family doing?” Things are going fairly well for all of us as best we can tell. Some days are harder than others but we seem to make it through the tough times by His grace.

Another thing that has been keeping my time occupied is trying to organize fund raisers for the Leukemia and Lymphoma Society’s Light the Night Walk. It will be held in September around Wesley’s birthday. In a world where I don’t know what to do next or how I, myself, can do anything to put an end to this beast-I feel that this is one thing I can do in Wesley’s memory and share with others why we feel so strongly in this mission to DEFEAT childhood cancer. I realize that this will not be an easy task but something I will always feel passionate about not only for Wesley but for our many other precious friends who also have lost their battle on earth but won the reward of heaven and for those who are still fighting literally for their lives.

There also are many things taking place in the next few weeks in Wesley’s memory. The Dothan High senior class has chosen the name “Wesley’s Walk” for their Relay for Life team this coming weekend. I know that Wesley would have loved to have been there and…I’m sure he will be. Another Relay for Life is taking place in Port St. Lucie Florida that same evening. Coty Denig has a team that will be walking for several MDA patients including Wesley, Neil and Aviva. I just know that they will be smiling down from heaven and thanking you all for your efforts to raise money to help find a cure.

About three weeks ago Mr. Mac and Mrs. C took us out to dinner. They told us that they had some news to share regarding the spring concert. We felt they were going to discuss the scholarship to be given to a senior band member in Wesley’s honor. Apparently, soon after Wesley’s death, they had contacted the band director for Auburn University and asked for references of someone who would be able to compose a piece of music as a tribute to Wesley. He had told them that he, himself did not have the time to compose it but he would check around for someone else that might be able to do this. He asked that they send him everything they had about Wesley. (This caringbridge site, pictures, a list of his favorite songs and activities). Well, back in October he contacted them again saying that he was unable to get this assignment off his mind and he wanted to be the one to compose this for them. This music will be sold in music stores for years to come with Wesley’s story printed on the inside cover. The band received the music and has already been practicing it. The Auburn band director will actually be here when it is played for the first time by the “Greatest band in Tiger Land”, Wesley’s band, the Dothan High School Band. Mrs. C says that it is breathtaking. We can hardly wait until the concert-May 16th. What an amazing tribute to Wesley and hopefully, will be an effective voice that will share his journey and increase awareness of childhood cancer.

I’d like to ask all of you to please lift the Motro family up in prayer as Aviva, another one of our dear RMH friends, earned her well deserved angel wings Easter Sunday. Her mom Pat, dad Avi and sister Daniella certainly need our prayers during this difficult time. Loosing a child at any age is heartbreaking. All we can do is Thank God for the precious time he has given them to us to care for, to protect, to share in their precious lives for as long as he sees fit and to love them with every part of our being.

Also, please continue to remember the Sen family. They are still having a difficult time after Neil’s passing. I talked with Anjan last week and I could hear in his voice the uneasiness with such uncertainty of “what’s next.” Oh, how well I know that same emotion. We just have to keep looking up together with the certainty that God’ got it all planned out, so we just continue to pray and pray and pray.

OTHER SPECIAL PRAYERS REQUESTED!!!
Cory is still receiving his radiation treatments. These frequent trips to Birmingham I know have put a tremendous strain on their finances as well as their day to day life. Cody is returning home from MDA today after careful examinations of the tumor in his arm. Even though it has grown, it still has not grown at the rate his initial tumor grew. For right now they (MDA) feel comfortable with Lori CLOSELY monitoring it for any further growth. Cody told his mom that he is going to be fine- he has a mission- to fight for all his friends who have gone. This is one amazing kid! He will have to go back to Texas in 6 months for follow up. Tiffany and Parker both need your prayers. Tiffany has a tumor also in her arm that the docs are very concerned about. To remove it is complex and will take two separate surgeries. Parker’s condition has advanced to “pre” leukemia. Just that word makes me quiver. And on top of all of this, Madi fell and busted her chin open (requiring stitches) last week while I was on the phone with Tiff. All of this together have put a financial strain on their family also. Thank you so much for your faithful prayers!

On now to Easter. Billy, Mona and kids came from Phoenix City, Adam, Amber and kids, Emma and Aaron, Grandmother and Granddaddy all went to church together. After church we went out to eat. No one really felt like cooking OR cleaning. After lunch everyone came back to our house and the hunt was on. With four dozen eggs hidden in my yard all was found except two. Trenton originally was not going to hunt…he was “too old” for Easter egg hunting. That was until he found out there was $$-prize eggs. He had his basket and was out the door before we could say “go”. Always on holidays we think of things that make us miss Wesley. Wesley always loved to crack the eggs on Granddaddy’s head. Then everyone else would start cracking eggs on Granddaddy’s head. No one did that this year and no one even mentioned it. I wonder if they thought about it, as I did, but just didn’t say anything because the memory would make us miss him more (if that is even possible). But you know he was way better off than any of us. He actually was able to thank Jesus face to face for His sacrifice and gift of eternal life.

God is so good to give us just what we need when we need it most and He has our broken hearts in the palm of His gentle, yet mighty hands as He mends the
pieces of our hearts. Easter weekend we got a call from Gay McCoy, Wesley’s BMT coordinator. She said she wanted to tell us herself that she had information about Wesley’s donor (his name, age, address). There are no words to adequately explain how we felt. We feel as if we have a new member to our family. Finding out about him during the Easter weekend just reminded us that he too made an incredible sacrifice that gave us days, weeks, months with Wesley that we otherwise would not have had. And we wouldn’t trade that time for all the tea in China or for all the world’s wealth. We have emailed each other a couple of times but Oh how I can hardly wait to meet this amazing man and his family as they are now a BIG part of our family. I have gotten his permission to post our emails. I also am posting some of the emails that others have sent to him.

Good morning. My name is Jeff Harsh and I am in the U.S. Navy. My wife and I were saddened to hear that your son passed away last year. I am very sorry that I did not reply to your thank you cards. You all were always in my prayers. I do not need to say this but your son was a very strong young man and was an inspiration to us.

We are currently stationed in Japan and would like someday to visit.

This email will be short and I look forward to your response. I hope you have a great day.

v/r,

Jeff Harsh

P.S.

I included my work email so that way we can stay in contact when I deploy next month.

AAdams216@aol.com wrote:
Dearest Jeff,
I don't even know where to begin to tell you how much your sacrifice meant to our family. You can't even imagine how many people all over the world know about you and love you. Wesley had a web site http://www2.caringbridge.org/al/wesleysjourney/ that people we never met followed his journey. Our family thinks and prays for you so often. Even just recently, at Easter, when we honor the day that Jesus made such a sacrifice for us--my thoughts went to you and what you did for my precious son.
You see, Wesley's transplant was a success. Because of you, he was given more time with his family and friends. There is no amount of money that could buy that. I would literally sell everything I own for just one more day with him.
When Wesley realized that he was not going to make it, he said, "Momma I just hate that I will never be able to meet my donor." I assured him that I would meet you one day and let you know how much he appreciated what you did for him.
We would love for you to come here (all expenses paid by us). Wesley had the amazing support of our entire town and because of him we now have 2 platelet machines that were placed in our local blood bank in an area they named "Wesley's Way". So many people here would also like to meet you. When I told my daughter that I had your name and address she could barely speak. She said, "I love him already Mom" Please let us know if there is a convenient time.
We are working on getting a package together to send to you. And we would love to continue sending you care packages once you are deployed.
We thank God for you and pray for you safety.
I would love to post your email on Wesley's web site if that is Okay with you.

Only By His Grace,
Michael, Angie and Trenton Adams

Michael, Angie & Trenton,

Thanks for the email. I wish I could of written a better original email but I did not know exactly what to say. I only did what I hope anyone who does if someone was in need of help and I would do it again whenever if it was needed.

My wife and I visited the website and finally was able to put some names to the letters we received after my donation. I kick myself to this day that I did not find the time to send my letters that I wrote back to you. As in my first email, Wesley, his family and friends were always in my prayers for a strength and a full recovery.

I have no problem if you put any of my emails on Wesley's website. Hopefully, and it looks like it has, that the word can get out about everyone giving blood, platelets and signing up as a Bone Marrow donor, will ensure that everyone in need has enough supply until a cure is found.

A little about myself, I am 35 years old, born in West Lafayette, Ohio, have 1 brother and 1 sister, both younger. I have been in the Navy for 16 years. I have been married now for 5 years to Noriko, a beautiful Japanese woman, and we have 2 boys, Yuta who is 19 months and Kota who is 4 months. I am currently stationed on the USS Kitty Hawk in Yokosuka, Japan.

We are not sure when we will be able to get home. If it was up to my parents it would be soon as they have not seen Kota yet. We are looking at maybe coming home in December however have not decided yet. When we do know, I will let you know. Thank you for the invite to Dothan, as we are looking forward to visiting.

I will email you my ship address tomorrow as I can not remember it right now. However in case you haven't received my release form yet, our home address is:

PSC 474 Box 6106
FPO AP 96351-6106

Our phone number is 81-468-06-7747. We are about 14-15 hours ahead of you.

Well, I look forward to reading your next email and plan on calling you sometime in the near future before I leave. Have a great day.

v/r,

Jeff & Noriko Harsh
______________________________________________________________________

Dear Mr. Jeff,

Hi. My name is Jessica George and I am 18 years old. I am writing you today about the wonderful gift you gave me that you probably don't even know about yet. You see I was Wesley Dunchof's girlfriend of 2 years. I just wanted to thank you so very much for helping Wesley and allowing us to spend so much longer with him than you could have ever imagined. I know you know Wesley's story but I would like to tell you a little bit of inside stuff that only Wesley and I talked about. During Wesley's bone marrow transplant he was on the phone with me in Dothan. The first thing he said to me when I answered was that somewhere out there he knew that at the very moment that his transplant began and ended that his donor was being blessed. He also said that he regretted not being able to give a gift to someone like the gift you gave him. Wesley was a true hero in my eyes and to me you are an even bigger one. Word can't express my gratitude and I hope to meet you when you return to the states.

With much love and admiration,

Jessica C George

Dear Jeff,
I just wanted to take a moment to say Thank you for the sacrifice you made for Wesley. We met Wesley and his family in Houston, my son Cody is also cancer patient with a different kind of cancer then Wesley had. Cody is the same age as Wesley’s younger brother Trenton, they became very close friends. When it was time for Trenton to go back to Alabama, Wesley "adopted" my son as his brother. Wesley was a very inspirational young man who has touched our lives in inexplicable way. His passing left a void in our hearts. Your unselfish gift gave Wesley and his family the precious gift of time and for that no words can ever express adequately the gratitude that not only his family and community have towards you, but also those who have had the fortune of crossing paths with that inspirational young man.
Thank you again,
Lori Denig and family

Mr. Harsh:

I just wanted to take a moment of your time and thank you. You have no idea about what your gift of life-boosting marrow gave not only to Wesley - but to those of us who love his mother Angie and family as well. You gave us all time with Wes. And more importantly, you gave that precious gift of time to Wes.

Although we know that he is in Heaven with our Lord and Savior, he was needed here. We all selfishly wanted him on this earth, in this human body and you gave that extension.

I once read that we should not value and count our days in quantity but our moments in quality. I am reminded of the ultimate sacrifice that our Lord and Savior Jesus Christ paid for us on Calvary. Thirty-three years on this earth is not a long life in the measurement of our mankind - yet look how He altered each of us and gave us hope and peace for an eternity with him. Your earthly sacrifice gave us time with Wes and although being a senior in High School is but a short season on this earth - he was one of those extraordinary people who altered everyone he met as well.
Thank you, as a sister in Christ to Angie, you are my hero. I look forward to the day that you meet Angie and she flashes you her warm smile and her soft blonde curls of hair flock you as she reaches up to hug you! You will see Wesley in her. She is an extraordinary woman and I am proud to call her my friend. She has gifted each of us with her gracious spirit of caring.
May our God Bless your life and that of your family abundantly as you serve our Country. You will always be in my prayers.

In Christ alone,

Paula S. Kelley

As you can tell, he touched many lives just like he blessed ours. I received this in an email and I thought of Wesley’s hero, Jeff.
To The World You Might Be One Person; But To One Person You Might Be the World.
You meant the world to Wesley and you do to us also. Jeff, we love you more than you'll ever know!
Today we're especially thankful to God for sending us all of you to walk this journey - there is no way we could walk this road without Him or you, and ever grateful He allowed Michael and I to be so very blessed in being Wesley’s parents. Most of all, thankful for His gift of eternal life. One day we can thank Him, as Wesley already has, face to face.

This is a prayer sent to me by a friend and one I pray now:

Dear Jesus,

Let me make the best of each and every day to clear my mind so that I can hear from You and know your will for my life. Please broaden my mind that I can accept all things. Let me not whine and whimper over things I have no control over and it’s the best response when I'm pushed beyond my limits.

I know that when I can't pray, You listen to my heart. Continue to use me to do Your will. Continue to bless me that I may be a blessing to others. Keep me strong that I may help the
weak... Keep me uplifted that I may have words of encouragement for others. I pray for those
that are lost and can't find their way. I pray for those that are misjudged and misunderstood. I pray for those who don't know You intimately. I pray for those that don't believe.

But I thank you that I believe. I believe that God changes people and God changes things. I pray that every eye that reads this knows there is no problem, circumstance or situation greater than You. Every battle is in Your hands for You to fight. I pray that these words be received into the hearts of every eye that sees it.

By His Grace,

Michael, Angie and Trenton

Sunday, April 23, 2006 8:50 PM CDT

Sunday, March 12, 2006 6:59 PM CST

Dear Friends and Family,

Once again, I have taken forever to update. It is so easy to get caught up in the ins and outs of everyday life. Each day I miss Wesley more than the day before. I visit his resting place at least once a week. Most of the time alone. Seeing his name on the memorial stone is a major reality check that he really is gone but even though his body is there-he’s running healthy and free today in heaven.

My heart is full of wonderful memories that seem to surface in everything we do and everywhere we go. I see Wesley’s friends quite often. They are all getting ready for prom, graduation and making college plans. It makes me wonder what Wesley would be doing today it he was here. I try to keep in mind that even if he could, he’d never want to be back-especially, if he was still not well. But he is well and whole today, he’s praising and living in the very presence of God with love like we can only imagine. As much as I try to understand the “why” and accept his being gone, the missing him doesn’t ever get easier. I can’t wait until the day that God will explain it to me and looking forward to knowing that when I see his face, no explanation will be needed at all.

On February 24th, we lost another dear friend, Neil Sen, to cancer and its treatment side effects (GVHD). His memorial service was Friday, March 3rd. Michael and I truly wanted to go but it was difficult for us to get off work and we had a big benefit planned for Cory Huffstutler that weekend. We really struggled and prayed over what to do. We felt that with this being something we organized and the first benefit for Cory in Dothan that we needed to be here. Our heart was there in Texas with the Sen family no matter how many miles away we were. At the time of the service, I actually stopped to reflect on my fond memories of this extraordinary young man. He did not take his illness lightly. He could tell you anything you needed to know about his condition, treatment and medications. He did EVERYTHING right. Ate the right foods, drank his water and adhered to isolation precautions. This beast that these kids have to fight day in and day out is just so voracious. Neil’s passing has been hard on our entire family. We, as families devastated by cancer, have formed a special bond. We have loved, laughed and cried together. This is an everlasting bond that will always keep us close and in touch with each other.
Cricket George, Jessica’s mother, also lost her father suddenly and unexpectantly March 4th. I know that Jessica’s grandfather is updating Wesley on everything going on here. Grief is possibly the most painful and most unpredictable emotion that I have ever encountered. It is something that touches your very soul and actually aches your heart.
Please also remember these special families in your prayers as they began to deal with their personal grief.

We have organized a group here in Dothan, “Mustard Seed Miracles” in Wesley memory. We are committed to praying for those in need, praying for a CURE, praying for those still battling the cancer beast and other illnesses and doing whatever we can to encourage them to keep the faith. Some people have asked “How can you do this with just losing your son?” You see it’s not just my child, there are SO many families fighting daily with their children. No family should have to face dealing with a devastating illness much less lose a child. No, our efforts will not bring Wesley back and in fact it keeps the pain of losing him real when I see these people experiencing the same fear that we were just a year ago. Well, anyway this is something I feel I can “do” in a world where I’m not sure what to “do” next. Few things ‘feel right’ but this is one of those blessings that came along that God has laid on my heart. What a tribute for and hopefully, to be an effective voice that will share Wesley’s journey and share why we feel so strongly in this mission to reach out to hurting people. There were so many people there for us and I just knowing that we were able to strive forward. Not that I think this will be an easy task but definitely something I will do not only for Wesley but our many other precious friends who are still fighting this horrific battle.

One of these still in this cancer fight is Cory Huffstutler. He is really in need of your prayers. He and his mom travel back and forth every Sunday through Tuesday or Wednesday to Birmingham for his chemo. treatments. The financial strain of not being able to work and these frequent out of town trips have taken a toll. Please lift him up and visit his caringbridge site. Caringbridge.org/corysstory.

Dalton Causey is diagnosed with Lymphoma and also making frequent Birmingham trips. His site is caringbridge.org/Daltoncausey. I’m sure this family would appreciate hearing from you and know that he is in your prayers also.

Adam Currington is a boy from Enterprises experiencing severe lung problems. To my knowledge he doesn’t have a cb site but he still is in need of prayer.

Coty Denig, a friend of ours from RMH, has tumors in his arm. His mom, Lori, continually monitors his arm for any new masses. I talked with her yesterday and she said that he has a new nodule that is growing. He will be having an ultrasound to determine exact size and boundaries this coming Friday. This is a child that has experienced many of his cancer friend’s deaths. The fear a new tumor has on him, as well as his family, is astronomical. Please pray that this is a benign lesion. His caringbridge site is Cotydenig.

I look forward to the day that we can announce “THE CURE IS FOUND!!” with each of our dear friends who continue to fight, those who have fought and won and our precious, sweet “Angels” who have fought so hard and went on to Heaven…our fight for you continues.

Thank you for your continued prayers for ALL our friends who stay in the fight. And thanks also for all the prayers for Ally. She is doing wonderful. Amber, Adam, Addison and Ally actually just came in to visit so I will close here. We love you and thank God for you always!

By His Grace,

Michael, Angie and Trenton

*Jesus said...'I am the resurrection and the life. He who believes in Me will live, even though he dies; and whoever lives and believes in Me will never die.'"
John 11:25, 26

Sunday, February 5, 2006 3:24 PM CST

Dear friends and family,

Oh my goodness, what a week! I need to do a bit of catching up since my last update. Wednesday, Jan. 25th I had minor surgery (carpel tunnel repair). Since I could not be released in “full capacity”, I had to take off the remainder of the week. Not wanting to sit at home, I thought this might be a wonderful opportunity to visit friends in Texas. Trenton and I loaded on the plane Thursday morning. I couldn’t help looking out the window, seeing the clouds all around and feeling especially close to Wesley. I just imagined Wesley sitting on one of the clouds healthy, smiling and waving as we flew through. And even though the beauty of the bright blue sky and white fluffy clouds was breath taking. The beauty that Wesley sees daily is far beyond our wildest dreams and he IS healthy and whole.

Now, we were off to see the awesome friends we made in Texas a year ago.
Friends, that through Wesley’s journey, we have come to love as family.
We were met at the airport by Tiffany and Jen. First stop…Dallas Galleria for shopping and snacks.

Then we were off to see Neil at Medical Center Dallas. Neil was napping so we visited with Anjan in the family room. God was controlling that situation because my ears were “stopped up” -which I contributed to the pressure from the flight. By the end of our visit, my entire head was congested and I was beginning to feel “not so good”. That exposure could have been detrimental to Neil who is very immune compromised. It was so good to visit with Anjan. He is in hopes that Neil will be discharged soon and their family will once again be under one roof. Please keep Neil in your prayers that his immune system will strengthen.

Tiffany pulled some strings and got me right in to see her doctor friend who confirmed that the stuffiness was not just from the flight but probably viral. Great! Trenton and I have been trying so hard not to get sick and as soon as I get to Texas this happens. So Trenton and I settled down in a near by motel and I hid my germs behind a mask whenever I was within 10 feet of Parker.

As soon as we saw Parker, he came out bearing gifts. They had gotten Trenton a “real” cowboy hat to match one that Parker had. The next morning cowboy boots magically appeared. Trenton felt (and looked) like a genuine Texan. Trenton told Brandon that he loved his boots and he only took them off to sleep. Brandon told him that real cowboys “sleep” in their boots. So that night he tried-but finally gave in and took them off saying they were comfortable to walk in but not to sleep in. We were able to see the “Wesley tree” planted in Wesley’s memory in their backyard. A beautiful magnolia tree with one beautiful bloom.

I was delighted to be able to meet Mrs. Wesley (Parker’s teacher). She was everything that Tiff had described and more. Her love for Parker and the entire family was obvious when she rearranged her schedule and went to lunch with us. Being in Texas again, the magnolia tree, Mrs. “Wesley” were just only a few of the reminders of my dear Wesley.

Friday night we went to Medieval Nights-a dinner theater. The boys had a great time but Ms. Madi enjoyed it more than anyone. She was standing up and waving her banner for her knight in shinning armor. After the show they all scurried around getting pictures and autographs from the King, the princess and all the knights. So much fun!!

Saturday, Tiffany stayed busy all day preparing for a “bake sale”. She even had me slicing cake and baking cherry pies. Come to find out-there was no bake sale. I should know Tiff better than that by now. I knew we were having dinner with a few friends but gosh was I surprised to be greeted by several “friends of Allie” girls (Lisa, Christy, Betsy), the Riley family, Mrs. Wesley and family, Randy and Kim and girls, Kathy Scalp from RMH, Anjan Senn and of course the fighting Hays family and Nana. It was a wonderful evening and I am still pretty overwhelmed by the gifts that I received. It started with a James Avery charm bracelet and then each other gift was a charm with its own significance explained prior to my opening it. (house-reminder of RMH, key-reminder of crazy Texas driving, a pineapple-reminder of Wesley’s love of pineapple sandwiches, cancer ribbon-reminder of the ongoing battle so many still face, shape of Texas-reminder that Wesley’s spirit remains in Texas, band Mom-reminder of Wesley’s love for his band, a heart with a cross in it-a reminder that Jesus’s love is everlasting and through His death we can live forever, a laptop computer-a reminder of all the updates and reading your uplifting guest book entries, the symbol of a “mother’s love”-no explanation needed, Guarding Angel-reminder that God sends His angels to watch over us and protect us from harm (Psalm91), a giraffe-reminder of the amazing “Friends of Allie”, and a charm with a mustard seed-reminder of Wesley’s unceasing faith. Neil sent a gift by Anjan-an ornament with his Children’s Art Project drawing and a picture of himself (now in Wesley’s memorial curio cabinet). I love you all more than I’ll ever be able to say. The overwhelming kindness you have shown is forever humbling.

Leaving Texas Sunday, in itself, was incredibly hard. I guess it always goes back to leaving a place with so many dear friends, the place where we were brought together by situations that none of us chose or wanted. It’s especially difficult because we don’t get to see each other very often. Tiffany, thank you for your awesome hospitality and I pray you guys don’t get sick from my crud.

Now, on to the highlight of this update, February 1st at 3:02 pm, Allyson Faith made her grand appearance. She weighed 6lbs-11ozs and is 19 ½ inches long. I know that I may be a little partial, but she has to be the prettiest baby girl that I have ever seen (aside from her mother when she was born). Her first few days were a little rough due to aspiration pneumonia. She spent 2 ½ days in ICN under an oxihood and receiving antibiotics. She is doing great now, on room air and in the room with Mom and Dad. She does have quiet a bit of jaundice but her bilirubin level is not high enough for the bili lights (first tanning bed). Breast feeding, poopy diapers and sunshine is the treatment of choice for now. She will have to remain in the hospital until Wednesday to complete her antibiotic treatments. Amber and Adam are missing being home with Addison and are growing hospital weary. Please pray that Ally will continue to improve and they can all be home soon.

With so much going on in all our busy lives, one thing is for sure – God is in full control, He is never too busy and His arms are never too full and His love covers all. Thank you for your many prayers not only for our family but the many families who are daily facing struggles and tests of their own. God is still in the miracle business and we will continue praying.

We love you all more than you will ever know. Your encouragement and prayers are overwhelming. We continue to thank God for the gift of your friendships. I’ll try to update again soon.

By His Grace,

Michael, Angie and Trenton

****************
Brief update.

Adam, Amber, Addison and Ally are all at home now and doing great!!
More later. Love Angie

Saturday, January 14, 2006 9:10 PM CST

Hello everyone,
I know that I am WAY far behind on updating. When I see how many times this site has been looked at, I realize that you are still checking in on us. I also recently went through some of the things that have been packed up since we returned from Houston. I started to read some of the cards that were sent to us while we were there. After a few minutes of reading, I found myself sitting in the middle of the floor surrounded by cards and letters. I just kept looking around the room feeling it was all still pretty surreal and yet thinking how in the world could we have made it through this journey without all these precious people in our lives?? God knew and He took care of placing each one of you in our lives. Talk about an awesome feeling, quite humbling and very emotional.

I truly am sorry about not updating during the holidays but ‘getting by’ was about all we could do. I have always heard people say how Christmas and the holidays in general are extremely hard when you have lost a love one. I’ve always looked so forward to celebrating Christmas even with the craziness of shopping, decorating and parties. But most importantly, it’s the designated time to celebrate the true meaning… Christ’s birth. I’ll never understand how God could allow his son to come to earth, knowing that his life would be short and he would have to die a cruel and unjust death just so we could have the opportunity to live forever. But once again this was in God’s plan and I am so thankful that his plans are better than ours. His love for us continues to amaze me.

It goes without saying that this Christmas was unbelievably difficult. For those of you who know… know. And for those who can only imagine, I pray that’s all you’ll ever have to do. I’ve never experienced anything as tough as losing my sweet Wesley. I saw Wesley in every thing (as always) during the holidays. Putting up the tree was especially tough. He always helped and made sure that it was perfectly straight. This year it was leaning so much that I expected it to tip over anytime. But I decided to just leave it that way. The top of the tree had a place just for Wesley with a “Merry Christmas from Heaven” ornament, a traditional yearly 2005 picture ornament and a magnolia bloom. Each year he would get just as excited over Christmas as he did when he was little.

Christmas morning was about too much … the emptiness was obvious with just Michael, Trenton and me opening presents around the tilting tree. Wesley was the one who would put on the Santa Claus hat and pass out the gifts. He would pile his up and not open them until everyone else had theirs opened. I think he wanted everyone’s attention on him when he opened his. We tried to keep things as close to “normal” for Trenton’s sake. I kept replaying in my mind (as I often do) what we were doing this time last year. We decided to have the family get-together at Amber’s house to prevent the flood of traditions and memories from making the day unbearable. But Wesley was there with us…in our hearts and minds.

And now, with the first Christmas without Wesley behind us, we look to the first year without him and pray for continued comfort. I'm sure I'll live with many tough days as I face 2006 without Wesley, the first Valentines, first Easter, and first Mother’s Day. I know I'll never be complete again until I reunite with him in heaven but I'll keep taking life day by day as we learned how to do so well throughout “Wesley’s journey” and go on with this life as best I can.

Now to turn the focus onto others, please continue to pray for Cory Huffstutler. Even though I have not personally met him I have talked with his precious mother several times. They are struggling with all the twist and turns, the ups and downs of the cancer roller coaster. This family is really in need of prayers. Our prayer is that God will provide the team at Children’s with the essential knowledge in treating this beast and have a battle plan ready for Cory. I know the Huffstutler’s would appreciate your encouragement and to know you are lifting them in prayer. Cory’s website is www.caringbridge.org/visit/corysstory

Another family in need of prayer is Chad and Nicki Causey from Enterprise. Their 5 year son, Dalton, was just, this week, diagnosed with a brain tumor. I can empathize with the total state of shock and devastation they must be experiencing right now. They are also at Children’s Hospital in Birmingham.

Neil, our friend from Houston, is not doing very well at all. He has been hospitalized for 2 months and still battling a fungal infection. Please pray for his strength and healing. We are planning a trip to Dallas soon to give him healing hugs and kisses. (through a mask, of course).

While in Texas, we’re also going to be getting and giving hugs and kisses from Parker and Madi. We can’t wait to see these little munchkins again. Trenton is so scarred that he will get sick and not be able to go that he wants to take two vitamins a day. Get ready Tiff, I need my computer skills refreshed.

Ruth Moore, a DEAR friend of mine lost her mother Friday night. Mrs. Minter will be greatly missed. Please pray for Ruth & her family during this incredibly hard time.

For a praise report, Aviva (another friend from Texas)has received a "successful" transplant in Israel and will be returning to their home in Miami for the first time in two years.

Amber is 35 weeks and Ally is trying hard to find the exit. Amber says that she is a lot more active than Addison ever was. Addison doesn’t realize that he is soon to be invaded. His favorite word now is “mine”. When he is asked “Where is AlIy?”, he pulls up HIS shirt and points to his tummy. We all are eagerly awaiting her arrival.

Congratulations to Jeremy and Keisha Blayliss (niece and husband)and big sister Skylar on the birth of Dylan.

We also are expecting another baby in the family. Jason and Shasta Adams (nephew and wife) have just found out that they are having a boy. They already have two girls but they will have to learn how to change diapers faster this time.

I realize this update has been long and I probably have left a lot out. Just know that we love you and we appreciate your continued prayers for our friends as well as our family as we face more “firsts”.

Surviving…By His Grace.

Michael, Angie and Trenton

Dear Wesley,

I miss you today, as everyday. I miss my son. Trenton and Amber miss their bubba. Micheal misses his hunting partner. We miss your smiles, your laugh, your practical jokes and your huge bear hugs. Trenton just said last night that he has not had a wedgie since you left us. We are so broken in your absence. We still can’t believe this is real. Please understand that we are glad you are in heaven and not hurting anymore…but OUR hearts are still hurting.

Sometimes I can’t believe the grief alone has not killed us. I never thought we would survive the holidays without you. And time still ticks on. Even on the better days... there is an emptiness. You are missed so much. I just wish the Lord would open a window into heaven and I could see your face once more. But until I do see your face again, you will remain right here…in my heart.

With All My Love,

Momma

Thursday, January 5, 2006 11:15 PM CST

MAYBE HER NEXT UPDATE WILL BE FROM TEXAS!!!! IF YOU ARE IN THE AREA AND ARE CURIOUS EMAIL ME (TIFF) AT PROJECTPARKER@SBCGLOBAL.NET. SURPRISE...SURPRISE...SURPRISE!

TIFF
PARKERS PROUD MOMMY
DEAR FAMILY FRIEND (SO DUBBED)

PS.Did you see I said....Texas!

*************************************************
Tuesday, January 3, 2006 5:15 PM CST
Happy New Year Everyone,
I PROMISE to update soon. I wanted to go on now and post my new years resolution.

Dearest Wesley,

You received a gift when you became ill.
A gift so very small.
And yet this gift with the meaning it had
Has changed us one and all.

It was just a seed inside a marble.
But much more than that to you.
The faith this seed would represent
Can be found in the book of Matthew.

It says if you just have the faith
As a grain of mustard seed.
A mountain can be moved away
If only you believe.

My dear sweet son, you cherished this gift
And carried it everywhere.
When you saw someone feeling down
This message you would share.

You searched the web to find a token
A token with a mustard seed.
So you could offer a gift of hope
To others that were in need.

And even though you’ve received your reward
And your work on earth is through.
I vow to continue passing out tokens.
In my loving memory of you.

One sweet day, I’ll see you again
And we’ll be able to recall
The ones we gave this token of faith
Of a seed so very small.

With All My Love,

Your Momma

Well, that was only one of my many resolutions. Another one is to fatten everyone else around me up-since the losing weight resolution has never worked for me.

By His Grace,

Angie

Monday, November 28, 2005 10:18 PM CST

Hello to Everyone,

I hope you all had a wonderful Thanksgiving. Just like it is a common everyday question to ask someone “How are you feeling?”, the question “How was your Thanksgiving?” is frequently asked at this time of year. I was dreading the holiday, expecting it to be a day filled with sadness, loss and emptiness. We deliberately kept sweet potato casserole off the menu, since this was Wesley’s all time fave. I tried to stay busy (cleaning, cooking and constantly on the go—as a numbing agent. But sometimes the only way through it—is through it. My day began with a simple prayer: Lord, help me make it through this day. It ended with a prayer of gratitude: Lord, thank you for helping me make it through this day.

We were blessed to share the holiday with our family and also with our dear friends from Florida—Norm, Lori, Matthew and Cody. The timing of their trip was impeccable. They fit right into the day as “part of the family”. Even though there are so many things that we all were thankful for this year and everyday. (God’s love and mercy that has carried us through each and everyday) Our hearts were still heavy missing Wesley yet that's an everyday occurrence. What joy he brought for all of us to share. Each Thanksgiving, traditionally, we gather all the grandchildren around Grandmamma and Granddaddy for a picture. Wesley would always hold “bunny ears” over his cousins. This year we opted out of the picture. Maybe next year.

But Wesley was with us this Thanksgiving in spirit and in our hearts. We took our Florida friends for a tour around the circle city (once or twice), ate at El Palacio and went to play at Adventure Land (go carts. Putt-putt and arcade). As soon as we walked in, Cody (9 yo cancer patient and friend of Wesley’s) stood in front of the token machine. Without putting any money in—tokens began to fall out. His Dad was standing nearby and tried to convince him that someone else must have just put their money in…BUT there was no one around to claim the loot. Lori told Cody to take the tokens as a gift from Wesley. Then later on, after his tokens were spent, Cody was on the ski simulator that requires 4 tokens. Having no tokens, he was just standing on the game when all of a sudden…it came on. Chill bumps?? We had them too. Wesley, if it was you, Cody says thanks and Trenton asks where was his?

In all seriousness, there is a precious seven year old little girl who DESPERATELY needs our prayers. Her name is Bailey. Her carringbridge address is – godsjourneywithbailey. Please lift her and her family up in your prayers and if you have the opportunity, sign her guest book to let them know that there are people remembering them at this devastating time in their lives.

There are so many people all around the world affected by this beast of cancer. Please continue to pray for a cure in the very near future. We love you all and thank you for continuing to remember all of our family and also our friends who are still in the fight.

***Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God. 2 Cor. 1:3-4.
And the answer to the question…We had a great Thanksgiving! Now onto Christmas (gulp).
With our love,
Michael, Angie and Trenton

Monday, November 22, 2005 10:13 PM CD

Hi everyone,

It’s been over a week or so since I last updated. I really do have good intentions it is just that the hours I have home in the afternoon seem to be so few and go by so fast. I usually find myself staying busy until around 10:00 and then having to find a shutting down point. With the holidays quickly approaching, things are becoming more hectic so I’m sure that I’ll be burning the midnight oil frequently.

Holidays?*!? I have made the statement that I wish I could fast forward until Jan. 5th. But there is Trenton who is trying desperately to return to some form of a normal life. Wesley always loved family gatherings whether it was a holiday or a celebration of someones birthday. It was just the having all the family together that made him happy. He really enjoyed being the center of attention. Last year, after Wesley was diagnosed, we had no idea what was ahead of us. But we all agreed that Thanksgiving 2005 was going to be a year we would have so much to be thankful for. Wesley’s treatments would be far behind us and he could finish high school with his friends HEALED.

Tonight as I tucked Trenton in, we decided to focus on some of the things that we were thankful for this year, on the blessings that God has given us and not on our trials. These were just a few of our Thanksgiving blessings that we came up with....

*The miracle that God gave us with each day He shared Wesley with us. And he got the miracle we prayed for ... healed beyond all healing.
*Another day of life
*Family
*Prayer
*Jesus' sacrifice on the cross
*A Heavenly Father who hears our prayers
*Prayer Warriors who helped to sustain us (YOU!)
*All the coincidences that we called God incidences
*God’s AMAZING grace
*Financial provisions
*Home
*Love
*That God's word is truth and we can count on the promises in it!
*FOA
*Ronald McDonald House-forever indebted for your love and hospitality-we love you as family
*Doctors/Nurses both in Houston and in Dothan
*Wonderful job and caring co-workers
*Friends (known and unknown from all around the world.)
*Military, our President, & Leaders…Freedom
*Wesley’s bone marrow donor’s spirit, love & heroic heart!
*Wesley’s perseverance, fight, & undying faith
*The wife of a wonderful husband
*The mother of beautiful children
*The nanna of beautiful, smart and “can do no wrong” grandchildren
*Our community & churches (prayers and support this past year)
*Dothan High School Band
* KNOWING God is in control

Trenton’s list
*Daddy and Momma
*School (sometimes)
*Friends
*“That Jesus died on the cross for our sins”
*Missy and Buffy (cocker spaniels)
*That Bubba is in heaven with Jesus

Please feel free to share what you are thankful for this season. When you take the time to sit and reflect on the past year-you realize that God is good and has blessed us far above what we are worthy of.

The days do seem to be a somewhat more tolerable but it is only by God's grace. There's just no set time of how long grief is supposed to last and I believe some degree of pain will be with us until we see him again. And again ... God's grace and mercy is amazing. He still has work for us to do, so until then ... we're looking up to Him for guidance with our daily walk.

We still have our breakdown times-sometimes totally unexpected. One night in particular was when “The Dothan Magazine” Nov-Dec issue was released. Michael and I both read the article that was beautifully written about Wesley and held each other crying for atleast half an hour. Trenton was at a loss. He ran to his room and got his football and started throwing up in the air (I guess as a way of distraction or coping?) He has really gone through some pretty tough stuff for a nine year old.

Another breakdown moment was when I had decided to start unpacking some of the boxes from Houston that we had stacked in an extra bedroom. Looking through all the LITERALLY thousands of cards Wesley received overwhelmed me again at how much love, support and prayers were sent our way during this most stressful time in our lives.
So many churches, prayer groups and individuals supported us that it would be impossible to begin naming them. Just know that we pray for God’s blessing on each and every person that lifted Wesley and our family up in prayer.

But it is not only family members that are still feeling the hurt of Wesley not being here. Marc (Wesley’s best friend) came over Thursday or Friday night and talked with us for several hours. He relived some stories about Wesley with us that made us feel like it was just yesterday. He told us that he plays the DVD of the memorial service often and that helps him to feel close to him. And Jessica, well her and her family just joined our church-Bethel—so I’ll be able to see her and get a hug for me and one for Wesley at least every week. I realize that it is not just our family that’s missing Wesley. There is a hollow hole in the lives of all those who loved him and remain.

Wesley’s memorial stone was placed last Friday. It is absolutely magnificent. Complete with the verse and, of course, an enlarged exact replica of the mustard seed. It really sums up his legacy of faith. I’m not sure how I feel about posting a picture of it.

On the agenda, family coming for Thanksgiving, planning to eat…eat …eat. Cody (Wesley and Trenton’s friend from Houston) and his family are going to be spending several days with us. We are so excited to have them come to Dothan. Now just to come up with some fun things to do?? You know kids-they’ll have fun just hanging out. Lori and I can “catch up” and drink coffee. This woman can drink coffee 24-7. Day after Thanksgiving we’ll have to go shopping if for nothing but to watch people scramble over the last of the sale items. Aunt Lisa and Uncle Dwayne have appointments to give platelets the day after Thanksgiving and I will be giving again on Monday. If you have not given platelets or blood lately, I plead with you to consider it. For locals, you really need to go by Life South to see the professional quality murals done by DHS art dept.

Also, I know that I have asked for your prayers on so many occasions, but we have so many dear friends, now all over the world who need your prayers. And several of these kids are not doing so well. I know first hand what they are experiencing and also know how much those prayers have helped me. Keep 'em coming and remember all those precious children in need of their miracle.

Bailey
Cory
Cody
Parker
Aviva
Neal
Kylie
DJ
Cole
And so many more

We're praying for a semi-normal holiday season where we can praise God, rest, and re-group for the year ahead. Happy Thanksgiving from our family to yours.

With All Our Love,

Michael, Angie and Trenton

***I didn’t want to elaborate on this in respect to our many Alabama (Roll Tide) friends BUT can you imagine the high fives Wesley was giving after Auburn won Saturday? He loved his Tigers.

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Hello Everyone,

Well, I finally sat down to do an update. I know it's been a really long time since I last updated. To be honest I have rarely even turned the computer on much less come to Wesley’s site. I can get very emotional some times just from looking at pictures or talking about him that I am afraid that I will see or read something that will start a meltdown. But never once have I read your loving, compassionate guest book entries that I have not left being comforted.

I do have those meltdowns though and before I get over one, something reminds me of how much I miss Wesley and it starts all over again. Really, I think the more time passes the worse things get for me. At first, when he died, it was like I was in shock. He had been through so much, I knew he was week and tired of suffering and he had completed the task God had for him. Still, it's difficult to go on with life without him. Now, the reality that he's not coming back just hits me harder and harder with each passing day. I know he's in the most awesome place and would not come back even if given the opportunity but I, being selfish, would give everything I have to have him back again with me.

Throughout these past months there have been countless acts of kindness shown to our family. Mrs. C, words are so insufficient to express how much the trip to Walt Disney World (that you made possible) meant to us. Trenton was so in need of time with Daddy and Momma. We had an absolutely wonderful time. We drove back into Dothan with the most awesome sunset we had ever seen. Michael and I both, as if we could read each others mind, began thinking of Wesley and how much he would have enjoyed that past week. Dana, you will never know how much I treasure “the heart remembers” necklace. I wear it constantly. I find myself thinking of Wesley and rubbing it subconsciously. Also, Jeremy Bayliss (artist and nephew by marriage)drew a breathtaking portrait of Wesley (complete with his beautiful smile and his Bubba shirt) and had it framed and matted in "blue and orange". It now hangs proudly in my den. You can view and/or purchase this portrait on his web site. www.BaylissArt.com. Ruth, my dear friend, came and arranged Wesley's most cherished possessions in a curio cabinet. I find myself gazing at it for extended lengths of time--so filled with memories. The continue flow of “thinking of you cards”, the phone calls “how was your day?”, the gentle hugs which are in need of no words—up lift us more than one could ever know. We just thank you all from the bottom of our hearts for all that you've done and continue to do for us. We are so blessed to have family and friends and even strangers that are so kind to us.

It is so wonderful to hear stories of things Wesley has done, jokes he played and things he had said to other people. It makes me feel close to him in some way. Wesley will always be with us in these memories and in our hearts. One special story not necessarily about “my” Wesley, but one that warmed my heart was a wonderful friend in Houston, Rhonda, had to have open heart surgery for a tumor in her aorta. A very serious surgery. Even though there were prayers going up everywhere for her, she was still very apprehensive (as anyone would be). One morning a young male tech. came in to take her to radiology. She spoke very highly of this boy—saying he was very polite and friendly. He introduced himself as…Wesley. The following week, Tiffany called to tell me that Parker has a new in home teacher. Her name is….Mrs. Wesley. Coincidence or not, there will always be constant reminders of my sweet Wesley everywhere!

Ten weeks have passed since Wesley’s death. The sun still comes up in the morning and sets in the evening, and I’m still here. I honestly did not believe that I would be able to go on without him here with me. The truth is that we will be reunited. That doesn’t take away the grief…but it does make it endurable. Wesley’s death was devastating to so many, but he would be the first to say that it would be a much greater loss to fail to grow from it and show care for other people who are hurting and fighting daily for their lives. I feel very inadequate to do anything right now, but I realize that God doesn’t expect us to be spectacular just faithful. He is able to enable us. There is no doubt at all that he has a plan for me as well as every one of you. As of right now, I’m not sure what his will for my life is and at times I feel I don’t know which way to turn so I won’t turn at all I’ll just keeping walking straight day by day.

We would like to tell all our RMH, MDA and Houston friends that we miss you all and pray DAILY for each of you. I really do miss being in Houston. And this sounds absurd, but I miss the routine that we had gotten used to. I miss sharing the ups and down with people who was experiencing the same roller coaster ride. I miss the waking up in the morning expecting the “good report” and most of all the great friends made while we were there. I guess, whether I like it or not, I am forced to find a new “normal” (if it ever will be again) life. It seems like an impossible task when one of the biggest parts of my life is gone.

Since Wesley’s death, I have heard of several other children as well as adults recently diagnosed with leukemia around our home town. I reluctantly share the specifics of Wesley’s journey with them. I remember when Wesley was first diagnosed I only wanted to hear positive stories. I have to remind myself that Wesley’s story IS a positive story. Did it turn out as we had hoped? No, but we still have the hope of seeing him again. Jesus has taken care of that. Does it make it hurt any less? Absolutely not. This soul-gnawing, aching pain is beyond measure. But I do want to be there for these people who are beginning their own journey. Everyone has been there for me and it's my turn to be there for someone else.

Keep us in your prayers as the days get harder and longer.

With all our love,

Michael, Angie and Trenton

Special note —Amber is having a GIRL!! Her name will be Allison (Allie) Faith
Named Allie after the amazing Friends of Allie organization that Wesley grew to love and support and then the middle name- Faith…does that even need to be explained? Wesley's Faith will continue to grow along with little Allie.

Another special note--Trenton is following in Wesley's footsteps. He has shared mustard seeds with his friends, teachers and even wanted to hand them out to all the trick-0r-treaters. He's also following him in his faith. He had accepted Jesus into his heart 2 years ago but had a strong desire to be baptized. So this past Sunday night he made his public profession of his faith and was baptized. Afterwards he told me that he KNEW Wesley was watching from heaven. I've cried many tears of sadness in the past few weeks but Sunday night they were tears of joy!

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Thursday, September29,2005 11:49 PM CD

Dear Everyone,

I realize that it has been awhile since I last updated. We probably have lost some readers thinking that I would not update again. The truth is, I was not sure myself if I would be able to. When people ask how we are doing, we tell them how we are doing on the outside. On the inside, we still feel the tremendous hurt and overwhelming loss that we felt the day Wesley left us. Everything and I mean, EVERYTHING, we do reminds us of Wesley. Just the longing for him to be here, to hear his voice and see his beautiful smile grows even more intense daily. I certainly know there isn't any definite grief period. Trust me; there are numerous books about the stages of grief, but there is no way to describe this horrible pain in any book. We're just getting through minute by minute and taking one day at a time. But let me say God's grace is sufficient. But even though he has showered us with His mercy, the missing him continues to grow. I remember telling Wesley, while we were still in Houston, that as much as we love him, God loves him more. With that being said and true, I can only imagine how great His love is.

Today, September 29th, is a day that we have celebrated for the past, now, nineteen years…Wesley’s birthday. Every morning, on his birthday, I would go into his room to wake him up, lie in the bed beside him and recount the events of his birth. He would always roll his eyes and say “Momma, I know this story by heart-you tell me every year.” But that never stopped me from doing the same thing on his next birthday. This morning, that memory hit me like a ton of bricks. He was not here for me to share his birth story with. I couldn’t reach over to wake him and say “Happy Birthday baby.” I knew this was going to be an extremely difficult day and it had started first thing. God is so good to give us just what we need when we need it most. The calls, cards, gifts, guest book entries and hugs that were sent our way this past week and today, I know, had to be inspired by God because we needed them more this week than any other time. But don’t you know that Wesley had the best birthday ever? God has to have the greatest birthday parties imaginable?? I can’t even get close to understanding the overwhelming praise and celebrations that occur daily, not to mention birthday celebrations.

In honor of Wesley’s birthday, there have been several very successful blood drives around town. Friend’s of Wesley hosted one last Saturday at Emerald Coast RV, Dothan High School sponsored one Wednesday and Houston County Substance Abuse held one all day today. Can you imagine how many lives will be saved because of the people who donated this week? Sandra and the awesome employees of Life South (the local blood donor facility) gave an amazing tribute to Wesley’s life and legacy by dedicating the area for their newly acquired platelet donor equipment in his honor. The name “Wesley’s Way” was given to this particular section and the donations began today. To make this area even more special the Dothan High art class painted two murals that captured Wesley completely and the things special to him…the anchor holds with a ship tossed at sea, the mustard seed and verse, his band, magnolia blooms, grapes and cherries. It is simply amazing! You really have to see it to appreciate it. Our appreciation for EVERYTHING done in remembrance of our precious son is beyond any words. I know that Wesley would have been thrilled. A very special thank-you to all the donors, whether blood or platelets.

I couldn’t help but to remember today a specific conversation that Wesley had with one of his nurses while in Houston. It was a few weeks out from his bone marrow transplant. At that time, he had every intention of recovering from the transplant and leading a normal, full life. He asked his nurse (while he was receiving blood himself) “How many years do I have to wait before I can donate blood?” You see, he had a strong desire to “give back” what was being done for him. Of course, his nurse told him that he would never be able to give. Toward the end of his life he talked with me numerous times about the things he would miss…his family, Jessica, his friends. He said that he regretted that he would never be able to meet his bone marrow donor and he also regretted that he was never able to donate blood for someone else.

But Wesley did donate. With only a few exceptions, many of the chemo.
regimens he was put on were clinical trials. That just means they had not been proven successful or unsuccessful. With no other options, aside from the divine intervention from God, these clinical trials were his only hope. For this research, Wesley signed consent forms allowing extra bone marrow to be aspirated and additional blood samples to be taken. Instead of five tubes of blood each morning they would take eight to ten. It was explained fully to us that this clinical trial with the extra lab work may not benefit Wesley but possibly would help someone else years later. Wesley willingly agreed to participate and never complained. So you see, whether he totally understood or not—he did donate. As heartbroken as I am to be without Wesley, I’m as equally thankful that the knowledge gained through his participation in clinical trials will save someone else’s child. I want to encourage everyone-everywhere to donate. It is not that hard to give blood. It doesn’t take much time—Wesley spent close to a year battling leukemia. It’s not that painful (if any) just a needle stick. Wesley had more needle sticks than I could even begin to estimate. So please, consider rolling up your sleeves. Do it for Wesley, do it for the thousands of children battling this beast of cancer…do it for yourself. I promise you will leave with a sense of pride and feeling fulfilled that you helped to save a life.

Around sunset, Michael, Trenton, Amber, Adam, Addison, Aunt Judy and myself stood around Wesley’s resting place and sang “Happy Birthday” with tears in our eyes we each released orange and blue (Auburn) balloons and stood watching until they vanished in the clouds. On the morning of Wesley’s death, several family members were standing outside our house. They all noticed a solitary bird flying around in circles over the house. When everyone’s attention was on this bird-he flew away. Each and every time that we have been to the graveside we have seen one bird-usually sitting nearby watching us. It now has become a ritual for us to look for “our bird” and feel Wesley’s spirit right there with us.

We decided to all go have dinner together and what other place but El Palacio in Ozark?(Wesley’s favorite restaurant) Over the register was a huge banner asking for financial assistance for an 18 year old senior just recently diagnosed with leukemia. I can feel the enormous amount of pain and uncertainty that they are feeling right now. PLEASE anoint this young man and his family in your prayers. I am sorry that I can’t remember his name but then again I am surprised that I can remember my own today. Now is the time for ME to give back. I am praying for God to give me direction on how I can help this family in need. I do know this… I don’t want to lose another child to leukemia.

Once again, I want to apologize for the lapse in time between updates. Since I have started back to work, I am still trying to adjust to life on a daily sometimes hour to hour or minute to minute basis. It seems that MY time is limited. But I realize that staying busy is what I need right now ...believe me.

Thank you for your continued prayers, friendship and love. We can never thank you enough for walking this journey with us. God has been so good ...and so have all of you.

We love you!

Michael, Angie and Trenton

"Happy Birthday Baby—I Love you!!"

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Sunday, September 18, 2005 9:09 PM CD

Hi Everyone,

Today is another beautiful Sunday. Three weeks since Wesley got his angel wings. It seems as though it’s been ages but he knows no time now. He probably knows his way around fairly well in heaven. When he was younger you would have thought that he was the preacher. On Sunday, prior to the services, Wesley would walk up and down the aisle of First Free Will Baptist Church shaking hands and greeting everyone. He always had to make sure to get a hug and a kiss from Mrs. Glenda. He would acknowledge if someone had been absent the week before by saying “I missed you last Sunday, Mr. or Mrs. So and so.” He genuinely had a love of people and the people who met him returned the affection. Aunt Lisa has always felt like he would be a minister. Wesley never stood behind a pulpit but ministered this past year to more people than he will ever know.

The missing of Wesley just seems to grow more and more each day. The huge void, the emptiness is almost unbearable. I keep crying, praying and telling God “I know some day I’ll understand but right now I feel so much pain and loss. I do believe your promises and I know my son is with You.” If there is one thing that never ceases to amaze me is that when I get to feeling down, that’s when God sends his love through you guys. You all are amazing … the cards, guestbook messages, emails; calls are so heartwarming and uplifting. God prompts your kindnesses at precisely the right moment that we need it most. Needless to say, we are still trying to absorb so much … it’s just going to take some time. Not that we think the enormous vacancy left in our hearts by Wesley will ever change but I pray God will heal the wounds. We all have to learn to live a new way now … that is the reality of it. Our hearts remain broke- our God consoles us and is faithful in His word. Life here on earth is temporary – but Life thru Him is never-ending.

Everyone seems to do better when staying busy rather than having too much down time on our hands. Those times are the worst…trust me, I miss Wesley constantly but by staying busy you have something else to concentrate on. It’s like the country song says, we breathe in-we breathe out, put one foot in front of the other, take one day at a time.
We have two choices, pick up the pieces and move forward or stay in doom and gloom all the time. Which one do you think Wesley would want us to do? Not that we have to like it or that it's not going to hurt or that it will be anything close to easy ... we just have to go on. This doesn’t mean that we won’t cry at the drop of a hat with no explanation or that we don’t want anyone to mention his name because it might upset us. Absolutely not!! We LOVE talking about him. There won't be a single day much less an hour that will go by that we don't think of him.

This past week I returned to work. Monday, my first day was not very busy. Even though, it was still difficult. I knew that it was going to be tough to talk about Wesley and the last thing I wanted to do was to fall to pieces … nice thought but that was out of the question. I did manage to keep it together before lunch. I am so thankful for loving, compassionate, Christian co-workers. The hugs, the pats on the back, the “welcome backs”, and the smiles from across the room reassured me that I was among friends who really care. The love and support that I have received from the Dothan Surgery Center is more than I could have ever expected. By the end of my first day it felt like home again. I had to use this organ in my head that I haven’t had to use in a while but I’m hoping there is still hope—maybe there is some left up there after all. But the tears that I had strived to hold back all day finally came flowing down like rain on the way home from work. I realized that Michael and Trenton were there waiting for me—but no Wesley. It is so incredibly hard to grasp the concept that he is not coming back…ever. Nor would he want to.

The Family Birth Center, my previous job, my first love has also been incredible. These lifetime friends will forever be dear to my heart. Their love and support also goes beyond measure. Knowing that I was returning to work this past week, they have brought a scrumptious dinner every night! I am so glad our scales are broken. I have told Michael to not expect this royal treatment next week. We are back to hot dogs, pizza and hamburger helper.

Wesley went home August 28th, the day of Hurricane Katrina. I had heard people talking about the devastation, the loss of lives. I had not even turn the television on at all the following weeks. When I did see the news footage, my heart wept for these people. They, like myself had lost love ones, homes, memorabilia’s, practically everything. I was so caught up in my own grief that I didn’t realize that other people in the world are suffering. It is common practice when people ask “how are you doing?” to just say “I’m fine.” But how many people do we meet on the street, at work, at church or wherever that, behind their smile, are facing their own storms of life at that very moment.

We have met so many of these people that daily face the storms of life, the beast. Please be in earnest prayer for the family of Graden Gaines 15 years old, who fought diligently against this all too powerful beast of cancer here on earth. But, praise God, won his reward in heaven!! Maybe Wesley has had a chance to show him around and introduce him to some of his buddies. We as parents are so selfish. We truly understand that they are in a better place. A place with no pain, no suffering, no routine medications, no treatments, no beeping IMED pumps…no sadness. But we are saddened—we are heart sick—it hurts so deeply to not have our babies here with us. Please, please lift this precious family in prayer as the days of now and ahead are nothing a parent should have to endure. I KNOW they need your prayers and the comfort that comes only from God.

Please also be in prayer for Aveeva Motro. She is 18 years old. She also has been battling leukemia since April 2003. We have come to love this family as our own. (to the point of calling each other Sugar) Her doctors have told her that they had done all that they could do for her at MDA. We know all too well how frightening this time is. The helplessness is overwhelming. They are leaving Houston Tuesday and flying to Jerusalem for possible treatment options there. We pray for their safety in travel and Aveeva’s healing.

Our other buddy, Parker, is doing better his mom (AKA Tiffany) says. He has gained one pound this past week and is eating a “little” now. While I was talking on the phone with Tiff, I could hear Mattie and Parker playing—actually giving each other sugar. It is so wonderful to see him feeling somewhat better.

Last report from Anjan—Neal was also doing well. Please remember all of these kids and the many more that have found a special place in our hearts. I’d like to take this chance to tell our Ronald McDonald friends that we miss you all very much and thank you for making RMH a home for so many.

While you are praying, if I may ask for a personnel prayer request. Please pray that God will make evident his purpose for my life. I know that he has a plan, He is the Master of the Universe and he has the road map of my life. I just pray that in the midst of this trying time that God will guide me down the right road and I will be all that he has lined up for me to be.

I will NEVER say that I am happy for the reason that brought us to Houston but I am ever grateful for the blessings God has laid out so perfectly along the way. You know what is really amazing ... He continues to bless us each day.

As Tiffany updated earlier, we will be walking in the “Light the Night Walk in honor of my precious Wesley Thursday night. We have to do SOMETHING to put a stop to these kids’ lives being taken way too soon!!

I still find myself going into Wesley’s room trying to remember a conversation, a joke, anything new and different. I don’t know if this will be good therapy or not, but if you have a story (no matter how small and insignificant it might seem to you) I would love to hear it. We call these “heart smile” stories and I so look forward to reading them.

I just want to thank you all for your wonderful messages, love and prayers. We thank God everyday for such loving, faithful friends who continue to lift us to His Throne. Please continue to remember all the people—young and old alike--who continue their battle. We love you all!!

In Christ,

Michael, Angie and Trenton

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Thursday, September 22, 2005 4:20 PM CD

Hello everyone,
It has been a while since we anyone has updated. We thank you all for all of the support for Angie, Trenton, Michael, Amber and the entire family.

I want to remind you all that Wesley's Birthday is just around the corner. I am sure our sweet friend Angie could use some love and support on those very difficult days.

Now, in Wesley's determined fashion we are all doing as he wished and continueing to do all we can to find a cure for Blood Cancers and make a difference in the lives of other families batteling these horrible diseases.

Here is a portion of the beautiful program that wass available at Wesley's memorial:

On October 1, 2004 our world was turned upside down when our precious son was diagnosed with Leukemia a mere few days after his 18th Birthday. On that day our innoscent child with hopes and dreams of college, a family and a prosperous adulthood saw his dreams slipping from his grasp. Yet, Wesley forged on and faced life and his journey with cancer full of strong will, optimism and determination. Throughout his entire fight he never once looked back or second guessed his faith. As all of his peers were anticipating their senior year, attending prom, marching on the football field during friday night football games all the while working toward their own graduation. Wesley was facing his own daily obstacles and goals. We all celebrated with Wesley on his 3rd Birthday June 9, 2005 when he received the unselfish gift of this Bone Marrow Transplant. Throughout all of the constraints in his way he became our Prom King and received his High School Diploma on August 8th, 2005. We will forever be grateful to his annonymous donor for the treasured days and memories we will be able to hold dear to our hearts forever. Take the torch of Wesley's spirit with you today. We encourage each and every one of you to instill his couragous example and help us continue his fight against blood cancers. We can all join together in honoring Wesley by sharing his story and raising awareness to help find a cure for this horrible disease.

Join our families dedication to putting Cancer Out Of Business in Wesley's honor by supporting the Leukemia & Lymphoma Society. Their relentless quest for a cure and desire to improve the quality of life for patients and families is remarkable. Right now An estimated 747,465 Americans are living with blood cancers. Help us put and end to those numbers. Come out to hold our hands and help us hold our heads high as we commemorate Wesley's journey at this years Light the Night Walk on September 22, 2005 in Montgomery Alabama.
While Wesley recieved his treatment at MD Anderson the Ronald McDonald House became out Home away from Home. RMH is the answer to the special needs of families like ours by offering a loving, home‑like environment where you can find support from others as we shared experiences undergoing the trauma of childhood illness. By choosing this amazing organization as a tribute to Wesley you are in turn helping all of our friends we have made along the way.

Right here in Dothan you can directly save a life. We belief so strongly in blood donation. If it were not for all of Wesley's dedicated supporters consistantly replinishing the blood and platelet supply it may not have been there to save his and many others lives one donation at a time. One of Wesley's most sincere disappointments was that he would never be able to return the favor and donate blood to save a fellow fighter. Please continue to roll up your sleeves at Life South Blood Bank as often as you can knowing how proud he is looking down on you as you give the gift of life.

By supporting these worthy organizations you not only carry on Wesley's passion and faith to find a cure but to also support the other fighting families he grew to love along the way. You have the unique opportunity to allow Wesley's legacy to live on through your generosity and ability to help save a life. Together we can beat this disease with Wesley's journey helping us carry the Light of Hope.

Please carry with you the message Wesley held so dear. If you have faith as a grain of musard seed... (Mathew 17:20) as you face your daily trials. Don't take for granted the “little” things in your life or those that are closest to your heart. We can never express our gratitude for the faithful and unceasing prayers of each and every one of you. As always we will continue to walk by faith not by sight. In your daily devotional we hope you continue to pray for our family and our complete healing. In the words of our beloved Wesley, “Please put God first in all that you do. Keep the faith.”
Angie and Michael Adams, John and Stacy Dunchof, Amber and Adam Davis, Trenton Adams, Mona and Billy Kilpatrick and Christin Adams

Please continue to follow our efforts at http://www2.caringbridge.org/al/wesleysjourney/

Keeping Wesley's mission in mind The entire Dunchof, Adams, and Spurlock families invite you to join them on Thursday, September 22, 2005 to carry his light of hope at the Leukemia and Lymphoma Society's Light the Night Walk. We hope to raise $5000 and have at least 500 friends, family and supporters by our side to help hold our hands and us hold our heads high. The funds raised will go toward much needed research and family assistance. We need your help to Put Cancer Out of Business!

Please click on the collage photo below to read all about our team. You can register your entire family to join us and help us make our fundraising goal. If you are unable to join us please visit the site to learn more about our mission, blood cancer facts and information as well as other ways you can help support us in Wesley's journey. Donations can be made directly on the site or can be delivered to the family at a later time ~ we will post the information when it is determined. Checks need to be written the Leukemia and Lymphoma Society in the notes please write Wesleys Journey/FOA. No amount is too small for cancer research. If we had $5 for everyperson who has held our dear Wesley close to your heart and high on your prayer list we could make our goal. Thank you all!

We hope to be posting meeting times for everyone to caravan to the walk. Please keep checking for updates on the events. We encourage you to forward the information about the walk, your beautiful memories of our Hero Wesley and how you are helping us raise money for research so we can find a cure for Blood Cancer to all of your friends, family, co-workers, congregation, school etc. Together we can beat this disease!

If you have any questions or concerns please contact me (Tiff) at projectparker@sbcglobal.net or Angie.

Thanks again for everything, loving our precious Wesley and support his amazingly wonderful family.

God Bless...
Tiffany Hays
Parkers Proud Mommy
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Dearest Friends and Family,

It is so hard to believe Wesley passed through Heaven’s gates only a week ago!!?? It actually feels like it has been ages ago and I’m thinking that is because we are still in a daze. Our Father took Wesley home to be with him. You see, he belonged to Him from the start of his precious life – God was gracious to bless Michael and me to be his parents. He had a mission for Wesley, he came and he did it … and it only took him eighteen years! It wasn’t up to Wesley whether or not the Lord would heal him. God had called Wesley to walk in faith and he was determined to do so!

For eleven months I sat by him every day. We rode the roller coaster of bad news / good news / more bad news, we talked, prayed, believed. He rode this roller coaster free of fear with his hands raised high above his head. Finally, on the night before he died, I came to terms with what must be. His body had become so weak he was unable to walk or even hold his self upright. No longer could I deny that he would die. I told him over and over again how much I loved him. His primary concern from the beginning was how much his death would hurt the people he loved. That night I promised him that I would be alright and I would make sure that everyone else was OK. I told him that if there was any way possible I would be going with him. I just can’t imagine living without him. As I held tightly onto his hand, I coached him through each labored breath. It reminded me of coaching a woman through labor, which as a labor and delivery nurse I had done numerous times. I had knelt by his bed every night to pray for his healing but I prayed the unimaginable prayer the night of his death, a prayer that no mother would ever choose to pray. I prayed that God would take him and heal him ultimately. I, not thinking clearly, asked God to pick him up and carry him through heaven gates because he was unable to walk alone. Then I realized that he WOULD be able to walk, he could even run through the gates of heaven. As he took his last breath, I felt a joy, although a different kind of joy, than I had ever experienced in the births I had witnessed. His heart had stopped beating. He had left his family and friends. However, because of his faith in Christ, he lives on in the presence of our Father where he is strong, healthy, and free of pain. At that time he began a new life—a new journey. His roller coaster ride was now over and I can almost hear him say. WHEW! What a ride.

This past week as I have relived the struggles, I have also relived the memory of God’s faithfulness. As I have shared with him my emptiness, my loss, my indescribable heartache, he in return has showered me with His strength and love. In the weeks prior to Wesley’s going home, I begged God for mercy on Wesley’s behalf, for his pain to be taken away, he reminded me of his own pain and suffering that He endured so that Wesley could live forever. Thank you, God, that death is not the end but a gateway into a new and glorious life. My prayer is for everyone to live each day aware of their eternity and where they will spend it.

Wesley is everywhere we look. I know most of it is because we miss him so much but also I think God reminds us of how much he loved everything and most importantly, everyone. How in the world can you cry over fruit cocktail, pineapple sandwiches, going to Wal-mart?!?!? Two weeks ago I wouldn’t have been able to answer that question but I honestly can now. But God turns my tears to memories of my precious son and I so cherish each one. He had the “whatever it takes” attitude of facing this monster head on, no matter what obstacles got in his path. What a lesson for me again from my 18 yr old. I told someone yesterday that it all seems like a dream… I think God is sheltering us with the numbness which is probably a really good thing right now. The evidence of Wesley’s life is all around and yet I’m listening for his voice, waiting for him to come around the corner to give me a quick hug or run through the house aggravating Trenton or vice versa. Saturday night, Michael and Trenton had already gone to the back of the house to get ready for bed. I was in Wesley’s room going through drawers; closets looking for anything that would spark a memory. Before leaving his room, I said aloud, “Wesley, I love you.” At that instance his cell phone rang. The caller ID read—call restricted. When I answered the phone there was no one on the line. Could have been a wrong number but I believe Wesley was telling me that he loved me too. We’re all having to learn to live a new way. I’m so thankful God’s arms are strong because He is literally carrying us through each and every minute of the day.

Friday night, the Dothan High School band paid tribute to Wesley. Wearing their bandanas with W.D. on their left arms they marched onto the field with one less trumpet player. I couldn’t help but to focus on the trumpet section and envision Wesley standing proud with his trumpet held high. Amazing Grace was reverently played under the direction of Mr. Mac. I could just sense Wesley’s presence there with us. As our family and Jessica stood on the field, everyone in the stadium was standing in honor of my sweet boy. We were presented with two plaques. One was a Spirit of Band Award and the other was The Wesley Dunchof Memorial Scholarship that would be given each year to a senior band member. As Wesley plays now along side of Gabrielle** he watches proudly over the “Greatest Band in Tiger Land”—his band. Words are insufficient to describe the love we have for Mr. Mac, Mrs. C, band boosters and each and every band member. You will forever be a part of our lives.

There are so many Thank-You’s that need to be said. If I start, I feel certain that I will leave someone out. I would like to say a special thank you to the ones who took part in the service. It was an absolutely beautiful celebration of Wesley’s life. Tiffany said that she would share with you more specifically about the service itself. I’m not sure that I would be able to do that. To the many family members that had to traveled a distance to be able to attend, we are so appreciative for you concern and love. And to our friends/family from RMH (Texas) that made a fifteen hour trip here and fifteen hour trip back in three days with horrible road conditions and raging gas prices (if they could even find a place that had gas) there is a bond between us that is rare and special. We are woven together with the thread of hope--the most precious thread of all. Anjan, Kim, Brandon and Tiffany, I know the trip was long and exhausting but you’ll never know how much it meant to us having you here. You, more than anyone, KNOW what our lives have been like—the emotional roller coaster, the one you guys still ride daily. I pray for healing for your children, Neal, Kylie, Parker and all the millions of children as well as adults that continue to battle this horrific disease.

Many of you have asked about Trenton. He is doing remarkably well. He went back to school with “mustard seeds coins” for his teachers. He says he really misses his Bubba but he doesn’t miss the wedgies. The night after Wesley’s death he told me that he once wished to be an only child—but he didn’t mean forever. Children live in a magical world where they feel if they wish for something it often comes true. I sat and held him for a long time and explained that wishing something doesn’t make it happen. I knew that to be true because I had wished for a long time for Bubba to be well. I explained that this was all in God’s plan from the beginning. There are 10 years between Wesley and Trenton. Needless to say my pregnancy with Trenton was unplanned…by me. But as I cuddled Trenton in my arms trying to console him, I told him that GOD had planned his birth. He knew that I would be needing him to help me through this time. He told me that he wished his Bubba could come back even if it did mean more wedgies.

Amber has had a tough time. But even through her pain and loss, she has been there to comfort me. For so long it was just her and her Bubba. Wesley told her before he died to not let Addison forget about him. She talks about Bubba everyday with Addison. She has been such a wonderful sister and even though you would’ve never known it when they were younger—they loved each other with a love that knows no end! I have not been able to focus much on Amber and her pregnancy. I regret that Wesley will not have the chance to know his niece or nephew but Amber did get to show him the ultrasound picture and I am sure this baby will know who Uncle Wesley was as well as Addison! Wesley loved ALL his nieces and nephews (Chelsea, Sierra, Addison, McKayla and Logan) and took great pride in being called Uncle.

Michael has been my rock. He is so perceptive. He knows just what to say and when to say it. Even more importantly he knows when not to say anything at all and just let me cry. Wesley “literally” leaned on him and loved him as his Dad. Wesley always openly expressed his feelings of love and appreciation but in his last days he felt compelled to let Michael know just how much he loved him. The times those two shared, whether it was hunting, riding four wheelers, working on vehicles, talking over problems that Wesley faced or just hanging out together are memories that I’m sure Michael will always hold dear.

This has been a long, tiring journey and you all have stuck with us through good times and bad times. We all will need you for a long time to come. Michael, Trenton and I cannot thank everyone enough for your encouraging cards, calls, gifts, guestbook messages, emails, visits, food, prayers and most of all, your incredible, unconditional love. You all are gifts to our lives that God has given.

I’m not sure what lies ahead for me or my family. I do know that Wesley will always be apart of our lives. I’d like to leave you with the Serenity prayer..."God grant me the serenity to accept the things I cannot change: the courage to change the things I can; and the wisdom to know the difference".

In Christ,

Michael, Angie and Trenton

“Come to Me all who are weary and I will give you rest.” Matt 11:28

**I was not totally sure if it was Gabrielle that played the trumpet (horn), so I went to look it up in Wesley’s Bible. I came across a passage that he had highlighted. I know this update has been long but I would really like to share it with you.

Philippians 3: 7-14

“But all these things that I once thought very worthwhile—now I’ve thrown them all away so that I can put my trust and hope in Christ alone. Yes, everything else is worthless when compared with the priceless gain of knowing Christ Jesus my Lord. I have put aside all else, counting it worth less than nothing, in order that I can have Christ, and become one with him, no longer counting on being saved by being good enough or by obeying God’s laws, but by trusting Christ to save me, for God’s way of making us right with himself depends on faith—counting on Christ alone. Now I have given up everything else—I have found it to be the only way to really know Christ and to experience the mighty power that brought him back to life again, and to find out what it means to suffer and to die with him. So, whatever it takes, I will be one who lives in the fresh newness of life of those who are alive from the dead. I don’t mean to say I am perfect. I haven’t learned all I should even yet, but I keep working toward that day when I will finally be all that Christ saved me for and wants me to be.”

Wesley, You have arrived!!!

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Sunday, September 3, 2005 12:36 PM CDT

Shel has created 2 new videos of Wesley for us all to treasure and enjoy. Thanks Shel for allowing all to enjoy our great memories of our precious Wesley.

This is the first one.. http://www.chrishel.com/videos/Wesa.mpg
And the second one.. http://www.chrishel.com/videos/Wesb.mpg

We have tons of photos to share as well once we get them online. Angie and I are also working hard on the difficult words behind an update. Thanks for continuing to read and pray for the families complete healing.

Angie and Trenton could still use all of our support and well wishes. The house is quiet and "empty", my dear friend is hurting and missing her son desperately.

It really was an honor to meet so many of you guys in Alabama.

Tiff
Parkers Proud Mommy
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A great friend of mine created a tribute video of Wesley. If you would like to view it please use the following link:

http://chrishel.com/videos/Wes.mpg

Get your kleenex ready! Thanks Shel

Wesley was also featured on WTVY Channel 4 News. The link is:

http://www.wtvynews4.com/schools

on the lower right hand side choose:
DOTHAN HS STUDENT SUCCUMBS TO CANCER

Tiff
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On behalf of Angie and the entire family I thank you for all of the prayers and support. The family was very touched by all of the guestbook messages. It really meant so much to everyone.

I know that so many supporters would like to honor Wesley and the admiral journey he conquered. The following is the information about the memorial services:

The viewing & visitation will be held on
Tuesday, August 30, 2005
from 6-8pm
Byrd Funeral Home
3409 West Main St.
Dothan,Al 36305
334-793-3003

Memorial Services will be held on
Wednesday, August 31, 2005 at 4pm
Bethel Baptist Church
3257 East Cottonwood Rd.
Dothan,Al 36301
334-792-5908

Our precious Wesley will be laid to rest immediately following at
Sunset Memorial Park
1808 Barrington Rd.
Dothan,Al 36303
334-983-6604

If you would like to send a token of your sympathy and condolenses:

Recommended Florist:
Buds and Blossoms
334-793-7823
School colors are Red and Black

For cards please send them to:
2211 Glen Haven Dr.
Dothan,Al 36301

If you would like to acknowledge Wesley brave journey with a charitable contribution in his honor:

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The Leukemia & Lymphoma Society
Attn: Joni Hart
8111 LBJ Frwy Suite 425
Dallas, TX 75251

If you would like to form a team for the Society's Light the Night Walk in his honor please contact Tiffany at projectparker@sbcglobal.net. We will be adding the links to the teams already created to honor both he and Parker in Houston, TX and Dallas, TX if you would like to contribute to either of those or come out and join us.

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Ronald McDonald House
Attn: Kathy Scalf
1907 Holcombe Blvd.
Houston,Tx 77030
713-795-3500

Attn: Sandra Hollis

If you are in the Houston area there are supporters planning on traveling to services. If you would like to join them please contact me immediately projectparker@sbcglobal.net.

If you have any other questions or concerns please email me. God Bless.

Tiffany Hays
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Sunday, August 28, 2005 7:43 AM CDT

Dearest Friends and Gracious Supporters,
Our most precious gift from God returned home to be with our Glorious Father at 7:20AM surrounded by prayer, family and loved ones in his Momma's arms.

Wesley Shane Dunchof will live in all of our hearts and souls forever. The legacy he leaves behind of his strength and courage is unmeasurable.
Wesley is....
A loving Son.... Image hosted by Photobucket.com
A playful Brother...
A cousin and a Wonderful Nephew...
An Endearing Granchild...
A caring Boyfriend...
A proud Uncle...
A dedicated Friend...
A Great Hugger...
The Heart of the Family...
An inspiration to so many...
A faithful servent to our Lord & Savior...
He is and forever will be OUR HERO... Image hosted by Photobucket.com

We will all miss you, so much it hurts. Until we meet again our dear precious Angel.

Please continue to hold Wesley's grieving family up in praise. As arrangements are made we will post all the necessary information. If you are from out of town an need to make travel arrangements please let me know if you need assistance at projectparker@sbcglobal.net. God Bless each and everyone of you.

Thank you for loving, caring and praying for this precious child. Promise to us all and yourself that you will NEVER let his couragous story die. We have to stop this monster named cancer from taking one more loved one. Please join our efforts in Putting Cancer Out Of Business.

We will also be posting which charitable organizations the family has chosen if you would like to make a donation in honor of Wesley Dunchof.

Hug your precious Babies, family & friends tight today. Let them know that we have a new glorious Guardian Angel watching over us.

Tiff
Proud to be in his flock and he has my heart forever
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Saturday, August 27, 2005 12:53 PM CDT

Angie just called for this hours update. It was time for shift change
for the nurses. The told Angie that if he was on "textbook" it would be sometime early in the morning. Angies first thought was that "He has never done anthing textbook before. He goes by the Good Book."

Angie wanted everyone to get some rest. She is going to call me through the night if anything happends. I will continue to keep everyone updated.

Angie said he is so sweet and the mood seems to have changed a bit. He seems aware of what is going on. He reaches up and holds her hand. She said he will wrap his finger around hers so sweet and gentle like when he was a baby. It is so endearing. They have all let him know it is OK to do what he needs to do. Angie has reassured him that she and the rest of the family will be fine. She does not want him to worry. Like the loving Momma she is, she encouraged him to take care of himself. What an amazing family. Can't you just see all the Angels in the room surrounding them as Angie talked to her baby with his little finger wrapped around hers. Oh, my heart is so overwhelmed.

Please continue to pray for the family and Wesley's safe journey.
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Saturday, August 27, 2005 11:01 PM CDT

Well in the last 30 minutes we have gotten two updates. First was from Amber (Wesley's big sister). She said the house was quiet and they are all still with Wesley. He still seems to not be in any pain. A little while ago he just sat up and sorta flipped over to the foot of the bed. Amber couldn't really figure out what he was doing. He someohow muttered he was tired of laying at the other end. So, she got him all situated at the foot of the bed. She is a great big sister.

The nurses (Amy and Pat) are still unable to get a blood pressure on Wes. Amber said his heart rate was about 180. I could hear her heartbreak when she said "his heart can't go much longer at 180" She was heading back in to be with Wesley and her sweet Momma. We are all with you Amber and you are doing an amazing job. Your brothers are so lucky to have you. You have your Momma's kind heart and caring spirit.

It's a little after 11pm now and my phone rang again...I felt that pit in my stomach with it being so soon. It was Angie and I heard a little giggle in her voice. It sorta took me by surprise. She was so happy as she told me that they were finally able to get a blood pressure 70/43. She said his heart rate is still so dangerously high at 188.

Wesley is not awake by any means still, but seems a bit more alert. A few minutes ago Angie said he looked up at Amber and said "I can't have no Banana Pudding can I?" They of course offered him anything he wanted, but he was as quickly back to sleep as he was awake. Leave it to Wesley to keep reminding everyone to laugh and smile with his completely adorable sense of humor.

The mood is light and encouraging. There have not been time for good byes or sorrow. Wesley has not given his own indication that he is ready to go. He is fighting and hanging on like a true Gladiator. Both of his nurses are staying round the clock.

Please continue to pray for the family. Continue to send Angie, Wesley and the entire family your well wishes in his guestbook. That is what we all can do for them all. A lasting reminder that NO ONE has given up. How we have all been changed by knowing them. How much we love and respect them. God Bless.....

Tiff
holding vigil...

"I can't have no banana puddin' can I"
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Saturday, August 27, 2005 9:23 PM CDT

Here is a bit more of a reflection. These photos are from the Prom we threw him at the Ronald McDonald House.
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Our Prom King giving his speech

We all had so much fun. It was a great night of memories for everyone.

You can share so many memories by visiting Wesley's online photo album. What a great kid.

There has been not been much of a change at this point.

Tiff

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Saturday, August 27, 2005 8:23 PM CDT

Well, Angie just called. She just left the room to take a few second break and to give me an update. As I have said over and over again. The one thing we all know deep in our heart about Wesley is that HE IS A FIGHTER! Angie & his big sister Amber have not left his side. The rest of the family comes in and out waiting patiently in the house. They are holding prayer and doing all they can. Michael just ran and got everyone a bit to eat.

Each time my phone rings my heart skips a beat and I almost can't pick up the phone. You try to not let your voice crack and be strong for Angie. Speaking of Angie if you all have not had the great privilidge of meeting my dear friend and the greatest Mother aka Momma on the face of the Earth. She is the greatest and just amazes me with everything thing she does. I love you Angie. We should all strive to be a Mother in your shadow.

So, ok...wipe more tears. The room Wesley has been staying in gets pretty Hot. He does not have the ability to control his body temperature anymore. So, Michael went and quickly bought a window air unit to help cool the room. Wesley has not spoken and keeping with his great sense of humor, blurted out "that thing could blow us out of here". We love that kid! He is a mess!

I was saying earlier what a fighter he continues to be. His Hoppice nurse Amy says that most patients you can predict pretty well, but NOT WESLEY. She says his will to fight and his spirit are unmatched...hint...we knew that! We thank her for taking such great care of Wesley and Angie

So, our little fighter is in his bed resting in such peace with no pain. His sister is by his side without fail and his Momma is in the bed holding him. She is doing her best to sing him the lul a bye's from his childhood. When the beautiful memories are just too much to bare Amber finishes for her. God Bless you and comfort you my sweet friends. I can see him in the room with you right now.

I will continue to keep you all updated as best as I can. Thank you for praying and holding vigil with us.

Tiff
Wesley's sister in Christ

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Saturday, August 27, 2005 7:59 PM CDT

There has not been much of a change. The family has not and will not leave their warriors side. His blood pressure is so weak they are unable to check it now. He is at such peace and I know he is preparing to be with our Great Physician. Can you just see him now...no more pain, no more medicines and just running into the arms of our Father. Wesley has waited for this day all his faithful life. Wesley you are a true Angel among us. We have all been graced by your presence and touched by your radiance. We love you so much.

Tiff
Your faithful friend

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Saturday, August 27, 2005 5:44 PM CDT

He is still fighting.....so we still need to be praying!!!

Here are some more precious memories
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Angie and I updating about the boys and on Mothers Day Wesley honored us with tons of Love and Goodies. You are the most giving precious child.

This is one of many road adventures around Houston and Parker with his "Momma Angie". Angie you are the greatest Momma and you were created in God perfect vision to be Wesley's life guide and Momma.
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One of our many nights chillin' out watching TV

Our great Friends of Allie Houston have always been there for Prom, dinner, to give blood or lend an ear.

The most faithful and wonderful parents who allowed us to all be apart of their sons precious life and couragous journey.
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Saturday, August 27, 2005 4:25 PM CDT

MORE REFLECTIONS ON OUR HERO...
These images are from the day Wesley returned home to Alabama a HERO
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Welcome home Son & Bubba...

The Greatest Family anyone could hope for

The Greatest Friends anyone could hope for

Please continue to PRAY today for Wesley and his Amazing Family

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Saturday, August 27, 2005 4:25 PM CDT

Right now there have been no changes. Michael (Daddy) says his blood pressure is very low and he is at peace. He is still held steadfast surrounded by family. Amy his Hopsice Nurse is there with them waiting and praying.

I know Angie would take this opportunity to thank you all for your prayers and dedication to Wesley's strong faith.

We are all holding vigil....
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Parker is proudly sporting his Alabama yard pup shirt thinking only of his "Yard Dog" buddy!

Remember how many people are praying for you all around the world just like on the day of your transplant. We love you so much.

On this difficult day I was looking through the photo album and through the day I want to share precious memories with all of your prayer partners and loved ones.

Wesley Shane Dunchof...you will be forever etched in our hearts. We love you as our own.

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CANCER COMES IN ALL SHAPES AND SIZES
CANCER DOES NOT DISCRIMINATE

Our little TV stars...we are so proud of you both

I wouldn't have have traded that night for the world

The two most beautiful faces to ever grace Ronald McDonald House or MD Anderson

You loved all the goodies and that phone

I will share memories as the day goes on. If you have a photo that you would like for me to share please send it to me at projectparker@sbcglobal.net.

Continue to pray for our sweet Wesley and his ever faithful family. Light your candle to light this Angel home.

God Bless....
Tiff
Ever faithful family friend
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Saturday, August 27, 2005 2:04 PM CDT

Thank you all on behalf of the entire family for holding Wesley's name up in praise today. Please light your candles all across the world in honor of him today. He is so brave, so priceless, so couragous and we are all so honored to know him and change our lives forever.

Today as Wesleys ever so frail worldly body fails his powerful soul I challenge you to sign his guestbook and leave a lasting remender how Wesley changed one thing in your life. How he made you see something differently. How he encouraged you to do something. Let his family know and see his miracle here in the world.
We all know in our hearts that Wesley is a miracle. He is so full of strength, faith and determination.

Angie called and we shared many tears and words of love and encouragement. Amy from Hospice is now at the house. Wesley's blood pressure was extremely low and his heart rate was 160. She has made sure his is comfortable and in no pain. He is on morphine drops now and resting surrounded by his loving family.

We encourage all of Wesley's loved ones, friends and family to gather outside the home for a candlelight vigil in his honor. We need to light his way home. We know that Katrina is "coming", but HOPE and PRAISE never tires, never fails, never withers. If you have any questions please contact Denise Cape or you can email me. I will have my computer on all day (projectparker@sbcglobal.net). The family needs to be together in quiet and in constant prayer for their baby, their miracle...Wesley.

For now, know that he is comfortable and surrounded by family and friends. God Bless you all for continuing to support this faithful couragous family.

Tiff
Faithful friend...continuing to pray
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Saturday, August 27, 2005 9:40AM CDT

God Morning...
No that was not a typo. We need God right now. Angie and I have spoken frequently in the past few hours...past few days. Wesley's body continues to fail his faith and his relentless spirit.

The past 24 hours he has been unable to keep anything down. He is in such discomfort from intestinal gas and constant bowl movements. Angie has tried so desperately without success to at least get his pain medication to stay down. Wesley is so precious and does not deserve to suffer one second. We beg of you our loving Savior to rid his worldly body of pain.

I can hear the fear and desperation in Angies voice. She needs us all to be on our knees pounding the doors of heaven with your prayers for comfort and complete healing. Hold tight to your mustard seeds, hold tight to your children and we release these cancer demons that plague this precious Angels body.

I will keep you all updated as best as I can today. Please keep fighting...WE HAVE TO STOP THIS DISEASE! For everyone who like myself feels so lost and helpless we ask that you light a candle and keep it burning all day. Lighting the path for hope and praise of this couragous young mans fight.

Please pray for the entire Spurlock, Adams and Dunchof families. God Bless.

Tiff
Parkers Proud Mommy
Heartbroken Family Friend
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Friday, August 26, 2005 1:23 AM CDT

Hello to everyone,

What is today? Thursday or Friday? I so easily lose track of time and day of the week these days. I’m trying to update at least every other day for two reasons--to keep you up on how my fighter is doing and also to help me stay oriented.

Let’s go back to Wednesday. Wesley has a CBC drawn every Monday, Wednesday and Friday. So when Wednesday’s results came in, and by no surprise, he needed platelets. Also, his potassium level was really high-6.8 (normal range 3.5-5.0) Dr M was concerned it was an early sign of kidney failure. Sometimes I go into nurse mode instead of momma mode and I immediately began to think—oh, no dialysis. I explained to Wesley that he was going to have additional blood work drawn when he got his platelets to recheck the potassium level. Wesley said, “All it means is that I have been eating too much banana pudding”. Several people know how much he likes banana pudding and he has had an abundant supply ever since we’ve been home. Well, he knew as well as I (but wasn’t thinking) how much potassium is in bananas. And then today, I found out, thanks to good friend Denise Cape, that sweet potatoes also contain a lot of potassium. Guess what Wesley’s other favorite food is that he has made known to all the great cooks in Dothan. SWEET POTATO CASSEROLE. We all have enjoyed sweet potatoes with every meal. But now Wesley’s potassium is high and something has to be done to bring it down. Answer…K-exulate. For those of you who have not had to privilege—very nasty tasting liquid that binds with the potassium and flushes it out—literally! Wesley took one sip and said there was no way it was going to stay down. There is an alternate method of administration (Imagine the worst) which Wesley was not very thrilled about but at least he didn’t have to swallow it. And it worked and worked and worked. Hopefully all the excess potassium is now “flushed” out of his system. He still will be avoiding the banana puddings and sweet potatoes for awhile though. Michael, Trenton and myself will finish off the remainder in the frig. Back to Wednesday, he got his fill up of platelets (can’t say enough thanks to all the blood and platelet donors out there) and then he was ready to go to Sears with Aunt Lisa, Aaron and Michael to look at tools. Where does he get his energy? I gladly agreed to stay home to help Trenton with his homework…and to rest.

Thursday, Wesley got up and wanted to walk outside. I helped him into his robe and slippers, gave him his walking cane and out we went. He is still very unsteady so I am always right by his side. He noticed a huge magnolia bloom on a tree that is surrounded by pine straw. As he walked closer and leaned over to smell it, he lost his footing in the pine straw. Down he went onto his knees. Then down I went to check for cuts, bleeding or bruising. No obvious injuries thank God. The next challenge was how I was going to be able to lift him off the ground. (Michael had gone to his mother’s house to sleep—because our house is not the quietest place these days). Wesley tried to position himself to where he could get up alone. I tried my best to pick him up but failed. I was too afraid of hurting him. I looked around at the neighbor’s houses and no one was home. I didn’t want to leave him to go inside and call someone. I honestly did not pray for God to send help—I prayed for God to help me be able to get him up. It was 10:00 am, the sun was beating down on us and ants were crawling all over the ground. I began to get frantic needless to say. He was down for what seemed like an eternity but actually was only about two minutes when a car drove past the house. I was thinking how nice it would be if they would have stopped. No sooner had I thought that had they turned around in a nearby driveway and come back to help. I said “God, I really didn’t pray specifically for someone to come by and help but thank you”. When the lady got out of the car, I noticed she had one arm in a sling. “God, why not a strong man?” She asked if I needed help. I was just going to have her call someone since she didn’t appear capable herself but she assured me that she had one good arm. Together, she and I lifted Wesley up to his feet and got him safely inside the house—without a sunburn or one ant bite. Thank you again God, you are so faithful. And thank you to the unknown neighbor (angel) who I didn’t even get her name in the midst of the chaos. BUT, Wesley was not so upset by the morning event that he didn’t share briefly with her his journey of faith and…you guessed it--a mustard seed. I really felt guilty for getting him out of the house by myself-but he did get to feel the sunshine and smell the magnolia bloom. After the morning excitement, he rested most of the afternoon and so did I!

We know that Wesley’s leukemia is very aggressive and we also know his prognosis is poor but no one can go through all this and not hope and pray that their child will be the one to make it. All we know to do is keep praying for peace and comfort and just fight the battles as they come. We WILL NOT give up hope and will continue to trust in the creator of the universe. He is more than able. We have had several very special visitors drop in over the past few days and you can't know how much you have meant to us. It is so amazing how we sometimes let our chins drop when things aren't going so smooth. God is so good to lift our eyes back to Him and send His messengers to remind us we are never alone. You all are such blessings!!

“For I the LORD thy GOD will hold thy right hand, saying unto thee, Fear not; I will help thee.” Is 41:13

This is the promise that the LORD gave us and this is the promise we will live by.

Thanks for continuing to check on my brave, tough and determined son and thanks for your guestbook entries—they uplift and encourage all of us. We take comfort in knowing that we have such great prayer warriors on our side. Please keep ‘em coming our way.
ALWAYS LOOKING UP,

Michael, Angie, Trenton and “Lover of the Outdoors” Wesley

Tuesday, August 23, 2005 11:54 PM CDT

Dear Everyone,

I pray this update finds each of you enjoying your days as much as our family has been enjoying ours. God is blessing us each morning with a new day. And this new day is still starting off around 5-6 AM. Yesterday morning I was awakened by rustling noises and movement coming from Wesley’s bed. I sleep on a single mattress on the floor pulled up beside his bed, so I had to get up off the floor to see what was going on. Wesley had his physical therapy rubber bands and was doing his exercises-first with his arms and then his legs. I tried to persuade him (selfishly) to catch a few more zzzzs explaining that he would tire out easy during the day if he didn’t get adequate rest. He replied with, “Momma, I need a piece of paper and a pencil.” What for? That was my question also. He said he wanted to make a list of all the things he wanted to do that day. I knew then there would be no more zzzzs for me. I’ve never been a big vitamin taker…until now.

After the Monday morning lab results were in, we were off to the hospital to get platelets.
His platelet count was 5 and we are thankful for each drop of that liquid gold that drips down the IV line and into his body. Although, the pre-med (benadryl) keeps him in a hazy state for several hours, as soon as Mrs. Mae (chemo/transfusion room nurse) says “you’re all done” his eyes are wide open and he is making plans on making tracks. Jessica called prior to our leaving the hospital and reminded us of the band concert for the parents Monday night. I really didn’t think it would be doable since Wesley was still very much under the influence. But Mr. Mac said that we could pull right up to the field and listen to the concert from the car. After, what I must say, a fantastic performance from “The Greatest Band in Tiger Land” every one--in unison (as if it had been rehearsed as much as the musical selections) shouted “hey Wesley. We love you”. Wesley has a beautiful smile which I have not seen much of lately, but after HIS band’s show of affection his entire face lit up. To all the band members, Mr. Mac and Mrs. C, please know that Wesley loves you also and takes great pride in being a part of the Dothan High School band!!

After the concert, Marc (Wes’s best bud) and his parents came over for a visit. It was such a delightful visit, upbeat, laughing and joking. Well some of us were. Wesley kept dozing in and out--picking up only bits and pieces of the conversation. Although he was sleeping in the recliner, he refused to get up and go to bed. It is difficult for me to lift him up from the chair so I finally insisted at 10:00 that he go to bed while I had able bodied men here to help me. (Michael is still on night shift) Finally he agreed and asked Marc to help him. If only you could have seen Wesley’s best friend in the whole world lean over and let Wesley wrap his arms around his neck and he lift him up to a standing position, you would not have been able to hold back the tears. I wasn’t. To Marc, Thanks for being a true friend to my precious son.

This morning we slept in…until 8:00. Wesley’s appetite is gradually increasing each day. He wants something to eat almost as soon as his feet hits the floor. He gets that honestly. He eats small bites almost constantly throughout the day. He is asking to buy a new set of scales to monitor his weight. Our scales are broken—we won’t even go there. So this afternoon, Michael, Amber, Wesley and I all loaded up and went to Wal-mart for what we thought was going to be just to pick up a few items. Wesley navigated his Wal-mart provided, battery powered car from isle to isle with the rest of us dragging up the rear. TWO hours later, we finally convinced him to check out and let’s go home. Tonight before beginning this update, Wesley was asleep and I was praying and just reflecting on every precious moment of the day. I was reminded of the times when Wesley was just a little boy. Oh, how I hated to have to take him with me to Wal-mart. He would want to stop and look at everything (especially the toys). He wanted to pick out the foods HE liked. It would take forever to finish shopping. But today, shopping with Wesley at Wal-mart while he looked through the entire hunting, electronics, automotive and grocery sections—well, it was one of those memories that I will cherish ALWAYS.

Please continue to remember Wesley in your prayers. He continues to answer “Great” when asked how he is feeling. It is so very painful for me to watch as he struggles to do for himself and then has to admit that he needs someone to help him up out of the chair, or help with bathing and dressing. My heart literally aches when I see his profile, the outline of each bone visible. But then I look deeper, deep down past the thinning skin, the wasting away of his muscles and his deep inset eyes and I see this amazing strength, this TOTAL faith in God that simply astounds me. I love a quote I read from Ron Dunn: “People are always saying, ‘Jesus is all I need.’ You will never know Jesus is ALL you need until Jesus is all you’ve got. And when Jesus is all you’ve got, then and only then, will you know that Jesus is all you need.”

Jesus, you are truly ALL we need!

Tonight, God led me to a verse that I had to share with Wesley. “As one whom his mother comforteth, so will I comfort you…” Isaiah 66:13.
As much as I love Wesley—God loves him more. I rest peacefully knowing that he is good hands.

Good Night,

Michael, Angie, Trenton and “Wal-mart’s Best Customer” Wesley

Sunday, August 21, 2005 9:43 PM CDT

Dear Faithful Prayer Partners,

Your prayers are being answered daily and we feel each and every one of them. Wesley is still on the move. Slowly and wobbly, but still on the move. He now uses a quad cane for stabilization and to allow for his independence. He will walk from one end of the house and back again. Stopping for long intervals in the kitchen which is still overflowing with food brought in by love ones. It honestly feels like Thanksgiving everyday here. Not just because of the abundance of food but also due to the atmosphere of praise for each day.

Wesley’s breathing has become significantly easier at night. He still has periods of apnea from time to time. This was the cause of many sleepless nights for me. But I have decided to try to sleep as much as possible because Wesley is being watched by someone who never sleeps. He still is requiring only minimal additional pain meds aside from his scheduled medication to control pain. He wants to be as awake and alert for as much of the time as he is able. He does get very tired easily and may fall asleep in the middle of a sentence. Sometimes he awakens and is disoriented. But it seems that his confused conversations have something to do with either Jessica (girlfriend) or Marc (best friend). He is making plans on being able to get out of the house and spend time with them—(away from my ever watchful eye, I think).

Wesley has had NO bleeding episodes in the past few days. Thank God! His platelet count was 9 Friday and he was transfused with a unit of platelets to cushion for the weekend. Overall, his generalized bruising has greatly improved. His CVC line from his abdomen drains fluid freely when unclamped. This helps improve the distension and discomfort in his tummy. He has become a medical expert and can correct anyone who attempts to flush or drain his lines the wrong way.

When we left Houston, Wesley insisted on a return appointment. The appointment was made for 3 weeks, which is August 23, Tuesday. I honestly don’t believe they expected him to still be around. So when I called to verify the appointment, Dr. G’s nurse paged him stat to inform him that we were making plans to drive to Houston. (Wesley wanted to drive instead of fly so he could take his truck on a road trip) Dr. G called Wesley personally to check on his status. After talking with Wesley, he spoke with me. He was very concerned (as was I) about Wesley making that long of a trip in his condition. But I was not going to be the one to tell him we were not going back. Dr. G. told us that he would be contacting his doctors here in Dothan and coordinating his care with them. As soon as Wesley’s strength has improved he would reschedule his appointment in Houston. Wesley was content with the decision and started making plans for an alternate road trip to the beach. So more than likely, in a few days we will be P.C. (Panama City) bound.

Friday night, we were just planning on hanging out around the house. Jessica got a call that some friends of theirs were on the way over. Before we knew it our living room was full of beautiful girls. Each having their picture made with the only guy (besides Michael and Trenton) in the room. Trenton was actually giving his Bubba advice...Work it bubba-work it. Wesley was in hog--no, "chick" heaven. He was sitting in the living room telling them all about his new ride. I knew what was eventually going to happen and I was right. He looked at Michael and said "come help me up". He has to reach with both arms around Michael's neck and pull himself to a standing position. Then he was out the door and under the wheel. No, he is no where near being able to drive. So he was like a little kid pretending to drive the car while sitting in the driveway. Michael and I left them alone (winking to Jessica to get us if she needed us). This was his Friday night out with the ladies. Hey, he was happy.

Saturday night, Wesley and Jessica went on another double date with Adam and Amber. When we were in Houston, a drive in theater was built on the out skirts of Dothan. Wesley, having never been to a drive-in was eager to check it out. I felt comfortable with him going because I knew he would not be in a crowd, not be moving around, and his sister and brother and law would be right there with him. Even though they were out until 10:30 pm, he was awake and ready to go to church this morning. I can’t tell you how wonderful it was to actually hear a message IN PERSON instead of on TV. By the way, the message was on “Journey of Faith”. After church he was still not ready to come home. Aunt Lisa wanted us to come have lunch with her and Wesley was all for it. Me? I really wanted an afternoon nap.

In Montgomery this afternoon, Uncle Dwayne rolled up his sleeves for the…I’ve lost count… of how many times and donated platelets. The lab personnel who drew his blood told him that she was going to be the one to come to Dothan and train Life South in the operation of the new platelet machine. She told him that she was going to make sure that she met this “Wesley Dunchof” when she came to Dothan. We look forward to meeting her also and welcoming the opportunity to donate platelets on a regular basis. I’ll start eating my spinach now to get a heads up.

What about Trenton? Sometimes he gets lost in the shuffle and lots of times seeks refuge in his room in front of the play station. But thanks to Mrs. C, he had an exciting weekend. He spent Saturday with her and Cassie (Mrs. C’s 5 year old daughter) at Mr. Mac’s pool.
Saturday afternoon they called to see if he could stay overnight and go to Compass Lake with them to ride jet skies. Trenton was totally up to it but I had to make sure that Mrs. C was up for the challenge. We found out after the plans had been finalized that today was her birthday. For those of you who do not know this lady, she is an awesome person!! I hope you had a great day, Marcy. Wesley has loved you for a long time, Michael and I have grown to love you over the past year and now Trenton ADORES you...your husband and Cassie. This paragraph is a tribute to the birthday girl herself.

We are looking forward to next Sunday. Hopefully, if things work out, Brandon, Tiffany, Madie and our best buddy, Parker will be driving into the Circle City. I hope all you Dothanites will get the privilege of meeting our life long Texan friends. Even though we talk daily, I can’t wait to see you guys again!

Please excuse me if this update is a little scattered brain. It seems that is my state of mind most of the time. I just felt I needed to try to do a quick update to keep you up on our life…as we know it.

Keep praying and keep the faith. When asked, “How are you feeling Wesley?”--he responds “I feel great—I feel blessed”.

May God BLESS All of You also,

Michael, Angie, Trenton and Blessed Wesley

I typed as Wesley (dozing in and out) dictated this update. It took atleast 30 minutes to complete these few lines.

Thank you for all your love and caring support for me during this difficult time. Please continue to pray for me. I still need your thoughts and prayers daily. Please put God first in all that you do. Keep the faith.

Love,

Wesley

Friday, August 19, 2005 12:46 AM CDT

OK EVERYONE in the Houston area we are counting on you, your family, your friends, your church, your office, your school, most off all our friends at RMH and care givers at MD Anderson to walk with us. Help us stop this horrible disease. Join us to walk in honor of these brave kids. We are need you! Everyday when you think to yourself "what can I do to help", here is your chance. We challenge you guys to get 100 walkers signed up on our team and each walker to raise at least $25. You can do it for Wesley, for Parker, for all of their fighting friends and their families. Help us raise money for cancer research and to honor these fighting kiddos. If you are not in the Houston area and would like to make a donation to our team you can do so on the link above. No donation is too small. EVERY dollar is one more to help fund research and patient education. Help Angie, myself and our dear friend Christi PUT CANCER OUT OF BUSINESS! We will see you there.

PS...check the cute photos of Trenton and Mr. Michael on the RMH website ~ family photo album.
http://www.ronaldmcdonaldhousehouston.org/FamilyPhotoAlbum/familyphotoalbum.htm

Tiff
Parkers Proud Mommy
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4:46PM
I just got an update from Angie. She is so powerful and Wesley is just an Amazing child. He is waking up a bit and he is groggy. I spoke to him and he really needs all our prayers for strenght. They will check his CBC in the morning to see if he needs more blood.

Well, I had to update this GREAT news. Speaking of blood...do you remember when I let you all know that Wesley's platelets had to be brought into Dothan for Wesley. Well, not for long. Congratulations to Life South Blood Bank and the citizens of Dothan. In honor of our great fighter Wesley they have almost 100 commitment cards signed to regularly donated platelets. Sandra the director of Life South in Dothan came to the hospital last night to let Wesley know that because of him Dothan is getting their own platelet machine!!!! This is an Awesome child. I personally believe so strongly in blood donation. We even carried that passion to Houston and raise tons of blood, platelets and WBC for Wesley there. In my opinion this is one of the greatest honors and legacies he could ever have. Because of Wesley Dunchof there will not be one more patient wait over 4 hours for someone to drive to Montgomery to get platelets to save their life. Wesley will forever save lives. The brave and awesome supporters that have sgned the commitment papers to donate...GOD BLESS YOU! Do it for Wesley and in honor of Wesley. That is great news!

Please keep Wesley, Angie, Trenton, Michael, Amber,Adam,Lisa,Uncle Dwayne,Aunt Donna, Granmomma & Grandaddy, Kristin, Mona,Billy, Granma Adams, John & Stacy, Aunt Caroline, those Adams brothers...all the family and his dear friends in your prayers as they care for Wesley, this precious gift from our Lord that we all cherish so very much. Pray for his care givers Amy, Dr.Mc, Dr.M, "Hospital staff, Blood Bank staff as well while they make sure Wesley is getting the best care possible. On a personal note, please pray for my sweet friend and Fabulous Mother Angie. She is the most wonderful "Momma" I have ever known and the greatest friend that God has brought into our lives. Thank you for all the prayers, the blood donations, the cards, the love and legacy you carry for Wesley. God Bless....

Tiff
Parkers Proud Mommy

From Wesley:
He is trying to do an update later
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1:58PM
Thank you all for your prayers on behalf of all Wesley's family and loved ones. Our Great Physician, Lord and Savior must be listening. After hours in the hospital WESLEY IS HOME! He is resting and extrememly weak. He is still in need of prayers...lots of prayers. He is not ready to give up just yet. We all know his journey is in God Hands and we are so thankful he hears our prayers. I will try to update more this evening. For now just know that he is home with his family and the bleeding has stopped for the moment. God Bless...

Tiff
Parkers Proud Mommy and The families Praying friend
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Wednesday, August 17, 2005 8:35 PM CDT

Qucik update....
I just got off the phone with Angie. They are in the ER. Wesley is bleeding. This morning Dr.M decided to go ahead and place a perminate drainage tube in his abdomen so that they can routinely drain the abundance of fluid he is retaining. The thought is that it would be more convient for Welsey and he would not have to have such an invasive procedure again. This afternoon he began bleeding from the suture sites. He is unable to stop active bleeding at this point. Right now they are in the Emergency Room to attempt to help him. So far he has received 2 units of whole blood and 2 units of platelets. He is resting from all the Benedryl and seems to be comfortable. Right now it does not look like he is bleeding internally. Please pray for Wesley's safety. Please pray for Dr. Mc the wonderful physician on call taking care of him tonight. Pray for Angie and the family to find comfort and Wesley to find strenght to fight ...fight...fight. We all love this precious child of God and we are not ready for him to leave us just yet. Thank you for praying for this wonderful family. God Bless...

Tiff
Parkers Proud Mommy
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Wednesday, August 17, 2005 1:45 AM CDT

Dear Everyone,

Once again, I apologize for the long delay in updating. We have truly been enjoying life. My last entry was on Wednesday. I’ll try to catch you up on our life as we know it.
Wesley still wakes up every morning at the crack of dawn planning out our day. It seems as though he is trying to pack as much into each day as possible. Although, he does realize his limitations. After being up for prolong periods of time, his calves, ankles and feet become extremely swollen. (To the point of not being able to wear anything but house shoes) He will then either rest in bed or sit in the recliner with his feet elevated on about 4 pillows. He has become so thin that you can see almost every bone in his frail body. He sometimes will stand in front of the mirror and run his hands over his ribs that are visibly showing and say “Momma, I need to gain some weight back”. Even though he has very little appetite, he is trying his best to at least eat a few bites several times a day. Nausea and vomiting are no longer a problem. Thank God. And if he is in any pain—he sure could have fooled me. Someone has referred to him as the energizer bunny. His drive, determination, will to live and faith is what motivates him. Me, on the other hand, I’m dragging by the end of the day.

Okay, just a brief overview of the last few days. Thursday morning, we were off to the hospital first thing to get 2 units of blood (Hgb 8.0) and platelets (plts 0.8). His WBC’s are now staying below 1.0. With the help of massive amounts of steroids, his blast cells are still not evident in his peripheral blood. (At least not in the labs that we have seen) This is a blessing. It is our desire and prayer never to see them again. Thursday night, several family members all loaded up to go to Wesley’s favorite Mexican restaurant—El Palacio. And, by the way, we ordered cheese dip instead of Caso now that we are back in Alabama. After we had blessed the food, we received a blessing ourselves. There were at least 12 of us sitting at a long table. A sixteen year old employee (Travis) unintimidately came over to our table, squatted down beside Wesley and ask him if he was Wesley Dunchof. He went on to say, “I’ve just got to ask you…do you know Jesus?” Wesley said he knew him personally and that he has been faithfully by his side through this entire journey. This young man’s courage and love for God was so uplifting and sincerely blessed every one of our hearts. His parents should be proud—I know God was.

Friday, Wesley and I were up early shopping at “Big Boy Toys R Us” as Tiffany calls it.
Car Toys…Sight and Sound (car accessory stores). Wesley was sharing his ideas for customizing his new ride. Before leaving each business, he shared some of his experiences over these past few months and how God’s grace was ever present. Before leaving he also shared…his mustard seed coins. He always tells people to pass it on one day to someone else whose faith might be tested. Friday afternoon we (Uncle Dwayne, Aunt Lisa, Emma, Aaron, Amber, Adam, Michael, Trenton, Wesley, Jessica and myself) all loaded up and headed for Lake Eufaula. The Walding family had graciously allowed us to use their lovely lake house Friday and Saturday. We all sat around in the spacious living room talking, laughing, playing Sorry and checkers, and mostly just enjoying these cherished moments. Wesley was solemn and slept in the recliner the majority of the night but was comforted by being surrounded by all the ones that love him so very much.
Saturday morning was ear marked for a boat ride on the lake. This was one of the things Wesley had said he wanted to do when he came home. Mark (son of the owner of the lake house) brought his pontoon boat that could hold all 12 of us. The one problem was getting Wesley down the steep embankment to board the boat. We decided that the best way to safely get him on board was to drive to a nearby bait and tackle store that had a paved walkway to the dock. It was at this little shop that we received yet another blessing. There were about 8-10 bicyclist that had stopped for a break. While Wesley and Michael were waiting in the car for the boat to arrive, we shared Wesley’s story and the reason we were here with them. Come to find out, they too were believers and asked if they could have prayer with Wesley. They encircled the passenger side of the car and one of the young men prayed for God’s hand to be on Wesley’s life and a comforting peace for our family. This prayer for a peace was answered immediately when we all were on board the boat. Mark made the comment that he had never seen the waters so incredibly calm. When we first started out, I noticed a huge white crane sitting on a fallen tree. As we grew closer, the bird opened up its wings and had the most magnificent wing span I had ever seen or took the time to notice. I told Lisa that it reminded me of an angel watching over us as we made our way by. The further down the lake we went, the more cranes we saw. At one point there were about 8 of these birds in one tree. It was an absolutely breath taking sight. As the boat glided ever so smoothly over the water, the wind blowing lightly on our face and the warmth of the early morning sun, the cranes watching us sail past…we WERE at peace. And as for Wesley, he was having the time of his life. Thank you Walding family for making this past weekend possible and Thank you God for the beautiful day, the still waters and your angels.

Sunday, Wesley was wiped out. His feet and ankles were huge despite having them elevated during the night. Logan Shane Kilpatrick’s (Wesley’s newest nephew) baby dedication was Sunday in Phoenix City, Al. Too long of a trip with fat feet and fatigue. Wesley was so disappointed that he could not be there. Michael was able to go and we sent our love and kisses with him to give to this precious little baby (A gift of God and now being dedicated back to God). So Sunday was a day of rest. And rest he did. Sunday afternoon he was awake enough to enjoy a visit from his Great Aunt Faye and Uncle Al (aka trout fishing buddy). He also has spent time with Uncle Bob, Aunt Betty and Aunt Mami (?sp) this past week. It’s like a weeklong family and friend reunion here—and we are loving every minute of it.

Monday, Wesley’s lab work came back with a platelet count of **3. Dr M decided to transfuse him first thing Tuesday morning. Alice, a very dear friend, could sense my uneasiness of getting through the night with so few platelets. She offered to stay overnight with me for support since Michael is still on night shift. Wesley actually slept well except for intermittent episodes of shallow breathing that would make me sit up and watch to see when the next breath came and then the next. These periods of slow breathing don’t seem to bother him. He sleeps with such a contented, peaceful look. No wonder I am dragging by the end of the day and he is still energized.

Tuesday, PLATELETS first thing. Wesley woke up feeling really tired and thought that his Hgb was low. But the lab work today showed his Hgb was 9.6, platelets still 3 and WBCs 0.3 (very susceptible to infections with this low count) Please pray for God’s shield around him from any illnesses. Today also is Amber’s 23rd birthday. We had a small family gathering and sang “Happy Birthday” around the cake in the living room so that Wesley could be a part of the celebration. And whose voice did we hear chiming in from behind. None other than Wesley’s. I was unable to distinguish if my heart was more full of happiness or sadness.

Tomorrow (actually now today) we will be making a decision as to whether or not to drain some of the fluid off of Wesley’s abdomen again. We will be trying to out weigh the risk versus the relief from the tremendous amount of pressure that continually builds daily. Please pray that God will direct us in making this decision.

I realize that I have repeatedly asked for your prayers. Most of the time I feel like I am ready to face whatever God has planned for Wesley. But in the late night/early morning hours like this I just don’t know. I do know that I want him to be at peace and not hurt anymore. My wish is that he could stay here and be at peace. It’s so hard to even try to imagine life without him. How will I be able to handle not seeing him every day and kissing him good-night? I know that Wesley will be healed whether it be on this earth or in heaven. One day his body will be free from pain, bruising and swelling. Nobody has to ask what my choice is—but it’s not up to me. It’s through tears and heartache that I come to you again asking for prayer. We need the support of our friends and family and the comfort that can only come from God right now.

I’m not sure when I will get another opportunity to update but know that I will be taking care and enjoying the most precious gift God has given me.

We love you all!!

Michael, Angie, Trenton and Energizer Bunny Wesley

PS Happy Birthday sweet Amber—your amazing strength, love and dedication to your bubba inspires me. I love you so much and so does Wesley.

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Saturday, August 13, 2005 11:45 PM

*THANK YOU ANGELA FOR HELPING US GET WESLEY'S HYMN OF DEVOTION BACK ON HIS SITE*

On behalf of Wesley and his loving family I want to thank you all for your continued prayers and thoughts. Angie and Wes have been so busy. She has the best of intentions updating. I have been with Parker in the Hospital. Please forgive us all. One of us will update ASAP! Please continue to pray for Wesley and his family. His days are increasingly full of less energy, no appetite, more swelling (feet & abdomen) and forever growing faith & bravery. He is so Amazing and the bravest fighter I will ever know, besides sweet Parker of course. Continue praying, continue fighting for a cure and please share Wesley's story to raise awareness. Thank you to all of you guys that sent me pics to add to Wes's site. I will try to do that tomorrow. Thanks for riding the roller coaster with us. God Bless.

Here are some of the Graduation Photos for you guys to enjoy. What an amazing day. Wesley we are so proud of you!
Image hosted by Photobucket.com

Look at that completely inspirational child whom we all love dearly....GonGRADulations!

Tiff
Parkers Proud Mommy
Family Friend
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Wednesday, August 10, 2005 11:30 PM CDT

Hi Everyone,

First let me say that it is absolutely wonderful being home and being surrounded by our friends and family. Six months away from home really brings you to the appreciation of the “little” everyday things—having our dogs greet us at the fence, waving to the neighbors while walking to the mailbox, getting a call from a friend saying “I’ll be over in a minute”, recognizing the person in the car stopped at the red light beside us, being able to attend church services, having all four of us under the same roof (our roof) and so many more. Just being home has done more good for Wesley than any of his medical treatments. He is STRIVING to regain as close to a “normal” life as possible. And in doing that he is totally exhausting me by trying to keep up with him. By 7:00 am he is ready to get out of bed and start planning his day. This is the same child that I had to repeatedly call to get up for school. The one that would say “let me sleep just a few minutes longer” and then would get up at the last possible minute to get dressed, brush his teeth, wash his face and be out the door. He now has an agenda, places to go and people to see and is staying focused on living everyday to the fullest—with no time to waste. Only if we could all live our lives that way. Don't take for granted the “little” things in your life or those that are closest to your heart. Cling to them as you would your own life-just as Wesley is doing; for without them, life is meaningless.

So many thank-you’s that need to be said. As things begin to settle down and hopefully my mind is clearer, I will thank you each personally. But for now—thank you to my dear, life long friend-Tiffany. You always know when to call-and say the just the things I need to hear. Thank you also for keeping the updates going when I either physically or emotionally can’t.

Thank you, Dothan for the unbelievable “welcome home” and community support. We feel so loved. Mr. Mac and Mrs. C.—thank you will NEVER be enough to express our gratitude and how much you mean to our family. Being under your direction and part of the Dothan High School band has brought Wesley more happiness than anything else in all of his school years. He not only respects and admires you both--he deeply loves you!

Our home has been flooded with family, friends, food, food and more food. Thank you to each and everyone who has made this first of many weeks home special.

I could never pass up the opportunity to offer thanks and praise to our Father. Without Him this would have been a meaningless journey. Wesley, as well as our entire family, has come to know God—to experience Him in such a personal way that his presence is REAL. As we have traveled this journey, we have gained a new, stronger faith, a new confidence and a total dependence on Him. We rest assured in His love and the fact that He knows us by name.

As I see Wesley’s bruising worsening, his abdomen becoming more distended, him stumbling in his determination to walk alone, I feel so helpless. As a mother, I am suppose to be the one who protects him, kisses his boo-boos and makes them feel better, catches him when he falls. It is so heart wrenching to realize that I have no control, there is absolutely nothing I can do to take this from him. But my comfort, my peace comes from knowing that our God is a God of big miracles. Wesley has not lost the faith for one minute. People are asking how we are doing. We are literally living moment by moment, cherishing every single one, thanking God each night for that day and praying for another one. We continue to walk by faith not by sight. Please continue to remember our family in your prayers and hold your own children close.

With All Our Love,

Michael, Angie, Trenton and Determined Wesley

PS Please pray a “special prayer” for Parker’s healing and comfort. He underwent yet another surgery Wednesday. I talked briefly with Tiffany tonight and she said surgery went well but he is in a considerable amount of pain.

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Tuesday, August 9, 2005 2:06 PM CDT

Hey guys this afternoons update ....
Wesley is at the hospital getting platelets and blood right now. His nurse Amy came to the house and drew his labs this morning. His platelets and Hgb were dangerously low. They did his type & match so the blood would be ready when he got to the hospital. Remberber Dr.M did not really want to continue the platelet transfusions. Wesley is really bruising and he took a little spill yesterday. It is noones fault AT ALL! His sweet feet are just so swollen and his balance is a bit compromised. So, leave it to Wesley so know how to get what he wants...hahaha. He is so strong and so determined it is completely a miracle. He keeps saying he is waiting for his...I think he is ours. He is showing us God's work and the he is the Great Physician and it is now and always has been in his hands. We are just ssssssssssooooooooo lucky to all have him in our lives.

Well, bad news....the stomach bug hit Angie! Late last night we were talking and she said "guess what"..."I am feeling pretty nauseous". UUUGGGHHHH! Well, it hit hard. She took some antivirals and is trying to rest. Rest for Angie means not running around like a bee. She is at the hospital with him now. Please pray she stays strong and has help to care for Wes. Trust me you don't know how fabulous this family and their support systme is. She will have back up. WE HAVE TO PRAY WESLEY DOES NOT GET IT!!!

So, tonight if all goes well Amber has arranged for a date night. A Limo is picking up she and her husband as well as Wesley and Jessica to go on a double date. It is taking them to dinner at an upscale Italian restaurant in a private area. A friend of the family that is also a physician will be in the restaurant close by for any issues. I hope the kids have a nice meal. Wes can't really eat, but Amber will get to be an adult and go on a double date with her little brother. I know they will cherish the evening.

For all Wesley's prayer partners out there (including me) worried about all the activities he is trying to tackle. This is how he wants it. This is how he wants to face each day. He does not want to be in the hospital or forced to lay in bed. He is resting I promise. Rather he promises. Ironically, Angie does not even have to remind him to take his oral meds. He is so determined and compliant. He is just the greatest.

Continue to pray for the entire family to have peace, strenght, energy and faith. Thank you all for continuing to support and be there for this journey.

Tiff
Parkers Proud Mommy
Dear Family Friend
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Monday, August 8, 2005 11:46 PM CDT

Tonight’s update is brief. WE HAVE A GRADUATE! Wes proudly sat on stage with about 40 friends and family watching. They played the graduation song (pomp & circumstance). He was in his cap and gown and he sat in a chair on the stage. He needed a bit of help standing, but he proudly accepted his diploma and moved his tassel. I would imagine there was not a dry eye in the room. Thank you God for today’s blessings.

Earlier in the day Haynes photography captured some beautiful memories on film for the family to cherish for a lifetime. She called Angie and told her she got some great shots. She was also able to dress Wes from the waist up to do senior portraits. Wes was exhausted from the photos and laid down to rest. Mrs. Haynes and the family surrounded Wes’s bed as she led them in prayer. Can you just see him so angelic resting peacefully as they raised his name once again to our worthy Savior. AMEN!

There was also a photographer the school arranged at the ceremony. I can not wait to see the photos. I hope we will get permission to post them on his site. I still need photos if anyone has them from any of this weeks blessings.

After the graduation everyone returned to the house for lunch. Mrs. C and Mr. Mac really outdid their selves again. They had pizza and steak. My kind of combination. Thank you for all they have done and will continue to do honoring “The spirit of the Band”. Wesley is their driving spirit and forever will be. I personally will forever be amazed at the dedication of these two educators and Christians.

Spiritually Wesley is still as strong as ever. He is a pillar. He is resting when he needs to and absorbing all the love of his family and friends. Physically, the edema in his feet continues to worsen to the point he can no longer even wear his house shoes. He is beginning to show bruising all over his frail body. Tonight he required pain meds and it causes such labored breathing and disorientation. Angie and Trenton have made beds on the floor at his bedside. Angie has a fold up chair along side him with a pillow for her to rest her head on. She is keeping close eye on his respirations and pain control. Pray she keeps her strength up so she can take care of her babies. For those of you not close to the family, Trenton is only 8 and Wesley will be 19 on September 29.

He is so in love with his “truck”, his new Expedition (used). He has been spending his downtime online looking at way to “fix it up”. Wesley’s dream was to take his Chevy S-10 pickup that has blown up the motor literally 3 times now and really fix it up. He watched truck and car shows all the time, read magazines and kept up online. He wanted it to be “lowered”, cool rims and a shade of lime green. The night before he left Houston and I spent it at the hospital with him he said “ I don’t think I am gonna be able to get my truck fixed up now” and of course our conversation consisted of so much more. It just touched me that he was so saddened about not doing what meant so much to him. Just being a teenager and a young man, covered in grease, saving for that next part and “sooping up his ride” as the kids say. Tonight he literally fell asleep on the phone talking to Uncle Dwayne about cars. His phone was on his ear, but his lids were closed and he was down for the count. So, the next time you pass a “Wesley truck” on the road think of this brave, courageous, AMAZING Christian young man.

Angie wanted me to thank everyone so very much for the meals and the company. They want to surround Wesley with all the love of supporters. If you would like to come and pray or share time with the family please call and come over. Prayers tonight are as always for Wesley’s miracle, Angie strength, Trenton understanding, Amber peace, Michael compassion, Grandmamma and Granddaddy energy, Aunt Lisa “stomach bugs” gone, Uncle Dwayne to never loose his sense of humor and for all the supporters to continue to keep Wesley and this courageous family in their heart and high on their prayer list. God Bless.

Tiff
Parkers Proud Mommy
Family Friend
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Monday, August 8, 2005 10:16 AM CDT

Good Morning everyone,
It is Tiff’s update time. Well, I hope I don’t miss anything today. Keep in mind that I wrote my novel and lost it when Madi walked up and TURNED OFF the computer. OHHHH MY, the simple pleasures in life, right….I need my grapes and cherries on top.

On to our sweet precious Wes. He is so amazing and continues to remind us with every moment how truly Awesome he is. Wes as of last night had not taken ANY pain meds in 2 days. He continues to profess how “normal” he wants his time to be. We all so hope he is not overdoing it. We know for sure ONE THING….he is enjoying it!

We last left off Wesley was receiving platelets on Saturday. That sadly turned out to be more difficult than anticipated. He was at the hospital for about 5 hours. They apparently did not send him the correct type of platelets. They were kind and concerned and took good care of Wesley. He was very groggy from the pre-med required to receive blood products. He so desperately needed that dose. His level was 8 before the transfusion. We thank the Doctors for bringing that needed transfusion in for Wesley.

After his transfusion Wes returned home to spend more time resting with friends and family all around. His reaction seems to be held at a minimum. Angie says that the edema in his legs appears to be worsening, yet he is still walking when he can ….or needs to prove he still can. His abdomen is retaining fluid at a rapid rate again sadly. His comfort level is beginning to be compromised. Yet, if you talk to Wes you would NEVER know it. Angie says his speech is starting to slur a bit. Yet, once again…that Amazing kiddo perseveres through it all. I have spoken with him a few times in the last couple of days and he is still trying to make me smile and giggle. He and Parker spoke for a bit yesterday and those two were still sharing “dreams”…”pipe dreams”. Parker has decided we are moving to Alabama “Dotham”, buying the house next door, building “sick” tunnel underground so Trenton, Parker & Wesley can travel back and forth without going outside and when Parker gets home form school he is going straight to Trenton’s to play. OH MY, those boys are a mess. What will we do without the leader of the Musketeers. God please be with Parker and Trenton, help them understand, help them keep strong to their faith, comfort them, help them find the healing in this journey….Lord, we hold them in your grace as they travel with Wesley.

Oh, wipe the tears and on we go….On Sunday the entire family attended church together minus one important person, Aunt Lisa. She is now stricken with the infamous stomach bug. We pray it spares Wesley and Angie ~ please. So, everyone is at church and when it was announced to the congregation that Wesley was present their ENTIRE church family came to their feet and honored him with a standing ovation. He deserved their praise as well as all of ours. He is God’s work, he is God’s son, He is AMAZING! He is still praying for his miracle and believes he will get it. More than once as Angie and Michael have encouraged him to take it easy he has replied with a comment reminding them he is still fighting, he is here and does not plan on going anywhere. His faith is so strong, it absolutely puts me in awe.

As the day went on Wesley rested and was again surrounded by family and friends. Then later that evening they snuck over to Granmomma’s in the NEW EXPLORER….well new to Wesley. Yes, while Wesley was getting his platelets Uncle Dwayne and Angie finished up the paperwork and bought what he wanted to have. God bless him, he never quits wanting to give. He wanted his Momma to have this vehicle, so like I said…who could argue with him. Granted Angie will be making payment for years to come, but he wanted to make sure his Momma had something she deserved. I will never be able to explain how powerful the bond between Angie and Wesley is. Each would move Heaven and Earth to be with or do something for one another. They are the yen and yang or Mo and Curly however you look at it. We just love them both to death. So, back to the sneak off to Granmomman’s. Well, Wes got to relax in her whirlpool bathtub. He put on his bathing suit and laid back to relax. I am sure it really helped with is edema and circulation. I can tell you first hand it helped his blood pressure.

Hospice has come over the house and they are all set up. He has everything he needs. They are working on getting Trenton set up with a counselor. Today the social worker was supposed to come and talk to Wesley to ease any concerns he has and make sure he get it. Angie had to call and move that appointment to this afternoon because I heard from Mrs. Haynes. YEAH!!!! Today at 10am they are coming over to the house to take some reflective black and white photos of Wesley. We hope they will be able to capture those “Mommy” moments….that dimple, holding hands, brotherly love etc. She was hoping to take some Graduation like photos as well since he will be GRADUATING HIGH SCHOOL TODAY AT 12pm. What a day. He once again is determined to walk across the stage will help of course. On behalf of the family I thank the staff at Dothan High and the school district for allowing Wesley to reach this mile stone in his life. As we said before, he definitely completed all the required life credits. I wish we were all there to see him in his cap and gown receiving his diploma and moving that tassel. He deserves it so very much. After that he will head home for an afternoon of rest. He will need it. We praise God for all the little blessings he has given us.

That is all for today. This evening I will try to update how the exciting day unfolded. Please pray that Wesley’s strength holds up today. Pray he is not in pain, the fluid disappears from his legs and abdomen, his blood pressure is in control, pray he knows when to rest and not push himself too much to make everyone happy and appear “normal” which seems to be so very important to him. Pray Angie and Michael have strength to care for not only Wesley, but sweet Trenton and comfort Amber as well. Give them the wisdom to guide all of their children on this journey and help heal their hearts. I pray for all of Wesley’s supporters to hold him dear to your hearts and keep him on your prayer list. Remember Wesley is still praying for his MIRACLE! God Bless you all for continuing to check on our precious friend.

PS~if anyone has any digital photos of his landing, the welcome home party, moments this week with Wes, Graduation etc. please email them to me at projectparker@sbcglobal.net so we can get them on the site. Unedited if possible please. Thanks. We woulde liek to share these moments with all of Wesley's supporters.

Tiff
Parkers Proud Mommy
Dear Family Friend
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Saturday, August 6, 2005 11:16 AM CDT

Good Morning,
I have so much to share with you all. As I said before you will probably be getting your update through Amber and I for a while. Let me start by saying that yesterday my phone rang several times to these giddy, happy, giggling voices on the other end of the line. Each time it was Angie, Wesley or another happy family member. It was the greatest gift to hear the joy and pure FUN in all their voices. They all seemed to fill the wish of “normal” for a day or so and we are all so happy for them.

When we last left the update…THE EAGLE HAD LANDED! Wesley was home in Sweet home Alabama. All he had dreamed of since leaving in February. As you know they made it home on Wednesday night and Wesley finally got to sleep in his own bed.

Before he could get to the house he had to get through all the balloons, friends & family and long awaited hellos. WTVY (WTVYNEWS4.COM)had been there before Wesley landed and interviewed his Aunt and Uncle, filmed all the well wishers for a story they ran on the 10pm news cast. They added several photos from his online album and even had a sweet one of him and Parker ironically on a day Parker was sick. True to his spirit in the photo, Wesley was taking care of his little buddy. If you would like to view the newscast portion visit their site WWW.WTVYNEWS4.COM, go to the SCHOOLS section, then on the right it will say Featured Videos and you will choose the video titled Wesley Dunchof comes home dated 8-5. I will add the link to his site as soon as I can. We are all better for knowing and having Wesley in our lives. When they got to the house Angie had already delegated duties to everyone and Michael was going to run and get something for everyone to eat. Well, much to her surprise Denise Cape had already taken care of that *wink*. Thanks for being an Angel in their lives. So, with everyone settled in their own beds and tummies full they all settled in for some rest.

On Thursday morning they got up bright and early to begin getting set up with their Doctors in Dothan. It was a bit more difficult than they had anticipated. Wes was really exhausted from the trip and the long day full of waiting rooms and Doctors. He was so tough and brave. He told Angie he didn’t want to take any pain meds so he could stay alert and not miss saying “hello” to anyone. Dr.M had a long talk with everyone and explained how Home Care was the best choice for the entire family. Angie and Wesley’s concern was that he was not going to be able to receive blood products. Dr. M agreed to give his blood as needed outpatient ~ thank you! So, all of you that can give blood please I beg of you to head down to Life South Blood Bank and donated whole blood so it is there for Wesley to use. Ironically, they do not have the equipment for you to donate platelets. So, if Wes needs them they will be brought into Dothan for him. Now, Angie and I have touched briefly in the last few days how God is guiding all of the events in Wesley’s life and bringing him who and what he has needed. Well, he was at work again. Wesley’s Home Care Nurse is Amy Giersburg. The whole family was and is feeling so blessed she will be caring for Wesley. Amy previously worked with
Angie in Labor and Delivery. Then she was the nurse that took care of Amber, Wes’s big sister, as she gave birth to her son Addison. Now she will be caring for Wesley. What a blessing to have a caregiver you KNOW cares for you as a family, patient, friend, and a person. It really helped ease any remaining anxiety they had about Home Care.

After such an eventful day, that evening a Limo pulled outside of the house to pick the family up for Wesley’s Welcome Home party at Dothan High. Mr. Mac and Mrs. C arranged for a fabulous get together in the Band Room. When Wesley got there he didn’t even want the wheel chair to help him in…..HE WALKED!!! Angie and Michael at his side he entered into a room of about 200 friends and students just waiting to say “We missed you”. The kids had a recliner waiting for their king to take his throne and receive his court. Before they got started Mr. Mac led everyone in a beautiful prayer blessing Wesley, the students and all the food. Angie said there was food from everywhere. It was a feast fit for a King ~ our King Wesley! Angie says that Mr. Mac’s castle is his band hall and how honored they were that he opened it up to a party no less, for Wes. Throughout the party, the band of course played and in between in the background they placed soft Praise and Worship music. Wesley stayed alert with a smile on his face so he could talk to everyone. Remember how Angie spoke about Wesley’s new found love for fruit cocktail? Well, he has a great back up supply now. As each loved one came up to hug Wesley, several of them gave him a can of fruit cocktail. There is enough for us all to find the “cherry on top” of our day. Aunt Lisa tried to capture each and every moment on video.

Oh speaking of the food, Angie says …Thank You, Thank You, Thank You!!! She has not had to worry about food since the night they landed. What a burden that has lifted for her and allowed them all to spend more precious time together. The night of his Welcome Home Party the Band Booster club, Ruth Moore, Kim Lee, Susan Trawick, Cricket George and so many others made sure as I said it was a feast for a king. The entire family is so very grateful. The Party also had the handy work of a great man and family friend, Arthur Deese. Mr. Deese is their local Pepsi distributor. Angie said that Pepsi supplied “welcome home” banners. She said they are a walking Pepsi commercial and proud to be drinking all the product that have been donated. If any else would like to help the family out by bringing a meal so they can spend more precious time together please contact me at projectparker@sbcglobal.net or family members Amber or Lisa. I promise you that the meals are so very appreciated and needed.

I am sure after all of that excitement everyone went back to the house and crashed! Again, bright and early Wesley got up on Friday Morning ready to face a new beautiful day. Once again everyone was so happy and giddy on the phone. Hearing Wesley being funny, silly and so full of love on the phone just made my day. It was not the sweet baby boy we put on the plane to go home. Home must be the best medicine. Are you ready for this….HIS GOAL FOR THE DAY WAS TO TAKE ALL THE MONEY HE HAD LEFT FROM FUNDRAISERS AND BUY A CAR!!! Of course all the remaining funds will pay for his remaining care, don’t get me wrong. As they day progressed Angie called so proud because her sweet son wanted to buy her lunch. I’m telling you all that have not been so blessed or had the privilege to have this family in your lives are missing out. Wesley’s remaining time here with us all and he has just done everything he can physically, emotionally and financially for others. HE IS A HERO AND A ROLE MODEL FOR ALL YOUNG MEN OUT THERE! He has had some wonderful role models in his life as well. One of them has spent the last two days chauffeuring he and Angie around town. You guessed it, Uncle Dwayne. If you don’t know by now, he is a mess. He is one of the most compassionate, calm, hilarious, fun people to be around. Did I say easy going, well he is. On the drive home from Houston Wesley’s truck didn’t make it 2 hours before the motor quit AGAIN! So, he had to rent a U-Haul and put the car on a trailer to get it home. He never uttered a cross word. There he was with his Mom and Dad, a petered out truck and still cracking jokes. God love him, he is an Angel.

Wesley has several dreams and wishes you all know before he reaches the end of his journey. Most of you remember the Prom we gave him in Houston in the spring, him meeting Joel Osteen, ride in a lime (we got a Hummer Limo) and to be surrounded by friends and family. Well, we have done all that. There are a few more. He wanted to get his drivers license renewed, fishing and boating license ~ DONE yesterday. Then Mrs. C and I have managed to organize a very special milestone in his life. Wesley Dunchof will be receiving his Honorary High School diploma on Monday. He will have his cap n’ gown …the works. I can’t wait to tell you all about it. He deserves it and has definitely earned enough life credits. We are trying to get a photographer arranged to come take photos at the house if anyone has a connection. If there is anything else you supporters out there can think of please let us know. If there is anyone in Dothan out there that wants to help the family in anyway, groceries, food, mow the yard, PRAY, whatever…just let us know.

Today, Wesley was just as motivated to LIVE as yesterday. He got up and immediately was determined to look at cars again. Angie knew all this excitement was taking it’s tole on Wes. Amber and Lisa took him to the Hospital and his platelets were dangerously low (8). The Dr. on call ordered him in some platelets and he is getting them right now. His pain management has changed from Morphine patches to Methadone every 12 hours. Dr. M said he was not getting any relief from the Morphine because he didn’t have enough body fat (don’t we all wish someone would say that to us) to absorb the medication. So, he felt like the change would be beneficial to Wesley’s pain control. Angie says that last night he fixed a huge plate of food with the best of intentions. He did eat some of it and kept is down. Go Wes! Today Angie and I shed a few tears about Wesley’s AMAZING determination and spirit to beat his disease and not go without a heck of a fight. Wesley WILL prove medical science wrong. He is a miracle and we are all witnessing God at work through Wesley. He is our Witness and we have to forever Witness in his Honor. Through Wes, God is at work in all of our lives. He has forever changed us and I hope you have allowed his greatness in your heart and soul so he, his devotion and faith can do the same for you as well.

That is all I have for today. I will do my best to update as frequently as possible. I encourage you all to sign Wesley’s Guestbook as many times a day as possible. He was on reading this morning. He hears your words and they are keeping him going. He needs to know we are all carrying him on his journey and we will not abandon him. I know the words are hard to find at times, but you can do it….for Wesley.

God Bless all of you reading the updates on Wesley and that are keeping him close you’re your hearts. Please except my gratitude on behalf of the family and Welsey.

On A personal note please continue to pray for God to continue to bless Wesley's life and journey. Please pray Amber, Adam and Trenton all recover quickly from the stomach virus that has sidelined them from spending precious time with their brother. Ask our forgiving and loving Lord to spare Wesley from infection after being surrounded by so many loved ones. Pray our Loving God continues to hold Angie’s hand has she walks through this journey with her son. Pray Wesley continues to feel so fulfilled and blessed. Pry he continues to be the miracle medical science can not take credit for. I pray for you all strength and compassion as we travel on this journey with Wesley and his family. Again, thank you for following and sharing Wesley's story. By sharing the stories of brave fighters like Wes, his determination and dedication to help us PUT CANCER OUT OF BUSINESS their FIGHT will NEVER die. Thank you and God Bless.

Tiffany Hays
Parkers Proud Mommy and Family Friend

Wednesday, August 3, 2005 5:28 PM CDT

Wednesday, August3, 2005

THE EAGLE HAS LANDED...WESLEY IS HOME

Just a quick update. Today around 1pm we put our dear friends on a plant to Dothan. It was so joyous and so difficult. We all held hands in a prayer circle around his wheelchair and prayed for safe travels. You could hear all of our tears hitting the ground like huge raindrops. After hugs, good byes, more hugs and tears they finally took off....Bama Bound!

Speaking of raindrops, on our way back to RMH the clouds were clear and the sky was beautiful yet God was crying with us as Tears from Heaven showered for just a minute. I know HE is always with Wesley and with all of us right now. Then Angie called to tell me they had to stop and land in Mobile because of bad weather in Dothan. Wesley was not feeling well, so it was a deserved break. He was able to get out and rest a while. A few hours later my phone rang again....sweet Angie with a cracking voice "WE'RE HOME". Then we all got a little chuckle as Angie blurted..."Is that a new Checkers" (restaurant)? She is rediscovering Dothan and it was adorable. Life is full of so many simple pleasures. When they landed the runway was full of loved ones just waiting to get their hands on the Home Town Hero.

After watching our Hero's plane take off Uncle Dwayne, Granmomma & Grandaddy, Brandin, Myself, Parker & Madi headed to Denny's for a quick lunch. We all shared stories and enjoyed one anthers company before finishing our drive back to RMH. Parker and I headed to MD Anderson and the guys loaded, and I mean LOADED Wesley's truck down. Remember they have been in Texas for 6 months. Granmomma was sardines with a smile on her face back in the jump seat. So, off they went for the 700 miles home.

Thank you to all that have and will continue to pray for our dear friends. They are so worthy and so wonderful. Thank you to all that are preparing meals for them so they can spend more time as a family and not waste one second apart. I know Angie, Michael, Amber, Wesley, Trenton, The Spur locks and the Adams Families all appreciate your kindness and generosity. God Bless.

I know Amber and Angie will update as soon as they can. They will all be focusing on Wesley and this precious time they have together. Please pray for this brave and amazing family. Wesley, we all love you so much. As Parker told you...you left today with a piece of our hearts.

Family Friend,
Tiffany Hays
Parkers Proud Mommy

Tuesday, August 2, 2005 11:30 PM - the latest updates follow this letter

Dearest Friends and Family,

This is by far the most difficult update for me to write. For of those of you who have not heard, we have our bags packed and will be heading back to “Sweet Home Alabama” tomorrow. Dr. G. came in today with the entire “team” to discuss Wesley’s condition and was totally honest with both of us. With tears and a quivering voice, Wesley asked him if there was ANYTHING else he could offer him. After he received his answer he politely thanked Dr G. and everyone else for everything they had done for him. We have had a revolving door all day today and the phones have range incessantly. We have said more “good-byes” in one day than we have in a year. This is not the way we planned on returning home but Wesley is so excited about seeing everyone, being at home and sleeping in his own bed.

We would like to thank the Doctors and medical staff of MD Anderson, RMH, FOA, Sage Mt. Church and all the awesome families we have met here while here in Houston.
As always, we can never express our gratitude for the faithful and unceasing prayers of each and everyone of you. Please continue praying for Wesley and our family.Today’s special thanks is to Dr. Wilkes Robinson, who on a minutes notice made arrangements to fly his personal plane out to Houston to pick us up and bring us HOME. How can I ever repay this selfless and caring act of kindness from such a dear friend?

Speaking of dear friends, God knew what he was doing in his arrangement of Parker’s schedule. He brought my life long friend here at the time I needed her the most. Tiff has truly become a part of our family—Wesley’s “fill in” sister. She and Wesley have had several long talks (still both of them picking and joking at each other). She will be waving us off tomorrow as we head to the sky on our way home. Kimberly, Wesley's sweet tea making nurse and my wee hours of the morning prayer partner, has offered to drive us to the airport. We will always be grateful, that God placed her in MD Anderson, on the 11th floor to be a blessing to both Wesley and myself. I don’t look forward to these good-byes tomorrow.

Wesley will still be requiring massive amounts of blood and platelets daily. If you really would like to do something to help Wesley, please consider hosting a drive or dropping into Life South to donate.

We are both extremely tired. We would love to visit with all of you that we have missed so much but we will be in need of rest. There is a “Welcome Home Party” planned for Wesley Thursday night in the Dothan High School band room. Please pray that Wesley has the strength and ability to attend. I am unsure of the time but if someone that knows the details would you please sign his guest book with the info. So everyone can join in our celebration of life. This is a party for prayer partners and positive thinkers. Wesley really wants to pick up the pieces and return to his normal life. If you are unable to wish him well in person, please sign his guest book with your support.

My heart remains very heavy. Wesley caught me with tears streaming down my face today and said “Don’t be sad Momma; it has always been in God’s hands.” My baby has such faith and courage. I honestly don’t know what I ever did to deserve a son so amazing.
Just to leave you tonight on a “lighter side”. Wesley has been eating fruit cocktail like it is going out of style. The only thing is that he only eats the grapes and the cherries. We go through can after can picking these pieces out. Some cans may only have two or three grapes and fewer cherries and the rest is wasted. After his talk today with Dr. G, when he finally had pulled himself together, he wanted some fruit cocktail. I kid you not, when I opened the can the entire top was filled with grapes and cherries. Thank you God for the grapes and cherries when we really needed them!!!

Love to All,

Angie and Bama Bound Wesley

Please pray a safe flight for us and safety in travel for Uncle Dwayne, Grandmother and Granddaddy--as they drive home with all our stuff.
****************************************************************************************
Wednesday, August3, 2005

THE EAGLE HAS LANDED...WESLEY IS HOME

Just a quick update. Today around 1pm we put our dear friends on a plant to Dothan. It was so joyous and so difficult. We all held hands in a prayer circle around his wheelchair and prayed for safe travels. You could hear all of our tears hitting the ground like huge raindrops. After hugs, good byes, more hugs and tears they finally took off....Bama Bound!

Speaking of raindrops, on our way back to RMH the clouds were clear and the sky was beautiful yet God was crying with us as Tears from Heaven showered for just a minute. I know HE is always with Wesley and with all of us right now. Then Angie called to tell me they had to stop and land in Mobile because of bad weather in Dothan. Wesley was not feeling well, so it was a deserved break. He was able to get out and rest a while. A few hours later my phone rang again....sweet Angie with a cracking voice "WE'RE HOME". Then we all got a little chuckle as Angie blurted..."Is that a new Checkers" (restaurant)? She is rediscovering Dothan and it was adorable. Life is full of so many simple pleasures. When they landed the runway was full of loved ones just waiting to get their hands on the Home Town Hero.

After watching our Hero's plane take off Uncle Dwayne, Granmomma & Grandaddy, Brandin, Myself, Parker & Madi headed to Denny's for a quick lunch. We all shared stories and enjoyed one anthers company before finishing our drive back to RMH. Parker and I headed to MD Anderson and the guys loaded, and I mean LOADED Wesley's truck down. Remember they have been in Texas for 6 months. Granmomma was sardines with a smile on her face back in the jump seat. So, off they went for the 700 miles home.

Thank you to all that have and will continue to pray for our dear friends. They are so worthy and so wonderful. Thank you to all that are preparing meals for them so they can spend more time as a family and not waste one second apart. I know Angie, Michael, Amber, Wesley, Trenton, The Spur locks and the Adams Families all appreciate your kindness and generosity. God Bless.

I know Amber and Angie will update as soon as they can. They will all be focusing on Wesley and this precious time they have together. Please pray for this brave and amazing family. Wesley, we all love you so much. As Parker told you...you left today with a piece of our hearts.

Family Friend,
Tiffany Hays
Parkers Proud Mommy

Tuesday, August 2, 2005 11:30 PM

Sunday, July 31, 2005 9:53 PM CDT

Dear Everyone,

I’m not really up for updating tonight. They have decided to go ahead and do the aspiration (draining fluid from his abdomen) in the morning. This will be done in radiation dept under ultrasound. Please pray he tolerates yet another procedure without complications or discomfort. Nothing else has really changed much. Please allow me to share with you a devotion that God led me to tonight. Just what I needed! Hope it will bless you as it did me.

Our Love,

Angie and “Safe in the storm” Wesley

A Lesson About Storms

The crises of life have often been compared to stormy seas. They come upon us whether we like it or not. They terrify us. They knock us around and threaten to destroy all our stability and security. We don’t know whether we can survive them. And we don’t know how long they will last. At least, that’s how a storm at sea would be for most of us. For Jesus, it was just a chance to grab 40 winks.
As Mark tells the story, the disciples were terrified that the boat was going to break up and everyone would die. But Jesus was asleep (on a cushion no less, Mark notes, adding to the contrast between Jesus’ tranquility and the disciples’ panic), apparently oblivious to their pending doom. They roust him and cry, "Teacher, don’t you care if we drown?" (v. 38). Of course, Jesus quiets the storm with a word, but then he chides the disciples: "Why are you so afraid? Do you still have no faith?" (v. 40).
Some of the lessons in the story are obvious. Jesus has power over the storms of life, experiences them alongside us, loves us, saves us from them and wants us to trust him more than we do.
Let’s look at a lesson that might not be so obvious. Storms don’t worry Jesus. He’s right there with us during them, but he’s perfectly calm about them. He isn’t terrified; he isn’t impatient; he isn’t worried. In fact, he’s so calm, he’s asleep. To us, he seems to be asleep at the switch. We wonder why on earth he doesn’t get up and do something. We start to wonder whether he even knows the trouble we’re in. Whether he cares. Whether he even can do anything about it. Whether he’s really all he’s cracked up to be.
Like the disciples, we believe he’s there. In the disciples’ case, they could actually see him lying there asleep. We don’t have that luxury. We believe he’s there, but most of the time he seems just as asleep as he was during the storm that day on the Sea of Galilee. The psalmist had the same lament in Psalm 44:23-24: "Awake, O Lord! Why do you sleep? Rouse yourself! Do not reject us forever. Why do you hide your face and forget our misery and oppression?"
Maybe that’s why Mark included this story. The not-so-obvious lesson is that Jesus was just as much in control, and the disciples were just as safe in his hands, while he was asleep as while he was awake. Most of the time, life seems like a relentless voyage from one storm to the next. At least it does for me, and I expect it’s the same for you. One thing I’ve learned about myself is that during storms I’m usually a scared rabbit just like Jesus’ disciples were.
But I’m also learning that I can take heart in knowing that Jesus isn’t scared, and he isn’t depressed. He might be asleep, or he might not be, but either way, like the song says, "He’s got the whole world in his hands." Even if he doesn’t wake up and quiet the storm, I’m safe with him. And if he does wake up and quiet the storm, he’s probably going to say: "Why are you so afraid? Do you still have no faith?"
And I can live with that.

Mike Feazell

Wesley's favorite song. "The Anchor Holds" Oh, how true for us.

Saturday, July 30, 2005 9:30 PM CDT

Dear Everyone,

I realize that I’ve left you hanging as to where we go from here. They are waiting until all the results are in from the bone marrow biopsy before they develop another plan (? chemo.) The transplant team will be consulting again with Dr. R. (leukemia Dr.—not transplant Dr.) So we wait to see what this final report says. Hopefully, by the first of next week. As for right now, they have decreased his steroids in hopes now to increase the GVHD. This in return will worsen his stomach symptoms but possibly fight his remaining disease. The last few days have been increasingly difficult for Wesley... Since Thursday, he has awoken with severe belly cramping, vomiting and “migraine quality” headaches.

He had a CT of the head today to investigate the cause of these headaches. The pain is at times unbearable for him, as a result he’s back on regular doses of dilaudid to relieve the discomfort. So he’s sleeping a lot and eating practically nothing. Because of these headaches, he wants the room completely dark—making it hard for me to read. He also wants it completely quiet—so I watch television and try to read lips. Most of the time I just sit in the stillness with my thoughts and concentrate on not crying or sniffling too loud. The minutes and hours seem to crawl by, and everything is accentuated by the beeping of pumps and timed V/S and meds. Sometimes I feel like I need a place to go (somewhere isolated) to “fall apart”, to scream, and just to be alone with God. When I become totally distraught and think that I can’t bear anymore heartache, someone is always there to remind me that our wonderful Father is in control. Whether it be family members, friends, doctors, nurses, ministers, or people that we have never met and may never meet that follow Wesley’s site…You all lift me up! Next week I am going to try to attend a parent’s support group, to process all that we’ve been through. Actually, a friend had recommended that I do this right when we got to Houston, but it was one of the things I just didn’t have time or take time) to do in all the flurry of craziness.

His B/P is still uncontrolled despite changing medications, dosages and frequency daily. The steroids can cause this so hopefully with the dosage of steroids being reduced his B/P will return to a normal range. Another issue is the ascites (fluid in abdomen). You can actually see and feel the fluid move when you press down even slightly. I wrote in the last update that they were going to drain some of this fluid off but when the results of the CT of his abdomen came back, it showed that his liver and spleen were enlarged. They really did not want to take the risk of damaging these organs, infection or bleeding unless absolutely necessary. Please keep Wesley lifted up in prayer as he faces one hurdle after another.

Today we had to say another emotionally difficult good bye. Uncle Dwayne left this afternoon after giving platelets the maximum times. While he was giving platelets today, he said that he started tingling all around his mouth. (Caused from Calcium being pulled from the blood) He waved down the tech and said “Hey, what’s going on with my mouth?” They offered him two Tums. Confused, he said “No, it’s my mouth not my stomach”. (Tums to replace the calcium) During each of his visits with Wesley, they talked about motors and customizing trucks. Each time they clicked on a website I heard “ching-ching”. He came to the hospital this morning before going to the blood bank to spend some time with Wesley and try to encourage him. He encouraged him to try to get out of bed, walk more and to try harder to eat. He told Wesley that most people say “eat only when you get hungry” but his philosophy is “eat to keep from getting hungry”. Wesley did laugh a little bit but for the most part, he has just felt pretty miserable during Uncle Dwayne’s visit.

Speaking of platelets, Wesley has had to have two platelet transfusions yesterday and his platelets were low again today. He received another transfusion this morning. His hemoglobin holds fairly stable. He requires blood approximately every three days.
I can’t say enough thanks to all the blood and platelet donors out there.

Thanks again for hanging in here with these updates. The more I hear of how many of you are reading, the more anxious I get about updating. But if one prayer is offered up from each person who logs on, then every word is worthwhile. It’s also like therapy for me so that we never forget the feelings and emotions we’ve experienced, the support and prayers from you and God’s awesome grace that has been ever present through this journey.

We also want to thank you for your prayers and words of encouragement. We are by NO means giving in or giving up!! He once again promised Uncle Dwayne today that he would keep fighting and keep the faith. Wesley has so much spirit, so much life and so much love left to give—anything else is inconceivable.

Prayer requests for tonight are for the doctors to know the appropriate plan to control Wesley’s disease and for him to have comfort and peace tonight and that tomorrow will be better. Also pray for Wesley’s ultimate healing.

Will write more when we know more.

Love Always,

Angie and Trusting Wesley

Thursday, July 28, 2005 11:31 AM CDT

Dearest Friends and Family,

Very brief update today. Wesley has a lot of fluid in his abdomen. (ascites) He had a CT scan this morning to check for live involvement. Tomorrow they will be going into his abdomen with a needle to drain the fluid.

Bone marrow results showed 17 percent blast cells. I cried. Wesley told me to come get in the bed with him and once again he comforted me. He said “Momma it could be wrong we just have to keep trusting God.” PLEASE, PLEASE PRAY-they are not sure what to do next.

That’s all for the update today, my heart is aching.

With love,

Angie and totally in God’s hands Wesley

This is a prayer in poetry that I wrote for Wesley when he was first diagnosed and it is still my prayer today.

Dear God, My God
please stay near.
Walk with me daily
through this valley of fear.

You gave me Wesley
only a short time ago.
I love him so much
as I'm sure you know.

I can't understand
I'll never know why
You were willing to give
your son to die.

The love you showed
can't ever be measured
to give the son
you loved and treasured.

I'm so unworthy
to ask anything of you.
But God you know,
you've been here too.

Dear God, I'm begging.
I'm down on my knees.
Stay close by my family
and help Wesley. PLEASE.

Love,
Wesley's Momma

Just tonight I wrote another prayer I'd like to share with you. (please forgive the simplicity)

Dear God, My God. It's me again
asking for your healing power.
We need your touch and your strength.
We need YOU in every hour.

Even though we've grown so weary,
on this journey that seems unsure.
It's in your arms we find our rest
and the strength we need to endure.

We praise you Dear God for holding us close.
You've met our every need.
Help us continue to keep the faith
as a grain of a mustard seed.

We don't know what tomorrow holds.
It could be better or could be worse.
But, God, we know-it's in your hands.
The God of the universe.

Love,

Wesley's Momma

Wednesday, July 26, 2005 11:19 PM CDT

Dear Everyone,

Today is day +47, almost half way to the much awaited day 100. Wesley’s nausea and vomiting have been controlled these past few days with the assistance of Zofran around the clock. Tomorrow they are discontinuing the scheduled doses and he will be getting it only when he needs it. We’re praying he want need it often so we can began to look forward to discharge “second time around”.

His primary complaint now is the ever present fatigue but he has many intermittent complaints. Last night he went for a SHORT walk around the unit. Before he could make it back to the room, he was having severe chest pain. More pain than I have seen him in for a while. The attending doctor came in to assess him and ordered a STAT EKG. The EKG revealed that he had a right bundle branch block. Sounds scary but she said that this shows up sometimes in perfectly healthy people. I still would have preferred Normal Sinus Rhythm (normal EKG).

Usually later in the afternoons, he experiences leg cramping and foot pain. More than likely from the bone marrow working hard to produce new cells. I use my Lamaze skills (for those of you who didn’t know that I am a Lamaze educator) to try to ease some of this discomfort. Practically every night, I’ll play my soothing music, dim the lights and massage his legs and feet until he falls off to sleep. The nurses have begun to form a line outside the door for their massage. If they help my precious boy, I’ll massage till my hands exhaust.

The doctors (and my) main concern now is Wesley’s B/P. 160/120 at times. It has “skyrocketed”! That might be appropriate for Houston—home of the Space Center, but it is nothing that we want for Wesley. They have changed B/P medications almost everyday hoping to find one to keep it in a safe range. All the B/P meds are also contributing to his fatigue. Everything seems interconnected.

His follow up bone marrow biopsy and aspiration is scheduled for tomorrow morning. He now request sedation by anesthesia with this. (Something we were told when he was outpatient that he couldn’t have) Makes for a lot easier procedure for him and the practioner. They allow me to hold his hand during the biopsy. It is extremely difficult to watch and I can only imagine how painful it is. Please pray for no complications with the test and most of all NO BLAST CELLS. I will be sitting on pins and needles (again) until the results are in.

Wesley’s grandparents have settled in and have met and made several friends. Granddaddy likes to hang out in front of the TV while Grandmother is busy at what she does best-washing, vacuuming, dusting… I know a lot of you are waiting for some Uncle Dwayne stories. The truth is- I’ve not been able to spend much time with him. He has been taking shifts sitting with Wes to give me some time to rest. We tag team in front of MDA much like Michael and I did—except for the kiss. Although, I do get a hug from time to time. OK, I just remembered an Uncle Dwayne story. A couple of nights ago he thought that he might just walk to MDA instead of driving. We were sitting in a group of other RMH guest and I asked him if he knew how to walk. (Meaning if he knew the route) He replied with “Yea, I’ve been doing it since I was a one year old. Anyway it got a laugh from everyone. All kidding aside, today he bravely rolled up his sleeves and gave platelets for Wesley. What better gift? Wesley will be receiving them tomorrow. So by tomorrow night maybe Wesley will be cracking jokes. I think Uncle Dwayne is being very cautious in what he says and does for fear it might end up in the updates. Stay tuned, I’ll catch him when he least expects it.

I know that I have requested prayer for many people, but if you have room on your prayer list please add one more. His name is Anthony Ford. His parents, Michael and Robin, were actually stationed in Fort Rucker, Al for four years. They have just moved into the RMH today. His caringbridge address is caringbridge.org/mn/atford. If you get a chance maybe you can drop him a line and let him know you are thinking and praying for him and his dear family.

If I haven’t told you lately, we so appreciate your love, support and prayers for Wesley and our family. Sincerely, your words of encouragement keep Wesley going.

Love to All,

Angie and “Hanging in There” Wesley

Saturday, July 23, 2005 10:50 PM CDT

Dear Everyone,

Can you believe that I am updating two nights in a row? Actually, I am lying on the cot in a pitch dark room (due to Wesley having a severe headache) bored stiff and this computer is sitting on the table starring at me saying "go ahead update again-you're not sure when you will get another chance".

Wesley has not felt very well (still generalized weakness, nausea, vomiting and the “D” word) and has been sleeping most of the day. He has talked to Jessica for only a few minutes-sure sign that he’s not feeling up to par. Last week, he entered the phase of the “radiation blahs”, which they told us to expect around 5-6 weeks post transplant. Right on schedule-Wesley was wanting to sleep almost all the time and began having a tough time emotionally, as well, with pretty extreme highs and lows. One morning I heard a quiet sniffling as he lay with his back to me. When I walked to the other side of the bed, I saw the tears flowing down his cheeks. You have to understand how incredibly strong Wesley has been through this. He has cried very few times (that I know of). I sat on the edge of his bed to brush the tears away and asked him what was on his mind right then. He said, “Momma, I just want to go home” then he said “No, I NEED to go home.” My heart was in my throat. He wasn’t saying anything unreasonable because I have felt the same way myself. Knowing that the George’s (Jessica's family)was coming in that day for a surprise visit, I asked him if it helped any to have visitors from home. He replied, “They just stay for a little while and then it is so hard to see them leave.” I tried to explain that even though he is ready to go home that we have to be sure that he is ready physically. It wrenches my heart, though, to see how all this craziness is tearing him apart. His meltdowns are sure warranted. (I have at least 3 a day). So, one of my main challenges these days is keeping Wesley’s spirits up. Hurry up Uncle Dwayne.

Speaking of Uncle Dwayne, he, Grandmother and Granddaddy are leaving early Sunday morning for that (becoming all too familiar) long ride to Houston. Please pray for their safety in travel. Uncle Dwayne will be staying for a week, I believe, and Grandmother and Granddaddy are staying as long as I need them. Sorry, friends of theirs, it could be a while. There is a soothing comfort in knowing that there is someone actually here in Houston with us. Hopefully, I will be able to have time the to give platelets. I’ve been declined the last two times I’ve tried to donate due to low iron, despite my attempts to eat the right foods and take vitamins to “get accepted”. It’s so frustrating-I REALLY want and feel like I need to do this. (I’m not anemic-just barely below the threshold for donating-but it’s a great excuse for my always being tired!) Tiffany and Parker also are supposed to be here Wednesday or Thursday. Hopefully we will have some time to “catch up”. Their life has been just as busy as ours lately.

On the medical aspect, it didn’t take long for Wesley’s bare IV pole to be weighted down with 12 bags of meds. These include IV fluids, antibiotics, antifungals, Acyclovir (antiviral) Foscarnate (pro: another antiviral that prevents CMV-a virus that can cause serious complications—con: it can really beat up on the kidneys), Prograf (antirejection) and steroids, steroids and more steroids. Add to that his “as needed” platelets and blood. And just today he has been started on TPN – liquid nutrition- through his central line because of his inability to eat and his weight and muscle loss (pro: increase calories and improve nutritional status—con: increases risk of infection, elevates blood glucose levels and can encourage dependence on assisted feedings). But for now the pros outweigh the cons. So here goes bag number 13 up. The Hawaiian punch is gone now and we now have yellow lemonade with occasional pink lemonade. If you are lost reading this—read back over the last 4 to 5 updates. So glad that is behind us (knock on wood). And for now we are hanging out solely at MD Anderson waiting and praying that these meds do their stuff.

Michael and Trenton made it home safe and sound. We are trying to adjust to not seeing them daily but I have talked with them at least 20 times on the phone since they have been gone. It’s probably a more difficult adjustment for Michael than me, returning home and having to make arrangements for someone to keep Trenton while he works-not to mention getting him ready to start school (school supplies, school clothes, haircuts, dentist appointments). He will be getting MUCH needed assistance from Granny Adams and Aunt Lisa. Thank you both in advance!!

As I conclude this update I’d like to ask you to join us in remembering the following friends in your prayers:

Neal Sinn-home now in Dallas
Parker Hays-appointments and treatments next week at MDA
Aveva Motro-18 yo admitted with relapse after 1st bone
marrow transplant
Graden Gaines-14 yo in ICU
The Pella Family-lost their son this week
The RMH family sent home with daughter after exhausting all
treatments options
Marla Drummond-returning soon for chemo. treatments
Terri Combs- recovering post transplant
Aubrielle-recovering post bilateral lung transplant
Brandon-18 yo with relapse of leukemia in spinal canal and
brain 10 years post transplant
Wesley’s doctors and nurses who never give up and always
give hope.
Our immediate and extended family who feel the pain of this
disease along with us
My sweet Wesley for strength and healing
And so, so many more….

Thanks everyone for your faithfulness, we really do feel your love and prayers.

Much Love,

Angie and Striving Wesley

Friday, July 22, 2005 9:46 PM CDT

Dear Everyone,

I so apologize for taking this long to write this update. This last week has been another hectic week. I just never had the time (or energy) to write. It has been a week of major ups and downs. Thank you, Amber and Tiffany for filling in the gap.

Wesley was released from the hospital this past Monday. I spent all day Monday sanitizing, vacuuming, washing and dusting. We left the hospital and became a one-room family of four at the RMH. These few days have been exhilarating and exhausting at the same time. We had to look differently at this big bad world of germs, after living in Wesley’s safe sanitized hospital cocoon room for more than a month. We washed our hands about a thousand times during these last few days, and my knuckles have now finally said “I give”. Yes, cracked and stinging. No big deal in the scheme of things. Just something to remember fondly in the future. But I was so delighted to have us all together under one roof.

Tuesday (12 hrs.) and Wednesday (8 hrs), Michael went to clinic with Wesley so that I could spend time with Trenton before they head back to Alabama. They left for home Thursday morning after dropping Wesley and I off for the outpatient (we thought) day ahead. Wesley had been extremely nauseated and vomiting Wednesday night and was unable to keep down his (many) pm medications. So we were not too surprised when we were told he was going to be admitted again. He is pretty wiped out-generally doesn’t feel real great and can’t keep anything down (food, liquids or medications). I guess this is just more of the unknown stuff that follows BMT. The team of doctors and nurses on rounds think that it’s just the GVHD (Graft vs Host Disease) that is the culprit. If so, hopefully just a brief flare up and it will go away. They are hopeful that with the mega-steroids he is on, it will arrest this nausea and vomiting he is experiencing. We’re not nail biting on this rather; we’re just feeling blessed because we have been told repeatedly that a little GVHD is actually good to get rid of any remaining blast cells. Mostly, Wesley is just bummed to be back in the hospital and hooked back on IV fluids with beeping IMEDs. We have been spoiled by the brief time of freedom. I told someone at RMH “I’m ready to get off the roller coaster now. Can we get off, just for awhile?”

For you count watchers, his counts are staying “up there”, but do still bounce up and down a bit. His WBC’s range from 1.5-3.0 (below normal range-but WAY higher than he has had in a while!!) His Hgb is fairly stable but he still gets blood every 3-4 days. His platelets are always below normal. He continues to get “gallons” of platelets. He has a repeat bone marrow biopsy Wednesday. PRAY, PRAY, PRAY!

His appearance is a bit different. Wesley has the look of a somber, dark eyed, boy who has had some of his best days taken away. His belly is pretty big (from fluid in his abdomen), face is quite full (from the steroids), his legs and arms are very thin. I think he’s almost unrecognizable as the same boy who went into BMT. His sweet, loving personality is the same as always, maybe even more wonderful than ever. Except for the occasional steroid “burst” (You cancer parents know what I’m talking about). But for someone who is mostly confined to four walls, he’s taking this all in stride. The visit from Jessica and her family did soooo much to lift his spirits.

This has been a very emotional week as well. So many children that we have grown to love are losing their fight. Families are being sent home to just enjoy the remaining days with their precious children. I was in the laundry room Wednesday with a Spanish speaking mother and a mother that was bilingual. As we began telling our own stories and talking about other families who are “hanging on” by a thread, we ended up all three in tears and giving sympathy hugs. It was one of those talking-crying moments.
Tears, love and hugs are the same in every language. Of course, that started waterworks for me that continued on and off throughout the remainder of the week.

Today, again I was abruptly reminded that we are not in this alone, and that this is serious business—this leukemia. As I bounded up to our next door neighbors at RMH (a family whose 18 year old son, Jeno, was day +60 post transplant) and brightly asked them how their son was doing. The mother quietly looked down, shook her head and told me that he had passed away early Wednesday morning. I was struck like a thunderbolt-- and told them our thoughts and prayers are with them. This was quite the reminder that we never know what awaits us each day during this journey.

I have been so focused on our own lives, our own counts and our own results that I didn’t even realize what was going on around me. Seeing this family coming and going- doing the job that we all do…doing everything in our power for our children. I can’t even describe how hard it has hit me. And now seeing them today gathering their belongings, receiving words of condolences, intermittently wiping tears from their cheeks and attending to the details of what comes next.

We’ve been so hopeful this past week, that I had pushed away even the possibility of death after BMT, as if it is THE CURE for anyone who has the procedure. This has brought death so close to home. But I am firm in my mind that every case is different. That Wesley’s case is different, that he is doing as well as anyone could imagine at this point. So I’m pretty sure that I am keeping this separate in my mind. I am determined to think this way even if it means that I am denying other possible outcomes. I only have enough energy to believe one way for Wesley. But my heart aches for this family and for all the families who have lost the fight.

Those of us that are still fighting have no promises. One step at a time and for each of us, the next step is different. For us, that means getting Wesley stabilized and out of the hospital again (for good? Dare we hope?) In the meantime, we will remember our neighbor, who fought hard and died with the love and devotion of his parents and his sister surrounding him. I pray for his family who stood by his side every moment as they face this difficult time. Please also keep them in your prayers, and us, and the other families going through this.

Lastly, I know these updates are to keep you posted on Wesley’s progress, but I have to tell you……Trenton has grown (both physically and emotionally) so much over the summer. He has made friends with people all over the world. Everyone says that they will miss seeing his smiling face everyday. No one more than me!! He made so many arts and craft thingies and left them here to “remind me of him”. Spending time with Michael and Trenton was like therapy for me. Even though I will be talking to them daily—there’s no way a phone call can replace cuddles, giggles, hugs and kisses. My heart was hurting so badly when I saw them drive away. I really do miss them a lot.

So that’s the news from here—two steps forward, one step back. There is so much that I really wanted to share with you all but it will have to wait for another update. Wesley is asleep right now and I am tired also. I will sincerely try harder to muster up the energy and spirits to keep you updated more frequently. Once again, please forgive me for taking “time off”.

As always, please continue to remember Wesley and our family in your prayers.

Love and prayers from here (with plenty of tears thrown in between),

Angie and “Yarping” Wesley

Friday, July 22, 2005 5:35 AM CDT

With a heavy heart and scabbed knees (prayers) I have to tell you all that Wesley's outpatient stay was very short lived. Angie called today to tell me he was waiting for a room on the 10th floor. We don't know all the detial yet. It seems to be potential of dehydration, GVHD, vomitting, inability to take oral meds and Pain management. As soon as we know more I promise Angie or I ...or sweet Amber will let you all know. For now please keep Wesley high on your prayer list. My knees are scabbing. We all love sweet Wesley so very much and he really needs all of our support and encouragement. Please let everyone know he could use some inspirations messages in his guestbook and to remind him just how many people all over the country are praying for his full recovery.

God Bless,
Tiffany Parkers Proud Mommy....Wesley and Angies heartbroken friend

Tuesday, July 19, 2005 5:31 PM CDT

***OK ALREADY.....TELL EVERYONE YOU'VE BEEN SPRUNG***

The suspense was killing me...Wesley is out...free....released...wwwooo hhhooo!

I know Angie will update when she has a moment and her computer is behaving. For now I get to atleast share the wonderul news that Wesley is back at Ronald McDonald House. He will be in clinic everyday for a while. Please pray he stays healthy and no"bugs" come his way. Angie will be using a special kitchen for the transplant patients and Wes will be staying in his room most of the time. But, he is "home" now we just work on "SWEET HOME ALABAMA" by his birthday. We only have about 2 months. Start pounding those doors in Heaven with pray. For today my friends prayers have been answered.

Tiff
Parkers Proud Mommy

They are in room 23 at RMH

Tuesday, July 19, 2005 5:31 PM CDT

[center][font face=comic sans ms color=red size=5][b]OK ALREADY.....TELL EVERYONE YOU'VE BEEN SPRUNG[/b][/font][/center]

[center][font face=comic sans ms color=black size=4][b]The suspense was killing me...Wesley is out...free....released...wwwooo hhhooo![/b][/font][/center]

[font face=verdana color=white size=3]I know Angie will update when she has a moment and her computer is behaving. For now I get to atleast share the wonderul news that Wesley is back at Ronald McDonald House. He will be in clinic everyday for a while. Please pray he stays healthy and no"bugs" come his way. Angie will be using a special kitchen for the transplant patients and Wes will be staying in his room most of the time. But, he is "home" now we just work on "SWEET HOME ALABAMA" by his birthday. We only have about 2 months. Start pounding those doors in Heaven with pray. For today my friends prayers have been answered.

Tiff
Parkers Proud Mommy[/font]

[font face=verdana color=red size=3][center]They are in room 23 at RMH[/center][/font]

Thursday, July 14, 2005 7:47 PM CDT

Hi everyone,

This is Amber once again. We are truly sorry that we haven’t updated in several days. I know many of you read every couple of days. Actually, Momma spent a while yesterday writing and just as she was about to post it her computer quit. They have had it fixed several times, but it still continues to give problems. I know how frustrating that must be, so I offered to do it for her tonight. Please bare with me…I’m not an author.

We have a bit of good news! I believe Momma had mentioned that Wesley had not been walking as much as he needed to. The prayers and many words of encouragement that Wesley has received have motivated him to get up more. He has walked at least once a day and sometimes two times. Yeah Wesley! We knew he could do it.

Also he wasn’t eating as well as he should, but again with all the support his appetite is slowly increasing. He told me today he’s had a Capri-Sun’s, an icee, 2 bowls of cereal, a half of a cheese burger and some Jell-O! Just 2 weeks ago when I was there he was only drinking a couple of sips of liquid. I am so proud of him!

Wesley had a bone marrow biopsy Tuesday. He was sedated while it was being done so he didn’t feel any pain. He’s still a little tender now though. The doctor came in yesterday morning and told them that there were 6last cells in the bone marrow. From my understanding the doctor told them not to worry. He plans for that percent to go down. In fact, he said they sometimes they see 3 to 5nyway. They will do another biopsy in 1 month so please pray the blast cells have disappeared by then.

Tuesday was a busy day for Wesley. On top of having his bond marrow biopsy, he had a colonoscopy and bronchoscopy. The GI doctor said everything looked pretty good. He thought that Wesley might have a little GVHD. GVHD is the graft vs host disease, which is a sign of rejection. They want to see a little of this in patients to let them know the transplant is working. Again, nothing to really worry about. They are giving him steroids to treat it.

On a lighter note, Wesley got quite a surprise yesterday. It was a pretty easy day, not much going on when the nurse came in and told Wesley he had a visitor. He sat up in bed having no idea who it was. In walked this person dressed in the duck suit as we call it and tons of balloons in front of their face. Who was it? It was Jessica, Wesley’s girlfriend. Her family decided to take a vacation before school started back. What a nice surprise for Wesley. They will stay to Sunday. Maybe Jessica can motivate Wesley even more and he can get out of the hospital next week.

Grandmother, Granddaddy, and Uncle Dwayne will be making another trip to Texas the end of the month. Uncle Dwayne will only stay a week but you know how much the grandparents love it out there. They will be staying for a while. I know Momma will be glad to see them because Michael and Trenton are coming home this weekend. They are lots of help while they are there. When they go they are taking Wesley’s truck.

I don’t want to take the attention off of Wesley for a minute, but I thought this might be a good way to announce some news of my own for the people who know me. My mother is going to have another grandchild. Yeah, I’m expecting again. My due date is February 26. Addison will almost be 2 years old. I told Momma not to expect anymore from me though. I think two kids is going to be just right for me!

Last but certainly not least, we want to say a big thank you to Sam Cochran for organizing a car wash and a baseball game to raise money for Wesley. They held a car wash at Golden Corral in Dothan last Saturday and then the same boys who washed cars for four hours went to play a baseball game against Ariton. Over all they raised $1,000 for Wesley. That is just awesome! Even more awesome is that it was the day before Dennis came to town and people still came to get their car washed for Wesley. Sam is a two-time bone marrow donor! Thank you Sam and everyone else who gave their time and physical energy to raise money for Wesley.

As always, please keep praying for Wesley. The battle isn’t over yet but we know we will be conquerors. Please sign Wesley’s guestbook also. He reads each and every one of them. They give him much encouragement!

Sincerely,
Amber

Friday, July 8, 2005 11:35 PM CDT

Dear Family and Friends,

Thank you all for your ongoing concern, prayers and support for Wesley and our family. Here’s an update regarding “life” around here. Day +29 and Wesley is still in“patient” “patiently” awaiting the out“patient” days ahead. His WBC’s are within the normals. He is still needing platelets on a daily basis but only needing blood once or twice a week. He is eating VERY little (bites) and not drinking nearly enough. He still battles the nausea with every bite. His arms and legs are stick thin. I pray that his nausea will subside and he will begin gaining weight again.

He, for the moment, still has his catheter out. His urine has returned to the Hawaiian punch color without the continuous irrigations. His clots are progressively getting larger and more difficult to pass. The return of the catheter may be coming soon. They are going to first try to bolus him this afternoon with IV fluids. He had an ultrasound Wednesday of his bladder that showed several clots still along the lining of his bladder. The team has even mentioned the hyper baric chamber (as with scuba divers). Apparently it speeds up the healing process with no adverse effects.

It is still extremely difficult motivating him to get out of bed. One of the concerns is that with his immobility he will once again develop pneumonia. He was taken today to radiology for a chest X-ray. Michael was here this morning when it was ordered so I’m not for sure if the X-ray was routine or if it was because of his lungs sounding bad. Another concern with the lack of movement is the potential for decrease in muscle tone.
Yesterday his PCA (pain med) pump was discontinued in the hopes of keeping him awake and out of bed more of the time.

Tonight I had to do the most difficult thing I believe I have ever had to do. I had tried repeatedly to get Wesley out of bed, to take a shower, to walk, to eat, to drink. I even tried bargaining with him. I let him nap for two hours without disturbing him. But this afternoon he had put it off long enough. When I told him that he WAS getting out of bed to the shower and he still refused, I left him alone. I told him to call me when he was ready for me to help him. I gave my cell number to his nurse and told her what was going on. I left the hospital in tears not knowing if I had done the right thing. I know now why it is called “tough love”. His nurse called me about 45 minutes later and told me that he was doing fine and had actually gotten up, all by himself, and taken a shower. I finally broke down and called him a little while later. I couldn’t stand it any longer. I honestly thought that he would have been so mad at me that he wouldn’t want me back tonight. But, he asked “when you come back will you bring me this and this and this?” (I had to make a list) He went on to say, “I love you Momma.” So off I went, as fast as I could, to Target to fill his wish list.

So as it stands right now, we don’t exactly know what day he’ll be sprung from MD Anderson room 1148 (which by the way seems a lot smaller now than it did 29 days ago).
Challenges left to overcome include walking, eating and drinking. I did attend a discharge class yesterday so we feel a little closer. We were told in this class that the first 100 days will still be critical, as much can happen. Believe me, you don’t even want to know all the potential life-threatening and other side effects of the chemo, radiation and the bone marrow transplant itself. There are so many unknowns in treating this disease, that basically “anything” could happen. We’ll opt and continually pray that he has none of these potential effects--but take what is handed out and somehow get through it. We viewed the transplant as making it to a “life raft” from a sinking ship, with God’s grace we made it. Now it feels like we are trying to “row to shore”-sometimes against the current.

Even though Wesley has not been walking these hallways, Michael and I have numerous times. As I pass by each room, I recognize last names of people we have met in clinic or since he has been admitted. Since the entire 11th floor is for transplant patients only, it hit me how blessed each one these patients are. Each one had to have found a good donor match to even be here for transplant. Thanks to Wesley’s donor and the love of God, he is here. These names that we pass by daily are obviously from countries all around the world. It’s just a reminder that cancer knows no prejudice, no boundaries. These last names could have been any one of you out there reading this. Chilling feeling, isn’t it? It was for me. There has to be SOMETHING that can be done. I called the Leukemia and Lymphoma Society (LLS) in Birmingham and Mobile today. They are sending me information of ways to increase awareness and raise money for research to help obliterate this horrific disease in whatever way possible. Be ready Dothan!!! So many people are fighting for their lives and too many are losing--it hurts and I am sick of it. What can I do? Maybe not much-but I can’t just sit and not do anything. More info. as soon as I get it. What can you do? Be a donor, support American Cancer or LLS--don’t just do nothing. I sincerely hope and pray that you or any of your loved one’s names are NEVER on the doors of the 11th floor at MDA.

Once again thank you to Wesley’s anonymous donor for making "his" being here possible.

Love, Hugs and Prayers,

Michael, Angie, Trenton and Rowing Wesley

Monday, July 4, 2005 8:55 PM CDT

Dear Everyone,

Life has been on the upswing these past few days since Wesley’s engraftment. Most of the mouth and throat discomfort have seemed to disappear. We are still in awe of the turnaround--and so grateful! The only remaining discomfort has been the foley catheter, which is no longer an issue. I’ll talk more about that later on in the update. His counts are staying “up there”, but still bounce up and down a bit. (WBC’s ranging between 2.3 and 4.0; HGB 8.8 to 9.3; and Platelets 17 to 30). Although he is still getting anywhere from one to two units of platelets a day, he’s very stable, so that’s great news!! Today has actually been a good day, tired, a little elevated B/P, but otherwise doing well. Another day toward the magic day 100. He will be having a bone marrow aspiration sometime either the end of this week or the first of next week. That is the procedure where they take marrow out of his hipbone to check for any blast cells in the marrow (PLEASE PRAY FOR ZERO) and also to for them to see how many cells are donor cells (PLEASE PRAY FOR ALL DONOR CELLS).

Adam, Amber (son-in-law & daughter), Aunt Lisa ( my sister), Aaron (nephew), and Emma (niece) came for a long weekend visit. After they got settled in from their 11 hour drive, they made their way to MD Anderson to see Wesley. He has had his nights and days mixed up since he has been in the hospital, but they caught him at an awake time. In my absence, Wesley “told on me”. He said that I “crack the whip” too much. In other words, I stay on him to walk, eat and drink a lot of the time. These are the areas the team (doctors & nurses) stress each day. So… I need advice. Should I keep up with the strong, but with good intentional, encouragement or should I back off some? He really does know what he needs to do--it’s just that his body is still very weak.

Michael and my anniversary will be on July 10th . We knew there would be no possible way for us to celebrate it on that date because of one of us having to stay with Wesley and the other with Trenton. So Aunt Lisa graciously offered to stay at the hospital with Wesley this past Saturday night. Adam and Amber stayed with the kids at RMH so that Michael and I could go out to dinner and have time alone. The main reason that I am even updating about this is to share with you more of the ways that God has blessed our family. Last week, Michael and Trenton had gotten tickets (that had been donated to RMH) for the Astro’s game. Trenton started a conversation with the gentleman sitting next to them. He told him that we were from Alabama and ALL about his bubba, Wesley. By the end of the game, I’m sure, Chris B. knew everything there is to know about our family. Michael gave him one of Wesley’s mustard seed coins and he gave Michael his business card. He told Michael that he was the regional manager of Salt Grass Steak Houses (excellent food) in Houston. He said that he would like to buy us dinner while we were here. All that to say that our anniversary dinner was taken care of. God sat Chris by Trenton and Michael at the game so that he could bless our family this way. Regarding our anniversary, not only was this year special because it was our tenth, but as so many of you know who have been through an experience similar to ours, cancer can wreak havoc on a marriage--indeed on the entire family. While we made it through the intense moments by strength given by God, there were many times when our relationship felt the pull and strain of all the emotion and exhaustion and loss of normalcy. However, we have been determined from the beginning to make it through this together and we feel quite good about where things are now. These year has felt like 10 years in one. We sure deserved to celebrate. And we did. Thank you Aunt Lisa, Adam, Amber and Chris.

OK--to the catheter or now “lack” of catheter story. Saturday night, (the night Lisa stayed with Wesley) the nurse came in to manually irrigate it. When she clamped the tubing with her hemostats, the tubing was punctured. She told Wesley that they were going to have to take that one out and put another one in. Talk about waking him up out of a deep sleep! He said, “if you have to take it out, I don’t want it back in.” I’m not sure if you all remember the difficulty he had having it put in the first time but HE sure remembered. And he was adamant about not putting it back in. So, for now, it is out. He has to prove himself to keep it out. So far he is doing good.

Sunday morning was the first mention of discharge. His doctor said that if he continues doing well, he could be out by the end of the week. PRAISE GOD! Because of this news, we decided to move out of RMH for our one week away. (Every 45 days you have to leave the house for 1 week). It is such a hassle to move out…but that’s the rules and we have been so blessed to have RMH. So Sunday was moving day. We are now staying at Springhill Suites. They have a very good medical discounted rate. But God had even more blessings in store for us. Today, while Trenton was swimming at the motel pool, Michael talked with a lady who was also out by the pool. She asked where he was from. He told her the reason we were in Houston. It turns out that God also sent her in our path. She was the manager of the motel. She said that she was going to adjust our rate to half the medical rate.

The blessing continued Sunday afternoon. Jeremy and Kaitlyn came to visit Wesley. They brought him a prayer blanket from St. Anthony of Padua Catholic Church, Woodlands, Texas. As I am typing this update, Wesley is lying here covered with this blanket that has been prayed over, blessed and thoughtfully given to him. Also Kaitlyn and several of her friends had a car wash last weekend for Wesley. They raised in excess of $350.00. That’s a lot of car washes. Wesley really loves these terrific kids. We can’t thank you guys enough for your friendship and support.

I usually don’t mention gifts in the updates for fear of leaving someone out. But I really would like to share with everyone a very special care package we received from Coley and Ann Mathis’s Sunday School Class-Bethel Baptist Church. There were so many thoughtful items included. Among them were a cassette player and several cassette tapes of Brother Wallace Russell’s sermons. Also they sent Wesley a robe that had his name embroidery’d on the right side and on the left side was embroidery’d “If you have faith as a grain of mustard seed…” What a wonderful gift! Tears filled Wesley and my eyes as we opened this care package and could actually feel the thoughtfulness and love placed into that box. We have been truly blessed in so many ways it would be impossible to list them all. Just know we are so humbled by everyone’s kindness and God’s blessings which continue to flow freely. “Lord you are so good!”

So everyone, as you can surely tell, this is a real upbeat time for us. The pieces are coming together (we hope with superglue). Until the next update, we’ll keep thinking positive, counting our blessings and sending love and prayers to our friends who have lost, losing or fighting this battle as you are reading this.

Thanks for the love and caring. It really does mean so much to us. And to Wesley’s donor- Thanks again and again! We think of you all the time.

Hugs and Love,

Michael, Angie, Trenton and Blessed Wesley

***You can obviously see that, Tiffany has been at work on Wesley's home page. She has also added new collages on his photo page. Thanks Tiffany for your many hours and creativity spent updating Wesley's site. (I got to learn how to do this stuff!!)

Thursday, June 30, 2005 7:18 PM CDT

Dear Entire World,

We’ve been waiting weeks to write this update! The next milestone achieved! Last night’s lab work showed Wesley’s WBC’s were 1.7. The report did not come in until 11:30pm. Michael was with Wesley and as soon as he saw the results he called me at RMH to share the great news. As I was trying to explain to Trenton why I was so thrilled, he proudly told me that he understood what the news meant? “Bubba’s body is making good blood now.” We both just hugged and even though our prayers had already been said, we offered up a prayer of praise and thanksgiving. Trenton’s prayer of a child was so simple and beautiful. I cried tears of joy.

That was the news that I fell asleep with. I was awakened to even more wonderful news. Michael called with today’s AM lab results. WBC’s 2.3 with NO blast cells. We were told that we could count today as the day of ENGRAFTMENT!!!!! Day 21. Hallelujah-Praise our awesome God!! His love for us is absolutely unimaginable. I immediately started spreading this praise report. When I came downstairs, I must have been beaming. Everyone kept saying you must have gotten great news-you look sooo happy. I guess it showed. I went from family to family sharing how God has blessed us.

Wesley is feeling significantly better also. His awake periods have been longer these past few days. He exerts himself a little more each time he gets up to walk. Yesterday, Rhonda (friend from Woodlands) came to visit. She came with homemade chocolate chip cookies. Wesley, because of his diet restriction from chocolate, was unable to enjoy them but Michael and I sure have. Rhonda is a terrific motivator. She had Wesley up and walking around the unit without a word of resistance from him. Also, we had a visit from some very good friends we met on our very first day here in Houston. Troy and Marla have become very dear to our hearts. Marla has CML and is on a clinical trial drug. We pray God’s goodness and mercy on both their lives. They were able to return home this week for a month. We are so happy for them! Hope you guys enjoy your time home with family and friends. Today, a surprise visit from Samantha and Shaun. Shaun, Wesley’s friend I wrote of a while back is here for a follow up visit. He looks so healthy and healed. And Samantha has the same beam in her eyes that I have in mine.

I have to mention again how faithful Sagemount Church has been in visiting and praying for Wesley. They have become our second church home. We have enjoyed each and every visit. I am not sure if they are just sending the “cream of the crop” out to visit us or if their entire congregation is as caring and dedicated as the members that have visited us. Today, Rex Forsyth, came to visit. He brought along with him a cassette player and sang a song, right there in Wesley’s hospital room that really touched both of us. The name of the song was “Tears are a language the God understands.” While he was singing-not a single IV pump beeped, no one entered the room, the phone didn’t ring. If you remember from my previous update, I was concerned about not being able to cry or the feeling that I shouldn’t cry. The words of this song were a direct message to me from God. His presence, in this room, was so evident and powerful and still lingering. Our loving Father has put so many people in our paths to reassure and comfort us. I don’t believe in
coincidence. What an incredible day…for so many reasons. I only wish that I could share all of the blessings God has poured on us. The update would go on endlessly.

More soon, as things are picking up pace at this point. Please feel free to sign Wesley’s guest book—this is a huge boost! I honestly read every single one to him daily.

Thank you all for being there, for your prayers, for everything! Words cannot express how we feel….

With our deepest love,

Michael, Angie, Trenton and Engrafted Wesley

Tuesday, June 28, 2005 12:29 AM CDT

Dearest Family and Friends (known and unknown),

I wish this was an update saying that Wesley had engrafted. He maybe getting close. His WBC’s last night were 0.9. Wesley always looks at his lab reports first and the key thing he looks for is the presence of blast cells. After reviewing his results, he looked over at me sitting on pins and needles for good news and he said, “Momma, the blast cells are coming back”. He had two blast cells show up in his peripheral blood. My heart fell all the way down to my stomach. I could feel the tears welling up in my eyes but trying not to let him see my disappointment, I reminded him that the nurses had told us early on not to be too concerned if a few blast cells showed up. That is the reason you hope for a “little” Graft vs. Host disease (GVHD). So that the donor cells can fight against any remaining blast cells. Wesley’s cells have been fighting hard up until the transplant. Now it is up to the donor cells to come into battle. We pray that they are powerful warriors. Michael came to relieve me for the night so that I could release the tears I had forced back. I stayed downstairs and visited with any one I could find to keep from going upstairs and falling apart. When I finally went to the room, I was surprised that the tears didn’t come. I tried to rationalize this by saying I’ve tried so hard to be strong and now I can’t even express my emotions when I am alone. So since I was not focusing on the disappointment of the returning blast cells I fell on my knees beside the bed and praised God for the 0.9 WBC’s . I prayed, “Lord, we are trusting you- we are REFUSING to go by sight.” Sight can be so overwhelming at times. We know that we can not afford to let down for a moment, because it would be so easy to waver when we encounter a “set back”. After my time spent with our loving Father, I received an even deeper dimension of his peace than I had ever known before. The tears never did come but instead came an awesome joy that I fell asleep with.

This mornings lab results showed the WBC’s still hanging in at 0.9 and PRAISE GOD—no blast cells!!!! The doctor explained this morning that the blast cells that were there last night were myeloid cells-which are of little concern. I really don’t understand the difference much at all-but I am taking his word for it. Wesley got the “go ahead” and encouragement from his doctor to walk-not only just on the 11th floor but off the unit. Of course he has to wear a gown, gloves and mask and tote his pocket book (catheter bag).

Other concerns are that his blood pressure has been elevated quiet high. He has been placed on two B/P medications. One of the medications has some diet restrictions. No cheese, no caffeine, no peanut butter, no chocolate. That about eliminates all of Wesley’s favorite foods. Liver enzymes are all within normal limits. Kidney function test all look good. Lungs are still clear. We are incredibly blessed. Our God is so faithful!

One of Wesley’s friends that he has met at RMH-Neil Sen was asked to speak at the annual bone marrow transplant survivor’s banquet. I’ve written about Neil and his father –AnJan (I spelled his name incorrectly in the previous post). I had the opportunity of also meeting Neil’s mother this past weekend. Neil is blessed to have such loving and supportive parents. Just to let you get a glimpse of what these children feel and have to face daily, I’d like to leave you with a copy of the speech that Neil delivered so eloquently.

Bone Marrow Transplant Survivor Day: June 12, 2005

By Neil Sen

Good afternoon. Welcome to the second annual Bone Marrow Transplant survivor day. I am Neil Sen and this is my dad. I was delighted when asked to share my thoughts on my transplant experience at this meeting. Thinking about what to say, a series of mixed emotions came to my mind including profound sadness for the kids that ended their journey too soon; joy for the kids that went home after completing treatments and so many stories of struggle and triumph. I believe no matter how difficult the diseases are, in most cases there are survivors. For cancer patients it is safe to measure survivorship in spirit rather than age. The very word survivor is a projection of hope, endurance and human spirit.

A little bit of history about my disease: About two years ago at the age of 12 yr I was diagnosed with acute lymphocytic leukemia with a chromosomal translocation. It is a rare form of leukemia with poor prognosis. A few nights of intermittent fever lead to the dreadful diagnosis. My journey with cancer started in July of 2003 in a Dallas hospital. Two months long chemotherapy did not
hold much hope for my survival. I was rapidly running out of options. My cancer cells kept on growing through the treatment.

I came to M.D. Anderson in September of 2003 and immediately felt the difference. The care I received at this hospital is unparallel. Overall the atmosphere of hope and “can do” spirit have made my journey easier. The dedication and expertise of the physicians and the support personnel has elated me to a level to hope for life again.

We were told that ‘stem cell transplant’ actually provides the best chance for my life. This course of treatment was a journey by itself and a great challenge for my body and mind. I pondered and
visualized all the good times we had before becoming a cancer patient, to keep me motivated. Daily prayers,positive thinking and playing video games kept me happy. Also child life activities, school assignments and Children’s Art Project drawings kept me occupied.

After remission from a chemotherapy protocol and a preparative phase, I received an expanded cord blood transplant last year. At the time of transplant I was the second pediatric patient to receive an expanded cord blood at this hospital. During the transplant I was confined to my room for 68 days. I did not feel like eating or drinking much less taking my medications. However with the help of the nursing staff and my dad’s constant persistence, I managed to do the right thing, most of the time. My transplant experience was not easy; I had a fair share of trouble. I caught a nasty RSV pneumonia and survived. The treatment for my RSV infection was quite intense;
I was put inside a plastic tent for 16 hours a day and inhaled the medication for three weeks. No one was allowed to visit me during that treatment. I was on isolation and the loneliness was mind numbing at times. I also had endless infections and acute graft versus host disease. But today I am alive, well and hope to continue the trend, if God permits.

At this point I am a stem cell transplant survivor for 16 months. After I came out of the hospital, I was lovingly referred to as a ‘cord blood walking around’ by one of the bone marrow transplant coordinators. Now I understand the importance of saving cord blood and stem cell research, because it has saved my life. Thanks M.D. Anderson for starting an on-site cord blood center.

Cancer treatment and the transplant process have put many restrictions to my life. Even after 16 months of my transplant I still take endless medications, which require a great deal of effort. At one point I used to take about 40 pills a day and apply different creams and lotions to address my graft versus host problems. In addition to help my kidneys to flush out all these medications, I had to drink a minimum of 4.5L of fluid a day. Just imagine how difficult that could be if you have nausea. Now I am restricted to prolonged sun exposure, swimming, eating seafood, fresh fruit and vegetables. I also have to watch out for activities that can create problems in terms of infections. My immune system is not up to the speed yet, that is why I have to be extra careful. The things I used to do before my diagnosis seems so unreal and distant at this point. My overall physical strength is poor. Extended steroid use to cope with my graft versus host disease has made my bones achy. Further I need to be immunized like a baby again as the transplant has
destroyed my old bone marrow. I regret that I would not be able to donate blood ever in my life or may not have children of my own. I also worry about my cancer returning, if that happens, we will fight it with vengeance. There are new drugs and clinical trials being tested everyday, I hope and focus on future medical research to keep cancer patients safe.

M.D. Anderson has been a great hospital for me. I sincerely feel that I have received a second chance for my life. I feel very close to many physicians and nurses to name. In my opinion, the Leukemia and BMT team here are excellent and world class, and when you get birthday presents from them, they are outright family. The commitment to patient care is manifested at every level of service.

I do not know what the future would bring for my disease. Presently I am cancer free and with God’s help and physicians care I hope to resume my normal life again. This fall I am planning to enroll in high school. I do know we may have challenges ahead and we have to work diligently through them.

Meanwhile I am cherishing the endless gifts of joy and appreciation for the things that mean the most, life. I learned to live with the fragility and uncertainty of life. All the bad news around tends to draw me emotionally towards a downward spiral. We rely on two powerful attributes of ‘hope’ and ‘faith’ to guide our journey. We learned to live one day at a time. This was an incredible lesson as segmented anxiety is much more tolerable than the whole picture. I learned never
to ask the unanswerable question ‘why’ I had to endure this dreadful journey and to focus always on survival.

Please, when you remember Wesley in prayer, pray also for all the other families facing this monster and pray for a cure!!! Even with all the uncertainties, words can’t express how full of thanks we are. Our hearts are bursting at how blessed we truly are-for so many reasons, but one being having friends and family who lift us up daily in their thoughts and prayers.

Wishing you all the joy and peace that we feel,

Michael, Angie, Trenton and Climbing Wesley

Friday, June 24, 2005 10:42 PM CDT

Hello Everyone,

Today is day 15. Originally we were told to expect engraftment anywhere from day 10 to day 14. But with actual marrow transplant, as opposed to stem cell transplant, engraftment can be as late as 21 days. The one thing that we have been told repeatedly is that every transplant is different. So we are patiently waiting, daily, for elevations in his blood counts. Tuesday night his PM lab work revealed WBC’s 0.7. We were so excited and just knew this was an early sign of engraftment only to discover that his AM WBC’s were back down to 0.2. We were a little discouraged but still have faith that his “turn around” will be in the next few days.

Wesley’s mouth discomfort continues to improve. He is still having difficulty swallowing-so his diet consist of either jell-O or pudding for breakfast, lunch and dinner. Tonight, however, he wanted a McDonald’s cheeseburger. His nurse, Michael and I all told him that he was not going to be able to eat it. Whether he was trying to prove us wrong or he is beginning to be able to tolerate solid food, he actually ate about four bites.

In the last two days, he has been begging, pleading, bargaining with his doctor and nurses to take his catheter out. They decided yesterday to discontinue his irrigations and see how he did without it. His bladder spasms and clotting intensified so they had to restart it back again this morning. I think, if he could get over this, he would feel halfway decent. This has been his primary complaint.

Other than that, he is just sitting and waiting for engraftment to occur. He still is rapidly going through MD Anderson’s blood and platelet supply on a daily basis. We can’t say thank you enough to all the donors that are willing to give blood products. When I was donating WBC’s today, I overheard a gentleman say that when he has had a bad day- he likes to donate blood before going home and that makes him feel like he accomplished something worthwhile. If you have never donated, please consider giving just a few minutes of your day to possibly help save a life. It could be you or your family that needs it tomorrow.

We have enjoyed spending time this week with Lori, Cody and Matthew. Cody is 8 years old and has had soft tissue cancer in his right arm. He was back this week for follow up tests and evaluation. He got a terrific report. His tumors in his arm have not grown and his condition has stabilized during the past 3 months. Praise God. We met these great friends three months ago here at RMH. Lori and I are so much alike that we have been mistaken for each other by other guest here. Cody and Trenton also are alike-almost like twins. All three boys have had a blast playing with each other. They will be leaving for home (Florida) tomorrow morning. They are planning on coming to Dothan in September for Wesley’s welcome home party. We look forward to seeing them again then.

Brandon, Tiffany, Parker and Madi also are planning on coming to visit “Sweet Home Alabama” in September for Wesley’s party. Tiffany, where are you? Even though we talk frequently on the phone, it’s just not the same.

Speaking of new found friends,Wesley's friends (Jeremy and Kaitlyn that he met at the Woodwards several weeks ago)have been keeping in touch with him. Kaitlyn has organized a car wash in Wesley's behalf this Saturday (June 25th) from 10 am to 4 pm. at Teddy Bear Park in Oak Ridge. (Just over the Woodlands Parkway Bridge at the stop light). Kaitlyn, we really appreciate all that you have done for our family and Wesley looks forward to spending time with you and Jeremy when he gets out of the hospital.

Well, that’s the news from here. Not a lot going on at the time. I can’t wait to write the update saying that Wesley has engrafted. Stay tuned and as always please continue to pray for Wesley’s miracle as well as a cure for cancer!!!

With Love,

Michael, Angie, Trenton and Patient Wesley

Tuesday, June 21, 2005 11:40 PM CDT

Dear Friends, Family and Prayer Warriors,

Today is day 12. One day closer to engraftment. It could be just around the corner. Wesley’s WBC’s this morning was 0.4. The doctor said they could still be elevated from lingering WBC’s that I donated 2 days ago or it could be due to the neupogen injections or possibly a sign of “early” engraftment. His hemoglobin today was 8.7. Believe it or not, no blood needed today. His platelets were 17. He can’t seem to go without needing platelets at least once or twice a day. We will be eagerly awaiting tomorrow’s lab results and looking for evidence of Wesley’s destroyed immune system being built back up with new healthy cells created.

Last night Michael stayed with Wesley. I actually slept 8 hours straight. Thank you baby(Michael)...for everything, I love you more than I ever get the opportunity to tell you. I didn’t realize just how totally exhausted I was. Anyway, you can never imagine how I was awakened. No, not by an alarm clock. It was Wesley, on the phone, saying that he had been up to the bathroom all by himself, had organized his beside table and had drank several sips of Dr. Pepper. I questioned him about the Dr. Pepper, thinking it must be the drugs talking. And he said, “No Momma, my mouth feels a lot better this morning”. Thank you all for the specific “mouth” prayers-they are working. Later on today he was able to tolerate a few sips of chicken broth and his usual jell-O. All day long he sipped on “Sweet Tea”. Sweet tea in Texas? His wonderful nurse (friend), Kimberly, brought him a HUGE jug of sweet tea. I know it was meant for Wesley, but Michael and I have also enjoyed several glasses ourselves. Maybe, just maybe it is the sweet tea that is boosting his WBC’s. Have I told you how fantastic these nurses are? The past three days, he has “broken” in yet another nurse. Eleanor has been such a sweetheart. She has been so very patient and quick to respond to the many call lights and has answered all my unending questions. She will be off duty tomorrow and probably really needs a day off!! I guess Wesley will have to break in someone else. I’m sure; who ever his nurse will be, she or he will be just as amazing as all the others. I need to work on getting these nurses a raise. Maybe I should put Tiffany on it—she can “get it done”.

I have missed Tiffany so much lately. Parker was supposed to have had treatments two weeks ago. First one thing and then the other has gone on to postpone his treatments. Please continue to remember this dear sweet child in your prayers also. I pray that one day he will be able to enjoy being a “normal” (whatever that means) fun-loving kid that doesn’t have to worry about Dr. appointments, test and treatments. I love that squirt so much. I like his mom a little bit too. No, honestly they have been just like family to us and we really DO miss them tremendously.

I mentioned above about Wesley organizing his bedside table. This is a big deal to him. In the past weeks, he has constantly asked me to move this over there and that over here. I was beginning to think he was just trying to find things to keep me up and going. But it finally came to me today. (light bulb) This is his way of regaining some control. He has absolutely no control in his disease process and the procedures being done to him every day. Organizing things the way he wants them does offer some semblance of control when there seems so little present. I talked with the nurse about my discovery of this “control” or “lack of control” issue. They assured me that they see it all the time. One suggestion that was given was to allow him to make “choices”. Allowing him to choose when he wants his bath, what he wants to try to eat, which arm he wants his daily injection in.

“Choices” is something none of us have felt like we have had. It is true that we didn’t have any choice whether or not Wesley had leukemia or in having our lives completely turned upside down. And while we cannot choose the outcome of his transplant, we can, however, choose how we respond to it. From the beginning, we HAVE chosen not to be victims in this situation. We seek every day for the purpose of this trial. We choose to enjoy every moment of our day-looking for Wesley’s “brief” smiles and silliness. We are "choosing" to allow ourselves to be human—to cry, mope, and occasionally complain—when we want or need to. We are "choosing" as well, to do so and to move on… to conserve our mental and physical energy so that we can handle the daily, sometimes hourly, changes that are thrown at us. We are far from perfect at this. But we are giving it all we’ve got. It would be so easy for Wesley to choose to respond to the turmoil going on inside his body negatively. But he instead "chooses" to take every hurdle one at a time and handles them gracefully. Lastly, we are "choosing" to pray CONSTANTLY and also "choosing" to trust God and praise him every step of the way.

As Wesley’s journey continues, we know that much lies ahead that is beyond our choosing. But we are "choosing" to move forward with our eyes, minds and hearts open as best we can, and to look for God’s will for all of our lives each day.

I don’t know how I got off on the subject of choices, but I am praying that Wesley will have the opportunity for insurmountable choices in his future.

Wishing you love and good health,

Michael, Angie, Trenton and Choosing Wesley

Sunday, June 19, 2005 7:54 PM CDT

Dear Everyone,

Today is day 10. Believe it or not, while the individual days seem so hectic, full and long—the days are flying by. We can’t believe Wesley’s BMT was 10 days ago already. Now we’re one of those “experienced post BMT” families that we have been talking with in clinics and RMH. Progress is slow around here, but moving in a positive direction. Today Wesley’s WBC reached 0.2.We’re hoping it moves up each day. His liver function showed slight improvement today. PRAISE GOD! We’ll take “slight”. His hemoglobin today was 7.0-so that bought him two units of blood. His platelets were 14-add to that order one unit of platelets. He also got the WBC’s that I donated today for him. Hopefully to improve the mucusitis somewhat.

Wesley has developed red and sunburn looking palms. The team is questioning early graph vs. host disease (GVHD). No consistent fever developed yet. Yay! We are continuously washing our hands. The nurses explained that his immune system is that of a newborn baby now, and that the risk of catching chicken pox, colds, viruses, any germs is very serious. So we’ll be taking ALL the precautions. He hits his pain pump and tries extremely hard to get down a few bites of Jell-O each day. He still has not of yet found anything that he is able to drink without causing severe burning in his mouth and throat. Hurry WBC’s and do your thing!!

Wesley and I have decided on having some kind of pump smashing event after this is all over. Don’t know how or when, but maybe they will give us an old broken one to take out the frustration from the incessant beeping 28 hours a day – or so it feels. The inventor of these pumps I am sure has never been hooked up to one. It can beep for various reasons-kinked off line, empty bag, or air in line. So the routine is that when one beeps I jump up to determine the reason. It is an easily solved problem if it is kinked. (find the kink and un-kink it) otherwise you call the nurse. No kidding-during the night, between this and the frequent bladder spasms, vital signs and medications, we sleep in 45 minute increments. The good news is that Wesley can usually sleep through the IV beeping while I’m feeling like one of Pavlov’s dogs. We realize that we’re not the only one with needs here so I am impressed at the promptness of the nurses responding to our numerous call lights. They are so patient with us and simply WONDERFUL!

I probably left lots out, but you surely get the drift. Lots of ups and downs, just not so dramatically high or low right now. Our medical team keeps telling us that each case is so individual, and that anything can happen at any time, so we should not get either too excited or too concerned. This road can go on for years, so we need to get somehow comfortable in the not knowing what tomorrow holds. But then again, NO one knows what tomorrow has in store for them. We can’t always see around every corner, but
God can, and we absolutely can’t lose if we’ll just simply trust in God’s faithfulness to us. We’re working on it. Doing OK, I think.

Love from all of us,

Michael, Angie, Trenton and Trusting Wesley

Friday, June17, 2005 11:51 PM CDT

Dear Everyone,

Today was day 8. We have Wesley’s post transplant day written big on the dry erase board in his room. He eagerly awaits midnight and wants me to change the day 1 minute after midnight. Now after transplant, we just wait…and wait…and wait for engraftment, for the new marrow to generate new, healthy blood cells. We’ll see evidence of that through the daily blood tests-will see white blood cells-WBC (now almost non-existent at 0.1), hemoglobin and platelets being generated. They typically begin to show up around day 10-14, but have shown up as early in some patients around now. But actually late engraftment tends to hold their graft better. So we’re watching and praying.

As soon as his WBC’s begin to rise, he will have something to fight the mucusitis and bladder problems with. There is talk among the “team” of restarting WBC transfusions again on a daily basis if he doesn’t engraft soon. For right now, they are transfusing WBC once a week. I tried Wednesday to donate platelets, but my hemoglobin was too low as a result of my donating so frequently. Hemoglobin has to be above 8.0 or higher to donate. But now that he has to have WBC’s Sunday, I ordered spinach (YUCK!) for lunch and choked it down in effort to increase my counts. As the lab tech. was running my blood, I sat and prayed for at least 8.1. My results came in at 12.9. Says a lot for spinach, huh? So spinach it is daily. Just call me Pop Eye.

Wesley’s mucusitis is stable now. His cheeks are still swollen-it looks as if he has marshmallows in each side. They are calling his stage 3. If it progressed to stage 4 it would require him to be given TPN (IV nutrition) The nutritionalist came in today and said that TPN is a very real possibility if his condition doesn’t improve soon.

As far as his hemorrhagic cystitis (bloody urine) goes-he has gone from fruit punch, to pink lemonade and now looks like apple juice with an occasional cherry (blood clot). The blood clots clog his catheter which leads to a very distended bladder, bladder spasms, in other words PAIN!! Pain that sits him straight up in bed. You can just picture the routine, him doubled over in pain, as he squeezes my hand until the nurse can come in and flush his catheter and the pain subsides. My heart just breaks for him during these episodes but after flushing, he feels better from the “release” and is settled back in to sleep. Tonight, I went to RMH to shower and spend time with Trenton. Michael sat with Wesley during my time away. Wesley began to experience severe bladder spasms. In his drug induced state, Wesley paged the nurse’s station saying that he was hemorrhaging. Can you imagine how many nurses responded to THAT call? All gowning up in duck gear and running to his bedside only to find out that he really meant that he was having spasms.

We are now watching carefully Wesley’s liver enzymes. They have been gradually elevating-more than likely due to the long term and excessive anti-fungal meds. So one of the anti-fungal medications has been discontinued and a medication to increase liver function has been added. Last count for IV bags hanging at one time was 15.

The hair loss has finally kicked in. I actually thought Wesley might make it through with his beautiful new hair intact. Oh well—small sacrifice. It was beginning to bother him falling out all in his bed. He gave in today and had the nurse on the unit shave his head to save from the itching and the mess. I have my old Wesley back with a beautifully shaped bald head that I can’t help but kiss.

I am so sorry that I have left you hanging about the CT results. His pneumonia status is stable. PRAISE GOD! Please pray that it stays that way. He does his incentive spirometry faithfully but he is not getting out of bed very much. He is so incredibly week that when he stands up, his entire body quivers. There is no way right now he is able to do laps. While Wesley was sleeping (I thought), I made the remark to Michael that he just doesn’t have any strength. Wesley mumbled “I may not have much strength on the outside but I am still strong on the inside”.

We have been so blessed with wonderful nurses here. Laura, his day shift nurse, came in his room today after her shift was over and she had clocked out. She began to well up with tears. Her care for Wesley was so evident—it was unbelievable. She said, “There’s something special about him, he has an amazing strength and is made out of something that I wished I was made out of.” Wesley’s personality and faith is definitely helping him get through this mentally, physically and spiritually. His night shift nurse, Kimberly, is equally great. She brought him several Christian music CD’s that her children had burned for him. She has even gone so far as to offer to make arrangements for Trenton to attend her church’s Bible school. Having Christian caregivers reassures us that God is working through them to help Wesley.

God has not only placed these dedicated nurses into our path, he has also given us a church home away from our church home. Sage Mount Baptist Church has been so faithful in visiting daily with us. We have never once attended this church but I met one of their members in clinic several weeks back. She had put Wesley on the church prayer list and ever since they have been lifting him up in prayer. When Wesley gets well, before going back home, we hope to get a chance to worship with them. Our church, Bethel Baptist has also been great. Their cards, letters, love offerings and prayers have kept us encouraged. Bro. Russell will call several times a week and have prayer over the phone with me. You can’t imagine the peace that comes from knowing that prayers are being said for my precious son.

I know these updates are to keep you posted on Wesley’s progress, but I have to tell you how it feels to see my little Trenton adjusting to the changes in our lives. I think it is almost as tough on the sibling as it is on the patient. Not seeing his brother for now a number of days and only seeing me for a couple of hours each day. Suddenly all the attention is on Wesley, we are known at RMH as Wesley’s mom and dad; gifts and cards and mail pour in for Wesley all the while he watches his brother get thinner and weaker. When Michael and I have the changing of the guards, Trenton jumps out of the van and gives me the biggest bear hug he can. But this sweetheart, Trenton (like his big brother) is also an incredible child to have to come through this “cancer sibling horror” and be so grounded. He has become even more loving and compassionate. His new friends consist of kids with cancer, heart and other deformities, children behind mask some with no hair or crippled. But to him, they are no different than he is. What an amazing transformation. Maybe like us, he has realized how blessed we really are. He really is having a blast at RMH. He thinks of it as a resort away from home and knows almost all the guest by name. All in all, I am so very proud of the adjustments he has been forced to make.

Congratulations are in order for Michael and me. Mona, my step daughter, and her husband Billy have a brand new little—oops did I say little? A brand new 9 pound 2.9 oz baby boy. His name is Logan SHANE. He was given the middle name of Shane after who else? Wesley Shane Dunchof. This has meant the world to Wesley. I have only seen pictures of my new grandson sent by email, but I do believe he is one of the prettiest (sorry Billy) most handsome babies that I have ever seen. I can’t wait to get to see him in person and get some Nanna sugar.

Please as always, continue to remember Wesley in your prayers as he continues to participate in this “marrow” thon. His first and hopefully his last. We are continuing to wait, pray, trust in our loving Father, think positive and keep Wesley as comfortable as possible as the effects of the radiation and chemo make their way out of his body and the foreign marrow tries to kick in.

Sorry for the lengthy update, but I get started rambling and can’t stop. I’ll try to update again soon. We’re planning on nothing but good news! Thanks for your continued prayers and love. You have taught us so much about giving to others.

With Love,

Michael, Angie, Trenton and Uncle (again) Wesley “Shane”

Tuesday, June 14, 2005 10:44 PM CDT

Dear Everyone,

I have intentionally put off updating- waiting for “something, anything” positive to report. Within the last hour, THREE things positive have happened. I’ll let that be the cliff hangers for the end of this entry. As far as Wesley is concerned, he has definitely seen better days!!

Chemo and radiation does drastic things to your insides. Please forgive me if I get too explicit. Bloody MUCUS! From everywhere. Because of this thick viscous mucus in his mouth and his ever worsening mouth sores (mucusitis), he can barely talk much less swallow. The drainage of this mucus into his stomach keeps him nauseated and vomiting. The nurse from last night finally came in and set up wall suctioning for him. This has helped tremendously.

The mucus is not isolated to his mouth though. Because of the mucus in his intestines, he has had severe diarrhea. It has been difficult keeping his potassium up due to the diarrhea. And along with the diarrhea, comes abdominal cramps. He made the statement yesterday that he would be sympathetic from now on for women. The pain medication by mouth was not controlling his pain adequately, so he now has a PCA pump with morphine. (Pump that the patient gives med. as needed) What a lifesaver!!

The one thing that has had me really concerned is the amount of blood in his urine. Apparently it has concerned the doctor somewhat also. Today he told Wesley that he was going to order bladder irrigation. Wesley, to my surprise, said “alright” without hesitation. Come to find out, he was not aware that it meant a “tube” (catheter) in “there”. Needless to say he began right away asking for ativan. After two unsuccessful attempts, 1 mg of Ativan, a bolus of morphine from his pump, the urologist came in herself and was successful. Wesley made a very humorous remark during his drug induced fog. I didn’t think it was suitable to share with you in an update, but it sure made me feel better knowing that he still has his sense of humor.

Today also, Wesley’s sheets have been full of hair. We knew it was coming sooner or later. For the ones of you, who have known him for a while, know him without hair. But we had gotten used to his thick head of hair that has been growing over the past two months. I was telling Uncle Dwayne on the phone tonight about Wesley starting to lose his hair. He told me to tell him that hair was over-rated anyway. He said to tell him that it is better to lose it than to pull it out like he feels like doing some days.

In the midst of the vomiting, diarrhea, cramping and catheter-Wesley had to be taken down stairs for a CT scan. A follow up to check the status of his pneumonia. We hopefully will know the results tomorrow. It is so difficulty to sit by your son’s bed, seeing him tremble in pain and not be able to take it away from him. I lost it this afternoon and the nurse came into the room and found me crying. I told her I realize that he has to go through this. That it means the chemo and radiation is doing what it is intended to do. But it still doesn’t make it any easier.

OK, now for some uplifting news. Wesley, as you know, has been sharing his mustard seed coins with almost everyone he comes in contact with. As I was waiting for the elevator, I overheard someone talking on their cell phone in the hallway. The lady was telling someone else “that boy with the mustard seeds is on this floor”. Hopefully, these witnessing tokens will somehow make it into the hands of someone that needs to know our God of miracles. The one that gives hope when there seems to be no hope. PRAISE GOD!

Wesley is still in great need of blood and platelets. Some days he even needs two units of platelets. Southwest Airlines, who are BIG supporters of RMH, served dinner tonight. I was at the hospital with Wesley but Michael was able to talk to three of the employees from that amazing corporation. They are calling MD Anderson tomorrow and organizing a platelet drive for Wesley. PRAISE GOD!

Alright, I have saved the best for last. Hopefully a “full circle” moment. Today, when Aunt Lisa got home from work, there was a message from the National Donor Program. She has been matched with someone, like Wesley, in desperate need of a bone marrow transplant. She will have to be further tested before knowing for sure. But she is elated at the possibility. You see? Lisa registered in Wesley’s honor during a drive hosted by Dothan Surgery Center and Life South. Maybe, because of what Wesley has gone through, another person will have a second chance at life. PRAISE GOD!

I have thought so much of Wesley’s donor lately. We have been told that he could have had anywhere from 60-70 sticks in his hips. And I know that I have shared with you that I couldn’t understand how anyone could do this for someone else. But you know? Jesus did something far more for everyone of us-he gave us all a second chance. PRAISE GOD!

Sorry for such a long update but I so wanted you to know what Wesley is facing daily. Please pray without ceasing for better days.

With all our Love,

Michael, Angie, Trenton and Still Groggy Wesley

Saturday, June 11, 2005 7:08 PM CDT

Dear Everyone,

I have put off updating in hopes that Wesley would feel well enough to share his personal feelings about the events of the last couple of days. During his episodes of “feel half way decent”, we try to get him to shower, do his mouth care and walk. After doing these few simple tasks, he is usually wiped out again. The doctors and nurses reassure us that everything he is feeling right now is expected and will eventually pass with time.

I hope you will indulge me in a brief summary of where we have come from so far in Wesley’s Journey. October 1, 2004, that fateful day, was when our lives changed forever with Wesley’s sudden diagnosis of leukemia. He immediately received treatment after treatment of varying chemo agents. We were told that a bone marrow transplant was his only hope. I can never describe our disappointment when none of our family was a match for the necessary transplant. But sometime in the past few years, somewhere in the world a man took an hour out of his day to be tested and register with the National Marrow Donor Program. And then this same man got the call in the year 2005 that he could help to save a life of an 18 year old boy by donating his marrow. And on June 9th under general anesthesia a man, who was eager and totally committed, laid down on an operating table and generously gave Wesley a gift, the healthy marrow that was needed for his survival. A gift that no one else could give. Wesley and the entire family would like to take this opportunity to pay tribute to this unknown hero for being such a selfless role model for us all and for giving our son life.

As you know, Tiff planned a vigil on the street corner outside Wesley’s hospital room. She had to pull some strings and spent several hours on the phone getting the OK from everyone. She arranged a minister from Lakewood Church to lead the vigil in prayer. If anyone could pull this off-She can and did. Parker didn't have to be back in Houston for treatment until next Tuesday. We were so hoping that she would be here with us the day of transplant...and what do you know? She magically, surprisingly appeared. She drove four hours up here just to attend the service and give hugs and best wishes to Wesley. When she walked into his hospital room, he literally jumped out of bed to hug her. Wesley loves this woman so much! (We both do) And I think she kinda likes him a little bit also. Well back to the vigil, the candles were lit only minutes prior to the time that his transplant began. I’ll have to let Tiffany describe the tone and events that took place on the street. Before Dr. P began the actual procedure, Wesley and Rev. G.M. (staff chaplain) both held the bag in their hands and prayed God’s blessing on it. It was SO touching. I can’t begin to tell you what emotions this all stirred in me. If that was not tear producing enough, Wesley and I then walked over to the window and looked down at the specks of light from the many candles being held up toward heaven. Truly, it was the MOST surreal feeling as we knew that not only were there prayers coming from that isolated street corner in Houston TX, but prayers coming from all over the country. Oh man, need I say more? I could hardly breathe through my gasps and tears. Wesley and I looked at each other; I saw the tears welling up in Wesley’s eyes. What an awesome moment. We just have to stop and praise God for bringing Wesley to this place and to this time. When Wesley returned to his hospital bed, Dr. P. connected this long awaited marrow to Wesley’s CVC line at 9:15 PM. For the next 2 ½ hours we watched as it slowly dripped into his body. Once again, we thanked God for every single drop. Finally the very last drop made its way down the IV tubing and Wesley’s nurse disconnected the line. He shook Wesley’s hand and said “Happy Birthday man”.

Speaking of Birthday, his hospital room was completely decorated with birthday paraphernalia. Earlier Thursday morning a minister from Sage Mount Baptist Church had come by to visit and have pray with Wesley. When I was explaining to him that patients consider their transplant date as their “second” birthday, Wesley corrected me.
He said “No Momma, this is my ‘third’ birthday. The first was when I was born to you. The second when I was born again and became a Christian and today is my third.”

Since Thursday night, Wesley has struggled with nausea, vomiting, diarrhea and mouth sores. But he does have the “half way feel decent” times that are a welcome relief. It is now, as it has always been, completely in God’s hands. We are trusting him to walk beside Wesley and then when Wesley is too weak- to pick him up and carry him.

We wouldn’t be here today, cheering about Wesley finally getting his new bone marrow without all of you. Your support (emotionally, financially and most importantly in your prayers), the caring and tremendous medical team, God and lastly from our hero, who selflessly and with much love gave his healthy bone marrow—have brought us to this day.

More positive reports coming soon.

Hugs and love from all of us,

Michael, Angie, Trenton and Birthday Boy Wesley

Thursday, June 10, 2005 3:35AM CDT

Good Morning,
We have so much to share with you all about this miracle that took place last night ar 9pm. For now, Angie simply wanted us to share with you all the letters that surrounded the gracious donor as he recovered from his bone marrow donation.

Angie has shared some great moments from yesterday as well as all the vigil details. But,for now I think just reading the families words is moving enough. Plus it is like almost 4 AM and I just got in from Houston.

God Bless and thank you all for continuing to lift Wes up in praise. He is on his next roller coaster ride. Thanks for jumping on with him.

Tiffany Hays ~ family friend
Parkers Proud Mommy

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Dear Precious Donor,

In the past few days, we have thought of you often. What an awesome person you must be! You have sacrificed so much to give us another day, month, year to enjoy spending treasured times with our son. Because of your selflessness, our son will have a future and we will have the opportunity to enjoy his smile, kiss his forehead, and watch him fulfill his dreams of one day getting his college degree and having a wife and family. We have prayed for God to bless you in a special way.

Words can never express our gratitude for the gift of life that you have been willing to offer our son. Even though we have given him many gifts throughout his life, at his time of his most need, there was nothing that we could do for him. There was no amount of money that could buy this second chance of life that is essential now. You were the only one that could save him. One day I truly hope our paths will cross and we will be able to personally show our appreciation for what you have done for our family.

Thank you for stepping up to the plate and giving us our beloved son back. We will be eternally grateful.

May God Bless You,

The Recipient's Parents

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Dear Donor,

It seems strange not being able to introduce myself and our organization. Please know that, when the time is right, we would like to thank you in a more personal way. For now, I can tell you that your recipient is a beloved member of their high school band. His friends have been anxiously awaiting his return to school. Your willingness to donate has given our (band family) hope that they will see him again soon.

Many of them have expressed the desire to become donors themselves. You see-your gift-regardless of the out come in this case will keep on giving. Though it is not enough-Thank you is all we can say.

Wishing you a speedy recovery,

The recipient's band family
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Dear Donor,

I don't know where to begin to tell you how thankful we are to have you. You have given my brother a second chance at life, something that even I could not do. I hope to one day repay that debt by helping someone who needs a transplant receive one. We thank you from the bottom of our hearts for this selfless gift you have given us.

May God Bless You,

Recipient's sister and family
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Dear Gracious and Honorable Donor,

Words cannot express the gratitude that I feel knowing that someone would give up there time and part of there physical body to help save my life. I cannot thank you enough for giving me the gift of life. Thank you for allowing me to keep my dreams, of one day finishing school and having a family alive. I believe that with the faith of a mustard seed God can move mountains. This is not only a great thing for me it also means the world to my friends and family. You have given me days, months, and years to spend with them. I am forever grateful that you would make this sacrifice to save me. I thank you for waiting so patiently for me to get prepared for this. I know how hard and tiring this must have been. May God bless you and your family, and I cannot express my excitement for our glorious meeting. I already consider you family because without you none of this would be possible.

Forever Grateful,
The Recipient

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Thursday, June 9, 2005 11:48PM

Hi everyone! This is Amber (Wesley’s Sissy). I know everyone is anxious to know how the transplant went so I thought I would post right away. I have just talked to Mom and he’s finished the transplant. It all started around 9:00pm with Benadryl and then the cells. He went to sleep and woke again when it was finished (11:20pm). He’s feeling okay and ready to start the rest of his life. We are so thankful to the donor for giving Wesley a second chance at life. Thank you to everyone who has kept Wesley in your prayers. Please continue to pray that the cells will graft and he will be leukemia free!

Also thank you to Tiffany who coordinated the prayer vigil outside the hospital. Never at MD Anderson has anything like that taken place. She had to make several phone calls to get it approved, but with much determination it came together. There were 40 to 50 people on the corner holding candles for Wesley. The Fox news station was there with live coverage. Everyone was praying for Wesley. Thank you to all that could participate.

I’m sure Mom will update in more detail later.

With love and prayer
Amber

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Tuesday, June 7, 2005 11:35PM CDT
Dear Family and Friends,

So far, so good. With the exception of a couple of episodes of diarrhea, nausea and vomiting, Wesley is doing remarkably well. For the most part he has been under the influence of benadryl. And we all know what that does to him. This is the premed for a lot of his medications and blood products. By the time he arouses somewhat from one dose, it is time for seconds. It is extremely difficult to arouse him to do his daily walks and mouth care. The importances of doing these daily tasks are stressed to him numerous times throughout the day.

His need for blood products is becoming predictable. One day platelets, one day blood, one day platelets next day blood. I’d like at this time to express our gratitude for everyone who has ever donated!!! I once looked at blood donation as being for someone who maybe lost too much blood during surgery or was anemic for some other reason. But donating blood and platelets really is a life saving act. No matter where you are reading this, please consider giving this gift of life. OK, enough with the commercials.

Wesley will have one more day of rest-if you want to call it that. The nurses are still in the room hanging medication after medication all through the day. He at one time had eleven IV bags hanging. But no more chemo. or radiation. YAY! He has all of that in his system that he will be getting. Now we are sitting back waiting to see the “positive” results. Positive results being blood counts dropping waaaaaay down.

Even though today started off pretty rocky with the nausea, diarrhea and generalized weakness, it did get better. His new friends, Jeremy and Caitlyn, from the Woodlands came by for a visit. He perked up, sat up in bed, laughed and enjoyed their visit. He needs friends everyday here. They are able to motivate him when I can’t.

Thursday is the BIG day. We all are elated. We had been told of numerous prayer chains going up on Thursday for Wesley. We can also tell from your heartfelt entries that many prayers have been said on Wesley’s behalf. How can we ever show our true appreciation for all that you have done? Your love toward us and faithfulness in remembering Wesley in prayer are sincerely felt. We have so much to give back. Most importantly of all, how can we ever thank our Heavenly Father for hearing our pleads and answering our prayers? We give him ALL the glory and praise for where we are today.

With love,

Michael, Angie, Trenton and groggy Wesley

PS Grandmother, Granddaddy, Aunt Lisa and kids are still here with us. We are thinking of keeping them here indefinitely.
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Sunday, June 5, 2005 7:32PM CDT

Dearest Prayer Warriors,

Today will finish up Wesley’s radiation therapy. The staff told us to bring our video cameras, still cameras and any friends/family that wanted to join in the celebration as he rings the bell of completion. Aunt Lisa, Aaron, Grandmother, Granddaddy, Michael and I stood and watched him ring the bell with ALL his might. All of the radiation team cheered as he clanged away on the bell. The plaque beside this bell read:
Ring this bell
From side to side
To the world it tells
Of your pride
Your treatments are finished
Your cancer is now diminished
Up until this morning, he has tolerated the treatments without any side effects. This morning he was awaken by severe stomach cramps and diarrhea. He was medicated with something for pain and Imodium. He also is complaining now with an extremely dry mouth. Over the past few days his appetite has increased tremendously with a little help from the steroids. We are once again seeing that moon face that is so common with steroids. I was so proud of him for gaining two pounds since his admission but the nurse said that a lot of that was fluid weight. He is getting tons of IV fluids and he hasn’t been putting out what he needs to. The resolution to that problem is Lasix. Wesley hates to get Lasix because by the time he makes it back to bed after going to the bathroom, he has to go again. This really serves two purposes. It helps him get rid of the stored up fluids and also gets him out of bed and moving.

Getting out of bed and moving is going to be a BIG challenge! He was visited by physical and occupational therapy yesterday and they both said that he needs to be circling the 11th floor five times in the morning and five times in the evening. This will help him keep up his strength and reduce the potential for that nasty “p” word that he has been battling. (pneumonia) During Mr. McLendon’s visit, he told Wesley that if he didn’t comply with his doctor’s orders, then he would be back up here to make him do sixteen eights. For those of you who are not familiar with band conditioning, that is taking sixteen steps forward and eight steps back for the entire length of the football field. Wesley knew exactly what he was talking about.

Mr. McLendon and Mrs. Ciercierski returned home to Dothan after visiting here with us for 4 days. We enjoyed spending time with them immensely and have grown to love them both as Wesley does. One of the days they were here, they offered to take Trenton, Emma and Aaron to the Houston Space Center. The kids were overjoyed!! I know Mr. Mac and Mrs. C were exhausted. They had a whole day getting to know Trenton or “little Wesley” as Mr. Mac calls him. Michael got seven free tickets to the Astro’s game that same night. Aunt Lisa said that she wouldn’t mind sitting with Wesley for a while. Mr. Mac, Mrs. C, Michael, the three kids and I took in the game. And of course, the kids wanted cracker jacks and drinks. Mr. Mac and Mrs. C had their dinner at the game. Mrs. C had a hot dog and Mr. Mac. had nachos “all the way” (indigestion waiting to happen). The main reason for their visit was to be able to donate platelets for Wesley. They both donated twice. And Wesley used their platelets each time. Wesley had to have platelets Friday and today and he received blood yesterday. Back to our beloved visitors, Mr. Mac and Mrs. C, dressed in duck bills and gloves, spent several hours with Wesley last night. They have already begun planning his coming home party-complete with the band playing “Sweet Home Alabama”, pineapple sandwiches and banana pudding. We can hardly wait!! Wesley admires and respects these two people probably more than anyone else he knows. In fact, Tiffany asked me if I knew of anyone that Wesley really admires. I said “yes, they are here now.” Mr. Mac and Mrs. C’s visit ended the way it began…with hugs and farewells. As they were leaving out the door, Wesley shouted out “I love you Mr. Mac and Mrs. C”. These two wonderful people have had a great impact on my son’s life. We are forever grateful for all you both have done for Wesley and our family.

Tomorrow is a day of chemo. Fun, fun. Tuesday and Wednesday will be rest days although he will be taking numerous anti-rejection, antibiotics, anti-fungals and anti-viral medications. Then on Thursday he will receive his long awaited transplant and begin the first day of the rest of his life. Wesley is well into this rollercoaster ride. We never know what to expect around the next bend or past the next hill. But we do know the one operating the control panel.

Please be in prayer for all of our many friends here at RMH who are dealing with their own trying times. If you are a parent, cherish each and every moment with the special blessings that God has given to you. Please, as always, continue to remember Wesley in your prayers as he faces each new day and new challenge. We will continue to update as much as we possibly can. I’m trying really hard to get Wesley to update. Maybe you guys can encourage him.

With All Our Love

Michael, Angie, Trenton and Bell Ringing Wesley
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Thursday, June 2, 2005 12:44 AM CDT

Hello friends,
Angie and Wes have been so very blessed and busy this past few days. I know they want all of Wesleys supporters to know what is going on. So, you are stuck with me for this morning (Tiffany ~ Parkers Mommy).

Wesley as you all know has had his last week outpatient before beginning his transplant. It has been an amazing week full of the typical cancer rollercoasters. Each day he has been at MD Anderson all day and night literally. I think at this point everyone has checked him out except for the janitorial department. Well, they may have been called in a time or two -URG! He has as always handled it with grace and dignity. What a trooper. Angie has been right by his side each step of the way. What a dedicated Mother. We could all be so lucky. Wes had surgery to remove his groshong catheter (sp?) and place in his triple lumen. Surgery went perfectly, line not so perfect. When they attempted to use it afterward, you guessed it...nothing! So, last night around 9pm he was being admitted to his transplant suite and they were going to attempt to repair it while he WAS AWAKE! He was not exactly thrilled about that one. He told me he was placing his order for Adivan and Benadryl. As most of you know that is Morphine to Wes. He is so strong and brave ....here is your "standing OOOOOOO buddy"!

Now, as if all that medical stuff was not enough fun for one week {hahaha}, tons of the families loved ones have made the long trip to spend some time with them. Last weekend Amber (sister), Adam(Brother in law), Addison (nephew), Jessica (gal pal) & the long awaited little brother Trenton (or as Madi says Twentin) came to hang out. Wes and Angie's spirits seemed to be so lifted and rejoiceful. They were all able to share tons of hugs and kisses(ssshhh)and spend time together as a family before it will require a gown, mask and the Spanish inquiry at MDA. I know for a fact that this is the best medicine. This week ....MORE LOVE! Angies parents Granmomma and Grandaddy with her sweet sister Aunt Lisa came down. They are such a dedicated and faithful family. Any person would be proud to be apart ~ are you open to new members? To finish up the pep-rally, Wednesday Wesleys Band directors flew in . Can you believe it? What dedication to their students. ***YYYYEEEEAAAHHHH*** They have all tried to spend time at RMH and even ventured out to Black Eyed Pea (restaurant). I think Angie has found a restaurant that gives her that "back home" feeling. Wesley even ate WOOHOO. I won't share his version of the story and how much he kept down, but he did eat some macaroni and mashed potatoes. An “A” for effort Bubba. I know that Angie and Wes and of course Mr. Michael feel so blessed by all the visitors that have come to lift their spirits and hold their hands.

Now for the most special visitor of all Mr. Trenton. Well, let me tell you that so many people are happy that he has come for the summer. His Momma and big brother have missed him painfully. Not to mention that Parker is marking the calendar for how many days until they get to spend some time together. We will have to find some fun stuff to do while we are there. I will start taking my vitamins now! Trenton is so adorable and is just as brave as his brother Wesley. He deserves us all to give him a big "standing OOO" too. He has kept his grades up, is a star on his baseball team, is living away from home with his Aunt Lisa (did I mention she is fabulous) and kept his confident great attitude through this journey. Angie loves ALL of her children with every inch of her being. Ambers beauty & admirable Mothering skills to little Addison have not only her Mothers love but, her respect as well. Little Trenton has that little "sweet spot" in his Mothers heart. I know first hand how difficult it is to be away from your young child that needs you to care for another. It is no easier for Angie. She is a woman that believes in very "active" parenting and that the family & their faith is the center of the world. Having Trenton with her makes her complete. Trenton, I know one day you will love and respect your brave Mother even more than you already do for how much she loves all 3 of you dear children and all that she will do to insure your future. She really would do anything for all of you. Sweet Trenton will hopefully be spending most of the summer in Houston. It will be a pleasure to see that big smiling face when we walk in the doors.

This Morning begins Wesley's Journey with his transplant. He was admitted last night to room # 1149. The address is at the bottom of the page if you would like to send him any happy mail or goodies. I know he would love it. His journey began at 6am with his first dose of full body radiation. He will continue with that treatment for 4 days and then I believe one full day of intense chemo. Wes, correct me if I'm wrong. Then as you all know the big day is June 9th. The first day of the rest of his new life! Please continue to lift Wesleys name up in praise. Ask our Great Physician to lay his hands on Wes and heal his failing body. To keep his mind and spirit strong to face the demons attaching his blood. We will do our very best to keep everyone updated on how the Lord is working in his life and how he tackles this transplant.

Speaking of the transplant. Wes, Angie and the family honored me by sharing the precious letters they wrote to the donor thanking him for giving their son, brother, grandson, friend and student a second chance of life. I am typing through tears just remembering their endearing feelings. What a special moment waking from the sedation surrounded by their heart felt words. What an amazing gift from a complete stranger.

Well, I hope that helps keep you all up to speed. We will all make great efforts to keep the site updated.

Here are the address to send "happy mail" & "get well goodies" to for Wesley and the family.

Ronald McDonald House
Attn:Wesley Dunchof & Family
1907 Holcombe Blvd
Houston, Tx 77030

MD Anderson Cancer Center
Attn: Patient Wesley Dunchof
Room # 1149
1515 Holcombe Blvd
Houston Tx 77030

If you want to insure he gets it I would send it to RMH. If you want to send him some goodies to cheer him up please email me at projectparker@sbcglobal.net and I can assist you with some of the goodies he would love to have or any needs he has. As well as the list of limited items he is allowed to have. Oh yeah, one of those is their cell phones! So, you will have to contact them in the room directly.

In addition if anyone would like to honor Angie, Mr. Michael and Trenton with a well deserved meal please email MEALDELIVERY@GMAIL.COM ATTN: CHRISTI & ELISABETH. Please indicated for the Dunchof Family, because they are also handling Parker Poo & my meals as well. They would really appreciate any support in their efforts. Their goal is to deliver AT LEAST one meal a week to the family. You do not have to be in the Houston area to help out. These great ladies will make something home cooked, take out, delivery, assist you with phone numbers to order delivery yourself or make boxed meals. Whatever you desire in your request and will help the family. I hope each person reading will participate.

I just spoke with Angie and they are doing great. On a funny note…WESLEY IS HUNGRY!!!! The “funny” is that he is finally hungry and he is not allowed to eat. I guess those big doe eyes of his convinced them to sedate him to fix his line. He is still waiting on that procedure. He has not eaten since yesterday afternoon. Pray all goes well. This mornings radiation went well. He is just hanging out in his room. Hope you all have a completely wonderful day.

God Bless,
Tiffany Hays ~ Parkers Proud Mommy
Wes and Angies dear friend
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Dear Friends and Family,

It seems like it has been a long time since I last updated. Thank you Jessica for going to clinic with Wesley and updating about the events of the last few days. I’m sure Wesley enjoyed a break from me. (harassing him about eating and taking his meds.) Amber, Adam, Addison and Jessica all arrived back home safely Tuesday. Wesley asked Amber last night on the telephone when she was coming back and she said “I wish I never had to leave”. We enjoyed the few days we were able to spend with them tremendously! I begged for them to leave Addison here with me. He has grown so much since the last time I saw him. He made himself at home at RMH. He got “ohs” and “ahs” from all the house guest. It must be something about the way he walks up to someone and smiles that great big smile that wins their heart. He sure has won mine!! I think he enjoys attention a little bit. He spent the better part of the day in the toy room but ventured to the game room to socialize with the big kids, (Michael, Adam, Trenton, Wesley and Jessica) who enjoyed games of pool, racing games and Pac man. I’m still working on catching up on time I have missed with Trenton. He snuggled up to me in bed Friday night and fell fast asleep. I have missed him so much. Even though I won’t be able to spend a lot of time with him, I’m going to try desperately to make it quality time. I can’t tell you how wonderful it is to finally have the family together again. We all enjoyed dinner and fellowship with the Woodward’s Monday evening. Woody and Rhonda were excellent host and hostess! Wesley says that his hat is off to the chef. The chef (Woody) actually fired up the grill to fix just Wesley a cheeseburger. While he was outside grilling, he called Wesley on his cell phone and introduced himself as his personal chef and asked how Wesley wanted his hamburger cooked, toasted or untoasted bun. WOW, is that service or what? We met another wonderful family there also (John, Cheri, Jeremy and Kaitlyn). The kids really hit it off. Evan and Garrett did a wonderful job entertaining Trenton, Wesley and Jessica in their game room. They all exchanged phone numbers so they could keep in touch. Another guest that came after dinner was Charlie. He fit right into the sports conversation that was going on at that the time. Seems like a really terrific guy. They also had invited over their priest, Father CY, to come have prayer with Wesley. This was such a touching moment as everyone in the room held their hands out toward Wesley as he was being prayed for. That evening was such a nice break from the day to day routine that we have become accustomed to. Thanks again Woodward’s for the delightful evening and the new friends!

Admission day was yesterday. Wesley was supposed to be admitted at 1:30 PM but there were no available rooms. We were told to get dinner and they would let us know when his room was ready. Mr. McLendon and Mrs. Ciecierski (band director and asst. band director) met us in the lobby of MD Anderson after our appointment with Dr. G. Wesley got long awaited hugs from both of them. We left MDA and went to visit with our friends at the Fannin Street Blood Bank. This was Wesley’s first time meeting the staff and the physician there. They all wished him well with his transplant. Wesley gave out mustard seed coins as his token of appreciation for all that they have done for him. Mr. McLendon and Mrs. Ciecierski will be donating platelets today. We asked the blood bank staff to take excellent care of them. But then again that is the only kind of care they give! After visiting at the blood bank we then decided to go and get some dinner at Black Eyed Pea. Mr. McLendon was especially impressed by the fried corn on the cob. He said that he is going to figure out how to make it. Maybe by the time we get home, he will have it perfected. It was actually a blessing that Wesley wasn’t admitted right away because it allowed him to be able to spend time with them. He really admires, respects and LOVES them both.

Aunt Lisa, Aaron, Emma, Grandmother and Granddaddy drove in Wednesday and arrived to RMH at 8:00 pm. The admission office had already called and told us to be there at 9:00 pm. Wesley was able to visit with everyone for an hour before going in for admission. When Wesley walked outside to get into the van he started taking deep breaths. When I asked him what was wrong he said, “I’m just taking my last breaths of fresh air for the next 2-4 weeks.” I pray these next weeks will go very smoothly and fast!! Michael stayed the night with him and I went back to RMH since I’m planning on staying at the hospital for at least the next 3-4 nights. Emma and Trenton also stayed overnight at RMH. Emma gave me the most amazing and much needed head and back massage. That was all it took to put me out for the night.

This morning Wesley had his first radiation treatment. Michael and I walked down and waited with him in the corridor. The treatment only lasted 10 minutes but we had to wait for about 45 minutes in the department until they had everything ready. I’m glad they allowed Michael and me to go with him because I would have been getting upset that he had been gone so long. While Michael and I were waiting for Wesley to come out, we heard a loud bell ringing. The other patients in the waiting room said that when you complete your radiation series, you get to ring the bell (similar to a church bell). The nurses and this gentleman’s family were all standing around this bell and clapping with plastic hand clappers for his accomplishment. I can hardly wait until Wesley rings his bell. I don’t know why but I have been uneasy about this total body radiation, even more so than the chemo. Maybe it is because he has already had so much chemo and I know how he reacts to that. Fear of the unknown. Michael has gotten used to seeing me close my eyes and get quiet numerous times throughout the day. He doesn’t try to talk to me during this time because he knows I am praying over whatever the situation is at that time. My prayers again were answered with this first radiation treatment. Wesley was rolled out on a stretcher after the treatment was completed and said, “That was nothing Momma. They played a Garth Brook’s CD the entire time.” He did ask if he was glowing in the dark though. The next hurdle today is replacing his CVC line in his chest. He had one put in Tuesday but the X-ray showed that it had coiled up into the wrong position and could not be used. Wesley made sure that he would have sedation for the reinsertion. There is NO reason he needs to experience any unnecessary discomfort at this time.

His schedule for the next few days is three more days of radiation, followed by one day of chemo and then two days of rest. This pre-transplant agenda has changed since the first time we spoke with Dr G. He says that he thinks this plan will work better for Wesley although it is the first time it has been done this way at MD Anderson. Wesley says he is beginning to feel like a guinea pig. But that is OK if this way works more efficiently. His transplant date will still be on June 9th. Transplant patients celebrate this date as a new birthday.

We can’t stop thinking about this awesome man out there somewhere who is preparing to give Wesley the gift of life. Dothan High School band, Wesley and other family members have written “Thank-you” letters to the donor so that he will have them when he wakes up from anesthesia. Oh how we wish we could thank him in person. I already feel so much adoration for him. Our prayer is for him to have a speedy recovery and God’s blessing on his life.

Please continue to praise God along with us for bringing Wesley to the point where he is today. He has been so faithful time after time to meet our needs and answer our prayers. And as always please remember Wesley in your prayers daily. We love you all!

Love always,

Michael, Angie, Trenton and Non-glowing Wesley

Monday, May 30, 2005 11:11 AM CDT

Hey everyone this is Jessica Wesley’s girlfriend.

I have been going to clinic with Wesley for the last 3 days so I figured I would update.

I got here Friday May 27th along with Amber, Adam, and Addison. Once I got here Wesley and I got ready for a dance that the RMH was putting on for the end of the school year. That was the most interesting thing I have ever seen. I’m here to tell you Mr. Michael and Mrs. Angie can really get down. That night in the room Mr. Michael decided that it would be funny to stand up on the bed and sing “Love Me Tender” by Elvis Presley. Not exactly the prettiest thing I have ever seen in my life time, but so funny.

Saturday May 28th, Wesley and I started our day later than usual. He didn’t have to be at clinic until noon. Now I realize what they go through on a daily basis. Not really that fun but I am glad Mrs. Angie is getting a well deserved break. Once we finished with clinic we all went to Olive Garden for some delicious food. Addison was the life of the party as usual. I wish I had as much energy as he did. I would be set for life.

Yesterday May 29th was a rather long day for me and Wesley. We started clinic at 9:00 instead of the scheduled 10:00 hoping that we would be out sooner so that we could grill out with the family at RMH. Things didn’t exactly go as planned. Wesley woke up not feeling good and very pale. At clinic he asked the nurse to do some blood work though none was ordered. Good thing he did. His hemoglobin was low and this was the reason for his problems. With the addition of the blood transfusion on top of all of his other medications and chemo, we didn’t leave clinic until 7:30 that night. Once back at the RMH, we met up with James’ mother, Mrs. Pat, Aveda, and the rest of the family and had the choice of hotdogs, cheeseburgers, and steak. Later that night we were sitting in the room when this horrible storm blew in. Everyone in the room lay down with the shades open and watched the lightening light up the sky. It was so pretty, but it was bad too. It was so bad Amber and Adam’s flight to Atlanta on May 30 was canceled.

Today May 30 Wesley and I started clinic early at 8:00. He had to have lab work today as well as the usual Consedis and chemo. Unfortunately for the last 2 days Wesley has had no white blood cell donors. This is understandable with today being Memorial Day. We are hoping that tomorrow will bring a donor. Tonight we are going to visit the Woodward’s in the Woodlands for dinner and visitation. Wesley is very excited about finally getting to see them.

I am scheduled to leave Houston tomorrow May 31. I wish I could pack Wesley up in my suitcase and bring him to Dothan with me. I know however that this is impossible. I am more than looking forward to getting him back home and I believe that he is more ready now than ever to be home. He keeps telling me that I am not leaving. He even made the comment to my mother that “possession is 9/10th of the law, and right now I posses your daughter and she isn’t going home.” To this my mother responded that “there would be a 9 o’clock flight out of Houston and I would be on it.” Wesley even threatened to get the Justice of the Peace involved. You can imagine what my mother’s response was. My time here as been short but the most fun I have had in a while. I wish I could stay longer. Please continue in your prayers for Wesley and his family, and all of the family’s at RMH. Also please continue to donate blood and platelets.

With Love and Thankfulness,

Jessica

Tuesday, May 24, 2005 10:21 PM CDT

Hello everyone

This is Wes again. I thought I would update before my transplant. The last two days have been hectic. Seeing all the pre transplant doctors and having almost every test there is to have. I hope I made an “A”. The MRI was canceled that was scheduled for Monday because my eye got better. That gave me a little break in my busy day. The WBC donors are still coming through for me daily I am so thankful for each and every one of them.

Today also was a crammed packed day. I saw my transplant doctor-DR G. He said we have the “all go” for the upcoming transplant. He said if I was ever going to be ready for the transplant that it was now. He also said that we are going to jump in with both feet and PRAY. I told him that we had been doing that since Oct. 1st. I told him that I know I am going to be healed and home by the end of September. He said that if I was home by December that he would be happy. But I told him that it is in Gods hands and that it is all on his time not ours.

I’m not really looking forward to tomorrow. Even though my eye is better they still say that I need to have the spinal tap. Please pray that it will go smoothly and painlessly. I also have an appointment with DR R (my clinic doc.) this may be my last appointment with him for a while. But I hope that he will check up on me now and then. I will miss him and all of my clinic nurses. I hope that all the transplant nurses are half as nice as they have been to me.

I’m sure that you all will be happy to hear that the doctor has put me on a medication to increase my appetite. I still am not eating a whole lot but it is gradually getting easer to eat. Momma said that I could have some of her weight to go to transplant with. She said that she could live off the fat of the land for a while. I jokingly told her that she could go a LOOOOOONG time off the fat of her land. She threatened to spank me. I told her that she couldn’t spank me because I bruise too easy. (Which is true as a result of low platelets)

FOX news called this afternoon and wanted to do an update on my quest for white blood cells. I really am not a TV person. I get REALLLLLY nervous but it gave me the opportunity to thank the people of Houston for being there for me. This truly has become my second home (but nothing beats Alabama). The news cast went fairly well. I let momma do most of the talking this time. I hope it will be a while before my next appearance! At least until I can tell everyone about my miracle.

I am so excited about my visitors that will be arriving here Friday. (Jessica, Amber, Adam, Addison, and my little bro. Trenton) I owe Trenton a lot of wedgies. Beware Trenton lol j/k. No really we got a lot of catching up to do. Dr G. told me to be extremely careful not to catch anything around my weekend guest. He told me that Jessica and I could only play video games using separate controls with momma sitting in the middle. That means absolutely no kissing or hand holding. How much fun is that? I am not sure if you can read in between the lines but Jessica is my girlfriend. I can’t wait till September. Mr. Mac. and Mrs. C are coming here on the first of June. I am so so excited to be able to see them. They have done so much for me since I have been sick and now they are willing to give blood for me. DHS THE GREATEST BAND IN TIGER LAND!!!!!!!!!!!!!!!!!!!!!!!

I want to personally thank each and every person that has supported me through my battle with this beast. Your calls, cards, E-mails, etc. and most importantly your prayers have encouraged and kept me going. Please continue to remember me in your prayers as I go into transplant. I plan to fight HARD, keep the faith and see you all soon. (September)

With all my love,

Wesley
p.s. please say a special prayer for my little buddy parker tonight he had a very intense surgery today and is not doing all that well. Even though his surgery was a success his oxygen level keeps dropping...

***Wednesday Update***

Hello Everyone,

Gee Wiz was today ever a tough day. Eleven hours of IV medications, tests, Dr. visits and lumbar puncture. The day started with several attempts to pry Wesley out of bed. After at least 30 minutes of my coercing, he groggily crawled out of bed, stumbled into the bathroom for a QUICK shower and tooth brushing. He came wandering downstairs of RMH with his size 31 jeans sagging on his now size 28 waist. Still half asleep with very few words, he slowly ambled into clinic for his lab work. He was met by people in the waiting room asking him, “Hey, didn’t I see you last night on TV?” The lab techs all said as he walked in “Look it’s the movie star”. Wesley, not enjoying the extra attention on a morning when he could barely hold his eyes open, was forced to wake up and communicate with these kind people.

One of the appointments we had today was with the physician from radiation treatment center. He explained in DETAIL the radiation procedure and possible risk and complications. Sometimes I believe ignorance can be bliss. No, not really, I actually had already researched radiation and spoke with several patients that had received radiation for their transplant. I had seen children here at RMH who have had localized radiation. Their skin was really burned at the place the radiation was given. One of the questions I asked the doctor was “Will Wesley have burns on his body?” The answer was- no, he shouldn’t have any visible signs that he has received radiation. Wesley said, “Momma, even if I would have been burned, I still would do it”. He really does have a strong will and a strong faith. And he is so ready to get started.

The last appointment today was for the lumbar puncture. We were happy to see that the nurse practitioner that came in to do the procedure was one that had successfully done 2 of his prior lumbar punctures. She had told Wesley the first time they met that her secret to success was that she always called her neighbor and had him praying for her throughout the procedure. As soon as Wesley saw her come in the room today, he asked her, “Did you call your neighbor?” At first this caught her off guard and then she remembered their first conversation. But she assured him that her neighbor had already been called and was praying at that moment. After 2 mg of Ativan, he was sat up on the side of the bed and arched around a pillow in his lap. As the practitioner began to clean the site, Wesley said, “I’m not sedated enough yet”. In the past when he was first diagnosed, they had to try to hit a moving target with this procedure. I was so proud of him today. He sat completely still. As I held his shoulders to help stabilize him, the only indication that he was experiencing any pain was his shoulder muscles tensing up as the spinal needle was being inserted. Needless to say, with mine, the practitioner’s neighbor and all of your prayers the lumbar puncture was quick, relatively painless and successful. PRAISE GOD! He received chemo to his spinal fluid and a sample of fluid will be analyzed to assure that the leukemia cells have not migrated there. Maybe we will know these results tomorrow.

After the one hour observation, Wesley was still very much sedated from the lingering effects of the Ativan. I had to dress Wesley, pry him out of bed and coerce him into a wheelchair. Sleepily and with very little words, he climbed into the van. Hey, didn’t our day start this way?

As I am typing this update, Wesley is watching American Idol. Bo just came on stage singing “Sweet Home Alabama”. That sure perked Wesley up!! That song has new meaning for Wesley now.

Oh, also, Wesley is eating a lot better the past few days.

Continue to remember him in your prayers. He needs them more than ever!!

All our love,

Michael, Angie, Trenton and Sleepy Wesley

Sunday, May 22, 2005 10:45 PM CDT

Dear Everyone,

What awesome news we received this week! Amber, I believe, updated you all since we had late night clinic appointments this week. The earliest that we got home was Thursday night. (8:30pm) BUT Wesley was craving spaghetti. I tried to get him to let me order “to go” from the Olive Garden but he said “I want your spaghetti momma”. How could I refuse? I had hamburger meat in the freezer but no spaghetti sauce or noodles. So we had to run by the grocery store on our way home. By the time I thawed the meat, cooked the spaghetti and set the table, dinner was served at 10:00. It was worth it all to see him eat the 4-5 bites that he managed to get down.

While I’m on the subject of his eating (or I should say NOT eating), please pray that Wesley’s appetite will increase. Everyone, including his two doctors, physician assistant, research nurse, and bone marrow transplant coordinator are trying to encourage him to gain weight prior to transplant. He has lost about 50 pounds since his diagnosis in October.

OK, just to recap on the GREAT news this week. The bone marrow biopsy showed that his blast cells were 50That may sound really high for most people, but Wesley’s blast cells have never been that low. 50 o us could as well be 0We also got a GREAT CT scan result. The pneumonia lesions, although still there, are progressively getting smaller with each CT scan. The WBC transfusions are working. PRAISE GOD! We thank God each night for all the unknown donors and pray for his blessings on them. Other GREAT news we received last week is that the transplant has been scheduled. He will be admitted on June 1. The first day will be just for IV hydration followed by 2 days of intense chemo. The 4th day will be a day of rest. Then he will receive total body radiation for the next 4 days. This will be a very trying time for Wesley but he is SO excited about getting started with phase two. Not only is our news this week GREAT, We have a GREAT God that will be right by his side the entire time.

This coming up week will also be long, tiring clinic days. We got a copy of Wesley’s schedule yesterday. Each day is packed with pre-transplant evaluation appointments. He will practically have every system in his body checked. His right eye has been drooping significantly the last 4 days. Because of that, Dr. R scheduled an MRI for Monday and a lumbar puncture (spinal tap) for Wednesday to check for Central Nervous system involvement.

I took an intermission from updating after that last paragraph. I had to pick us up some KFC for dinner. More GREAT news, Wesley ate all but one bite of mac and cheese and all but one bite of cream potatoes. He also ate one and a half chicken fingers. We were so happy for him!!!! I had to call several people and share the joy.

Sean has gone home but James is still an inpatient. Neal was admitted this morning with fever. So he will have to have five days of antibiotic and blood cultures. (Wesley has been there) Wesley is missing not having someone his age here to talk with. Although, this weekend Amber, Adam, Addison, Trenton and JESSICA will be here. He should be VERY happy.

I’d like to say a special “thank you” to everyone who is keeping things going for us back home. (Charles, Evie, Nick, Ms. Adams, Ronnie, Steve,
Caroline, Amber, Aunt Lisa, Grandmother and Granddaddy). They have taking and picking Trenton up from school, buying him his daily big kids meal after school, taking him to karate and ball games. They have gotten our mail daily, watered the plants, fed live crickets to Trenton’s frog (something I can’t even do), fed the dogs, chased the dogs around the neighborhood (they have mastered the trick of digging out) and numerous other task. I don’t know what we would do without you all.

Please, as always, continue to remember Wesley and all the “others” fighting this beast. We have faith that God is seeing us through this situation that we are facing right now. Each night, we turn all of our concerns and fears over to him. He takes these burdens from us and gives us, daily, the strength we need to press through this time in our lives. Our faith remains strong. Wesley has calculate his 100 days post transplant to be September 16. He plans on being back home no later than September 20. His birthday is the 29th so we will have a coming home/birthday party. I am thinking of going on now and making a hair appointment for the last week in September. We don’t have any intention of canceling any of these plans. More GREAT news to come.

With all our love,

Michael, Angie, Trenton and Excited Wesley

Thursday, May 19, 2005 6:21 PM CDT

Hi everyone!

This is Amber again, Wesley's sissy!

Momma hasn't had a chance to post the good news and I’m itching to let everyone know! Wesley received his CT Scan results...his pneumonia spots are still getting smaller. The WBC's are working! And if that is not enough...He has a definite transplant date set for June 9th. He will be admitted into the hospital on June 1st for his pre-transplant chemo, etc. God is sooo good!

I'm sure Momma will post later. She tends to go into more details.

Thanks for all the prayers!
Amber

Tuesday, May 17, 2005 9:56 PM CDT

Dear Everyone,

WOW! What a day. Started at 7:00am with lab work. Then Wesley was on to CTRC (clinical trial and research clinic) to receive his antifungal and chemo. We had to leave there and go to have his bone marrow aspiration and biopsy done at 12:00. We waited for approx. one hour and then he was finally called back. This wait only increased his anticipation and anxiety. I prayed the entire time that he was gone that the procedure would be quick and as painless as possible. I also prayed that God would keep Wesley constantly on the minds of Dr. R. (clinic dr.), Dr. G (bone marrow transplant dr.) and Ms. G.M. (bone marrow transplant coordinator). Ms. G.M. coordinates all the pre-transplant testing for Wesley including transplant date. Wesley was only in the procedure room for about 30 minutes. When he came out, I asked how it went. He said “It wasn’t bad at all”. No sooner had he said that, his cell phone started ringing. It was Ms. G.M. with good news. She said that she had to talk with the bone marrow donor BUT a “potential” transplant date is being looked at for the 6th or 7th of June. HALLELUJAH! Of course, this is still depending on his CT results from today. I didn’t hear from Dr. R or Dr. G but I am sure that Wesley has crossed their minds as a result of my waiting room prayer. After his bone marrow test we had to return to CTRC for his WBC transfusion. After that we were off to Diagnostics for the CT scan. Here again, was another two hour wait. It was now 7:00 pm and Wesley and I had not eaten anything since early morning. While we were sitting there, we got to know everyone in the waiting room. The topic of conversation somehow was how hungry everyone was. Everyone began to search through their backpacks, purses and briefcases and we came up with three little Debbie cakes, a bag of chips and a sandwich. We divided that up between the hungry care givers. (The patients were not allowed to eat until after their test). We didn’t have to feed five thousand people with 2 fish and 5 loaves but 6-7 people all got something to eat. He finally had his CT scan and we left MD Anderson at 8:00pm.

Then we were off to get some “real” food. Wesley’s craving was Mexican. We ordered Queso. For those of you who do not know what that is. (like us) It is cheese dip. And that was basically the extent of Wesley’s dinner. I won’t tell you what all Michael and I had but we both are STUFFED. Guess I better do the stairs twice tonight. (HaHa)

Thanks for your prayers for Sean (Wesley’s new friend). His surgery was successful and the tumor is thought to be benign. His mom said that he is doing very well. Thank God! We haven’t heard an update on James today.

Wesley finished his eight chemo series today. He will have two days off chemo. and then I’m not sure what will be on the agenda after that. He has already turned in for the night. He is a little sore from the bone marrow test and he is really tired from the long day. Come to think of it, I am a little tired myself. Tomorrow, hopefully, we will hear the results of today’s CT scan and bone marrow test. He has an appointment with Dr. R. in the afternoon after WBC’s and antifungal.

Please continue to pray daily-God is answering prayers!!

We love you all,

Michael, Angie, Trenton and Tired and Sore Wesley

Tuesday, May 17, 2005 9:56 PM CDT

Monday, May 16, 2005 9:04 AM CDT

Dear Everyone,

It’s getting hot in Texas! They have a very popular way of getting around here. RUNNING. Everybody runs. I made the comment the other day that “watching” all these people run makes me short of breath. I passed an elderly lady pushing a cart down the road and thought “that’s more my speed”. I do actually try to get a little exercise. My goal is to climb at least one flight of stairs here at RMH once daily. Of course when I reach the top it takes several minutes before I can catch my breath. There is a very nice walking trail around the grounds here at RMH but I really wish they had an exercise room. Maybe I should first conquer the stairs.

I have not written anything about Onjohn and Neal. They have been guest here for over a year. They are originally from India. Neal is a 14 year old diagnosed also with ALL. He has already had one bone marrow transplant and probably will need another one. His leukemia has returned in his spinal fluid. Onjohn is Neal’s father and has given up his career (chemical engineer) and made taking care of Neal his “job” now. The pay is probably not as good but oh what benefits!! Anyway, the reason that I am writing now about them is that Onjohn loves to walk in the late afternoon for exercise. He says he walks four miles in 52 minutes. He has talked Michael into walking with him the last two nights. I told Onjohn to please be easy with him because I didn’t have any bengay with me. Believe it or not, Michael hasn’t complained. Maybe he wants me to think that he is in good shape.

We so enjoyed our visitors this weekend, Ruth, Carlee and Conner (Carlee’s 8 month old).
Conner has to be one of the most contented babies that I have ever known. We spent most of Saturday with them. We gave them the grand tour of RMH and MD Anderson. Wesley was in clinic until late Saturday afternoon and was still “hung over” from benadryll. He tried desperately to stay awake so he could visit with them. After a while, he could no longer fight the heaviness of his eyes, so he excused himself to bed. Ruth offered to take all of us out to the Olive Garden. Wesley was out like a light and unarouseable. Michael said that he would stay with Wes so that we could have a girl’s night out. We took adorable Conner with us to be our chaperon. I know that you can guess what happened on our way home. Yea, you’re right. We got lost. BUT, I was not driving this time. Ruth was. I was suppose to be giving directions though. We were talking and I forgot to notice where we were to turn. So now they have had a tour of RMH, MDA and Houston. They came all this way to spend one day with us. They also came bearing gifts. A chocolate cake-yummy! FIFTEEN layers (I counted them), Alabama peanuts and other gifts from my co-workers at Dothan Surgery Center. Thanks Guys- I miss you all incredibly. What good friends! We love yall.

We are now looking forward to Memorial Day weekend. Grandmother, Granddaddy, Amber, Adam, Addison (the most beautiful baby in the world), and Trenton are coming. Trenton will be staying the summer here. I have missed him so much and can’t wait to catch up on all the hugs and kisses I’ve been missing. He has been so brave and strong through all of this. We talk to him daily on the phone and he never forgets to say “Tell Bubba that I love him”. They will have a lot of catching up to do also. Lisa has been so wonderful being a substitute mom but now I’m ready to do the tucking in and bedtime prayers.

This entire update so far has been about everybody else but Wesley. So here is the scoop on Wesley. Wesley has met some new friends here at RMH this past week. Sean is a 18 yo with a tumor in his chest cavity. He is scheduled for surgery Tuesday. James is 16 or 17 and is recuperating still in the hospital from surgery to remove a tumor from his pelvis. They have been hanging out in the TV room a lot and talking guy talk. (Girls and cars probably) Sean and his mother have joined us the past three nights in our devotion time but James’ family has been spending most of their time at the hospital. Our prayer list is forever growing. Wesley prays each night for his new friends and their families as well as asking God to help him face whatever the next day holds. Please remember all these boys in your prayers. Wesley is actually feeling pretty good. To look at him you wouldn’t realize that he has been through what he has. He is having to shampoo his hair now. Yep, you read it right HAIR! He has also had to shave at least 3 times within the last two weeks. Chest hair, eyebrows, eyelashes the works. We may need to consider changing his nickname from Duckman to Bear. (hehe) His energy level is up (except when under the influence of benadryll). His WBC’s have been anywhere from 0.6 to 1.1 with his transfusions. Our prayer is that these WBC’s are going straight to his lungs to rid him of the pneumonia. Tuesday is his big day. CT scan will show status of the pneumonia and a bone marrow biopsy to see how many blast (ooh I’ve not used that word in a long time) cells are in his marrow. Please pray, pray, pray. We have determined already that good or bad reports-our faith is not going to be altered. The results should be in Wednesday. Stay tuned for hopefully GREAT news!!!

Thank you, as always, for your prayers, love and support. We so appreciate it!

Hugs and love,

Michael, Angie, Trenton and Fuzzy Wesley

Friday, May 13, 2005 7:52 PM CDT

Dear Friends and Family,

We are in awe!! The response to the news cast Wednesday was unbelievable. We were told that the phones at the blood bank started ringing at 6:30am Thursday morning. There was such an influx of calls that one person was assigned to answer the phone. Also, Melissa from FOX said that they had received numerous calls. She did a recap of Wesley’s story on Thursday night due to the overwhelming response.

While Wesley and I sat in clinic today, several people recognized him from the news report. A number of people wrote his name down to pray for him. A man whom we have gotten to know from clinic said that he was going today and pre-screen for donation. An elderly lady came up to Wesley and hugged his neck. She asked if he was the young man on TV last night. She said that she was too old to give but her daughter had already decided that she was going to. That was just the icing on the cake. I left and went to the blood bank to get my screening done so that I could give tomorrow. I can’t begin to describe the absolute wave of emotion that hit me as I walked in. The room was almost completely packed. There were two young girls registering as I came to the front desk. When they said that they were there for the boy on TV, Wesley Dunchof, I could not hold back the tears. I introduced myself as Wesley’s momma and told them how much this meant to Wesley and our entire family. The technician then walked me around the room and introduced me to the other 10-15 people there to pre-screen for Wesley. As I sat in the lab chair and talked with the man beside me, he said that Wesley had touched his heart when he said that he just wanted to get better and someday have a good job and a family. This man said that he was sitting in his living room surrounded by his family and said “What can I do to help this boy?” He said that his wife told him “You can go give”. So here he was. It was such a moment to stop and thank God for answered prayer. There is no amount of money that can buy what these people have given to Wesley. My heart is so full of gratitude that I think it could just burst.

As excited as we are with God’s goodness, our hearts go out everyday to new guest here at RMH. As we see them come in with their luggage in hand, hoping for a miracle, we think back on the time when we were new here. So many people have helped us to become family and establish life time friendships. With each new acquaintance, we find an opportunity to share our faith and Wesley to share his mustard seeds. I know this may sound a little preachy, but if there is one lesson that I have learned from our time spent here, it’s that the best way to get over our own troubles and concerns is to focus on a bigger purpose and find a way to give back to others. I have vowed that I, myself will try to help others as best I can both here and when we return to Dothan. Be ready Dothan!

Tiffany, Brandon and Parker left today to go home. SOB! We miss them tremendously when they leave and start marking our calendars for the next time they return. We have so much fun spending time, joking and computerizing with them. Hurry back soon you guys.
We are expecting guest from Dothan this weekend. Ruth (my very good friend) and Carlee (her daughter) will be here Saturday morning. Wesley is especially trilled since they are BIG time WAR EAGLE fans. Michael and I will be out numbered.
So with insurmountable gratefulness and a bit of a melancholy feeling from our friends leaving today, we’re here, feeling healthy and ready to face whatever tomorrow may bring. I will try to get Wesley to post soon. He really does a good job, but he doesn’t think so. Thanks again, everyone, for your wonderful notes, emails and messages. We feel you with us.

Love in Christ,

Michael, Angie, Trenton and AUBURN FAN Wesley

Wednesday, May 11, 2005 11:35 PM CDT

Hello from Houston,

Today was a hopefully productive day. We have already shared with you the importance of Wesley receiving WBCs in order to help fight this persistent pneumonia. Until his pneumonia is under control he is ineligible for the transplant. Tiffany and Wesley worked diligently Monday night on a press release to ask for media assistance in getting the word out for his need. They also posted a flyer at RMH requesting other house guest to come together and help in this cause. The response has been overwhelming. As we were having our family devotion last night, the phone was continuously ringing. We don’t answer the phone at all during this time. Our prayer was for God to send us donors. After our devotion we played our messages. There were four RMH guest asking for information about WBC donation. I know God answers prayer, but gee wiz that was FAST!! The prayers continued to be answered when Southwest Airlines (a huge supporter of RMH) came to prepare dinner for everyone Tuesday. One of the flight attendants overheard Tiff and I discussing Wesley’s need for platelets and WBC’s. She has undergone a bone marrow transplant herself and is a cancer survivor. Without hesitation, she offered to round up the SWA troops to come together in Wesley’s behalf. Well if that was not enough to prove that our God is in control of our every need, the prayers continued to be answered today. The local FOX news station actually came to MD Anderson to interview Wesley. We had to call our PR director Tiff to hurry up to MD to hold our hands. Wesley talked about his diagnosis, hopes for his future and he of course professed his faith by sharing the story of his mustard seed. He spoke of how this mustard seed is a daily reminder that with faith the size of a grain of mustard seed, you can move a mountain. He said that he keeps that verse in his heart and in his pocket. He has been sharing these mustard seed coins with everyone he comes in contact in clinic and now he has shared the mustard seed story with the whole city of Houston, Texas.

We have been so blessed with donors who have given their love, time, and blood to help save my son. There are not enough words to express my gratitude for this gift. I know that Wesley has thanked you in his previous update. Wesley and I have had numerous heartfelt discussions. He says “Momma, I can’t believe that people are willing to do this for me”. It amazes me also.

Please continue to pray for Wesley and his generous donors. God Bless You All.

With All our Love,

Michael, Angie, Trenton and “Movie Star” Wesley

PS Check out the new pics on Wesley’s online photo album. Pics with the Osteens and a few from prom. You can register on his album and it will email you when we update photos. No $$$ involved.

Sunday, May 8, 2005 9:57 PM CDT

Hi Everyone,

I know, I know it has been a while since I updated. It has really been a tough week. Grandmother and Granddaddy both got really sick with a stomach virus. When they realized they were sick they went to stay in a motel and made arrangements to fly home the following day to prevent Wesley from being exposed. Too late (barf), Wesley has been nauseated and vomiting every day since. Monday night, I had to receive my Neupogen injection (RX to boost my WBC’s so you can donate) and who better to give it to me than Wesley (OUCH)! He really did a great job. I guess he’s been taking notes. Wesley says it is better to give than to receive -hehe! That was also the night Wes was so sick that we made an ER run. We got there at 10:00 pm, finally got put into a room at 2:00 am. He got IV hydration, anti-nausea medications a chest and abdominal ultrasound. He was discharged at 5:30am feeling some what better. I had to be at the MD Anderson Blood Bank to donate WBC’s at 7:30. Just time for a quick bath and a biscuit. This happened to be the night that Tiffany and Parker returned. So the following day we were totally wiped out.

Wesley has already expressed his need for platelets and WBC’s in his last few updates. We have had many people step up to the plate, roll up their sleeves and give this selfless gift.
Every time Wesley receives blood products, we know that somewhere, someone was willing to share this life giving gift. Words can’t express our gratitude. For all the details on Wesleys need and the requirements to help him out see Tiff’s post following my little update.

Ok, so here is the medical rundown for the week. Wes had his CT on Friday. He said that he prayed that it would be clear the whole time that he was lying there during the scan. We are still waiting to hear the results tomorrow afternoon. He has an appointment with the Transplant Doctor tomorrow too. He will finish this series of Chemo on Tues. followed by a two day break. Sadly, when we say break that is only from Chemo. His days will still include his anti fungal IV RX, any needed blood product, diagnostic tests and MD visits. Usually equaling about 8-10 hours a day hanging out at MD Anderson. Sounds like fun huh! As my pal Tiff says…”Calgon Drown Me!”

Tiff and I have stayed busy at night visiting and cooking some “home cooked” meals in the kitchen. Michael and the boys have been hanging close by to supervise. Michael and Parker can put the food away. Wesley is trying but not doing to great. Pray Wesleys appetite increases. Tonight we took a break from cooking and were treated to dinner for Mother’s Day. We headed to Olive Garden before the dinner rush we thought - NOT! It was PACKED! So, we headed down the road and settled for Luby’s (Piccadilly want to be). About the time we sat down and took all our food off our trays the monsoon hit in Houston. The wind was whippin’, trees were bending, streets were flooding and transformers were poppin’. Tiff called Brandin to have him check the radar for us. First he told us to hang tight and stay put. There were tornado and flood warnings everywhere. Then he called and told us there was a little break and we better get going. We looked out the window and thought he was CRAZY! We decided to go for it anyway. All the street lights were out, the roads were flooded and the rain was still blinding. We “felt” out way back to RMH. As we turned onto Holcombe we could see the concrete pond (storm drain canal) next to the house was about to overflow. What a evening, maybe we should have stayed in and cooked!

In our mad dash to make it into the house somewhat dry Michael dropped his cell phone into a puddle. He accidentally closed his van door. Guess where the keys were - not in his pocket. Well, the master (self proclaimed) finally broke into “The Hulk” (his precious green conversion van) after about 2 hours and 1 prayer ****tah dah*** KEYS! Tomorrow I bet we all have a set of extra keys to his baby aka “The Hulk”. When we dried off in our room Tiff and Parker came over to hang out, watch the rain and open our Mother’s Day goodies. I think Wesley must have had some help from some of his Angles out there. I got smell goods, candles, house shoes, a book, pictures of Addison & Wes and $$$ to get my hair done. Parker, my little buddy must have thought I needed to relax so he got me a back scratcher, some chocolates and Tiff and I matching bracelets. I am so blessed to have received so many wonderful things this year. The most precious gifts I got, however, were the “Happy Mother’s Day….I love you’s” from Amber, Wesley, Trenton and Mona. There is not greater blessing than the love from your children.

While we were hanging out and attempting to write this update Tiff was paged on the loud speaker. Wesley called the front desk and said “Hello, this is Tiffany” in his deepest voice. It was Kathy (RMH director and Prom photographer) on the line and said she wanted to come show us something. We quickly picked up our room. Parker and I hid the infamous worms around the room to play a joke on her like we did Grandmother. She walked in and snickered….we tried to convince her all the rain brought the worms in. On the third floor no doubt. Determined weren’t they (hehe). So, our surprise was, are you sitting down, WE HAVE PICTURES!!! She gave Wesley a photo album with about 90 prom pictures and a CD of our night with Joel Osteen. They were Awesome. We are so thankful she gave her time, talent and expenses to preserve the memories of those meaningful events for us to cherish forever. We are so excited to have them. As soon as we can find a way to share them with you we will, I promise.

I have now advanced my “Houston” driving. I have even attempted taking “The Hulk” for a spin. Look out Metro Tram, I’m almost as big as you now! Don’t ask my passengers opinions on this matter.

We’ll try our best not to go so long between updates next time. Please continue to pray for Wesley to find strength to face his days, positive CT report, and to remain a febrile (NO fever). Sorry, Tiff and I joke frequently about our “cancer lingo”. Good Night and Happy Mothers Day!

Love and Prayers,
Michael, Angie, Trenton and My Fighting Wesley

****************************************
Monday, May 9, 2005 9:58PM

Hi everyone!
This is Amber, Wes's sissy!

I have just talked to Momma and she wanted me to relay the good news to everyone. The appointment with the transplant doctor went really good today. The CT Scan showed that the pneumonia lesions are getting smaller! Praise God! The doctor said the WBC transfusions are helping get rid of the pneumonia. Isn't God good? He wants Wesley to continue to get WBC's daily. Thank you to the people who have donated!

The doctor also said that before today's results he had very little to go before the Transplant Board with. He will go before them this week with Wesley's case and hopefully schedule a transplant in 3 to 4 weeks!

Please keep praying!
Love,
Amber

Saturday, May 7, 2005 10:29 PM CDT

Hello everyone it is me Wes again

There has not been a lot of change sense the last time I posted I am now getting wbc and it is helping I think. I had a ct scan yesterday and we will find out the results Mon. sorry we have not updated someone has misplaced my power cord to the computer so we have been with out it. But I am planning on going to get another real soon. Thanks to all the people who have gave wbc’s and platelets for me. Sorry to all the people at home but you have to be here to give the docs say that they are to fragile to ship and they have no shelf life. Thank you to all the people who have helped out with mothers day. Well I got to go got another long day in the clinic tomorrow man I don’t even get holidays off lol.

I love each and everyone of yall

Love always
Wes

Monday, May 2, 2005 0:27 AM CDT

Hello everyone this is Wes,
Sorry that I have not updated I just ain't any good at this so I leave it up to the pros AKA Mom and Tiff. Mom is bushed and Tiff is packing so I guess I will give it a shot . First I just want to say thanks to everyone who has donated platelets. Thank you is not the word-I am humbled to you. But I once again ask for your help if you are in Houston. The docs say that I need white blood cells and that it is very rare that they give them. They say that I need at least 10 donors. It is much like a platelet donating they do almost the same thing but just a little more pre work. If u would like info on it u can contact M.D Anderson blood bank or you can e mail me @ wd92986@aol.com , my mom @ aadams216@aol.com or Tiff @ project parker@sbcglobal.net. I would really appreciate your help. Thanks also to Tiff’s friend Christi too for sending all her friends to come and donate for me. I need anyone who can come and donate whenever you can.

Well I know that they try to put something funny in this so I will try. Friday morning we once again had to be at the clinic at 7:00 and the night before we made the mistake of not going to bed early so while sitting in the clinic Mama looked at me and said that she was really tired and that she was going to sleep while I was getting my chemo. So they called me back to draw my blood . When I returned I found Mama asleep on this total strangers shoulder. The woman looked at me like she was begging for help without saying anything. So I woke Mama up and asked her if she fell asleep. When she realized what she had done, she ask the lady if she was snoring. The lady luckily said that she wasn’t. Mama then said “Oh well if I did, that would have meant that I was sleeping good“.

Another funny thing that happened is that as you all probably know we all like to play tricks on each other here at night so early that afternoon we walked to an outdoor and sporting goods store. Well Grandmamma and Granddaddy had to use the restroom. So Mama and I were looking in the fishing part of the store and saw some fake worms. So we thought it would be pretty funny to scare Grandmamma that night. We bought them and placed them under her covers before she crawled into bed. When she finally crawled in she let out the loudest scream and jumped out of the bed. I have never seen her get up so fast in my life. It was really funny.

Now here is the tear jerker for this update,mama was giving her white blood today. Fifteen min.after she sat down to give,another man sat down beside her and began to give platelets. When Mama was done donating,the nurse that was taking care of the man came up to talk to her. She told her that the man next to you is giving platelets, Then she said that he was giving platelets for Wesley Dunchof. Mama began to cry and she walked back there and thanked him. I just want to say thank you to him too who ever you were. He told Mama he was a friend of Christi’s (Michael).

I feel so special having all the support from here and home! I just want to say thank you to my DHS band for the concert last night I heard it was great. You know that we are the greatest band in tiger land. To Mr. Mack and Mrs. C, ya’ll are like family to me and I look up and respect ya’ll tremendously!!

We have all told so many stories about the people we have met here in Houston. Well, I met two of the kindest men this week while we were out of the RMH. We were out for our week away so we can start our next 45 days. One guy is the shuttle bus driver. We checked out of the motel this morning and he stopped us on the way out and had a prayer right there in the motel lobby. He told Mama when he drops all the patients off at the Medical Center everyday he says a prayer for all of them. He is one of the nicest men! I also met this total stranger that is there taking care of his Mom. She has a large tumor in her left leg. Anyway, he said that first thing Monday he was going to start the process of donating WBC‘s for me. I just can’t believe total strangers would care that much for little old me.God has to been to me.

I just want to thank everybody for their thoughts, prayers and gifts. It shows me that there are still so many good people out there. Please don’t stop writing me it really picks me up when I hear from all of you.

Oh yeah, we got moved back into RMH yesterday. We are in room 30 for anyone who was wondering. Parker will be back tomorrow too.

Well goodnight for now,
Wes

PS: Me and Parker would really like to do something for our Moms (Mama and Tiff) for Mothers Day. So if any of you would like to help I would really appreciate it. They really deserve it. You can e mail me @wd92986@aol.com or call my cell. Thanks again.

Tuesday, April 26, 2005 10:30 PM CDT

Hi Friends,

We are still here at the Holiday Inn for our 1 week away from RMH. Our week will be up Saturday. Hopefully we will be able to get back in that day. We are making friends here also. Several of the guest here are MD Anderson patients. On the shuttle bus we hear everyone’s beast (cancer) story. One thing that I have realized is that cancer can affect every age, sex, race and social status. Everyone that I talk to (either on the shuttle bus or in clinic) have one thing in common. DETERMINATION. It is a tough battle, but these people fight as hard as they possibly can daily. The shuttle bus driver told us today that each day when everyone unloads to go to the various clinics and the bus is empty, that he says a prayer that God will bless every patient that was on the bus that day. Cancer not only effects the patients. It effects everyone-family members, friends, co-workers and casual acquaintances.

Wesley feels uncomfortable going out anywhere in public because he has to wear his duck bill (face mask). But there are so many people in this medical community that are here specifically due to cancer. Most people understand the importance. Almost everyone at the hospital is wearing one because of the depressed immunity that results from chemo. In fact, today Grandmother sat with Wesley while Granddaddy and I went to the cafeteria. Every time he saw someone with a duck bill on he said “there’s Wesley”. It’s easy to think that because all you can see is eyes behind the mask.

I have taught Grandmother, who is computer illiterate, how to play solitaire. She is now ADDICTED! She gets all excited when she sees the fireworks exploding when she has won. Granddaddy just lays back in the bed pouting. He says that Grandmother has forgotten all about him since we got her “hooked on that thing”. She made a vow to him last night that she wouldn’t play today. But this afternoon, she got Granddaddy watching a movie and before you know it she was sitting at the desk clicking and dragging. Next, I’ll introduce her to the world of internet. Maybe she will be updating some day soon. I think she will be asking Santa Claus for a computer this coming year.

Wesley finished this series of chemo today. He had to get his daily dose of anti-fungal but he had the day off from platelets and blood. His levels were low but not too low to be transfused. His nurse told me today that I might want to think about donating platelets. Even though we are not the same type, they would give Wesley credit for me donating. The significance of this is that when he gets platelets now he gets them from multiple donors all mixed into one unit. There is a high risk of developing antibodies that way. With “credits” he would be guaranteed to receive a unit of single donor platelets. This was the first I had heard of this. So I immediately called and scheduled an appointment. I was able to be worked in this afternoon. It is a lot more involved than donating blood. A three hour procedure and two IV lines. The blood is taken from one site, then ran through a contraption that separates the blood from the platelets. The platelets are collected in a bag and the remaining blood is returned to the donor in the second IV line. HUGE needles! It was not the most pleasant IV that I have ever had. But then again, is any IV good? It makes me a more sympathetic nurse and definitely a more sympathetic mother. The needles and the discomfort was nothing to compare to the needles used for the multiple bone marrow biopsies and lumbar punctures that Wesley has had. So after the nurse disconnected the IV’s I asked “how soon can I donate again?” I’ll be back again Friday.

My co-cancer mother and great friend Tiff got wind of the need for platelet donors and the wheels are already in motion for a platelet drive here in Houston for Wesley. She is amazing! She is my mentor. One night last week, I was unable to sleep. I called 6 East (oncology floor in Dothan where Wesley was treated initially) and talked to Shirley, the head nurse. I told her to get ready. When I get home, I WILL BE ON A MISSION! I don’t know exactly what or how but I am determined to help other families facing this beast. Who better to learn from than Tiffany?

OK, the tear jerker for this update. Emma, my niece, was given an assignment for school. She had to write a poem that tells a story. She emailed this poem that she wrote to me and I had to share it with all of you.

WESLEY’S JOURNEY
By Emma Clingerman

The first of October was a very sad day.
Wesley, my cousin, may not make it, they say.
He’s terminally ill, was the report that we got,
I did not believe it, not for a second, I did not.

How could this be? He is too young to die
He is only 18, I said with a sigh.
He was given a month or possibly two
To live and breathe as we all do.

Determined and strong, Wesley is here
Six months later, with little fear.
His faith in God is truly real,
His commitment to Him, we all can feel.

What will happen, suppose we say,
Only God knows to this day.
It is in God’s hands, He’s in control
We trust in Him with our very soul.

We don’t give up, we continue to pray
For God’s gentle touch to be on the way.
Wes, make a promise to do your best
And allow God to do the rest.

We love you Wesley, we do, we do.
Keep your head high, we will too.
We will see you soon, not soon enough
Please stay strong, please stay tough.

I think she deserves an A what about you guys? If you would like, please sign the guest book and let her know what you think. She will get a kick out of it.

Please continue to pray along with us for Wesley’s healing.

"For I know the plans I have for you," says the Lord. "They are plans for good and not for disaster, to give you a future and a hope. In those days when you pray, I will listen. If you look for Me in earnest, you will find Me when you seek Me." Jeremiah 29:11-13

Love to All,

Michael, Angie, Trenton and Determined Wesley

Sunday, April 24, 2005 3:44 PM CDT

Good morning all,

It is Sunday morning and guess where we are. Clinic. We surely do miss being able to attend church on Sundays. I told Wesley that we have church every night in our room. But we do miss the fellowship.

We had so much fun this past week with Cricket, Jessica, Susan and Chanci. I decided to rent a van so that we could go to dinner together and back and forth to the airport. That probably was not the best idea because that meant me behind the wheel again in Houston. Not a good combination! We picked our guest up from the airport Thursday afternoon. I talked Cricket into being my co-pilot and navigator. On the way home, Wesley had found a extra remote door looker thingy. We were not aware he had found it. He kept locking and unlocking the doors. He had Cricket and I about convinced that we had a possessed vehicle. Thursday night we had dinner at Outback (quiet a change from the pizza and pasta we are used to at RMH). Getting there was not very difficult aside from the frequent last minute “merging” that I had to do. Against my better judgment, I “merged” onto the Amtrak lane to be able to make a turn. I was afraid that the tram would come up behind me even though the all clear light was on. Without my knowing it, I was riding on the road bumpers that separate the Amtrak lane and the other lanes. With everyone screaming, I thought the bumping was from a tram pushing from behind us. Needless to say, I joined in with the screaming and tried to make another quick “merge” back onto the next lane. By the time I realized that it was just the road bumpers, it was too late to make the turn. Well, that was good for a laugh from everyone. But the joke was on me. It was nightfall when we had finished dinner. Not being familiar with the van, and being in a lighted parking lot, we could not tell if the headlights were on or off. Susan and Cricket had to literally get out and go around to the front of the car to see if the lights were on. Once we were assured we had functioning headlights we were ready to make our trip back home to RMH. After giving our guest an “unintentional” tour of Houston, we made it home about an hour later. The adults settled down in the family room and visited with each other and also with other RMH families. The “kids” spent the rest of their evening in the game room.

While shopping Saturday Chanci saw her first nun and priest. She was so amazed by them that she circled back in to mall to get a second glance. Even though Wesley was unable to go shopping with “the girls”, he did benefit from the trip. Jessica bought him a “Bubba” shirt. SO appropriate, since that is what she calls him. Jessica had asked Haley, her sister, what she wanted her to bring her home. Haley said “all I want you to bring me home is Wesley”. AAWWW how sweet. Saturday night we had dinner at KFC. A lot less $$$ than the Outback and a lot closer to RMH. No interstate, no “merging”. Thank goodness. The girls bribed Wesley into eating more than he had eaten in the last week. We need to keep them here!!

Saturday afternoon we had to say good-byes again. It doesn’t get any easier. Hugs, love and good-byes were given with tear stained eyes. Sorry Haley, Wesley couldn’t come home this visit. Wesley will be so ecstatic when it is us climbing onto that airplane-healthy and healed. We love to have visitors!! So anyone wanting to take a vacation, please consider Houston. We would love to see you!!

We are still holding on tightly to Grandmother and Granddaddy. Grandmother is exhausted though. We have decided to move from the RMH for our week that we have to get out every 45 days. Grandmother has dusted, washed, vacuumed, scrubbed the room at RMH all day yesterday and today. She will be happy to have maid service at the Holiday Inn. Our new friend at RMH, Thomas, has offered to store, in his room, some of our big items (television with rabbit ears, floor fan, plastic rolling drawers, etc.). It is still a difficult task-moving all the luggage, medical supplies and other things we have mounted up over time. We will definitely miss all our friends here this coming week. But by us moving out now, we will be able to move back in RMH during the time that Tiff and Parker will be back.

We have started reading Joel Osteen’s book Your Best Life Now. That was part of our “church” today. One of the quotes he made in the second chapter was “This could be the day I see my miracle”. He went on to say that our attitude should be, “God I know that You are at work in my life. Although the miracle I’ve been watching for didn’t happen today, I know I’m one day closer to it! I’m one day closer to my answered prayer, and I’m not going to get upset. I’ll not allow myself to become discouraged. I know that Your timing is perfect, so I’m going to stay in an attitude of faith and keep trusting You to do what is best.” This is certainly our prayer. We are learning so much from reading this amazing book and highly recommend it to everyone!!

Wesley has had a few short clinic days. His Hgb is getting lower and he will more than likely have to get blood tomorrow. His plts are low also but not to transfusion level. His WBC’s are maintaining at 0.1 which is good to keep blast cells away but keeps him in a state of high susceptibility. He just has to wear his mask constantly and wash his hands all the time. Two more days of chemo left on this regimen. Then two days off and then he will start over again. We are unsure what next week will hold for us but we know the person who does know. We are putting all our faith in Him. Praying constantly that “this is the day Wesley sees his miracle”.

Love to all,

Michael, Angie, Trenton and Miracle in Progress Wesley aka Bubba

Thursday, April 21, 2005 11:12 PM CDT

Dear Everyone,

Sorry for the belated update. I was trying to wait until we had some concrete news. We were told Monday that Wesley would be admitted this coming Sunday for transplant preparation with transplant scheduled on the 2nd of May. This was pending the results of his CT scan and if the donor was available at that time. After questioning every nurse, coordinator and anyone else that darted his door Tuesday for the results of the CT, we left that evening with no results. So we waited patiently until today. Wesley had an appointment with his clinic doctor this afternoon. He reviewed the scan and told us that his pneumonia is still there. Some of the lesions were smaller but some had grown. He also told us that for some reason or another the donor was unavailable on that date. As a result his transplant would again be delayed. We have to be reminded that we are operating on God’s clock not ours.

New plan is to change his anti-fungal medications, a bronchoscopy and a pulmunology consult scheduled for next week. He will have to begin his next 5 days of chemo this Friday. Monday and Tuesday night we did not get home from clinic until 7:30pm. Today we were done by 4:00. Wesley waited all day for a phone call from our dear friend Mrs. Susan. She called while we were waiting for the doctor to come in. She had made it in to Houston and was going to catch the hotel shuttle bus to the clinic. The shuttle bus didn’t run for another 30 min so she took off walking. She walked all the way to the clinic from the hotel asking people all along “How do I get to MD Anderson?” She was as eager to see Wesley as he was to see her. We all sat around and enjoyed pizza and spending time with each other. Susan caught Wesley up on everything going on in Dothan. Sounded like a soap opera to me. Who is going out with who. Who broke up with who. Wesley feels like he is back in the loop now.

Wesley still sleeps most of the day (benadryl fixes). The afternoons he feels fairly well with occasional bouts of nausea and vomiting. At 11:00 pm until around 3:00 am he is awake and wants to party. That is fine except he wants all of us to party with him. He is constantly playing pranks. We never know what we will find hiding in our beds. Tonight he was on the computer down stairs and somehow made a doorbell sound on the computer. He had Grandmother going door to door looking to see where the doorbell was coming from. He really gets a kick out of playing jokes. Sounds like he spent too much time with Uncle Dwayne.

We are missing Tiff and Parker so much. We are counting the days until they return. There has been a huge influx of new families at the RMH. Our prayer list continues to grow with every new acquaintance. Please join us in prayer for a sweet one year old named Cassidy. She has stage 3 cancer with a tumor from nipple line to nipple line. She has started her chemo this week and her Grandfather says that she is doing remarkable with it. Also remember an adorable little boy named Tate. He is to undergo heart surgery tomorrow for a congenital heart defect. He is so full of energy and runs all around RMH like typical 2 1/2 year old. I have enjoyed talking with his mother and have been encouraged by the amount of faith that they have. Another guest here is a pregnant woman whose baby also has a congenital heart defect. I have been talking at length with her. Giving her some of my Lamaze lectures. She wants to deliver naturally without an epidural. I’ve heard tonight that she was admitted today for induction. My prayers go out for her baby and her…especially if she is going el natural. OOOUUCCHH! Please remember these precious children as well as my precious baby.

Looking forward to more visitors from Dothan. Jessica, Cricket and Chanci will fly in tomorrow and will stay until Saturday. We are hoping for early clinic days and feel good evenings so Wesley can enjoy their visit. I’m really tired tonight but Wesley is bright eyed and bushy tailed. I am going to try to convince him to go to sleep early tonight. Wish me luck.

So that’s the scoop for now. Still praying for optimal conditions for the transplant. I’ll let you know more as things progress.

Much love from us,

Michael, Angie, Trenton and Night Owl Wesley

Sunday, April 17, 2005 5:14 PM CDT

Dear Everyone,

Hope this update finds everyone doing well. We miss you all a bunch. So much that we see people here everyday that reminds us of people back home. I guess it is true that everybody has a twin. Today is Sunday and we actually are home from clinic by 2:00 pm. Yahoo! Uncle Dwayne has been going to clinic with Wesley the past week. The clinic days have been somewhat early. Dwayne takes credit for getting the nurses on the ball. BUT I was with him today so I told Dwayne that it wasn’t just him. He says we got out early today because he had already trained the nurses. Anyway, I guess I’ll give him the credit.

Wesley has actually felt pretty good this past week. We have taken some afternoon drives. (Dwayne driving-not me) I turned in my rental car due to the cash register kept ching- chinging everyday. So we are back to taxi’s. That’s alright though, we did that the first two months we were here. We just were getting spoiled with our little VW Jetta. Hopefully we will have Wesley’s truck over here before long.

We all had lunch/dinner yesterday at Shoney’s. (3:00 pm) Everyone but Wesley had the buffet. Granddaddy and Uncle Dwayne got their money’s worth. Wesley ate about 3 bites off of a cheeseburger and he was done. His appetite is at an all time low. He has been told to increase his calories. To add extra butter and jelly to his toast, eat ice cream and drink milk shakes. I sure wish someone would tell me to do that! The clinic nurses are watching his weight closely. So far he is holding at about 130 lbs. We spent last night down stairs playing Mexican railroad. That’s a domino game for those of you who haven’t ever heard of it. One of the guest that was watching us play thought that it was a game that we learned from the many Mexicans here. Uncle Dwayne was unusually quiet. When I asked him why? He said “cause I’m afraid what I say will end up on the web site”.

On the subject of Uncle Dwayne, he had to leave us this morning to go home. He drove Wesley and myself to clinic. We ALL hugged, cried and said our good-byes. It was another one of those emotional moments. He made Wesley promise him that he would keep up the fight and not give up. Wesley made that promise so we are going to hold him to it. Thank you Uncle Dwayne for everything this past week. We have had a ball!! It’s getting harder and harder to say good-bye to people who come to visit. We want to hold onto everyone. Wesley is looking forward to Mrs. Susan’s visit this coming week. Susan, You may want to pack extra clothes in case we hold you hostage. Grandmother and Granddaddy are still with us-hopefully for a while.

Granddaddy is catching up with his napping and Grandmother is finding things to keep her busy. She has mended and hemmed, cleaned and washed everything. It’s so nice to come back to a clean room with beds made. They have mingled with other families here (the English speaking ones). I’ve told Granddaddy that he might as well start learning Spanish and to like Mexican food cause we’re not letting him go home any time soon.

Today, Wesley’s lab work was WBC’s 0.2, No blast noted still in peripheral blood!! Hgb 9.1 and Plts 18 (No blood or platelets needed today). Tomorrow is a busy day. We start early with the CT scan, then to Chest X-ray, labs, clinic and afternoon appointments. Besides very little energy and the decrease in appetite, Wesley is doing fairly well. He told me today, “Momma, I won’t know how to live a normal life after all of this is over”. I assured him that it wouldn’t take long to get back to the “Dothan way of life“. In the meantime, Wesley is going to be working on keeping his promise to Uncle Dwayne and everyone else to fight and win this battle with God’s help. We’ll keep thinking positive, counting our blessings and sending our love and prayers to all of our friends out here who have lost or are still fighting this GIANT (Goliath) battle. God please send us some stones!

Thanks for the love, caring and prayers. It makes a HUGE difference! And once again, Thank you Uncle Dwayne. We think of all of you all of the time.

Hugs and Love,

Michael, Angie, Trenton and “Little David” Wesley

Friday, April 15, 2005 8:06 PM CDT

Friday night update,

Yesterday and today was spent at, guess where. CLINIC!! Thursday night until 7:00 pm and today until 2:00 pm. Wesley had to have blood and platelets Thursday but no blood products today at all. It sure does makes a difference in the time we get out of clinic. Today he was started back on Chemo round ???? I’ve lost count. Same song second verse. Same chem. as last week. Beginning of “five days on then two days off.” I’m not really sure what is after that. He has to repeat his Chest X-Ray and CT scan Monday to determine the status of his pneumonia. He still has absolutely NO symptoms of pneumonia. Today WBC’s were 0.1 with NO peripheral blast noted. I’m not sure when the next bone marrow aspiration/ biopsy will be. Wesley is waiting anxiously.

Now to the fun stuff. We tried to go today to the bank drive through to deposit a check. We were riding in Dwayne’s monster truck (dually). We got to a certain point with cars pulling in behind us and then realized that the monster truck was not going to fit through the line without taking the back fenders off or the teller tubes. So we had to get out and back all the cars up to get out. We sure do need Wesley’s S-10 here. Of course we wouldn’t be “king of the road” like we are when we are sitting elevated higher than anyone else.

Still not getting much sleep at night due to late night conversations, teasing, and prank playing. No one is safe with Dwayne around. You have to sleep with one eye open. Wesley feels the effects early in the mornings of not getting to bed until late. I have to pry him out of bed. He practically sleep walks in to clinic to have his lab work drawn. As soon as he gets to a clinic bed, his shoes come off, his socks come off and he is out for several hours. We really miss all of you in-patient nurses on 12 southwest, but we are enjoying this LONG period of time out of the hospital. KNOCK ON WOOD. The outpatient nurses are always apologizing for the long days. We just tell them this is the only reason we are here in Houston. We have nothing else to do. Tonight we are all just hanging out in a TV room relaxing, watching The Fugitive and enjoying each other’s company.

I’m sure Donna is wanting Dwayne home ASAP. She has broken down three times in two days on two different vehicles. Stranded on the interstate with children. I think a new car may be on the horizon. He will be leaving us Sunday. We will miss him but he needs to go car shopping.

Parker and family left today going home for two weeks. What will we do without them? They truly have become like family. Tiffany says she thinks of Wesley as a little brother. I think she is trying to imply that I am old enough to be her mother. NOT! Our sympathy and prayers goes with them as they will be burying her grandmother this weekend. Hurry back Tiff and precious Parker, I miss you already!!

Tomorrow again is lab work, chemo, anti-everythings. Same ol-same ol. Just hanging out here in Houston waiting on that miracle. Thank you for your continued calls, cards, support and prayers. We love you!

With love and appreciation,

Michael, Angie, Trenton, Sleepy Wesley

p.s. after I read this to Wesley he said he sure was glad I didn’t call him “Dopey” Wesley (get it? The Seven Dwarfs-haha)

Thursday, April 14, 2005 0:47 AM CDT

Hi Again,

There is not a whole lot to update on tonight. We are still in the same hum-drum routine. Hum-drum is not all bad however. At least we can sort of predict our days. The past couple of days were filled with the same routine of lab tests, blood products, chemo, preventative medications and doctor visits. Wesley’s labs today showed WBC’s 0.2 (still very vulnerable) Hgb 8.1, Platelets 12 and Blast cells were 50 percent (periferal blood-not marrow). He didn’t get blood or platelets today, but they have been ordered for first thing in the morning. He is now on his two days off chemo. He will restart another series Friday. It’s a joke here that if the chemo don’t get you the schedule will.

Emotionally, Wesley is doing better. Lisa, from Friends of Allie (FOA) came over to visit Monday night. We had fun sitting around the table and sharing birth stories as Wesley and Brandon was getting grossed out. A hospital visitation counselor from Lakewood Church came to RMH last night and talked at length with both of us. She was very compassionate and encouraging. We clung to every word she said because, you see, she also has experienced the same thing. Her child was 13, I believe, and was diagnosed with cancer. She shared with us her feelings during that difficult time. She lost her child to cancer but God has used her to minister to children and their parents experiencing this same situation. Our visit was truly a blessing. We also had the privilege of meeting Tiffany’s sister. She is the TOTAL opposite of Tiffany. She is very quiet. But she has the same lovable nature as Tiffany. Our circle of friends grow larger and larger everyday.

The life of the party this week is still Uncle Dwayne. He is keeping us all in stitches. The one thing that has really bothered him is a statue that is directly across from MD Anderson. It is a statue of a man, a woman and a baby. (None wearing clothing) He commented that this was the most obscene thing he had seen and before he leaves he wanted to paint some clothes on them. I told him that was what a lot of people call art. He said that he didn’t appreciate that kind of art appreciation. One night we were discussing various types of leukemia with other members of RMH. We got on the topic of the Philadelphia chromosome that is found in some difficult to manage leukemia’s. He said, “Well, we know Wesley don’t have that because he has never been to Philadelphia”. Our late night talks, I think, are exhausting Uncle Dwayne. He is not used to staying up past 10:00. We have not been to sleep before 12:00 since he has been here. He calls this “Sleepless in Houston”. For anyone who knows our Uncle Bob, Dwayne is cut out of the same mold. You know what they say, “Laughter is the best medicine.” Wesley has gotten several dosages of that medicine this week. Thank you Aunt Donna, Lauren, Josh, Caleb and Micah for letting us borrow your daddy this week. We really are enjoying him.

We also are enjoying Grandmother and Granddaddy still being here with us. We have decided that we are going to keep them here. I think Granddaddy is starting to believe us. He is making plans to go shopping for cowboy boots and hat. Grandmother has gotten our room neat and organized, keeps our laundry done, our bathroom cleaned and we’re getting a lot of TLC. It’s settled, we ARE keeping them!

Oh, how we miss our friends and family. Hoping to see you all soon.
Please pray everyday, Our miracle’s on the way!

Love in Christ,

Michael, Angie, Trenton and Laughing Wesley

Monday, April 11, 2005 10:08 PM CDT

Hello Again Everyone,

I’ve not updated since Friday night. I promise I have good intentions. One would think that life would slow down with Wesley out of the hospital, but somehow that isn’t the case. These LONG clinic days take a toll on both of us.

After getting out of clinic actually a little early Sunday afternoon, Wesley and I decided to go for a drive. We stayed to the 35 mph roads. I should say road. We got on one road and never made any turns in fear of getting lost. We saw a Krispy Kreme on the opposite side of the road. Wesley had been craving donuts. We decided that we would stop when we were coming back so we wouldn‘t have to cross over. We drove for miles until we saw major interstates, twist, turns and speeding cars ahead. We quickly made a U turn and headed the opposite direction. We got back to Krispy Kremes only to find out that they closed at 2:00 pm and it was now 2:30. BUMMER. My thighs were thankful but Wesley was disappointed. Later Sunday night more special guests arrived (Granddaddy, Grandmother and Uncle Dwayne). Dwayne had driven his monster truck-Dodge Duelly. How Grandmother and Granddaddy climbed up in that thing is beyond me. Dwayne said the trip was uneventful until an angry driver pulled up and gave him the half of a peace sign. HOW RUDE! Anyway they made it safe and sound and we are so glad to have them here with us.

We settled into bed at 12:00 MN. Grandmother and Granddaddy in one bed, Wesley had to bunk with me. Grandmother had to scold us for laughing into the wee hours of the morning. Now onto Uncle Dwayne. The laughing and giggling didn’t seem to bother him too much. I don’t think he could have even heard us over his own snoring. Even though he had to sleep on a blow up mattress (feet hanging over the edge) he was getting some pretty sound sleep.

Thank God for Uncle Dwayne. He agreed to take Wesley to clinic today so I slept in until 10:00. Labs fairly stable. Here again we are not looking at them that closely now days. He did need platelets. Those nasty blasts cells reared their ugly heads again today at 55 percent. I took our favorite 2 block stroll up to the clinic to deliver Wesley a BANANA AND COOL RANCH DORITO SANDWICH (yes you did read that correct - chips and bananas between bread - new phrase - chemo cravings) and of course relieve Uncle Dwayne. After his 9 ½ hour clinic day, he was ready to head to the home away from home (aka. RMH) to enjoy his grandparents and Uncle. Oh yeah and don't forget his 2 year old "biggest fan" - Miss Madi who waited for her "Wessey" all day! So, knowing Parkers love of BIG TRUCKS Dwayne loaded him up in his Duelly to play "taxi" and give us a ride. Parker even brought me a flower...been a while since a man has done that one...uuummm!

We had an exciting evening!!! We all loaded up-literally (Uncle Dwayne, Grandmother, Granddaddy, Wesley, Tiffany and myself) and went to Wal-Mart. Count them-There were six full sized adults in the monster truck with still room to spare. Tiffany’s 5 ft 2 in statue had to be hoisted up into the truck with her infamous MDA cup full of none other than coffee-no wonder she can burn the midnight oil. Tiff was once again our tour guide around Houston. As we were going down Fannin we found ourselves side by side with the Metro train. Wesley told Uncle Dwayne to race him. Can you visualize...The Metro train with the driver and passengers wondering what in the world this huge truck packed full of people like sardines was doing. As we were all cracking up AGAIN when Dwayne floored it like he could seriouly win this race. The Metro driver simply glanced over with a chuckle and saluted Dwayne for his efforts as he flashed right by us. He must have seen the Alabama plates and thought to himself "those crazy Bama drivers". I however was wondering about the crazy Tx drivers myself as I held my breath when Dwayne had to shift over like 4 lanes to get us on our way. I don't get this freeway business. Give me the 35 MPH roads - Thank You very much!

Wesley got his income tax refund check and he wanted a small TV for the room here at RMH. (There are no TV’s in the rooms here) No cable but he bought some rabbit ears. Hadn’t seen those things in a while. Now we have a rabbit and a "Duck" in our room. Uncle Dwayne bought a super sized air mattress. No carpet burns on his toes tonight. It is amazing how many laughs and how much fun we can have at Wal-mart. When we left we had a buggy FULL of everything we needed for now. Thanks again to all that have sent the Wal-Mart Giftcards. They have really gone to good use. I was so touched to see the joy on Wesleys face to get out and enjoy himself a bit. Thanks again.

Wesley is quiet today but still in good spirits. He and Parker played chase again, only this time it was Madi that took a spill on the carpet. He says he feels fine-after being asked 100 times- I know "lay off Mom". We are just not used to seeing him so quiet. He laughs at Uncle Dwayne’s jokes but he is not cracking any of his own.

On a more serious note, Please pray for Tiffany and her extended family. She lost her Grandmother today. She was VERY close to her, almost like HER mother. She has not yet told Parker. The reason she has not told him is that she is waiting for the child life counselors to come in tomorrow to help him deal with this tragic loss. What makes this even more difficult is the cause of her death. You guessed it. CANCER. That dreadful word that we hear so much around here. Once again, we can’t ask you enough, to PLEASE continue to remember Wesley, Parker and all these innocent people suffering from this beast named cancer.

We love each and everyone of you and we do indeed feel your prayers!

Waiting on our miracle,
Michael, Angie, Trenton and quiet but still Quacking Wesley

Friday, April 8, 2005 11:00 PM CDT

Friday night, guess what we are doing. Laundry. Five huge loads. I think everyone at RMH waits until Friday night to do laundry. Probably because our weekdays are so full. But mine had to be done tonight. For the bare necessities and linen changes. Sounds like a fun night, huh? Actually it’s nice to be out of clinic at a decent hour. Wesley is upstairs resting now, on a sheet less bed so I thought I would give you guys an update.

I know that I left you hanging regarding the options that Dr. R discussed with us on Thursday evening. He had discussed Wesley’s case with other physicians and offered putting him back on the same drug he had just completed but at 2 ½ times the dosage. Another option was Hyper CVAD (which he has had several times and failed) but with an additional drug added. Dr. R felt that this might not work because his blast cells have already gotten “smart” to this regimen. Wesley decided to go back with the stronger dose of this latest chemo. It really did work well for the peripheral blood but didn’t do much for the bone marrow. We have faith that this stronger dosage and God’s grace will do the trick.

I know this all sounds coincidental, but God sent us yet another person to encourage us in our faith. A mother, here at RMH, of a 17 year old boy named Alan. He was diagnosed with ALL also but he is in what we called “submission” instead of remission. His mother, Daisy, has also received her own miracle. She is a breast and lung cancer survivor. She gives “all” of the credit to her faith and shares her story with others. We read several scriptures and prayed together in our room. She shared with me an awesome book about Psalms 91. It has helped me so much today as I have been reading it. I called to order one of my own. When the salesperson asked what my circumstances were, she offered to send me one FREE as well as several extra copies to put out at RMH. As we talked on the phone for awhile, we realized were both from Alabama. She had been raised in Op, Alabama and her parents still live there. Coincidence, if you want to call it that, but I call it- God putting the right person in the right place at the right time.

This morning Wesley and I got up and determined together that nothing was going to waiver our faith. We even made the comment “Bring it on”. Wesley started day one of this chemo today. Even though it was a lot stronger, Wesley tolerated it with no problems. In fact, he slept most of the day. OK, the part I’m sure you all have been waiting for. What about the transplant? We met today with the transplant doctor. He is putting the transplant “on hold” for now. Not because of the blast cells but mainly because of the pneumonia. He added an IV antibiotic to Wesley’s daily menu. We were told yesterday of situations where, for one reason or another, someone’s bone marrow transplant got delayed just to find out that they developed an infection about the time that it would have been most critical. So we are OK with waiting for the “right” time.

I have got to cut this short for now, Wesley has just told me his temperature is 99.6. We will have to keep a close watch over the next 30 minutes. Oh, and I got to get all these loads of clothes out of the dryer. Talk to you soon.

Friends in Christ,
Michael, Angie, Trenton and low grade temperature Wesley
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Hey this is Tiff and Wes (it's 12:26am) and temperature crisis averted for now! He is holding at 98.6~thank God!

Anyway, I wanted to let you all know we have been working so hard to get an online photo album completed for Wesley. We are working on it as swiftly as possible. We do have some of the galleries up. They are not all completed yet. I hope you enjoy what we have gotten accomplished so far. There is a section called "Notify Me" where you can register you email address. When you do this it will automatically send you an email when we make changes or add photos. We will be adding so much to this gallery as the days go by.

Enjoy his gallery:
http://wesleydunchof.fotopic.net/

Talk to you all soon.

I want to thank all of you have emailed, send cards or posted in Parkers Guestbook. Your support has been wonderful. He loved opening the envelope today and seeing a card that said "Hello from Dothan Al"

Good Night,
Tiffany Hays
Parkers Proud Mommy
Dedicated to PUTTING CANCER OUT OF BUSINESS
http://www3.caringbridge.org/tx/parkerhays
Password protected ~ email for access please
God Bless You & Thank You for your continued support

Thursday, April 7, 2005 9:29 AM CDT

Where did I leave off? I know the last update was a real downer. We try so desperately to look for the good in our days and not focus on the bad. Tuesday, we knew, had to be a better day. Our schedule consisted of labs, IV meds, CT scan, bone marrow biopsy and aspiration (what Wesley was looking forward to the most). His Hgb was 7.8 so he also needed 2 units of blood. He had his IV med.-no problem. He had his bone marrow test done-no problem. They wanted him to have his CT scan prior to receiving the blood transfusion. His original time for the CT was 4:00 but his appointment got changed to 6:30. That gave us approx. 3 hours empty. We decided to go back to RMH for an afternoon nap. While we were waiting for the valet to bring the car around, Wesley says “Momma, I’m fixin to go”. I was thinking, yea we both are as soon as the car comes around. His interpretation of “fixin to go” was different from mine. Within just a few seconds, he had passed out cold. People came from everywhere to help. He “came to” vomiting and complained of not being able to hear. Before we knew it a security guard was rushing him to ER. His clinic doctor (Dr. R) somehow heard what had happened. Before the ER nurses or doctors even came in to assess Wesley, Dr. R was there. We love this man! Things settled down and I decided to give Tiff a call so she could share in our excitement. No sooner had she hung up the phone with me- Parker passed out in the elevator at RMH. He now has a goose egg as a result. These guys do everything together. So back to the ER, we waited and waited and waited. At 10:30, Wesley finally got taken to CT. His first unit of blood began at 11:30 and at 3:30AM we were finally discharged. What a day. We had to sleep fast because first clinic appt Wed. was at 9:00.

Wednesday’s agenda was packed also. More labs, IV meds, platelets and doctor visit. When we walked into the clinic waiting room, there were only 2 available seats. We began talking with a couple who sat next to us. Guess what the husband's occupation was. He was a minister. He asked about Wesley's salvation and shared some very inspiring verses with us. He also said that he would put Wesley on his prayer list. Once again, God has placed someone in our path to encourage us in our faith. When we met with Dr. R, he reviewed the results of Wesley’s labs, CT scan and bone marrow biopsy with us.
The CT scan showed that the pneumonia had worsened. How can that be I asked. He has no cough, no fever and his breath sounds are clear. We were told that sometimes there are no symptoms. So what that means is that his antifungal-the 2 hour IV med will be given daily again along with another antifungal. His bone marrow results revealed that his blast cells in the marrow were very high. They were 96 percent. I thought, please give us something good to focus on. Dr. R will be discussing Wesley’s situation again this morning with the transplant doctor to see where we go from here. He told Wesley that he was going to have to make some decisions soon. We will be meeting back with him today to discuss options. I’ll try to update tonight after we know something.

Oh, let me end on a positive note. Dr. R patted Wesley on the back yesterday and told him that he was the strongest patient he had EVER had. He will be out of town next week. He said that had this trip not been scheduled so long ago that he would have cancelled it. He went on to say that if he could he would take Wesley with him but that he definitely would be thinking of him all next week. He has discussed Wesley’s condition with another physician and reassured us that he would be in good hands. We know that he has always been in the best of hands!!! So today it is more tests and doctor visits.

Tiffany and I was discussing the other night that it is so hard to find anything good about this disease. We came to the conclusion that it really puts you on a different level. You learn to appreciate everyday. You cherish every moment, every conversation, every laugh, every smile. Your relationship with God grows stronger and stronger every day. Gee, there really are good things that can come out of all of this. Wesley’s spirits are better now and he is feeling good today. Please remember us daily in your prayers as we travel this rough terrain.

Missing you all,

Angie, Michael, Trenton and cheerful Wesley

Tuesday, April 5, 2005 10:47 AM CDT

THE FIGHT OF FAITH

The last update that I personally wrote was on Sunday. I deliberately left out Wesley’s lab values- primarily because I realize that he reads my updates. Even though he has told me that he wants to know everything, I still feel like I need to protect him from any news that may cause a his faith to diminish. Anyway, his WBC’s Sunday were 0.4 (usually too low to detect blast cells). His blast cells showed up and were at 40%. When I saw the results, my stomach became sick. I started questioning the “what ifs?”. Anxious that his transplant may be canceled or unsuccessful. So many emotions and yes, honestly, I have to say fears. I hit my knees and asked God to not let satan undermine my faith. As I searched God’s word for comfort and reassurance I read these verses. O, Lord…I pleaded with you, and you gave me my health again. You brought me back from the brink of the grave, from death itself, and here I am alive! (Psalms 30:2-3, TLB). If He did this for David I am sure He is there for Wesley.

When I was reviewing the lab results for Monday, the WBC’s were 0.3 with no evidence of blast cells. I even said out loud “PRAISE GOD, no blast cells!” Wesley said, “Momma there are too few WBC’s to detect blast“. I then told him of his lab results from Sunday. He reiterated that he wanted to know everything (good or bad). His reply was “they have been higher”. I am embarrassed to say that I questioned my son’s faith. From now on, everything I know-he will know.

Wesley and I talked (and cried) into the wee hours of Tuesday morning. A lot of our conversation was personal and he probably would not want me to share it with you. But, I will tell you that satan is trying hard to make Wesley uncertain about outcomes. I know that I have written about this before but he is sooo homesick. He said that he just wants to see Dothan again. He misses his family, his friends, his school and his own room. He said, “Momma, do you think people are really praying for me?” He wonders why his miracle hasn’t come sooner. He feels like he is expected not to be afraid but deep, deep down he can’t help it. How do I comfort him when I have had the same feelings. I assured him of God’s love for HIM. (Wesley Dunchof 18 year old boy from Dothan Alabama). We prayed together and asked God for strength and assurance. I believe in the power of prayer-we both fell asleep with a peace.

As Wesley was having his labs drawn this morning, we looked on the lab bulletin board and someone had posted this.
TO A BEAUTIFUL PERSON
If God had a refrigerator, your picture would be on it.
If He had a wallet, your photo would be in it.
He sends you flowers every spring.
He sends you a sunrise every morning.
Whenever you want to talk. He listens.
He can live anywhere in the universe, but He chose your heart.
Face it friend, He is crazy about you!!
God didn’t promise days without pain, laughter without sorrow, sun without rain,
But he did promise strength for the day, comfort for the tears, and light for the way.

After I read this to Wesley, I said “see God thinks you are beautiful too”. We asked for a copy and told the lab tech. that we both really needed that this morning. She asked if she could pray with us. We held hands and she prayed one of the sweetest, most sincere prayers that I have heard. Thank God for placing his children where they can minister for Him. I am writing this update now in the clinic, waiting for lab results and the last chemo treatment of this series. But no matter what the results are, I will tell Wesley (I promise) and we will keep on keeping on. I also have just read Wesley all of the recent words of encouragement that you have been posting on his site. He is reassured now that people have not forgotten him and really are praying for him. It is your prayers and God’s grace that carries us through!

Lovingly,

Michael, Angie, Trenton and my precious Wesley

Monday, April 4, 2005 10:01 PM CDT

Hi everyone!

Its me...Amber (Wesley's sissy). I told momma I would give her a break tonight, although she is a wonderful writer. She was going to get some much needed rest.

I have some awesome news! Mom had told everyone they made $600 at the car wash. Well...the final number from Mr. Mac (the DHS band director)was $1700!!! Can you believe that? $1700 at a car wash! The only thing that would have made it better is if Wesley could have been there. I don't know though, if he would have gotten a hold of the water hose everyone would have been soaking wet. I want to say thank you to everyone who worked Saturday and to Advanced Auto Parts for donating all the supplies. Words cannot express how much it means to us seeing such great support for Wesley.

Wesley was feeling good today. As you all have read he still likes to play jokes. He had to get platelets but no blood. We are counting down the days till his transplant! Everyone please keep praying! He is in God's hands!

We love you all!
Amber

Sunday, April 3, 2005 9:59 PM CDT

Hi everyone,

I am stuffed! Tiffany and I were having vegetable withdrawals. She knew of this restaurant called “The Black-eyed Pea”. So guess what I had? Black-eyed Peas. Along with every vegetable imaginable. We really wanted desert- but no room left. Parker had chicken fingers and oh, and guess what Wesley had. You guessed it-cheeseburger with mayonnaise only. Special dinner guest arrived, shortly after we were seated. John (Wesley’s father) and Stacy drove all the way from Dothan. The waiter brought Parker and Wesley complimentary ice-cream sundaes complete with chocolate syrup, whipped cream and cherry. YUM. The boys didn’t feel much like eating their ice cream but Parker enjoyed playing with his. His ice cream was quickly transformed into a milkshake after vigorous stirring.

Wesley’s two days off of chemo was Wednesday and Thursday. He started back for the next five days of treatment on Friday, April 1st . After a very long day in clinic (what else is new), we settled into bed at around 9:00. I was in my usual exhausted state and half asleep when I heard Wesley rustling around in his bed. Then all of a sudden he announces, “Oh No, my temperature is 102. Degrees.” I sat straight up in bed and was going through in my mind the things to throw in a bag so we could be off to the ER. He then sheepishly smiles and says “April Fools”. I could have spanked him if I wasn’t so afraid I would bruise him in his low platelet state. I did restrict him from driving for the next month. Ha Ha.

Saturday was uneventful here in Houston. Lab work, chemo, pre meds and platelets. It doesn’t seem like all that much but it literally takes all day. But we hear that things were happening in Dothan. A carwash by DHS band for Wesley was held at Advance Auto Parts with over six hundred dollars raised. Either there were a whole lot of dirty vehicles or a lot of very generous people. Thank you to Advance for donating the supplies and place. Thank you to all who coordinated and participated in this fund raising event. We appreciate and love every one of you. After our boring day, to say the least, we enjoyed a game of Uno with Tiff and Parker. Parker had every color of the rainbow in his hand and we decided to let the winner be the one with the most cards in their hand (just to find a way to end the game). So, anybody wanting to play with Parker remember to hold on to as many cards as you can. Wesley became very tired and told us he was going to bed and he was planning on calling in sick Sunday morning. It’s so good to see him still with his witty sense of humor despite his having to deal daily with this vindictive illness.

Now for today- labs, chemo and believe it or not NO blood products today! YIPEE. Our clinic visit was over at 1:00. Tiff and Wesley played around some on the caringbridge site and on the photo album, which is still in the making. Getting a lot closer though. Until it is completed we will alternate pictures on the picture page. Stay tuned. Wesley’s bone marrow transplant date has been set for April 27th which happens to be Elizabeth’s, from FOA, birthday. They both will celebrate this day for years to come. He will be admitted on the 19th for chemo and radiation to prepare for the transplant. We are anxiously awaiting this day and praying for a successful transplant with no complications and a rapid recovery for Wes’s donor.

Our mustard seed coins are here. We look everyday for someone to share these with. Someone who needs just a small amount of faith to move the enormous mountain that cancer places in front of them. The inscription on the back reads, [Jesus said] ‘If you have faith as a grain of mustard, you will say to the mountain “Move from here to there” and it will move. Nothing will be impossible for you.’ Matthew 17:20.

I know I say this in every update, but we are so grateful for your calls, cards, visits, care packages and mostly prayers. Please pray daily! Wesley really needs a miracle. We love you and are excited about seeing you all soon.

With all our Love,

Michael, Angie, Trenton and Wesley

Sunday, April 3, 2005 9:41 PM CDT

Hi everyone,

I am stuffed! Tiffany and I were having vegetable withdrawals. She knew of this restaurant called “The Blackeyed Pea”. So guess what I had? Blackeyed Peas. Along with every vegetable imaginable. We really wanted desert- but no room left. Parker had chicken fingers and oh, and guess what Wesley had. You guessed it-cheeseburger with mayonaise only. Special dinner guest arrived, shortly after we were seated. John (Wesley’s father) and Stacy drove all the way from Dothan. The waiter brought Parker and Wesley complimentary ice-cream sundaes complete with chocolate syrup, whipped cream and cherry. YUM. The boys didn’t feel much like eating their ice cream but Parker enjoyed playing with his. His ice cream was quickly transformed into a milkshake after vigorous stirring.

Wesley’s two days off of chemo was Wednesday and Thursday. He started back for the next five days of treatment on Friday, April 1st . After a very long day in clinic (what else is new), we settled into bed at around 9:00. I was in my usual exhausted state and half asleep when I heard Wesley rustling around in his bed. Then all of a sudden he announces, “Oh No, my temperature is 102. Degrees.” I sat straight up in bed and was going through in my mind the things to throw in a bag so we could be off to the ER. He then smilingly said “April Fools”. I could have spanked him if I wasn’t so afraid I would bruise him in his low platelet state. I did restrict him from driving for the next month. Ha Ha.

Saturday was uneventful here in Houston. Lab work, chemo, pre meds and platelets. It doesn’t seem like all that much but it literally takes all day. But we hear that things were happening in Dothan. A carwash by DHS band for Wesley was held at Advance Auto Parts with over six hundred dollars raised. Either there were a whole lot of dirty vehicles or a lot of very generous people. Thank you to Advance for donating the supplies and place. Thank you to all who coordinated and participated in this fund raising event. We appreciate and love every one of you. After our boring day, to say the least, we enjoyed a game of Uno with Tiff and Parker. Parker had every color of the rainbow in his hand and we decided to let the winner be the one with the most cards in their hand (just to find a way to end the game). So, anybody wanting to play with Parker remember to hold on to as many cards as you can. Wesley became very tired and told us he was going to bed and he was planning on calling in sick Sunday morning. It’s so good to see him still with his witty sense of humor despite his having to deal daily with this vindictive illness.

Now for today- labs, chemo and believe it or not NO blood products today! YIPEE. Our clinic visit was over at 1:00. Tiff and Wesley played around some on the caringbridge site and on the photo album, which is still in the making. Getting a lot closer though. Until it is completed we will alternate pictures on the picture page. Stay tuned. Wesley’s bone marrow transplant date has been set for April 27th which happens to be Elizabeth’s, from FOA, birthday. They both will celebrate this day for years to come. He will be admitted on the 19th for chemo and radiation to prepare for the transplant. We are anxiously awaiting this day and praying for a successful transplant with no complications and a rapid recovery for Wes’s donor.

Our mustard seed coins are here. We look everyday for someone to share these with. Someone who needs just a small amount of faith to move the enormous mountain that cancer places in front of them. The inscription on the back reads, [Jesus said] ‘If you have faith as a grain of mustard, you will say to the mountain “Move from here to there” and it will move. Nothing will be impossible for you.’ Matthew 17:20.

I know I say this in every update, but we are so grateful for your calls, cards, visits, care packages and mostly prayers. We love you and are excited about seeing you all soon.

With all our Love,

Michael, Angie, Trenton and Wesley

Friday, April 1, 2005 4:38 PM CST

Hello everyone,

WOW!! Wesley and I have been reading his guest book tonight (through tear stained eyes). Thank you everyone for your words of encouragement. It is by these words and all of your prayers that we make it through each day, each hour, each minute. I am burning the midnight oil to write this update so please forgive me if I drift off. I actually had went to bed (SO exhausted) but realized that I could not go to sleep tonight without sharing the events of our day today. Wesley has long been asleep so I am sitting in the far corner of the room and typing by the light from the slight opening of the bathroom door to keep from waking him.

Please be patient everyone, we (actually Tiff and Wes) are in the process of getting pictures added from this unforgettable past week. She thinks we may also be able to get clips from the video on too. Get plenty of Kleenex close by. We try to work on this late at night after "the boys" are all taken care of.

On to the good stuff. Wesley's labs have responded wonderfully to this new chemo. You may remember me writing earlier that his doctor had said that if this works it would be a miracle. Well, the miracle is in the making- Maybe through the chemo--- but by God! His Hgb was on the low side of normal but not transfusion level, his WBC's were 0.3 PRAISE GOD. He is very susceptible now to infections but no detected blast cells. YAHOO! Which by the way is his new drink of choice. (yahoo) His platelets were 11 so he had to get his usual serving of platelets today. This yellow liquid that keeps his gums from bleeding and works to minimize bruising is becoming almost a daily ritual. He does get a nice nap from the benadryll that is given before every transfusion. I found it very hard to stay awake myself today during his platelets. I wonder if I am being "slipped" some benadryll in my diet cokes.

I spoke with Wesley's transplant coordinator, who by the way is soooo caring! She told me that she had never seen a more dedicated donor than the one that Wesley has. Everything about the donor is still very secretive at this time but Wesley does have "a date" set with him or should I say with his bone marrow. Please continue to pray for this man's health and blessings from God. The coordinator also asked if we would like to write a thank-you letter to the donor so that he would have it at the hospital immediately after he donates. I asked her how many we could send. We are just so humbled by the love, commitment and caring that a person has to have to do this for a perfect stranger. How can we put all of the gratitude and emotion into a simple thank you letter?

Besides the muscle aches, occasional nausea and vomiting and generalized weakness, Wesley is doing remarkably well. I try to "mother hen" him quite a bit but he will tell me that he doesnâ€™t want to act like he is sick. He is just so trilled to have some freedom. Although we miss the 12 southwest nurses tremendously, we both are enjoying being back at RMH. Oh, I got a rental car for a few days while Wesley is out of the hospital. I thought it would be nice to be able to go eat at his favorite restaurants (McDonalds, Taco-Bell and Burger King) I am not so sure that this was such a good idea. Texans drive crazy (sorry Texans) Maybe I should say they just drive FAST. Wesley keeps telling me "Momma you got to speed up or you are going to get ran over". My foot is getting a little heavier but we probably need some extra prayers for travel safety. Cabs are looking better every day.

The scripture we read tonight was Psalms116. As we read God's word and prayed together, we realized how blessed we are. Each day is a gift. Our God is so good and so faithful. One other scripture we came across today was Psalms 22:19 (Be not thou far from me, O Lord: O my Strength, haste thee to help me). Please, as always, continue to pray for God's healing of my precious son.

With all our Love,
Michael, Angie, Trenton and Wesley

Wednesday, March 30, 2005 6:38 PM CST

Hey Guys,
This is a post by Dee ~ Wesley's Grateful Prom Date

OH my goodness,where do I start?First of all I would like 2 thank Tiffany Hays...(Wesley's GUARDIAN ANGEL!). She really is a God send to Wesley because without her and this man(who purchased her dress)...I have NO idea who you are -but thank you very much for helping me out even when neither of you knew who I was! Thank you sooo...much. I would also like 2 thank each and everyone who is praying and wishing the best 4 Wesley. I really appreciate you all very much,just keep on praying...(I don"t really care what the test results come back saying,Wesley is going 2 be HEALED!!!) Thank you to the 2 women who came and did my hair and makeup,thanks allot!!! I would also like 2 thank Cathy who took pictures...Thank you!! And thank you 2 J.R. 4 the limo ride...Thank you!!! I would also like 2 thank aunt Donna and uncle Dwayne 4 helping me get my nails and toes done...Thank you!! Thank also 2 Wesley's family...(Mrs. Angie, aunt Lisa, Micheal, Amber, Adam, aunt Donna, uncle Dwayne, Emma, Lauren, Aaron, Trenton, Mr. an Mrs. Spurlock!!!)Thank you everyone!!!I LOVE YOU ALL!!!!!!!

***********************************************************

It's my turn now. Hey this is Wes. Where do I begin. Guess what....I'm Home again!!! Not Sweet Home Alabama, but Ronald McDonald House. It is my home away from home for now. First let me start with Thank You's:
The doctors that cautiously bent the rules to give he a 4 hour pass and taking such good care of me on a daily basis
My wonderful nurses for dressing up, decorating, dancing and taking care of me at the prom
Friends of Allie - Raise Awareness & Friends of Allie - Houston for taking everyone shopping for all the goodies, decorating, caring, the fundraising and staying to dance the night away.
RMH for letting me to have my prom here and Cathy for taking all the photos
Everyone for trying my Pineapple Sandwiches with snarled up noses and puckered lips
Auburn University for the autographed football and all the people who joined their hearts, connections, and funds together to get it to me.
The T-shirt with all the signatures of friends and family
To everyone who has signed my guestbook. I have tried really hard to read each and everyone of them
To each and every person who have sent cards. I have read all of them or my Momma has read them to me for the times I have spent in the hospital
The care packages are Awesome!!!
The donations and the Wal-Mart cards are so very helpful
I know there are so many other people who have kept me in their prayers and have contributed in so many ways. Thank you to any and everyone reading this. I need a nap now. Lately, that is the "word of the day". Talk to you all again soon.

Wesley

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Tuesday, March 29, 2005 6:35 PM CST

Hello everyone,

Where do I begin? First of all and most importantly, I'd like to thank Tiffany for EVERYTHING!!! I couldn't even begin to list all the ways that she has been there for us. I pray that everyone, sometime in their life will meet a "Tiffany". There are so many other people that I need to say thanks to also but I'm not even going to begin at this time in fear of leaving someone out. You know who you are. The ones of you who made the night at Joel Osteen's Church, Limo ride, dinner for Wesley and Dee, the ones who participated in the planning and decorating for Wesley's prom, the ones who contributed $$, services and time, Magic Moments for flying family and friends here and providing them with lodging so they were able to share this occasion with Wesley, and always thank you to our love ones at home and those of you who have visited this site that are supporting our family daily with prayers. As soon as I gather my thoughts and the names of everyone I will personally thank each and everyone one of you.

Tiffany has done such a wonderful job of keeping you all updated. I am sorry that I have not been able to do so myself. These past few days have been even blurrier than any of the others. Wednesday night we all had the privilege of meeting Joel Osteen. He met with us before the service and had prayer with our family. We also met his wife and Dodie Osteen, his mother. His mother was miraculously cured of cancer several years ago. It is her book that I have been reading to Wesley so that he knows miracles happen everyday. Of course, that is what he has believed all along. We talk of Wesley's faith, but you will never know the extent of his belief that he will win this fight by God's healing grace. He is making plans for his return home. Anyway after church Wednesday night we all walked outside and there was a stretch Hummer limo. Wesley thought it was for the Osteen family. I wish you could have seen the look on his face when he realized it was for him. The limo driver ask him what he would like to do or where he would like to go. Wesley asked him if he could drive. I guess he figured if he could fly a plane that a limo would be a breeze. But the limo driver didn't take any chances. Thank goodness! It has been a while since he has driven his small S-10 and I think this vehicle would be considerably harder to manipulate.They were met by the manager of the restaurant and then taken to a private dining room. Wesley was amazed that the waiter placed their napkins in their laps for them. They were treated like royalty. A night to remember.

Thursday morning, clinic reality again. All day waiting in one office to the next to the next. After his last outpatient clinic appointment, where he received blood, platelets and his 2 hour antifungal medication (ambesone) he was admitted as an inpatient at 11:00pm. He was totally wiped out. Not a very fun day!

Friday, he began his new chemo regimen. It's name is BCX-1777 Forodesine Hydrochloride. Don't even try to look this one up. It has only been tried so far in about 30 patients. It is an experimental drug that in hopes will be one of the "first" line drugs used to treat ALL T-cell. His doctor has told us that this chemo is not nearly as aggressive as any of the ones he has had so far. So you ask why use it then, that was my question also. It is just one that hasn't been tried on Wesley yet. When the doctor told us of this new medication, he said that if it worked it would be a miracle. Well, that's what we have been waiting on all along. We want God to get ALL the glory!!! Praise for Friday-Blasts cells were down to 90rom 99ven before his first dose of chemo. He had gotten the okay to get out on a pass for 4 hours Friday night to enjoy his prom, but he had to first get his chemo treatment, his ambisone, platelets (becoming a daily infusion) and fresh frozen plasma. Michael stayed with him while he was having all this done and Dee and I was wisped away for a manicure and a pedicure. Thanks Mr. and Mrs. Armstrong! Meanwhile back at RMH, Tiffany with the help of recruits turned a conference room into an UNBELIEVABLE prom complete with disc-jockey, DHS decorations, white lights and food (including pineapple and pimento cheese sandwiches-Wesley's favorites). The prom was delayed slightly due to a reaction he had to the plasma. He was given 50 mg of benadryl and the reaction subsided. Once he got there, dressed in his very appealing tuxedo, under the influence of benadryl, he danced the night away. "Slow danced" that is. Even though he was, I'm sure, getting very tired he never said so and he made sure he danced with everyone. After prom he had to be returned to the hospital before his chariot turned into a pumpkin. All the nurses who had to work and were unable to go to his prom were waiting to see him in his tux. Thanks to all you fairy godmother's for making this night possible. It was another night to remember!!

Saturday, Wesley relived the events of the previous night all day. Still with family and friends here, this day was also special. His AM lab reports revealed his blasts cells once were climbing now at 93ith his WBC's elevating also. The doctors are saying this chemo may not be working and considering taking him off. They decide to give it one more day just to see. More blood and platelets needed again this day. What is so bad about him having to get so much blood and platelets is that he has to be premeditated with benadryl and he stays so sleepy all day. But he tries to stay awake to spend time with his family and friends that have come so far to see him.

Sunday, everyone came to eat lunch with him in the cafeteria. No easter egg hunts this year. Wesley wanted to make sure that Tiffany, Brandon (Tiffany's husband), Mattie and Parker were invited. They are family now. Wesley did not feel well at all and I tried to get him to have lunch in his room and visit when he felt better. But he wouldn't hear of it. He said "just get me a wheelchair mama and I'll be fine". He only had a 30 minute window he could be out of his room, which was probably as much as he could tolerate anyway. Even though he was unable to eat anything, as soon as he returned to his room he lost all of his breakfast. You would have never known he was fighting off his nausea all the time he was in the cafeteria. Two more units of blood today but believe it or not- no platelets. Praise God! Blast cells today back to 98ut whose looking at reports? We are living by faith!!

One quick paragraph, if you will indulge me. Wesley received a check for $100.00 from Magic Moments to buy something "for himself". I had to go to Wal-Mart and I asked him if he could think of anything he wanted to spend this money on. His first thought was that he wanted to take everyone out to dinner who had made these past few days so special. There were so many of you that I realized you each may have gotten a big mac from McDonalds. But I wanted you to know that Wesley "really, genuinely " appreciates everything that you have done for him. Several weeks ago we purchased some coins "on-line" that have a mustard seed in the center. We have given them all out to family and friends that have come to visit. We met this new patient to MD Anderson today. A 40 year old woman, mother of three teenagers with AML from Tennessee. I am so sorry, I can't recall her name right now. She told her story and I told of "Wesley's Journey" and then our conversation turned to trusting God and living day by day by faith. When I told Wesley about this woman, he said "I know what I want to do with that $100.00 Mama. I want to order more mustard seeds to give to people who need reminding that all it takes is faith to have the peace to get through this." I immediately placed the order. Thanks again Magic Moments, you will be a part of touching many lives as Wesley gives out each and everyone of these coins.

It is now 1:30 am, Wesley is sleeping sound. I'll kiss his forehead and say "good-night baby. I Love You" and we'll see what tomorrow or I should say today holds. Please continue to pray for us. We'll be home soon.

With all our love,

Michael, Angie, Trenton, and our brave son Wesley

******************************************************************************

7:45pm

Hey everyone this is Amber, Wesleys sister. I just wanted to update everyone on Wesley. He is doing good and is coming home from the hospital tonight!! His WBC has dropped a whole lot and the doctor was surprised. His blast cells are at 75Praise God!!!

When he leaves we are going to IHOP for one last supper before we have to go back to Dothan. Tiffany and Parker are going with us!! We are leaving in the morning unfortunately.

Everyone please keep praying! Wesley appreciates every one of them.

Love,
Amber

Monday, March 28, 2005 1:29 AM CST

Hey everyone,
You are stuck with me (Tiffany) again tonight. Angie is at the hospital with Wesley. He was moved to room 1234. Much bigger room - Yeah! He had a rough morning. He received the 3rd dose of the new chemo regimen. He is hanging in there. The rest of the family that is still here, Bradin, Myself, Nana, Parker & Madi all went to have Easter Dinner at the MDA cafeteria UUUMMM ~ URG!!! Wesley was just happy to have everyone together. The kids all enjoyed being together. Wesley was too uncomfortable to stay very long and returned to his room for a well needed nap and more transfusions.

Later in the day members of the Adams family spent some quiet individual time with him. Angie was able to come back to RMH for a quick dinner and a shower. Of course she showered herself with hugs and kisses from Adison and Trenton. Brandin, myself and Granma & Grandaddy Spurlock ran over to spend time with Wesley before Brandin headed home to Dallas. Wesley sent over an order for some pimento & mayo and pineapple & mayo sandwiches for dinner. Learning to make those has been an experience in itself. He loves them!!! We were just all glad to hear him asking for food. He looked so much better tonight than at lunch. It was a sigh of relief for his grandparents.

As we were leaving the rest of the Adams family showed up. We all sat in the family room for a bit and chatted about bone marrow donations. I got some long awaited answeres I know you have all wanted to know as well. Wesleys transplant date is so far off because his donor is fighting in IRAQ!!! He was telling us that it was apparently a paper work issue, re testing the tissue typeing etc. Interesting. I will get more details later.

So, since I still have not had a moment to write about the Prom...keeping you all in suspense....I am going to post 2 journal entries written by Wesley and his big sister Amber. These were done while we were winding down after Wednesday night's meeting with Joel Olsteen and the Limo ride. Enjoy them.

We will let you know how things are going daily. Keep an eye out for the Prom night pics and video! Let me just say that we all were rolling watching it today and beaming at the smile from that Awesome young mans face. We will also be adding a Wesley Store soon as well with T-shirts and all kinds of goodies. Keep checking back. As Always, keep Wesley in your prayers.

Tiffany
Parkers Proud Mommy
Wesleys personal secretary (hehe)
***********************************************************

Hi this is Wesley. I just want to say thank you to everyone who has made tonight possible and to everyone that has signed my gest book. Tonight was awsosme meeting pastor Olsteen was just a dream come true and I just want to say thanks to all the people who have got my family out here that really means alot to me. Thank you to everyone that got the limo and desert. It was great to be able to spend some real time with my girlfriend. It was well needed time with her. I am going to keep fighting no matter what so no one give up on me! Thanks for all the thoughts and prayers and just keep being there. I love all you very very much and once again I just want to say thank you to all the people who have made all of this possible.

Wesley

***********************************************************

Hello,

I am Amber...Wesley's sister.

I first want to reiterate what Wesley has said. To all the organizations and independent people who have given their time and money and prayers...May God bless each and every one of you. You have touched our lives in so many ways as Wesley has touched so many lives through also.

To Wesley, you are such an inspiration to me. You always have a positive attitude and a smile on your face when things are at their worst. You remind me to be thankful for all the things that we take for granted. I have so many things in my heart that I could say but I would be writing a book. Please always know that I love you and I pray for your healing every day. I do belive that God has a healing in line for you! It is in His time that He will do it and we just have to wait. God knows best! I love you!

A special thank you to Tiffany. I know her name has come up a lot lately. It was a God thing that her and my mom have met. From the bottom of our hearts we thank you for all the things that you have done. I hope that one day we will be able to return the favor either to you or to someone else in need. You also have inspired me in so many ways.

Again, thank you to every one who continually looks on the site and keeps our family in your prayers. Your prayers is what helps us through.

Love Always, Amber

***********************************************************

I added new pics of Wesley on the photo page. The new front page pic is Wesley and his Mommy ~ Miss Angie.
Night Night...
Tiff

Saturday, March 26, 2005 0:55 AM CST

All I can say right now is ....HOLY BALLS!!!! What a night! Seriously, it was so awesome that I have to get sleep before any of us can even beging to describe any of it. Just know that even if we had another $10,000 there was nothing else that could have made it any more perfect than it was tonight. I didn't have that much fun at my prom!!!!

Wesley is tucked in for the night back in his room at MDA room#1244. We don't know how long he will be there. Tonight he received his first dose of the new chemo drug. He had a reaction to it and almost didn't get to come. Tons of the nurses and all were there to watch out. They have been so helpful.

Pray tonight did not wear him out too much.

Before I go and DIE in my bed and sleep for 5 hours. Parker has clinic early in the morning. Let me share with you this mornings blood counts. WBC - back in normal range and blast cells in periferal blood DOWN to 90 All of that with NO CHEMO. Wesley truly BELIEVES that GOD is at work in his life. He just waited until the doctors started to give up so they could not take any of the credit. So, keep up all the prayers....they are working!

Good night all. Angie or I will update soon. I promise!!!! Maybe we will even get Wesley to do a little message.

Once again on behalf of the Dunchof and Adams family, Thank You for all of your continued support, prayers, and heartfelt gestures. God Bless you all.

Tiffany
Parkers Proud Mommy & Wesleys friend

Wednesday, March 23, 2005 1:35 PM CST

Good Morning friends,
****!!!! WESLEY IS HOME...TO RMH THAT IS !!!!****
Wesley finally was released from the hospital last night and got here late in the evening. Today has been full of MAJOR ups and downs. That is why you are hearing from me (Tiffany) and not Angie. Wesley was released with last labs (Sunday) showing 96% blasts in his peripheral blood. Monday they did a Bone Marrow Biopsy. We don't have those results just yet. Sadly for those of you that have grown to understand "the BEAST" aka cancer ...it is the bone marrow that is churning Wesley's cancer blast cells and spitting them out into the blood. Before he left he saw an ENT specialist because he was having ear pain. They said it was just some fluid. YEAH!!! So, he came home(RMH)with IV antibiotics and will be getting his anti fungal meds at MDA outpatient.

When they got out he wanted Taco Bell....URG!!! So, there he was with his kids meal tacos and his toys (saving them for his little buddy of course). He ate as Angie read him some of the cards that were delivered while he was gone. He loves all of them and adorns his walls with them. As soon as he finished he bolted (well maybe not so much hehe) upstairs to find Parker. Guess what - OUT COLD - !!! SO, Wesley headed to his new room. HE IS NOW IN ROOM #40 - just down the hall from us...hhhuuumm wonder how that happened??? When Wes got to his door he was greeted by tons of unreadable glitter art on construction paper made by his buddy and his lovely assistant Miss Madi (Parker and his 2 1/2 yr. old sister) When he got in the room he opened up some big boxes he received from Dothan High. OH MY GOSH!!!! You guys ROCK!!! The boxes were full of tons of stuff, his Band letter for his letter jacket, pillows, snacks, TONS of Wal-Mart Gift cards, Phone Cards and a Check!!! He loved it. He even got on the floor to go through it all. We all joked about...UUUMMM and how are getting up from there...hahaha. I took pics - check out his picture page. I headed off to bed, so I can't tell you how that part ended. I know he was in AWE and greatfully overwhelmed with pride and gratitude!!!

Today Wesley had clinic. He received his anti-fungal IV meds. The premedicate him before administering it and one of the drugs is Benadryl. Well, it KNOCKS him out!!! So, when he got back it was nap time. When he got up he looked really good. He and Parker played while Angie and I took over the hall for our make shift office. Parker taught Michael and Wesley about the magic of color wonder and then he and Wes played dominoes. Wesley laughed and seems to be enjoying himself. At dinner he attempted to eat a sandwich and had some trouble. His throat still is really bothering him. He went to lay down. He walked by and said "I just don't feel good". Angie and Michael went downstairs for a bit of a break and a bite themselves. Angie is really having a hard time right now. She tries so hard to hold it together for everyone else. Tonight was just a breaking point and she really needs everyones support. She may kill me for sharing this with you all. I just want you to understand what a wonderful mother and person she is. She said to me through red sobbing eyes and her voice cracking " I just feel like I need to keep holding him, that if I hold on to him God won't take him away". My heart broke for her. We had a long talk, we cried, hugged and as all good mothers do she pulled herself together to go and hold her 18 year old baby. Hanging onto each and every inch of his perfection. Right about the time my phone rang...and it was Wesley..."is Momma down there?". Those 2 are connected at the heart and soul. They are amazing. We are all so blessed to be apart of this journey.

Sadly the night did not get much better. Dear Wesley got so nauseated and did not keep his little bit of dinner down. Please pray he is not in pain tonight. Tomorrow is a big day for him. He has his labs and sees the doctor. Let's all pray for good news. He did get the call that the date is set to try for the bone marrow transplant. It is at the end of April. I know, pick your jaw up off the ground. I had the same reaction. THAT IS A MONTH AWAY!!! Why not sooner? Angie is going to talk to them more about it tomorrow. Basically we know they want to get all of his infections cleared up first. Then he will have to have the heavy chemo and the full body radiation. Prayers, Prayers, Prayers. Wesley BELIEVES he is leaving Houston TX WELL and we have to BELIEVE it too!!!

Now, as if that was not "fun" enough for one day (remember I am also here getting treatment for my son) Angie and I became, travel agents, miracle workers, party planners, accountants and secretaries. WHOO!!! Let's see. Several of Wesley's family was flying in from Alabama today and first the flights were delayed then canceled. They will be attempting again tomorrow...well today now. Then, we have been working with this AWESOME lady named Evelyn Puckett from Magic Moments (www.magicmoments.org) and they are flying the rest of Wesley's family and friends here for the weekend and putting them in hotels. TOTALLY AWESOME!!! CAN YOU BELIEVE IT!!! From the first phone call to flight confirmation numbers in ONE DAY!!! Now, for the FUN AND I REALLY MEAN FUN STUFF. If I tell you I will have to Kill you ...not really, but don't tell Wesley!

Let me start by saying that when I realized the prognosis for our boy Wesley I asked Angie if he had any wishes. She said ...#1 to see all of his family, #2 to meet Joel Olsteen (Wonderful Pastor) and #3 to go the his prom. DONE!!!!!!!!!!

WEDNESDAY:
By the grace of God the events coordinator here Kathy happens to attend Joel's church!!! So, she is taking us all the services tomorrow night and we are going early to meet on of the greatest deliverers of Gods Sweet Word - Mr. Joel Olsteen!!! I hope he sends special prayers directly on the "back line" to God himself!!!

THURSDAY:
Early in the day we are hoping and working on getting Dee and Angies nails done. We have arranged for Wesley and his girlfriend to have dinner in a private banquet room, away from crowds and a limo ride afterwords. Sara one of the pediatric child life specialists at MD Anderson called some favors in for us. Cory at Capital Grille is donating the meal and services. Then My friend Lisa that so proudly represents Friends of Allie Houston and her co worker have arranged for them to have a limo ride to see this great city. I think Oh Wesley may have a surprise or two up his skinny little sleeves for that night too. You will have to wait and read about that...tease!!!!

FRIDAY:
IT IS PROM NIGHT HERE AT RMH!!!!
EVERYONE is pitching in to help me put on WESLEY'S PROM!!!
We are having it in the meeting room here at the house.
Formal attire, decorations, DJ, food, the works. There is still so much that we need donated, bought, volunteers etc. We have nurses and friends of friends bringing formal dresses for them to try on. We are hoping to get someone to donate a "hair and make up" beauty day for Dee and Angie earlier in the day. There is just so much to be done and well..NO time!!! If anyone wants to assist us or participate on ANY LEVEL or in any way please email me at PROJECTPARKER@SBCGLOBAL.NET. You can help from WHEREVER you are. Do you know anyone in the area that can volunteer to help decorate? Do you know anyone that has a connection with tuxedo rental, florist, party supplies, hair and nail, food service / restaurant etc. We have a list off all the services and items we still need donated of purchased. Or if you want to make a monetary contribution to our version of "MAKE A WISH" (which by the way would not help us because Wesley has already turned 18) you can make an online donation at www.paypal.com and send it to Wesleysfaith@aol.com. If you are confused or need help please feel free to email me or call my cell@ 214-697-9174 or in the room at 713-795-3548. You are of course welcome and encouraged to contact Angie as well. We need all the help we can get to make Wesley's dreams come true!!! Thanks to all the nurses on 12 at MDA for all of your help, LLS Dallas (overnighting goodies and balloons), Child Life at MDA, Kathy and Arlene at RMH, Houston FOA, Magic Moments and everyone working behind the scenes to help make this happen. I hope you all will support us in our insane and VERY TIME CRUNCHED EFFORTS!!! If you can't participate I ask that you pray for Wesley to stay healthy enough to be able to stay out of the hospital to enjoy all of this and have memories for a lifetime!!!

Thank you all for following Wesley's Journey as he laughs in Cancers face!!! He is kicking Cancer Booty and taking names. Remember the most important thing is to please pray daily for Wesley's battle and to share his story. Raising awareness is the only way we can come together to BEAT THIS DISEASE!!!

Once again:
Wesley's address for cards and "get well goodies"
Ronald McDonald House
Wesley Dunchof #40
1907 Holcombe Blvd.
Houston TX 77030

Paypal account at www.paypal.com - send to wesleysfaith@aol.com
***this account will remain open after his wish granting if you would like your participate to go toward meals, medical necessities or travel & lodging assistance***
On behalf of the Adams and Dunchof family I extend our deepest gratitude and heartfelt thank you to each and every single supporter. Angie will update soon when she is feeling up to it.

Tiffany Hays
Parkers Proud Mommy

Monday, March 21, 2005 0:41 AM CST

Ups, Downs, and Unknowns

Dear Everyone,

I really apologize for taking this long to write this update. This last week has been so hectic. It is hard to find the time or energy to write. I try to relive what life has been like for us since the previous journal entry each time I update. That in itself is draining! It was a week of ups, downs and unknowns.

One of the "ups" is that we have met some amazing friends, Tiffany, Brandin, Madison and the very adorable Parker. Wesley and Parker have really "bonded". Spending time with Parker helps Wesley feel like a big brother and helps him to think of Trenton. Wesley told Parker that he always gives Trenton (Wesley's 8 year old brother) wedgies. Parkers big brown eyes became huge! Wesley assured Parker that he was safe though. Tiffany, Parkers mom, told me what Parker had prayed for a few nights ago. He prayed for God to help him and Wesley, but to help Wesley first because Wesley was sicker than he was. Believe it or not, this came from a 7 year old with a very big heart. WARM FUZZIES.

Tiffany also has been simply wonderful. One night when Michael ,Wesley and myself were sitting around at RMH, she could just sense how stir crazy we all were. We have gone from MD Anderson to RMH and back to MD Anderson. She has her vehicle here with her and she told us to get ready because she was getting us "out of the house". She took us to a neat restaurant and then we just drove around and saw some sites. Very therapeutic for us all. She is also the one that got us connected up to this awesome Caringbridge family. Wesley told her that one thing he wanted to do was to be able to go to the prom with his girlfriend. He said that he had promised to take her to the prom and he didn't want to break this promise. He even went so far as to ask his doctor if there was anyway he could return to Dothan for one weekend. His doctor told him that he hoped he would be in the middle of his bone marrow transplant and he didn't see anyway he could go. Tiffany has made arrangements to get his girlfriend out here during spring break. She is putting together a "private prom" for the two of them either at the RMH or MD Anderson (wherever he is at the time). This is just to name a few of the ways that she has been such a blessing to us. I hope that I will be able to repay all her goodness either to her personally or to someone else in need.

Another great "UP" was visitors from Dothan. Kevin, Cricket, Jessica (Wesley's best friend) and Haley came across 5 states bringing him a sweet potato casserole (Wesley's best food) made by their grandmother. Thank you Mrs. Smith, we all enjoyed it immensely. Their visit did so much for Wesley's spirits. He smiled, laughed and I think actually forgot his troubles for a little while. Thank you George family for your support and friendship. We love you!! Best Friends-Best Food- Big Up!

Now for the "downs". Wesley got readmitted to the hospital after an eight night vacation.
He was very lethargic and experiencing severe acid reflux continuously. He had been unable to eat or drink anything all that day. He started to spike fever. So here we go again. Off to the ER. He had esopagitis from what they thought was a fungus infection. His "counts" were also very, very low. He received two units of platelets and 6 units of blood. I'm beginning to wonder if any of the blood in his body is actually his. After several days of antibiotics and anti-fungals, he was still having tremendous chest discomfort. His X-ray from admission was clear but the doctors felt like a CT scan might show something that the X-ray didn't. Sure enough, they detected a "shadow" or "thickening" in the lungs, indicating either a possible tumor or pneumonia. We were hoping for pneumonia because of it being the greater of the two evils. After a bronchoscopy the following day (which Wesley did not think to fondly of) it was determined that it was pneumonia. YIPEE! Can you believe I am cheering for pneumonia?

Another temporary shake-up was that as a nurse was trying to flush Wesley's Groshon catheter, she found that one of the lumens was clogged. The reason this is such a big deal is because they draw all his lab work (preventing him from having to be stuck) through this catheter. BUMMER! In came the IV specialist nurse to the rescue. She put TPA (works like draino) into his line and PRESTO it flushed. What a plumber!

OKAY, the scary part, the unknowns. On Friday, Wesley's WBC's began to increase. Along with this came, you guessed it, the blast cells. They came back at 71The doctors came in to discuss "options" again. Apparently this last chemo had not worked. The only options now is to start him on another experimental drug. One that is actually not as strong as the ones he has been on in the past but is specifically for ALL/T-cell. It is called Forodesine Hydrochloride and doesn't seem nearly as intimidating as the Campath/Hyper CVAD protocol he has just finished. They are also setting him up for his BMT in the next few weeks, remission or not. Saturday, blast were 84nd Sunday 96YIKES! This is a cruel, vicious leukemia.

I would hate to end this update on "negatives" so back to a few more positives. Wesley has to have a bone marrow biopsy tomorrow (not actually a good thing) but after that he is going to be discharged for a few days. Aunt Lisa, Emma, Aaron and my baby, Trenton, is coming out Tuesday. Wesley and I can hardly wait!! Bone Marrow Drive that was held last Saturday in Wesley's€™s honor was a huge success. Thank you Dothan Surgery Center and all who had a part in this wonderful cause. Wesley was amazed at how many people "took the needle" in his behalf. May God bless you. We have also been thinking and praying for Wesley's donor. He has began testing and preparing for the donation. To our donor, and you other donors, thank you for giving us hope! Thank you, thank you, thank you for this life giving gift. You can never know how grateful we are! The best "up" of all is that our awesome God is still with us each and every day. We continue to rely on him daily.

So, the ups and downs and unknowns continue. So does the stress, but we're still trying to keep our heads above water. It is Wesley that inspires us to pull through. His positive outlook and faith in God is stronger than fear. we're a bit numb, often overwhelmed, but always in awe of how fortunate we are to have the support of friends and family. Please keep praying and believe in your heart that with God's intervention Wesley will fully recover. I'll keep you posted as things progress. Here's only to the "ups".
Much love and gratitude from us,

Michael, Angie, Trenton and Wesley

***********************************************************

Hello everyone...this is Tiffany again. I just posted this update for Wesley and his wonderful family. I wanted everyone to know that he has a new address here at RMH ~ the family is now in room #40 if you are mailing "pick me ups" or packages. In the next day or so we will be setting them up an online paypal account if anyone would like to assist the family with meals, their room costs here at RMH or any other necesities they may have. If you have any questions or would like to help make Wesley's Prom dream come true you can email me at PROJECTPARKER@SBCGLOBAL.NET. Have a blessed day!!!

PS. More pictures coming soon.

Miss Angie forgot to mention that our Wesley was on the news last night in Alabama. I am too sleepy tonight to do a cute picture with a hyper link. So, here it is "old school" as they say. This is last nights newscast segment about the blood and marrow drive in honor of Wesley on Saturday in Dothan, Alabama.
Click to see News Report

I hope that works. I think I have "chemo brain" at the moment. If not, tomorrow when I am AWAKE I will do it correctly .

We are so glad that Angie and Michael are back at RMH and can't wait for Wes to return. Parker does not like only getting to wave at him from the door when we visit after clinic. He misses his "big brother" very much. I am glad Parker has someone to talk to now that really "knows" and has "been there" when he feels bad or gets frusterated with the RX, the side effects or the doctors. I really feel like God brought Parker and Wesley together. One of our many blessings. Good Night everyone...HOLY BALLS...Good Morning.

Tiffany
Parkers Proud Mommy

Monday, March 21, 2005 0:11 AM CST

Thursday, March 17, 2005 9:14 PM CST

Hi Everyone,
My name is Tiffany. We have been so blessed to meet Wesley and his beautiful parents Angie and Michael while he is being treated here in Houston. My son Parker and Wes are both going to MD Anderson and staying at the Ronald McDonald House.

We have created this Caring bridge Journal for Wesley so that all of his loved ones and supporters can stay updated on his battle with Cancer.

Let me first ask you all before you continue reading to STOP.....bow your heads....make room in your heart to ask our Glorious Lord to save precious Wesley. Let him know that so many people love and care for this wonderful young man. We all understand that there may come a time that you need Wesley. We have been so blessed that you have sent him to us. We just give him to you Lord ~ his pain, his suffering and know that you can heal all. Please take him from discomfort and shower him with your glory. We except you Oh Lord. Only you know the path you have chosen for Wes. We ask for you to lay your hands on His family and give them warmth and comfort. Let them know that Wesley is in your heart and in your hands. We trust you Lord and know that you are The Great Physician.
Now, on with the story. Wesley is SERIOUSLY one of the most kind and gentle human beings you will ever meet. He and Parker have "hit it off" like they have known one another all of their lives!

Sadly, Wes's journey is at a dangerous "fork in the road". Wesley's weak body does not seem to be responding to the chemo anymore. This week he was rushed to the hospital with fever and hematoma (bruise) from his Neupogen injection. Upon arrival he was admitted and received 2 platelet & 6 whole blood transfusions in ONE DAY!!! Since then they are now discovering a fungal and bacterial infection is attacking his frail body. They are giving him meds to get them both under control. He is still spiking mild fevers, but has not had to receive anymore blood products so far (blessing). He had a CT scan today to determine what was causing a discomfort in his chest. In the next few days they are hoping to hear from the transplant doctor if he will even consider continuing with the bone marrow transplant (he has a donor). Wesley has so many blasts (cancer cells) in his blood is may not be possible (!!!PLEASE PRAY!!!). In the meantime they are going to attempt another regimen of chemo. I hope I have all of this correct. If not, Angie forgive me and please fix my boo boos.

Let me share a glimpse into Wesley's HUGE heart. Wes was having what they call his "Nader (sp?) Day" ~ when his counts bottom out. Parker kept telling him "you need to go outside and get some fresh air....", "You need to get some sun...". Wesley tried so hard. Parker kept on as his "nurse" all day. So worried about him. Later that night Wes, got dressed and wanted to go for a drive. Parker was so excited. See, they are hear from Alabama with no vehicle and have not had that luxury . They had so much fun together! As I say "like they have know each other for years". When Wes went to the hospital and was in so much pain himself, all he kept telling his Momma (as he lovingly calls her) was that he was worried about Parker. He even called him to check on him while he was laying in his hospital bed fighting himself. What an AMAZING young man. Today as we were leaving the hospital we took Angie and Mr. Michael(Parker dubbed) lunch from RMH. We sat in the hall with her waiting for Wes to come back from CT. As he came off the elevator Parker hollered...."WESLEY...THERE HE IS....WESLEY". They drove their wheelchairs to one another ~ keeping their distance. They both spoke for a moment. So lovingly they told one another "I love you"...as tears filled mine and Angie's eyes. Then Parkers says "I'm praying for you." Wesley teary eyed told him the same. Then to end on a happier/funnier note they both lowered their masks and made silly smiles at one another. I will remember the relationship with these two spiritual and caring boys for the rest of MY life.

I am so glad you have all come hear to be touched by Wesley's story. I hope you are as blessed bringing him and his family into your hearts as we have been. I hope you take the time to read his journal history. We have copied his previous journals from live journal so you can learn more about his battle.

God Bless you all. I know that Angie will update as soon as she has a chance. Please keep them all in your prayers. Don't forget to send Wes your thoughts and well wishes by signing his Guest book.

Tiffany
Parkers Proud Mommy
Honored to be Wesley's friend

Tuesday, March 15, 2005 6:15 PM CST

This page has just been created. Please check back for additional updates.

Thursday, March 17, 2005 7:26 PM CST

The following journal entries were copied and pasted from Wesley's livejournal.com page. If you'd like to check it out, go to:

http://www.livejournal.com/users/angieandwes/

***************************************

Wesley Update March 8,2005 [08 Mar 2005|02:55pm]
[ mood | thankful ]

Hello again to everyone,

Thank you all for your ongoing concern, prayers and support for Wesley and our family. Here's an update re: life in Houston.

Wesley was discharged from the hospital Thursday, March 3rd. Second series completed. Now we just have to wait for his counts to all recover (WBC,RBC and plts) to see if his blasts cells will reappear. We should know sometime next week. We are hopeful and optimistic. "Out of the hospital" just means "not sleeping at the hospital" since we're there most of the day for clinic anyway! Wesley is still having to endure spinal taps two times a week with chemo given into the spinal fluid each time. So far, all of the test on the spinal fluid has came back with no cells noted. YAY. Wesley is becoming more, I guess I should say, tolerant of them. I have lost count of how many he has had.

We have now spent five whole nights in the Ronald McDonald House. It has become our home away from home. The people here have become like family. There are so many organizations that contribute to "the house". The support from the community is absolutely unbelievable. I wish you all could see this place. The rooms have two queen sized beds and are just charming. There is a huge family room that has several couches and recliners. The kitchen area reminds me of a home ec. kitchen. Several different pods. I have come to realize that a meal around here without tortilla shells is not considered a meal. We are enjoying being able to sleep in a place where the nurses are not in every hour.

I believe we have overcome the "I don't feel like getting out of bed days". Wesley actually walked home "SLOWLY" from clinic today, a distance of about 2 blocks. Tomorrow he starts steroids again. He usually has less energy on steroids and is a lot more irritable. Pray for me. But he is entitled to be irritable with all that he has had to go through.

Even though things are going well for us, We did get an abrupt reminder last week that this is a serious illness. Jessie, whom several of you have been praying for, died last Wednesday night. Our thoughts and prayers go out to his family. This devoted family, thousands of miles from their home, had done everything in their power for their son. Houston and MD Anderson had become their life. This was their job. Everyone, from the waiting rooms at the clinic to the guests at Ronald McDonald House, all have a certain look on their faces. One of uncertainty, of fear, of hope. I try to express that I am living by faith to anyone who gives me an opportunity. But thats not to stay that I don't have MY moments of uncertainty and fear from time to time.

Michael, Wesley, Trenton and I know how truly blessed we are to have people who are supporting us with their prayers, gifts, cards, calls, helping to keep Trenton's life as normal as possible, picking up the mail, feeding the dogs and so much more. We now know the value of helping others in need and know that there are many, even here at RMH, who lack the support and encouragement that we have received. We are humble and grateful and are committed to continue the cycle of giving when all of this is behind us.

Thank you for caring. We do know that you are there. Thanks also for the prayers. We feel each and every one of them.

Love from all of us to you,

Michael, Angie, Wesley and Trenton

6 Has been prayingPray For Wes

Sending our love [03 Mar 2005|11:01pm]
[ mood | loved ]

Dear friends in faith,

I'd like to begin by saying how much we miss everyone. Wesley asked me if we couldn't go home for just a few days. But he has to be in clinic on the days he is not in the hospital. Maybe there will be a window of opportunity some where but we don't get our hopes up. Things change so much from day to day. That is one of the reasons I don't update this journal daily. One day labs may look really good and the doctors talk encouraging and then the next day things have changed. So I think that it is better to just update every couple of days.

Wesley's headache finally subsided and he started feeling better Sat. The doctors decided to start his next series of chemo on Sunday. The Campath (the drug he doesn't usually do well with) was given on Sunday, Tuesday and Thursday. He tolerated it this time a lot better with only mild tremors. Thank God. He has had a total of 5 different chemo drugs given intermittently during this past week. One of which ran continuously. Along with the chemo he has received antibiotics, ant-nausea, anti-fungal, anti-everything drugs. At one time he had at least 10 IV bags hanging. He also had to get blood and platelets several days. Wednesday he had another lumbar puncture (spinal tap). They do these frequently to see if any of the leukemia cells have made their way into the spinal fluid or to the brain. So far all of his LPs have come back negative (No cells noted). But we have not got the Wednesdays results back yet. The nurse practitioner went very slowly during the procedure in fear of another spinal headache. They also premedicated him with caffeine pills and he has not complained with a headache at all. Caffeine pills or prayer? I say prayer.

The nurse practitioner noted yesterday that he had an irregular heart rate. She ordered an EKG and the results came back with an abnormal rhythm. She consulted a
cardiologist. His thoughts were that it was induced by some of his many meds. He made some medication changes and ordered a repeat EKG for this morning. This had me very concerned because I can only imagine what all these strong chemo drugs are doing to his internal organs. So guess what I did? PRAY. His EKG today was completely normal! Medication changes or prayer? I say prayer.

The next challenge we have had to face is getting Wesley motivated to get out of bed and moving some. He stays tired and weak most of the time but he has been told by the cardiologist, physical therapist, and nurses how important it is to try to keep his strength up. Physical therapy actually came and took him to the gym today. They had him on an exercise bicycle and a treadmill. When he returned to the room he was totally exhausted. He said that he didn't care for the therapist very much b/c she walked way to fast back to the room and expected him to keep up with her. He will eventually thank her for pushing him.

All the preliminary bone marrow transplant workup from B'ham has been sent here. Hopefully everything will be ready when the doctors decide that it is time. We are praying for a good response from this treatment. If for some reason this one fails also, then they will be changing chemo regimens.

We are just taking things day by day and finding comfort in knowing that God is in control of this entire situation. I have been reading healing scriptures to Wesley daily and claiming God's promises. He actually has several of them memorized now. One of our devotions was from Mark 2. There was a man in need of healing. The room was so crowded where Jesus was that his friends could not get him to Jesus. But they did not give up when it looked like there was no use. They made a hole in the roof of the building and placed their friend right in front of Jesus. And the Bible says that Jesus healed the man because of the faith of his friends. This devotion made me stop and thank God for each of you who have been faithful and loving friends to Wesley and myself.

We love you!

Angie and Wes

4 Has been prayingPray For Wes

update [26 Feb 2005|08:18pm]
[ mood | grateful ]

Dear Friends,
Sorry again about the time lapse between updates. It seems as if our days are going by too fast. Since my last entry, Wesley was discharged from the hospital on Tuesday night at 8:00pm and then spent all day in clinic Wednesday. By the time we saw the doctor, his temperature had once again spiked to 103. So we were sent to the ER to wait for an available room for his 3rd admission since we've been here. His ER nurse realized we were from Alabama and ask us where in Alabama we were from. When we told her Dothan she said she had a brother who was an OB/GYN doctor in Dothan,Guy Middleton. I had worked with him when I was still at SAMC. He's a very caring and concerned friend and it just made me feel a little like being at home to be able to talk with someone who knew a fellow Dothanite.
It took several days for Wesley's temp. to come down to the normal range. During this time he has became weaker just because he don't feel well enough to get out of bed. And also his hips and back are extremely sore. His back looks like a pin cushion from all the bone marrows and spinal taps. Also, as a result of the spinal taps, he has had a severe spinal headache. So for the past 3 days we have been sitting in a pitch dark room with no noise. Thank God the headaches are better and easier to relieve with his pain medicine now.
His lab work has slowly started coming up. But his blasts cells (leukemia cells) are coming up rapidly each day. Today he was back up to 95last cells. But you know, looking at these lab results each day has kept me discouraged and focused so intensely on seeing the AM results every morning. I decided today that I am not putting my energy into trying to interpret and predict Wesley's outcome based on what the lab work shows or what the physicians say. Here again today I've realized it's only by faith. Many nights I have literally gotten down on my knees by Wesley's bed and prayed for his healing. I believe that God has heard my prayers as well as all of yours.
The plan is to start round 2 of his chemo treatment tomorrow. Normally, they would not start the second round until all of his lab work had recovered to the normal range,but because of his rapidly increasing blast cells they are starting it early.
Oh, and for the ones of you who said a prayer for Jessie, he is breathing on his own, although he is still on the ventilator. He is responding to his mother's voice. The voice of a mother who has never lost her faith.
Wesley's Dad (John) and Step-mom (Stacy) came back last night and was able to spend a good bit of the day with Wesley. I went back to the Ronald McDonald House to rest. Wesley and I both enjoyed them coming back.
From what I understand the boston butt sale was a huge success. Thank you everyone who had a part in this extremely worthwhile cause. If I never knew it before, I realize now how important it is to be a bone marrow donor and blood donor. Please encourage everyone you know to consider this. People here in Houston and I'm sure all over the world need a chance at life.
People have been so gracious to us and we will eventually thank each and everyone of you personally. But just know how much the calls, cards, care packages, love and prayers you have sent our way truly mean to us. A special thanks to the person (you know who you are) who took care of this months bills for us. I pray that God will bless you all.
Please continue to remember us daily in your prayers.
With All Our Love,

Angie and Wesley

2 Has been prayingPray For Wes

Howdy from Texas [20 Feb 2005|12:05pm]
[ mood | optimistic ]
[ music | The Anchor Holds. ]

Hello Friends and Family,

Since my last journal entry, Wesley has been readmitted to the hospital. His temp. was elevated above 101 on Feb.16/Wed. We have been told that if it gets to 101 to come straight to the ER. We caught a taxi and arrived in ER @ 9:00 pm. The ER was full and again there were no empty rooms in the hospital. He was admitted but we had to stay in ER until 5:00 am. Later that day his temp reached 104. He was receiving antibiotics and getting cultures taken from everywhere to determine the cause of the fever.

During his last admission in Dothan, he was getting neupogen injections (used to re-establish his WBC). Each time he got these injections his temp would spike. Wesley realized this and asked the nurses in Dothan to hold his injections for one night. That was the first night in a week that he did not run fever. Because of that experience, he is convinced that the cause of his fever is related to the neupogen injections that he is receiving again. He spoke with his doctor here about his prior experience. The doctor said that it could not be related to that because he had never seen it cause a fever, especially as high as 104. Wesley was still so convinced that he refused his injections for 24 hours and guess what. No fever! The doctor said that Wesley was trying to prove him wrong. They still would not release him from the hospital because they wanted to continue the IV antibiotics for precautions. This broke Wesley's heart. He so wanted to be out of the hospital this weekend to visit with family and friends that came in early Sat. morning. We have made the best out of Wesley being in the hospital during their visit. They have stayed at the hospital almost the entire time. We all had dinner together in the cafeteria Sat. night. Sunday morning everyone-except Michael,Trenton, Wesley (obviously) and myself-went to hear Joel Osteen at Lakeside Church. Wesley also had a surprise visit from his Dad and stepmom the very night he was readmitted. They were able to stay until Friday. Wesley enjoyed all his visitors so much. I think he was getting bored with me.

The doctor has actually just came in to visit and has told us his plans were to keep Wesley in the hospital until Tues. to continue antibiotics. Wesley's WBC are elevating, even off the neupogen, but his blasts cells are back ): they were 65oday. The doctor said this just means more chemo. treatments but it didn't seem to bother him. We keep trying to hurry things up but we are learning how to be patient more each day.

To all the people praying for Wesley, we would like to ask you to pray for Jessie Oparaugo. He is a 19 yo boy from Africa. He is diagnosed also with Acute Lympocytic Leukemia. He has battled it for 3 years. We met him during our first hospitalization here and have seen him and his mother in clinic visits. He was readmitted for high fever the very same night that Wesley was. He is not doing very well at all. He is in ICU on the ventilator with a very poor prognosis. His mother is a very dedicated christian woman and has a strong faith. We are so thankful that Wesley's fever has been manageable and that no infection has shown up but are hearts are heavy for this young man and his mother. He, like Wesley, needs a miracle.

Wesley's spirits are high, esp after his weekend visitors. His appetite is good and he is actually gaining weight still. Thank you everyone for remembering us in your thoughts and your prayers. Thanks also for the cards and phone calls. It seems like we are on the phone all the time and we start to get tired of talking, but if we go for very long at all without hearing from people who care we start to wonder if we have been forgotten. So please feel free to call anytime. We love you all and miss you terribly.

Sincerely,

Angie and Wesley

2 Has been prayingPray For Wes

Computer healed-Wesley's healing still to come [14 Feb 2005|06:05pm]
[ mood | cheerful ]

Hi everyone, Sorry we haven't written anything lately but our laptop was broken. We had to send it to the computer hospital(literally that was the name of the repair shop). A lot has happened in the past week. I usually enjoy roller coaster rides but this one we are on is not any fun! Wesley was discharged from the hospital on Saturday. During his stay he received chemo., blood, fresh frozen plasma, cyropacipitate, platelets, antifungal, anti-nausea, anti-everything that could possibly develop as a result of the treatments. He also had bone marrow biopsies and spinal taps. So as much as I'm not enjoying this ride, Wesley is enjoying it even less. He realizes the race ahead and is focusing on the prize at the end...Healing. He is so much braver than I would ever be. I would not trade anything for the 1:00 am talks that he and I have had. He has truly put his "life" in God's hands. His lab work is responding as anticipated. His WBC's today are 0.3. VERY LOW! His Hgb and Hct are on the low side of normal but probably will be dropping this coming week. His platelet are 10 today. He had to get platelets today and had no reaction (praise God) Now that he is discharged from the hospital, he has to go to outpt clinic everyday for the next 10 days. The clinic is called "fast track" but there is nothing fast about it. We were there from 7:45 until 5:00. Needless to say, Wesley is exhausted. We are now staying at the Ronald McDonald House. It's very nice. There have been numerous church and organizational groups come to prepare meals. What a ministry! A youth group came Sunday and made cookies for everyone and just sat and visited. Wesley really enjoyed socializing with kids his age. He is getting tired of hanging out with "the sisters" We are meeting some wonderful people. Our eyes and hearts have been opened as to how many people are sick and hurting. Our prayer list grows longer every time we hear someone's story. But the God in Alabama is also here with us in Texas. I wish I had the time to write about all of the ways God has proven that he is right by our side. For Lisa's friends reading this, she is doing good also besides becoming a little homesick I think. But she has truly been a tremendous support. Things have not changed much since we were kids. We are sleeping in the same bed and she is still hogging all the covers but I hog all the space. The only thing that has changed is that we are getting along now which is good because Mama is not here to break us up. I will always treasure this time we are spending together and her dedication. Our new address is: Wesley Dunchof, Room 21 Ronald McDonald House 1907 Holcombe Blvd. Houston TX, 77030 Phone #713-795-3521 Thanks for your continued prayers and support. Hope to see you all soon. God Bless you all, Angie and Wes

1 Has been prayingPray For Wes

[05 Feb 2005|04:08am]
[ mood | hopeful ]

Hello everyone,

So much has happened in the last few days that it has taken all our time to prepare and adjust. Things started to happen fast for us on Tuesday night, 2/1/05. Exactly 4 months from the date of his diagnosis. Dr. Mayor called us with the news that he had no other options for Wesley to offer. He had spoken to UAB, and they refused to further treat Wesley because they felt they had done all they could for him. We were to see Dr. Mayor in his office the following day to discuss possible transfer to MD Anderson in Houston TX.
News spread quickly, numerous family and friends gathered around that evening, spending time and praying with Wesley.

On Wednesday, when we spoke with Dr. Mayor, he said he would consult with a physician at MDA and get back with us on Thursday. Preliminary plans for the transfer were being made. Our hearts were heavy but our faith that our God, the greatest physician, was in control.

Thursday, MDA accepted Wesley. We were told to keep our cell phone with us to await the departure time. Meanwhile, we had numerous offers for flights. Angel flight, several local physicians who had private planes, Sun Sac, and Movie Gallery were among the offers. We also received generous monetary gifts. Once again, family and friends gathered around Wesley to offer love and support. WTVY came to interview him regarding his battle with leukemia and the upcoming bone marrow drive in his honor.

I was concerned with Wesley's pallor (pale color). I contacted Dr. Mayor because we had not heard anything from MDA. He instructed us to be in route to Texas keeping our cell phone close at hand. We opted to fly with arrangements made by Movie Gallery because the plane was ready to go. We were accompanied to the airport again by close family and friends. I can't begin to explain all the emotions that were being felt at that time. I asked if someone would begin to make arrangements for a welcome home party. A prayer was said for healing and safety of travel. Little did we know how much we needed the prayer for safety.

When we were seated in the back of the plane, the pilot asked Wesley if he would like to sit in the cockpit with him. He, being an instructor pilot, allowed Wesley to lift off and land us. Lisa and I were saying even more prayers for safety of travel. Wesley thought this was an awesome experience. He is asking to trade in his 4 wheeler for a plane. When we reached the airport, a taxi was waiting to take us to the hotel. Wesley did not sleep at all that night.

We were to be at the clinic at 7 a.m. He went from test to test. One of these test included another bone marrow biopsy. Wesley has always been sedated for his previous bone marrow biopsies but MDA policy is not to sedate with first biopsy because of not knowing his history. This REALLY concerned Wesley. He had to have four puncture sites in order to obtain the amount of marrow that was needed. We finally saw Dr. Ravandi at 4:30. He reviewed Wesley's lab work. His WBC's were 44.4 (normal 5.1-15.5). His blast cells (cancer cells) were 96f his blood. His PLT's were 13 which is still very low. His fibrinogen was 92 (normal 220-530). His HGB was 9.3 (normal 9.5-14.8) and his HCT was 26.7 (normal 27.3-43.6). These labs concerned Dr. Ravandi and Wesley was to be admitted ASAP. The hospital was filled to capacity and we were to wait in Admissions for an available room. During this time Wesley started bleeding from his bone marrow site d/t his low platelets. He was rushed to ER for another pressure dressing and to lie flat on his back until the bleeding stopped. We were admitted to room G1233.

His room is very spacious and beautiful. However, to enter the room you have to scrub, wear gloves and duck bills. The duck bills are actually yellow face masks that are in the shape of a duck bill. Lisa and I have been "quacking and flapping our wings". This has gotten a chuckle out of Wesley. He actually called me a "moron" which is his favorite word anyway.

Wesley received platelets last night and did well in spite of a mild reaction (rash). This was corrected with Benadryl which knocked him out for the night. He got the needed rest after the long day.

This morning we saw the doctor and reviewed his labs from today. His WBC's were down to 33.8 (yea). His blast cells had come down to 89yea, yea) with no chemo given yet. However, he is getting two units of blood today d/t lower HGB and HCT. We are taking this as a sign of God's hand on Wesley.

How we are ever going to be able to thank everyone for everything is beyond me. Our direct phone number is (713)745-8677; however, we are trying to keep calls to a minimum. I will try to update regularly here. Wesley's email is wd92986@aol.com. My email is aadams216@aol.com. Our address now is: Wesley Dunchof, Room No G1233, PO Box 300206, Houston, TX 77230. He cannot receive flowers; however, cards would be wonderful. Stay faithful in your prayers. The miracle is still to come.

With all of our love,

Angie and Wesley

4 Has been prayingPray For Wes

Tuesday, March 15, 2005 6:15 PM CST

Claustophobic [30 Jan 2005|09:09pm]
[ mood | restless ]

Hello All,

We are still here. Wesley is staying in the confines of the walls of our house. When we have visitors, he runs for his mask. He knows his risk factors and is very careful. The other day,I handed him a straw for his drink but I had taken the paper off of the straw. He ask for a new straw. Even though he is this cautious, he still begs to be able to do things with his friends. I know he is getting claustopobic. He actually looks forward to going to the doctors office-just to get out.

He had to go to the hospital Friday for a plt. transfusion. We got there early that morning but there was only one unit of plts in the hospital. There were 2 open heart surgeries going on-so they had to hold onto that one unit in case one of those pts needed it. We were told to come back at lunch-someone was going to Pensacola to get more. It was 3:00pm that he finally got them. It was not until after we got home that he had a severe reaction to the plts. He had a rash all over his body. 50 mg of benadryl took care of it. He has so many different antibodies in his blood from the many blood transfusions, that we were told that reactions are not that uncommon. Maybe not uncommon, but very scary.

But as for today, he seems to be doing well. His newest craving-plain M&Ms. He asked and he received 3 one pound bags.

Tomorrow we will see Dr. Mayor again for more lab work. Please pray for increasing plts, Hct, Hgb and by all means WBC's. So many people are praying, some are fasting and praying. We are so grateful for each of you.

God Bless you all,

Michael, Angie, Wesley and Trenton

3 Has been prayingPray For Wes

Labs "low" but spirits "high" [27 Jan 2005|11:07am]
[ mood | thankful ]

Hi everyone,

Today was Wesley's appt with Dr. Mayor. The day he had predicted that Wesley would be admitted back to the hospital with an infection. Even though his WBC were still very low (0.7)which Mayor said was essentially zero, he has not developed fever or signs of infection. PRAISE GOD! His Hgb was 10.3 (normals 11.0-18.0) and Hct 29.9 (normals 35.0-60.0) these are beginning to drop pretty fast. But not to blood transfusion level yet. His plts were 6.0. He will be going in to the hospital tomorrow for plt transfusion.

We also rec'd good news from B'ham today. The second potential marrow donor has been located and will be going in sometime next week for further testing. A potential draw date of March 9th has been scheduled depending on if Wesley is ready. Please pray that Wesley's leuk. cells will not return and also pray for this very special person who is willing to donate this life-saving marrow. We won't be able to meet this person until after a year from the transplant date. How will I ever find a way or the right words to thank this person.

We still face difficult days ahead. We are all working hard at remaining positive. Wesley helps alot by his strength and willingness to fight. To quote Wesley, "He may have leukemia but leukemia doesn't have him" He is just looking forward to a normal life again (able to be around friends and family--without wearing a mask). In fact, that is the wish of our entire family. But, until then, we will do what needs to be done, make the sacrifices that have to be made and continually PRAY!

With love,

Michael, Angie, Wesley and Trenton

1 Has been prayingPray For Wes

Wesley Update [24 Jan 2005|11:50am]
[ mood | thankful ]

Dear family and friends,

Thank you all for your ongoing support, concern and prayers for Wesley and our family. I have not written in a couple of days so here's an update. Wesley got out of the hospital Friday night. It was just amazing how he tolerated this treatment which was suppose to be very intense. Some say he is building his tolerance to the chemo treatments but we KNOW that it is answered prayer.

After previous treatments, he would go for anywhere from a week to two weeks without eating. Since we have been home he can't seem to get full! YEA. I'm making alot of late night peanut-butter and jelly sandwiches, bowls of cereal and just whatever he is craving. I'm so happy that he is eating that I wouldn't mind making a four course meal. And for those of you who know how much I hate to cook-that gives you an idea of how thrilled I am with his increased appetite.

He also has had more energy with this treatment than prior treatments. Here again, God is at work. When we pray, we pray specifically for every aspect from protecting him from mouth sores, minimizing the side effects of chemo, giving him strength (energy) to endure the treatments. God has been faithful. OUR faith is increasing each day. Wesley had an lab work drawn today at Dr. Mayor's office. His WBC's (infection fighting cells were 0.6 (Normals are 4.5-10.5). He is very susceptible to infections right now. When he does get out of the house for his DRs appts, he has to wear a mask for protection. Dr. Mayor says that he anticipates Wesley getting an infection by Thursday because his WBC will continue to drop. If so, he will admit him back to the hospital for IV antibiotics. This is another specific we are beginning to pray for tonight. His Plt's (blood clotting part of the blood) were 15 (Normals are 150-450) His was so low that he was transfused with 1 unit of plts this afternoon. Here again these drops in labs are expected with chemo treatments. His Hgb and Hct were both within the normals which means no blood transfusion today!

I am trying to work when I can. The Dothan Surgery Center is SO supportive beyond what anyone could ever hope for. They are working with other companies and individuals to organize a bone marrow drive for March 19th. This is an awesome opportunity for anyone wanting to actually save a life. There are only a few life-saving organs that can be donated while the donor is still living. Bone Marrow is one of these. PLEASE consider this. There is someone out there that has committed to this cause. That person will give Wesley a gift that no-one else can give, that person will save Wesley's life. How do begin to thank someone for this. There is a Boston Butt sale began to help fund this drive. If interested in selling or buying tickets-please call Doris White at the Surgery Center. 793-3442. This is not to help Wesley directly, but will help someone, somewhere who is in Wesley's same position.

So I guess that's enough for now. There's so much more. I only wish I could find a way to express what is going on for us, but it's beyond our own understanding. I hope this update helps you feel connected. It helps us to keep you all updated. Feel free to pass this on to anyone that is remembering us in their thoughts and prayers .

With love and best wishes,

Michael, Angie, Wesley and Trenton

2 Has been prayingPray For Wes

Good News today [20 Jan 2005|09:40am]
[ mood | happy ]

Wesley's CBC today showed no evidence of blast (cancer)cells. The chemo treatment not only wiped out the blast cells but also significantly lowered his white and red blood cells and his platelets, which it is expected to do. As a result Dr. Mayor told us tonight he would get 2 units of blood and platelets tomorrow and hopefully be able to go home for the weekend.
I also worked today while Michael sat with Wesley. On the way back to the hospital, I called Wes to see if there was anything I needed to bring. He told me he wanted cheese sticks and a chocolate milk shake from Sonic. I can't explain how happy that makes me because he has not eaten in 2 days.
He has not had many complaints today. A little tired, some leg aches but basically has felt fairly well. Your prayers are definitely being answered daily. There are many names in the Bible for God. The one that I like to use these days is Emmanuel (God with us).
God Bless each of you!
Angie

1 Has been prayingPray For Wes

tough day [19 Jan 2005|08:38am]
[ mood | drained ]

Wes has felt very drained today. Sleeping most of the day. I worked today and his Dad stayed with him. He rec'd the last dose of the real intense dose of chemo. Dr. Mayor told us tonight that he was going to get one more chemo drug tomorrow. He said that more than likely he would have to get blood and platelets Friday. Tonight Wes has gotten very nauseated and complaining with "every muscle hurting" Looking forward to the better days that will be ahead!

1 Has been prayingPray For Wes

second time around [18 Jan 2005|07:37am]
[ mood | determined ]

This Wes's 2nd day of this more intense chemo regimen. So far he has tolerated it fairly well with the exception of loss of appetite and stomach cramping. Wesley has chosen to fight hard and is not planning on giving in to this illness. His strength and courage inspires me.
Today a nurse shared with both Wesley and I how God had worked a miracle in her life. We know that he will also for us. My devotion today was about being still and waiting on God. We want to rush all of this and get a quick cure but God works only on his calendar, on his schedule.
Even though we have come through the stage of "Why Wesley?" "Why our family?", we still experience the feelings of helplessness over a situation that is completely out of our control. We know that there is no guarantees of the outcome of this journey and that is probably the most frightening aspect. But at the same time we realize this as being "out of our hands" we have completely put it in God's hands.
Early on after Wesley's diagnosis this is a prayer I wrote for him and I read it back frequently.

Dear God, My God
please stay near.
Walk with me daily
through this valley of fear.

You gave me Wesley
only a short time ago.
I love him so much
as I'm sure you know.

I can't understand
I'll never know why
You were willing to give
your son to die.

The love you showed
can't ever be measured
to give the son
you loved and treasured.

I'm so unworthy
to ask anything of you.
But God you know,
you've been here too.

Dear God, I'm begging.
I'm down on my knees.
Stay close by my family
and help Wesley. PLEASE.

Love,
Wesley's Mom

Please continue to pray for our family and Wesley's strength, courage and ultimate healing.

God Bless You,
Angie

1 Has been prayingPray For Wes

Our story up to this date [16 Jan 2005|10:53am]
Wesley was diagnosed with Acute Lymphocytic Leukemia on Oct 1,2004 just 2 days after he turned 18. his symptoms the week prior to his diagnosis were lack of energy, a very sore throat and a hematoma (large bruise)on his abdomen that "just appeared" on Sept. 30th. After passing out at First Med and then at SAMC outpt dept., he was taken to the ER. And this is where our story began.
After going through all the stages of grief-denial,anger,bargaining,we have now reached the acceptance stage. We were told early on that Wesley had to have a bone marrow transplant (BMT)as soon as he was in remission. His sister was the only possible related donor. But the results of her test showed that she was only a 5 out of 10 match. For UAB to even consider doing a BMT the donor has to be at least an 8 out of 10 match. The feelings of helplessness were surrounding us. I felt that we were not doing enough. Maybe we should sell our house,go somewhere else, just do something more. There was simply nothing we could do but pray and trust in God to see us through this. I realized that no amount of money could take this away.
After 5 intense chemo treatments, Wesley was in remission. We also had a very good donor. A 10 out of 10 match. So we began to make preparations for spending 7-8 months in B'ham for the BMT. On the 12th of this month, we were in B'ham for pre-transplant medical evaluations. We were told that his donor had been activated to Iraq and would not be able to donate but there was a second donor that was also a 10/10 match. The BMT date was going to be delayed approx. 2 weeks to do secondary testing on this donor. But when the lab results came back on the 13th, we were told that Wesley had come out of remission and his leukemia was back. As a result of this, the BMT could not be done until he goes back into remission again.
He will be admitted tomorrow,to SAMC, for a more intense chemo treatment. Wesley's spirits are still high. I love to hear him laughing and having fun with his friends and his brother. He realizes he has a strong battle ahead but he is ready to face it and defeat it.
Everyone ask "what can we do?" Wesley needs the love and support of friends and family. But more so than that he needs your prayers.
2 Has been prayingPray For Wes

about me (wes) [13 Jan 2005|11:34am]
[ mood | sad ]

i am an 18yo boy that goes to dothan high school i was diagnosed with lukima on oct 1st and they said that i had to have a bonemarrow transplant they looked at my sister for the donation but she was not a goodenough match so they went to the national regestory for my match they found a perfect match a 10 out of 10 match and was all set to do the transplant it was suposed to be on feb 10 but i just went up there to do my prework for the transplant and they said that my doner was a 25yo military person and he has been activated and no longer in the U.S. so they went to my second doner on the list and he is a 33yo man but when they were doing my blood work they found out that my lukiam was back so i am now official out of remshion so i am going tomarow to see dr mayer and i am going to be put back into the hospital and gave a realy harsh harsh kimo treatment so it is going to push my transplant back atleast 2 months. we are holding a bonemarrow drive if you would like information on it please call 334-7930029 or 7911336 or 7911335 wish me luck Wes

2 Has been prayingPray For Wes

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