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Elizabeth Hope

Welcome to Elizabeth's Web Page. It has been provided to keep friends and family updated about Elizabeth's battle with Leukemia (ALL).

Elizabeth was diagnosed with Acute Lymphoblastic Leukemia (ALL) on November 30, 2001. She finished her 2 1/2 years of chemo on June 1, 2004. Please keep her in your thoughts & prayers that she will remain in remission forever.


Did you know that...

Each day, 46 children are diagnosed with cancer in the US.

ONE in every 330 American children develop cancer before the age of 20.

Each year in the U.S. over 12,600 children will be diagnosed with cancer.

Childhood cancer is the #1 disease killer of American children - more than asthma, diabetes, cystic fibrosis, AIDS and muscular dystrophy combined!

80% of children have metastatic disease at time of diagnosis as compared to only 20% of adults.

Treatment of childhood cancer is intense and typically involves:
Surgery - Radiation - Chemotherapy

There are currently more than 270,000 childhood cancer survivors in the US.

Late effects of childhood cancer treatment are common in survivors, and approximately one-third are moderate to severe.
-Nuro-cognitive deficits (often loss of 10-50 IQ points)
-Heart failure
-Pulmonary fibrosis
-Treatment-induced secondary cancers
-Cataracts
-Hearing loss
-Endocrine abnormalities
-Loss of health care coverage (pre-existing condition when they reach adulthood)

Although cure rates are steadily increasing, 35% of children will die

Please support childhood cancer reasearch





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Journal

May 11, 2008

Just a short update.

Elizabeth's migraine went away after 14 days. With a lot of prayer and medicine. Wouldn't you know it? Now she has resprained her ankle. She has been back in her boot for a week an half now. We are going back to the ortho. in the morning. With no signs of improvement. Please pray that her ankle heals soon and no more migraines. And the big one, that she remains in remission forever.

Machelle


Thursday, April 10, 2008 11:18 AM CDT

Ramblings from Mom (or) Pity Party........................

Hi everyone,

Elizabeth is having another run of migraines. She has had one since Saturday. It will get a little better then get so bad she is sick with it again. I have given her all the different medicines the neurologist has prescribed her. Still it hangs on. She is now on day two of the predisone. Tomorrow is her last dose she can have of it. She has taken the nasal spray migrinal, phenergran, etc. I hate to give her any more medicines, they don't seem to help much anyway. I have called the neurologist. I am waiting for him to call me back. Maybe he can come up with something else to try. I get so frustrated, Elizabeth has gone through so much already. So, she gets to deal with migraines all the time? Life is not fair. Not that I am really complaining, after all she is still here and for the most part healthy. So on that note I really can't complain. I do still have my beautiful daughter whole, happy and growing stronger everyday. I just hate that she has this to deal with. I called the principal at her school yesterday and told her why Elizabeth has not been at school all week. I don't know what is going to happen when Elizabeth gets in high school. I really don't think they will be able to deal with this. I don't even know how she will be able to keep up. But, I guess we will cross that bridge when we come to it. Who knows, maybe by then they will find something to manage her migraines. She hates missing school. She will even cry about missing. She made the A honor roll this past quarter. I know it is because she was there most days. I hate to see her go back to the A/B honor roll. Not that that is bad, that is great to. But she is capable of so much, we know it and she knows it. She was so excited when she made the A honor roll, only 4 people in her class made it. She has a baseball game tonight that she will miss, Migraines just make it so hard to live a normal life.

OK. now that I have vented I will get off my Pity Party and deal with what ever life hands us. And I am so so so very grateful that Elizabeth is still here to even get migraines. So putting on my sunny disposition again, getting ready to tackle the day.:-)

Machelle

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Links:

http://www.candlelighters.org   Childhood Cancer Foundation
http://www.caringbridge.org/la/ashton   
http://www.caringbridge.org/ok/tyler.king  


 
 

E-mail Author: MJmomathome@aol.com

 
 

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