Zach | CaringBridge

Zach’s Story

***Please note that donations given on this site directly supports caringbridge.org***

Thanks for stopping by and checking in on Zach! We are so grateful for your prayers and support as we walk this journey. We will be using this site to send updates and prayer requests as well as praises.  Zach would love to hear from you - one way to communicate is via this site.

Zach was first hospitalized at 2 months of age and later diagnosed with a rare blood disease, Severe Congenital Neutropenia at 4 months of age. At the time, doctors weren't sure he would survive the pneumonia and complications, but he did! That began the countless trips to CHOP, learning to give our baby a nightly shot, hospitalizations for every fever & concern, and battling Crohn's Disease for many years. All the while learning much about a blood disease known as Kostmann's Syndrome or SCN. Zach continued to have many hospitalizations and was sick a lot but didn't let that sideline him. He worked so hard to keep up with his 3 older siblings! As a young boy he went through many difficult medical seasons and even to this day doesn't wake up feeling "healthy" like you or I but fights through. We are so proud of him!

Over the last 18 years, Zach has courageously lived life doing his best to be "normal" and healthy. He's a tough young man! A nightly injection (Zach has had over 6,800 shots!) and God's faithful hand on his life has, for the most part, allowed him to do that...but he daily lives with joint & bone pain, fatigue, continued risk of infection, as well as higher risk of leukemia and other complications.

After 3 years of much prayer & seeking wise counsel we are following the medical advice for Zach to undergo a Bone Marrow Transplant. He will be admitted to CHOP on 6/21 and the actual harvest/transplant from his donor sister, Rachel, will be 7/2. The initial hospital stay is approximately 6-8 weeks and then the goal to re-enter mainstream life around 6 months post transplant. We are anticipating a successful transplant which will allow Zach to truly live healthy. As we move forward we will be sharing some specific ways you can pray along with us as we know that Christ ultimately does the healing.

Thank you for coming along on Zach's journey (http://www.zachsjourney.com/) to health. We are unsure of what the transplant road ahead looks like but prayerfully taking one step at a time.

Our family is confident that God will be glorified in this season and can't wait to see His healing hand at work. We are blessed by so many caring and praying for our family. Thank you!

Newest Update

Journal entry by Diane Oberholzer

Hi everyone! I promised my mom I’d write an update on day 100 but that obviously didn’t happen so here we are on day 101. Everything has been progressing as usual and this week was the first week that I have not had to go to CHOP for an appointment which is awesome news! I even emailed my doctor asking if they missed me 😝 Since the last update my GVHD rash has improved greatly and is basically gone. I have been doing much better with my strength and energy and am able to go out and mow on Friday’s for the day. We also went rock climbing and repelling over the weekend which was a lot of fun! I was also able to go to my high schools home coming and see a lot of friends and teachers from school which was very nice to reconnect with them. With the restrictions lifted I am able to do a lot more and next week the doctors said I can go the beach so I will be taking my girlfriend to the beach with her dogs so it will be nice to spend the day away from the house and with her 😄 thank you all so much for all of your prayers and I love reading the comments that you all leave.
-Zach 
Can you help power Zach’s site?

A $30 donation powers a site like Zach’s for one month. Help keep CaringBridge online for them and for you.

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser

Support Links

Helpful Tasks

SVG_Icons_Back_To_Top
Top