Zach | CaringBridge

Zach’s Story

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Thanks for stopping by and checking in on Zach! We are so grateful for your prayers and support as we walk this journey. We will be using this site to send updates and prayer requests as well as praises.  Zach would love to hear from you - one way to communicate is via this site.

Zach was first hospitalized at 2 months of age and later diagnosed with a rare blood disease, Severe Congenital Neutropenia at 4 months of age. At the time, doctors weren't sure he would survive the pneumonia and complications, but he did! That began the countless trips to CHOP, learning to give our baby a nightly shot, hospitalizations for every fever & concern, and battling Crohn's Disease for many years. All the while learning much about a blood disease known as Kostmann's Syndrome or SCN. Zach continued to have many hospitalizations and was sick a lot but didn't let that sideline him. He worked so hard to keep up with his 3 older siblings! As a young boy he went through many difficult medical seasons and even to this day doesn't wake up feeling "healthy" like you or I but fights through. We are so proud of him!

Over the last 18 years, Zach has courageously lived life doing his best to be "normal" and healthy. He's a tough young man! A nightly injection (Zach has had over 6,800 shots!) and God's faithful hand on his life has, for the most part, allowed him to do that...but he daily lives with joint & bone pain, fatigue, continued risk of infection, as well as higher risk of leukemia and other complications.

After 3 years of much prayer & seeking wise counsel we are following the medical advice for Zach to undergo a Bone Marrow Transplant. He will be admitted to CHOP on 6/21 and the actual harvest/transplant from his donor sister, Rachel, will be 7/2. The initial hospital stay is approximately 6-8 weeks and then the goal to re-enter mainstream life around 6 months post transplant. We are anticipating a successful transplant which will allow Zach to truly live healthy. As we move forward we will be sharing some specific ways you can pray along with us as we know that Christ ultimately does the healing.

Thank you for coming along on Zach's journey ( to health. We are unsure of what the transplant road ahead looks like but prayerfully taking one step at a time.

Our family is confident that God will be glorified in this season and can't wait to see His healing hand at work. We are blessed by so many caring and praying for our family. Thank you!

Newest Update

Journal entry by Diane Oberholzer

Hi everyone! I promised my mom I’d write an update on day 100 but that obviously didn’t happen so here we are on day 101. Everything has been progressing as usual and this week was the first week that I have not had to go to CHOP for an appointment which is awesome news! I even emailed my doctor asking if they missed me 😝 Since the last update my GVHD rash has improved greatly and is basically gone. I have been doing much better with my strength and energy and am able to go out and mow on Friday’s for the day. We also went rock climbing and repelling over the weekend which was a lot of fun! I was also able to go to my high schools home coming and see a lot of friends and teachers from school which was very nice to reconnect with them. With the restrictions lifted I am able to do a lot more and next week the doctors said I can go the beach so I will be taking my girlfriend to the beach with her dogs so it will be nice to spend the day away from the house and with her 😄 thank you all so much for all of your prayers and I love reading the comments that you all leave.
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Thoughts & Well Wishes

Manale Jackson | Oct 11, 2018
Zach, I am so happy to read your update and see how well you are doing.  I am amazed by you and your family and your trust in God for your healing.  Our prayers are being answered.  I love that you were able to go to Calvary’s fall fest and reconnect with people.  I’m disappointed we missed seeing you.  Have a great time at the beach☺️
Sheila Barry | Sep 19, 2018
Dear Zach: The Father's Love is upon you with a mighty hand that holds on to you always.  He will strengthen you and yes He will help you.  He is Faithful and His word will not return to Him void.  It says we are healed by His stripes and many many more healing Scriptures are in His word for all to claim.  We are to ask and keep on asking and you will receive, so that your joy may be full and complete. John 16:24  It's amazing how much progress you have made.  Your nausea will leave you it is all in your healing that Jesus has for you.  You are well and just fighting off illness in Jesus name.  We love you. xo xo xo Rest and let Him restore you and refresh you.
Sheila Barry | Sep 3, 2018
Dear Zach:  Praying for you today that God would strengthen you and give you joy.  You can have joy because it is one of the fruits of the Spirit.  God delights in you and is giving you the Grace and Peace you need to get through this time.  May God hold you with His righteous right hand and help you to trust Him.  He is our living hope! Trusting in the nature of God and who He is, is the bigger part of Faith. We can believe for what God can do. I know your numbers from CHOP are going to be above and beyond all we could ask or think.  You are blessed and have a blessed family.May God continue to bless each and every one especially your Parents.  Wanting only divine health is my request to God for you.  Sometimes waiting on the Lord is a test.  Psalm 27:14 says Wait on the Lord; Be of good courage, and He shall strengthen your heart, Wait, I say, on the Lord!.  Glad you got to go outside and be on the riding mower.  I used to love mowing my Dad's lawn until the wheel fell off and I hit the oak tree in the front yard.  lol just a memory of my mowing days.  Rest up and if you can listen to this CD by Julie True called Breathe you in.  I am listening to Beautiful by Kari Jobe.  Each day is a new adventure in the kingdom of God.  May His love cover you and keep you.  We love you Sheila,Cecilia, and Caia.   
Sheila Barry | Aug 26, 2018
Hi Zach:  Just thinking of you and praying that Our god Jehovah Rapha is with you this day.  May He strengthen you and fill you with all joy and peace in believing.  God is restoring and renewing everything for you.  He is a miracle working God and in Luke 1:37 the Bible says For nothing is impossible with God.  There is nothing too hard for Our God.  If you can listen to Grace Williams soaking music .  There is a song called I will always love you by Joe King.  I hope you are resting and getting stronger each day.  God has a plan for you and all you have been through.  He will sustain you with His everlasting immeasureable love.  Jesus is the same yesterday,today, and forever Heb:13:8  He is unchanging, faithful, kind, loving, just, peaceable . . .  I am praying for a complete recovery and divine health in Our Lord Jesus.  We are the righteous of God in Christ forever.  In the lord, You have righteousness and strength.  You are the very righteousness of god in Christ Jesus.  No terror of night will come your way.  No plague or pestilejce will destroy you.  No unforeseen accident will take you by surprise because the Lord Himself blesses you and your family.   
Sheila Barry | Aug 19, 2018
Dear Zach:  I will continue praying for wholeness and complete healing in Jesus Cfhrist Our King, Healer, and Protector... He has a amazing plan for your life and sometimes its hard to imagine what that looks like we just need to keep coming to Jesus for our every need.  Blessings and divine health and strength for you as you travel on this journey.  Remember He is always with you.  I am praying for a increase in your appetite and increase in joy!  I know it may be hard to be joyful but God's word says the joy of the Lord is your strength. Neh8:10  God's hand is upon you and He only wants the best for you.  Stay close to Jesus and He will stay close to you.  Take it easy , rest, and just know we are praying for you and your miracle.
Sheila Barry | Aug 9, 2018
Dear Zach:  You truly are a inspiration and a beautiful child of God.  Please know God's watching over you and has His hand is on your life.  Trust in Him always.  He is faithful and filled with loving-kindness and His tender mercies.  Your appetite will return slowly.  So glad to hear about your blood count and being able to have a medicine DCed. May Jesus dispatch healing angels around you and fill you with His Spirit until you are filled to overflowing.  May the streams of living waters pour into you health, peace and rest. May God continue to strengthen you and be with you.  You are brave, courageous, and strong. Tribulation produces Perseverance produces character,and character, hope. Now hope does not disappoint, because the love of God has been poured out in our hearts by the Holy Spirit who was given to us.Romans 5:3  Wholeness and healing are yours in Jesus name.  We will continue in prayer for you.  Rest as much as you can.  It will do you good and helps to feel refreshed and strengthened.Bold faith stands on the shoulders of quiet trust(Bill Johnson). Diane and Kevin we will be praying for both you as well.  Blessings and Favor for all of you this day.
Love, Sheila,Cecilia Barry    
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Sheila Barry | Aug 7, 2018
Hi Zach:  Praying for you this day that Our God(Abba Father) will touch you in a mighty way today.  I pray that your days ahead are filled with strength,peace, and most of all JOY! I know it can be very hard to think about joy at a time like this, but Jesus died to give it to us.  His word says the joy of the Lord is your strength.Neh 8:10  Take it easy rest up your days ahead are filled with excellent health, and another page in your story.  I will continue to pray for you as I believe that good nutrition,rest, hope, and love will help you.  We love you! Sheila,Cecilia,and Caia xo xo xo
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