Zach | CaringBridge

Zach’s Story

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Thanks for stopping by and checking in on Zach! We are so grateful for your prayers and support as we walk this journey. We will be using this site to send updates and prayer requests as well as praises.  Zach would love to hear from you - one way to communicate is via this site.

Zach was first hospitalized at 2 months of age and later diagnosed with a rare blood disease, Severe Congenital Neutropenia at 4 months of age. At the time, doctors weren't sure he would survive the pneumonia and complications, but he did! That began the countless trips to CHOP, learning to give our baby a nightly shot, hospitalizations for every fever & concern, and battling Crohn's Disease for many years. All the while learning much about a blood disease known as Kostmann's Syndrome or SCN. Zach continued to have many hospitalizations and was sick a lot but didn't let that sideline him. He worked so hard to keep up with his 3 older siblings! As a young boy he went through many difficult medical seasons and even to this day doesn't wake up feeling "healthy" like you or I but fights through. We are so proud of him!

Over the last 18 years, Zach has courageously lived life doing his best to be "normal" and healthy. He's a tough young man! A nightly injection (Zach has had over 6,800 shots!) and God's faithful hand on his life has, for the most part, allowed him to do that...but he daily lives with joint & bone pain, fatigue, continued risk of infection, as well as higher risk of leukemia and other complications.

After 3 years of much prayer & seeking wise counsel we are following the medical advice for Zach to undergo a Bone Marrow Transplant. He will be admitted to CHOP on 6/21 and the actual harvest/transplant from his donor sister, Rachel, will be 7/2. The initial hospital stay is approximately 6-8 weeks and then the goal to re-enter mainstream life around 6 months post transplant. We are anticipating a successful transplant which will allow Zach to truly live healthy. As we move forward we will be sharing some specific ways you can pray along with us as we know that Christ ultimately does the healing.

Thank you for coming along on Zach's journey (http://www.zachsjourney.com/) to health. We are unsure of what the transplant road ahead looks like but prayerfully taking one step at a time.

Our family is confident that God will be glorified in this season and can't wait to see His healing hand at work. We are blessed by so many caring and praying for our family. Thank you!

Newest Update

Journal entry by Diane Oberholzer

It’s been so long since we’ve updated but as they always say “boring is good”. 😊
Tomorrow marks 4 months post transplant and we are so grateful for how well Zach is recovering! Other than getting stir crazy and sometimes not sleeping well he’s doing so good. His hair is even been growing back!

At clinic today they drew 15(!!) vials of blood for a large variety of tests. Four months marks an immune system test as well as more engraftment studies. Zach’s counts have pretty much stayed the same over the last months but the doctors continue to say give it more time...WBC 2.1 & ANC 1510. Platelets are still low so they adjusted his meds again.

Overall it was a great day for Zach. His doctors agreed that he could go back to work in a garage as long as he has minimal interaction with others. Late today he had an interview at a garage and will start working there several days a week! This job is a huge answer to prayer and will allow him to slowly get back to work and build up strength. Having a routine and work to look forward will be so good for Zach. Now we pray that he stays healthy while venturing out more.  Thank you for your continued prayers and friendship. 

-Diane 
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