Journal entry by Keely Keenom —
Catch up time
Part 4! We are home after that scary moment where he could of died in my arms!! 😭
So this is December 2019. December 11th was also one of the scariest days of my life! He had a febrile seizure. That last a long time. He had stopped breathing for a little bit and was shaking soo bad. I have a video.. but you don’t want to watch it. Every time he had a seizure we “had” to go to the hospital just for them to send us home. I hated it.. so after they told us that it was ok after these seizures, we didn’t go to the hospital anymore. It took a year before we ever got to see a neurologist. 🙄 oh I forgot when Xavier turned one he didn’t need the thickener anymore. He was doing good with no aspiration!!
At this point we are seeing
- Pulmonologist
- Cardiologist
- ENT
- Audiologist
- Speech Therapy
- Occupational therapy
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