Weston’s Story

Site created on January 18, 2021

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Emily McNiel

I’m pretty lazy right now, so this is the update I sent to our parents this morning.

Bleed has not gotten any bigger 🙌. Stomach is 51, so the same as last night, I won’t be surprised if dialysis is started today and they should put him back on defibrotide since the bleed is the same and his platelets are still in the high thirties (yay!). Other than that 9.6 hemoglobin which is better and I’m just waiting on doctors to round. His breathing hasn’t gotten any worse, he seems to be stirring more when they are messing with him, and he’s also just really cute 🥰 
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