Valerie’s Story

Site created on July 6, 2017

Early June 2017, Valerie began to feel like she was getting a virus. Her primary physician ran several tests and prescribed steroids, but the symptoms persisted and began to require her to modify her daily activities. On a weekend excursion to Chicago, where Valerie loves to spend time along the lake, she found herself winded after walking just a few blocks and having a stop a few times on the drive home. Along with the shortness of breath, she was experiencing migraine-like head pain, a cough, red itchy eyes and a sore on her tongue. While she didn't know what was happening, she knew that her body was fighting something that she wouldn't be able to push through on her own.  On Wednesday , June 28th, after realizing that she would not be able to continue the work day successfully, she saw her primary physician again who ordered a chest x-ray and blood work. 

 No sooner had Valerie gotten back to her house than the doctor called and insisted that Valerie head immediately to the hospital and admit herself. Her blood work came back severely abnormal, and dangerous levels were indicated. “Pack a small bag. Don’t speed, but get there as soon as possible,” the doctor said as calmly as possible.  By noon that day, based solely on the blood work, the "c" word was tossed around and they planned a bone marrow biopsy. The following morning, a doctor confirmed that preliminary tests indicated leukemia. Over the next few days, Valerie would come to learn that she had Acute Myelomonocytic Leukemia Subtype M4. Rather than celebrating with a cookout and fireworks, Valerie spent July 4th undergoing outpatient surgery to have a chemo port implanted on the left side of her chest in order for chemo treatments to begin on July 5th. 




 

Newest Update

Journal entry by Valerie Bolte

This is a post I wrote while I was still in the hospital this last time. I have been released for the time being. :-) I am not going to do a lot of post editing on this one. It is coming out as the jagged rock it is.  

No, I did not spell the name of the singer incorrectly. :-) Although not usually a fan of country music, I may have to find a reason to use Beyoncé's new country song. Yes, I have watched people dancing to the song. I do not know if the dance is right, but it does not matter to me. They are entertaining. I also have a bit of a new obsession and that would be Travis Kelce and Taylor Swift. It is certainly immature, and I am trying to cut back, but I have been interested for a while. It will blow up at some point. :-)  I have not given up eating or anything. As usual, the lack of eating is a different story. 

Until I looked today, I had not realized how long it has been since I last posted. I have thought about it frequently, but could not make myself post. Making myself do it today may result in a lackluster journal entry. My apologies in advance. 

I have been in the University of Chicago Medicine hospital four times since my last posting. I am pretty sure the August hospitalization was before that post. I am actually in the hospital as I write this entry. I am supposed to go home in the next couple of days. That is something I usually have to see to believe, but I am going to keep hope alive for the time being. 

I am here this visit for chemotherapy treatments. They have not really tried to see if I could receive that treatment closer to home, but I think I may keep trying to get them to do it. I am sure it makes them nervous because of the vomiting and the high fevers from this round of treatment. I think it can still be done closer to home to make things easier for me. 

The chemo was pretty helpful last time when I was in the hospital in dealing with Luke. We are not quite sure how well it is working this time, but a few arrows are pointing in the right direction. However, we have been there before. It might be that I have to have a week of chemo every month. They are also considering having me endure another transplant. I am not looking forward to that plan. The first stem cell transplant was pretty difficult. I was younger and in better shape then. Anyway, time will tell.  I have not wanted to consider another transplant, and now I am thinking about taking a shot at the possibility of continuing to live. 

I do not really want to go into much detail about the recent hospital visits. They each have their own crappiness to them. There have been hallucinations, excruciating pain, removal of a port, plenty of arm sticks, the placement of another port, terrible food (always), lack of sleep, body bruises, body sores, a biopsy on my arm in two places, more ivs than I could ever care for, some good nurses, some crappy nurses, bed and chair alarms. This list is not everything, but I am not willing to think through it all right now especially while I am still here. 

Each time we seem to have a treatment plan, something else happens and the plan has to change. It is hard not to feel like Luke is more determined than I am in winning this cancer battle. But, here I am, still in the fight for one reason or another. 

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