Journal entry by Leah Alpers —
Tyler had a follow up appointment this week at KU. He was 5 weeks out from his surgery yesterday. He did have a virus harboring in the urinary system due to all his immunosuppressants, but lab work this week showed the virus is no longer detected. It is called the BK virus and is a virus that is not a big deal for healthy people but could damage his new kidney if it progressed in him because his immune system is so low. They adjusted is immunosuppressive meds and it seemed to take care of the virus. His nephrologist told him he can go down to getting lab work once weekly now which he’s excited about 😊. He has been working every day but just not as long of hours as he is used to this time of the year. He has one more week of weight restrictions. It is still difficult for him to wear jeans and a work belt. Otherwise he is feeling well which makes it hard for him to remember he still has to be careful. The next obstacle will be getting his ureteral stent removed which is in three weeks. The stent has been in place since surgery to keep the ureter, which is the tube that leads from the kidney to the bladder, open so it can heal properly. He is not looking forward to this procedure because it is done without sedation. His nephrologist was even agreeable to do his next appointment with her as a telemedicine appointment. This will save us nine hours of driving!
As always, thank you for your continued to prayers and support.
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