We have been at Lincoln, NE for one week now. We switched rooms and now have a south facing window and can look outside and see the sunshine. Trevor’s address now is:
Madonna Rehabilitation Hospital
5401 South St
Trevor Zuehlke L57
Lincoln, NE 68506
Trevor now gets to wear his own shorts and shirts and shoes, although I had to trade him my old broke in pair for his new stiff pair for now. Gone are a bunch of the lines, IV’s, and connections. His hair has grown back from where they had to shave for the procedures he had. We have been signed off to be able to take him outside on our own now. It has been 55 degrees and sunny here the last two days, so we have taken him out to get some of that fresh outdoor air he loves.
Today was his third full day of rehab, due to the weekend and holidays. It has taken a lot of energy for him to get adjusted to the new routine, room, and staff, so the progress he has made in the last week is subtle to see, but there is a lot going on for him as he recovers from his injury.
Last weekend, we were told of a huge crowd showing up in the middle of a blizzard to attend a benefit for Trevor at Britton’s new Event Center. We are very humbled to see and hear of the amount of support and work put into organizing such an amazing event. The Dueling Duo must have put on a memorable show. We really want to thank all of the people who had a hand in putting on such a show and fundraiser. Trevor will be truly amazed to know of so many people caring and showing compassion towards him. And as his parents, we don’t have the words to tell you how much we appreciate the show of support. From the bottom of our hearts, we thank anyone who has reached out in any way.
We hope you all had a Happy Thanksgiving. We have much to be thankful for even as we battle this unfortunate injury to Trevor.
We did make to Madonna in Lincoln yesterday and got all settled in. Trevor had a pretty quiet day today. Tomorrow he will start assessments and therapy. The transport wore him out quite a bit, so the extra day of rest today probably was alright. We were able to get a house one block away from the hospital, so the eight of us were able to still put together a big feast for us all here in Lincoln.
Many people have asked for an address to send things to Trevor here. It is:
We have been anxiously waiting for today ever since we received word last week from the insurance company that they denied Trevor’s transfer and would not review Trevor’s transfer to Madonna until later. Today had been another exhausting day, especially when by mid afternoon all that the insurance company would tell us is that they have 72 hours to review a file. Now we hear of bad weather coming and 72 hours puts us at Thanksgiving Day and a closed office on Friday through Sunday, so the reality of waiting one whole more week really started to weigh on us. We started making some calls and connections, and also knew we have had so many people praying specifically for the approval to go through. We have had so many special people open up to helping and praying for things to move forward, and all of a sudden connections and aquaintences start coming together and the best interests of Trevor are finally being heard. So we received word tonight that the transfer to rehab in Lincoln, NE has been approved for tomorrow! We want to give a huge thank you to everyone involved in making this happen, and we all truly believe all of the prayers helped to put these connections in place to get this expedited so it didn’t turn into next week. For this we must thank Him for listening. God is good. Now, there is a significant winter storm starting to brew up that complicate things for tomorrow, so we still are not at the next step yet. But we do feel a huge weight has been lifted off our shoulders. Hopefully our next update is from a different zip code.
Trevor has been getting accustomed to a new regular schedule now to get a routine down. He spends a lot of the day sleeping and resting. Yesterday he did do some exercises pedaling a bike situated above his bed coordinated with some electric muscle stimulation. This was really neat to see, and it brought tears to my eyes to see his muscles flex to the timing of the pedals. Today they had him stand up again, with assistance of equipment. When he is ready, he works his large muscle groups, but the simplest things take such huge effort, and you can see it in his face.
We still are awaiting on a transfer to Lincoln to be authorized by the insurance company. Please keep the prayers coming for a timely and safe transfer.
Back home, numerous people teamed up today to help harvest a bunch of corn for us. Teamwork is the thing Trevor loves the most about the things he enjoys doing, whether it’s sports or hunting with buddies or working in groups. What happened today will make Trevor so proud and happy to see so many people working together for a common goal, and accomplish so much. I don’t have the words to thank everyone who participated, but from the videos I saw, it took a village of people to pull it all off, from the operators to the food providers to the fuel suppliers to the traffic directors to the mechanics and everyone in between. It is awesome to see the roles of everyone come together to operate as one. Trevor will love it!! Thank you so very much!!!
The last couple of days have found us beyond frustrated. Not because of Trevor’s progress going backward or stalling out, but because we were really hoping to be at Madonna in Lincoln by now. We had the understanding we were looking at the transfer a day or two ago, but our health insurance did not authorize transfer at this time and will not re-evaluate until Friday. We still have hope of being transferred before Thanksgiving, but nothing is known for sure. The emotional roller coaster this has been is extremely exhausting, and we really didn’t think we would have to be battling insurance to top it off. We were ready to go to Madonna, and Madonna was ready for us, and med team was waiting to push the next steps thinking he was transferring. Now we have to wait to gather more details and show more progress to appease the insurance company.
Trevor is still making little baby steps forward. They had him standing today, but with full assistance. We got him outside for a short time in the wheelchair and he got to breathe some fresh air and catch a little bit of sunshine. But it is hard to see his chiseled and muscular physique shriveling away. He has lost over 20% of his body weight since the accident. He had worked so hard to put that muscle on, so it is very hard for me to see that.
We will keep pressing on, trusting God’s plan, and advocating for Trevor. We do find energy from all of the people that go out of their way to support Trevor in so many ways.
Somehow we made it through another weekend. Time seems to just blur together. We continue to be amazed by the continued prayers and thoughts of so many people from all over. The kindness and generosity shown towards Trevor and us really is appreciated.
We are looking forward to the move to Lincoln soon. The procedure Trevor had done the other day seems to be doing its job and healing well so far.
Today was by far Trevor’s most physically active day, and we like the steps going forward. He was able to do some arm and leg exercises on his own today. The really toned and bulky muscles from a month ago have now kind of disappeared. However, the simple movements he performed today took such great strength and was more of an accomplishment then his last weight lifting session a month ago now.
I can go back and look at pictures from when Trevor was young to just recent ones, and he always seems to be flexing his muscles for pictures. Even though his biceps have lost some size, he still managed to flex his muscles when a new friend, along with his dog, finished saying a prayer with his hand on him today. We had some other friends over to pray for Trevor later this evening, and he gave a big stretch and yawn when they finished as well. We really appreciate seeing the reactions to the love and kindness shown to him.
We hope things can all come together for the transfer tomorrow so we can take that next step real soon. Thank you to everyone for reaching out. The support shown really does keep us going in the right direction.
Just a quick update on Trevor’s procedure this morning. All seemed to go well. They wheeled him back in the room at exactly 10:10 (I am not making this up) and he is resting comfortably and it seems to be working correctly. Now we will let him rest for awhile.
We went to the championship game today in Brookings to cheer on Trevor’s team. The Braves ended up a little short on the scoreboard, but everyone there and watching on TV witnessed some great sportsmanship by both teams. It was hard to keep my emotions in check numerous times today, but seeing both teams come together as one after the game and kneel and pray at midfield really shows how much all of these young men have grown in the face of adversity for both teams. We can all be proud of the players and staff of each team.
At 6:30 tomorrow morning, Trevor wil undergo a surgical procedure to help manage the fluids in his head. Please keep Trevor and the medical team in your prayers at this time.
Trevor has continued to make baby steps in the right direction. We hope things continue to move forward and we plan on transferring Trevor to Madonna Rehabilitation Hospital in Lincoln, Nebraska next week.
Today, November 10th, can be marked up as a great day for Trevor. Once Trevor’s care team got him into his chair this afternoon, we started just moving his fingers and then his hands and then his wrists and then his arms, like he was doing curls. What seems like such a simple maneuver to us has been something Trevor hasn’t been able to do on his own for a long time, until today. Today, the 10th, Trevor started raising his hands and forearms up when we asked. Then we concentrated on his legs, and he was able to squeeze his knees together and then move them apart. He would raise his toes. And once we thought he was getting tuckered out, he just kept going and going, switching between arms and legs, showing that spirit of determination that Trevor typically shows. However, these seemingly simple tasks really tired him out and he is now resting soundly as I write this.
We will take this as a good day. It felt good to be overcome with joy after 23 days into this ordeal. It was another baby step in the right direction of his long recovery.
Again, we continue to be amazed at the outpouring of support and love shown towards Trevor from games and friends and strangers and especially the many prayers being sent his way. Thank you!
Trevor suffered a head injury during a football game in Warner Friday, Oct 18. He was taken by ambulance to Aberdeen where he was evaluated. A CT scan showed bleeding in his brain, and he was airlifted to Avera Mckennan in Sioux Falls for surgery to drain the blood and relieve pressure. The CT scan did not indicate neck or spine injury. Currently, he is in a medically induced coma to keep him still so his brain can heal and the swelling can go down. They will not do another CT scan until he is past the acute phase and swelling is gone. His medical team say he is stable, holding his own, and not losing any ground. His pupils are reactive to light, he has a gag reflex and shifts away from the nurses when they squeeze his fingertips. They were able to turn his vent setting down to minimal, which indicates he is doing a great job breathing on his own. These are all good signs. He is receiving several medications to reduce swelling and pain, and to prevent infection and fever. For now, the doctors can't tell us much more until they start trying to wake him up. We know Trevor is strong and determined, and he will fight his way back with everything he has, because he never gives less than 200%. Thank you to everyone sending prayers, please keep praying.