Trevor | CaringBridge

Trevor’s Story
Thank you for visiting, this is Trevor's Website to update all of our family and friends.

Trevor Christopher was born Tuesday May 29th, 2007 at 10:24pm via emergency c-section. Trevor was not tolerating labor and needed to arrive quickly. He weighed 6 pounds 2 ounces; 19 inches long.






Trevor was born with a rare heart defect known as Truncus Areteriosus w/ hypoplastic arch and VSD. (ASD was found during surgery and repaired)

It was discovered on his second day of life and things happened very fast from then on. They did a ECHO-cardiogram and EKG and then admitted him to the NICU at UCH, where he was born. He was then transfered to St. Joseph's Children's Hospital Thursday night about 10pm.

I was released from UCH Friday midday and Zate and I went straight to St. Joe's to see Trevor. We have been here everyday since.

Trevor is very strong and has been very stable the whole time he's been here. Thank you Jesus for that.

He will need life long surgeries as he grows and as the conduits wear out. His recovery time from this first surgery will be about 4 weeks. He will be in the PCICU (pediatric cardiac ICU) as he recovers. We pray that he can come home as soon as possible!

Updates:
Trevor did amazingly with his surgery, he was off the Ventilator in less than 3 days and we were sent home 11 days post surgery!!! Thank the Good Lord!


Trevor is a month old now and doing well, he is gaining weight and growing fast! He is a fighter...with a temper LOL he is a joy and a miracle.

Trevor will be 2 months old tomorrow and he is thriving! He is nearly 9 pounds and eating like a champ. We are all in awe and love with him.

Newest Update

Journal entry by Sarah Berg

Just like everything (except the bruising) my prayers were answered and I have an update about what is next for Trevor before we leave... YES we are going to AUSTRALIA!!! We are excited and ready for the peaceful break we get on Nanna & Pop's Farm😍 #thankyoujesus

The next steps for our BraveHeart will be another stress test in about 3 months. Routine cardiology visit, ECHO, EKG, etc, depending on his symptoms in 3-6 months. 

The next surgery will be "quite involved" as Dr. Gowda put it. The idea is that his dilated aortic root, truncal valve and conduit would be dealt with. The time line will depend on how Trevor is feeling and how symptomatic he is after he gets back to being his normal active self. 

Surgery talk is ALWAYS scary but Trevor's case is not urgent and THAT is great news. Thank you for your prayers, cards, gifts and never ending love & support. 🙌 

Heart Hugs,
Sarah

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Thoughts & Well Wishes

Jenna Fowler | Feb 12, 2012
Hi Trevor!
I hope you had a great christmas, and Happy New Year!  I will be praying
that This New Year will be a better year for you, and if not I will
keep on praying and not stop praying.

Happy Valentines day and I hope you have a great special day!

You will continue to be in my thoughts and prayers.



You have the best positive attitude.



Attitude:


Happiness isn't about what happens to us- it's about how we perceive
what happens to us. Its the knack of finding a positive for every
negative, and viewing a setback as a challenge. if we can just stop
wishing for what we don't have, and start enjoying what we do have, our
lives can be richer; more fulfilled-and happier.  The time to be happy
is now.



Here's a joke: Whats black and white and black and white and black and
white and black and white?  A penguin rolling down a hill.

http://www.caringbridge.org/visit/champ291
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The Wilson's | May 29, 2010
Don't worry Sarah....I remember when Blake did the same thing.  It will help them when they get older trust me.  I recall a time when Blake was swimming with his older brother and all of his older brothers friends.  Needless to say one of the friends asked blake what happened to his chest and stomach....(very innocent, not being mean at all), Blake looked at him and said "a shark bit me"  I could not stop laughing...then he told the boy the same thing....I had a broken heart and they had to fix it.  Not a whole lot of people can relate but you obviously can.    By the way...I know you did a lot for AHA last year with the Heart Walk in honor of Trevor.   Was wondering if you would be interested in attending again this year.  We are going to try and organize most of the Heart Heroes together this year (know you are a part of that) and have been working with Julie and Pepper to make this happen.  Would be honored to have you with us.  Whatever funds you raised will still be in recognition of Trevor's All Stars so let me know what you think.  Call me anytime at 727-505-1617.  Chris Wilson
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joanne pascarelli | Feb 17, 2010
HI MY NAME IS JOANNE AND I LIVED THROUGH THIS WITH MY GRANDSON 18 YEARS AGO. HE WAS BORN WITH A HEART DEFECT ON THE SECOND DAY OF HIS LIFE HE  HAD SURGERY DONE.  THERE WERE MANY MORE SURGERY'S AFTER THAT. THEN ONE DAY HE HAD A HEART TRANSPLANT HE LIVED FOR A YEAR AFTER THAT. HE DIED WHEN HE WAS ABOUT 2 1/2. WE ALL MISS HIM VERY MUCH SO I SAY TO YOU TREASURE THIS TIME WITH YOUR SON TREVOR AND HOLD ON TO EVERY MOMENT OF JOY WITH HIM. MY PRAYS WILL BE WITH YOU AND YOUR FAMILY AND WITH TREVOR. GOD BLESS.
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