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November
3
2019

November 3, 2019

Had an appointment with Dr. Yang last Thursday and due to a very low White blood count Chemo was cancelled until they figure out why.  I had a white cell booster shot both Thursday and Friday and I am now waiting for a call from Dr. Miho Dougherty (Hematologist) to call me this week for a consult. Hopefully I can get back on track soon.

Toni

PS what hair I have left is going away today!

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October
12
2019

October 12, 2019

Had my first Chemo (the Gemzore) yesterday and feel pretty good today. My only side affect so far is a slight headache and a little fuzzy vision.  On Monday I get the double whammy  "Gin and Tonic" (Gemzore and Texotere) as Liz said to refer to it! It will take three times as long and I am expecting more side affects just hoping for the best. 
Love all the caring thoughts and positive feedback … I have so many friends and family taking care of me!
Toni

September
23
2019

September 22, 2019

Well the best laid plans …..
Evidently the CT scan only eliminated cancer being in my lungs. Because I had a very aggressive sarcoma, I will now have Chemo starting in next few weeks.  I go in next week to get more details about attending a class and having a port installed. I did have a choice to have chemo now or later but when it was put to me that it was more a matter of when than IF it comes back I decided to go ahead and get it over with.  Spending my time waiting for the other shoe to drop is no way to live so I am going to move forward with a positive attitude and a whole bunch of family and friends supporting me through this. When I find out my actual schedule of treatments I'll let you know.
I got this!
Toni

PS I colored my hair purple for mom's 88th birthday and was at the point as it washes out I was going to make it all one normal color but with this news I have decided to keep it bright and fun till it falls out.  

August
1
2019

August 1, 2019

I had my last internal radiation yesterday and a CT Scan. The scan was to compare with the one they took shortly after surgery that showed three nodules they were concerned might be cancer.  I got a call about two hours after scan was done  from oncologist  RESULTS: "CANCER FREE".  I will have regular checkups for awhile but really great news! 
I am feeling really good, getting more energy back everyday so should not be long before I am my old self again! Thanks to family and friends who were such a wonderful support through it all. 

Love you all, Toni

June
6
2019

June 5, 2019

Sorry for the delay!  I finally had a chest scan and they found 3 VERY small nodules.  Because they had nothing to compare it to they will give me another one in 3 months.  If at that time the nodules are the same size all is good, if they have grown then Chemo will be discussed. 

I had radiation day "0" yesterday.  this was a kind of dry run or dress rehearsal for all the future appointments.  I had Ex Rays taken and got my sexy new tummy tattoos (NOT!) just black not even a pretty purple! I just got home from first REAL radiation and it was a breeze! Took all of 20 min and most of that time was changing into and out of the styling gown. This first week has some strange times (6:10, 4:20 and 12:10) but starting June 13 my daily time is 9:40. So it is mon-fri until July 13.  This is what they consider external radiation.  They tell me the side affects of this radiation is fatigue and is cumulative and I probably won't even notice until week 3 or 4. Week five may be the worst so no vacation plans for JULY!  After July 13 I will have a once a week for 3 more weeks of internal radiation. Not sure about side affects for this type.

I am hoping to celebrate on August first being Cancer free!!!

Thank you all for your support and encouragement, I know I will be fine with you all behind me!
Toni

PS the staff at Willamette Valley Cancer Institute are wonderful!

May
3
2019

May 2, 2019

I just had my post-op appointment.  My tumor was an endometrial stromal sarcoma (stage 1-A) and because it was "high-grade" (unusual for it's type) I'll have to have a CT of my chest to make sure it hasn't spread to my lungs. If it hasn't, (which the surgeon is hopeful it has not🙏🏼🤞🏼) I'll start radiation and if it has, then we'll discuss chemotherapy. Pathology report indicated this nasty tumor was approximately 5" x 4" x 3" and weighed about 1 pound. 

 I'm feeling good and ready to get back to some light activities. Next update will be after CT scan which has not been scheduled yet.
Toni

April
21
2019

April 21, 2019

I am finally getting to my computer to give you an update.  I am feeling great with no pain! I have not taken any pain pills since the first day home.  Doing what I am supposed to do which is NOTHING!!!

I will not get results such as stage of the cancer, type of tumor and follow-up treatment until May 2nd. From what I was told after surgery it is very likely I will have to have chemo or radiation but nothing will start for 4 weeks because they want me to heal first. Ill let you know what's next on the agenda after the 2nd.

It is a little daunting to reply to every message but please know I read EVERY one of them and they brighten my day! I am very grateful for all the good wishes, positive energy and prayers from so many of my friends and family.  I know it is making a huge difference in how I am recovering. 

Love and Hugs
Toni

April
19
2019

April 18, 2019

Ok, Toni is at home and resting tonight.  She is trying to get ready for the next few days when the pain killers she was given, NOT morphine (my error), wear off.  We all know how that works, kind of sneaks up on you when you are not looking.  I will update you until she can do it herself.  All looks good and off we go to the next steps.  Crystal