Tom’s Story

Site created on April 9, 2020

NOTE: TOM'S OPEN HEART SURGERY IS SET FOR APRIL 15 AT ST. VINCENT HEART HOSPITAL in Indianapolis.  Julie will post updates on this site.


THE BACK STORY

When I was a 19-year-old sophomore at Purdue University, I headed down to the Levee with my fraternity brothers to donate blood as part of the Purdue/IU blood drive contest. An elderly, retired doctor listened to my heart as part of the pre-check and inquired how long I had lived with such an  unusual sounding heart murmur.

What heart murmur?

I called my parents to joke with them about what I thought was a mistake. No prior family physician had ever mentioned hearing it.

Soon I was off to the Mayo Clinic where I was diagnosed with a leaking, congenital defective bicuspid aortic valve (normal is tricuspid), along with stenosis, or a narrowing of the aorta. I was told at that time that I may need to have the valve replaced “some time” during my life. While I did not have any physical limitations imposed, I would need regular check-ups with a cardiologist.

Over the years, I’ve had more stress tests, echocardiograms, stress echocardiograms, and heart catheterizations than I can count. My commitment to healthy living, particularly over the last 10 - 15 years, led my cardiologist to report I was in great shape, doing all the right things and unlike typical cardiology patients. He joked that if all his patients were like me, he would be out of business – to the point that in recent years I started to wonder if I would ever need the surgery.

That all changed at my routine cardiology appointment in January.

I was told, “it is time.”

Postponing even six months would expose me to the risk of permanent damage or even complete heart failure. While I have known since I was a teenager this surgery might be necessary “some time” – it came as a complete shock when I learned it was imperative to have the surgery as soon as possible.

I met with a cardiothoracic  surgeon in early March, was scheduled for open-heart surgery on March 26, 2020, and began making plans for all that the surgery and recovery would entail.  

And then — the world changed.

The COVID 19 pandemic has obviously affected all of us. As the spread of the virus increased and public health officials were trying to get a handle on the situation across the nation, all but emergency surgeries were put “on hold.” My surgery was postponed.

I am presently re-scheduled for April 15, 2020 (despite some effort by the administrators/schedulers to move the procedure to May). However, given the severity of my symptoms and the urgency of my case, my surgeon would not allow it to be pushed out any further. The surgery will take place at the St. Vincent Heart Hospital in Indianapolis, Indiana.

 
WHAT THIS MEANS

On April 14, I will have a full day of pre-op activities, including a heart catheterization. The open-heart surgery is the next day, April 15. If the surgery is only for replacement of the aortic valve, it should last 3 to 4 hours. If coronary by-pass is also indicated, the surgery is expected to last 5 or 6 hours. I am expected to be in the hospital for 4 – 7 days. A few days in the ICU, followed by a few days in a regular hospital room.  At this point, we do not know if Julie will be allowed in the hospital due to the COVID 19 pandemic.

While I should be on my feet very quickly following the surgery, I will be unable to drive and not permitted to go into the office for 3 to 4 weeks (which seemed like a big deal before the “stay at home” orders, and now is obviously no big deal).


THE FUTURE IS BRIGHT

I’ve been working out daily for years. But last fall, I began feeling worse afterward, rather than better - to the point that I stopped working out altogether. My echocardiogram in January of 2020 cleared up why I was experiencing strange symptoms. My cardiologist explained that because I have been living with this condition my entire life, and it has progressed gradually, I don’t even realize how far from “normal” I am. Most importantly, he assured me that within a couple of months (once the valve is replaced, the narrowing is addressed and my heart is able to relax and not work as hard) I will feel much better. Neither my life expectancy nor my quality of life will be affected. Literally, following the surgery, I will be better than new!


WHAT I ASK FOR

Prayer!

Already, we have much to be thankful for: I was timely diagnosed. Julie was able to return from Florida before travel became too difficult during this pandemic. I have remained well leading up to the surgery. I am in the hands of an incredibly gifted surgeon, Dr. David Heimansohn. I have Julie, who has been so comforting and supportive; and many loving family members: John (his wife Nikita and her parents), Matt, Grant, my mother Matena, mother-in-law Carolyn, my sister, and her family, my brothers-in-law and their families. All are fervent prayer warriors and ready to help. I am blessed with incredibly supportive colleagues at Krieg DeVault, and clients who are also supportive and understanding.

On the day I learned surgery was definitively needed, the verse in my daily devotional was profoundly comforting:

“Blessed is the one who perseveres under trial because having stood the test, that person will receive the crown of life that the Lord has promised to those who love him.” James 1:12

As part of my daily scripture reading, I have key verses I cling to and have read each morning for the last several years. 


Two of them are:

“Cast all your anxiety on him because he cares for you.” 1 Peter 5:7

“Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God.” Philippians 4:6


I am at peace. God is in control. The Lord created every one of us perfectly, in His image.  Before I was born, God knew that I would have this surgery – and when, where and by whom it would be done. He arranged for me to head down to the Purdue Levee that long-ago day in 1979 for the blood drive so that the elderly doctor would alert me to the murmur. This is part of God's plan for my life, and I fully trust Him.

That said, our Lord wants to hear from us in big things and small; and knowing that I am covered in prayer heading into surgery will provide even more comfort. Please pray for me, Dr. Heimansohn, the anesthesiologist, the nurses, technicians – everyone that will be involved in my care. Please pray for Julie and the rest of my family. Being a caregiver is hard, as I well know.

Julie or I will post each day’s progress here on CaringBridge. Thanks again for your friendship!

Newest Update

Journal entry by Tom Costakis

Dear Family and Friends - 

This week was my six week "anniversary" of my surgery. I was also released to start driving (I may or may not have started driving a few days early 😉). Most importantly, I am feeling much, much better. So much so, that I am now walking 4 to 5 miles each day.

While I still have healing to do, and several open medical items (I'll wear the heart monitor for another week; I am scheduled for an echo next week to allow my cardiologist to structurally view my heart working with the new valve; I will take blood thinner and pacing medicine for the AFib through July; and I must observe weight restrictions for lifting, pulling, etc. for another 6 weeks) - Julie and I thought this would be a good time to provide one last update before we close this Caring Bridge account. Even more importantly, it provides us with one more opportunity to give all of you one more heart felt (from my better than ever heart, no less) THANK YOU.

I cannot begin to express how appreciative we are of all the prayers, thoughts, encouragement, well wishes and acts of kindness - from all of you. It gave me strength and comfort, when I needed it most. Thank you, thank you, thank you.

If you will indulge me one more introspective thought, this journey has been a tremendous lesson to me that God has a perfect plan for my life. It is not the first time I have learned this lesson, but it's certainly the most recent and perhaps the most dramatic.

Again, I've known since I was 19 that I would need this surgery at "some time." I would be remiss if I did not acknowledge that back in late March and early April - when I was suffering from near constant chest pain and shortness of breath, and the timing of my surgery was in doubt and being postponed - I asked God "why NOW, why during a pandemic?" In hindsight, I can see the perfectness of His plan and His timing, in the form of many blessings. I'll give just three quick examples out of the many.

After I learned I needed open heart surgery, several people that had gone through open heart surgery either as a patient or the spouse of a patient, warned me that it would be very difficult for Julie and the boys to see me immediately after the surgery so broken and battered and with so many tubes and machines connected to me. While it was "weird" for Julie to drop me off at the curb the morning of my surgery and not see her again until she picked me up at the curb when I was discharged - it was a blessing she and the boys did not have to go through that. Similarly, due to it being a specialty heart hospital, in mid-April it was operating at far below capacity. I was my surgeon's (and his team's) only surgery of the day. Post op, when I thanked the nurses and other staff for every point of care, they often said they were happy to help because they were bored and/or just happy to be working. In other words, I got great, focused attention and care. While I'm sure I would have received great care in "normal" times - I clearly received more focused and attentive care than I would have received during "normal" times. Finally, my biggest concern once I learned I needed the surgery was that I would be home bound for 6 weeks post surgery. While it seems funny to even type those words - at the time I would have been an outlier and I was concerned about managing my practice remotely for such a long time. Obviously, during these "uncertain pandemic times" . . . I have blended in just like all of you and the rest of the world that has been sheltering in place. Clearly, in hindsight, I can see that God had a perfect plan for me. Before I was born, He knew when, where and by whom my surgery would be performed. He literally used a world renowned surgeon, which gave me incredible comfort. And, while a pandemic seems like a crazy time for major surgery - it was the perfect time, for me.

In closing, thank you all one more time. I am sooooo grateful to have all of you in my life. I could not have gotten through this journey without you! I look forward to seeing all of you, once we get through this time. 

Tom               
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