Declan woke up much better than yesterday. Great! Some relief heading into tomorrow. I was hoping he wouldn’t feel worse, and we’d end up inpatient or have to reschedule the MRI. It feels like we’ve been waiting for this day forever… and then suddenly… it’s tomorrow. Clearly, we won’t know any results by tomorrow… and the waiting game will begin. Anyone who has ever had a medical test… understands that feeling. Not ideal. I just hope and pray Declan’s scans come back clean, he has no issues under anesthesia, and it will be a quick visit.

Declan definitely had a better night last night than the previous night. There were only a handful of wake-ups. From the morning, he was active. More so than Saturday which was another great sign. He also was requesting and eating food and keeping it down. His temp leveled out and you could tell he had more energy.

It was a busy day with sports for the older kids. Bobby was with Mal for her early morning Lax game and I took the afternoon to watch Kellen play a doubleheader with his club baseball game, then race to his town baseball game. Yes, three games in a row. It was a nice break for me to just focus on Kellen and watch him play. I sat in a chair for hours…in my "Baseball Mom Era" and got my mind off of things. I couldn’t help but think… this is what people do normally… this is their weekend.? I’m usually working and miss these opportunities, or I’m attending to the other kids. I never just SIT and WATCH... and take time to breathe and soak it all in. It was nice. 

Which means… Bobby had the other end of the spectrum today. It was busy, loud and a demanding day at home. Mal spent some time with a friend which helped, but Bobby said the twins refused to nap as they were having TOO much fun together. Of course… when they are with Dad… every moment is fun. They gravitate towards his playful energy. They played baseball, bubbles, cars and of course went for a walk.

For the first time, Declan was able to walk around the block pushing his firetruck. That is determination and progress of hard work and effort. His little legs hurt every day from the amount he tries to move… but it doesn’t stop him. He loved it so much. JB would even stop to give him a big hug… the uplift he needed to motivate him to keep going. A little reassurance that he isn't alone and always has someone by his side. 

Ahh… I think that’s it. All Declan really needs is love and support in the purest kind… and it keeps him going. Anyone of us really do. Our kids need it with us on the sidelines supporting them, like I was today… and Bobby was for Mallory and Declan needs it from the ones he loves the most, JB, his siblings and his parents. It’s clear. I hope he takes that with him… and realizes… he’s got more than just family supporting him, but an entire community and city… who has his back to pick him up at any moment! 

Thank you for being apart of that community! We appreciate you! 

#ThumbsUpForDec
#DeclanStrong 

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