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November
25
2020

November 24, 2020

3 month scans today. All is good! Everything looked great, including blood work. There was a bright spot that the radiologist might think is a blood clot. However our oncologist doesn’t have any reason to believe it is. Nothing would change if it is so just gonna check on it in 3 months! They are very happy how Ten is doing and how everything looks! 

We talked over some issues like Ten not sleeping, and are gonna try some solutions to those! Back again the end of February.

Of course the roads were TERRIBLE on our way home. Pretty much 35 the whole way, but we made it! 

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August
21
2020

August 21, 2020

3 months later.... Rochester trip for scans and every appointment/testing imaginable. We got here Tuesday night and everyday has been filled with appointments. 

Her scans look great and that spot they were worried about before is completely gone! Blood counts and all other testing came back normal. Who would of thought a year ago that today everything would be “normal”. The oncologist and team were very excited to see us, and we don’t have to be back for another 3 months!

Ten starts college Monday and hopefully nothing eventful happens for another 3 months! I’ll update then! 

May
29
2020

May 29, 2020

Tens surgery went great! Despite having to get up at 4:30am today, we are home and she is resting! Still pretty tired from the anesthesia. But the port is out, the last “thing” from cancer is gone! Yay! 

Crazy she got it in May 28, 2019 and taken out today. One year and one day and she’s done with it! Now we just have to wait 10 days for healing and we are FREE for the summer.

I guess I won’t have to update about anything else until scans in 3 months! And I have to say, that is an AMAZING feeling. 

May
27
2020

May 27, 2020

THE SCANS ARE CLEAR! THE SPOT IS GONE!! TENLEY BEAT CANCER!! 392 days since she was diagnosed and it’s GONE! We are SO excited to get back to “normal”! 

I pictured the scans. November the spot is barley visable, January it’s bigger and darker, February the same, and May it’s GONE. I REPEAT GONE! 

Her oncology team is so excited for us, and we gave them team Tenley t shirts! We come back in 3 months for scans again and while they don’t want to see us for medical reasons, there sad to not see us for 3 months again. 

As you know last summer Tenley didn’t get to go swimming at the lake, or do any lake activities. THIS YEAR SHE GETS TO. Port comes out Friday in a quick outpatient surgery. A week of recovery and she can do WHATEVER she wants. WE GET A SUMMER!! 

We can’t thank everyone enough for the constant support. We appreciate you SO much. We will be having a party to celebrate, time and place TBD. All depends on COVID.

As for now, a COVID test and I’ll update Friday after surgery. 

May
27
2020

May 26, 2020

Brain MRI ✔️
Blood work ✔️
Neurology ✔️

Scan results tomorrow, neurology went good. 
Blood work:
Hemoglobin 11.3 (Normal 11.6)
Platelets 146 (Normal 157) 
So looks good! 

Tomorrow we meet with endocrinologist, oncology, and social work. 

Ten is feeling good! Eating good as long as she takes her apetite stimulant. Getting some nausea early in the morning. Will update tomorrow! 

May
4
2020

May 03, 2020

May
4
2020

May 03, 2020

In case you didn’t see my Facebook post: 

May 1st 2019

2 days late but a day we will never forget. Day 365 of Tenley being diagnosed with Medulloblastoma. One year. 

We had very mixed emotions about this, but overall it’s scary and very overwhelming.

The past year we have:
-Spent over 50 nights in the hospital, plus 30 days of chemo and radiation everyday in Rochester.
-2 months living out of hotel.
-2 surgeries.
-Numerous ER visits
-Several platelet and blood transfusions 
-Hair loss and growth
-GI tube
-Hundreds of blood tests

But not only have we endured the medical experience. We’ve given up a lot personally, work, college, and lots of things we’ve missed out on at 19 and 21.

Yes we are thankful treatment was done in a year, and Tenley is doing okay. But Tenley is still not NED (No eveidence of disease). There is still so much unknown it’s scary. 

I think these pictures depict how both myself and Tenley are feeling. We aren’t excited it’s been a year. How do you plan for anything when you don’t know what the next scans are going to say? 

We aren’t looking for a pity party, we’ve been very positive and real this whole journey. That being said this is how we feel right now.

What’s next? Scans are May 27th. 

🤍🧠🤍🧠🤍🧠🤍🧠🤍🧠 

#TeamTenley #TenleyStrong 

March
20
2020

March 19, 2020

The check up today went good! We were “screened” when we got to the hospital, asked if we had a fever, shortness of breath, or cough in the past 48 hours. All of the waiting rooms had signs on the chairs every couple of feet, saying they’d like people to be spaced out due to the Corona virus. There were still quite a few people there though!

Ten has been feeling very good! Little to NO nausea meds during the day. Eating a good amount of food, at least one meal and a couple snacks a day! Yay! 

I should add, in the past when she’s been “eating” I have had to push her, make her food, make sure she’s eating, or doing 3 meal replacement shakes a day. I haven’t had to do that at all this time! 

The nutritionist we met with was happy with what Ten was eating, gave us a few more high calorie options we haven’t tried before! We will start easing into the goal of 1800 calories a day.Her oncology team was more than happy with how she is doing, but the big question now is “why?”, why all of the sudden is she feeling good? Not nauseous? And even hungry? We don’t know, but we will take it! We are going to try Marinol again, which is a hunger stimulant derived from THC. She has been on this before, and it did make her hungry but it also made her dizzy. Enough to make her want to stop taking it. However we are going to try it again with a smaller dose. Hopefully this mixed with less meds, and no chemo this will help! She took it tonight and ate a sleeve of Girl Scout cookies, some potato olays, and some pizza fries. So I’d say it’s working! 

If everything stays this way, we won’t have to go back for a month! We really hope it works out this time. But I feel like I’m just waiting for it to go back to how it was. Which sucks, but is a very real possibility. It also sucks that Tenley is finally feeling good enough to go out, enjoy things but we have to practice social distancing. Her numbers are better but she’s still at risk. 

In the mean time Tenley will be working on building her strength back up with at home physical therapy. Maybe going back to work. I’ll be working and taking my classes online. And we will continue fighting with insurance to get things covered, get things back dated, etc. 

Here’s to eating, and hopefully a month inbetween hospital visits 🤞🏻