Tyler’s Story

Site created on November 12, 2021

When Tyler started experiencing back pain a few months ago, he went to the doctor for x-rays and physical therapy, where he was told his pain was caused by a tilted pelvis. Last month, the pain worsened and his left hip began swelling. November 3rd, Tyler received MRI results showing a mass on his left hip. His grandma, Karen, immediately took him to Johns Hopkins All Children's Hospital for further testing, where he was admitted. After more imaging and a biopsy, the doctors have confirmed Tyler has a rare pediatric bone cancer, Ewing Sarcoma. 

Thursday, November 11th, Tyler had his first appointment with his oncology team to learn his treatment plan. In the next week, he will have a few more tests and scans, have a port surgically placed for administering his chemotherapy, and, if all goes as planned, he will be admitted to JHACH to start his first round of chemo next Friday 11/19.  Tyler will receive a combination of 5 types of chemotherapy, alternating every two weeks for 24-28 weeks. Tyler will be admitted to JHACH for each round, for 2-5 days, every two weeks. 

Tyler will be attending school through the Hospital Homebound program, as he will not be able to attend school during chemo. He will spend many nights in the hospital, but will also require support and care at home. His grandmother, Karen, will be his primary caregiver. While she and Tyler have a support system, they would be grateful for any support their friends and family can provide.  Karen, who is the guardian of both Tyler and his sister, works full time to support them. As his primary caregiver, Karen will miss work for appointments, hospital admissions, and unexpected sick days. 

We all want Tyler to get the best care available, so, go to our "Ways to Help" section to learn more about how to support Karen and Tyler during this time. 

Newest Update

November 19, 2021

Journal entry by Grace Baron —

Big update today!

Tyler had a few appointments this week, and we got official confirmation the cancer has NOT spread.

Today, he got a port surgically placed and he’s now admitted at All Children’s planning to receive chemo today and tomorrow. He is as comfortable as he can be, and says his pain is well controlled now. This port will allow him to receive infusions of chemo and other medications without multiple needle pokes. 

Tyler has received many donations and gifts and he asks that I pass along his gratitude. He has blankets, clothes, games and more for his hospital stays now.  

Thank you to everyone who has donated, shared, and prayed! Our family is overwhelmed by your generosity and love. Tyler (and all of us) appreciate your continued prayers and positivity as he begins this long and difficult journey. 

He still hates photos, but we bribed him with Chick-fil-A to get these pictures!

Read More of the journal titled "November 19, 2021"
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