Hi Everyone,
 Hope all of you have a lovely Easter. Ty isn't one for the bunny, eggs or such, he actually didn't care about his little basket last year. However, Ty does know that Jesus died on the cross then rose from the dead. 

We went to a St Baldrick's event in Boulder at the Celestial Seasonings factory on March 9th. We were representing There with Care. I should say I met 2 other neuroblastoma Mom's. The first speaker lost her son 14+ years ago, he had a relapse that was in his brain. She is a doctor and made a promise to her son that she would do all she can to help find a cure for all types of brain cancer in pediatrics. She so sweetly hugged me and offered not only prayers but also dinners and/or babysitting. Just to be there for us. The other mom actually lives up the street from us. Her son was the Denver Ambassador for St Baldrick's in 2023. Her son is four and a half years old. We were going to meet for coffee but a snow storm hit and none of us felt safe going out in the storm. 

Besides Ty's scans we haven't been at the hospital here at home and only had the appointment with Dr VanD. Seems weird to once again have so much time between appointments. Ty's next scheduled appointment is on May 7th in New York. During that trip Ty will have bone marrow biopsies done again. So my friends or family we might need extra support during this trip. 

April is going to be a busy month for our family. Ty doesn't know this yet, his in-home team are coming to surprise him the day before his birthday. Ty turns 9yrs old, we will have a party for him this year. Then, Terrence turns 40, we have been a couple for 13yrs, our first date was on his birthday. Also, the little house we have lived in for our entire marriage will be sold and we have to move. A place was found in Lochbuie, CO. We will be closer, distance wise, to some friends and will have 2x more space. Change is hard. 

Ty is finishing up yet another round of Beta-Glucan. He has been getting more headaches this past week. Ty's scans came back clear bit a couple things that they are keeping their eyes on. Ty's allergies are worse than mine which seems strange, at least to me. 

Thankfully, we will still be able to see the in-home team. A therapist will be coming at some point to help Ty work out some issues and help him understand more of the ptsd things. It is still upsetting about the nightmare and Ty now understands that certain phrases, and words will cause a big mess. I still think it was wrong that I had to explain to Ty why everything happened, the doctors wouldn't say anything to him about the reasons. So now, Ty will spell out a couple words now instead of saying those words but he also just says oof. He knows that his feelings and emotions are difficult to control all the time but we can talk out just about everything. It's fine to take a break and step away, the one thing that should have happened there but was refused. 

Sorry. I'm still trying to fully get past what happened and be able to go back there. Ty's doctors, nurses, child life specialists and in-home therapies (music and massage) are straight forward with us and with Ty. Once Ty is comfortable around someone, it takes time to get there, he is fantastic with them. It is still very rare that I leave Ty with someone else. 

Terrence is still dead set on putting Ty in public school and I'm still homeschooling him. If we could work out a hybrid program to do both home and a few in class. I might be more open to it. Ty tries so hard to make friends at the park but many don't respond or don't understand what he is saying. 

We have many challenges ahead. Several unspoken prayer requests. Many family and friends dealing with heath issues. All of those who are struggling right now. 

Thank you so much for continuing to read about Ty's journey. We love all of you very much. Thank you for your prayers, help, support, love and encouragement.