The docs here were planning to change it in a few weeks but Nick's pain, and the fact that a ct scan  showed some likely internal leaking, changed that plan. 

This morning he went down to IR for this drain to be addressed. 

Nick is now out & back up in his room on WCC6. 

The procedure was deemed successful. The old drain into his gall bladder was removed & a new drain was placed that is internal & external. This drain goes from his liver into his small bowel - yet also has a drain that comes out of his body as the previous one did. At a future date the external portion can be capped and if all goes well his biliary fluid will then go from liver to bowel without exiting his body.

We were told the procedure was incredibly painful for Nick and we are imagining the next few days will be quite uncomfortable. 

The doctor said she "flew right through the ampulla" with no problem. 

I was worried about the ampulla because neither the gi or ir doc had been able to "visualize it" when they were in there down at NIH.  

Phew. Glad it was not a problem area! I believe being able to access the ampulla may also speak to potential paths to getting him nutrition in his gut as opposed to the central line tpn nutrition he is getting now. Stay tuned on that. One thing at a time. ❤️🙏🏻

Will let you know how the healing/recovery goes and when he may be able to go back home. ❤️❤️🙏🏻🙏🏻❤️❤️🙏🏻🙏🏻❤️❤️🙏🏻🙏🏻

Love to all!

🌲❤️TEAMNICK❤️🌲 

🦊🌲BeRelentless🌲🦊