Well since I’m fresh off my outstanding Florida vacation, I’ll just DIVE right into the positive results we received at my appt last week. My latest CT scan indicates I can move to a milder maintenance chemo since we could make the case I’ve once again reached “No Evidence of Disease”! The spots on my bladder haven’t necessarily shrunk since my last CT scan from a couple months ago, but even then it was barely there. And since my type shows up uniquely, it can reach a point that it’s subjective on whether or not it’s even showing up at all… in fact the radiologist deemed it clear. My oncologist says at the very least it’s very close to clear and she is very comfortable offering me different options as a result. One option is to release the strongest of the chemo drugs that is responsible for the high majority of side effects. Another option is to simply lessen the dose of that drug as many people see significant relief even with just a 25% decrease. The final option is to stick with the same healing recipe since it’s working and I seem to handle it well (no pain, no intense sickness, just lots of extreme fatigue). Unfortunately, since my cancer is so rare, she did not have statistics to share regarding these options, so it’s basically up to me how I want to proceed. We stuck with the same recipe for my infusion last week to allow me time to process the choices. Currently, I’m thinking of testing the decreased dosage and see if it offers me relief. If it really doesn’t, then might as well keep it as is since our philosophy from the get go was to aggressively treat this. And even then, I may only reserve decreasing the dose for special occasions i.e. vacations, big event, etc. Chemo infusions will remain at every 2 weeks, which while a challenging schedule, also affords us the opportunity to quickly switch treatment recipes should I experience any concerns after making a change. Love my “craft kitchen” of healing! 

As far as how I’m feeling, I’m gaining weight and my active Florida vacation proved my energy and endurance is increasing even more than I realized. I know some of you do not follow me on Facebook so I’ll repost what I shared from Florida and an amazing gift I received along the way below. For those of you already caught up, thank you for you amazing support, loving texts, hilarious videos, and love. Stay tuned for more incredible travel updates next month as we take the family to Xcaret resort in Mexico!! 

My Florida update, as promised…