Teagan’s Story

Site created on October 16, 2020

Welcome to Teagan's CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support, prayers and words of hope and encouragement.  On Wednesday October 15th Christie brought Teagan to the Pediatrician due to several concerns.  Over the past couple weeks Teagan developed  numerous abnormalities including torticollis, setting-sun sign, head nodding, bulging eyes and irritability to name a few.  Teagan arrived at the pediatrician and was quickly transported to Connecticut Children's for diagnostic imaging and further assessment.  The CT scan revealed a mass behind her eyes that was blocking her Cerebrospinal fluid (CSF) from draining.  That evening she went into surgery to get a External ventricular drain (EVD) placed to relieve the pressure and CSF buildup. Surgery went well and the EVD was successfully placed.  The Doctor requested  a MRI to get a more in-depth assessment.  The imaging confirmed a brain tumor.  At this point the Doctor cannot confirm what type of tumor it is.  They are waiting on blood work and labs for additional details.  It also won't be completely confirmed until a biopsy is done.  Surgery is planned for Tuesday October, 20th.  The surgeons plan to remove the entire tumor unless there are obstacles in the way (ie vessels, arteries etc).  If the surgical team is not able to completely remove the tumor, Teagan may have to undergo chemotherapy (even if it is benign).  We trust that Teagan is under the best care possible and would appreciate prayers during this difficult time.  We will continue to post with updates as they come along.

Newest Update

Journal entry by Jessica Luginbuhl

Teagan met with the specialist at Boston Children's on Monday. They came up with a plan but were waiting on the results of her spinal tap from last week.  Her results came back inconclusive so she will be getting another spinal tap and MRI on Friday.  If the results of her spinal tap show that it has spread it will drastically change the decisions that they are planning.  We are asking for extra prayers that Teagan's spinal tap on Friday show clear results and prayerful that it has not metastasized. The testing will be done Friday, but the results won't be finalized until next week this time. I will post back as soon as I have more news.  The Carlson's will be at home celebrating Thanksgiving with their family and we are so thankful for that.  They are so thankful for the prayers, love and strength you have all provided for them.  They are so thankful to have Teagan home with them for Thanksgiving and will be giving her lots of extra love, kisses and snuggles.  Wishing you all a Happy Thanksgiving and God Bless.

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