Tatum’s Story

Site created on February 20, 2018

Hi my name is Tatum Liv Miller, I know i'm only 12 days old however I have big plans such as skiing mountains , running rivers , and being an all around bad to the bone girly girl. When I was born I was diagnosed with Pierre Robins Sequence which is putting my big plans for this world on a temporary hold. Pierre Robins Sequence is a few things: its starts with a recessed mandible, then leads to a tongue thats developed further back in the mouth, and then follows with a cleft pallet. By the time im a year or two old you wont even know this all happened and ill just be stronger from it. Here in the Madison Children's hospital NICU they call me superwoman because i'm an otherwise healthy little girl and im ready to fly away with my mommy and daddy.  Please take a look below for updates on my progress of becoming even more of a superwoman than I already am.

Newest Update

Journal entry by Cassandra Price

Tatum's surgery to remove the distractors went well without any hiccup. She did amazing. The team took her around 7:45 and she was done around 10:30 am. The only "complication" was one side of the jaw wasn't as healed as the other, so the Doctor put in a plate that will dissolve/absorb over time, it is more just prevent the jaw falling back into the original spot than where it has been extended to. The team was great and it was nice to see familiar faces because they were all part of that fateful day when the first surgery was attempted, they knew her history. We were able to meet her right away after and she was awake. Tatum stayed one night in the hospital and we were discharged in the morning right before noon. She started taking a bottle shortly after surgery and ate well through the night and next morning. This a big step in Tatum's road because she will only have one more surgery to fix the cleft palate next winter, so she gets a break from the hospital (sort of). Now Tatum is home and resting. We will have followup appointments in a few weeks and continue to monitor her weight and development. Thank you again everyone for supporting Tatum's journey, we are truly appreciative! We will try to keep up on this site with pictures and developments in Tatum's life! 

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