Sylvie’s Story

Site created on September 2, 2021

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place.

Sylvie came very early (by more than 3 months)! Mara's pregnancy had been going well until her water unexpectedly broke at just over 6 months of pregnancy (25 weeks and 5 days).  To ensure Sylvie's safety, we elected for a C-section on 9-1-2021. Sylvie is currently being cared for in the NICU at Essentia Health in Duluth, MN. We appreciate all of the support and words of hope and encouragement. We read every message and are so thankful for the love being sent for Sylvie, but may not be able to respond to each individually. Thank you for visiting

Newest Update

Journal entry by Mara Edison

Last week we celebrated Sylvie's first birthday! She got to have some cake, though mostly just played with it. We sang to her and thought back on her birthday a year ago. 

She has come so far since she left the NICU.  She is crawling, climbing over everything, and trying to stand more. She still mostly drinks milk, and is getting more and more into foods. Big winners are peas and sweet potato. She got to try a tiny bit of pizza on her birthday too and of course she loved it. 

Leading up to her birthday was tough. Thinking back on her early days and all the feelings we went through was a challenge. Seeing her grow and change and develop her own personality has been the greatest joy. 

She continues to progress in her development. She is growing at her own pace and we've learned not to stress as much. Not enough to put the baby scale away, but enough not to use it. From a medical standpoint she is developing on track with her adjusted age. She has more frequent vision and hearing checks because of her NICU stay coming up and is following every few months with the NICU clinic. Once a month a teacher with the Help Me Grow program comes to our home and helps with her development as well. We have such great support around us.

She has a devious smirk and we can tell she'll keep us busy. She loves to be outside and join on hikes and get her hands in the water, sand or rocks. 

Thanks for being a part of her journey and for all the support you have given us, we can never express how much it has meant. Looking forward to many more exciting years!

Patients and caregivers love hearing from you; add a comment to show your support.
Help Sylvie Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Sylvie's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top