Victoria’s Story

Site created on January 2, 2020

Welcome to our CaringBridge website. I am using it to keep family and friends updated in one place.

My name is Victoria aka Vickie, a wife and modern mom.  I am a self-proclaimed foodie, home chef, movie critic, and family woman who believes making Christmas cookies is an art form and walking 5Ks is considered therapeutic.  I love to live a mostly healthy lifestyle and follow the 80/20 rule. 

Just over 3 years ago my healthy lifestyle was forever changed; after a series of tests spanning several weeks and months, I was diagnosed with Idiopathic Pulmonary Fibrosis (IPF) and ANCA Vasculitis.  IPF is a rare, terminal lung disease that is fatal without a double lung transplant.  The disease is irreversible, of unknown origin, and progressive.  The lungs fill with scarring until the patient can no longer breathe.  As of December 30th, 2019, my lung capacity has greatly diminished.  I currently must be on oxygen 24-hours a day which is not sustainable for the long term.  Since my diagnosis, I have attempted to qualify for special treatments, and nothing has reversed or stopped the progression of this disease.  My only option now is a complete lung transplant.

Out of 328 million people in the United States, only 100,000 have IPF.  The average life expectancy of someone diagnosed with IPF is 3-5 years. I have gone through over a week worth of testing and I now meet the criteria to be on the transplant list for the Mayo Clinic - Rochester.  I have been admitted to the Pulmonary Unit at Mayo Clinic Hospital, Saint Mary’s Campus until a set of lungs become available for my transplant.

I appreciate your support and words of hope and encouragement during this time. Thank you for visiting and please check back for updates on my progress and journey to getting a double lung transplant.

Newest Update

Journal entry by Victoria Wagner

Hello everyone and thank you for your kind support, 

Our apologies for the delayed update, things have been hectic here in Rochester the last few days. 

On Tuesday February 4th around 4PM, we were notified that a nice set of lungs were available and being prepared for transplantation. All of us kids rushed down to Rochester to be with our mom before she headed into the OR. After nearly 6 hours of testing and verifications, Victoria received the go-ahead for surgery.

At 3:30AM on Wednesday, February 5th, Victoria headed down to the operating room with her strong and confident attitude. After around 9 hours of operation, her transplantation was completed and she was moved from the OR to a specialized ICU for transplant patients. Her lung transplantation was completed by some of the most renowned pulmonologists and surgeons in the world. 

Since 1:00PM on Wednesday she has been recovering in the ICU where she will spend the next 5-10 days. She is still using a breathing tube while she's sedated and stabilizing. She is awoken every few hours to listen to supporting nurses commands to move her arms and legs and has been doing good as far as they can tell. Doctors are hoping to have her fully awake to remove the breathing tube sometime today or tomorrow. They do not want to rush this portion of the process as they want to give her as much time to recover as possible. 

We will update further as the situation changes. Visitation will be limited for the next couple of weeks to help her maintain a clean and healthy environment limiting germ exposure. 

Thank you again for your continued support.


Sincerely,

Victoria's Family.
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