Sheila’s Story

Site created on August 31, 2020

Welcome to Sheila’s Caring Bridge site, we are using it to keep Family and Friends up to date on how she is doing on her Road to Recovery.  Sheila has been on a significant health journey for the last 4-5 years.  It started with auto-immune psoriasis (covered 90% of her body)and psoriatic arthritis that thankfully with some good treatment at BJC went into remission and just has minor flare ups today.  Shortly there after she began to lose weight and just did not feel very good.  Some basic blood work indicated elevated liver enzymes and she was diagnosed with  a “Fatty Liver” condition.  As time went on periodic blood work showed the liver enzymes tended to fluctuate from normal to high so it was something to keep an eye on. In April of 2018, she again just did not feel very good, some additional test were done and it was determined she had some significant liver disease.  However, her lab and blood work would again fluctuate from pretty normal to elevated from time to time.  We continued to keep an eye on it with the help of her Liver Team at Wash U and BJC.   Then Aug of 2019 all heck kind of broke loose!!  Sheila was diagnose with a re-occurrence of breast cancer, her first occurrence was 19 years ago.  This one was too caught very early and could be cured with a mastectomy, tough news but she is a tough lady.  On the same day that she met with the breast surgeon she had a major stomach bleed that dropped her hemoglobin to 4.0 (she had lost nearly half her blood).  It took about a week in the hospital to get her levels back to an acceptable place,  she went home to prepare for the mastectomy.  As she prepared for the mastectomy she had an another liver event that postponed it for 45 days until early Nov. when she was once again “Cancer Free”!!   We spent the winter/spring trying to stay away from COVID, which we did successfully!!  Then July and Aug have been filled with several “liver events” that have caused her levels to elevate to a place where a liver transplant is now in play.  We quickly came back to StL from Telluride the last week of Aug where we have been going through the Transplant protocol/evaluation at the BJC Transplant center.  We are told she should be listed on Sept 1st and given her labs should be pretty high  on the list.  We are looking forward to the transplant and a new life for Sheila where she actually feels Good!  We are asking for prayers focused on PSP;  Patience while we wait for a new liver, Strength to get through the surgery and recovery and Peace for us but especially for the family of the donor that will lose a Loved One in order for Sheila to have a New Life!!   We very much appreciate your prayers, support and words of hope and encouragement. Thank you for visiting Sheila’s site!!! 

Newest Update

Journal entry by Dan Timm

Sorry it has been so long since my last post but please keep in mind we are going with, “No News is Good News”!!  First for the medical update, in a nutshell “Sheila continues to do Great”!!  The labs show that her liver is doing fantastic, doing everything a liver should be doing including building an environment for all the other organs to be Happy in!  Her lab work has been cut back to once a week and by mid December we should move to every other week.  We continue on the dance of slight adjustments almost every week to the medications but the trend has been to reduce or eliminate earlier than scheduled, which is great news!!  

We are past the time-frame of any questions as to whether the liver will function well or be rejected.  Sheila has also essentially recovered from the trauma of a very major surgery.  She now is focused on gaining back mobility, strength and weight.  Yes, she would love to gain a few pounds, she hit a low of 113 pounds but now with a good appetite and physical therapy program she has made her way up to 115 pounds.  We did get the “Green Light” to travel after Christmas, so our intention is to head west and spend the rest of the winter & spring between Telluride & Scottsdale.  The weather in Arizona should allow us to get outside and continue our physical therapy.  

So, I am going to call this our “Last Post” on the topic of Sheila’s liver transplant and hope that we can communicate the old fashioned way (face to face) in a COVID Free world in the very near future.  But, before we close this chapter we want to say one more time just how Grateful we are for your support, thoughts, well wishes and prayers (especially PSP prayers).  We firmly believe that you all made a difference in Sheila’s outcome by going to our Lord & Savior in powerful prayer!  You also made a Big Difference in our resolve and confidence knowing you were in our camp and encouraging us!!  I know it is kind of weird, but we could absolutely feel it!!  

Now for just a moment back to this posts title, Blessed & Grateful.  Reflection is something that Sheila and I believe is important to do from time to time, especially during the Holidays.  As we reflect back on 2020, there were moments when the future looked pretty Dire, candidly downright scary!!  However, somehow we knew it was going to be OK and actually not just OK but GOOD!  We knew God had a Plan and our role was to Go with it!  We still don’t know exactly what that total plan is but, we do believe that God gave us more time together on this earth to do something important and special!  With that in mind we have re-shaped our priorities for our Next Chapter to be;  Gratitude, Authenticity and Service.  It is not entirely clear to us what exactly that means or what it looks like but trust that we will gain clarity as we walk ahead in faith. 

So, let me close with a Final Big Thank You for being in our Camp, your presence and prayers will forever be remembered!  Challenges make us stronger, help us know who we are and who our friends really are.  This health journey has been a Challenge beyond no other and has made us Stronger in who we are and who our friends are.  Most of all it has brought us closer to the Lord and guess what, I bet that was His Plan all along!!  How about that!!  

Love you all!!  Happy Thanksgiving, Merry Christmas and Blessed New Year!! 
Here are a few Photos from the Timm house, guess the Christmas elves came early this year!!

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