Scott’s Story

Site created on September 13, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Linda Barkalow

Good Friday afternoon dear friends.  It's been awhile since I've posted.  I meant to do this on the 14th, Valentine's Day but didn't make it.  I'm happy to report that Scott had his feeding tube permanently removed in January.  I am no longer pureeing his food, with a couple exceptions, like eggs.  He isn't eating chips and salsa yet, but does like potato chips and crackers.  It's a blessing.  Scott also has started recognizing some words and putting together sentences.  He does not talk, but he points to the words to say things.  The speech therapist is a wonder.  She has brought him along every step of the way.  She started with "I want" and then shows him words on cards.  She doesn't tell him what the words are, just tells him what the sentence is she wants him to create.  He has to pick out "I want" and then finish with the correct words.  He has identified pronouns, he, she, they, etc.  He also is giving us a thumbs up on a lot more things to indicate his wants and joys, and also his dislikes!!  He has been dealing with a pressure sore which is very bothersome and has required multiple trips to the wound clinic, but it is coming along. These steps are giant steps for him, and for us to communicate with him.  Thank you, once again, for your prayers and support.  One day at a time.  God is good.  Hopefully Spring around the corner, and pandemic on the wane.  Stay safe my friends and thank you. 
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