Sawyer | CaringBridge

Sawyer’s Story
Welcome to Sawyer's story! On March 21st, 2018 our lives were forever changed. After many tests and procedures Sawyer was diagnosed with Acute Lymphoblastic Leukemia. Sawyer is your typical sweet and very energetic 2 year old who enjoys playing with his older brother Nolan and loves to make people laugh. I created this site to help keep family and friends update on the long journey we have ahead of us.

Newest Update

Journal entry by Alicia Draper

Today was finally the first day of maintenance. Sawyer had chemo and a spinal tap. We will stay in maintenance the rest of the 2 1/2 years. Each cycle is 3 months long. The doctor put it like this... We have finished the sprint now we start the marathon. We will go every 4 weeks for chemo and an inhaled pneumonia medicine. Every 12 weeks will be a spinal tap day as well. Sawyer struggled today with his chemo infusion. He could taste it a lot more than usual and I could tell he was not feeling good. Part of that was from the cold that has invaded his body. We did have a huge success today that I am very happy about. There is a pneumonia medicine that Sawyer has to have on a regular basis. It started as a liquid and we could not get it down him so they changed it to an IV form but did not want him to be on it for very long because it is very toxic to his body. We have discussed this medicine for months and how we can figure out a better way to get it in his body. Our doctor suggested trying it in a breathing treatment but the respiratory therapist wasn't sure he would do well with it or if he was big enough. Boy did he prove them wrong today! He did amazing with it and the RT was impressed with how well he did. So from now on he will get this medicine in a breathing treatment. For the past few phases we have had a break from medicine at home until today. :( For the next 2 1/2 years Sawyer will take medicine at home every single day. For a week straight every month he will take steroids twice a day. He also has a liquid medicine that helps calm him from the side effects of the steroid. Every day he will take a chemo pill as well as every Monday he will take 5 pills of another chemo med. This is going to be a big challenge and I am praying that this will get easier for Sawyer and ME. :) Pray for patience and that Sawyer will learn to take his meds without a fight.

Thanks for all your prayers and support. It means so much!!
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