Novalee is a beautiful little 8 mo new girl with Tay-Sachs... At 22 weeks pregnant she was diagnosed, us her parents faced decisions we would have to live with for our entire lives... We talked to Drs and Organizations and we were given so much hope... As everyone knows clinical trials have not started and 2 children were used for compassionate care why they get the gift of life is beyond me and others don’t ? So as a mom who fights for her kids this is the decision I’ve come too...  We need your help we need to save my daughter we are looking into other things like Stem cell therapy and other treatment however I’m Novalee’s full time caregiver and I’m not working so we have taken a huge financial loss..  Caregiving for a baby like Novalee is not easy so me being hone is our only option.. your help is appreciated and if you can’t please raise awareness  for Novalee and my Angel Nikko!!!! God Bless and I believe we have so much hope to save Novalee I cannot lose another child!!