Journal entry by Erin Cimpl Nahorny

Am I driving you crazy with the exhaustion yet?! AHHH!! So, I want to tell you all about this experience, but I think the adrenaline ups and downs and of course, sleeping at the hospital have us completely worn out!!

So, here's the scoop. We got the blood makers we needed!! YAY!!!!!!! This opens up treatment options, specifically another round of MIBG therapy at some point. Sammy was excited and hilarious this morning. When the doctors were doing rounds, there were about 10 people in the room and Sammy said to them all, "Who wants a treat??" in this silly sing-song voice. It sounded like he was talking to his puppy. Cracked us up. So he gave each of them a piece of candy. 

We were discharged from the hospital about 8pm and when we got back to the hotel, Margie was waiting for him. He was excited to see her of course and she brought him treats too. A giant Hershey's kiss, a Hershey's bear and a Hershey's lego semi-truck. Do you see a theme here? He told me yesterday that she is his best friend in Chicago. So sweet.

We will head for home tomorrow. Sammy's platelet count has dropped from 210,000 to 55,000 in two days, so we need to go to clinic Friday morning to check in and check counts. They do a transfusion if it drops below 20,000. We are anxious to see Anisa and Dr. Coulter after this big week!! 

Thank you for praying us through this one!! We accomplished everything we needed to and received some good news. Even though it was exhausting, it was a successful week. 
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