I had several different conversations today about advocating for your kiddo and pushing to find options that are in their best interest. All of the nurses were excited about now knowing this option to offer to families in our position.
The best thing about today was that we were able to spend the day at the Infusion Center, not throwing up and sleeping, but visiting with our fellow FBI Junior Special Agent, Paul, and his parents. I had a "moment" when the nurse came in and gave them the results from Paul's scans today. I realized in that moment, that I was terrified for them. When I saw Claudia give them the thumbs up and saw the look on Paul's parents faces, I kind of broke down. Nothing totally embarrassing, just tears.
I just love that kid. He is in 5th grade. He is incredibly sweet to Sammy. He is patient, funny and smart. Paul likes bugs and insects and he wants to be an Entomologist. (He and Chris looked that word up) He is another example of the cruelty of childhood cancer. Watching this amazing family that we adore, wait in fear for results is so incredibly difficult. I am so thankful that his scans were clear. It's hard to explain the relief I felt to hear that news.
While we wish everyday that Sammy wasn't sick, once again, I have to acknowledge that this has also been an opportunity for us to see the very best in people and to meet some of the most incredible kiddos and parents in the world.
So, tonight, here's to Paul's clear scans, no NG tube, eating pizza, our St. Isidore's family's awesome cards, Fr. Joe visiting and singing "If I Were a Butterfly..." with Sammy in the middle of the Infusion Center and to all of you for continuing to be Sammy's Superheroes and helping us fight this war on childhood cancer.
We live in the most amazing and supportive community and we would love to come together today to celebrate all that we have accomplished this year.
"Sammy's Superheroes Day"
Columbus Races, Ag Park
Wear your blue or gold shirt and come hang out with us! We will have merchandise available for purchase as well.
We are excited to see you all there!
Post time is at 2:00pm at Ag Park in Columbus.
10% of concession sales that day will be donated to Sammy's Superheroes Foundation for Childhood Cancer Research.
Bring your whole family and join us on Sunday for a great day full of fun and raising awareness and funds for Childhood Cancer.
Sammy LOVES the races and is excited to see how many Sammy's Superheroes shirts we will see! If you don't have your gear yet, no problem, you can get it there!
This is on top of any merchandise that was purchased at the event. You guys are AWESOME!!!
Site created on July 30, 2012
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