Journal

Journal entry by Jenna Clark

Sometimes despite all of the horrible things that weigh us down, we are given moments that help us stay strong.  I believe Erin and Sammy had a special moment today that I hope will stay with her forever.  I was reminded how true this statement was, even when we can't make sense of things.  Thankfully, we were given a glimpse of child-like faith that can remind us of our own. 
This morning as Sammy woke up he said to Erin....
 "Guess who I love most Mom?" Erin: "Who? Me??" Sam...."no. God because he loves us the most, right mom?" yes baby. yes He does.

I'm sure that I can speak on behalf of Chris, Erin and their extended family and say thank you.  Thank you for your outpouring of love and a special thank you to all of the prayers so many are lifting up for Sam.  Everyone has been asking what they can do and right now that is the best thing possible.  Just keep praying. 

Chris, Erin and Sam made it to Omaha this morning and have a busy day ahead of them as they try and get some answers.  Please continue to respect their need for privacy and time as they just get through these upcoming appointments.  Erin plans on letting us know updates so that we can update everyone here. 

I have attached a photo of Sam on the way to Omaha this morning, holding onto a special gift from Terri.  There is no way to look at his precious face and not smile, even if it is through tears. 

We will update you when we know more.  Also, please remember that Ella does not know details at this point so if you have kids around her age please be sensitive to that.  Erin and Chris want to handle that on their own, when they have more answers. 
Thank you,

Comments Hide comments

Journal entry by Jenna Clark

I'm not sure how to begin a post like this. Does one just lay it out there, exposing all of the details with no emotion? Or does one lay it out there with all the emotions that come with a diagnosis like this? I don't have an answer for that. All I can do is send out a message on Chris and Erin's behalf, hoping that prayers will bring healing to their sweet, sweet boy. So please bear with me as I navigate this post.... Today Chris and Erin had to hear the words no parent should ever have to endure. Sammy was diagnosed with neuroblastoma. For those of you who would like a better understanding, here is a definition: Neuroblastoma is a type of cancer that begins in the nerve tissues (neuroblasts) of a child's abdomen, pelvis, neck, spinal cord or adrenal glands, located above the kidneys. Neuroblastoma commonly affects children age 5 or younger. Here is what I know to the best of my knowledge/memory: The tests showed a large, calcified tumor resting on top of his kidney. The sympathetic nervous system is involved, though we don't know to what extent. There are also lymph nodes affected in his lungs. Both the pain in Sammy's stomach and in his legs could be symptomatic of this diagnosis but they will learn more in the following days. They are taking Sammy to Children's Hospital tomorrow morning and will be meeting with Dr. Elizabeth Thompson. They will be discussing the prognosis and treatment options. At this point that is all I am able to relay. Chris and Erin are asking for your prayers and understanding of their need for family time right now. They know they have wonderful friends and family ready and willing to do whatever is needed and they will let us know when they do.... but for right now they need our prayers. Please don't expect phone calls to be answered in the following days as they just need to focus on their family and finding rest. We will continue to update this when information is available.

Comments Hide comments

Journal entry by Jenna Clark

I'm not sure how to begin a post like this. Does one just lay it out there, exposing all of the details with no emotion? Or does one lay it out there with all the emotions that come with a diagnosis like this? I don't have an answer for that. All I can do is send out a message on Chris and Erin's behalf, hoping that prayers will bring healing to their sweet, sweet boy. So please bear with me as I navigate this post.... Today Chris and Erin had to hear the words no parent should ever have to endure. Sammy was diagnosed with neuroblastoma. For those of you who would like a better understanding, here is a definition: Neuroblastoma is a type of cancer that begins in the nerve tissues (neuroblasts) of a child's abdomen, pelvis, neck, spinal cord or adrenal glands, located above the kidneys. Neuroblastoma commonly affects children age 5 or younger. Here is what I know to the best of my knowledge/memory: The tests showed a large, calcified tumor resting on top of his kidney. The sympathetic nervous system is involved, though we don't know to what extent. There are also lymph nodes affected in his lungs. Both the pain in Sammy's stomach and in his legs could be symptomatic of this diagnosis but they will learn more in the following days. They are taking Sammy to Children's Hospital tomorrow morning and will be meeting with Dr. Elizabeth Thompson. They will be discussing the prognosis and treatment options. At this point that is all I am able to relay. Chris and Erin are asking for your prayers and understanding of their need for family time right now. They know they have wonderful friends and family ready and willing to do whatever is needed and they will let us know when they do.... but for right now they need our prayers. Please don't expect phone calls to be answered in the following days as they just need to focus on their family and finding rest. We will continue to update this when information is available.

Comments Hide comments

Sammy’s Story

Site created on July 30, 2012

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

SVG_Icons_Back_To_Top
Top