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November
27
2014

Happy Thanksgiving 2014

Sammy woke up this morning and told me, "Mom, I'm thankful that God always loves us." ❤️

My heart. I love this boy.

We are thankful for each of you, your prayers and support. We wish you a blessed and beautiful day filled with the people you love. Happy Thanksgiving!

Be Strong and Courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go. ~Joshua 1:9

November
21
2014

November 2014

Said good-bye to our friends at Residence Inn by Marriott (Margie, Lyndsi, Donnie and Tristan are in this photo) and we are on our way home. They take such good care of us. ❤️

Sammy was officially accepted into the study this morning. This week's testing shows stable disease, with bone marrows at 5% and 2-3%. While we are so thankful for no progression, we continue of prayers for Sammy's miracle.

We start the trial drugs, Celebrex and DFMO on Monday and return to Chicago next weekend for Cyclophosphamide, Topotecan and several days of bloodwork. The week after that is Celebrex and DFMO at home again. Each cycle lasts 3 weeks and we will do two cycles and then do another work-up.

Thank you for praying us through yet another stressful week. ❤️💛💙

October
15
2014

By request...An update on Sammy...


Sammy is doing awesome. He started 1st grade and has only missed about 4 days of school so far this year. He has lost both front teeth and is a bit of a toothless wonder right now!

He was able to play soccer this fall and was so proud to get his medal at his final game last weekend. He is feeling good and looks great. He is enjoying play dates with friends and is a good student. We are very proud of him.

We haven't had scans since June, which showed no change from the previous scans. His VMA/VHA urine markers are stable, so we will wait to do additional scans, biopsies, etc, until there is an opening in the clinical trial Dr. Cohn has suggested. We were recently told it will be at least 2 months, but Dr. Cohn and Dr. Coulter agree that this is the best treatment option for Sam. Of course, we trust them implicitly, so it's a no-brainer. Plus, we are really enjoying "normal" life.

We continue to feel extremely blessed that Sammy doesn't complain of pain and is generally a happy 6 year old. Thank you all for your continued support and prayers. This is a pic of Sammy wearing a new fighter's shirt, Troop Maxon. ❤️💛💙

September
20
2014

Columbus Catholic Masses GO GOLD

We are so blessed by the support our hometown give to our mission to raise awareness and fund research for childhood cancer.

This weekend the Columbus Catholic Churches are encouraging parishioners to WEAR GOLD (including gold SS t-shirts) to masses in support of Childhood Cancer Awareness Month. The 2nd collection at all masses will be for childhood cancer research. Thank you all for your on-going and generous support.

September
1
2014

September 1st, Childhood Cancer Awareness Month...

Who knows what today is?? It's September 1st and the start of Childhood Cancer Awareness Month. Each day we can do something to help raise awareness of this dreaded disease, the #1 cause of death by disease in our children.

Day 1: CHANGE YOUR PROFILE PIC on social media sites and REGISTER for Glow Gold our 1st annual fundraiser at, www.sammyssuperheroes.org. If you live out of state and can't attend please consider a donation to childhood cancer research AND go to your local hardware store and buy yellow lightbulbs and CHANGE YOUR EXTERIOR LIGHTS to honor ALL children who have fought cancer. GOLD is the color for childhood cancer. Help us raise awareness this month!!


July
30
2014

Sammy's 1st Camp CoHoLo

"The fun doesn't start till moms and dads go home!!"

July
30
2014

Sammy's Superheroes in the Platte Center 4th of July Parade!

4th of July Platte Center

July
30
2014

Chicago FBI

The Chicago FBI created an amazing day for our little agent. This photo is of him with the SWAT team after they solved a "mock" case. Amazing, incredible people. ❤️