I haven’t updated for awhile Bc tbh not much has changed. We are still in recovery from surgery at UofM Mott Children’s hospital. We still don’t know exactly what is going to happen. This morning neurosurgery woke me up for the first time since Friday (Bc they had the weekend off). Well while they had time off the resident unit dr wouldn’t take Ryland off of his IV therefore he didn’t eat or drink as much as Dr. Garton wanted. Well his tummy is completely distended. Nothing is helping. ALSO,  Who is thirsty with as much fluids as he’s getting?  He literally over night peed so much that his diaper pretty much disintegrated and he got my butt all wet.  Really fun. So I explained this and he’s been off fluids. They also stopped the Valium to only as needed hoping his appetite will come back. He’s also been taking a medicine to stimulate his appetite. Which is not working clearly. He’s alwAys been a fussy eater. He really only eats good for me. So when daddy’s here it’s okay.  And recently not eating good for grandma. Though today he had to be npo (nothing per oral) for a couple hours because he had a follow up swallow study. AMEN he passed it. One tiny bit of good news. Then of course he was dead asleep and had to be woken up for it. So he was crabby craberson and was too tired to eat.  But as soon as mama showed up he was rested (thank you grandma!) and hungry. I brought him McDonald’s in desperation Bc our surgeon straight up said he can eat only McDonald’s for all I care he just has to be eating. Welll I got 2 healthy organic pouches in him today at least and 6 oz of pedialyte. Other than that it was 3/4 medium fry. 1 chicken nugget and 4 bites of a waffle. Oh and he ended up having 16 Cheetos. Yes 16, I counted them out.  Maybe 4 cheez its. A couple goldfish. No meatballs Bc of course it took the nurses way too long to heat them up for us.  Can u see why I haven’t updated u guys. All I have to tell u is any and every bite of food this kid has. Why is this a huge deal u wonder? Bc dr. Garton is so worried about his incision and the wound care that he said ur body doesn’t heal with out calories. So if Ryland doesn’t get 1,000 calories a day, I’m putting a feeding tube in. Well he has been like at the 600-800 range. I think for an immobile bed ridden 9.3 kg toddler thats not terrible.  To make it even bigger of a threat today they told me they are even considering a GTube for us to go home with since they heard he doesn’t eat well at home either. Again, this is another one of those things he eats great for me on my days off. But other days definitely not as good. I just don’t want to make this boy suffer with a feeding tube if he doesn’t have to. 
dr. Garton also said we can not expect any longer than 6 weeks out of the halo. His skull is too thin and with only 2lbs of pressure on each post it will loosen and he will have to have it removed. The other doctor told me she thinks it will last longer. They hope for 3 months. So as soon as pain, eating and drinking are managed we probably will be able to bring him home, and bring him back to see dr. Garton I dunno every other day or so it seems like. Let’s just say 3 months from surgery is like December 8th. So Ryland will definitely be out of the halo in time for Christmas. ❤️❤️❤️ Thank you everyone for your support, prayers, texts, calls, comments I can not tell you how much they mean to us. I know Ian feels the love just as much as I do. I’m sorry this was a rambling update. It’s midnight, I can’t sleep in this place, and I miss my own bed, my baby Vivi and of course Ian and his ugly body pillow. You guys he sleeps 

with a fuzzy purple body pillow I bought in 2014 from Costco for like $20.   I hate it so much lol. 

ps. Ryland holds my hand so good now. And after he grabbed my hand his heart rate went from 176 to 163. True love ❤️❤️❤️❤️