Robin Su’s Story

Site created on March 11, 2021

Welcome to Robin's CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. 


Hi my name is Madison. My mom Robin Howard had found a lump on Feb 5th while doing a self examination. She had mammogram and ultrasound on Monday Feb. 22nd. She had a biopsy on 23rd and was diagnosed cancer on Thursday Feb 25th. She has been getting Mammograms every year or 2 for the past 10 years.


Her diagnosis is triple negative invasive ductal cancer in her left breast. It is a stage 2 and grade 3. As of right now she has started her first chemo session. Chemo will last 20 weeks then recovery. Followed by surgery and possibly radiation. We have not gotten back results to see if she has the BRCA gene but will update as soon as we do. Some treatments may change along the way but this is the plan so far. We have not decided which surgery we will be doing but will update as we do.

This was very unexpected. Mom is a single mom with 9 year old at home. She is extremely strong and doesn't like to ask for help but needs it. I know her finances and Kennedy are her biggest worries. We want to make this next year go as smoothly as possible for her with the least amount of stress as possible so she gets well faster. Nevin and I live 5 min away and will be helping as much as we can around our work schedules. Nevin will be helping with the nursery. Most of our family and friends are in Florida. With new friends and neighbors here in South Hero, everyone has been amazing, asking how to help and what she needs. We thought this would be a good way to do things in an organized way. We thank you for all the prayers, help and reaching out. I know it means the world to my momma. 

Love, Madison (https://www.caringbridge.org/assets/ugc/1927a7/420f6331-441e-4ca0-aca3-1cbaff02cc88.jpg)

Newest Update

April 08, 2021

Journal entry by Robin Su Viens Howard —

Hello friends and family!  Started feeling better yesterday! Fingers Crossed I have another good day today.. with minimal side effects.  Still very fautigued and other little things that are easy to handle compared to the bad things.  Here is a list of side effects i have experienced with two infusions down!  Most days not all at once but some days almost all of them.  2 down 6 to go!  Thank you for your prayers. I believe it would  be worste with out all of your prayer!  This too shall pass..one day at a time. 

*rash on my scalp
* Bloated face
* Hair loss, including starting of lashes and brows
* Weight gain
* Flushed red face
* Hot flashes
* brittle nails
* Hungry all the time and sometimes cant eat. 
* Everything tastes awful, including water
* Tongue feels sticky and gross
* Things change flavor day to day and week to week
*Constipation
* Dizziness
* Fatigue
* Muscle and bone aches
* Headaches 
* Twitching eyes
* Blurry and worse vision
* Restless legs
* Acid reflux and nausea
* Runny nose
* Sore throat
* Stomach cramps
* Irritability 
* Mouth sores
* Dry skin
* Constipation
* Bruising
* Blisters
* Itchy bumps and hives
* Irritation to bandages
*numb finger and toe tips
*hemroid

To lighten the mood... thought this was good.  as evrything is how you look at it!   A list of positives to negate the negative..... (list not made by me)

1. Bloated face...no wrinkles!!!
2. Hair loss...no hair to style makes it super easy/fast getting ready!!!
3. Weight gain...enjoyed eating all the junk food I love but normally never eat!!!
4. Flushed red face...no need to wear blush!!!
5. Hot flashes... no 
need to buy pj’s!!!
6. Brittle nails... used gel polish throughout chemo: Didn’t have this issue. 
7. Hungry all the time...great excuse to eat all my favorite junk foods. The junk food was the only food that tasted amazing!!!
8. Explosive diarrhea... I have a very flat tummy!!!
9. Dizziness... great excuse to lay around and have my husband baby me🥰
10. Insomnia...I had a lot of time to online shop!!!
11. Muscle and bone aches...Great excuse to take a lot of “magnesium” spa baths!!!
12. Headaches...lots of ice packs for my head.
13. Blurry vision...Not seeing my husband’s many messes!!!
14. Restless legs... I was able to use my weighted blanket. Worked like a charm!!! 
15. Nausea...Great excuse to take my “gummies”!!!
16. Runny nose... Thank god for masks!!!
🙄🙄🙄🙃🙃🙃🥰🥰🥰
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