Journal entry by Sherry Padgett —
Hi all!
Well, as we head into fall, we're feeling super grateful that we've been able to get outside and take advantage of some of the weather. Rob's energy has been pretty stable for the last two months. He has been taking a steroid to help with the nausea the first few days of his chemo infusions and it's helped his appetite, his nausea, and given him more energy too! We have been kayaking several times since buying a tandem boat a couple of months ago.
Rob is still very sensitive to cold, but the weather has been so warm that he's been able to float without too much trouble.
We also went fishing on a pontoon boat! Thanks Ben & Cassie- that was a wonderful experience for both of us!
Rob had another CT scan of his abdomen on Monday this week that showed the carciomatosis has been fairly stable in growth and somewhat improving in density. His blood work every couple of weeks shows continuing trends that are all moving in the correct direction. His weight has also been holding steady! Good job Robert 👏 👍 (Rob if you read this it's time for a snack!! Haha)
So after 12(!) rounds of the chemo cocktail Fol-fox Rob is being switched to another cocktail called Folfiri to avoid any permanent nerve damage from that aggressive drug. Most people need to stop around 8 rounds due to the debilitating side effects, but Rob's body has tackled that challenge like a champ! 12 rounds instead of 8 has given us an extra two months of mostly stable symptoms and I'm super grateful we were able to enjoy so many good times during the last 8 weeks.
Please continue to keep Rob in your thoughts and prayers. We appreciate everyone who reaches out so much! Rob has an MRI of his brain coming up as a precaution for some vision changes he has been experiencing and I'll post an update after we get the results in a few weeks.
Love you all- stay safe, and don't forget to vote!
Sherry
Well, as we head into fall, we're feeling super grateful that we've been able to get outside and take advantage of some of the weather. Rob's energy has been pretty stable for the last two months. He has been taking a steroid to help with the nausea the first few days of his chemo infusions and it's helped his appetite, his nausea, and given him more energy too! We have been kayaking several times since buying a tandem boat a couple of months ago.
Rob is still very sensitive to cold, but the weather has been so warm that he's been able to float without too much trouble.
We also went fishing on a pontoon boat! Thanks Ben & Cassie- that was a wonderful experience for both of us!
Rob had another CT scan of his abdomen on Monday this week that showed the carciomatosis has been fairly stable in growth and somewhat improving in density. His blood work every couple of weeks shows continuing trends that are all moving in the correct direction. His weight has also been holding steady! Good job Robert 👏 👍 (Rob if you read this it's time for a snack!! Haha)
So after 12(!) rounds of the chemo cocktail Fol-fox Rob is being switched to another cocktail called Folfiri to avoid any permanent nerve damage from that aggressive drug. Most people need to stop around 8 rounds due to the debilitating side effects, but Rob's body has tackled that challenge like a champ! 12 rounds instead of 8 has given us an extra two months of mostly stable symptoms and I'm super grateful we were able to enjoy so many good times during the last 8 weeks.
Please continue to keep Rob in your thoughts and prayers. We appreciate everyone who reaches out so much! Rob has an MRI of his brain coming up as a precaution for some vision changes he has been experiencing and I'll post an update after we get the results in a few weeks.
Love you all- stay safe, and don't forget to vote!
Sherry
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