Agnes was moved from the NICU to "the floor" today which shows how incredibly great she's doing! It also means she un hooked from ask the machines and I'm free to stroll around with her. I took her outside on the rooftop garden and it was so lovely to get fresh air and sunshine! It also means I get to sleep in the same room as my precious girl! (Mmmm but we're also sharing a room with someone else... boo)
Agnes and I won't be spending much time in this room!
I went out for a walk tonight too pick up a new charger for my phone, and I picked some beautiful flowers to brighten up my room.
This is all very emotionally, physically, mentally tolling but we are fully trusting in and relying on God to get us through this. We'll be stronger as a family in the end.
Wee know that things could absolutely be much worse and it only takes a moment to look around a busy children's hospital to realize that. And another good reminder of that is today is August 5th and we lost our sweet Payton 6 years ago today. There isn't a day that goes by that we don't long for her and miss her deeply.
So while I sit here nursing my littlest love, I soak in all the blessings. I may be pretty uncomfortable in many ways but it's only temporary. "I will praise him in this storm"
Next surgery is August 17th!