Rachel’s Story

Site created on December 30, 2019

Thank you for visiting Rachel's site.  Rachel has been diagnosed with Progressive Supranuclear Palsy (PSP), an extremely rare neurologic disease that is particularly cruel.  PSP usually strikes people in middle age and has an average life span of 5 years from around the time of the diagnosis.  There are different subtypes of PSP.  Rachel's main symptoms are extreme fatigue, being very unbalanced (which has led to ankle, pelvic, toe, and recently vertebral fractures), being apathetic, difficulty sleeping, problems with executive functioning (multitasking like cooking, organizing, etc.), swallowing issues, memory issues, amongst others.  I started this site to keep those who wish to be updated, updated.  Thank you for your prayers, support, and thoughts.  All are much appreciated!

Newest Update

Journal entry by Larry Studt

Good afternoon everyone.  I hope everyone is having an ok month of January.  Usually one of the coldest months of the year but, not this year at least for us.  I thought I would place more specific info about Rachel's service next week.

Due to the pandemic, we are having a small service.  The service will be live streamed and also can be viewed at a later time.   The link for the service is:


Or, one can go to:


The link is toward the bottom of Rachel's obituary.

When the pandemic is no longer a problem, we will have a celebration of Rachel's life.  

Thank you all for your support, messages, cards, gifts, meals, prayers, and so much more the past few years.  We are very grateful for your presence.  While we will miss Rachel immensely, the knowledge of how much she has touched others, memories, and her love for her family make things just a bit less heart breaking.  
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