Quincy’s Story

Site created on October 19, 2021

Quincy was diagnosed with B-cell acute lymphoblastic leukemia on October 18, 2021. He had been having leg pain for a couple months. We first noticed it while he was playing baseball. He began to have a strange run between bases and was slow. This was very much not his normal. He is extremely fast and competitive, so running slowly between bases was odd. We really thought it was growing pains, because all of our boys have experienced them. We had him evaluated by a nurse practitioner, and at that point, they too thought it wasn't anything to worry about, so be pushed forward.


We left to go to the beach at Emerald Isle, NC. While on vacation, he began to experience more pain and really wasn't getting around well at all. We traveled home on Saturday and by Sunday he needed me to hold his hand to walk into church. He also began to have petechiae on the lower part of both legs. These are tiny blood spots. We scheduled an appointment with a doctor and dear friend, Dr. Brinkruff for Wednesday. I felt better just knowing we were going to get some answers. 


On Monday morning we headed to our homeschool co-op. I felt really uneasy, thinking maybe we needed to get him seen before Wednesday. The petechiae had spread to the upper parts of his legs and bottom. It seems like it should have been a simple decision, but I  just felt paralyzed. A sweet fellow co-op mama met me in Quincy's classroom and I told her that he may need some help walking between classes. She pushed for more information. Turns out she was a nurse and immediately helped me make fast decisions. She told me to contact our doctor and ask if Quincy should be seen sooner. I was able to communicate with Dr. Brinkruff and he agreed that Quincy should be seen sooner. Jason met me and we traveled to Peyton Manning Children's Hospital. Our co-op friends rallied around us immediately offering to cover my responsibilities for the day (one of those was teaching high school economics...who would want to do that?) and even get our other kids back home.


Once we arrived at the ER, things moved very quickly. The first doctor we saw, Dr. Jennifer Barker was excellent. The blood work immediately pointed to my worst fear. His platelet count was only 11 (thousand) and should have been over 100. His white blood cells were elevated too. His abdominal ultrasound also showed an enlarged spleen, liver and kidneys. Dr. Barker pulled Jason and I out to the hall and explained that she felt it was leukemia. I, needless to say, needed a few moments to collect myself before seeing Quincy again. Jason let me have a few moments (his moments came later). I was given a room to emotionally vomit for a while. I collected myself and returned to Quincy and Jason. 


Dr. Douglas Cipkala was the next "friend" that we met. He is a pediatric oncologist, and is a delightful person to be around. He examined Quincy and then took us to his office. Quincy got to build legos with the child life specialist while we were away. (These child life people are AMAZING!) Dr. Cipkala confirmed the diagnosis after having examined Quincy's blood under a microscope. Having heard a definitive diagnosis, Jason now needed his moment. Jason is a strong man and rarely is shaken, but this was different! Something, very different!


We were eventually given a room, the Peyton Manning room to be exact...complete with memorabilia on EVERY wall! We were also told we would know the type of leukemia we were working with the next day, which was when we were given  the good news (if you can call it that) that Quincy's form was the most common and most treatable form. B-cell ALL.

Newest Update

Journal entry by Karoline Gantt

It sure has been a long time since I updated our prayer warriors!

Quincy is doing well. He went in for a spinal tap today. That went very well! This is a procedure that allows Dr. Escoto to introduce  chemo into his spinal column and brain. The chemo he gets regularly does not cross into this area, so it has to be injected via a lumbar puncture. 

We will return in 10 days for another round of IV chemo. This will conclude the last phase of his treatment before we enter into maintenance. If all goes as scheduled, he will begin this on Aug. 31st. He will have another spinal on this day. The good part is that he will only have to do this every three months in maintenance. He will also only have to go to the clinic once a month for blood work. In these three month cycles he will take a chemo pill at home everyday and a week of steroids once.

These three month cycles will continue until Dec. 29, 2023 (if no relapse occurs). There will be a massive party at this point!

I will have to say I have been battling fear a lot lately! The best analogy I have come up with is this. A monster was roaming free in our house, until someone told us about it (though there were signs). Once we identified it, a large cage was put over the monster. The monster is still in our house, though kept away from us by a sturdy cage. We know it is there in the cage, but we just can't completely remove it from our house. Eventually we will be told the monster is dead, and the cage will be removed. The "dead" monster will be left in our house though. We just have to trust that it is dead and that it won't come back to life. We will have to adjust to the trauma of knowing there has been a raging monster, and learn to trust that it really is dead. 

This probably sounds dark, but I have been really trying to be honest about how hard this is. I am trusting for God to comfort my fears. As we get closer to "removing" the cage, I find the fear harder to manage. My God is big, and he will continue to be larger than my fears! I wouldn't need him if it weren't larger than what I can handle on my own.

I praise God for how well Quincy is feeling! I praise God for the chance to grow and trust Him more.

 

 

 

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