Kaitlyn’s Story

Site created on March 31, 2021

On August 14, 2018 we took Kaitlyn (Pookie) to Gillette children’s hospital in St. Paul, Minnesota for a MRI because she was complaining of neck pain. During the MRI the brain surgeon came out and introduced hisself and told us the worst thing ANY parent can hear “they found a mass on her brain”.  They immediately admitted her to the hospital and the following day (August 15,2018) she had brain surgery. After her surgery, she ended up getting posterior fossa syndromes, she couldn’t talk, walk, NOTHING 😭 Her pathology report came back as medulloblastoma.

On September 8th we were sent over to the University of Minnesota Masonic Children’s hospital in Minneapolis, MN for her chemo treatments. She had 3 induction rounds followed by 3 high dose chemo followed by stem cell transplant. She completed chemo in May, 2019. She was cancer free.

On March 30, 2021, we had a normal MRI scan, and we heard those devastating words again “it’s back” 😭. 

I decided to make this so it would be easier to update everyone. Please keep the prayers coming for our little girl. She is one strong girl and has been through so much already. 

We appreciate every single one of you. 
Desi Brandon Kaitlyn (Pookie) and Family. 

Newest Update

January 04, 2022

Journal entry by Desiree Smith —

Guess what everyone??  

Not once but TWICE, Our little hero Kaitlyn Chloe has kicked cancers ass. 

We had her mri today and that spot is still there, but there is absolutely no defusion or anything indicating that it is an active tumor. Dr Moertel is 100% confident that it has even got smaller since the last scan in November.
Read More of the journal titled "January 04, 2022"
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