Phil’s Story

Site created on April 1, 2019


Phil Grom was diagnosed with ALS on March 13th.  See the ALS Association website for more info. http://www.alsa.org/


This was a bit of a shock as we thought that the problem stemmed from stenosis in three vertebrae in his back. During the pre-op appointment on March 11th, the doctor agreed that there was more going on since back issues don't normally cause weakness in your arms.  Luckily, Dr. Jackson admitted Phil into KU Med and we were able to get an MRI and multiple neurological tests within the span of 48 hours.  Not good news, but we have a diagnosis.


On March 16th, we moved to the Rapid Recovery Center at Pioneer Ridge here in Lawrence to gain some strength and help learn now to deal with our new normal.  He works with OT and PT every day.  With a little assistance, Phil is able to stand and walk for short periods of time with the aid of a walker.  

Newest Update

Journal entry by Katie Grom

Hello everyone.

We're still working on an obituary that will do Dad justice. For now, we'd like to make everyone aware of Dad's Celebration of Life.

It will be on Friday October 25th from 2-5pm at the Union Pacific Train Depot in Lawrence. The address is 402 N 2nd Street. Dad always said he wanted a big party, so we are hoping to keep things pretty casual. We will be providing pizza and an array of beverages.
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