Peter’s Story

Site created on July 1, 2021

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place.  We appreciate your support and words of hope and encouragement. Thank you for visiting.

Katy and I will be the main author's here, sharing what we can about this significant life event. I've been diagnosed with leukemia--specifically Acute Myeloid Leukemia (AML)--and I begin my treatment process on Sunday at Dana Farber Cancer Institute in Boston. The short version is that my bone marrow is not producing blood cells as it should; the factory needs to be shut down completely and retooled. That means intense inpatient chemo at Brigham and Women's Hospital for the next month or so and then time to see if my bone marrow can regenerate proper blood cells. If not, a stem cell transplant could be ahead. All told, the treatment and recovery may take the next 6-12 months. We met with my doctor on Thursday who declared her objective to cure me--to permanently return my body to healthy blood production. I embrace that hope, while recognizing (in the words of my concise spouse) shit can go wrong (!)

This site will be our main way of communicating with you all over these months. It allows us to provide information efficiently, and receive your messages in one place. I don't expect I'll respond expansively, but know that I'm reading, storing up, and calling on all the energy and strength you send.

Newest Update

Journal entry by Peter Garbus

People, it has finally happened. I am actually feeling better with lab work to back it up.  Yesterday's visit to my transplant team at Dana Farber confirmed that my blood has turned the proverbial corner (though we want to remain humble, quiet and non-jinxing here) .  The red blood cells being churned out by my sister's transplanted stem cells have been hanging around longer over the past 3 weeks and I have not needed units of blood each week to supplement. Those pesky old antibodies, perhaps freed from their task by Judy Draper's kind but firm send-off (see comments from the Feb 5 posting) are no longer destroying those young cells. The best proof of corner-turning is that I've been feeling pretty darn good these weeks. There's nothing like progress to show how crappy my condition was for months and months.

At this point, I'm 5 months post-transplant, with roughly 7 months left of diminished immunity and continued recovery. I will still have to watch out for infection, staying away from larger groups of people, wearing a mask indoors, shopping during the 2 half-hour sessions at the co-op for immuno-compromised folks, etc. The warmer weather will open up opportunities to see  more people for walks or front porch visits.  Just text--978-400-1760--if you see an opportunity.

I may post less frequently from here forward, as the hardest parts of treatment are in the past, knock wood. Your concern, support, and well wishes have meant the world to me through my healing. Time to get back to living.

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