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Journal

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July
11
2018

A Warrier Ends With Peace

This one is hardest to write so I will make it brief. After fighting the good fight for 18 months with the love and prayers of you all Paulette is finally smiling down on us all. She passed just after sunrise June 23rd. She couldn’t quit fighting cancer even then and asked that her remains be donated to the Washington University Medical School and they accepted. It was her hope that maybe through her others might be cured. We had a beautiful celebration of life service and reception at our home church. 

I wish I had better words to explain how we cherished and appteciated your encouragement, love and prayers in response to her update journal entries. Please know that we love you all. You and yours will continue in my prayers. 

Love,
Stan

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June
24
2018

Celebrating the life of Paulette

Friends, we will be celebrating the life of Paulette next Sunday, July 1, at 2:00pm at the First United Methodist Church of Lebanon. The address is:

300 N Madison Ave, Lebanon, MO 65536

A reception and meal will be served afterward. 

We kindly request no flowers be sent to the church. In lieu of flowers,  memorial contributions can be made in Paulette's honor to either of the following:

Hope Lodge of St. Louis
To make a contribution online, go to:
donate3.cancer.org/?campaign=hopelodgesaintlouis&_ga=2.255808779.2050214624.1529806113-306834771.1528826388 


First United Methodist Church of Lebanon


Once again the Moore family thanks each of you for your constant and unwavering support through the last 18 month journey. 

June
23
2018

Finally at peace with God

Paulette passed away peacefully around 6:00 this morning. She faced her disease with such courage and grace. We were all inspired by her journey and the way she lived her life.

Over the last 9 days since we left the hospital, we have been seeing rainbows frequently. One of her closest friends said she saw another one just around the time Paulette passed. 

Thank you to each of you for your love, kindness, and friendship.  We will update one last time to announce memorial service schedule. 

For now, here's a picture of a rainbow outside the window where mom spent her last days. It was taken two nights ago.

Love,
Paula

June
15
2018

Home on Hospice

Friends, Paulette was able to come out of her fever long enough to visit with us and learn from the oncologist that there weren’t any good options left.  At that time, she told us that she wanted to go home. She was awake for a few more hours after that, and we got things arranged to come back to Lebanon. Returned home last night.  On the way home, we drove through a horrendous storm - symbolic of her journey this last year and a half, and after that, we saw a very clear rainbow across the sky - a reminder of God’s promise to never leave our side. 

Paulette is home now and has not been communicative with us; an indication that her time is drawing near.  She is surrounded by loved ones, supported by friends, and secure in her knowledge that she is loved beyond measure by all of us and by God. 

If you’d like to stop by for a visit, please contact Stan first. 

-Paula

June
9
2018

A bumpy week

Friends, Paula here.  Mom developed another infection early this week and is finally beginning to pull through it. She is so strong, it’s unbelievable. Plan now is for her to stay in the hospital at least through next week to get another round of chemo and then a white-cell infusion from her donor the week after that.  Keep the prayers coming.  

May
30
2018

Prayers WORK!

Wow. Things have been dark this last week. Fever last Thursday night brought us back to Barnes. Really bad Sunday morning but meds have worked and since then tests negative.

Saw Dr Ghobadi this afternoon. Had been denied 2 drugs but the one they tried has been very effective in decreasing blasts. 

New plan is a combination of two chemo drugs once a week for 2 or 3 weeks then an infusion of white cells from the original donor. He thinks this has a very good chance of success and could lead to remission for 2+ years. Wahoo!

Will be inpatient for now and maybe till treatment complete so they can monitor closely. 

I really believe it was the cumulative effecr of all our prayers!  THANK YOU!
Stan

May
24
2018

Transplant Failure

Bad news this week.  Last week we met with the oncologist and his physician’s assistent and they were all smiles and happy.  Paulette tolerated the bone marrow biopsy very well and we have been so excited about her recovery. We have been on this rollercoaster for so long we should have guessed that it wouldn’t last.  It seems the only thing for sure is that it will change.

Yesterday we went for our follow-up and got the bad news that the leukemia is back, only worse.  The results from the biopsy show that the donor stem cells are diminishing and the leukemia stem cells are taking over again.  We talked a lot about the options and so far there aren’t any real promising ones.  The oncology team recommends oral medications to reduce the number of leukemia cells (called blasts) and hope for remission again.  This is a form of chemo but not a complete course of treatment and is not curative.  We were both devistated but are trying to swallow this pill.  The leukemia is very resistive to any chemo and has morphed from the original type.  It seems pretty easy to knock down but nothing has kept it at bay. My hope is that something new will pop up that we can try.  At the moment there is nothing.

Paulette started one of the new drugs last night and as soon as the other drug is approved by insurance and arrives we will go back to St Louis where she will be inpatient for 4-5 days to get the levels of the medications adjusted and then back home.  We will be able to do the necessary labs and infusions here at Mercy Lebanon.

Thanks for your continuing love and prayers!

Stan & Paulette

May
11
2018

I can’t believe...

I can’t believe that we are getting back to a near normal life.  Sorry I haven’t updated sooner but we seem to never stop running.  Last Saturday Paulette and I went to Springfield.  Had dinner at Mexican Villa with Paula and Day then to Missouri State to see one of the students we sponsored play her flute recital.  Sunday morning Michael and I closed out the spring wild turkey season, but neither saw a turkey.  Paulette drove and went to church by herself (Yea!).  Monday we went to see the doctor at Barnes South County.  Went over all test results with our physician’s assistant.  Still doing very well.  Last Friday we both went to see our new family physician, Dr. Karen Hopkins, in Richland.  Good results all around.  She pronounced us both healthy, considering...  Next Monday we go back to Barnes for several labs and a bone marrow biopsy.  Still working on getting numbers up.  I have been doing yard work and a little judge’s work.  Maybe this is what retirement is really like!
Love to you all!
Stan