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May
22
2019

May 22, 2019

Cleveland’s awake asking for his banana and singing.  Therefore, I’m awake listening to him singing and trying to keep up. Consistent interaction with patients with brain disorders is essential to keeping them talking and responding. We’ve never stopped talking to him whether in his reality or otherwise. It’s proven to be beneficial...after 12 years he’s still talking.  Praise God. 

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May
22
2019

May 21, 2019

Interesting, is the word, “Sundowning” which is so loosely used with ALZ patients. 
Since we are dealing with a disease that does not discriminate, it simply strikes; It’s anyone’s disease, but definitely an individual journey.... therefore where did the word come from definitively?

As a caregiver, I’m in constant on-the-job-training mode. My caregiver successes in this journey have been the results of trials, errors, failures and sharing and receiving information and findings from other caregivers, also through my ALZ social media teams.  

Ok, let’s take a look at this term Sundowning. From my perspective, I took it literally and acted accordingly. My husband is bedridden.  The head of
his bed faces patio doors. Therefore, he never sees the sun going down. While it’s still light outside, I turn the lights on and close the curtains. When he goes to sleep the light over his bed is turned off.  He awakens each morning seeing daylight through opened curtains. Fortunately, for us we are yet to encounter the agitation allegedly caused by the term, “Sundowning.”  Again, ALZ is an individual journey, there are no cures, there are no remedies to stay the progression of the disease.  So, thus far our best source of caregiving resources is from caregivers. Let’s keep sharing.  Sure, we hope to EndALZ, but until then let’s give patients with brain disorders the best possible care available...listen to caregivers.