Paige’s Story

Site created on May 2, 2021

In January, Paige began feeling discomfort in her legs and lower back.  After multiple doctor’s appointments, tests and scans we have learned that Paige has a tumor in and around her lumbar spine. On April 9th Paige had to have a surgical biopsy to determine the stages and classification of the tumor. On April 12th, Paige was diagnosed with B-Cell Lymphoblastic Lymphoma. The medical team’s prognosis is favorable, however Paige’s journey involves an aggressive chemotherapy treatment that began last week and will continue for over two years.

These next few years will be a battle and change her life forever.  Here are things you need to know about Paige; she is an honor student in her sophomore year at Penfield High School. She is also a high school soccer player, competitive cheerleader and on Penfield Strikers Travel Team. Paige is funny, thoughtful, organized, fiercely competitive and resolute. She has faced each step with courage and determination. 

Paige is a friend, sister, daughter, granddaughter, niece and cousin. 

Paige is a warrior. 

We are so grateful for all of the love and support in our community and for the amazing team of medical professionals at Golisano Children's Hospital. 

Please keep rooting for Paige and follow along her journey as we BEAT cancer together!

Newest Update

Journal entry by Esther Marino

Today we are filled with gratitude to celebrate Paige’s 19th birthday. We were able to take her to lunch at college and share some time together. This is a time of new beginnings for Paige.
 All of her scans in late December came back clear and her bloodwork has looked great. Paige had her port removed in early January- another sign of progress and recovery. Paige has one more month of antibiotic infusion treatment, after which she’ll continue to have monthly labs and checkups with her oncologist through September, which will mark the end of year 1 off-therapy. Her doctor recently reassured us that Paige has been in remission for a long time, and as time passes the risk of relapse is greatly reduced. Paige will have surveillance scans every 4 months this first year and we expect those will be spaced out moving forward. The team said the bloodwork is the primary surveillance with her type of lymphoma, along with physical exams, which will stretch to every 2 months in year 2, every 3 months in year 3, etc.  Once Paige reaches the 5 year mark (September 2028) she will transition to a survivorship doctor to help monitor for long term effects of her treatment. 
We’ve often felt that we are the lucky ones - for an amazing medical team & hospital, network of family and friends to support us, and for a diagnosis that while presenting a brutal treatment path yielded a positive outcome for Paige.  She is unstoppable and has a bright future ahead. In some unexpected way we are all better for this experience. 
Recently we’ve had friends , family & colleagues experience their own medical challenges and loss. Now is our time to be there for others.  For all of you who helped lift Paige and our family over the last several years…we hope you are able to continue to support and lift someone else in need. Whether it’s through continued blood donation, sharing a meal, or just listening - all of the support makes a difference. 
With love and gratitude,
The Marino Family 


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