I will try to make entries into the journal everyday. If I miss a day, I promise to catch up on the next day!! We love you all!! Please keep Paul in your prayers.
I know everyone is anxiously awaiting my posting. The nausea just won't let up. The vomiting started at 3 am and finally subsided at 7am. Had to go out at 7am to find Maalox. He sleeps in the bed for a few hours, then up because the nausea wakes him. He then goes to the recliner in the living room, sleeps for a few hours and up again. He didn't vomit again until almost 7pm this evening. That was a short episode. I remembered when we fly, Paul wears Sea Bands, used for motion sickness. He suffers from vertigo and can not go on boats, has problems with planes or just being a passenger in a car. The bands are worn on your wrist and they each have a pressure point "nub" that you position on your wrist. I couldn't find ours so I went to the local drug store and bought the last ones!! I am desperate here!! I will try anything that might work. So far he has been in the recliner and slept. He wakes every 45 min or so, mumbles and goes back to sleep. For me that is wonderful. Before he was like a yoyo between the bed and the recliner just waiting to vomit.
We have a radiation appt at 8:10am and a follow up appt at the Oncologist at 9:45am tomorrow. I just pray that the nausea subsides so he can start eating.
I can not believe it's only day 3. It feels like day 30!! It doesn't help either that Paul is stubborn, isn't known to take meds, so he questions everything he takes! Has the outlook of, lets wait and see maybe it will clear up on its own....ughhhh. That isn't going to happen.
I just want to say to everyone posting in the guestbook, Thank you!! You are all so inspirational. He hasn't been able to read the last postings but I have mentioned them to him. Along with the nausea, he also has blurred vision and a loss of hearing. All of this is temporary. It just adds insults to injury :-(
Tomorrow is a new day. I hope to bring better news to all. Thank you for all of your support. It helps us both tremendously. Love you all.........
It has been a good day so far. As mentioned in last evenings journal about the higher calorie Carnation VHC and Benecalorie only available online. I should have mentioned that as soon as I got home yesterday and fed Paul, I was online ordering a case of each!! I should have them in a few days.
Thank you Carole about the best price found at Walmart of $35.99 for the Benecalorie! That is huge since I paid $42.99 for a case on Amazon. I will have to check them out for the next one I order. Also, a huge THANK YOU to Sandra, my very very good friend who has already ordered a case for us and should arrive tomorrow!!
As for today, it was radiation at 8:10am. We were in and out within 30 minutes. However, we had to run a couple errands on the way home and that totally exhausted him. We have managed to get 840 calories in the feeding tube today. I am hopeful we can get the last 280 calories in at the end of the night.
Another one of the many many side effects is constipation. The meds cause it, the chemo, the radiation and the lack of real food (especially solid foods). So now we have to add milk of magnesia to the daily routine. Once it passes we will be taking Senokot-S in pill form to help keep regular. Last night started the cramping in the stomach for lack of being regular. I managed to split the dose of milk of magnesia into the two feedings. The nurse today said it should take about 8 hours to start working. Well she was right!! It took 8.5 hrs!! He's starting to feel a little better already. Now I know there's going to be room tonight for those last 280 calories....whoo hooo.
Another side effect of the radiation is the loss of saliva. This has already started to happen. The thick mucousy phlegm he is experiencing is actually his saliva thickening. We already have several remedies in place to help combat this. One is called Caphosol, relatively new to the market, it is known as artificial saliva. He swishes this in his mouth then swallows it 4-6 times a day. In addition, there is Nystatin, an anti-fungal oral rinse. Again because of the lack of saliva his mouth & tongue are developing a fungus in his mouth. The dentist prescribed a "Magic Mouthwash". It helps with pain in the mouth and numbs the throat and mouth for temporary relieve. He also has to use Biotene, a mouthwash for dry mouth. Let's not forget in addition to regular brushing with toothpaste he also has to use a flouride gel afterwards, called Prevident.
Paul is also doing better today because he has only taken one nausea pill. The nausea has subsided today. He is much more alert and didn't sleep quite as much. He was suppose to have a double dose of radiation tomorrow. However, we have a big nor'easter heading our way. (It has now been downsized since this morning and appears to be blowing over and we will probably not get more then an inch or so). The radiation techs informed us this morning they will be opening late therefore, our 8:10 am is canceled. We still have to go at 2:30pm tomorrow for what would have been the second dose of radiation. Instead the double dose is rescheduled for friday the 14th.
Paul & I would like to give a huge thank you to the Children's Guild for the beautiful plant/flower arrangement that arrived today. Unfortunately, Freddie our mane coon cat thinks it for him so I have had to find a place very high in the house so he doesn't eat it!! I think if I get a plant hanger I can hang it from a ceiling hook and we can admire it better.
Today marked our first full week under our belt. One down and five more to go. Getting the routine down and reminding him and/or helping him with all the extras that have to be done every 2-3 hrs is the most demanding right now.
I will close with high hopes that the snow storm will not make any drastic changes in its path and that tomorrow will continue as today, to be a good day.
Site created on December 30, 2010
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